naren21
03-01-2001, 06:23 PM
Hi,
I am a guy I have been on Dilantin for 5 years. I got a seizure suddenly when I was 25 and the doctors could find no reason why. I have been seizure free since. So now, I am seeing some side effects:
a. Having increased hair growth on my face. Can anyone suggest any method other than shaving to prevent it? Any prescription creams etc. Also have started getting acne?
b. Am having bad breath and starting to see gingivitis. Although I brush twice a day and floss, I still feel I have this problem.
Has anyone faced similar problems on Dilantin? and any suggestions would greatly help me.
Thankx.
Nn
I am a guy I have been on Dilantin for 5 years. I got a seizure suddenly when I was 25 and the doctors could find no reason why. I have been seizure free since. So now, I am seeing some side effects:
a. Having increased hair growth on my face. Can anyone suggest any method other than shaving to prevent it? Any prescription creams etc. Also have started getting acne?
b. Am having bad breath and starting to see gingivitis. Although I brush twice a day and floss, I still feel I have this problem.
Has anyone faced similar problems on Dilantin? and any suggestions would greatly help me.
Thankx.
Nn
Sponsor
Candida
03-02-2001, 12:48 PM
I don't know too much about Dilantin side effects, but if you go to www.healthboards.com/epilepsy/ (http://www.healthboards.com/epilepsy/) which is the original healthboard, before they updated the site to this one, there is a boat load of stuff that people have written about Dilantin side effects. You should be able to find some useful stuff there!
Good luck!
Good luck!
termar66moc
07-15-2006, 07:47 PM
Hi,
I am a guy I have been on Dilantin for 5 years. I got a seizure suddenly when I was 25 and the doctors could find no reason why. I have been seizure free since. So now, I am seeing some side effects:
a. Having increased hair growth on my face. Can anyone suggest any method other than shaving to prevent it? Any prescription creams etc. Also have started getting acne?
b. Am having bad breath and starting to see gingivitis. Although I brush twice a day and floss, I still feel I have this problem.
Has anyone faced similar problems on Dilantin? and any suggestions would greatly help me.
Thankx.
Nn
I am a guy I have been on Dilantin for 5 years. I got a seizure suddenly when I was 25 and the doctors could find no reason why. I have been seizure free since. So now, I am seeing some side effects:
a. Having increased hair growth on my face. Can anyone suggest any method other than shaving to prevent it? Any prescription creams etc. Also have started getting acne?
b. Am having bad breath and starting to see gingivitis. Although I brush twice a day and floss, I still feel I have this problem.
Has anyone faced similar problems on Dilantin? and any suggestions would greatly help me.
Thankx.
Nn
termar66moc
07-15-2006, 07:52 PM
My daughter has been on Dilantin for 23 years, and has had constant gum problems, with her gums being anywhere from infected, to growing over her teeth...the dentist recommended gum surgery, to have them cut, but as yet she is flossing and using the sonar brush. Also having them cleaned every 6 months seems to help a little, although she has lost a couple back teeth.
She also has abnormal hair growth on her face, which is common with dilantin, but has not had acne or skin eruptions.
She also has abnormal hair growth on her face, which is common with dilantin, but has not had acne or skin eruptions.
IJUSTWANNANO
07-15-2006, 08:55 PM
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jay1958
07-16-2006, 01:03 AM
Hi Nn, These are common "short term" side effects of dilaantin use. I'm more worried about the long term side effects. I've been taking dilantin for aboout 20 years, I've never had a problem with my gumms but have had some strange facial hair growth. I get hait growing on the front of my nose.LOL The long term side effects include things like thinning of bones and live damage. I get my live function checked every 6 months, it's still OK. I've broken bones but anyone would falling like I have in some of the seizures. I would keep an eye on your gumms and darkening of your teeth and broken bones. If dilantin controls your epilepsy, I'd be happy, I would. Good luck.
Jay
Jay
frickin
07-16-2006, 03:19 PM
If you only had a seizure once 5 years ago, no reason or explanation was found, why haven't you tried to get off? Normally, if seizure free for 2 years GOOD dr's will try to wean you off the drug. Heck, if I only had one 5 years ago I would have removed it from my system myself.
neurowreck
07-16-2006, 06:17 PM
I was on 700mg of Dilantin/day (night dose- half life doesnt need it spread through out the day), and did ok for a while, but then my liver enzymes went nuts. I was on a horrible dose, but it's the only one that kept seizures in control and kept levels ok. Had to stop all AEDs for a while... liver enzymes went back to normal.
Gum problems are very common with Dilantin, and facial hair is another side effect that isn't unheard of. Some people have to have parts of their gums removed.
Gum problems are very common with Dilantin, and facial hair is another side effect that isn't unheard of. Some people have to have parts of their gums removed.
shiqueen
07-17-2006, 05:31 PM
Ive Been On Dilantin For 23 Years Even Though I Only Have A Seizure
Every 5 Or 7 Years.if I Stop The Medicene I Will Have One. I Dont
Have Any Problems With My Gums;however I Have Always Been Very
Diligent With Tooth Care(flossing & Mouthwash).i Have A Liver
Panel Done Every 6 Months And Thats Still Ok.dilantin Is Hard On Your Bones So I Take A Calcium Supplement .Also THE OTHER SIDE
Effect Is It Makes Me Very Tired All The Time Even Though I Try To
Get Plenty Of Sleep. I Think The Known Side Effects Of Dilantin
Are Going To Effect Everybody Differently. But We Have To Stay
On It To Prevent The Seizures.who Knows-a Different Medicene
Could Bring Much Worse Side Effects.
Shiqueen
Every 5 Or 7 Years.if I Stop The Medicene I Will Have One. I Dont
Have Any Problems With My Gums;however I Have Always Been Very
Diligent With Tooth Care(flossing & Mouthwash).i Have A Liver
Panel Done Every 6 Months And Thats Still Ok.dilantin Is Hard On Your Bones So I Take A Calcium Supplement .Also THE OTHER SIDE
Effect Is It Makes Me Very Tired All The Time Even Though I Try To
Get Plenty Of Sleep. I Think The Known Side Effects Of Dilantin
Are Going To Effect Everybody Differently. But We Have To Stay
On It To Prevent The Seizures.who Knows-a Different Medicene
Could Bring Much Worse Side Effects.
Shiqueen
Kodo
07-17-2006, 09:13 PM
I've been swallowing those dilantin pills for about twenty years. I never recalled being told some facts when I started taking the drug, but since then have stumbled upon several hints, for instance the drug can cause teeth and gum problems, so brushing and flossing is important. I remember when I first flossed, my slightly swollen and sensitive gums really bled, but now they have definitely toughened up., and all my teeth are still present accounted for!
One note I have verified with my neuro regarding dilantin – the drug can effect your calcium level so he recommends that I take a multivitamin and a calcium tablet daily. Ironically, the calcium can effect the dilantin level if they are taken too close together, so the the dilantin and vitamin tablets should not be taken within 3 hours of each other to play it safe.
kodo:cool:
One note I have verified with my neuro regarding dilantin – the drug can effect your calcium level so he recommends that I take a multivitamin and a calcium tablet daily. Ironically, the calcium can effect the dilantin level if they are taken too close together, so the the dilantin and vitamin tablets should not be taken within 3 hours of each other to play it safe.
kodo:cool: