Allo - tis I again. Well I've been put on Topomax, and do not know much about it. I wasn't on any AED's before...so I'm fairly new to this - side for some phenobarbitol in childhood.

Is or has anyone taken it? Where they're any side affects that you just couldn't stand? Oh, and please please say it didn't make you tired or groggy...I'm already living in a fog and it just can't get worse!

Okay - well anything you know would be great.

Love Kaitie
Petit-Mal-Adie

Good news: I can't tell you whether it makes you drowsy or not because I've never had it. But did your doctor warn you to drink HEAPS of fluids when taking this medication? It can cause kidney stones. I only know this because I'm looking at a new drug myself.

A thing that helps break down kidney stones is honey vinegar. So if this drug works for you, may I at least suggest a preventative method. Drink heaps of fluids and get some honey vinegar. Take a spoonfull or two each day and it should help.

I am currently on topomax no it will not give you kidney stones i have been on it a year at first it will make u drowsy it will help you loose weight it did me but other than that it is fine the reason i am here is because my hubby and i am not doing to well he thinks i am freak because i have seizures what am i to do he calls me this all the time in front of my little girl i am so tired of this i need help

So WHAT the heck is with Topamax and coke? GROSS me out - I used to drink like a can or two of coke cola everyday - now it feels like the lil' drops are electricuting my mouth (does that make sense?). I took my first pill last night - and beside the coke thing - I'm feeling pretty good...

Kaitie

Okay Gatomeister (hopefully I spelt that correctly)...

I feel so incredibly bad for you. Infact - I'm VERY VERY angry at your husband. He is NOT being fair to you - and let me tell you, you are definately not a freak okay? You are perfect! So you have seizures - so does everyone else on this board, and I can assure you that none of us are freaks or any less of a person because of the disorder.

What is the saddest part of all - is that he is treating you this horrible way in FRONT of your daughter. I don't know if its too late or not - but your daughter needs to be educated before she adopts the same attitude as your husband. If she isn't learning whats RIGHT about seizures (that they aren't freakish or whatever) then the only basis for her ideas is what she is hearing for her dad - and that is so wrong...

Another thing, Seizures are commonly brought on by stress, and if you are being abused like this - and treated in such a sick way and being called such wrong things - then you will inevitably be stressed out - which will bring on more seizures - which will provoke your husband even more and you get the idea! It's a viscious circle that you cannot deal with okay? And I'm not saying leave him or do this or that - but something should be done...and I'm not sure if it comes down to educating him as well, or maybe just telling him how you feel or possibly making him 'part' of the seizures...

Here: I'll explain. If a group of people is playing a really immature looking game and there is ONE person who is watching and not included - that one person will more than likely go on about how immature and 'stupid' the game is - that is until they invite him to play....then they realize it's fun and they have a good time and change their perspective.

As far as seizures go - your husband is like that one person who isn't taking part. Give him a part in the seizure and he might understand you and 'them' better. If you need your seizures timed - talk him through the process and then get him to do it the next time, or if you need to lie down afterwards - get him to lie with you and just 'cuddle' so to speak for a while, and then he'll start to feel what your feeling.

Its just a suggestion. But anyways - we are ALL here for you on this board - and you are not alone and definately not a freak okay?

Love Kaitie

Kaitie,

Try this site www.psyweb.com/Drughtm/topomax.html (http://www.psyweb.com/Drughtm/topomax.html) it tells you about Topomax.

Tooheys