Just to give a bit of a background...

My son, Sean, came to me early in November and noted to me that his pupil was quite dilated (nearly covered the color in his eye). He did not have a headache and so I opted to "keep an eye on it"...The dilation lasted for about 5 hours. No other symptoms at that time.

Then the next week Sean had a seizure - unexplained. He was lying on the couch and I heard a gurgling sound. Came out to the living room to find him unconscious. I pulled his clothes off, dripped water on his face - but no response. (Sean has never had a seizure before). I immediately called 911, at which time Sean was transported to the hospital. He did have a CT scan which was negative. We were then referred to a pediatric neurologist who did an EEG, this also which was negative.

Two evenings ago Sean reported to me that he had a sudden "numbing" (right side only)- it started in his shin, up his leg and buttock, up through his rib-cage area, throughout his entire arm, and up his neck, jaw and tongue. This episode lasted for about 15 minutes. It was preceded by a headache 10 minutes before. Again, he was taken to the emergency department (different hospital than where the neurological pediatrician is). No tests were done at that time as they "do not do emergency MRIs".

The doctor called back back today. Sean is going in next week for an MRI and MRA (angiogram). I am scared to death. Can anyone give me any advice? Thanks so much.

I can imagine how frightened you must be. The fact that he had a CT scan and it was OK, is a good sign. Please come back to the boards and let us know what his diagnosis is. In the meantime, I will be holding positive thoughts and prayers for Sean and for you.

Good luck to you both and God Bless, hopefully its nothing serious and easily manageable. He's in my thoughts and prayers

Thank you SO much for your well-wishes. I must ask though, has anyone else experienced symptoms similar to his? And what was your diagnosis? Thanks again. We are keeping our heads held high!

Im SO sorry that your going through such a worrying time with your son. I hope he is better soon and you find out what's going on.

I don't know if this will be any help, but has he been checked for Epilepsy or does it run in your family?

My sister has epilepsy - has had since she was 2-years-old. And my grandmother died after a complication from an epileptic seizure. As I mentioned in the beginning of the thread, Sean did have an EEG. He also went through the other neurological testing (i.e. jumping on one foot, touching your finger to your nose, etc.), all which was negative. My sister with the epilepsy feels that the numbness and dilated pupil sound uncommon to her, and she has had numerous "types" of seizures in the past 30 years. And I too have not found any information relating epilepsy to those symptoms.

Thank you for your kind words. I will keep you posted. :)!