duttin
11-17-2006, 11:03 PM
explain there fatigue that comes with MS.The reason I'm asking is here lately I can fall a sleep in an instant.It don't matter if I'm walking through the mall,driving,doing dishes or watching TV.I first thought it maybe my meds but I've taken the same ones for over 8 months now.Its starting to effect me.I fell a sleep at my ma's house tonight with a house full of people.I take a nap everyday.Its got me a little concerned.
Toni
Toni
Sponsor
rilsam
11-18-2006, 02:22 PM
My fatigue is all over tiredness in my muscles. I feel like I've exercised a bunch and just can't do anything any more. It had gotten so bad that after I'd make a sandwich for lunch, I would have to rest before I could eat it. But I never fell asleep. My neighbor's father had MS. He would have to take daily naps to keep functioning. Why not leave a message for your doc and ask if you need to be seen? Since it is worring you maybe he can do something to help. Also check your meds. Make sure that all the pills look the same as the old ones from previous bottles. Pharmacists have been known to give wrong meds or higher doses by accident.
Go Buckeyes!
Shelly
Go Buckeyes!
Shelly
duttin
11-18-2006, 07:23 PM
Shelly,
Buckeyes are winning!!!!Came through Columbus earlier its a hoppin town today.
I have muscle fatigue,but this is completly different,I'm mean boom I'm asleep, and its good night Irene.I'm asleep.the meds are the same I have taken for a year.
I went today to see my nephew in minimal secured prison,I sat there and fell asleep 3 times,became some what disoriented.My sister wanted to take me to university hospital,I declined,after a few large cups of coffee,I was okay for a little while
Toni
Buckeyes are winning!!!!Came through Columbus earlier its a hoppin town today.
I have muscle fatigue,but this is completly different,I'm mean boom I'm asleep, and its good night Irene.I'm asleep.the meds are the same I have taken for a year.
I went today to see my nephew in minimal secured prison,I sat there and fell asleep 3 times,became some what disoriented.My sister wanted to take me to university hospital,I declined,after a few large cups of coffee,I was okay for a little while
Toni
rilsam
11-18-2006, 10:43 PM
Toni,
Buckeyes won!:blob_fire My husband went crazy! We had several family members go to the game and stadium. They better win their bowl game.
I haven't read anything or know of any MS symptom that would make you fall asleep like that. It makes me think of narcolepsy. I would definately get it checked out a.s.a.p. I don't think you need to go to the e.r. but should be seen early this week. When you go to sleep at night is it good sleep and how long do you sleep? If you live with someone ask them if you snore or if you don't, have someone stay with you at night to see if you snore or hold your breath at night. The snoring and breathing is really important to know.
Shelly
Buckeyes won!:blob_fire My husband went crazy! We had several family members go to the game and stadium. They better win their bowl game.
I haven't read anything or know of any MS symptom that would make you fall asleep like that. It makes me think of narcolepsy. I would definately get it checked out a.s.a.p. I don't think you need to go to the e.r. but should be seen early this week. When you go to sleep at night is it good sleep and how long do you sleep? If you live with someone ask them if you snore or if you don't, have someone stay with you at night to see if you snore or hold your breath at night. The snoring and breathing is really important to know.
Shelly
duttin
11-19-2006, 09:44 AM
Shelly,
When I go to sleep at night I sleep good at least 8 hours and take a nap during the day.This has just been in the last few days.
No I don't snore,hubby says I don't even move at night.I'm hoping its just from doing to much the past few weeks.
Yes,bucks should win national championship!
April,
Thanks for the info,I've experienced fatigue before,after physical therapy I would sleep for hours.I have been fatigued after getting overheated.I don't suffer from depression or stress.
I'm beginning to beleive I'm having a flair up,my eyes are blurry,right sided numbness head to toe,swaying back and forth.My balance has been bad for 3 days now.Plus my body has a full blown buzzing.I almost had my daughter take me to the ER last night.Its not much better today.I'm trying to wait it out and call neuro tomorrow.
Toni
When I go to sleep at night I sleep good at least 8 hours and take a nap during the day.This has just been in the last few days.
No I don't snore,hubby says I don't even move at night.I'm hoping its just from doing to much the past few weeks.
Yes,bucks should win national championship!
April,
Thanks for the info,I've experienced fatigue before,after physical therapy I would sleep for hours.I have been fatigued after getting overheated.I don't suffer from depression or stress.
I'm beginning to beleive I'm having a flair up,my eyes are blurry,right sided numbness head to toe,swaying back and forth.My balance has been bad for 3 days now.Plus my body has a full blown buzzing.I almost had my daughter take me to the ER last night.Its not much better today.I'm trying to wait it out and call neuro tomorrow.
Toni
rilsam
11-19-2006, 10:59 AM
Toni,
I know Thanksgiving is this week but can your rest and do minimal activity? If this doesn't work the docs will probably want you to do a sleep study. But even with increased activity you shouldn't just fall asleep. And how much can you trust your husband? LOL. Mine sleeps like the dead and doesn't wake for anything.
Shelly
I know Thanksgiving is this week but can your rest and do minimal activity? If this doesn't work the docs will probably want you to do a sleep study. But even with increased activity you shouldn't just fall asleep. And how much can you trust your husband? LOL. Mine sleeps like the dead and doesn't wake for anything.
Shelly
duttin
11-19-2006, 11:32 AM
My hubby is pretty reliable.
Thanksgiving is 4 days away.I am having family dinner this year.House is all clean already except for usual pick up and vaccuming.My daughters will be home to help on wensday.My ma and sisters will be over on wensday night to help get all prep work done.Now I hope they stay to clean up
I will ask neuro about sleep study.
Thanksgiving is 4 days away.I am having family dinner this year.House is all clean already except for usual pick up and vaccuming.My daughters will be home to help on wensday.My ma and sisters will be over on wensday night to help get all prep work done.Now I hope they stay to clean up
I will ask neuro about sleep study.
rilsam
11-19-2006, 12:23 PM
Try to rest as much as possible and keep up your naps. Remember turkey has tryptans that will make you more tired after eating it. Let me know what your neuro says.
Shelly
Shelly
tanda156
11-19-2006, 04:10 PM
Nuffs,
Go to the Mational multiple sclerosis website under symptoms they list alot about fatigue
Go to the Mational multiple sclerosis website under symptoms they list alot about fatigue
duttin
11-19-2006, 04:58 PM
Shelly,
Talked to neuro,he's great he returns calls even on weekends.He stated welcome to relapse 101.He's such a dork.I give him all the other symptoms out of the norm.He said he'd call a med in tomorrow to my pharmacy and he'd call back tomorrow afternnon and check on me.In the mean time just sleep.I did take a 4 hour nap earlier.
He can't do much more than that I'm allergic to steroids.I do have an appointment with him on the 30th.
Talked to neuro,he's great he returns calls even on weekends.He stated welcome to relapse 101.He's such a dork.I give him all the other symptoms out of the norm.He said he'd call a med in tomorrow to my pharmacy and he'd call back tomorrow afternnon and check on me.In the mean time just sleep.I did take a 4 hour nap earlier.
He can't do much more than that I'm allergic to steroids.I do have an appointment with him on the 30th.
rilsam
11-19-2006, 06:26 PM
I'd be interested in knowing what med he'll give you to keep you awake. Well that bites if a relapse can make you fall asleep at a drop of a pin. Cymbalta did that to me and therefore I'm not on it anymore. Does napping help with not falling asleep at other times?
duttin
11-19-2006, 07:03 PM
My 4 hour nap helped short term,I could go back to sleep.I don't think he's just looking at the fatigue,he's adding all the symptoms together.I have no clue what he's calling in.I guess I'll know tomorrow.
rilsam
11-19-2006, 10:09 PM
Let me know what he orders tomorrow. Two weeks for a doctors appt. can seem so far away when you don't feel good. But I know it's because he wants to see if the meds work, but in my utopia world they should know in two days and have a magic pill to cure everything. Do you think my utopia world will ever come true? I got to have hope.
duttin
11-19-2006, 10:28 PM
That isn't that far away.It was my choice,it was already scheduled 2 months ago.I have another appointment afterwards with my electro-muscular Dr.She follows the progression of my muscles through electro test.The dreaded EMG/NCS and any other test that uses electric.She's aewsome and its generally painless and she'll set them up in 2 day increments instead of frying me all at once.Plus I'd like to convince her into saying I don't need the leg braces unless for outside use or long walking,now thats my utopia world.
You utopia world seems to be a great place but unrealistic,but theres always hope.
I'll let you know what he calls in
You utopia world seems to be a great place but unrealistic,but theres always hope.
I'll let you know what he calls in
rilsam
11-19-2006, 10:38 PM
I haven't had an EMG yet. That's next if my muscle twitches don't go away with the zanaflex. If I'm just looking for my personal utopia and not the worlds, I just want not have the fatigue. I can live with the pain and everything else but I miss being able to do more with my kids.
duttin
11-19-2006, 10:59 PM
Hope the zanaflex works for you.I take that and baclofen for the nasty spasms.The fatigue will pass,I hope.I do with my children what I can on the days I can.
rilsam
11-20-2006, 03:07 PM
The zanaflex is working to the point that I don't want to cry when I go grocery shopping but the tightness hasn't left yet. I don't take medication very well. I seem to get a lot of the side effects so I'm on the lowest dose for 2 weeks before she increases. I went grocery shopping today so I'm pretty wiped out. My husband cooks on these days. I've been lucky to have him. He might not really understand but he knows I do what I can.
duttin
11-20-2006, 06:57 PM
The zanaflex can take some getting use to.I take that and the baclofen together 4 x a day.Its the only way I can function without the cramps and pain.I went grocery shopping today also,it kicks my butt.My hubby does nothing around here unless I scream,I mean nothing.He'd let this house fall around him.I think he mowed once in the last 2 years and you'd thought I tortured him.
My neuro put me on provigil for fatigue.I'll take it tomorrow.I hope it gives me some energy.Tired of sleeping all the time.
My neuro put me on provigil for fatigue.I'll take it tomorrow.I hope it gives me some energy.Tired of sleeping all the time.
rilsam
11-20-2006, 09:13 PM
I did a brief look up on the med. So basically he's treating you for a narcolepsy type disorder. I really hope it works for you. It's bad enough not feeling good but then to be falling asleep or wanting too all the time must be really hard. I've had problems with insomnia off and on and I know how it feels to always be tired and trying to get things done. I'm pretty lucky with my husband. He doesn't like cleaning the house but every few months he helps. He's good with the cooking and the laundry (but not putting it up) and he helps with the kids. I use to take care of the lawn but he picked that up this past year. It's hard on him since he works then comes home and helps me. And if things don't get done, they just don't get done. I'm learning to appreciate a dirty house with just one clean thing twice a week (if even that). I don't think I'm nearly as bad as you. My doc seems to think I will have a more mild MS. Right now I only have stabbing pain that last a few moments, the muscle tighness, fatigue and some peripheral vision loss. I've lost several symptoms over the last few weeks. Yea!
duttin
11-21-2006, 11:06 AM
Glad your symptoms are subsiding.
Provigil is used for treating fatigue in MS.We'll see how much it helps.
I'll see how much help I get today and tomorrow.Having Thanksgiving at my house ,my teenagers said they'd help but right now my 15 year old son and 17 year old daughter are playing swords in the family room with the brooms.I think the older they get the more they become immature.Maybe as the day progresses they'll get their list of chores done.Its like a zoo around here today.I wish I had their energy.
They laughed earlier because my eyes were doing their funky thing and one goes one way and the other goes the other way.I didn't tell them that I had double vision.I can only handle one of each today.
Provigil is used for treating fatigue in MS.We'll see how much it helps.
I'll see how much help I get today and tomorrow.Having Thanksgiving at my house ,my teenagers said they'd help but right now my 15 year old son and 17 year old daughter are playing swords in the family room with the brooms.I think the older they get the more they become immature.Maybe as the day progresses they'll get their list of chores done.Its like a zoo around here today.I wish I had their energy.
They laughed earlier because my eyes were doing their funky thing and one goes one way and the other goes the other way.I didn't tell them that I had double vision.I can only handle one of each today.
rilsam
11-21-2006, 02:23 PM
Be happy your kids are playing and not fighting. Mine don't get out of school untill Thursday. I have a 8 and 9 year old, both girls. Sometimes they're the only things that keep me going. Other times I want to run a way from home because of them. They can become very emotional over things. The youngest cried for about 30 min. because her bug died. But they're pretty good kids. I couldn't ask for better. I've often said energy was wasted on the young. We're staying home too for Thanksgiving and that is one thing I'm truelly thankful for.
duttin
11-21-2006, 04:13 PM
Provigil ain't working.My kids are good.I get tired of the horse play some days,especially if I'm trying to get things done.I've got 19 people coming on Thursday.Trying not to stress.
rilsam
11-22-2006, 02:11 PM
19 people is enough to stress anyone out. Good luck and remeber to ask for help. It's only going to be us four. This is going to be the first time in over 5 years so I'm really looking forward to it. I had a teribble afternoon and night yesterday. The tightness and pain had me crying on and off all evening. Of course I slept terrible. I had a thoracic MRI done this morning. Finally the last of my spine. It's sad to go there and people know you by your first name. Since nothing else shows lesions I don't know if I want this to or not. It would be nice to be dx. but it's also nice that the damage isn't showing up yet. I guess what will be will be. My neuro told me that an article was just written of a woman that took 9 years for lesions to show. So far that is the longest recorded time. Does the provigil take time to work or were you suppose to see immediate results? I'm so sorry it's not working. Did he say he had other ideas if this didn't work?
duttin
11-22-2006, 10:36 PM
I don't know about the provigil,I was up and down all last night and a general crappy day,my brain and hands would not cooperate today.My 15 year old son ended up making my pie crusts and peeling the apples.He did a good job considering his age and being a boy.Made 5 pies in all.My 12 year old daughter peeled all the potato's all 64 of them.Yes,she counted them.
Whats gonna be is gonna be,hang in there,I know thats tough to hear when our body's don't want to work with our brains.Maybe the thoracic MRI will tell something.You sound as if you have a good neuro searching all avenues.
I know in the last year my vision has decreased,my hearing has decreased,I have to rely on leg braces,my eyes have there own funky thing going on,to add to it my brain has shrunk.Turning forty has not been good.But all in all I have kept my sense of humor and keeping plugging away.
I see my neuro on the 30th,oh are we gonna have a long talk.
Happy Thanksging,eat alot and laugh alot,enjoy the quiet time with your family,it will be a mad house here,but I ll enjoy every minute of it.We have alot to be thankful for
Whats gonna be is gonna be,hang in there,I know thats tough to hear when our body's don't want to work with our brains.Maybe the thoracic MRI will tell something.You sound as if you have a good neuro searching all avenues.
I know in the last year my vision has decreased,my hearing has decreased,I have to rely on leg braces,my eyes have there own funky thing going on,to add to it my brain has shrunk.Turning forty has not been good.But all in all I have kept my sense of humor and keeping plugging away.
I see my neuro on the 30th,oh are we gonna have a long talk.
Happy Thanksging,eat alot and laugh alot,enjoy the quiet time with your family,it will be a mad house here,but I ll enjoy every minute of it.We have alot to be thankful for
rilsam
11-24-2006, 06:07 AM
I hope you had a wonderful thanksgiving. And it is good to see that you were getting help. The girls and I made pumpkin pie together. There was a lot of spilled ingredients but it was fun. Even my dog was thankful for the ham bone to chew the extra meat off. I'm having a bad night tonight. I told you that I take medications wierd. Well it was time to increase my zanaflex. First I fell asleep on the couch, no big deal. When my husband woke me up for bed, I couldn't walk. He had to support me so I could make it upstairs. Then I went to sleep and started getting bad dry mouth. But the worse part is I started to have severe body vibrations which are still going on. I took a xanax in hopes that will help. At least my doctor was warned and she has already put me on celexa which I didn't take well. It's so frustrating not to be able to take meds that can help.
My MRI was neg. so I'm thinking of going a head and getting a LP. She said it's rare to have neg. MRI's and a positive LP but I read where you and two other people had the same thing. I think it might be worth a try and my husbands all for it. I'm feeling extremely sorry for my self tonight. I just want to sleep!!!
My MRI was neg. so I'm thinking of going a head and getting a LP. She said it's rare to have neg. MRI's and a positive LP but I read where you and two other people had the same thing. I think it might be worth a try and my husbands all for it. I'm feeling extremely sorry for my self tonight. I just want to sleep!!!
duttin
11-24-2006, 04:31 PM
Thanksgiving was great.Boy am I whipped.Zanaflex is one of those meds that may or may not be agreeable to people.Baclofen is much milder on the system and works in a similiar way.
Last night my left eye wouldn't move and I had temporarly lost the central vision.I'm hoping it was do to fatigue and the nystagmus.It was freaky.
The LP can tell your DR lots.Make sure they check for the myelin basic protein levels
Last night my left eye wouldn't move and I had temporarly lost the central vision.I'm hoping it was do to fatigue and the nystagmus.It was freaky.
The LP can tell your DR lots.Make sure they check for the myelin basic protein levels
rilsam
11-26-2006, 01:09 PM
I couldn't move off my chair yesterday. The only thing I did was help unwrapping ornaments for our tree. The rest of the family put it up. It was nice not to do anything. I'll call my doc tomorrow. I hate bothering her when it's not an emergency. So I'm back on my fexeral until then and I feel a little better. My husband's not optimistic about what a LP will show (he thinks it will come back normal). But I've reached my deductible so I might as well do it. My eyes have been normal except for the blurred vision. I've seen nystagmus on children I've taken care of and it's pretty freaky, I can't imagine what it feels like. The last few days have been so peaceful. I wish it wouldn't end. But unfortunately the same old grind begins tomorrow starting with getting everyone up and moving by 7:00 a.m.
duttin
11-26-2006, 06:16 PM
The eyes have been really bothering me here latly,my left one hurts all the time.I've done nothing but sleep off and on.Trying to finish up Christmas shopping before the weather gets to bad.
They can tell a lot with the spinal fluid.Since your deductable is met you should go ahead and get it done.I see my neuro on Thursday.
I'm ready for the kids to go back to school they were off all last week.My son's going hunting,opening gun for deer,so he won't be in school.But he'll be gone before the girls get up.I look forward to some relaxing time.
They can tell a lot with the spinal fluid.Since your deductable is met you should go ahead and get it done.I see my neuro on Thursday.
I'm ready for the kids to go back to school they were off all last week.My son's going hunting,opening gun for deer,so he won't be in school.But he'll be gone before the girls get up.I look forward to some relaxing time.
rilsam
11-26-2006, 10:25 PM
I've gotten to sleep in the last four days. That's what I'm really going to miss. Night time is so painful for me. Between my tight muscles, feeling like someomes squeezing my arms as tight as they can, and wake up frequently, I never feel rested. I just got a little Xmas shopping left but I have to do the dreaded grocery shopping tomorrow. I consider it my exercise for the day. Rest time doesn't come to often when the girls are in school. That's when I run all my errands. Is there anything they can do for your eyes? Try as they might, it is so hard for people to truely understand chronic pain unless you live with it. It's nice to talk to someone who really understands.
duttin
11-26-2006, 11:42 PM
For the eyes,baclofen is suppose to help with nystagmus,help with the muscle movements.I don't think its helping.Plus its suppose to help with pain.
I don't do grocery shopping alone,I have to have some one go with me.Usually my 20 year old daughter will come and we shop together.Its our weekly outing,plus she'll bring my groceries in and helps put them away.
Chronic pain is no fun,with MS its a new adventure each day.
I'll do my shopping on Thursday after 2 Drs. appointment.
I don't do grocery shopping alone,I have to have some one go with me.Usually my 20 year old daughter will come and we shop together.Its our weekly outing,plus she'll bring my groceries in and helps put them away.
Chronic pain is no fun,with MS its a new adventure each day.
I'll do my shopping on Thursday after 2 Drs. appointment.
rilsam
11-27-2006, 08:41 PM
Well, I called my doctor and I haven't heard a peep. This is the second time it's happened. My doc is wonderful but her nurses aren't. The first time it happened she was very upset and was going to have a talk with them. We'll see how she feels this time. I'll call back tomorrow because I would really like help with my spastic muscles. Near the end of shopping I was having a hard time walking but I survived! I'll keep doing it alone until I can't any more. Though I do try to pick up some heavier items on Thurs. so I don't kill myself in one day. Plus depending on how I feel will depend on what I put up. Some days it's only what goes in the fridge. I don't have extended family here to help so I don't want to bother my friends until I have to. Hopefully that will be a long way away.
duttin
11-27-2006, 10:37 PM
Hope your neuro returns your call soon.My neuro is great when it comes to returning calls.He even knows my local pharmacy's number by heart.
These nasty muscle spasms could knock a mule on its rear.
I couldn't go grocery shopping alone.Thats one of my limitations.If its for a few things thats okay,but weekly groceries,I just can't do it.I'm very thanksful to have my family so close.For 15 years I lived in Michigan and had no family,I went through 2 years of not being able to walk,2 surgeries and lumbar myelitis,my friends were awesome.I was very blessed and still am to have such a group of special friends.Sisters from another state.If you need help from friends,ask,they'd be glad to help you out.
These nasty muscle spasms could knock a mule on its rear.
I couldn't go grocery shopping alone.Thats one of my limitations.If its for a few things thats okay,but weekly groceries,I just can't do it.I'm very thanksful to have my family so close.For 15 years I lived in Michigan and had no family,I went through 2 years of not being able to walk,2 surgeries and lumbar myelitis,my friends were awesome.I was very blessed and still am to have such a group of special friends.Sisters from another state.If you need help from friends,ask,they'd be glad to help you out.
rilsam
11-28-2006, 02:58 PM
I called my neuro again this morning. The nurse called back and said she gave her the meesage and will give her the new one. After I'm done with all the testing I might look into a new neuro. I like her a whole bunch but it does no good if she won't call me back. I lived in Texas most of my life. My small family is still there but spread out. The military moved us to Omaha. I loved it there. My husband moved us to Cleveland to be close to his family. It was not a fun experience. The neighbors were crazy. So now we're in Indiana. We're about 4 hours away from family. So when we really need them my husbands parents have come over to help. There retired so it makes it easy. It's a small city that took time to get use to but it's a good pace.
duttin
11-28-2006, 03:48 PM
My hubby's from cleveland,definatly a crazy city.I live about an hour from Fort Wayne.My orginal neuro is from the Cleveland clinic.2 and half hour drive can get over whelming.I see my neuro Thursday and I have a whole list of questions,I'll probably drive him mad that day.I'm having a hard time with the fatigue,my left eye hurts like the dickens,the muscle spasms are getting uncontrollable again.Plus I'm puzzled why I have developed hearing loss,its a rare symptom of MS.Here lately all my symptoms are from the neck up.Its getting frustrated.Holidays are coming.Hubby's family is coming in on Dec.21 st.Always a very stressful time and they're not very enjoyable to have around.They are negative and opinionated,My kids hide from them.I try to be very cordial and polite but I have been noted to blow my stack.
I truelly hope you get some releif.This disease isn't the easiest thing to live with,boy I wish it would go on vacation for the Holidays.
I truelly hope you get some releif.This disease isn't the easiest thing to live with,boy I wish it would go on vacation for the Holidays.
rilsam
11-28-2006, 05:15 PM
My neuro finally called. She couldn't believe what the zanaflex did (started with leg weakness then extreme muscle spasms and insomnia). I warned her I have a hard time taking prescription meds. She's trying me on klonopin and if that doesn't work she might try me on the low dose naltroxen. Time will tell. I asked again about an LP and she really wants to wait at this time because even if its positive she wouldn't give the dx of MS yet. She rather wait till next summer after the next round of MRI's. Since it won't change the treatment I'll probably wait. But if klonipin doesn't help with the twitches I'll get the EMG done. It's just so hard to wait and see and hope I don't get worse. She really thinks I will have the "mild" form. How can so much pain be mild? But I guess I only had a paralyzed foot for one day. I know people have it a lot worse than me (like you). And I am thankful for what I can do.
I live a hour away from Fort Wayne also but I'm south. And I'm the one with the crazy family. My kids hide from my brother, but he's an alcoholic with social issues, so I rather them not spend time with him. It makes me mad that he would have been perfectly healthy if he didn't drink, smoke and eat like crap. When I took care of myself and still got sick.
I live a hour away from Fort Wayne also but I'm south. And I'm the one with the crazy family. My kids hide from my brother, but he's an alcoholic with social issues, so I rather them not spend time with him. It makes me mad that he would have been perfectly healthy if he didn't drink, smoke and eat like crap. When I took care of myself and still got sick.
duttin
11-28-2006, 08:31 PM
I am happy to hear that your neuro called you back,some meds are not for everyone.Zanaflex can be whicked for some to adjust to.I see your neuro's point in waiting until the next MRI.The waiting game is nerve racking.
I am down to the vision in my right eye.I knew something has been wonky with the left since Thursday,severe pain has set in and the central vision has gone.My daughter is seeing her opthamologist tomorrow,hopefully he'll take a peak.Lord knows I've paid him enough.Her 5th appointment in 8 weeks.
I see my electro-muscular Doc before I see my neuro on Thursday and her and I need to discuss pain med options.I can handle some pain but not the muscle pain.She has tried several meds,mostly anti-depressant for neurological pain,had bad reaction to them.This is full blown muscle pain.
I hate to see anyone with this disease,glad that your neuro see's it as a mild case.
I was in Fort Wayne in Sept.my 17 year old daughter was in car accident,semi ran an intersection and T-boned the van my daughter was in.She was taken to parkveiw trama center.
Thats sad that your brother is an alcoholic,my father is.It was a rough child hood.I don't blame your kids for hiding.
Hope you get some releif with your new meds.
I am down to the vision in my right eye.I knew something has been wonky with the left since Thursday,severe pain has set in and the central vision has gone.My daughter is seeing her opthamologist tomorrow,hopefully he'll take a peak.Lord knows I've paid him enough.Her 5th appointment in 8 weeks.
I see my electro-muscular Doc before I see my neuro on Thursday and her and I need to discuss pain med options.I can handle some pain but not the muscle pain.She has tried several meds,mostly anti-depressant for neurological pain,had bad reaction to them.This is full blown muscle pain.
I hate to see anyone with this disease,glad that your neuro see's it as a mild case.
I was in Fort Wayne in Sept.my 17 year old daughter was in car accident,semi ran an intersection and T-boned the van my daughter was in.She was taken to parkveiw trama center.
Thats sad that your brother is an alcoholic,my father is.It was a rough child hood.I don't blame your kids for hiding.
Hope you get some releif with your new meds.
rilsam
11-30-2006, 01:05 PM
I had a bad day yesterday. Too much sleep deprevation. I started my klonopin and I slept for the first time in about 5 months without pain. Hopefully this will last. I tend to do good on meds for a few days before I have problems. I saw my GP today, he's wonderful. He just wants to make sure he knows what's going on.
I know how scary accidents can be. And also know how scary it is when docs are running around. My daughter was severally ill when she was 2yrs. Every time I walked into her room and saw all the equipment I wanted to pass out. And I was use to everything. Did your daughter do well with no lasting effects?
Alcholism is such a sad disease. Only the person who has the problem can do anything about it and everyone suffers. My other brother was bi-polar and on drugs. He got killed at 36 when a city bus accidently rolled over him. My poor sister has ulceraltive cholitis . Of course my mom has Fibro and my dad died of lung cancer from years of previous smoking. My husband says "Your family has bad protoplasm and hopefully our kids take after my family". His side is disgustingly healthy and I'm extremely jealous. More than you wanted to know. Right?
Let me know how your appts went today. I hope the optho was able to take a peek.
I know how scary accidents can be. And also know how scary it is when docs are running around. My daughter was severally ill when she was 2yrs. Every time I walked into her room and saw all the equipment I wanted to pass out. And I was use to everything. Did your daughter do well with no lasting effects?
Alcholism is such a sad disease. Only the person who has the problem can do anything about it and everyone suffers. My other brother was bi-polar and on drugs. He got killed at 36 when a city bus accidently rolled over him. My poor sister has ulceraltive cholitis . Of course my mom has Fibro and my dad died of lung cancer from years of previous smoking. My husband says "Your family has bad protoplasm and hopefully our kids take after my family". His side is disgustingly healthy and I'm extremely jealous. More than you wanted to know. Right?
Let me know how your appts went today. I hope the optho was able to take a peek.
duttin
11-30-2006, 02:28 PM
Your family has definatly had there trials and tribulations.Sorry to here about the deaths and illnesses.
My daughter is doing very well.She just finished therapy,she was extremely bruised,head to toe.She was thrown around a 11 passanger van.It was the impact.She has trouble still with her shoulder and her ankle.
Seen my electro-muscular doc at 9 this morning.She's awesome.She told me I had to use my cane again.(I'll think about that)The leg braces are permant.My gait sux right now.She's worried about it causing hip pain.She really stressed on me having a front and back revision surgery to correct the lumbar.I've had 2 and I told her that a 3rd will never happen.This surgery will put me in a rehab center for 3 months at least and it could fail and paralize me.I don't think so!!!!!She left it at that.She'd like to do another full body EMG/NCS.I'll schedule that after the first of the year.She raised the pain meds.I don't need to see her on a regular basis now.Just to call her office and tell the receptionist I need to speak to her.I wish more DRs would have her compation.
Now to my neuro.I don't know how to take him some days.He's good,but I don't think he ever listens.He always does a full neuro exam.Even if I see him 2 weeks apart.He ask about the fatigue,its still here.Ask about my balance,it still sux!!!!He prescribed ativan.He said it will take the edge off the pain,help the ringing in the ears,the numbness.He said look on the bright side if your sleeping you won't know if your having these symptoms.A comedian he's not.
At least his cloths matched today.They never do.I see him in 3 months.If something goes wrong I'm to call him.
Optho took a peak,pale optic nerve and INO,common for MS.
Hope your day today is better.
My daughter is doing very well.She just finished therapy,she was extremely bruised,head to toe.She was thrown around a 11 passanger van.It was the impact.She has trouble still with her shoulder and her ankle.
Seen my electro-muscular doc at 9 this morning.She's awesome.She told me I had to use my cane again.(I'll think about that)The leg braces are permant.My gait sux right now.She's worried about it causing hip pain.She really stressed on me having a front and back revision surgery to correct the lumbar.I've had 2 and I told her that a 3rd will never happen.This surgery will put me in a rehab center for 3 months at least and it could fail and paralize me.I don't think so!!!!!She left it at that.She'd like to do another full body EMG/NCS.I'll schedule that after the first of the year.She raised the pain meds.I don't need to see her on a regular basis now.Just to call her office and tell the receptionist I need to speak to her.I wish more DRs would have her compation.
Now to my neuro.I don't know how to take him some days.He's good,but I don't think he ever listens.He always does a full neuro exam.Even if I see him 2 weeks apart.He ask about the fatigue,its still here.Ask about my balance,it still sux!!!!He prescribed ativan.He said it will take the edge off the pain,help the ringing in the ears,the numbness.He said look on the bright side if your sleeping you won't know if your having these symptoms.A comedian he's not.
At least his cloths matched today.They never do.I see him in 3 months.If something goes wrong I'm to call him.
Optho took a peak,pale optic nerve and INO,common for MS.
Hope your day today is better.
rilsam
11-30-2006, 06:28 PM
Today's going good. I even did a little yoga from a video. It's time to increase my movement. My girls wanted to know the truth about Santa. I think I broke my little girls heart.
So ativan will make your more tired. Are you going to be sleeping 18 hours a day? Though you haven't complained over the last few days about falling asleep. Is that still going on? And I don't know about you but I feel pain when I sleep (except for last night). For all our advancements in medicine we still have a long way to go. In the meantime it's all just a guessing game.
I had a neuro in Cleveland who I would swear never listened. But apparently he did and helped me greatly.
So ativan will make your more tired. Are you going to be sleeping 18 hours a day? Though you haven't complained over the last few days about falling asleep. Is that still going on? And I don't know about you but I feel pain when I sleep (except for last night). For all our advancements in medicine we still have a long way to go. In the meantime it's all just a guessing game.
I had a neuro in Cleveland who I would swear never listened. But apparently he did and helped me greatly.
duttin
11-30-2006, 06:57 PM
Oh,I'm still taking my naps.but I think I have it figured out.If I take the ativan at 11 pm and again at 11 am,takes an hour for full effect,I can get up with my kids at 7 am and be super women and clean like heck,take my nap and be up before 3 pm when they get home from school.(lol)
I have so much pain in my right leg,I ask my muscular Doc if they could just deaden all the nerves,I could rip the dang thing off.Its useless when I have this much pain and the damn thing don't move.But the ativan is suppose to help with muscle pain also.
How old are your girls?Thats always a sad moment for us.
I have so much pain in my right leg,I ask my muscular Doc if they could just deaden all the nerves,I could rip the dang thing off.Its useless when I have this much pain and the damn thing don't move.But the ativan is suppose to help with muscle pain also.
How old are your girls?Thats always a sad moment for us.
rilsam
11-30-2006, 09:35 PM
My youngest is 8 yrs. the oldest is 9 yrs. My youngest is finally feeling better. We're going to burn a letter she is writting to St Nicoles and send it in the wind to him. My oldest took it well and she's figured out there's no tooth fairy or easter bunny either. I swore her to silence so she won't tell her sister.
Have you ever tried a pain clinic? I don't know if they can help. The put steriod injections in my skull to get rid of migraines and it worked wonders. Just a thought. I know it's a much larger area (the entire body?) but maybe the can help the worst parts.
Have you ever tried a pain clinic? I don't know if they can help. The put steriod injections in my skull to get rid of migraines and it worked wonders. Just a thought. I know it's a much larger area (the entire body?) but maybe the can help the worst parts.
duttin
11-30-2006, 11:06 PM
Yes, I have tried a pain clinic.the problem was they wanted to control all aspects of my meds and change the ones I'm on.I had injections in my lumbar(non-steroid) they hit a nerve and that was it.I never went back.This place scared me.2 DRs and a handful of assistants and 50 patients in the waiting room.That place was not for me.They have opened a new one.Its excepting new patients and self referrals,maybe worth checking into.
Glad your young ones are feeling a little better.My oldest wasn't upset about no santa,but she sure was angry about the Easter bunny.
Glad your young ones are feeling a little better.My oldest wasn't upset about no santa,but she sure was angry about the Easter bunny.
rilsam
12-02-2006, 11:22 AM
I Think pain clinics typically want to controll all pain meds, but they shouldn't with the other meds. There are some clinics that have implantable devices so you go in once a month for "refills of meds". Not many places do this but you should ask the new clinic. They should be run by anesthesiologists and just like all doctors offices there is good and bad. It won't hurt to check it out but if you get a bad feeling don't feel bad to back out without having anything done. It just seems that something else should be done for your pain. Or at least to try different things to see if you can get better relief. My neuro is also big on meditation. She thinks it helps reduce stress and therefor helps to reduce pain. I haven't tried it yet. I keep forgetting when I have time.
duttin
12-02-2006, 12:03 PM
I am going to see a new neuro at the local clinic on the 13th for a second opinion ,basicaly on meds.
On Monday I am gonna start PT again and see if it will help with the spasms.
I don't like the ativan,it puts me to sleep,with the fatigue,I'm not getting much done.I do have to say when I get up in the morning I do have a burst of energy,a small one.I'm gonna take the ativan in the afternoon starting today to see how I do.
I went to an alternative pain clinic where they do mediation yoga and things like that.I can handle the pain at a medium level with no meds,its just when it gets extreme.I guess I'm really gonna have to insist on something.Usually the baclofen and zanaflex help with the pain.I think my body had adjusted to them as the doses have not been raised.The ativan is to help the spasms.
I have noticed while the ativan is in my system my ears don't ring,but once it wears off,they start.Ativan can be extremely addictive so that scares me.My mother was extremely addicted to valuim when I was a child,she took it for a nervous disorder and with my father being an alcoholic addiction scares me.
Come Monday,I'm gonna change a few things,I'm gonna cut out caffine,it can cause spasms to intensify.I'm gonna try to give up my cigarrettes.I figure if I'm gonna put my system in shock from no caffine,I may as well put it through nicotine withdrawl.My neuro is the only Doc who has never said to quit smoking,all the rest has.
How are you doing on your new meds?
On Monday I am gonna start PT again and see if it will help with the spasms.
I don't like the ativan,it puts me to sleep,with the fatigue,I'm not getting much done.I do have to say when I get up in the morning I do have a burst of energy,a small one.I'm gonna take the ativan in the afternoon starting today to see how I do.
I went to an alternative pain clinic where they do mediation yoga and things like that.I can handle the pain at a medium level with no meds,its just when it gets extreme.I guess I'm really gonna have to insist on something.Usually the baclofen and zanaflex help with the pain.I think my body had adjusted to them as the doses have not been raised.The ativan is to help the spasms.
I have noticed while the ativan is in my system my ears don't ring,but once it wears off,they start.Ativan can be extremely addictive so that scares me.My mother was extremely addicted to valuim when I was a child,she took it for a nervous disorder and with my father being an alcoholic addiction scares me.
Come Monday,I'm gonna change a few things,I'm gonna cut out caffine,it can cause spasms to intensify.I'm gonna try to give up my cigarrettes.I figure if I'm gonna put my system in shock from no caffine,I may as well put it through nicotine withdrawl.My neuro is the only Doc who has never said to quit smoking,all the rest has.
How are you doing on your new meds?
rilsam
12-02-2006, 04:15 PM
My klonopin is doing great. I slept pain free for three nights. That's such a big deal for me. I'm suppose to start and take it twice a day but I have some residual sleepiness during the day so I think I'll what for a while. I totally know what you mean about getting addicted to your meds. That's my exact same fear because of my brothers. I can tell you truthfully, that as long as you take your meds because of your pain you have less chance to become addicted. I also know that if you can take time release drugs or drug patches it also reduces the risk because you don't have the peak of reg meds. It keeps the meds at a more consistant level in your body. I think you have the right of it to ask another doc about pain meds. Hopefully you just need a fresh idea.
I've been caffine free for almost 5 years. I might have a coke once a year. I had to stop because of my migraines. But when I was having tremors and dizziness I had one and boy did it make things so much worse. And good for you for quiting smoking. I would think your neuro would have also encouraged you to quite. I could be wrong but since cigs. decrease blood flow to everywhere it can't be helping your symptoms at all. If you can't go it alone don't hesitate to ask your doc for help. There are great drugs to help or over the counter patches. Rather to get help than to fail because it's to hard. I'll be on your pep squad cheering for you.
I've been caffine free for almost 5 years. I might have a coke once a year. I had to stop because of my migraines. But when I was having tremors and dizziness I had one and boy did it make things so much worse. And good for you for quiting smoking. I would think your neuro would have also encouraged you to quite. I could be wrong but since cigs. decrease blood flow to everywhere it can't be helping your symptoms at all. If you can't go it alone don't hesitate to ask your doc for help. There are great drugs to help or over the counter patches. Rather to get help than to fail because it's to hard. I'll be on your pep squad cheering for you.
duttin
12-02-2006, 05:06 PM
I took the afternoon ativan,2 hour nap,still a little groggie but thats okay.It just keeps me mellow.
I've quit before,stupid for starting up agin,never had no luck with patches and that gonna go cold turkey.The first 2 days are the hardest.What the heck I'll sleep through them.But I know in hind sight it won't be easy.I just have to be stronger than the cravying.
I've quit before,stupid for starting up agin,never had no luck with patches and that gonna go cold turkey.The first 2 days are the hardest.What the heck I'll sleep through them.But I know in hind sight it won't be easy.I just have to be stronger than the cravying.
rilsam
12-02-2006, 11:56 PM
If you can survive the MS pain (I know not by choice) you can survive being stronger than the cravings. I'm cheering for you!
On the weird side of things. Muncie, In is going the reality tv way. Apparently Eric Estrada, Latoya Jackson, Wee Man from Jack *** on MTV and a few others are going to go through police training and ride with our cops. They're even going to carry guns. It's going to be a very scary time in good old Muncie. It should have been a Halloween special. It's suppose to start shooting soon. But I don't know when it's suppose to air. We have very few violent crimes here so it shouldn't be to hard on them.
On the weird side of things. Muncie, In is going the reality tv way. Apparently Eric Estrada, Latoya Jackson, Wee Man from Jack *** on MTV and a few others are going to go through police training and ride with our cops. They're even going to carry guns. It's going to be a very scary time in good old Muncie. It should have been a Halloween special. It's suppose to start shooting soon. But I don't know when it's suppose to air. We have very few violent crimes here so it shouldn't be to hard on them.
duttin
12-03-2006, 01:59 AM
My hubby and kids laughed when I said monday was my quit date,that was rude and unsupportive,I told them to be kind or I could make there lives a liven h***.
I think thats awesome about the show being done in Muncie.
That ativan is starting to work,if I can get past the first few hours of it,it makes me really tired.My right leg and left foot has done nothing but nonstop buzz,its driving me coo-coo,plus my butt muscle hurts.Must of done to much today.
I think thats awesome about the show being done in Muncie.
That ativan is starting to work,if I can get past the first few hours of it,it makes me really tired.My right leg and left foot has done nothing but nonstop buzz,its driving me coo-coo,plus my butt muscle hurts.Must of done to much today.
rilsam
12-03-2006, 10:57 AM
I had the weirdest sensation last week. I always vibrate so I thought I was use to it. But last week the middle of my tongue started doing it for a few min. That was the weirdest sensation until a few days later my "private parts" started doing it. Too bad I don't vibrate harder. HA-HA.
We went to my husband's work party last night. I told him if he promises we'll be sitting most of the time I won't bring my cane. He promised. Of course we stood for the first 45min. Finally I couln't take it so I rudely was sitting when everyone around me was standing. But my legs just wouldn't take it any more. Needless to say I'm paying for it today in weakness.
I think your family should go out of their way to support you. It's something that can only improve your quality of life. Does anyone of them smoke? Any way they will pay for it when you become cranky from withdraw, it will serve them right. Revenge will be yours!!!:blob_fire
We went to my husband's work party last night. I told him if he promises we'll be sitting most of the time I won't bring my cane. He promised. Of course we stood for the first 45min. Finally I couln't take it so I rudely was sitting when everyone around me was standing. But my legs just wouldn't take it any more. Needless to say I'm paying for it today in weakness.
I think your family should go out of their way to support you. It's something that can only improve your quality of life. Does anyone of them smoke? Any way they will pay for it when you become cranky from withdraw, it will serve them right. Revenge will be yours!!!:blob_fire
duttin
12-03-2006, 11:17 AM
YOUR BAD.Hate when the private parts buzz.That is not a symptom that I would explain to my neuro.he has ask about the areas that buzzing happens,that was left out.
I think my nerves are in over drive,they just buzz to no end.
Standing that long isn't good,you know when a man says no it means yes.Take the cane from now on.
I had a hard time standing to mix up cookies this morning.My son tells me he needs 2 doz cookies today for spanish club bingo at school.This was 11:00 last night.
I'll get my sweet revenge with these teenagers,laugh at me.I controll every aspect of there live.To let them go out or not.Give them the car keys or not.See they forget I am in charge.They are good kids for the most part.I get the teenage disagreements and the can be defiant at times.They are all straight A students and I get the trust me I'm a straight A student.That don't get it.They know what they want after high school.my 17 year old has been excepted to westpoint,but holding out for the Naval acedamy---nuclear engerneering.My son wants to go to westpoint,he's army all the way.They have plans and goals which is great.
Wait until your little ones hit teenagers,I miss that little age.
My sons baking the cookies,best make sure he's not burning them.Plus gotta put wood in the fireplaces.
I think my nerves are in over drive,they just buzz to no end.
Standing that long isn't good,you know when a man says no it means yes.Take the cane from now on.
I had a hard time standing to mix up cookies this morning.My son tells me he needs 2 doz cookies today for spanish club bingo at school.This was 11:00 last night.
I'll get my sweet revenge with these teenagers,laugh at me.I controll every aspect of there live.To let them go out or not.Give them the car keys or not.See they forget I am in charge.They are good kids for the most part.I get the teenage disagreements and the can be defiant at times.They are all straight A students and I get the trust me I'm a straight A student.That don't get it.They know what they want after high school.my 17 year old has been excepted to westpoint,but holding out for the Naval acedamy---nuclear engerneering.My son wants to go to westpoint,he's army all the way.They have plans and goals which is great.
Wait until your little ones hit teenagers,I miss that little age.
My sons baking the cookies,best make sure he's not burning them.Plus gotta put wood in the fireplaces.
rilsam
12-04-2006, 11:21 PM
My kids were terrible babies so once they hit about 3 years I got to start enjoying them. My right arms been acting up so this will be short today. My biggest problems with them is that my 8 year old is such a picky eater. She doesn't like meat so I've been starting to hide tofu in her food. As long as she doesn't know it's there she does great. But it's hell if she knows. So today was the start of the big smoke out. How'd it go?
duttin
12-04-2006, 11:34 PM
The not smoking has not been in my favor today.I am in some of the worst pain I have experienced.I fell twice at the grocery store.legs just gave out.I've taking more meds than I should have today.I doubled up on muscle spasms meds just to get relief.Tried stretching them.I think the smoking took my mind of the pain.I know its just a crutch and an excuse but today has been really not a good one.I place a call to one of my DRs. tomorrow if not any better.
Children can be picky.My 17 year old still is picky about meat,my youngest don't like sauses or anything,just plain and her food can't touch.my oldest loves everything but pea's and my son eats anything that don't move except for meat loaf.Go figure.
I hope your hand gets better.This disease sucks!!!!
Children can be picky.My 17 year old still is picky about meat,my youngest don't like sauses or anything,just plain and her food can't touch.my oldest loves everything but pea's and my son eats anything that don't move except for meat loaf.Go figure.
I hope your hand gets better.This disease sucks!!!!
rilsam
12-05-2006, 12:19 PM
Your pain just seems way out of control. When is your new neuro appt. and can you move it up? I don't know if adding drugs is going to be the answer. I agree that your probably so use to yours that they don't work. Your probably going to have to start with new drugs. I've tried homeopathic stuff with not much luck but epson salt is suppose to help relax muscles if you put it in the bath. I think it helped a little and sometimes a little is better than nothing. I hate to hear you feeling so bad. Try to take one moments at a time sometimes that's all we can do.
duttin
12-05-2006, 02:33 PM
I've been using this ointment on my feet,it has a pain releiver in it and I bought it at walmart,its a shame I can't role my body in it.
Neuro is at the med clinic once a week,next week is the earliest avaiable time.The paper work is in depth I was shocked.2 pages of when symptoms occurred past and present , this is great for new patients that get white coat syndrome.So we'll see.
I still have a lot of pain,I'm gonna put in a call to my muscular DR this afternoon.
Neuro is at the med clinic once a week,next week is the earliest avaiable time.The paper work is in depth I was shocked.2 pages of when symptoms occurred past and present , this is great for new patients that get white coat syndrome.So we'll see.
I still have a lot of pain,I'm gonna put in a call to my muscular DR this afternoon.
rilsam
12-06-2006, 09:41 PM
Was your muscular doctor able to help. I read that your outing went well. It's great when you can do something fun and not have too many problems. Hang in there with the pain, hopefully the new neuro can help. I had a little weird episode today. I started to lose focus when I was checking my 9 year olds math. I had to redue alot of the questions several times. Then my vision got blurry and I was light headed. I sat down to get comfortable and I fell asleep without realizing it. It was the weirdest sensation. I'm fine now but that was just a new one for me.
You know how everyone complains about docs on this board? Well here's a complaint on a pediatrician. One of the kids had chicken pox in my 8 yr. old class. He told the mom that he wasn't infectious and could go to school. The next day several other kids had spots. Since I'm not one to keep my mouth shut I called the principal after I talked to an ER doc neighbor to confirm what I knew. I was cool about it but told her that the doc was wrong. She told me she'd check with the children's hosp. in Indy. Needless to say I was right. Now a total of 3 kids have chicken pox. The whole school has been exposed. This doc deserves to get shingles. What an idiot!!
You know how everyone complains about docs on this board? Well here's a complaint on a pediatrician. One of the kids had chicken pox in my 8 yr. old class. He told the mom that he wasn't infectious and could go to school. The next day several other kids had spots. Since I'm not one to keep my mouth shut I called the principal after I talked to an ER doc neighbor to confirm what I knew. I was cool about it but told her that the doc was wrong. She told me she'd check with the children's hosp. in Indy. Needless to say I was right. Now a total of 3 kids have chicken pox. The whole school has been exposed. This doc deserves to get shingles. What an idiot!!
duttin
12-06-2006, 11:12 PM
Have your girls had the chicken pox.I hate it when parents let their kids attend school ill.My youngest had the chicken pox at 5 months at the age of 6 it went through her school and she ended up with shingles her and 4 other kids.She was a sick little girl and to this day she has neuropathic pain on her neck and her one side.
I have not called my DR yet tomorrow.
I did get the nicotine transdermal patches today.Will use them soon.
My outing when well,lots of laughter good for the soul,but I'm suffering now.My legs keep buzzying and the muscles burn.
I hope the visual disturbance was a one time thing.I get intermitten blurred vision in the left eye.Drives me nuts then I have to refocus.
I still have the fatigue,which I will readdress with the new neuro.I have been sleeping great at night and getting up well rested in the morning,start laundry and dust.I have been doing my 20-30 PT at home and then I have to sleep 2-3 hours just to finish my day.Then come early evening I'm whipped.
I have not called my DR yet tomorrow.
I did get the nicotine transdermal patches today.Will use them soon.
My outing when well,lots of laughter good for the soul,but I'm suffering now.My legs keep buzzying and the muscles burn.
I hope the visual disturbance was a one time thing.I get intermitten blurred vision in the left eye.Drives me nuts then I have to refocus.
I still have the fatigue,which I will readdress with the new neuro.I have been sleeping great at night and getting up well rested in the morning,start laundry and dust.I have been doing my 20-30 PT at home and then I have to sleep 2-3 hours just to finish my day.Then come early evening I'm whipped.
rilsam
12-07-2006, 03:14 PM
My girls haven't had the chicken pox but they have had the vaccination. So if they get it, it should be less severe. I once helped code a 4 year old with chicken pox. He didn't make it. You think it's such a harmless disease but it's scarry knowing it can kill.
Mt klonopin is stopping the pain at night but I think it's the reason I'm so tired in the morning. And my doc wants me on 3 pills a day. I don't think so. I'm thinking of droping it to half a tab every few days so I can function better.
I think the visual think will stay. My eyes always get blurry when I go from reading to watching tv or vice versa but the double vision was new and hopefully won't come back.
I'm not a religious nut but I've been resently praying to patron saints. I figure they're not as busy as God. It worked out good to pray to St. Nicholos for my children. I did find out that the patron saint of neurological disorders is St. Dymphna. I figure it can't hurt and might just help.
Enjoy your naps you have to take care of your self what ever it takes.
Mt klonopin is stopping the pain at night but I think it's the reason I'm so tired in the morning. And my doc wants me on 3 pills a day. I don't think so. I'm thinking of droping it to half a tab every few days so I can function better.
I think the visual think will stay. My eyes always get blurry when I go from reading to watching tv or vice versa but the double vision was new and hopefully won't come back.
I'm not a religious nut but I've been resently praying to patron saints. I figure they're not as busy as God. It worked out good to pray to St. Nicholos for my children. I did find out that the patron saint of neurological disorders is St. Dymphna. I figure it can't hurt and might just help.
Enjoy your naps you have to take care of your self what ever it takes.
rilsam
12-08-2006, 09:38 AM
Well, I went on 1/2 a tab of klonopin. I'm actually awake this morning. I think I might alternate taking half then a whole. Is my doc ever going to be mad at me. But with small kids I have to function. She already was mad that I was only taking one tab a day. But what can you do. They need to make med that take away pain but don't make you tired. But she did schedule me for an EMG in two weeks. Of course the kids are off of school so I have to plan what to do with them. Just my luck my 8 yr. gets car sick, so the hour drive is hard on her. But since the pain is under control I've been able to exercise in the morning also. But I found I can't do any cardio for more than 2 min. I guess I'll just have to keep walking at stores.
duttin
12-08-2006, 09:53 AM
If a half a tab works,then why not.My doctors prescribe meds that they would prescribe for a 300 lb person.At 110 that don't get it.I cut my ativan in half during the day.I fight with the fatigue and it plum knocks me out.
Good luck with the EMG/NCS,I have one coming up soon.Not my favorite test,but my muscle Dr is great at it.
Well todays the day,I am giving it a try,no smoking.I did buy the patches,will power alone wasn't enough.I'll see how long this last.
Good luck with the EMG/NCS,I have one coming up soon.Not my favorite test,but my muscle Dr is great at it.
Well todays the day,I am giving it a try,no smoking.I did buy the patches,will power alone wasn't enough.I'll see how long this last.
rilsam
12-10-2006, 04:02 PM
So, how has the non-smoking been going? Don't look at the coming days of non-smoking but maybe go one hour at a time. Has your family become more supportive? I've never had an EMG. My neuro's office does it. I'm not sure if it's her or someone else. The 1/2 of klonopin is still making me tired but I'm scared to decrease it any more because I don't want the night pain to come back. I just play it by ear if I need another half in the evening. I can't believe Xmas is about 2 weeks away. Time is sure going fast.
duttin
12-10-2006, 08:32 PM
Its been 3 days and so far so good.The nicotine patches seem to help.Heck no my family ain't supportive,they've all taken bets.I ignore them.
An EMG can be discomforting and they have given me additional muscle spasms for a few days after.
I'm getting use to the ativan.I'm still cutting it in half during the day but at night I'm taking a full dose.
I know Christmas is 2 weeks away.My husbands parents will be here.I dread there visits.They expect me to wait on them hand and foot.They have my hubby so spoiled its sickening.They don't like me,but I don't give a rats butt.I tolerate them.they are real snooty and upity.Thats not me I'm a layed back country girl.There ain't enough meds in the world to tolerate these people.
I see my new neuro on wensday,hopefully they can get my meds evened out so I can function without sleeping all day.
An EMG can be discomforting and they have given me additional muscle spasms for a few days after.
I'm getting use to the ativan.I'm still cutting it in half during the day but at night I'm taking a full dose.
I know Christmas is 2 weeks away.My husbands parents will be here.I dread there visits.They expect me to wait on them hand and foot.They have my hubby so spoiled its sickening.They don't like me,but I don't give a rats butt.I tolerate them.they are real snooty and upity.Thats not me I'm a layed back country girl.There ain't enough meds in the world to tolerate these people.
I see my new neuro on wensday,hopefully they can get my meds evened out so I can function without sleeping all day.
rilsam
12-11-2006, 02:41 PM
See if you can get in on the betting. Either getting paid or having them wait on you would be a great incentive. I'm really proud of how well your doing. I watched my Dad quite smoking and I know how hard he had it. Keep up the good work. Hopefully the longer off cigs. the easier it will be. Then comes the patches. So have you tried to get off the caffiene or did you decide to do one thing at a time?
Since it sounds like your going to have such a fun time with your in-laws, maybe always sleeping won't be such a bad idea. They need to realize they're family and not guests so make them do for them selves. If they ask for something just say,"You know where the... is", if they say no just tell them. It sounds like it's time for them to grow up and considered other people. I sure hope you don't have to see them often. And do they wait on you hand ond foot when you visit?
Since it sounds like your going to have such a fun time with your in-laws, maybe always sleeping won't be such a bad idea. They need to realize they're family and not guests so make them do for them selves. If they ask for something just say,"You know where the... is", if they say no just tell them. It sounds like it's time for them to grow up and considered other people. I sure hope you don't have to see them often. And do they wait on you hand ond foot when you visit?
duttin
12-11-2006, 03:39 PM
I'm a real grouch today,nicotine with drawl even with the patch.I'm getting no help around here and hubby is still a jerk.They should know not to push my buttons.I havn't gave up caffine,with the fatigue the caffine helps.
After all these years they ain't my in-laws they're my out-laws.They just don't seem to see the whole picture.They are really self centered.They try to control my childrens lives and future education.Well at the present time I can't afford college for my children.So my daughter signed up for the military delayed entry program.She tested very high and gonna do the nuclear engineering program.She was excepted to west point but turned it down,she wants the navy acedamy.Her grandparents were peed off.They said its a prestige thing ,I guess only for them.
Wait until I tell his mother she can't smoke in my house,that'll be one mad Italian lady.
I do not visit them they live down south and its to hot.They have family gatherings in the summer and hubby will fly and one of the kids will go with him.No I don't see them often.But this year we'll see them at Easter as usual and in June at a theme park for the 3 kids graduating.Of all things to do a Theme Park,hell I'm lucky if I can walk the local grocery store.they said they'd rent me a wheel chair.Don't think so.I still have my dignity and sound mind.My luck they'd push me into the bear pit!!!!!
Well I'm gonna take a nap and try to beat the cig withdrawl,damn its hard.
After all these years they ain't my in-laws they're my out-laws.They just don't seem to see the whole picture.They are really self centered.They try to control my childrens lives and future education.Well at the present time I can't afford college for my children.So my daughter signed up for the military delayed entry program.She tested very high and gonna do the nuclear engineering program.She was excepted to west point but turned it down,she wants the navy acedamy.Her grandparents were peed off.They said its a prestige thing ,I guess only for them.
Wait until I tell his mother she can't smoke in my house,that'll be one mad Italian lady.
I do not visit them they live down south and its to hot.They have family gatherings in the summer and hubby will fly and one of the kids will go with him.No I don't see them often.But this year we'll see them at Easter as usual and in June at a theme park for the 3 kids graduating.Of all things to do a Theme Park,hell I'm lucky if I can walk the local grocery store.they said they'd rent me a wheel chair.Don't think so.I still have my dignity and sound mind.My luck they'd push me into the bear pit!!!!!
Well I'm gonna take a nap and try to beat the cig withdrawl,damn its hard.
NathanMc
12-11-2006, 05:17 PM
Stick with it!
Bugger ya family nuffy, they're just being jerks :p I quit smoking about 10 years ago and I'm glad I don't have that to compound new stuff gong on now.
You'll be fine, just breathe and stuff ;)
Bugger ya family nuffy, they're just being jerks :p I quit smoking about 10 years ago and I'm glad I don't have that to compound new stuff gong on now.
You'll be fine, just breathe and stuff ;)
duttin
12-11-2006, 07:58 PM
Thanks NathanMC.10 years wow.I'm hoping to make it 10 days.
rilsam
12-12-2006, 10:04 AM
You'll so do it! Anything worth doing takes time and effort you just get to add a little crazy also. I loved the out-law thing. I needed a good laugh. If your family is being jerky then I say don't hold anything back. They'll learn to get out of your way or have their heads bit off.
Isn't West Point an amry program? She's probably better off in the Navy. I've worked at an air force hospital and had great respect for the program. Also for the few navy docs we had working there. One navy doc was my favorite doc out of the hosp. But when the army joined the program we had a real problem with level of training being decreased. But this is an opionon of an airforce brat and one who worked in an airforce hosp for 4 years.
I know you're looking forward to telling your out-laws that they can't smoke in the house. It will make your day. As it should. But when your having problems just think of the the right reasons to quite smoking. Health, health, health, white teeth, no more smoke smell, good blood circulation, nice clear lungs, saved money. You can do it. I figure the pain you already go through is nothing compared to what you're going through to quite smoking.
Isn't West Point an amry program? She's probably better off in the Navy. I've worked at an air force hospital and had great respect for the program. Also for the few navy docs we had working there. One navy doc was my favorite doc out of the hosp. But when the army joined the program we had a real problem with level of training being decreased. But this is an opionon of an airforce brat and one who worked in an airforce hosp for 4 years.
I know you're looking forward to telling your out-laws that they can't smoke in the house. It will make your day. As it should. But when your having problems just think of the the right reasons to quite smoking. Health, health, health, white teeth, no more smoke smell, good blood circulation, nice clear lungs, saved money. You can do it. I figure the pain you already go through is nothing compared to what you're going through to quite smoking.
duttin
12-12-2006, 11:11 AM
Yes,West Point is the Army.She got her nomination in the mail from the Govornor,her excitement was overwhelming until it stated WestPoint,not the naval academy.Her heart was crushed instantly.Now she feels she's letting everyone down by giving up the westpoint degree,to be an elistie in the navy.I told her she had to follow her heart and head.It has to be her decision.She can have her nuclear engerneering degree in 18 months with the Navy versus,attending westpoint for 4 years then giving another 4 years in combat.I'd rather see her in the Navy.I know she'll be state side for 2 years.Thats reassurring for me.She'll be stationed in South Carolina.
Glad I could give you a laugh,the out-laws will be here in a week.Damn I'm not ready.I have a sign on my back door that states.A CLOSED MOUTH GATHERS NO FOOT.I think they are so intellectual that they don't understand,keep your big mouths shut and opinions to yourselves.
The no smoking signs are on all 3 doors.That'll get his mother.
The fatigue is kicking my butt.I have so much to do and have sporting events all week.
My back Dr and electro-muscular Doc are both out of the Navy.They have the best bed side manners and they are caring.
I see new neuro tomorrow.I'm not looking forward to it.I guess I'm just in one of those moods.
Glad I could give you a laugh,the out-laws will be here in a week.Damn I'm not ready.I have a sign on my back door that states.A CLOSED MOUTH GATHERS NO FOOT.I think they are so intellectual that they don't understand,keep your big mouths shut and opinions to yourselves.
The no smoking signs are on all 3 doors.That'll get his mother.
The fatigue is kicking my butt.I have so much to do and have sporting events all week.
My back Dr and electro-muscular Doc are both out of the Navy.They have the best bed side manners and they are caring.
I see new neuro tomorrow.I'm not looking forward to it.I guess I'm just in one of those moods.
rilsam
12-12-2006, 01:32 PM
I worked with a Navy neonatalogist. He also ran the pediactric heart/lung bypass machine (would keep blood from the heart and lung until they recovered from injuries). He also worked in the pediatric ICU where I knew him best. He was an absolutley wonderful doctor. He was my favorite out of all the ICU pediatricians. She needs to feel proud of herself for doing the right thing for her. It's so hard when you think you're letting people down. But is shows her independent thinking which is far better.
I wouldn't call your in-laws intellectual I'd call them obtuse and lacking in common sense. How long are the staying? Is she going to ignore your no smoking policy?
I have my rheumy appt. tomorrow. There's nothing she's really going to do but it's just a follow-up. I'm getting tired of appts. and getting a little discouraged by just having so many of them. Try to have a positve out look. Maybe this one can help.
I wouldn't call your in-laws intellectual I'd call them obtuse and lacking in common sense. How long are the staying? Is she going to ignore your no smoking policy?
I have my rheumy appt. tomorrow. There's nothing she's really going to do but it's just a follow-up. I'm getting tired of appts. and getting a little discouraged by just having so many of them. Try to have a positve out look. Maybe this one can help.
duttin
12-13-2006, 05:30 PM
This neuro was a sweet little guy,stated hes from the old neurological school,just because there ain't lesions don't mean it ain't there.
When he hit my left knee it went a flyin thank god its attached at the hip or it would still be going.It shocked me.
He's gonna treat each thing seperatly,the MS,the radiculopathy and he beleives theres neuropathy starting.He's the only neuro that didn't give me the look of a blinded deer in head lights look.
He ask me what I wanted to accomplish,I told him I wanted my old life back,I want the feeling in my right leg back I don't want to wear these damn leg braces anymore.I want to feel human again.
Then we got on the bladder issue.I told him my teenagers make me promise not to drink anything before we leave or while were gone.I told him my worst episode was I had just got my new truck and I peed my pants,I wasn't mad that I peed my pants I was mad because my seats were cloth.I told him its a mad dash tripping over my feet for the bathroom,its not a pretty site and my children know the down stairs bathroom is off limits.Because the ability to hold it is gone and usually I don't get a for warning.When i gotta go its now.He laughed and enjoyed my graphic details and sense of humor.The depression stage has passed.
He pin pricked my right leg up to my knee and it bled and I couldn't feel it.Now that upsets me.The reflexs on the right foot are completly gone,he ask where did they go,I told him I guess out with the bath water how should I know,I'm the patient.
He ask me if I have considered hearing aides,not at this point,I told him with teenagers I like the muffled moments.I can look at them and say I read what you said.I'm getting good at reading lips.
We discussed the fatigue and he thinks ita combo of everything and to continue the med.He said sleep when need to and take advantage of the times I'm awake.
We discussed the muscle spasms and the right leg dragging,he thinks once I start disease modifying meds that will help.
How did your appointment go?
I get tired of appointments,but feel todays was productive and finally a neuro who actually listens.Just waiting on a call back from electro muscular Dr.I need another EMG and don't want anyone else to do it.
As far as my hubby's family,I'm gonna be brubt and just tell them I have limitations and they'll have to respect that if not let there son wait on them.Its his responsibilty anyways.Gotta go to a wrestling meet tonight.I just wanna go to sleep.
When he hit my left knee it went a flyin thank god its attached at the hip or it would still be going.It shocked me.
He's gonna treat each thing seperatly,the MS,the radiculopathy and he beleives theres neuropathy starting.He's the only neuro that didn't give me the look of a blinded deer in head lights look.
He ask me what I wanted to accomplish,I told him I wanted my old life back,I want the feeling in my right leg back I don't want to wear these damn leg braces anymore.I want to feel human again.
Then we got on the bladder issue.I told him my teenagers make me promise not to drink anything before we leave or while were gone.I told him my worst episode was I had just got my new truck and I peed my pants,I wasn't mad that I peed my pants I was mad because my seats were cloth.I told him its a mad dash tripping over my feet for the bathroom,its not a pretty site and my children know the down stairs bathroom is off limits.Because the ability to hold it is gone and usually I don't get a for warning.When i gotta go its now.He laughed and enjoyed my graphic details and sense of humor.The depression stage has passed.
He pin pricked my right leg up to my knee and it bled and I couldn't feel it.Now that upsets me.The reflexs on the right foot are completly gone,he ask where did they go,I told him I guess out with the bath water how should I know,I'm the patient.
He ask me if I have considered hearing aides,not at this point,I told him with teenagers I like the muffled moments.I can look at them and say I read what you said.I'm getting good at reading lips.
We discussed the fatigue and he thinks ita combo of everything and to continue the med.He said sleep when need to and take advantage of the times I'm awake.
We discussed the muscle spasms and the right leg dragging,he thinks once I start disease modifying meds that will help.
How did your appointment go?
I get tired of appointments,but feel todays was productive and finally a neuro who actually listens.Just waiting on a call back from electro muscular Dr.I need another EMG and don't want anyone else to do it.
As far as my hubby's family,I'm gonna be brubt and just tell them I have limitations and they'll have to respect that if not let there son wait on them.Its his responsibilty anyways.Gotta go to a wrestling meet tonight.I just wanna go to sleep.
rilsam
12-14-2006, 12:47 AM
My appt went fine. My rheumy confirmed that she thinks I've suffered with fibro for years and it wasn't MS. I begin to question everthing I thought about my health sometimes. She helped me sort out some pain as being fibro vs. MS. I get really bad upper back pain during the day and lower back pain at night. She confirmed that this is the fibro. I think she really just wanted to make sure I was doing okay. I won't see her for another year but if I need her she'll be available to me. I really like her.
Like I said before, I'm so glad your appt. went good. At least as far as feeling confident with your doc. It's always a shock to realize you've lost more function than what you thought. I still think you don't want your fatigue to go away until your in-laws leave. It's going to be a great excuse.
I had the dance rehearsal thing tonight. Then dance class tomorrow. Then I get to watch my girls perform for Xmas, Sunday. It's always fun, but tiring.
Since your getting good at reading lips maybe you can spy on your in-laws. It might make for some interesting news.
Like I said before, I'm so glad your appt. went good. At least as far as feeling confident with your doc. It's always a shock to realize you've lost more function than what you thought. I still think you don't want your fatigue to go away until your in-laws leave. It's going to be a great excuse.
I had the dance rehearsal thing tonight. Then dance class tomorrow. Then I get to watch my girls perform for Xmas, Sunday. It's always fun, but tiring.
Since your getting good at reading lips maybe you can spy on your in-laws. It might make for some interesting news.
duttin
12-14-2006, 07:08 AM
Thats a;ways good when the DR says come back in a year.How are they helping your pain from it?
I miss the days of dance and rehearsals.My 12 year old has a band concert monday for christmas.I'm excited.Something different than sports.Had a wrestling meet last night and an all weekend one this weekend.I sit with a friend that has MS,me moan together,them bleachers are hard.
Yes it is a shock when ya start losing functions that ya thought was there.
Today I'm resting.
I miss the days of dance and rehearsals.My 12 year old has a band concert monday for christmas.I'm excited.Something different than sports.Had a wrestling meet last night and an all weekend one this weekend.I sit with a friend that has MS,me moan together,them bleachers are hard.
Yes it is a shock when ya start losing functions that ya thought was there.
Today I'm resting.
rilsam
12-14-2006, 02:14 PM
Unfortunately, the best way to treat fibro is exercise. I use to laugh and say if I had to get a medical problem at least it was one that made me take care of myself. Exercise, vit supplements, massages, and muscle relaxors, along with rest during a flare up. I've been almost symptom free for two years except during weather change. I've been almost symptom free during all my MS problems because of the anti-anxiety meds and muscle relaxants. She went over some simple, easy exercises to help relieve the tightness in my back and encouraged me to take my flexeral when I need it. Well I took 1/4 of a pill along with the klonopin, got up, took the kids to school, and promtly fell back asleep for 2 hours until I forced myself to get up. Needless to say I've been dragging all day. I hate taking meds:mad: .
The girls do dance, swim, and piano lessons one day a week each. I make them do things together so I don't have to run around even more. So far so good. I'm trying to get them to do tennis with my husband but it's hit and miss. He's not very regular about it. Listening to the band play can be quit interesting at that age. I hope it goes well. If it doesn't they seem not to notice though.
Today is a very good day for rest.
The girls do dance, swim, and piano lessons one day a week each. I make them do things together so I don't have to run around even more. So far so good. I'm trying to get them to do tennis with my husband but it's hit and miss. He's not very regular about it. Listening to the band play can be quit interesting at that age. I hope it goes well. If it doesn't they seem not to notice though.
Today is a very good day for rest.
duttin
12-14-2006, 03:28 PM
I have gotten no rest,hubby decided to frame in the upstairs landing,make it a little safer.Well the mess he made.he cut the boards in my family room saw dust every where.Tomorrow the dry walling.If he only had to clean it up.
All I wanted to do is sleep the day a way.Nope not a chance!!!!
My son wrestles in the winter,my 17 year old daughter runs indoor track and my youngest plays trumpet in the band and jazz band and she does Power of the Pen.The summer is baseball,Jr high track and varsity track.
I've been doing my physical therapy at home don't know how much good its doing.
I don't like taking my meds bit they keep lefty and righty moving.I see my GP on monday to discuss modifying meds,pain meds and steroids.I've had an allergic reaction to IV steroids(decadron) new neuro thinks maybe a low dose of oral steroids may help if I can tolerate them.
Maybe I'll rest tomorrow.
All I wanted to do is sleep the day a way.Nope not a chance!!!!
My son wrestles in the winter,my 17 year old daughter runs indoor track and my youngest plays trumpet in the band and jazz band and she does Power of the Pen.The summer is baseball,Jr high track and varsity track.
I've been doing my physical therapy at home don't know how much good its doing.
I don't like taking my meds bit they keep lefty and righty moving.I see my GP on monday to discuss modifying meds,pain meds and steroids.I've had an allergic reaction to IV steroids(decadron) new neuro thinks maybe a low dose of oral steroids may help if I can tolerate them.
Maybe I'll rest tomorrow.
rilsam
12-15-2006, 10:16 PM
I had a very restful two days. I took a three hour brunch with a friend. It was wonderful to get away from everything. I hope you got to rest today.
You might not feel that home PT is working, but any kind of movement will help. You don't want what muscles you do have deciding to leave on ya. Since starting the klonopin I've been able to exercise several times a week but it's making me too tired. I think I'll put in a call to my doc next week and see if she has any better ideas. But if comes down to pain or being tired I guess I'll be tired all the time.
Did the landing turn out good or did your husband ruin you rest time for nothing?
You might not feel that home PT is working, but any kind of movement will help. You don't want what muscles you do have deciding to leave on ya. Since starting the klonopin I've been able to exercise several times a week but it's making me too tired. I think I'll put in a call to my doc next week and see if she has any better ideas. But if comes down to pain or being tired I guess I'll be tired all the time.
Did the landing turn out good or did your husband ruin you rest time for nothing?
duttin
12-15-2006, 10:56 PM
I'm jealous,I still have not had time to rest.My outlaws will be here in 5 days,I still have Christmas baking,grocery shopping to do plus 2 Drs appointments next week.Some where in there I have to clean house.
I ride my exercise bike 3 times a day for 5 minutes and extensive muscle stretching 3 times a day.The muscle spasms have gotten so bad that the muscles are pulling across the joints and my hips are killing me.It hurts to walk.Some of the muscles seem to be responding well to the stretching.I think(I pray)that I have the low back muscles stretched out good now.The muscle spasms were so bad that it felt as if the rods in my back were going to pop out.When I exercise I take the lorazapam a half hour before I do any of it.It relaxes the muscles enough to tolerate it.
The landing framing looks good,it would look better if it was dry walled.That'll be his project in about 3 months.He never completes anything until I harp on him.
I ride my exercise bike 3 times a day for 5 minutes and extensive muscle stretching 3 times a day.The muscle spasms have gotten so bad that the muscles are pulling across the joints and my hips are killing me.It hurts to walk.Some of the muscles seem to be responding well to the stretching.I think(I pray)that I have the low back muscles stretched out good now.The muscle spasms were so bad that it felt as if the rods in my back were going to pop out.When I exercise I take the lorazapam a half hour before I do any of it.It relaxes the muscles enough to tolerate it.
The landing framing looks good,it would look better if it was dry walled.That'll be his project in about 3 months.He never completes anything until I harp on him.
rilsam
12-16-2006, 08:22 PM
After taking my kids to their swim lessons, my head decided to get a migraine. I've been in pain most of the afternoon. My imitrex finally kicked in but I have a feeling I'll end up with one in the morning. I think my klonopin is contributing to it. I've been feeling like I was going to get one all week, partly because I'm always tired. I wanted to exercise today, oh well maybe tomorrow.
I do light weights and stretching with a ball. I have an eliptical trainer but after 3 min. I feel like I want to die. After the new year, when the kids go back to school, I'll go to the local YMCA and start doing the treadmill a couple of times a week. I'm hoping a little cardio might help with more stamina. I do dead lifts with 5lb. weights to help stretch my lower back. It helps most of the time and my doc. said it's agood exercise for that.
Maybe you can ask your hubby to dry wall for your Xmas present. Or make it sound like you bet his parents would love to see the great work he does if he can get it done?
Clean house? What's that? I can do little bits at a time but I don't think my house has all been cleaned in the same day or week since this all started in June.
I do light weights and stretching with a ball. I have an eliptical trainer but after 3 min. I feel like I want to die. After the new year, when the kids go back to school, I'll go to the local YMCA and start doing the treadmill a couple of times a week. I'm hoping a little cardio might help with more stamina. I do dead lifts with 5lb. weights to help stretch my lower back. It helps most of the time and my doc. said it's agood exercise for that.
Maybe you can ask your hubby to dry wall for your Xmas present. Or make it sound like you bet his parents would love to see the great work he does if he can get it done?
Clean house? What's that? I can do little bits at a time but I don't think my house has all been cleaned in the same day or week since this all started in June.
duttin
12-16-2006, 09:30 PM
I finally got some rest today.My daugthers cleaned the upstairs and dusted down.
I got up this morning and couldn't get my right arm to wake up.Both my hands are have numb and I had the strangest ***zare head pain I ever experienced,it was on right side towards the top it felt as if there was something on the inside was trying to get out.It hurt like the diggens,it lasted about 15 minutes and left.
I've had spots of terrible nerve pain,like a real sharp pin ***** a stabbing sensation randomly all over my body.It has been a ***zare day in the realm of MS.
My hubby won't have time to dry wall his parents will be her on wensday and he works 2 jobs.
Last year my house got bad and I vowed not to let it return that way again.Its a struggle but on good days I push myself to get it done.The kids help alot.
I got up this morning and couldn't get my right arm to wake up.Both my hands are have numb and I had the strangest ***zare head pain I ever experienced,it was on right side towards the top it felt as if there was something on the inside was trying to get out.It hurt like the diggens,it lasted about 15 minutes and left.
I've had spots of terrible nerve pain,like a real sharp pin ***** a stabbing sensation randomly all over my body.It has been a ***zare day in the realm of MS.
My hubby won't have time to dry wall his parents will be her on wensday and he works 2 jobs.
Last year my house got bad and I vowed not to let it return that way again.Its a struggle but on good days I push myself to get it done.The kids help alot.
rilsam
12-16-2006, 10:39 PM
Thank God for children! Most of the time.
It never fails that when you get to rest there is usually something hurting so you just can't enjoy it.
I spring cleaned last year so at least all the deep cleaning isn't to bad. I'll try again this year. But I think I might start now, since the kids are home. I have a feeling it's going to take several months. I have noticed though that it's not my mess that needs cleaning. It seems to be everyone elses. I only have one small pile on a table and my romance novels. I love those books.
It never fails that when you get to rest there is usually something hurting so you just can't enjoy it.
I spring cleaned last year so at least all the deep cleaning isn't to bad. I'll try again this year. But I think I might start now, since the kids are home. I have a feeling it's going to take several months. I have noticed though that it's not my mess that needs cleaning. It seems to be everyone elses. I only have one small pile on a table and my romance novels. I love those books.
duttin
12-17-2006, 12:11 AM
I like to read,but with INO(a form of nystagmas) my eyes bounce back and forth .The words jump from place to place.
I have nagged my son all evening to get his crap of my kitchen table and to put his wrestling sweats in his room.He seems not to be listening.
I usually spring and fall clean but the fall cleaning won't be getting done.
The kids are pretty good about cleaning the upstairs,I don't get up there all that much.Thats there responsibility.
I did clean my clutter piles off my desk,I guess it would be easier if I put the crap away ,before they start looking like mount crap more!!!!
I did call my neuro's answering service they got to prescribe something for this pain.I'm not good at sitting around.
I have nagged my son all evening to get his crap of my kitchen table and to put his wrestling sweats in his room.He seems not to be listening.
I usually spring and fall clean but the fall cleaning won't be getting done.
The kids are pretty good about cleaning the upstairs,I don't get up there all that much.Thats there responsibility.
I did clean my clutter piles off my desk,I guess it would be easier if I put the crap away ,before they start looking like mount crap more!!!!
I did call my neuro's answering service they got to prescribe something for this pain.I'm not good at sitting around.
rilsam
12-17-2006, 08:04 PM
I had a wonderful migraine morning. I had to do make-up and hair for two girls plus help with costumes. By the time I was done my migraine med kicked in (imitrex). Then off to the show. I don't get to just drop them off. Nooo!!! I have to take them back stage down stairs. Then get them after the opening number so they could sit with us. Then back stage for their number. Then back to us. And of course back stage for the final bow and then down stairs for costume change. Needless to say I'm beyond exhausted. I fell asleep. My husband had to pick up dinner. And I just feel like a bowl of pudding. At least I'm not in any pain just extreme fatigue.
There was about two months that I couldn't read because of eye pain, blurriness or just the inability to hold a book. It depresses me when I can't read. When I can't do anything else and then can't read it's the pits.
You inspired me to clean my little pile this morning. Now I only have a book to give back to a friend. One simple accomplishment can make me fel great. But next I have bills to pay. If I let my husband take over the job things would start being turned of right and left.
I hope your feeling better.
There was about two months that I couldn't read because of eye pain, blurriness or just the inability to hold a book. It depresses me when I can't read. When I can't do anything else and then can't read it's the pits.
You inspired me to clean my little pile this morning. Now I only have a book to give back to a friend. One simple accomplishment can make me fel great. But next I have bills to pay. If I let my husband take over the job things would start being turned of right and left.
I hope your feeling better.
duttin
12-17-2006, 11:57 PM
Thats alot of ups and downs.I hope your migraine goes away.My mother suffered with migraines for years.It was hard watching her suffer.
I done something today I havn't been able to do in 2 years.I jogged in place for 5 minutes,now mind you I couldn't lift my feet more than 2 inches and had to watch tripping over my feet.I am determined to regain the muscles I have lost in my legs and to keep the muscles stretched.I am doing a 15 minute workout 3 times a day,just to keep moving.I took a 3 hour nap today.
I finally got my upstairs done.Kids can do general cleaning but they don't deep clean.I didn't think I'd ever get done.
I paid bills last night and finally done my Christmas cards.Nothing like waiting until the last minute.
It was a nice day here today so I got some things done out back that should of been done back in September.But its done.
I have a busy week,by the time my outlaws get here I'll be exhausted.
Drs appointment tomorrow to disguss meds with my GP.I don't want to start steroids,but neuro thinks its a good idea.We are gonna discuss pain med options.I want his opinion on the modifying meds,I'm leaning towards copaxone.I don't like the idea of needles,but under the skin I guess will be ok,but injecting something into these muscles,I don't think so.
I done something today I havn't been able to do in 2 years.I jogged in place for 5 minutes,now mind you I couldn't lift my feet more than 2 inches and had to watch tripping over my feet.I am determined to regain the muscles I have lost in my legs and to keep the muscles stretched.I am doing a 15 minute workout 3 times a day,just to keep moving.I took a 3 hour nap today.
I finally got my upstairs done.Kids can do general cleaning but they don't deep clean.I didn't think I'd ever get done.
I paid bills last night and finally done my Christmas cards.Nothing like waiting until the last minute.
It was a nice day here today so I got some things done out back that should of been done back in September.But its done.
I have a busy week,by the time my outlaws get here I'll be exhausted.
Drs appointment tomorrow to disguss meds with my GP.I don't want to start steroids,but neuro thinks its a good idea.We are gonna discuss pain med options.I want his opinion on the modifying meds,I'm leaning towards copaxone.I don't like the idea of needles,but under the skin I guess will be ok,but injecting something into these muscles,I don't think so.
rilsam
12-18-2006, 11:24 AM
My migraine disappeared this morning. Hopefully not to return. I've had migraines since I was 13yrs. and now I'm almost 40 yrs. I had a cont migraine for almost 1 yr, that was the clue that I had fibro. So I've learned to function even though I want to throw up.:dizzy:
Isn't it amazing how excited we get when we can do something from our past. Keep up the exercise and be very proud of your self. I rather be tired from excersice than anything else because it's helping me in the long run.
How's the smoking going or hopeful not going?
I use to inject myself for migraines under the skin. The needle wasn't the problem it was the med that was soooooooo painful. But I've given insulin shots to many a person, they all say they don't feel a thing. So I think it deepends on the thickness of the med.
My exercise today will be grocery shopping, but at least I'll have help from my kids.
Let me know how your docs appt went.
Isn't it amazing how excited we get when we can do something from our past. Keep up the exercise and be very proud of your self. I rather be tired from excersice than anything else because it's helping me in the long run.
How's the smoking going or hopeful not going?
I use to inject myself for migraines under the skin. The needle wasn't the problem it was the med that was soooooooo painful. But I've given insulin shots to many a person, they all say they don't feel a thing. So I think it deepends on the thickness of the med.
My exercise today will be grocery shopping, but at least I'll have help from my kids.
Let me know how your docs appt went.
duttin
12-18-2006, 12:37 PM
DR's appointment went well,my GP isn't all that knowledgeable on the ms meds,but least he was honest.He said he will educate himself on them.He give the okay on steroids at low doses,not IV therapy.I had an allergic reaction to a steriod IV therapy years ago.He doesn't prescribe LDN,he's leary about meds not FDA approved for MS.If it was approved for MS he would have no problem prescribing it.
Well I had a relapse in the smoking area,I'm blaming it on the stress of the outlaws coming.I will try again after the holidays.
I already done my exercises today.
I'm having bladder problems and this makes me mad.It drives me nuts.
One appointment left and thats friday.An EMG.
I'm glad I switched neuro's my GP read me the notes between the neuro and the ENT about my hearing loss.The neuro was being a jerk to the ENT.The neuro sent me to the ent.You'd think they'd get along and agree for the patients sake.The patient should come first.
Well I had a relapse in the smoking area,I'm blaming it on the stress of the outlaws coming.I will try again after the holidays.
I already done my exercises today.
I'm having bladder problems and this makes me mad.It drives me nuts.
One appointment left and thats friday.An EMG.
I'm glad I switched neuro's my GP read me the notes between the neuro and the ENT about my hearing loss.The neuro was being a jerk to the ENT.The neuro sent me to the ent.You'd think they'd get along and agree for the patients sake.The patient should come first.
rilsam
12-19-2006, 10:05 AM
I like docs who look up things when they not sure. It makes me feel like they're trying. Though when my GP said the same thing he forgot about me till I called to remind him. Too many patients to little time.
We'll get to get our EMG together, since mine is Friday afternoon. I'm not looking forward to the hour drive into Indy.
Sorry about the bladder. I've been lucky and haven't had any problems with that. Now bowel problems are an altogether different subject.
My doc is thinking about putting me on LDN but their office does tons of MS studies so they are use to doing things off the beaten track.
Went grocery shopping yesterday. That was enough exercise. And I'm so tired this morning but I'll try later. I have to keep moving or I'll stop.
One more day till the outlaws, my their stay seem brief and their mouths stay shut.
We'll get to get our EMG together, since mine is Friday afternoon. I'm not looking forward to the hour drive into Indy.
Sorry about the bladder. I've been lucky and haven't had any problems with that. Now bowel problems are an altogether different subject.
My doc is thinking about putting me on LDN but their office does tons of MS studies so they are use to doing things off the beaten track.
Went grocery shopping yesterday. That was enough exercise. And I'm so tired this morning but I'll try later. I have to keep moving or I'll stop.
One more day till the outlaws, my their stay seem brief and their mouths stay shut.
duttin
12-19-2006, 11:39 AM
I can't get motivated today.Everything is sluggish.My daughter is coming over and we are going to bake cookies.I still have to get my down stairs cleaned.Its half done.
My EMG is friday morning 8 sharp.Yea full body,but she's good and quick.It just wears me down when I have them done.
I have to grocery shop tomorrow morning.Yea!!But I'll leave soon as the kids do for school.
I like your quote,but there mouths don't stay shut.
My EMG is friday morning 8 sharp.Yea full body,but she's good and quick.It just wears me down when I have them done.
I have to grocery shop tomorrow morning.Yea!!But I'll leave soon as the kids do for school.
I like your quote,but there mouths don't stay shut.
rilsam
12-19-2006, 04:24 PM
My daughter had a friend spend the night. She's a good kid but having someone extra in the house is always stressful. I did get my bills paid today. But I'm just so worn out. My husband even commented on this. He says he can tell I'm feeling less pain but the fatigue is too strong. He never denies my symptoms, just the reasons for them. My neuro will do the EMG at 1:00 on Friday. (I called today to ask who did it) so I'll bring my MRI's I forgot to bring last time and ask about LDN. I have no idea what my EMG is going to intell. All I know is maybe it might give a reason for all the twitching, but my luck it won't. I'm not a problem child for my neuro for no reason. I'm still only on 1 tab of klonopin. Who would think such a small pill could create so much good and bad things.
Maybe we'll have some energy tomorrow. It's always tomorrow isn't. That's too much of wishing our lives away. Maybe we'll have more energy in a few hours?
Maybe we'll have some energy tomorrow. It's always tomorrow isn't. That's too much of wishing our lives away. Maybe we'll have more energy in a few hours?
duttin
12-19-2006, 08:00 PM
Well I did get 4 different kinds of cookies done,thank god for the stand mixer and my daughter.It took us about 4 hours and by the time I was done I was in so much pain from standing and I had electrical shocks running done my leg into my foot,that hurt so bad I had tears running down my face.Boy I must of peed that nerve off or something cause it sure was paying me back.I took my meds,the lorazapam kicked right in and I slept for 2 hours.
I had my 17 year old clean the groutr in the kitchen floor,ya know majic erasers do a great job.She looked at me and wanted to know if I thought she looked like cinderella,I said yep and I'm gonna be the wicked step mother if isn't done.I threatened to take her cell phone.
I made my son take garbage to the curb,load the indoor wood rack and dry and put dishes away.He also ask if he looked like cinderella,I said yep,get a hair cut.He has bright orange hair and it needs cut,he's letting it grow long for wreastling,its awful.He's 15 and if thats the worse thing he does.
I'll have to have energy tomorrow,I gotta do grocery shopping and put on my happy face.
My nerves will be shot come friday,that EMG machine won't know what to think.It should have a wave signal that states nerve damage from an over bearing mother in law(lol)
I had my 17 year old clean the groutr in the kitchen floor,ya know majic erasers do a great job.She looked at me and wanted to know if I thought she looked like cinderella,I said yep and I'm gonna be the wicked step mother if isn't done.I threatened to take her cell phone.
I made my son take garbage to the curb,load the indoor wood rack and dry and put dishes away.He also ask if he looked like cinderella,I said yep,get a hair cut.He has bright orange hair and it needs cut,he's letting it grow long for wreastling,its awful.He's 15 and if thats the worse thing he does.
I'll have to have energy tomorrow,I gotta do grocery shopping and put on my happy face.
My nerves will be shot come friday,that EMG machine won't know what to think.It should have a wave signal that states nerve damage from an over bearing mother in law(lol)
rilsam
12-20-2006, 11:32 AM
Well, it sounds like you had a productive day yesterday. I was having a good but tired day yesterday untill about 6:00 pm. I became extremely tired and then my whole right side started acting up. It's usually my left side. I just couldn't get comfortable even with meds. And it also hurts about 4" up on my left arm from my wrist so I have a hard time picking anything up. It's disappointing because I thought I was getting better. I will force myself to exercise today, clean one room and run to the mall for my husbands errand. That seems like so much when I write it down. Stand firm against the outlaws and don't hesitate to claim fatigue and go to your room to rest. Your husband can deal with them since their his.
duttin
12-20-2006, 02:10 PM
I am extremely tired today,I final got the down stairs cleaned.What a chore.
I have about an hour before the games begin.LOL.I have losted the central vision in my left eye and I have some of the worse nerve pain in my right leg I have never experienced before.
My muscles have relaxed some and I have continued my daily stretches.I have not done them yet today.
I did get my grocery shopping done.That physically exhausted me.Hubby brings groceries in but never puts anything away.
I think I'm already for Christmas.My hubby has to work Christmas eve 12 hours so we will be having Christmas eve dinner at midnight.
I'd love to take a nap.But it ain't gonna happen.
I have about an hour before the games begin.LOL.I have losted the central vision in my left eye and I have some of the worse nerve pain in my right leg I have never experienced before.
My muscles have relaxed some and I have continued my daily stretches.I have not done them yet today.
I did get my grocery shopping done.That physically exhausted me.Hubby brings groceries in but never puts anything away.
I think I'm already for Christmas.My hubby has to work Christmas eve 12 hours so we will be having Christmas eve dinner at midnight.
I'd love to take a nap.But it ain't gonna happen.
rilsam
12-20-2006, 02:48 PM
Just remember your more important than your out-laws. If you over do it you can really set yourself back for a long time. They're not worth it. Don't push yourself and rest when you can. Everything else will some how take care of it's self and if it doesn't the world won't end. Good luck.
duttin
12-20-2006, 11:57 PM
Today went fine,a little heated discussions but other than that it was okay.My 20 year old came and that was a good thing.They treated her real well.She's my daughter from my first marriage but my hubby has raised her.Tomorrow I hope goes well.my left arm is in alot of pain.
rilsam
12-21-2006, 11:05 AM
I'm glad yesterday went well and I'm hoping for the same through out the visit. My Fibro's kicked in yesterday so my butt and back muscles are killing me. I'll try to exercise today since that seems to help some what. My left arm still hurts but everyone seems to be helping out. I got the childrens tree up and we did some home made ornaments but still need to do some more. Hope you have a great day.
duttin
12-21-2006, 03:42 PM
Sorry to hear about your fibro,I am so exhausted today my eyes burn from the fatigue.I know the minute I lie down someone will wake me.I keep pushing myself to stay awake.I can rest tomorrow afternoon.The outlaws will leave early afternoon.
rilsam
12-21-2006, 03:57 PM
Well, I'm glad their visit is a short one. I really wish you could rest. Even 15 min is better than nothing. I'm worried about you. You shouldn't have to change your rest schedule for them. But is it going ok? About what you expected?
LaLady
12-21-2006, 04:03 PM
Yes,West Point is the Army.She got her nomination in the mail from the Govornor,her excitement was overwhelming until it stated WestPoint,not the naval academy.Her heart was crushed instantly.
Someone is pulling a fast one on your daughter. Governors cannot nominate for West Point; only Senators and U.S. Congressmen/women. Also you apply for the particular Service Academy in which you are interested.
I am concerned that she may have been tricked. Believe me, my husband has been a military officer for 33 years and is at the Point now- something's not right here.
Someone is pulling a fast one on your daughter. Governors cannot nominate for West Point; only Senators and U.S. Congressmen/women. Also you apply for the particular Service Academy in which you are interested.
I am concerned that she may have been tricked. Believe me, my husband has been a military officer for 33 years and is at the Point now- something's not right here.
duttin
12-21-2006, 06:12 PM
Lalady.
I was incorrect,it was Mike OXley(congressmen) that nominated her.She had applied to navey academy and west point.Our congressman left office so interveiws were conducted early.
Everything is in the up and up.Everything Is in military certificate form.
The vice president can also nominate.
A person must have a nomination from the acedamy on acceptance and a nomination from a Senetor,a district congressman or our Vice President.Then you must meet medical criteria's.
I was incorrect,it was Mike OXley(congressmen) that nominated her.She had applied to navey academy and west point.Our congressman left office so interveiws were conducted early.
Everything is in the up and up.Everything Is in military certificate form.
The vice president can also nominate.
A person must have a nomination from the acedamy on acceptance and a nomination from a Senetor,a district congressman or our Vice President.Then you must meet medical criteria's.
duttin
12-21-2006, 06:16 PM
Its going better than I expected,little calmer than normal.I'm just really tired and my muscles really ache I think do to the fatigue.Tomorrow I have my EMG at 8:30,before hand I need to pick up a few groceries.I'll get back to the house around 10:00 they'll leave about 2.Then I'll sleep.
rilsam
12-22-2006, 08:32 PM
Sorry about the news of you EMG. That bites! Just try to take one day at a time. I know it's hard. At least your outlaws left.
My EMG was very painful. The electric stim. didn't really bother me and things came back pretty normal except for some mild degeneration to one knee nerve which could be due to my bad knees. The test where they put a needle in you was a whole nother story. About 65% didn't hurt at all. But some of them hurt my muscles so bad I was crying. I think my neuro wanted to cry. She kept saying we could stop. I just wanted it done so I didn't have to go through it again. The results were boarder line normal but still normal. She says the only people that experience that kind of pain are those with a neuromuscular disorder. It could just be my fibro or something else. She said we will definately have to redue it later to see if it progresses.
So I'm still in the wait and see catagory. I won't see her again till Feb. unless I have a major problem. So now I hurt and I'm tired. I was there for 3 1/2 hours. She does take her time with me. My little one popped up with chicken pox so it will be a fun Xmas. At least they don't seem to bother her too much.
My EMG was very painful. The electric stim. didn't really bother me and things came back pretty normal except for some mild degeneration to one knee nerve which could be due to my bad knees. The test where they put a needle in you was a whole nother story. About 65% didn't hurt at all. But some of them hurt my muscles so bad I was crying. I think my neuro wanted to cry. She kept saying we could stop. I just wanted it done so I didn't have to go through it again. The results were boarder line normal but still normal. She says the only people that experience that kind of pain are those with a neuromuscular disorder. It could just be my fibro or something else. She said we will definately have to redue it later to see if it progresses.
So I'm still in the wait and see catagory. I won't see her again till Feb. unless I have a major problem. So now I hurt and I'm tired. I was there for 3 1/2 hours. She does take her time with me. My little one popped up with chicken pox so it will be a fun Xmas. At least they don't seem to bother her too much.
duttin
12-22-2006, 09:21 PM
The nerve conduction test didn't bother me.The needle EMG wasn't painful,only one spot.My electro-muscular DR is awesome.I have a couple of spots that really hurt tonight.There was 2 spots that bled,she was upset with herself.The needle test in the paraspinals didn't hurt this time,only when she hit a spot that was spazzing.
Yes hubby's parents left,I was so physically drained yesterday I finally gave in and took a 2 hour nap.After they left today I slept 3 hours.Last night we were playing cards and around 10 pm I finally told them last hand I had to go to bed.The next couple of weeks I'm sleeping in and resting.
I've had very painful emg's that had made me cry,thats why I won't let anyone do one except for this DR.She did say that the radiculopathy was healing a little.Thats good news.
Yes hubby's parents left,I was so physically drained yesterday I finally gave in and took a 2 hour nap.After they left today I slept 3 hours.Last night we were playing cards and around 10 pm I finally told them last hand I had to go to bed.The next couple of weeks I'm sleeping in and resting.
I've had very painful emg's that had made me cry,thats why I won't let anyone do one except for this DR.She did say that the radiculopathy was healing a little.Thats good news.
rilsam
12-24-2006, 01:24 PM
The Heathboard wouldn't let me log in yesterday. So I just had one big pity party that seems to still be going on. I tried a new anti-depressent which is suppose to help with sleep. I took half a tab and was waking up every hour. My muscles are so cramped and painful that I'm using my can and have taken my klonopin. I don't think I'll be doing that anti-depressent again.
I know I have it alot better than alot of people but I'm just tired of not feeling good. I don't remeber what a normal day without pain or fatigue is. I'm tired of being in limbo and I know it will be for awhile. I fought so hard to have a good quality of life after the fibro dx. I'm just feeling very lost right now. Maybe God will take pity on me and I'll have a good Xmas day.
At least the girls chicken pox are getting better. They hardly itched and only had a few spots.
I hope you have a wonderful Xmas too.
I know I have it alot better than alot of people but I'm just tired of not feeling good. I don't remeber what a normal day without pain or fatigue is. I'm tired of being in limbo and I know it will be for awhile. I fought so hard to have a good quality of life after the fibro dx. I'm just feeling very lost right now. Maybe God will take pity on me and I'll have a good Xmas day.
At least the girls chicken pox are getting better. They hardly itched and only had a few spots.
I hope you have a wonderful Xmas too.
duttin
12-24-2006, 02:54 PM
I fought these boards yesterday also.
Wishing you well.My fatigue is an all time worse.If I can stay awake for a few hours at a time I'm doing good.I see my neuro wensday.
Hope your little ones are felling better.i bet they are excited about Santa,even though they know the truth.i have a very busy day tomorrow.Hoping I can stay awake.Going to my moms.Its just around the corner.
Wishing you a pain free Christmas.You and your family have a Merry Christmas.
Wishing you well.My fatigue is an all time worse.If I can stay awake for a few hours at a time I'm doing good.I see my neuro wensday.
Hope your little ones are felling better.i bet they are excited about Santa,even though they know the truth.i have a very busy day tomorrow.Hoping I can stay awake.Going to my moms.Its just around the corner.
Wishing you a pain free Christmas.You and your family have a Merry Christmas.
rilsam
12-26-2006, 04:26 PM
I had a great Christmas. I hope yours was the same. I actually had a firm control on the pain. Only very minor things. It's always so fun to watch the kids open presents. And I'm just as bad. The girls played with all their new toys. They didn't once watch TV. Very rare for them. I've started to clean up all the trash the holidays make. I've even have found places for most of the new toys. I figure a little at a time and by the end of the week it will be done. Except for the tree of course. My husband was very receptive of the MS book I bought for him and said we would read it together. I think the self pity before Xmas was just what I needed. A good cry sometimes just makes you feel better.
Now for my new years resolutions : to lift light weights about 3 times a week, to start walking on the tread mill twice a week even if it's for 10 min. , and to have a positive out look and remeber all the things I'm thankful for.
Now for my new years resolutions : to lift light weights about 3 times a week, to start walking on the tread mill twice a week even if it's for 10 min. , and to have a positive out look and remeber all the things I'm thankful for.
duttin
12-26-2006, 06:50 PM
I had a great Christmas,with my kids being older the stereo's were a blarring,TV on loud,hubby watching the 3 stooges.The dog playing with sqeaky toys.was enough to send me into orbit.
Glad your hubby like the book on MS.Thats a good idea of reading it together.
Yes,the clean up after christmas,I finally got all the boxes broke down and the garabage to the garage.My tree will probably come down soon,its a real one and its been up since the day after Thanksgiving,its getting a little dry.
I to am gonna get set into a regular exercise program,my son brought the small weight bench inside.I'm gonna put the walking on hold until I get the new leg brace,you know its odd I can jog in place for 10 minutes,mind you the feet don't come off the ground but 2 inches,the minute I take a step the right leg goes goes hay wire and straight out to the side.My goal this year is to run 2 miles with my youngest daughter.The leg brace that is being taylored to fit will give me that ability.Special hinges on the sides so the knee will bend.The only time the hinges need to be locked is when my balance is really bad.
A positive attitude is what it takes to deal with this disease.but we'll have a few days where our positive attitudes will be tempted.
I see my neuro tomorrow to discuss modifying meds,I am going to revisit the issue of LDN.Maybe he has give it some thought.
Glad your hubby like the book on MS.Thats a good idea of reading it together.
Yes,the clean up after christmas,I finally got all the boxes broke down and the garabage to the garage.My tree will probably come down soon,its a real one and its been up since the day after Thanksgiving,its getting a little dry.
I to am gonna get set into a regular exercise program,my son brought the small weight bench inside.I'm gonna put the walking on hold until I get the new leg brace,you know its odd I can jog in place for 10 minutes,mind you the feet don't come off the ground but 2 inches,the minute I take a step the right leg goes goes hay wire and straight out to the side.My goal this year is to run 2 miles with my youngest daughter.The leg brace that is being taylored to fit will give me that ability.Special hinges on the sides so the knee will bend.The only time the hinges need to be locked is when my balance is really bad.
A positive attitude is what it takes to deal with this disease.but we'll have a few days where our positive attitudes will be tempted.
I see my neuro tomorrow to discuss modifying meds,I am going to revisit the issue of LDN.Maybe he has give it some thought.
rilsam
12-26-2006, 08:18 PM
I asked my doc about LDN. She had made it sound like a posibility on the phone but when I talked to her in person it was another story. She says she doesn't like it that much because she thinks there are other drugs that work better. That being said, my drug choices are dwindling down because I have such bad reactions. So we'll see if she lets me down the road.
I don't use a weight bench but a ball with 5lb. weights. It helps my core muscles and it helps with balance. But of course I do sometimes just roll off the ball. I can just imagine what a funny picture I make.
My trees fake so it might take a while to get down esp. since my husband will have to help.
I don't use a weight bench but a ball with 5lb. weights. It helps my core muscles and it helps with balance. But of course I do sometimes just roll off the ball. I can just imagine what a funny picture I make.
My trees fake so it might take a while to get down esp. since my husband will have to help.
duttin
12-27-2006, 04:00 PM
Neuro said no to the LDN and to start rebif soon.He wants to do low dose steroids.Well actually he wanted to admit me to the clinic for 5 days and do the steroids,I don't think so.My kids,hubby and dog would have my house a wreck.The neuro took me off the lorazepam and put me on valium said its better for the muscle spasms and not as sadative.He said it will stay in my system longer.
My sister in law called this morning and they'll be here tomorrow,not planning on that one.But shes a sweet heart and we don't get to see her that often.
It will be a good visit.So now I gotta go gricery shopping and clean my house.YUK!!!
My sister in law called this morning and they'll be here tomorrow,not planning on that one.But shes a sweet heart and we don't get to see her that often.
It will be a good visit.So now I gotta go gricery shopping and clean my house.YUK!!!
rilsam
12-27-2006, 07:38 PM
Sweet after sour is the way to do it. I hope your visist goes well. I truly hate going grocery shopping. There has to be an easier way. Well I exercised today and over did it a wee bit. I was shaking so bad and my hands felt numb. At least it didn't last long.
My 9 y/o daughter got her hair cut today. It was down to her waste. I would only let her cut it if she donated it. So she got 10 inches cut for locks of love. I'm a proud mom. My little one is thinking about it. Unfortunately if she gets it cut it will be shorter than she wants. So if she doesn't do it this year she'll do it next. My older said she's going to regrow her hair so she can do it again.
I don't know why the neuro's don't like LDN when the studies are so promising. I think their just scared of something new. How will we know long term effects unless they start using it? When are you starting on steriods?
My 9 y/o daughter got her hair cut today. It was down to her waste. I would only let her cut it if she donated it. So she got 10 inches cut for locks of love. I'm a proud mom. My little one is thinking about it. Unfortunately if she gets it cut it will be shorter than she wants. So if she doesn't do it this year she'll do it next. My older said she's going to regrow her hair so she can do it again.
I don't know why the neuro's don't like LDN when the studies are so promising. I think their just scared of something new. How will we know long term effects unless they start using it? When are you starting on steriods?
duttin
12-27-2006, 07:52 PM
Well the house is clean,I'll go shopping in the morning.
I hate it when exercising does that and your right it don't last long.If I get over heated I lose the central vision in my left eye.Its really freaky.
I'm not gonna start steroids until my kids go back to school.I have to go sign papers at the main clinic on Friday and then they have to get the okay from my insurance and then contact a home health nurse.Standard protocal.
Locks of love is a great organization,you should be a proud mamma,a great donation from your daughter.
I talked to my neuro about the fatigue and he thinks much of it is muscle fatigue from the spasms.Hopefully once the steroids are started and the rebif the spasms diminish.
I hate it when exercising does that and your right it don't last long.If I get over heated I lose the central vision in my left eye.Its really freaky.
I'm not gonna start steroids until my kids go back to school.I have to go sign papers at the main clinic on Friday and then they have to get the okay from my insurance and then contact a home health nurse.Standard protocal.
Locks of love is a great organization,you should be a proud mamma,a great donation from your daughter.
I talked to my neuro about the fatigue and he thinks much of it is muscle fatigue from the spasms.Hopefully once the steroids are started and the rebif the spasms diminish.
rilsam
12-27-2006, 08:08 PM
Why do today what you can put of till tomorrow. LOL. But it's good that you don't over do it.
Why do they make all these medical necessities feel like an obsticle course? At least the med clinics or docs offices are the ones that have to jump through the hoops.
What would we do without school? I love my kids but it's so much easier to get things done for the house and for myself when they're at school. But if I have to leave them it has to be with a baby sitter.
I hope your docs right about the fatigue. It would be nice for you to get a break on it. I think I'm finally getting use to my klonopin. I only fall asleep every few days sitting in front of the TV instead of every day.
Why do they make all these medical necessities feel like an obsticle course? At least the med clinics or docs offices are the ones that have to jump through the hoops.
What would we do without school? I love my kids but it's so much easier to get things done for the house and for myself when they're at school. But if I have to leave them it has to be with a baby sitter.
I hope your docs right about the fatigue. It would be nice for you to get a break on it. I think I'm finally getting use to my klonopin. I only fall asleep every few days sitting in front of the TV instead of every day.
duttin
12-27-2006, 08:16 PM
I prefer to shop early morning,no ones in the store.
I told my kids the other day I couldn't wait until they moved out.They leave a trail every where they go.They are like a snail leaving its tracks in the sand.i really didn't mean it but its frustrating with teenagers.
I'm glad I'm past baby-sitter stage.I look at them and say see ya.I'll be back later.It will come for you.
My neuro said he'd do all the paper work.Which means his nurse will.But she's really nice.
If ya look at my meds they are all sedatives,no wonder I'm tired all the time.
I told my kids the other day I couldn't wait until they moved out.They leave a trail every where they go.They are like a snail leaving its tracks in the sand.i really didn't mean it but its frustrating with teenagers.
I'm glad I'm past baby-sitter stage.I look at them and say see ya.I'll be back later.It will come for you.
My neuro said he'd do all the paper work.Which means his nurse will.But she's really nice.
If ya look at my meds they are all sedatives,no wonder I'm tired all the time.
rilsam
12-28-2006, 12:27 AM
That is perfect! They're like snails. And it never stops. And when the men grow up the continue to leave their slime track all around the house. At least at this age I have a firm grip of control on my little slime balls. But they're pretty good with just a reminder. But the dog leaves her on trail too, in the form of hair and dirt. Maybe wI can put them in a hotel for a week for a vacation. But then again my youngest cries if I try to send her to G.ma's with her dad without me.
I did wonder about all those sedatives and their effects.
I did wonder about all those sedatives and their effects.
duttin
12-29-2006, 10:26 PM
We have redone my meds.Instead of taking them together we are seperating them.In the morning I'm taking the valium and baclofen and 3 hours later the zanaflex and so on the only time I need to take all my together is at night.
Yesterday I lived off vicodin all day.The pain was terrible which made the fatigue worse.
I went and signed the paper work for rebif and steroids.Now MS is in all my medical records,so I got my life insurance in order.What a reality check.
I think it all soaked in for hubby today,he went through the paper work with me.
I did get a little shopping done for me today.Usually its for the kids or hubby.Trying to find sweat pants that my new leg brace will fit under.If were up to me I'd wear over my jeans ,but my son gets real sensative when anyone makes a comment.I like to attend his wrestling meets and I don't like it when he feels he has to defend me because some ignorant kid makes comments.Even though he appears to be macho,he's my sensative one.
Yesterday I lived off vicodin all day.The pain was terrible which made the fatigue worse.
I went and signed the paper work for rebif and steroids.Now MS is in all my medical records,so I got my life insurance in order.What a reality check.
I think it all soaked in for hubby today,he went through the paper work with me.
I did get a little shopping done for me today.Usually its for the kids or hubby.Trying to find sweat pants that my new leg brace will fit under.If were up to me I'd wear over my jeans ,but my son gets real sensative when anyone makes a comment.I like to attend his wrestling meets and I don't like it when he feels he has to defend me because some ignorant kid makes comments.Even though he appears to be macho,he's my sensative one.
rilsam
12-30-2006, 05:36 PM
I'm in Ashland, Ohio for a few days visiting my inlaws. They're great people. But that 4 hour drive has taken its toll. It wasn't so bad in the car but now my muscles are sore from the fibro and I'm vibrating like crazy with some nerve pain in my extremities. I think it's going to be awhile before I make this trip again. I've been asleep a chunk of today because of the flexeral combined with the klonopin makes me extremely tired. I hope the new timining of your meds helps. I can see how taking them all at once will put you to sleep. When do you start your rebif? I've taken vicodin for migraines and tried it a few times for the MS pain. Your right, it really doesn't touch the pain.
If your having troubles finding sweat pants, try mens. They tend to be more roomier. Sweat pants are so unisex that I bet no one would notice. But you might not want to tell your son.
I keep telling my husband that he's in touch with his femanin ?sp? side. It's a good thing and not enough people are (male or female). It sounds like your son's going to be this way.
How was your visit with your sister inlaw?
Wish me luck here. There's no place like home and I still have to make the 4 hour journey there Monday.
If your having troubles finding sweat pants, try mens. They tend to be more roomier. Sweat pants are so unisex that I bet no one would notice. But you might not want to tell your son.
I keep telling my husband that he's in touch with his femanin ?sp? side. It's a good thing and not enough people are (male or female). It sounds like your son's going to be this way.
How was your visit with your sister inlaw?
Wish me luck here. There's no place like home and I still have to make the 4 hour journey there Monday.
duttin
12-30-2006, 06:30 PM
Ashlands a nice town,theres a store there fins, feathers and fur a hunting store.I really like the cheese store near there.What route did ya take to get to Ashland?
I looked at guys sweats the smalls are to big and youth boys are to short.I'llfind something eventually.
I hate long car rides,I'm going to Illinois in May but I'm flying its worth the money vs the pain.
I have found if I take the vicodin and valium together I get better pain releif.I have temporarily(sp) stopped taking the zanaflex,I think its causing muscle weakness which is one of its side effects.I'm not as tired on it and the muscle fatigue isn't as bad.Plus I'm not taking the lorazepam,my new neuro replaced it with the valium and I'm finding I can function on that vs the lorazepam.
My visit with my sister in law was great,she's a really sweaty.She's a registered nurse and has worked with MS patients,she knows what my life is like.She said she had a long talk with her parents at Thanksgiving,but apparently it didn't sink in.
Its always good to get away,but your right theres no place like home.
I probably over done it today,61 degrees outside so I worked in my yard.We raked 20 bags of leaves and cleaned up around my garden pond.Things that should of been done back in the early fall.
Enjoy your visit away from home.
I looked at guys sweats the smalls are to big and youth boys are to short.I'llfind something eventually.
I hate long car rides,I'm going to Illinois in May but I'm flying its worth the money vs the pain.
I have found if I take the vicodin and valium together I get better pain releif.I have temporarily(sp) stopped taking the zanaflex,I think its causing muscle weakness which is one of its side effects.I'm not as tired on it and the muscle fatigue isn't as bad.Plus I'm not taking the lorazepam,my new neuro replaced it with the valium and I'm finding I can function on that vs the lorazepam.
My visit with my sister in law was great,she's a really sweaty.She's a registered nurse and has worked with MS patients,she knows what my life is like.She said she had a long talk with her parents at Thanksgiving,but apparently it didn't sink in.
Its always good to get away,but your right theres no place like home.
I probably over done it today,61 degrees outside so I worked in my yard.We raked 20 bags of leaves and cleaned up around my garden pond.Things that should of been done back in the early fall.
Enjoy your visit away from home.
rilsam
12-31-2006, 10:10 PM
When I couldn't walk after I took the zanaflex my doc didn't understand why. She said weakness wasn't a side effect. I guess she forgot to read the package insert. I hate the stuff. It just made the muscle spasms unbearable along with giving me insomnia. But almost everything gives me insomnia.
The visit has been pleasant. His family is more excepting of my limitations than my husband. But I truly understand that he just doesn't want me to be sick. Maybe he can wishful think me well. The bed we sleep in is a queen. We're use to sleeping in a king. So we're cramped and the beds a little too hard so I wake up with sore muscles. I miss my bed. One more night.
I started my walking due to the dog needing to be taken out (no fence). So for the past two days I've walked about 1 mile each day. So I'll try to keep it up.
I'm bad about directions but we go around Columbus toward Dayton, then toward Indy. We see the blue arch of Ohio every time we come and go.
I'm glad the switch in meds are working. I think I'm going to have to go up on my klonopin. But I'll do it kicking and screaming all the way because I hate being tired.
The weather has been ssooooooo nice. It's ashame it had to rain today. But it was beautiful why it lasted. Maybe it will be back soon.
The visit has been pleasant. His family is more excepting of my limitations than my husband. But I truly understand that he just doesn't want me to be sick. Maybe he can wishful think me well. The bed we sleep in is a queen. We're use to sleeping in a king. So we're cramped and the beds a little too hard so I wake up with sore muscles. I miss my bed. One more night.
I started my walking due to the dog needing to be taken out (no fence). So for the past two days I've walked about 1 mile each day. So I'll try to keep it up.
I'm bad about directions but we go around Columbus toward Dayton, then toward Indy. We see the blue arch of Ohio every time we come and go.
I'm glad the switch in meds are working. I think I'm going to have to go up on my klonopin. But I'll do it kicking and screaming all the way because I hate being tired.
The weather has been ssooooooo nice. It's ashame it had to rain today. But it was beautiful why it lasted. Maybe it will be back soon.
duttin
01-01-2007, 11:41 AM
Glad your having a nice trip,theres nothing better than your own bed.I bet your dog enjoys her walk.Soon as I get my new leg brace I'm gonna start walking my dog again or should I say she walks me.She's a wopping 140 pounds.
I completly quit the zanaflex,I have some energy now.But my muscles are killing me,they burn which is a new symptom for me.My left shoulder don't want to move today.
Hope you had a nice new year,have a safe trip home.
I completly quit the zanaflex,I have some energy now.But my muscles are killing me,they burn which is a new symptom for me.My left shoulder don't want to move today.
Hope you had a nice new year,have a safe trip home.