hi i had ask a question about a blood disorder that i had when i was a child i have had this question on here for a while is their anyone that might have an answer to my question? the reason i am asking is i wonder if it has anything to do with my anemia. thanks susan kay

Susan,

Welcome to the board! A couple of questions...What was the blood disorder you had as a child? What are your counts now? It is hard to even guess without more info. What tests have been run? What is your doc saying at this point?

Zoe

hi all i can remember is it had something to do with my platlets. i had meales that went into my bloodstream instead of them coming out on to my skin. my parents first noticed it because i had bruieses all over me. like i had been beat. and i remember they took some bone marrow. my parents called it a blood platelet disorder. i was 7 at the time. and i remember mom saying that when i was born i was border/line leukemic. i have just been curious because i wondered if it has anything to do with my low iron i stay anemic my levels are usually betwen 11 to 14 on my iron i take hemocyte plus from my doc. every day. i really dont know my blood counts i guess im not much help. my doc. told me but i dont remember my blood counts. i remember i had to be kept in the dark in my rm. in the hospital. thanks susan kay:)

I was kept in the dark in a room too with measles. I was told by my grandmother I could go blind but I always thought that was a old wives tale lol. Anyway about your problem...you need to speak to your doctor hun. There is so many blood disorders out there and other factors that affect the blood which are not blood disease's that's its very difficult to say for definite what's wrong with you.

But your doctor will know. It will be in your notes. Ring up your sugery and say you want to speak to your doctor and find out exactly what's wrong with you...what type of blood problem you have. If your doctor wont tell you then get a referral to your hematologist and change doctors. I'm suprised your doctor never told you about your blood disoder but mines the same, they never mention by blood disease until I go "i cant take that I'll be at risk of clots!". Doc huh? Anyway good luck and all the best.

hi i had it when i was 7 and mom you know has just passed and daddy has no clue what the name was. and the dr. that i was using when i was 7 has died already his name was dr. carter and he wore his glasses on the tip of his nose and he wore a striped bow tie every day. and my records were distroyed in a flood so i am just in the dark. it is mainley curiosity and wondering if it has any thing to do with my anemeia now. and when i was born i was a borderline /lewcemic. so i just want to know. i stay so tired and and worn out. thanks for your help i am going to ask dr. mike. susan kay

Sorry I don't know that Doctor. Your Anemia could be related or it may be completely unrelated. Because your notes were destroyed its unlikely the Dr will know what disorder you have. I dont think its possible to be borderline Leukaemic hun unless your parents thought you was because your red/white cell count was very low or very high. Both of these can be indications of infections and blood disoders and Anemia and so on.

So the best thing you can do is get a referral to a Hematologist. Tell the Hematologist what you've told us on here and he/she will test your blood for numerous blood disorders and find out what exactly is going on. It probably would be helpful if you could ask your Dad what they said was wrong with your blood exactly...by this I mean was it too thick, or not clotting or clotting too much etc. Also ask your Dad did you have any transfusions and what tests were performed or any procedures you may of had. All of this will help.

ok. i will i go see dr.mike on the 26th and will ask for a referral to a hematolist thanks for your info.