daleaherman
12-18-2006, 04:19 PM
Hi,
Over the past year, I have had wierd symptons that I initially thought were the result of an infection. Now, my PT (for lower back/leg pain) has suggested that I may have a Myelopathy in my Cervical spine.
Burning in forearms
Tingling in hands
Numbness on one side of face (tongue too).
Some pain in one arm
sharp pricks in back/chest
pain in legs (like tightening muscles in feet),
ringing in ears, dizzyness, full sensation (all together),
trouble focusing at long distances, patterns - one eye twitching?
One shoulder/neck gets severe pain (on occasion if I attempt to sleep with it over my head). When I was exercising during remissions, I had trouble pushing weight forward and up with it, but not dips? Hurt at shoulder/neck?
Sometimes, my legs feel week, but I can still do stuff. My PT said that one arm/hand was weaker than the other. Not terrible, but noticeable.
I had a couple of odd bolts at night (while lying on back), when my whole side twitched (is this that lightning bolt syndrome). This has only occured a few times and only when lying on my back.
Now, these symptons come and go. Mostly at once.
Some exercise makes them go away, but then they come back worse...
Sometimes NSAIDS help (Ibup, Naproxin). Sometimes not.
My neck also makes much more noise than it used to when I move it...Not always...
Thanks for any help here... My former Neurologist did an upper MRI, but didn't even suspect any spine injury? I kept asking.. I think he thought I was crazy. They sent me to a Rheumatoid guy, but nothing was found...The PT was the first one to say that I need to have my neck looked at ASAP...This is almost 9 months after my first complaints.
Pain is only about a 3-4 (sinus/migraine a 7-8), so I am living with it, but it is taking me away from life! Much depression!!!
I really feel for everyone on this board!!!
Thanks,
Dale
Over the past year, I have had wierd symptons that I initially thought were the result of an infection. Now, my PT (for lower back/leg pain) has suggested that I may have a Myelopathy in my Cervical spine.
Burning in forearms
Tingling in hands
Numbness on one side of face (tongue too).
Some pain in one arm
sharp pricks in back/chest
pain in legs (like tightening muscles in feet),
ringing in ears, dizzyness, full sensation (all together),
trouble focusing at long distances, patterns - one eye twitching?
One shoulder/neck gets severe pain (on occasion if I attempt to sleep with it over my head). When I was exercising during remissions, I had trouble pushing weight forward and up with it, but not dips? Hurt at shoulder/neck?
Sometimes, my legs feel week, but I can still do stuff. My PT said that one arm/hand was weaker than the other. Not terrible, but noticeable.
I had a couple of odd bolts at night (while lying on back), when my whole side twitched (is this that lightning bolt syndrome). This has only occured a few times and only when lying on my back.
Now, these symptons come and go. Mostly at once.
Some exercise makes them go away, but then they come back worse...
Sometimes NSAIDS help (Ibup, Naproxin). Sometimes not.
My neck also makes much more noise than it used to when I move it...Not always...
Thanks for any help here... My former Neurologist did an upper MRI, but didn't even suspect any spine injury? I kept asking.. I think he thought I was crazy. They sent me to a Rheumatoid guy, but nothing was found...The PT was the first one to say that I need to have my neck looked at ASAP...This is almost 9 months after my first complaints.
Pain is only about a 3-4 (sinus/migraine a 7-8), so I am living with it, but it is taking me away from life! Much depression!!!
I really feel for everyone on this board!!!
Thanks,
Dale
Sponsor
PearlDoves
12-18-2006, 05:22 PM
Yes, some of these could definatly be signs of some sort of stenosis (one of them being myelopathy) going on in your neck, and being that its been 9 months since your last MRI from what I can gather, more could have happened since then. Its possible that the Physical therpay is making it worse. It helped me initially and then excersies made it worse, so she limited to massage, and then finally wouldn't do much of anything because of the tingling and such that I was having because she didn't want to make things worse. Get another MRI done and go see a NeuroSurgeon, he would have more insight to the serverity of your problems most likely as far as spine issues go. Some people like to go to orthopedic surgeons as well. If you don't know a good one, do some investigating and perhaps pay a visit to a couple surgeons to get their opinons, You primary doc or your neurologist might know of some. This doesn't mean that the surgeon is going to rush you off to surgery right away, he may try other conservative means first, but, it sounds like you are steadily getting worse, which can very quickly turn into getting even worse quite quickly. I would advise you to get a copy of your reports so that you can get to know exactly what is going on inside of you.
With the vision problems and ringing in the ears however, this could a few things.. it could have to do with what is going on with your spine, but it can also mean other things as well. So you may want to see your primary doctor and ask to have your Tyroid checked via labs such as a TSH, T3, T4, and maybe even a cortisol lab checked to see how your adrenal cortex is doing and perhaps an MRI of your head (rule out tumor) and an xray of your head (to rule out sinus infection). I'm no expert on this stuff, I'm not a doctor, but it may be worth suggesting or asking for, or just plain asking the doc if he thinks it would be good to check out just in case, or just to give you peace of mind. If doc says its not necessary, but you want it done, tell him that you would like it done anyway for your peace of mind. But as far as your neurologist - You have a right to know and to ask questions with any doc, and when in doubt, get a second opinon. Good Luck to you and God Bless, I hope you figure things out soon.
You may want to stop excersies with your physical therapist until you know what is going on so that you don't get worse. You may want to speak with your primary doc about all this stuff so that he can get you on the right track.
With the vision problems and ringing in the ears however, this could a few things.. it could have to do with what is going on with your spine, but it can also mean other things as well. So you may want to see your primary doctor and ask to have your Tyroid checked via labs such as a TSH, T3, T4, and maybe even a cortisol lab checked to see how your adrenal cortex is doing and perhaps an MRI of your head (rule out tumor) and an xray of your head (to rule out sinus infection). I'm no expert on this stuff, I'm not a doctor, but it may be worth suggesting or asking for, or just plain asking the doc if he thinks it would be good to check out just in case, or just to give you peace of mind. If doc says its not necessary, but you want it done, tell him that you would like it done anyway for your peace of mind. But as far as your neurologist - You have a right to know and to ask questions with any doc, and when in doubt, get a second opinon. Good Luck to you and God Bless, I hope you figure things out soon.
You may want to stop excersies with your physical therapist until you know what is going on so that you don't get worse. You may want to speak with your primary doc about all this stuff so that he can get you on the right track.
PearlDoves
12-18-2006, 05:27 PM
Also, once you see a surgeon and they look at your films and reports and if they still don't see anything obvious that could be causing your pain, you could suggest having a discogram done, sometimes those show more things than an MRI can. A discogram can at times pinpoint the source of your pain.
Also, some docs will try giving injections to help block the pain you are having before trying surgery.
Also, some docs will try giving injections to help block the pain you are having before trying surgery.
daleaherman
12-18-2006, 05:29 PM
Thanks for the quick reply. Today, my arms are fine, but my left leg aches badly. I have some pin pricks in my groin. My PCF is worthless, as was my neurologist.
I am very scared...Guess that I should start seeing a pyschiatrist too...Vision could be stress/anxiety causing twitching...I also had leg fasciculations. Maybe stress or my back issues or?
I am very scared...Guess that I should start seeing a pyschiatrist too...Vision could be stress/anxiety causing twitching...I also had leg fasciculations. Maybe stress or my back issues or?
PearlDoves
12-18-2006, 05:37 PM
Yes, it can be scary, but getting this help is also a good thing. Try to look at it as the beginning of getting yourself to feel good again. First things first, get yourself some new docs, but do it ASAP. I'm telling you this based off my own experience, becuase if you start to go downhill all of a sudden you will still be waiting a while before some treatments can occur in some instances, Make some calls today if you can, and tell them you need to be in ASAP and this can't wait due to your condition. Its possible you could just see one of the other docs within the same group at the offices you've already been going to, so you may not have to look far. You can even ask to speak with the doctors nurse to see if they can get you in sooner if you can get in within the next couple of days.
I'll also say, that my primary doc had me do my mri and then do physical therapy, and then I was to see him again in 2 weeks to get results. YOU already know that physical therapy may be making things worse, so if you get your tests done, ask to follow up as soon as possible. Most reports and labs can be read within a couple of days.
I'll also say, that my primary doc had me do my mri and then do physical therapy, and then I was to see him again in 2 weeks to get results. YOU already know that physical therapy may be making things worse, so if you get your tests done, ask to follow up as soon as possible. Most reports and labs can be read within a couple of days.
PearlDoves
12-18-2006, 06:04 PM
Also - Based on what you are saying, I would be highly suspicious that is all due to something going on in your neck. I don't know what they MRI'ed before, but if they haven't checked your neck yet, I would put my money on that, because many things going on in the cervical spine can manifest with problems in the lower extremities... as well as the tingling and numbness in the face.
I had many of these symtoms, and even worse than this, My legs started giving out on me, and my problem was at C5-C6 in my cervical (neck) spine.
I had many of these symtoms, and even worse than this, My legs started giving out on me, and my problem was at C5-C6 in my cervical (neck) spine.
monarog
12-22-2006, 01:10 PM
Hi,
Me again...with my horrible neuro symptoms. I am starting to wonder if there's more to this than my bad neck. I am getting so frustrated and giving up hope with all of this. As many know, I ruptured at c6-7 15 months ago (no surgery). About 5 months after that, all the neuro stuff started and the neck and arm pain intensified. So, 10 months I am still dealing with it all. My current symptoms:
hyperreflexia
nerves to arms and legs just feel shot, on high and jumpy all the time
intermittent dizziness, ataxia, balance is off
tongue numbness/burning/soreness, off and on
bilateral facial numbness a couple of times
lots of muscle twitches
numbness in feet, sometimes up the legs
when the nerves are on super high it causes hands to tremor, sometimes legs will tremor, even noticed tongue tremor once or twice
LOTS of neck pain, arm pain
I've developed high blood pressure, it was always low prior to this
I'm sure I'm forgetting something...but, that's the most of it. I have seen 3 neurologists, 2 neurosurgeons, one rheumatologist. I've had bloodwork, spinal tap, EMG/NVC, Brain MRI w/ contrast, Spinal MRI - all "normal" other than my herniation and some narrowing (9mm) at the herniation site. I'm getting desperate and giving up hope. They say my disc is improving (so doesn't need surgery - why do I have so much pain after so long and now all these horrible symptoms?). Any ideas of where I should go from here? I am SO sick, everyday. Yesterday I thought I was going to pass out, though didn't. I'm feeling very frustrated and my neck is killing me. I feel like my life is passing me by, I have 3 kids and until all of this, was very active, ran 20-30 miles per week. Now I'm a pile. Thanks for listening. Mona
Me again...with my horrible neuro symptoms. I am starting to wonder if there's more to this than my bad neck. I am getting so frustrated and giving up hope with all of this. As many know, I ruptured at c6-7 15 months ago (no surgery). About 5 months after that, all the neuro stuff started and the neck and arm pain intensified. So, 10 months I am still dealing with it all. My current symptoms:
hyperreflexia
nerves to arms and legs just feel shot, on high and jumpy all the time
intermittent dizziness, ataxia, balance is off
tongue numbness/burning/soreness, off and on
bilateral facial numbness a couple of times
lots of muscle twitches
numbness in feet, sometimes up the legs
when the nerves are on super high it causes hands to tremor, sometimes legs will tremor, even noticed tongue tremor once or twice
LOTS of neck pain, arm pain
I've developed high blood pressure, it was always low prior to this
I'm sure I'm forgetting something...but, that's the most of it. I have seen 3 neurologists, 2 neurosurgeons, one rheumatologist. I've had bloodwork, spinal tap, EMG/NVC, Brain MRI w/ contrast, Spinal MRI - all "normal" other than my herniation and some narrowing (9mm) at the herniation site. I'm getting desperate and giving up hope. They say my disc is improving (so doesn't need surgery - why do I have so much pain after so long and now all these horrible symptoms?). Any ideas of where I should go from here? I am SO sick, everyday. Yesterday I thought I was going to pass out, though didn't. I'm feeling very frustrated and my neck is killing me. I feel like my life is passing me by, I have 3 kids and until all of this, was very active, ran 20-30 miles per week. Now I'm a pile. Thanks for listening. Mona
PearlDoves
12-22-2006, 01:23 PM
have they done an MRA (a is for angio) of your Neck and Head?? How about a Spinal Tap? How much of your spine did they look at?
have you gotten your reports to read for yourself?
Please don't give up hope, just be persistant, somethings gotta be found soon. Are they looking for Auto immune diseases? Perhaps they need to just start consulting every sort of doctor for you to try and get this figured out. I'm so sorry this is happening to you. God Bless you, I hope a diagnosis is found soon..
have you gotten your reports to read for yourself?
Please don't give up hope, just be persistant, somethings gotta be found soon. Are they looking for Auto immune diseases? Perhaps they need to just start consulting every sort of doctor for you to try and get this figured out. I'm so sorry this is happening to you. God Bless you, I hope a diagnosis is found soon..
daleaherman
12-22-2006, 01:24 PM
Hi Mona,
Your post brought tears to my eyes. I have the same symptoms. Like my nerves are super excited. Some days, I have little pain. But some days, like today, my arms and legs ache... My neck rarely hurts??? But sometimes, my whole head feels very heavy and I get dizzy. Sometimes, my legs feel very weak. I think since they are in constant twitching. Sometimes, the area between my shoulder and neck hurts. The only thing that keeps me going are my three kids too. I had four days in Sept. with no pain??? Then I started to swim and all the pain came back with a vengence. I didn't know at the time that my problems may be a disc issue.
FINALLY had a neck MRI today. It took nine months of constant complaining for of the doctors to recognize that it may be a disc problem. He is still not convinced this is the cause, but I KNOW BETTER...
My fear is that there is really nothing they can do...
Have you tried PT?
Best Wishes!!!
Dale
Your post brought tears to my eyes. I have the same symptoms. Like my nerves are super excited. Some days, I have little pain. But some days, like today, my arms and legs ache... My neck rarely hurts??? But sometimes, my whole head feels very heavy and I get dizzy. Sometimes, my legs feel very weak. I think since they are in constant twitching. Sometimes, the area between my shoulder and neck hurts. The only thing that keeps me going are my three kids too. I had four days in Sept. with no pain??? Then I started to swim and all the pain came back with a vengence. I didn't know at the time that my problems may be a disc issue.
FINALLY had a neck MRI today. It took nine months of constant complaining for of the doctors to recognize that it may be a disc problem. He is still not convinced this is the cause, but I KNOW BETTER...
My fear is that there is really nothing they can do...
Have you tried PT?
Best Wishes!!!
Dale
PearlDoves
12-22-2006, 01:26 PM
With the High blood pressure, have they referred you to a cardiologist?
You may just wanna go to the ER and tell them you're not leaving until they find something and you're able to get some relief... This might mean getting admitted for a while so that they can run lots of tests.
You may just wanna go to the ER and tell them you're not leaving until they find something and you're able to get some relief... This might mean getting admitted for a while so that they can run lots of tests.
PearlDoves
12-22-2006, 01:28 PM
Also, have they done a regular MRI of your head at all?
monarog
12-22-2006, 01:34 PM
Thanks for words of encouragement. I am crying as I type as I am so sick and so emotionally fragile right now as I'm just so tired of feeling so awful. Yes, had "normal" spinal tap. The rheumatologist didn't seem to think it was an auto-immune problem...his words..."I don't know, but I would guess somehow your herniation has triggered/created this problem with your nervous system." But, now what? Is this my life with no help? That's what I am most scared of I think. No MRA done, though the neurologist listened to the arteries in my neck with his stethascope. No PT at this time. At the time of my original herniation 15 months ago, the NS didn't want anyone to touch me as he said it was a "large" rupture and he feared they would aggravate it further. I've done accupuncture, myofascial stuff, osteopathic stuff, none of it has helped. It is almost hard for me to envison that I'll ever be well again. Could a disc cause this much havoc on my whole body? Could they be missing something on the MRI that is 9 months old at this point? I just don't know where to turn. They just send me on my way, but I am SO SICK. Sorry to unload - today is a bad one. Thanks. Mona
monarog
12-22-2006, 01:37 PM
Only brain MRI was the MS type, with contrast, came out clean.
PearlDoves
12-22-2006, 01:44 PM
Well an MRA will show all the vertebral arteries as well as carotids and other things that might be going on with the brain, this is why I say get an MRA of head and the neck.
What about a Discogram??? have they done that?
I don't know what to say, I guess what I would do is get your reports, start calling more neurosurgeons, even if it means in another state, you could perhaps fax them your reports and talk to them on the phone and they might be able to give you more insight or at the least give you a more honest opinon, maybe these surgeons are afraid that the surgery is too risky? If you want the name of a doc or two here in WI let me know.
What about a Discogram??? have they done that?
I don't know what to say, I guess what I would do is get your reports, start calling more neurosurgeons, even if it means in another state, you could perhaps fax them your reports and talk to them on the phone and they might be able to give you more insight or at the least give you a more honest opinon, maybe these surgeons are afraid that the surgery is too risky? If you want the name of a doc or two here in WI let me know.
monarog
12-22-2006, 01:55 PM
I hesitate going to the ER, as I've been 3x over the past 10 months. They tell me they only admit "life threatening" problems. They prescribe some sort of anti-anxiety RX and send me away. To look at me, I look fairly "normal." Really other than the hyperreflexia, higher than average BP....not alot of red flags for them. But I feel TERRIBLE. My neck kills me, my nerves are just so super-charged, twitching, buzzing etc. I appreciate all the ideas. The only look at my neck has been MRI (which everything I read says it's the gold standard). Sometimes I feel that is what is nailing me - they glance at the MRI, say neck is improving...and away they send me. My gut tells me there is so much more going on there. I understand I could have an entirely different problem in addition to the neck...it just seems so ironic that all of this came down 4-5 months after an undisputed large herniation. Who knows, I just want help and to get figured out. Sometimes it all feels like a bad dream, 10 months with no help or diagnosis of this neuro stuff that is just unrelenting, everyday. Thanks again for the ideas. Mona
PearlDoves
12-22-2006, 02:02 PM
Hmm, how are your bones? have you been to an orthopedic doc at all?
Orthopedic Surgeons can do the same surgery as a neuro in many cases related to the spine
Orthopedic Surgeons can do the same surgery as a neuro in many cases related to the spine
monarog
12-22-2006, 02:08 PM
yes...saw one orthopedic surgeon...he referred me to the rheumatologist. Bones seem fine (as far as I can tell :). My over-charged nervous system is my biggest complaint, though the neck/arm pain is unrelenting. The rheumy gave me a beta-blocker to see if that would settle the nerves some. I've noticed no difference, when the nerves want to kick in (it's always there to some degree, but sometimes really charges up) they override the medication with no problem. When I feel my worst it seems like whatever my problem is should just be so obvious - to feel so horrible and have people just send me away is so...weird to me. I know there are so many people in similar situations. It's just something I never considered until I am now living it. It's a horrible ride. Thanks again for ideas...I SO appreciate it. Mona
PearlDoves
12-22-2006, 02:47 PM
Well its possible that when the original herrniation occured that it compressed the spinal cord enough to start causing the problems that you have. I had surgery and it was to remove bone spurring that was compressing my cord and now that surgery is over with.. I'm like 5 weeks post-op I think... I still get some symptoms, but I expect that they will fade over time.. or perhaps some perminate damgage occured from the stenosis, but its really too early to say that quite yet. Perhaps your situation is simular in a sense, but a discogram could help determine the source of your issues. There are other threads that talk about this test, it may or may not be for you since I can't speak from first hand experiences... I never had it done.
monarog
12-22-2006, 03:06 PM
Pearl,
Prior to your surgery...did you have hyperreflexia...horrible, over-active feeling nerves? Just curious. Do you know what your canal measured regarding its narrowing? They approximate mine at 9mm, but act like that's no big deal and don't believe that is the source of my problems...but, they can't answer what is! I'm so sick of feeling sick. I just want help and relief. I don't understand why my neck/arm is so painful after so long...seems I would have some improvement after 15 months, wouldn't you think?? Thanks. Mona
Prior to your surgery...did you have hyperreflexia...horrible, over-active feeling nerves? Just curious. Do you know what your canal measured regarding its narrowing? They approximate mine at 9mm, but act like that's no big deal and don't believe that is the source of my problems...but, they can't answer what is! I'm so sick of feeling sick. I just want help and relief. I don't understand why my neck/arm is so painful after so long...seems I would have some improvement after 15 months, wouldn't you think?? Thanks. Mona
PearlDoves
12-22-2006, 10:42 PM
Monarog -
I'm really very much feeling afraid for you right now. Are you saying you have autonomic hyperreflexia? I've been doing reading on it and great, very great care must be taken to keep that at bay, such as making sure your bladder and bowl is empty and never getting too full so that it doesn't interrupt the communication to the brain. If the bladder or bowl gets too full it in turn causes the hyperfelxia... which in turn can cause high blood pressure, which in turn can cause STROKE! The good news is that once the PROBLEM is removed that you should be okay again.
I mean I had more jumpier reflexes because of my stenosis, especially on my left side, so I'm guessing I had it to a degree, but I never lost bladder control or had high blood pressure from it so far as I know.
I'm not really sure what my narrowing was in milimeters.. but what makes me curious about that is this:
My surgeon wanted to see if things were "moving" inside, so he had me wear a hard collar for what he wanted to be 24-48 hours, meanwhile recording new symptoms. Well let me tell you, once I took that collar off, I had some new symptoms such as my legs giving out and shooting pains, so then it was surgery for sure after that point. So I have to wonder if such a thing would happen in the case of herrniation? If something is moving in there that could possibly explain why you have symptoms meanwhile how it looks on film doesn't seem very severe. I really don't know, but I'm very concerned for you.
And in case you have to go to the ER again, you can tell them to stuff it in their face if you have autonomic hyperreflexia because it CAN be life threatening because of the high blood pressure! But it seems to be easy to treat in that once you empty bladder and bowl the symptoms start to go away, but a person may not realize it at the time just becaue of the way the singals are being blocked to going to the brain because of the bladder or bowl. Sometimes even clothing that is bunched up or sitting on hard things can trigger it as well... People who have problems at T-4 and UP seem to get these problems, I think it was T-5 more unlikely and then T-6 and down it doesn't happen if there is a problem there.
Again if you want a name of a surgeon, please let me know, even if it just ended up as a phone converstion with him to help you get more insight. My experience with him is that he has concern in a persons well being.
I'm really very much feeling afraid for you right now. Are you saying you have autonomic hyperreflexia? I've been doing reading on it and great, very great care must be taken to keep that at bay, such as making sure your bladder and bowl is empty and never getting too full so that it doesn't interrupt the communication to the brain. If the bladder or bowl gets too full it in turn causes the hyperfelxia... which in turn can cause high blood pressure, which in turn can cause STROKE! The good news is that once the PROBLEM is removed that you should be okay again.
I mean I had more jumpier reflexes because of my stenosis, especially on my left side, so I'm guessing I had it to a degree, but I never lost bladder control or had high blood pressure from it so far as I know.
I'm not really sure what my narrowing was in milimeters.. but what makes me curious about that is this:
My surgeon wanted to see if things were "moving" inside, so he had me wear a hard collar for what he wanted to be 24-48 hours, meanwhile recording new symptoms. Well let me tell you, once I took that collar off, I had some new symptoms such as my legs giving out and shooting pains, so then it was surgery for sure after that point. So I have to wonder if such a thing would happen in the case of herrniation? If something is moving in there that could possibly explain why you have symptoms meanwhile how it looks on film doesn't seem very severe. I really don't know, but I'm very concerned for you.
And in case you have to go to the ER again, you can tell them to stuff it in their face if you have autonomic hyperreflexia because it CAN be life threatening because of the high blood pressure! But it seems to be easy to treat in that once you empty bladder and bowl the symptoms start to go away, but a person may not realize it at the time just becaue of the way the singals are being blocked to going to the brain because of the bladder or bowl. Sometimes even clothing that is bunched up or sitting on hard things can trigger it as well... People who have problems at T-4 and UP seem to get these problems, I think it was T-5 more unlikely and then T-6 and down it doesn't happen if there is a problem there.
Again if you want a name of a surgeon, please let me know, even if it just ended up as a phone converstion with him to help you get more insight. My experience with him is that he has concern in a persons well being.
PearlDoves
12-22-2006, 10:50 PM
But my other sensation symptoms were numbness, tingling, burning sensations, and once I started getting worse, the best way I can describe the sensation I was having sometimes was that it was like someone struck a tuneing fork inside of me.. kinda of a vibration or electrical kinda feeling I guess
monarog
12-23-2006, 12:25 PM
Hi Pearl,
I really appreciate all of your information. Yes, I too have this real buzzing, electrical feeling in both arms and legs. People describe it shooting down their spine...that's not me so much. For me it does feel like it generates from my neck and shoots out to my limbs. It is constant, but worsens at times. I don't know much about autonomic hyperreflexia...all I know is all of my reflexes are very strong and jumpy...maybe a little worse in my legs than my arms...but all VERY hyperactive. Which I think gives me this horrible over-reactive nerve feeling that is so hard to tolerate. I also believe this is a factor that has contributed to my high BP. As I said before, until all of this hit it was always low. I hope I'm not wasting my time...but, I have an appointment with a physiatrist in about 2 weeks. I am going to push for further testing on my neck. They have, so far, not been able to attribute any of this to anything...therefore, since I have a bad neck - along with horrible pain there and all these terrible symptoms, it might warrant cause for a closer look. The worst part for me are docs saying, "hmmm, don't think your neck would do this," after a 2 minute glance at my MRI and then they send me on my way. I try to explain how miserable I feel. Many (most) days I'm just trying to hang on and get through it. As I said before, I feel like my life is just passing me by. Sorry to be whining, really. Again, I'm just getting to the end of my rope; this has all been going on for so long with no help, relief or plan of action on how to feel any better. By the way Pearl...did you experience any dizziness, facial or tongue symptoms, twitching stuff? Those are certainly on my list as well. Thanks Pearl for your info and support. Mona
I really appreciate all of your information. Yes, I too have this real buzzing, electrical feeling in both arms and legs. People describe it shooting down their spine...that's not me so much. For me it does feel like it generates from my neck and shoots out to my limbs. It is constant, but worsens at times. I don't know much about autonomic hyperreflexia...all I know is all of my reflexes are very strong and jumpy...maybe a little worse in my legs than my arms...but all VERY hyperactive. Which I think gives me this horrible over-reactive nerve feeling that is so hard to tolerate. I also believe this is a factor that has contributed to my high BP. As I said before, until all of this hit it was always low. I hope I'm not wasting my time...but, I have an appointment with a physiatrist in about 2 weeks. I am going to push for further testing on my neck. They have, so far, not been able to attribute any of this to anything...therefore, since I have a bad neck - along with horrible pain there and all these terrible symptoms, it might warrant cause for a closer look. The worst part for me are docs saying, "hmmm, don't think your neck would do this," after a 2 minute glance at my MRI and then they send me on my way. I try to explain how miserable I feel. Many (most) days I'm just trying to hang on and get through it. As I said before, I feel like my life is just passing me by. Sorry to be whining, really. Again, I'm just getting to the end of my rope; this has all been going on for so long with no help, relief or plan of action on how to feel any better. By the way Pearl...did you experience any dizziness, facial or tongue symptoms, twitching stuff? Those are certainly on my list as well. Thanks Pearl for your info and support. Mona
monarog
12-24-2006, 12:02 AM
Dear Pearl,
By the way...I have perused a lot of this board and you are so helpful and great at brainstorming ideas. I just want to thank you for spending the time; you are a great asset. Marcia, Puparoo...along with so many others, thanks for your insight, feedback, ideas and help - it really is a great comfort. I tell ya...as sick and as crummy as I feel, this is really a God-send. Thanks. Enjoy your holidays. Mona
By the way...I have perused a lot of this board and you are so helpful and great at brainstorming ideas. I just want to thank you for spending the time; you are a great asset. Marcia, Puparoo...along with so many others, thanks for your insight, feedback, ideas and help - it really is a great comfort. I tell ya...as sick and as crummy as I feel, this is really a God-send. Thanks. Enjoy your holidays. Mona
monarog
01-05-2007, 07:46 PM
Dale,
How are you feeling? How did your MRI turn out? Please let us know. It sounds like we share so many of the same symptoms and I want to know how things are going for you, might help both of us in getting things figured out. Are they contributing any of yours to your neck? Keep us posted. Mona
How are you feeling? How did your MRI turn out? Please let us know. It sounds like we share so many of the same symptoms and I want to know how things are going for you, might help both of us in getting things figured out. Are they contributing any of yours to your neck? Keep us posted. Mona