kathybourinot
10-29-2006, 02:03 PM
:confused:
Hi Everyone,
I was just diagnosed with Parkinson two weeks ago. Are these also symptoms of Parkinson? Sometimes my whole body feels like someone took a hammer and beat my body with it. I feel like all my fingers are broken. I fall and sometimes can't walk. Then the next day I feel fine and have no symptoms until the day goes on.
I am 67 years old and I feel such compassion for all of you, especially the younger ones. I get depressed now. Is that part of the disease?
Thanks for your time. God Bless,
Kathy
Hi Everyone,
I was just diagnosed with Parkinson two weeks ago. Are these also symptoms of Parkinson? Sometimes my whole body feels like someone took a hammer and beat my body with it. I feel like all my fingers are broken. I fall and sometimes can't walk. Then the next day I feel fine and have no symptoms until the day goes on.
I am 67 years old and I feel such compassion for all of you, especially the younger ones. I get depressed now. Is that part of the disease?
Thanks for your time. God Bless,
Kathy
Sponsor
JILLIKEN
11-07-2006, 06:52 AM
Hi Kathy,
so sorry to hear of your diognosis, and i can imagine you have a million and one thoughts going through your head at the moment. I was diognosed 2
1/2 years ago, and although i'm certainly no expert, i do know that with PD no two persons symptoms are the same. I suffer from rigidity and slowness of movement, internal tremors but my outward tremor is very seldom noticable unless i am in a stressfull situation. I do not have any pain, but i understand that many people with pd do. I suffer more if i cant sleep or rest, and sleep i have found is probably the most important factor to my well being. I still work 6 hours/day as a supervisor and stock controller, I still run around for my two kids, and can still play squash and do housework. Every now and then I get down about my condition, and shed a few tears, mainly due to frustration, which is probably natural. I dont know about your symptoms, because i do not have them myself, but one thing is that you are not alone, we are all in the same boat so to speak, and we are all striving for the same outcome - a cure! Try to stay positive, (having PD is a blessed nuisance) but when you cant there are plenty of people here and elsewhere who can help.
Take care
Jill
PS - Difficulty walking and depression are both symptoms of PD
l
so sorry to hear of your diognosis, and i can imagine you have a million and one thoughts going through your head at the moment. I was diognosed 2
1/2 years ago, and although i'm certainly no expert, i do know that with PD no two persons symptoms are the same. I suffer from rigidity and slowness of movement, internal tremors but my outward tremor is very seldom noticable unless i am in a stressfull situation. I do not have any pain, but i understand that many people with pd do. I suffer more if i cant sleep or rest, and sleep i have found is probably the most important factor to my well being. I still work 6 hours/day as a supervisor and stock controller, I still run around for my two kids, and can still play squash and do housework. Every now and then I get down about my condition, and shed a few tears, mainly due to frustration, which is probably natural. I dont know about your symptoms, because i do not have them myself, but one thing is that you are not alone, we are all in the same boat so to speak, and we are all striving for the same outcome - a cure! Try to stay positive, (having PD is a blessed nuisance) but when you cant there are plenty of people here and elsewhere who can help.
Take care
Jill
PS - Difficulty walking and depression are both symptoms of PD
l
kathybourinot
11-09-2006, 12:15 PM
Thanks so much Jill for answering me. It helped a lot.
God bless you, you have so much to do. I have been going to Physical therapy and they have been making me do stretching excercises. I can hardly believe how much it really helps.
Kathy
God bless you, you have so much to do. I have been going to Physical therapy and they have been making me do stretching excercises. I can hardly believe how much it really helps.
Kathy
SafetyJ2006
11-17-2006, 04:37 AM
Hi ladies, I was diagnosed in 1996. To tell you the truth,, I was relieved that I only had PD. I thought I had Lou Gehrig's Disease! I've had my ups and downs over the past ten years, getting my medications right and learning to live with the immobility problems. I even went through a period of homelessness and was quite self-destructive. My life is great now. I've got a wonderful neurologist who has my symptoms well under control. I am working and getting paid the highest salary of my life. Last December 23, I married my new bride and she's 16 years my junior. Life is good. PWPs are fighters. Join a support group and you will find that out.:blob_fire
blessedw/yungpd
12-08-2006, 04:45 AM
Hi
I am no expert either. Everyone Pd is different.. I am 41 and have had it for 15 years.. It can change from one moment to the next.. I find that eating rt.. not big meals but maybe 6 lil times a day aand taking naps even its for 5 mins help. But, I hate to tell you these systoms are light to what you have in store,, I feel fine now but 10 mins ago I was on the floor. It like a charlie horse.. My arm draws up and my foot gets in a knot.. I am lucky my husband or my son rub it out for me.. I have also learned that when i feel bad and my body feeling that way i sit in a tub of water.. I wish i could afford a hot tub .. But, the water seems to sooth it.. My systoms are sever even with the DBs.. I'll spare you unless you like to know.. But, if i take care myself and keep stress down I get to go dancing to lynard sknard sometimea
I am no expert either. Everyone Pd is different.. I am 41 and have had it for 15 years.. It can change from one moment to the next.. I find that eating rt.. not big meals but maybe 6 lil times a day aand taking naps even its for 5 mins help. But, I hate to tell you these systoms are light to what you have in store,, I feel fine now but 10 mins ago I was on the floor. It like a charlie horse.. My arm draws up and my foot gets in a knot.. I am lucky my husband or my son rub it out for me.. I have also learned that when i feel bad and my body feeling that way i sit in a tub of water.. I wish i could afford a hot tub .. But, the water seems to sooth it.. My systoms are sever even with the DBs.. I'll spare you unless you like to know.. But, if i take care myself and keep stress down I get to go dancing to lynard sknard sometimea
kathybourinot
01-04-2007, 05:41 PM
yeah, i know last week i was on the floor for four hours, i live alone and can't afford the alarm thingy. the meds are starting to work now; but every four hours they wear out. pls. tell me what is in store. i need to prepare.
sunshine221
01-18-2007, 11:20 PM
Jill - I've had spinal stenosis but over a year after surgery I was just told I might have PD as well. My symptoms are very similar to yours - gotta run now but I look forward to catching up on the posts on this board.
-Gloria
-Gloria
blessedw/yungpd
02-03-2007, 07:33 PM
the best thing to do to prepare is get as much of the stress factors out of your life, eat right, and sleep. I can't even roll over some days. My husband that I have only been married to for 4 yrs at times does everythiing for me at times. But, I tell you believing in God helps. You wouldn't believe what the lack of education there is on PD.. I have went to an emergegency rom once. When the doctor came in he said why you laying on youstomach on the floor,, get up and roll over I said I can't, He said you walked in here.. The he ask what is thiis Dbs is it for the heart or or for pd.. I was even handcuffed and almost arrested once for being drunk ,, I cried told them it was PD they tried to get me walk by dragging me .. They told me I was fakingit.. No one believes that the slightest stress can shut you down,,, The dyskensa friom the years of sinemet make people treat you like your are mental,,,,,.. At 41, I pee my pants at tines droolbreak bones and fall often,, The mirapes can cause mental disorderss which leave room for people to ridicule you too... here is something my niece of all people posted on a forum
Stealthypanda
Basic training
But I do pity you. I know that you are being treated for PD and that the medication they give you consists of Dopamine, because PD is said to be caused by insufficient Dopamine. But some cases, people with PD have symptoms of Schizophrenia because they have excess Dopamine now. So, I feel for you. Having Schizophrenia is hard to live with. And I understand you have to make things because of Delusions. So...how irrelevant is this topic? Very.
This is some of things that you must or might face but Remeber that the Lord gives us no more than we can Handle..
Thru all this when I on my good times I still do whatever I want
Stealthypanda
Basic training
But I do pity you. I know that you are being treated for PD and that the medication they give you consists of Dopamine, because PD is said to be caused by insufficient Dopamine. But some cases, people with PD have symptoms of Schizophrenia because they have excess Dopamine now. So, I feel for you. Having Schizophrenia is hard to live with. And I understand you have to make things because of Delusions. So...how irrelevant is this topic? Very.
This is some of things that you must or might face but Remeber that the Lord gives us no more than we can Handle..
Thru all this when I on my good times I still do whatever I want
speck
02-04-2007, 02:22 PM
Kathy hun,
I'm sorry to hear you've been diagnosed.
Whilst i don't have it myself, i was a carer for a family member who did.
I know your probably going through a host of various emotions right now, just know that your in our thoughts x
I'm sorry to hear you've been diagnosed.
Whilst i don't have it myself, i was a carer for a family member who did.
I know your probably going through a host of various emotions right now, just know that your in our thoughts x