Well, I think my new Neurologist seems to believe that my recent Migraine interefered with my VRT progress. Although, he did agree the Migraines must be controlled to further improve my condition. I told him that I did see improvements after a couple of weeks on Amitriptyline but has seemed to lose it's positive affects recently. So he increased the dosage to 50 mg a night and ordered two new tests I have not had. He mentioned something about testing signals from the brain stem or something like that. Keep you all posted if when learn more.
charlotte67
11-23-2006, 08:52 AM
Skipper...good luck to you! I hope they can adjust that med...and get you to a full 100%!
SkipperH
11-24-2006, 04:29 PM
Thanks Charlotte, I'm feeling a little spacey today with 50 mg a night, but I'm hoping that feeling subsides and I feel better soon. Keep you posted.
SkipperH
11-29-2006, 12:09 PM
I have been on 50 mg a night now for 7 days and I was hoping to see improvements but I'm not. If anything I feel worse. Awful getting up in the morning, stiff neck, pain in my ears radiating down to my neck, full ears feeling, brain fog, hard to concentrate and let's not forget the dizziness / imbalance thing. It's no wonder why some people with this junk get mis-diagnosed with depression, this is down right depressing!!! I know I'm bringing my wife down with this illness too, so I've tried to not talk about it so much to her. This is getting tough to handle.
gloria2936
11-29-2006, 12:38 PM
Hi Skipper,
I'm sorry to hear the increase is throwing things so out of whack. I was doing well and when I got to a certain point of weening down off the klonopin and a bad virus that just won't end, I've notice a big time increase in symptoms.
I was wondering if you have tried talking to a mental therapist? I was really against this last year as I felt like I'm not nuts, only sick and how could anyone help me that didn't understand how I felt physically. I know how straining this can be on relationships, even my 15 year Perfect marriage has been tried at times. I found the therapist to be actually helpful for awhile as it gave me someone to unload on even if she really didn't understand how I felt physically, she was very supportive and took some of the pressure off my husband. I have actually been thinking lately of visiting her again as the holidays are getting me down feeling sick still after just about 2 years.
By the way, are you in the US?
I've also found that while meds can be helpful they can also cause other problems while trying to correct the current one. I'd wait it out a little longer to see if some of your symptoms subside and then contact your doctor to let him/her know what is happening.
I've also found that wanting to unload on someone while feeling good at the moment of unloading, only causes grif later. I think the feeling of wanting to unload on someone but not being able too only makes you feel worse too. Kind of a catch 22 if you understand what I'm trying to say. In other words, I get really bummed out when I see other mothers having a great time with their kids and I think gee I wish I didn't have this problems so I could enjoy my son better. Then I just feel more depressed. If I'm out and no one else is around for me to see having fun then in the long run I don't feel like I'm missing out and enjoy what I am doing with my son at that time rather than being depressed. I hope you can understand my rambling and the point I'm trying to get across.
Take care and feel better - Gloria
SkipperH
11-29-2006, 04:44 PM
Hi Gloria,
Thanks for those words of encouragment. I guess it's this feeling good for a spell and then crashing to square one, it is tiring. I don't think I'm to the point of seeing a mental therapist, but it does sound helpful.
I'm in the US, southern Maine area actually.
I'm seeing a Neurologist now, and he increased my dosage, it took awhile for this med to work initially, so I will give it some time.
charlotte67
11-29-2006, 05:09 PM
Skipper...
I can understand...this illness can really get you down. I would go back and talk to the Neuro..and let him know what he prescribed is making you feel worse.
What about Dr. Maxwell..do you think he could help you out more? Are they sure it is migraine related?
SkipperH
11-30-2006, 11:51 AM
Hi Charlotte, I'm going back to the Neuro after they do the two tests that he ordered (two that I have not had). I will talk to him then, but I'm hoping that after the initial dosage increase I will feel better.
I got the feeling from Dr. Maxwell that he wanted me to explore this Migraine connection with the Neuro first. I guess I will ask the Neuro when I go back to him if I should start the excercises again or what? The problem is I can't even do the head shaking excercises for 10 seconds straight let alone the full two minutes!
charlotte67
11-30-2006, 03:54 PM
Skipper..that head shaking exercise I am doing also. Does your migraine get in the way of the exercise? Can you tell why you cannot incrementally do them?
I am hopeful the meds will help you!!
I know I can get a headache once in a while...when I have a tough visual day, or if I really work too hard on my exercises!!