Hi everyone,

After feeling better I have started to suffer from weird feelings in my head. I have had this junk for 19 months now and have had good and bad times along the way. I now have this feeling which is not a headache as it is not painful but feels like nausea in the head. I feel like I have a hat on and it affects the top of my head. My ears do feel a little full and I still cannot pop them. This has happened on and off for the last couple of months but why is it happening at this stage when I have not experienced these feeling before? Scott, Subs, do you have any answers?

I am back to feeling a little scared and that there might be something else going on. I have always been positive about this illness but it is getting me down again.

I am moving house in a couple of weeks (could be right on christmas), so maybe that is stressing me out a little. I do not feel as if I am worrying about it but I have been dreaming about the new house so maybe it is affecting me more than I think.

Any replies greatly appreciated :)

Mac2

Hi Mac,

I too have head pressure.... This decomp event I am having now seems to have made it 3x as bad.... My explanation for alot of these things is usually that as the brain tries to compensate for the damage, it may overshoot or adjust in a away that causes another symptom to appear... by reducing the original symptom, and increasing another.

Hi Mac2

I had this very bad in the beginning, then it almost seemed to just go away until recently (last 2 months or so) coinciding with me reducing my klonopin down. I've tried to explain this to doctors exactly how you have "feels like nausea in your head" only to be given blank stares back by the doctors as if I said something really crazy.

I don't know if the klonopin was masking this horrible feeling, but I'm getting off it as I know the more I come off it, other things seem to get better. I guess it is a win/loose situation.

I was trying to lay low from the boards to not stir up any emotional distraught, but came on because of this exact thing. I've had it really bad the last two days. Thinking about it makes me so sick that I actually feel nauseous from it.

I know other people get this too as I've talked about it before not too long ago. I wish I knew what it was too as sometimes I think an actual headache would feel better than this sickening feeling.

I wish I could lend you some advice, but I can't. I just wanted you to know that you are not alone and hope that it makes you worry less as I had it in the beginning and had an MRI plus two CT-Scans and nothing showed up. Worrying just makes everything else harder. Hope you feel better today...Take care - Gloria

Hi Tummy2,

Sorry to hear of your recent relapse.....you were doing so well. You'll get back to how you were and eventually kick this thing. Hang in there and try to enjoy that little baby of yours.

Gloria

Gloria,...

Baby Baby baby... Shes a wild thing at just 11 months.... Shes mastered the art of telling me what to do :). And yap yap yap... Who knows what "et-ta-na na nana na ni na dada baba" means....

This latest setback, just like you is terrible... If you remember gloria, I had been taking Xanax, which just like the klonopin numbs that terrible feeling..... I stopped taking it though, by tapering oh so slowly in July... Now this latest episode, I began taking it again in very small quantities, and just the last 4 days have been completely free.. Dont know if that will last long though... I am having a rough time atm.....

I am so glad to hear you were doing much better, even if it was on the klonopin. Remember when you taper down, do it really slowly.. I mean really slowly... I think if you do that, you may not notice the bad feelings... When I was tapering, I went below the minimum dose and some days, I would just (Ok, this may sound stupid) lick the tablet a couple of times.... Eventually, I just stopped... BUt it was a slow go of it. Also, be careful not to jar/shock your system too much, as you may have a decomp based on that alone....

Gloria -- It always broke my heart to hear how you were feeling.. I am really glad you had been getting better days... Days which we both thought at some point would never come... I bet thats how your feeling again... But Chin up.......

Tummy