they do they, they really do. lets face the truth. Today I was pouting that I 31 yrs old cant drive. - and I shouldnt drive, but its still maddening. It takes so much away from you, espicially your independance. I would love just to go get coffee- if I felt like it, ect. and then today my dad drives me to take my daughter to a Dr. appt, and I have a tonic clonic seizure there, end of in emergency. well I sure wasnt in a bad mood then, the pain of a seizure afterwards dont get talked about much, and it should. gosh lights hurt my head, the headaches, the confusion, too many iv's that we have liked, Yes i have been humble, my gosh I just found out that another friend has colon cancer, and i have been positive, but this illeness sucks!!!
kipp77
03-01-2003, 01:25 AM
As hard as I try to maintain a positive attitude, you are so right! I am sorry to hear about your lousy day, but hope your weekend gets better.
As I sit here, typing you this response, I am doing it with compression gloves on both of my severely burned hands. This past August, I had a seizure and stuck both hands under a hot water faucet where they had raised the hot water temperature to 165 degrees. Had to have skin graft surgery on both hands.
Yes, you are absolutely right. You know what's (not) funny, even when your loved ones share a cry with you, they really don't have a clue. I wish I was wherever you are right now so we could cry together.
- kipp77
kayakmom
03-01-2003, 08:38 AM
SO sorry you have had such a rotten day. You are right they suck.. Hope today is a much better day for all...
violarose
03-01-2003, 11:39 PM
I am sorry Kip, I really am, for the extra pain u have had to suffer from having seizures. (())) Knock on wood a thousand times, I have been very lucky that I havent hurt myself from a grandmal seizure, I have had hit my head a good many times from not having protection when i fall, but not hurting myself. I am in a better mood today, Its easier to deal when your not so down, but i think the no driving part is the hardest for me to have to accecpt. - this illenss has gone on for 3 months now,
kipp77
03-02-2003, 01:05 AM
Violarose,
I am happy to hear that you are doing better today, so am I. I have been listening to many of you talk about the driving restriction, and even though I can still drive, my license is currently under review.
The loss of driving privledge I can visualize as a severe blow both physically and psychologically. Because of my lifetime (45 years) living with E, I have never even tasted a beer. It pains me to think of all those drunk drivers out there while we can't even drive ourselves to work.
Have a great day tomorrow!!!
- kipp77
nicola_76_uk
03-02-2003, 05:41 AM
Violarose,
Don't feel bad about venting...we all do it from time to time and that's what this forum is here for. As much as E sucks we all have to work hard to not let it take over our lives. Stay strong and positive and know that you're not alone in this. http://www.healthboards.com/ubb/smile.gif
Take care!
(((hugz)))
http://www.healthboards.com/ubb/heart.gif Nic
Kaitie
03-03-2003, 04:09 PM
Kipp, you bring up a really good point about drunk drivers still being able to drive after an offense.
It bugs me so much - I'm so much more responsible than that - and so are so many other people and now because we have a medical 'problem' we can't drive. I bet the roads would be a lot safer with a thousand ME's out there with absence seizures (I've been driving for four years now) than with ONE drunk driver.
You know the premier of my province got dinged for drunk driving in Hawaii and he STILL has HIS liscense. What a role model.
Sorry - just venting. I'm still really peeved about my liscence (and its not even taken away officialy yet!)
Kaitie
Pearl201se11
03-19-2003, 08:41 AM
Seizures do suck! I only have absence seizures but, I've had them since I was 15 (1998), I'm 20 now. Are they ever going to go away or will they develope to grand mal? The seizures started a little while after I came home from the hospital from having eye surgury to correct a lazy eye. BTW I also have hypoglycemia but the hypoglycemia developed about 5 months ago.
------------------
Pearl201se11
lady_grey
03-20-2003, 03:39 PM
I know how you feel. Sometimes those bad days can just be awful because everything is just so unfair and so unfixable. There is nothing worse than being upset about something that is out of your control. A few years ago that was me. Dying to get to a part time job or be able to go on a date or just do ANYTHING that I had deemed "normal" but my seizures kept me from.
I noticed that it felt especially terrible while I was on Keppra. I think that drug just causes depression. I don't know. Anyway, life has improved since VNS but I still definitely understand where you are coming from. I've been there too. Is there anything you haven't tried yet to control your seizures?