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View Full Version : Our Bipolar Kids ~ Finding The Light At The End Of The Tunnel


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goody2shuz
12-21-2006, 04:00 PM
Hi All:wave: Thought I would open up another thread for the parents to come and offer support for one another. Of course any advice from experience from those who are Bipolar and were diagnosed in their teens would be quite welcome since it would be nice to see what is in store for our kids futures and what might be helpful in helping them find what we are all looking for....S T A B I L I T Y:blob_fire

Oh how we need to know that there is some hope and that this diagnosis is not the worst thing and that the future for our kids will be okay. IN any case it is wonderful to be amongst others who are going through the same thing, some a little bit ahead on this journey and others a little behind....either way it is a Godsend, at least for me, to know that I am not alone in all of this and coming here has been what has kept me going from day to day.....what a wonderful place to be.

Anyway...I know that there were some problems with the other thread and there is a way to read the new posts by doing a quick reply and then hitting advanced search and then scrolling down but I thought it might just be easier to just open up an whole new thread.

Hope ~ The things you are experiencing with the school is typical...don't take it personally there is always something or somebody else to blame so that they can rationalize not spending the extra money but you and Zac are entitled to whatever services are available by law and that is why you should get the classification and have him evaluated to determine his needs and the school will have to meet those needs and if not provide another way to and pay for it. Don't give up.....they are hoping that you will crawl away with your tail between your legs but we won't let you. Research and find a parent advocate from your local Mental Health or Child Help services to help assist you. Remember, it's the squeaky wheel that get's oiled!!!;)

Pippin ~ Thanks for stopping by and giving us an update. Here is what I wrote to you in the other thread....

Pippin ~ When it comes to hugs there are plenty to go around here!!! So pretend that we are all here gathered around you and take it all in big GROUP ((((((HUGS)))))))) are here for the taking, Pippin!!!

I am so sorry to hear about the lack of support you are getting from your family....I know it is difficult to see the ones that you would think should be supportive being such ignoramouses!! Shame on them!!! They will come around, Pippin. I remember when Erin was so chronically sick with esophageal reflux disease as an infant and I told my MIL that we couldn't come visit her because it would mean Erin losing all the weight that I worked so hard to get on her she thought I was just making excuses. Well it turned out that we had a family christening to go to and my MIL was with us and Erin would not sleep or eat she was miserable unless at home. My MIL volunteered to take her home and when I got home she apologized telling me that all this time she thought I was making excuses but saw firsthand how badl Erin did outside her own home. So you just try not to worry too much about your family's lack of empathy at this time.....you just focus on Erika and your marriage and your own health. We are your family that will carry you through so just take the support that is there for you and hopefully in time your family will come around.

So relieved to hear from you....I was really worried about you....don't do that again...okay??? You don't have to come here to support us.....we are here to help you through so please don't stay away....we need you and we are all in this together. PLEASE remember that.

Now for another one of those group ((((((HUGS)))))).....we all seem to be here tonight and there are an endless supply of hugs available here.

((((HUGS)))) to help carry your through ~ Goody :angel: :wave:

Hope everyone is doing okay with their Christmas plans and that we all remember that there IS a light at the end of the tunnel for our kids and together we will find it!!

Love and plenty of (((HUGS))) ~ Goody:angel: :wave:

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langlee
12-21-2006, 04:05 PM
Thanks, Goody. I think the school was surprised with how much I knew and I did not let them off the hook! Time to be aggressive!

Here's what I wrote on the other thread (hopefully Tsohl can find this!!):

Hi All,

Yesterday was a really frustrating day. We spoke with the tdoc, who Zac loves and who has alot of experience with bipolar because of his son, but we couldn't help but feel that his bad experience has colored his thinking. Without meaning to, he painted a very dismal picture and we left confused and unhappy.

We then went to the school to discuss classification and they were very resistant (not surprisingly since classification represents a financial investment from them). The whole conversation was upsetting because I hate that feeling they exude which is that somehow Zac's challenges are in part because of our inferior parenting. They don't come out and say it, but it feels like there is an underlying current. Perhaps you haven't set enough boundaries, they ask? Perhaps you have allowed him to manipulate you? I feel like screaming! Zac started having emotional issues in the Middle School and there was not a single resource offered from the school. (and we are supposedly one of the best school systems in the state) I hate that feeling that our child has fallen out of their range of concern because they have to focus on the kids who are "doing what they are supposed to be doing". It's maddening!

I have felt so totally alone in this process (other than all of you), researching, trying to find the right pdocs and tdocs, investigating what's available, trying to figure out what's next, and never losing sight of Zac, the human being. And I feel like they sit in judgement of him and of us. UGH!

In any event, I'm venting again, but everytime we take a step forward, it feels like we take two steps backward and I am disgusted and appalled that the school is so difficult.

We are taking Zac to the primary care doctor to decide if he needs an EKG. His pulse was at 138 for about 6 hours the night he was having the problem and his chest stll aches a little. We thought about taking him to the ER, but my friend, the nurse, assured us he didn't need to go unless it jumped to 150 and our experiences at the ER have been less than satisfying. We don't want to be negligient, either, though.

2007 has to be better than this year. I'm thinking of all of you as the holiday draws closer and hope that you can all find peace and contentment.

Love,

Hope

tsohl
12-21-2006, 04:23 PM
Hi,
I've found you. Are we abandoning the other thread? ~ Tsohl

goody2shuz
12-21-2006, 04:51 PM
Hey guys....the other one was getting a little bit long so it may be a good idea to come here....Pippin should be able to find us or as the originator of her thread post on there if she doesn't find us here. I vote we stay here....we need a new road to tread on anyway since the New Year is almost upon us.:jester:

Besides...as far as I am concerned nobody ever is left abandoned on this wonderful board!!;)

Hope ~ You should push forward with that IEP so that things will be layed in place shortly after the New Year begins. There are wonderful resources available to guide you and wonderful people out there to help advocate for you if you should need them. Don't let this get you down....you will find the right education for Zac....how does he feel about returning to school??? I know that all of us have re-prioritized things since our kids have been diagnosed....right now I think we all would agree that our kids mental and emotional well being is at the top of the list and then we take it from there. Even if Zac receives education at home or an alternative program it will be much better than putting him in an environment that will only cause him mental and emotional stress. You will know when he is ready to go back to school and what provisions should be made for him. And you should expect nothing less.

(((HUGS))) ~ Goody:angel: :wave:

jules3
12-21-2006, 05:05 PM
Hope,

i dont really feel like i should give advice, because we are battleling with this every day in our house too..The racing pulse and and chest aches can be anxiety..Believe me, my son has abused benzos like klonopins and xanaxs in the past so, im not big on them..but, they do help sometimes..to calm things down. If prescribed by his doc of course ,occasionally..i m pretty sure i read that you had an issue with zac and drugs..but think about asking his pdoc if its a good idea for you to have them in the house for emergencys like that..believe im not a fan of hospital emergency rooms either...and try my hardest not to take him there...3 days ago,he told me his chest was hurting and he felt his heart beating so fast..i did give him a xanax and he calmed down...just my thoughts!!

tsohl
12-21-2006, 05:33 PM
Hope,
I'm hear to tell you that it is my firm belief that many of these "Professionals" in the field of education and mental health do not know bipolarity nor do they understand it at all. We spent $13,000 plus airfare on a 4 week program in Florida that advertised and had the reputation of treating bipolar young adults. In reality they lumped it in together with the other "mood disorders" and I saw nothing to indicate they actually understood what it was all about.

I know how you feel about the "bad parenting" reaction. I don't know about "Classification" -- what it is, etc.

What did the tdoc say to you? Isn't his son doing well now?

I have to run for now. Hopefully will have more to add later.
best,
Tsohl

jules3
12-22-2006, 09:20 AM
Ts, can you tell me the name of that place in florida? does it have the word "water" in it? i know florida has a ton of recovery centers.. i was researching one and am curious to know if thats it?

THANKS

langlee
12-22-2006, 11:55 AM
Hi All,

The tdoc's son is doing OK now, but he really is not the same kid at all. It sounds like he is functional, but had serious ramifications from drug use and is living a much more compromised life than any of us would want for our children. It makes it tough because I think the tdoc has seen one of the worst extremes and it colors his thinking. On the other hand, Zac likes him and he is well connected with the school and can help us there so we're staying with him for now.

Classification in the public school system gives us access to more services if we need it, but it has financial implications for the school and they resist it at all costs. (no pun intended!) I still don't understand everything about it, but I want it so I have options down the road. My sense is that Zac can go back part-time to the high school, but will have to have home instruction for a part of the day and classification helps with that. He is having tremendous issues with axniety, to Jules' point, and we have to tread carefully.

I do believe the racing heart is due to anxiety, but with the new med of Abilify, I want to make sure it's nothing more. The anxiety is becoming as much of a problem as anything else, as is the angry outbursts which seem to come from nowhere. He swings from anxious to even to angry very quickly, which tells me we are not yet where we need to be with the meds.

Goody, thanks for the postive reinforcement with the school system. My niece is a Vice-Principal at an elementary school in our state and she has volunteered to go with us to the next meeting. I am researching like crazy and rallying my resources. It is frustrating and time-consuming, but I know we'll get there.

Tsohl, how is your back?

Jules, when is next pdoc meeting for your son? Please make sure you let us know how that goes.

Happy Holidays to all!

Love,

Hope

tsohl
12-22-2006, 03:24 PM
Hey guys!! Glad everyone made the move to the new thread.

Jules~ No, that wasn't a part of the name. This place was in Clearwater and I would NOT recommend it.

Thanks for explaining more about the school issues, Hope. I missed all that. Our kids went to a private prep school and our son's two friends who needed more help eventually left as a private school is not able to handle kids with educational issues that fall too far off the norm. The one girl went to the school on the grounds of the private mental hospital which was really terrific for her, and the guy went to a public high school and was able to handle a regular school load. This may sound kind of crazy but our son played hockey at an elite level and I think it helped him manage whatever stress and anxiety he had. All through high school he had a rigid, busy schedule that he seemed to thrive on. I would notice a difference in him when he was in the down times when he wasn't skating all the time.(for the worse) I think he probably was burning off some of those feelings when he was skating. He didn't have much time to sit around and think about things. I may be totally wrong here, but I think he functions best when he has a task to accomplish or a goal to strive for.

One problem with the drug use is that I guess there isn't a way to know if the drug use was caused by the symptoms of bipolarity or if bipolarity is induced by the use of drugs. There seem to be two schools of thought on this, from what I've read. I personally believe our son's drug use intensified his bipolar issues. It was not until he totally quit all drug and alcohol use that the pdoc was able to find the drugs that stabilized him.

Hope all your kids are doing ok and will be able to find some joy in the approaching holidays! And you, too, moms and dads!! MERRY CHRISTMAS. regards, Tsohl

jules3
12-22-2006, 05:20 PM
Hope, your whole paragraph about zacs angry outbursts is exactly what we have here with my son..Coming out of nowhere..Its like hes wound very tight..and is suffering alot of anxiety too! His next appt. is dec 29 and his doc did tell him if he'd like, he should bring his mom..so ,im going too.

ts, the place i was talking about is in melbourne fla...thanks

tsohl
12-22-2006, 07:41 PM
Jules,
What type of program is the one in Melbourne, Fl? Is it a program for those with co-dependency?

How is your son doing? Will he "allow" you to go to the pdoc with him? I've never met a single one of my son's pdocs...but when he started down this road, he was living 1000 miles away and I didn't even know he had problems!
In a way, you're lucky that he's still living under your roof and you have some control over him. best, Tsohl

jules3
12-22-2006, 10:28 PM
Ts, yes i am very lucky that hes living in our home and i can see whats happening. But, sometimes i wish he didnt live home, because i see whats happening...understand? He says when hes 21 and gets a full time job he s moving out. we shall see. The place in florida is a recovery center for substance abuse,they have a team of psychitrists. its dual-diagnosis. The agreement we have here is that if he tests positive for drugs, he goes there or he moves out. Like i've said in the past, i cannot tolerate drug abuse,but, i would do everything in my power to help him with his bi-polar issues. I definitly see that hes not using drugs and hes taking his prescribed medications. Its just hard, because whenever i think hes doing well, something happens .like he has a violent outburst or gets very depressed.. so, everyday is still an adventure. I know until he takes ownership of all this he will never be fully stable. I just want to have a nice peaceful Christmas and have told him that...

langlee
12-23-2006, 01:50 PM
Dear Jules,

I know how difficult this can be and I hear how weary you are. Try to pace yourself as best you can. This is so hard because we want our children to be well and to get on with their lives as best they can.

I am interested in the dual diagnosis facility in Florida. Do you live near there or was it recommended as the right place to go? We are investigating dual diagnosis facilities, just in case we need them. You said it was in Melbourne?

Hope the holidays are peaceful for everyone. We all deserve it, as do our children!

Love,

Hope

tsohl
12-23-2006, 03:27 PM
Hi ladies,
Keep me in the loop on your discussions of dual diagnosis programs as I might be able to help with suggestions of which ones to avoid! It is really really tough to find a good program. You really have to be careful. They will mostly focus on the addiction part of the dual diagnosis rather than the mental disorder as it is MUCH easier to "fix" the addictive behavior. Maybe that's not all bad, but it did surprise me when we were looking. Also many programs are located in Florida. Some pdocs who have more of an interest in lining their pockets in a sunny climate seem to congregate there! Sorry if I sound a tad cynical. I AM. It is also difficult to find a program that is not based on the 12-step program model. Unless your kids really need a change of environment and/or you want them to get away from a group of peers, etc., I don't know that it is worth sending them away. I think you can accomplish the same thing with a local program (depending on where you happen to live, I suppose). Anyway, I can give you a list of things to watch out for, questions to ask, etc. All stuff I didn't know when we were choosing a program!!! best, Tsohl

tsohl
12-23-2006, 03:27 PM
Hi ladies,
Keep me in the loop on your discussions of dual diagnosis programs as I might be able to help with suggestions of which ones to avoid! It is really really tough to find a good program. You really have to be careful. They will mostly focus on the addiction part of the dual diagnosis rather than the mental disorder as it is MUCH easier to "fix" the addictive behavior. Maybe that's not all bad, but it did surprise me when we were looking. Also many programs are located in Florida. Some pdocs who have more of an interest in lining their pockets in a sunny climate seem to congregate there! Sorry if I sound a tad cynical. I AM. It is also difficult to find a program that is not based on the 12-step program model. Unless your kids really need a change of environment and/or you want them to get away from a group of peers, etc., I don't know that it is worth sending them away. I think you can accomplish the same thing with a local program (depending on where you happen to live, I suppose). Anyway, I can give you a list of things to watch out for, questions to ask, etc. All stuff I didn't know when we were choosing a program!!! best, Tsohl

tsohl
12-23-2006, 03:27 PM
Hi ladies,
Keep me in the loop on your discussions of dual diagnosis programs as I might be able to help with suggestions of which ones to avoid! It is really really tough to find a good program. You really have to be careful. They will mostly focus on the addiction part of the dual diagnosis rather than the mental disorder as it is MUCH easier to "fix" the addictive behavior. Maybe that's not all bad, but it did surprise me when we were looking. Also many programs are located in Florida. Some pdocs who have more of an interest in lining their pockets in a sunny climate seem to congregate there! Sorry if I sound a tad cynical. I AM. It is also difficult to find a program that is not based on the 12-step program model. Unless your kids really need a change of environment and/or you want them to get away from a group of peers, etc., I don't know that it is worth sending them away. I think you can accomplish the same thing with a local program (depending on where you happen to live, I suppose). Anyway, I can give you a list of things to watch out for, questions to ask, etc. All stuff I didn't know when we were choosing a program!!! best, Tsohl

jules3
12-23-2006, 08:32 PM
Yes, florida is full of addiction programs. The place i am talking about does mostly specialize in the addiction part. so, you are right about that ts. I do agree with trying to keep it local so families can be more involved. hope, there is a good program in queens very close to long island.. The Zucker Hillside hospital..I know one of us did speak about it in the past.. The problem i have here is that my son refuses to go anywhere. And, i cant force him to because hes 20..So far, we are managing. Like i said 1day at a time.. If you are interested in florida, check out Watershed.. they have a web-site.

jules3
12-23-2006, 11:59 PM
Hope, sorry, you misunderstood.. i live on long island, n.y..my parents live in florida..and i made a mistake ,its not melbourne its in boynton beach and boca...i dont know why i said melbourne..sorry for the confusion.:)

langlee
12-24-2006, 02:24 PM
Hi All,

To all of you - I'm very interested in any and all input about dual diagnosis facilities. That was recommended by the inpatient program and I am resistant for the same reasons Tsohl mentioned. (I'd love ALL of your thoughts and experiences on this, Tsohl.)

Like everyone, I'm trying to get ready for the holidays, but I'll write more later. As always, we're in flux.

Love to all,

Hope

tsohl
12-24-2006, 02:53 PM
Hi,
I'll think about what I have to say about facilities we looked into and will write more later. I have company and am doing lots of cooking and haven't wrapped any gifts yet!!

Try not to despair over your children. Be grateful you know where they are and that you have a relationship with them. Things seem really tough right now, but because you are all such strong moms, I have faith that your kids will come around. It may take awhile, but with your love and guidance they will eventually realize that they must take charge of their B.D. Things are far from hopeless. They have a condition that can be managed and they can lead wonderful, healthy lives. You're all on the right path. You must just be patient and positive and loving.

I wish you all a Merry Christmas.
love,
Tsohl

jules3
12-26-2006, 11:55 AM
Hi,
I hope you guys had a wonderful christmas.. we for the most part did. My son had a couple of violent outbursts that made us very nervous..and alot of palpitations that subsided when i gave him a xanax. Im thinking that this week i will find him a new doctor. I feel like hes not being treated with the right medication..Hes extremely moody and thats not getting better on seroquel..all that does is help him sleep. I hate the idea of starting from scratch with somebody , but he feels like he wants a new doc, so i cant tell him no..i have to try and help him. the angry mean outbursts have to stop! its just not normal for a 20 yr. old not to get a better grip on his moods...its sad and pathetic for him..he feels bad afterwards.. i just wish i had some names of pdocs on long island..i hate going in cold..any suggestions? anybody from ny?

langlee
12-26-2006, 03:04 PM
Hi All,

Hope you all had a wonderful holiday. We did, as best we could, considering all the loss this year.

Jules, I don't have a recommendation for a pdoc, but I would suggest you get several names and call them first. Have a llist of questions ready (e.g. their familiarity with bipolar, how often are they willing to changes meds, etc. - anything you want to know). I was surprised when my pdoc told me he limits his practice to 4 bipolar teens at a time because they are so time-consuming. He wasn't being mean - just honest - and my son is one of his four, but it's something to think about. You might also want to try some of the teaching hospitals in NY, too, to see if they have any recommendations.

To me, learning to manage BP is a race against time. Our sons are young and have their whole lives in front of them and we want them to keep moving! We are also hindered some times because while they, too, want to feel better, they don't always make the best choices for themselves.

I'll write more later, but just wanted to let you know I'm here for you!

Tsohl, thanks for the support for all of us! You always make me feel hopeful!


Love,

Hope

tsohl
12-26-2006, 04:02 PM
Hello ladies,

I think Goody is in the Long Island vicinity. Goody: We need some help here!!!

We had a lovely Christmas...the very normal, regular kind. It was an absolute joy to see our son be able to sit through the entire day, participating and just sitting around doing nothing without getting antsy and irritable as a result. I clearly remember times not so long ago that it made us uncomfortable to have him around because it took so much effort for him to try to sit and participate...so, there is hope for all of you!!

Jule, I would definitely look for another pdoc if you don't have faith in this one, and particularly, if your son doesn't relate to him. We didn't have any choice in our son's treatment as he began when away at college and took it all upon himself...so we've always just followed his lead. He was the one who came to us and said he felt he needed to go to a residential dual diagnosis treatment program. He did the research and gave us the one he had selected and then I checked it out and looked into some others, as well. But we knew if his choice was at all ok, since it was the one he had picked out, we knew he would be more compliant and willing to follow through on it.

Our son also took seroquel when he couldn't sleep. What else is your son taking? Does he have a mood stabilizer? Is there some doubt about him being bipolar? I should go back through your posts but it's easier just to ask you again!!

Hope's suggestions for finding a new pdoc were all very good ones. It takes time to find the right doc but it is definitely worth it. You could also call your local chapter of NAMI and see if they would have any recommendations.

I have company here the rest of the week so had best close for now. I'll write more when I have more time. Glad to hear your Christmas was without major drama. best, Tsohl

missesbeames
12-26-2006, 04:39 PM
Hi all, hope everyones holidays were good. My daughter Sierra is 13 and was diagnosed at age 8...thats just the little re-cap. Anyway, we had a decent holiday, a few outbursts from sierra, but she has been a little better the last week I guess. We have been having a heck of a time with her school, and I requested a CSE meeting for her and got it on jan 3rd. The school has not been compliant with her iep at all, and no one there gets it or understands the problem. One teacher in particular has been a royal bagga-douche...anyway, I finally called the superintendent and vociferously complained. I am SICK of that school totally but i live in a rural area and there is only about 700 students in the entire elementary junior and senior high schools. The lack of communication between departments is appalling, and I am REALLLLLY frustrated. Also been feeling pretty down and tired myself, it wears you out after a while taking care of your BP child's needs and I have 4 other girls to boot who need me. I try the best I can, but lord knows I am not perfect. Anyway that is my news from my tiny neck of the woods, hope everyone's new year is great.

jules3
12-26-2006, 05:09 PM
Well, i was able to get him an appt. today.. hes there now..its amazing how we can move mountains for our kids..Remember he is 20 yrs old..not a minor..i did call the doc and speak to him a little about my son and his behaviour..just gave him a quick background. i did telll him i would like to go with him today, but the doc disagread andtold me he'd rather see him alone for an hour today to gain some trust!

He also assured methat if HE feels like he needs to see me or my husband, he will let us know...this can go either way today, my son could hate him or love him.
ts, hes on seroquel and effexor..thats it. Christmas was ok, but its like we are always skating around him as to not set him off..you know what i mean?
i do think he needs additional meds..but im not a doctor as he tells me all the time...we shall see...thanks everybody!

goody2shuz
12-26-2006, 06:14 PM
Hi, everyone:wave: Sorry if you thought I had abandoned you all here....things have been so busy trying to keep up with Erin's needs and my brother being in the hospital for over 2 weeks. Hubby travelled and joined my other brother and the two of them knocked out building a handicapped ramp so that my brother could get into the house once he was discharged home. This was all the day before Christmas Eve....and thank God my brother was discharged home. The doctor still is quite worried about his condition and has advised them to bring him right back if his condition further declines but feels that it would be best for him to be amongst family. I live about 3 1/2 hours away which makes it difficult.....these are the times that I hate being so far away from family.

Anyway, Jules, Erin is treated by an Adolescent Psychiatrist but I beleive I may have a few names for you. I have to locate them and will post them when I have them handy. It has been extremely difficult for me to find a decent psychiatrist...as a matter of fact, just to get Erin her next month's meds I had to schedule her with the psychiatrist who misdiagnosed her in the first place.....the state is done with us and the only appointment I could get with anybody soon enough to get meds was with the psychiatrist she had seen before the state took over. We are on a waiting list for a psychiatrist who comes highly recommended who works with adolescents and is good with meds in treating Bipolar. He may also treat adults. His name is Dr. Neil Rosen and he is in the Huntington area. Your son is now considered an adult....I have a friend who has a son who is older and I will see if I could get some info from her that may help you out. It may take me a while with the holidays....we are preparing to leave for a few days to be with my brother and my side of the family so I promise to help out ASAP.

Who knows....perhaps this new pdoc may be one I come up with and it may give you some peace of mind at least. Let us know how things go once he comes back from his appointment.

To all you wonderful people here who continue to sustain me through the difficult moments and share in the triumphs as well....I hope you had a very Merry Christmas and that the New Year to come is one in which we move closer to stability with our children. I know that there is much to be thankful for....as for me, things are so much better than the beginning of this year and they can only get better. I just feel blessed to have this place to come where I can always find the support and comfort to help me through it all.

((((HUGS)))) ~ Goody:angel: :wave:

tsohl
12-26-2006, 06:23 PM
Wow! I'm impressed you got an appointment so quickly. I'll be eager to hear how your son felt about the new guy. It's good he (the pdoc) was willing to speak with you.

I guess Seroquil is frequently used to treat irritability. And I DO know what you mean about the "skating around."

Hope this new pdoc works out well. They each seem to have their own ideas on how to medicate! best, Tsohl

jules3
12-26-2006, 08:25 PM
Thanks guys, hope i will take those names whenever you get the time..Yes, he is an adult not considered an adolosent.
He did have a visit today with a new pdoc, he came home looking a little better. The doc didnt give him any medication at all today he told him to come back next week and he will talk about medications then. I think he wanted to get to know him a little first..Does that make sense? I am confused. I mean this is only the 2nd doctor and i know they are all different,but im still confused. My son liked him, he said he was very normal and laid back. He told my son, that he could see how tightly wound up he is..could even seee that he was having trouble catching his breath. He has an appt.next week. I guess we just have to hope to have a good week here!

I appreciate the concern..thanks again

jules3
12-26-2006, 08:26 PM
Hope, sorry i meant goody, when i was asking for the names of pdocs...

langlee
12-30-2006, 02:07 PM
Hi All,

Just a quick note to let you all know I'm still here.

I am becoming a professional mourner. My brother-in-law's mother passed away yesterday - 5 weeks to the day my sister passed away! Although she was older and it's not a shock, I can't believe we have to go through another funeral again. At least this one should not affect Zac as much.

We had a relatively good Christmas, all things considered.

Jules, I'm so happy to hear about the new pdoc! Keep us posted!

I have lots to share, but I'm getting ready to go to my brother-in-law's. All of the kids are flying in today from around the country and there are airport pick-ups, etc.

Happy New Year to all. May 2007 be kind to our children and to us!

Love,

Hope

Pippinkitty
01-01-2007, 01:22 PM
Pippin here! I've been jumping the hoops here and once again thought I had made progress with educating family members and as a result garnered a little more support and understanding. Not a lot but baby steps work for me. Anyhoo, Erika just returned from a visit with her Dad. They went to his wife's parent's home in Erie, PA. When Erika returned home she told us she hadn't taken her morning dose all week and seemed fine. Her morning dose consists of 1/2 of her daily lithium and 1/4 of her Geodon. I was naturally distressed when hearing this because I have worked so hard with her to keep her med compliant and get her stabilized. I have been able to step back but my husband now thinks she has been manipulating us all this time. She said she knew she had to hide it as much as possible because her Dad would hit her but my current husband is not having any of it. He has already started separating himself by going to his train room. I am so tired of having to convince people to learn and understand. Here are my questions-I appreciate any feedback you can give me. Are there any split families with a bipolar who is able to curb the negative outward symptoms when around the other parent? Is it fair to expect my current husband to seek his own answers?
For those who know me-I had a squamous carcinoma removed from my calf in Nov. It grew back within 2 weeks so I had to have it, along with a chunk of healthy tissue, removed last week-13 stitches-not too bad. Hopefully he got it all this time. Here's my funny with it-while the doc was filleting my calf I was listening to CD's about raising teenagers. I told him I had to zone out-it worked! For all you fair-skinned people-I was never one to lay out in the sun. I was never a sunbather although I have always liked swimming and being around the water. My "bump" didn't look like what I have seen in pictures. Mine was light pink-almost flesh toned, round, itchy, and sometimes flakey, slightly raised. The size somewhere between a nickel and a dime. Don't ignore. Not usually malignant but can be if let go.
Look forward to hearing from you! Happy New Year!:wave: Pippin

goody2shuz
01-01-2007, 03:36 PM
Hello, Everybody:wave: And Pippin, thanks for checking in, I do hope that you get some feedback from others who are in the "split family" situation....I know that second marriages and stepparenting are difficult enough...add Bipolar into the equation and that makes things so much more of a challenge.

Just to straighten the facts out a little bit...as I recall, you are almost certain that your ex hubby is Bipolar but he denies it....am I correct?? And I am having a little difficulty following what exactly is happening in your family dynamics. Erika is compliant when with you, but decided on her own that she didn't need to take her morning doses of meds while visiting with her dad. Did you confirm this with your ex??? I am a little mixed up....Erika didn't tell your ex because she was afraid of what he would do (hit her)....I don't know, Pippin, but it could very well be that Erika is playing you, I mean if she truly understands the importance of taking her meds as perscribed and how important that is then why all of a sudden decide on her own to not take them knowing that her dad might get upset by that??? I know that a big thing that happens when Erin gets unstable is her distorting the truth and almost pitting hubby and I against one another so that the focus is taken off of her?? Do you think that there is a possibility that she is doing this?? And what about her Lithium levels....surely they will be affected by her readjustment of her meds. When is she due for a recheck?? Perhaps a call into her pdoc is warranted. As far as Erika being able to curb her behavior whether in a split family or not our kids are certainy able to curb their behavior with those they feel they need to have in their camp...peers, teachers, friends, coaches and yes father's who could possibly assist them in accomplishing their goal of getting what they want at the time. So many Bipolar kids are able to hold it together in the classroom and at school but let loose at home with their families because that is where they feel safest and where they know that they will not have ill effects from their behavior as they would if they had done the same in school or when around their peers. So many times I have heard and read about parents being told what a wonderful child they have and the parent wondering if they are talking about the same kid who at home says the most horrible things and has the household in such turmoil. So yes, Pippin, it is possible that Erika can hold it together at your hubby's and not at your home.

I got such a kick out of your story about listening to your parenting CD...just goes to show how proactive us mom's can be and how by doing so we c an be distracted from all those lemons that are being thrown our way.;) I do hope that they have gotten all of those cancer cells and that you will not have any more calf fileting to contend with. To think that you can stay so positive and reach out to us when so much is going on in your life....I find that by doing so things don't seem so bad and it is easier to get through all of this.

Jules....when is your son's next pdoc appointment??? Some of the doctors that I came up with are a Dr.Yogendra Upadhyay who is at South Oaks/Amityville area and a Dr. Doug Marcus in the Amityville/Great Neck area. I am not sure that they are just adolescent or adult so you may want to check into them. I will mention more as they come to mind or through some of the resources that I am in contact with.

Hope ~ I am so sorry to hear about yet another loss for your family. I know that this is not easy and that we of course worry about the overall effect this will have on our kids. I am going through a similar thing with my brother and his declining health. We had our family reunion at my other brother's house and witnessed how rapidly this neurological disorder is taking over my brother's life. Several times he went into violent tremors that had him almost falling out of the recliner he was lying in all the time aware of his surroundings and unable to control what was happening. These episodes were 20 miinutes in length and it was so painful to only be able to rub his leg as he rode it out knowing that there was very little more we could do until the meds kicked in. We got a call yesterday that he was brought back to the hospital because now he is unable to pee and may be going into kidney failure. Each time he is hospitalized his condition further declines. Last night as we celebrated with friends I got a call from my brother wishing me a Happy New Year and telling me that he was on his way home from the hospital with a catheter in place to collect his urine. He told me that they think that his condition has led to a nerogenic bladder in which he has no sensation of when his bladder is full and that from what they explained is irreversible. The pain of yet another loss from this disorder was in my brother's voice and yet he took the time to call me to wish me a Happy New Year. I cried telling him how much I loved him and when I hung up I went to the bathroom and had my own pity party praying that some miracle would happen to make my brother better.

2006 has been a difficult year for me and my family....Erin, thank God seems to be in a good place, however, my brother I fear will not get better and our family will have to continue to bear witness to his further decline. But I still believe in miracles and this is a time that our family sure could use one.

So A Happy New Year to everyone and may we all be blessed with many steps forward in finding the stability that our kids need.

(((HUGS))) and God's blessings ~ Goody:angel: :wave:

jules3
01-01-2007, 06:32 PM
Goody, thanks for the docs names.He has a 2nd appt. this wednesday with a pdoc..he liked him the 1st visit...we shall see...you never know!. im just happy we made it thru new years eve.

Happy new years everyone..lets hope its a better year for ALL OF US!

tsohl
01-02-2007, 02:59 AM
Hello friends,
Just wanted to wish you all some joy and peace in 2007.

Goody, so sorry to hear about your brother and his deteriorating condition. It sounds like you, Hope and Pippin all have your special challenges in addition to the problems with your children. From what I've read in some of your other posts, it sounds like Erin is doing reasonably well. I look forward to hearing more about her progress in the near future. How is the play going? Did things go ok with both girls home for Christmas?

Hope~I am so sorry to hear about yet another death in your family. You must really feel like you are being given more than your share this year. How is Zac responding since he is back home?

Pippin~I, too was a bit confused by your last post regarding Erika's dad. Hope your leg is healing and that the doc got all of it this time. My MIL had a similar surgery two summers ago and then last summer on the other leg. It took awhile to heal as it left a fairly large "hole."

And Jules, has your son been off meds since going to the new pdoc or did the new pdoc just not prescribe anything yet? I will be eager to hear your comments after his next appointment. Glad he made it ok through the holidays. Hopefully things will calm down when his buddies go back to their respective colleges. Has your son thought about reducing his load for the coming semester?

We had a nice holiday and we saw more of our son than I have in recent time due to his sister being home from college and my aunt visiting for the holidays. He may be stable on his meds but he still is very intense and I find him tiring to be around for long periods!! Things are definitely livelier, and, usually, more fun, too. But this empty nester won't mind at all when things go back to normal in a few more days! Happy New Year!! best, Tsohl

goody2shuz
01-02-2007, 08:42 AM
Hi, Tsohl ~ Funny how you should ask about how things are going now that Kait is home. They seemed to be going well.....that is, until last night when I confronted Kait about her taking liquor from us. We have recently moved and when trying to locate some food coloring in the garage in one of the bins, as I opened one, our collection of various liquors was revealed and Kait's reaction was as if I had struck gold. I warned hubby that we should do something about it, we left for our family reunion and returned home in time to celebrate New Year's Eve with some friends. Erin had plans to be with her best friend where we use to live and Kait was going over a friend's house and spending the night. New Year's Eve day hubby was fishing and I was out getting my nails done. Shortly after we returbed Kait & Erin headed out....Kait was rather rude when we asked where she would be, she stated she was 18 and no longer should have to disclose that, hubby and I told her that as long as she lived under our roof she would and even afterwards it would be nice because even to this day if I were going to be somewhere on vacation or out of the norm that I still informed my parents. She gave me attitude....Erin did as well and off they went. Oh the day before we left for my brother's Erin had vommited 3 times....it was a night after she had some friends over and she had fallen asleep forgetting to take her meds so I had Kait bring them up to her. That night she had skipped dinner so I figured that the meds had not agreed with her on an empty stomach. I recalled how she had brought glasses down from her room after her friends left and questioned her when one smelt like alcohol and she claimed that they had only soda.

Well, after I had discovered the bin and knowing how busy it was going to be during the holidays, I set a leaf on the bin of liquor to alert me if it had been tampered with. Kait came home yesterday, New Year's Day, and was intending on going out with friends again. The previous night, when in our old town we ran into her and she told hubby that her brakes were making a funny noise. Hubby took it for a spin and said it needed checking into and to be very careful driving home and to only drive it to her friend's house and if it worstened to call us. It was pouring rain all day yesterday and we were relieved when she got home safely. Meanwhile, I went out to the bin and discovered it had been tampered with. Hubby asked Kait if she had taken any liquor from us, she said no. He did a search of her vehicle while she showered and found an entire bottle of our vodka in her car. We confronted her, told her we were disappointed that she was stealing from us and also lying. Hubby told her that her plans were off for the evening and that if she ever took anything from us again she would not be welcome to stay with us. She argued that her plans were not to be cancelled, hubby told her that they were and reminded her that her car was not safe to drive anyway. Kait insisted on being able to use one of our vehicles and we told her that we would not be lending her it because of what she had done and also she couldn't be trusted. Next thing she was heading out the door and in her car she took off. Hubby called her cell and told her that if she didn't return immediately don't even bother coming home and that we would take action to make sure she was not driving a vehicle that was dangerous. Our plan was to lock the doors and if she came back by her cufew the only way she would gain access to our home would be for her to relinquish both sets of her keys and to tell her that she is no longer welcome home on her school breaks unless she could abide by our house rules and not steal from us. We have yet to hear from her.

Okay, Tsohl, you are a little bit ahead of me here...any thoughts???

Also when Kait was confronted she mentioned how Erin was in the liquor bin as well. We confronted Erin on this and she admitted to have taken some rum and put it into a seltzer bottle and took it to her friend's house but decided not to drink it. We asked her to get it and found the bottle full. She started crying how she only wanted to experiment but that she had gotten sick when she had tried drinking in her room with her friends....that was the night that she had thrown up three times and she said that she only had a little vodka and knew how she had reacted badly and decided it wasn't worth it to do again. she started crying telling us how all kids experiment and we went over how in her case it was not a wise choice because of her beingon meds that shouldn't be mixed with other drugs or alcohol AND her predisposition to developing an addiction due to family history and our knowledge that Bipolar and drug/alcohol addictions could occur simultaneously. She cried saying that she was sorry and had learned her lesson...we told her that she had lost our trust and until it could be regained that she couldn't have friends in her room.

Kait was the only one who knew where the liquor was so I know that she intitiated everything and made sure that she had stocked up on her alcohol....she has been taking trips out to her car to talk on the phone with friends and I have a feeling that it was to drink....she smokes as well and I know that she steps out to smoke because we have told her there is not smoking, drugs or alcohol in our house. So it wouldn't surprise me that she is spending tine in her car having a drink as well. I think that Kait has more of a problem than we are aware of.....Erin got extremely upset while my parents were with me about how worried she is about Kait and how much she drinks and uses weed, this was even before Kait came home from college. The thing that bothers me is that she seems to be drinking alone now which is a huge red light to me.

I have many thoughts going on here....Kait is due to go back to college by the 7th. I am so concerned about that knowing that we may have more of a problem than she is admitting to. Tsohl, you said that your son used drugs and alcohol before things got bad and that he had some addictions to deal with....please tell me what you think we should do?? Do we allow Kait to hit rock bottom or do we take matters into our own hands?? I am upset because when we had discovered that Kait was drinking alcohol that she took from us and served to her friends in her room while we had friends over, I took her to an AA meeting and there many shared how their lives were ruined by alcohol and oneman in particular shared how it had started when he was aroun 15 with experiementation and it worstened in college and continued to do so....he graduated but by the skin of his teeth and eventually the alcohol had taken everything away from him, his job, his friends, his family and that he was now alone. He shared how he had made sure that he would always have a source of alcohol by owning a restaurant with his own stocked bar. Kait is pursuing hotel/restaurant management. That really scares me.

Okay...so here I am entering 2007 with many worries....it only lasted a day, I thought that we were in a good place with the girls and now it is starting all over. I need some input and suggestions on how I might handle this. I have some thoughts...lots of thoughts running through my mind and it would be nice to see what others here may suggest in this situation. Tsohl...perhaps you could ask your son what may have helped him when this all began,...if there was anything you could have done to help prevent what had happened....that would perhaps be a good place to start....my intuition is thata if I push too hard it may make things even worse. What can I do??? We do have the leverage of funding her college and her car. I await your suggestions.

~ Goody needing some (((HUGS))):angel: :wave:

jules3
01-02-2007, 09:03 AM
Goody,
Besides my 20 yr old with all his issues,i have an 18 yr.old girl too. She is a senior in h.s. and very normal..Let me tell you, there is drinking all around us,just about all of these kids drink..it is amazing. I am on top of them almost 24/7,but even thats not enough..she actually told me that some of her friends parents allow it..well, not this parent.drinking age is 21 in our state. But, the driving around with the vodka in the car is a huge no-no..she might find herself in jail for a night.maybe a good thing! anyway,this parenting job is real tough stuff, we are on our toes constanley.im always trying to be one step ahead..but, it doesnt always work. i also have a little one that we are just crazy about ,i guess cause we always know where she is..when people told us little kids little problems, big kids bigger problems...they were so right..i would love to freeze her.lol...

tsohl
01-02-2007, 09:49 AM
Ok, guys...now that the aura of the new year is a couple hours behind us, it looks like the issues didn't magically disappear. Time to roll up our sleeves and get back to work..... While I agree with Jule that kids have a different attitude toward drinking today, Kait's behavior strikes me as extreme. I need to reread your post and think about it a bit before I write anything more. I have mixed feelings about ultimatums and I need to carefully examine the issues here before I feel comfortable trying to add something to the mix. But I wanted you to know that I am here for you and will be back soon. In the meantime, I send a big hug your way~and remember, Ruth :angel: is up there for consultation, too. best, Tsohl

tsohl
01-02-2007, 01:10 PM
Kait sounds like a very head-strong young woman. She strikes me as the type that probably just digs in that much harder when you issue ultimatums. Now you have to figure out if you are prepared to follow through. Are you prepared to be estranged from her if you use your financial powers over her and pull the plug, so to speak? I think your intuition has served you well in the past, and I'm guessing it will get you through this situation, too. Without knowing Kait it is difficult for me to guess how she would respond, but I'm guessing that you could very well make matters worse by issuing ultimatums. If you alienate her physically and emotionally, you will have no ability to influence her and guide her.

I share your concerns about her drinking and use of pot. It's one thing to "experiment" when among her peers, but if she is drinking on her own, you already know that is not a good thing. I can't give you much advice based on experience with our son as his situation was so different. He began using pot in high school in an attempt to control the feelings and emotions that we now know were caused by the onset of undiagnosed bipolar disorder. He did not drink or smoke to be cool or to fit in with his friends. As a matter of fact, he just recently told me that his friends were very worried about him and because of them he stopped using for months at a time. But he would go back to smoking pot because it was the only thing that made him feel even slightly under control.

It doesn't sound to me like making Kait attend AA meetings or anything along those lines will work with her. I'm sure she knows better and thinks she knows that she can handle things. I'm not sure what it will take to get through to her. Hopefully not having to "hit bottom." Our son had a wake-up call when it was time to get a full-time job after college. So many companies now perform routine drug testing even among their salaried employees and he realized he no longer could smoke pot without impunity!! If it weren't for that he might still be smoking as he still contends it made him feel more in control and more stable than any amount of lithium, lamictal or whatever. Perhaps he no longer feels this way. We haven't discussed it since just a few months after he stopped smoking.

I'm afraid I haven't been much help with any suggestions or advice for you. I will probably think of more in response to comments you make, but for now, will close. I'm sorry you're having to go through all of this on top of your worries with your brother, and of course, with Erin. Oh, one more thought....since Erin has talked to you on more than one occasion about her worries about Kait's drinking, what about talking to her now...along the line of what can you think of that we can do as a family to help her? Do you have any ideas that we haven't thought of? Not in a dividing way so she feels she has to side with her sister against the evil parents...but in the "we are family and Kait needs all our help...what are your ideas" kind of way.

I'll continue to mull and will probably have more ideas by tonight...but hopefully, the immediate drama will be over by then. best, Tsohl

goody2shuz
01-02-2007, 02:50 PM
Thanks, guys...it feels great coming here knowing that I have others who have been there ane done that and can help me through these tough moments. Jules, you are so right about the alcohol and experimentation....Erin was in tears yesterday telling me how all of her friends are into drinking and that even some of their friends parents serve alcohol in their homes. I explained to her how that was not responsible parenting and that I would never be one of those parents because there are severe consequences to doing that could have me or her friends in trouble and that I would never place our family in that situation. Erin went to get the alcohol from her bag and mad stop to the bathroom upstairs.....I am inclined to think that she is not being very honest with me and had added some water to make it look as if she didn't have any....I don't like the lying and deceit. AND.....in her case it is important that I get through how dangerous it is to drink or use drugs when she is on her meds. I truly think that when she threw up that she realized that but then to go take some liquor afterwards doesn't support that she has learned her lesson. She claims that the vodka didn't agree with her and that she wanted to try the rum. I told her that by doing so that she would be placing herself in a dangerous situation, that unlike her friends who weren't on meds, she had alot more to risk by drinking alcohol and using drugs and that she could really hurt herself. I reminded her of how upset she was about her Big Sister's drinking and weed use and to go and do the same was not the wisest way of dealing with it....that even though she were younger she could be a good role model for her sister and at the same time be helping herself by not taking such risks as to have an addiciton on top of her Bipolar. I think that we really need to have more of a heart to heart and I am going to tell Erin that I would rather her not be on meds for her Bipolar if she were going to be using drugs and alcohol. We have an appointment with her old pdoc this week and I am going to tell her that as her parents that we must inform him and see what he suggests we do. Perhaps we need to have it instilled that we will be doing random tests....my friend who is a probation officer gave us some home tests and I think that we will be using them on both of our girls and have consequences if they come out to be positive.

Tsohl....I do appreciate your taking the time to think this over...I too am seeing from experience that ultimatums just don'g seem to be productive. So that you can give me the best advice I need to provide and update....I looked at Kait's recent pictures on her camera and it seems that there are some of her and her friends sneaking into our other house through her window. A few months ago we took Kait's keys away and disabled the electric key pad to access through the garage. Also amongst the pictures were numerous ones of her passed out in a bathtub (a friend must have taken those) as well as some of her passed out on the floor of her dorm room in the closet rather than here bed. So this truly is of real concern to me.

I informed hubby who will be stopping by our other house....my instincts tell me that she has been spending time there and most likely spent the night there if not at our next door neighbor's house who she is friends with. I just got off the phone with my next door neighbor and she informed me that Kait's car was not at the house and that her daughter who is very good friends with Kait has shared with her how concerned she is with Kait and her excessive partying. So my instincts are real.....my neighbor went on to tell me that her daughter has disclosed to her also her concerns regarding Kait's safety with driving a car. My friend suggested that we call Kait's friends and discuss our concerns with them...I feel as if Kait is walking on a tightrope here and the way in which I handle this will impact where she goes from here. Partying is all part of college life and a reality that I cannot shield Kait from. She has to be able to balance this and make sure that it doesn't get out of hand.

Also, I called hubby who was at the house and discovered that the screen to Kait's window was slit open in order to gain access to the house.

Just got a call from the state tdoc who has been working with Erin. She is aware of the problems that Kait has undergone and feels that we need to aggressively intervene....she feels that by allowing Kait to return to college would be a big mistake....that by what I described she has definite problems with alcohol and drugs and that to not intervene at this time would be a big mistake. She even feels that we should call the police and press charges on Kait as drastic as this all sounds it will be what may save her in the end. The tdoc is on her way over to help hubby and I formulate a concrete plan in order to make sure that we can follow through with it. The only thing is that this therapist doesn't have my total confidence....she has done well but she assures me that her specialty is drug and alcohol counseling.

What do you think?? We just paid over $7000 dollars to cover the second trimester's costs. Not that should be the most important thing. The therapist is insistent that we really take things by the horns...Kait does have a free ticket to do as she pleases while at college and how will we monitor her problem long distance. PLEASE help me out here....what should we do???

Just when I thought things were in a good place...also I also worry about having Kait home an how it can lead to a bad effect on Erin. After how far we have come this is of great concern to us.

The therapist just left and it seems that she thinks that minimumly we need to inform the school of our concerns...I know that Kait was brought up before the student conduct board within a week of being in college in regard to alcohol on her possession and thinks that we need to find out what exactly became of that and then see what type of counseling services they would recommend if we were to have her continue to go there. And she also told us it might be necessary to cancel her return to college and have her work for a while and earn her keep while showing us that she is responsible and doesn't have a drinking/drug problem. The thing is how do we monitor that??? There is only so much we can do but the therapist feels that we still have time to help Kait....to wait another year may be too late.

Oh geez....I just never know what is going to come my way. The therapist wants us to make copies of the pictures to show Kait why we have concern.

Any input you may have for us would be much appreciated....Jules I know that your 20 year old is home and perhaps you can tell me what it would be like if your were just getting your Bipolar 15 year old stabilized and then bring in an older sibling who is showing signs of alcohol/drug problems. I feel as if I have two kids drowning and don't know who to save first. On the other hand....our intervention with Kait may help Erin out by her seeing that we are just as concerned about her sister as we are of her and how we address it will make a big difference of showing Erin that there are no double standards set in our household. Erin is equally concerned as we are.....I know that to not do anything will show Erin in someway that we have given up on Kait and that certainly is not the message we want to give her or anyone.

Ruth, if ever I needed your intervention it would be right about now!!:angel: I know that you are still that angel who will intervene on our behalf and I really could use it right about now.

Still needing (((HUGS))) and reassurrance ~ Goody:angel: :wave:

jules3
01-02-2007, 04:29 PM
Goody,
i feel so bad for what you are going thru now. nobody can ever imagine how hard this is.dealing with kids this age and then have isssues on top of it..as far as school is concerned,my feel is it needs to go on the back burner until things are taken care of with the drinking and drugs etc.. We wasted a whole semester at least 10.000$ on my son this past year..started with 15 credits ended with 6 credits because of the bipolar,drinking,pills. even is doc said his health has to come first not school..and believe me we are devastated by this, because we as adults know how important college is in this day and age..im almost positive we are not sending him back this coming semester. granted he is 20 and a little older than kate..but still, he lives in our home and we pay for his education.

as far as my 18 yr old goes i know she experiments with alcohol and pot, but we never had any real problems with her..she has seen alot of crap with her brother..maybe that is a good thing in her case...she starts college in the fall,shes dorming upstate,so all i can do is pray she makes smart decisions..isnt it hard? its so easy when they are young..

about erin, i thought to myself at one point maybe my son is better off without his medications if he was going to drink. so, i know how you feel about that.. but,decided against taking them away from him..i know he has some beers with the guys now and then..but havent seen him drunk in weeks..so thats good...but, then again hes only on seroquel and effexor. you have a legititmate concern with her meds and drinking.

my daughter has told me that some of her friends drink their parents vodka and replace it with water..vodka does not have a very strong odor..so, i believe it..just writing all this turns my stomach..will it ever end?

jules3
01-02-2007, 04:29 PM
Goody,
i feel so bad for what you are going thru now. nobody can ever imagine how hard this is.dealing with kids this age and then have isssues on top of it..as far as school is concerned,my feel is it needs to go on the back burner until things are taken care of with the drinking and drugs etc.. We wasted a whole semester at least 10.000$ on my son this past year..started with 15 credits ended with 6 credits because of the bipolar,drinking,pills. even is doc said his health has to come first not school..and believe me we are devastated by this, because we as adults know how important college is in this day and age..im almost positive we are not sending him back this coming semester. granted he is 20 and a little older than kate..but still, he lives in our home and we pay for his education.

as far as my 18 yr old goes i know she experiments with alcohol and pot, but we never had any real problems with her..she has seen alot of crap with her brother..maybe that is a good thing in her case...she starts college in the fall,shes dorming upstate,so all i can do is pray she makes smart decisions..isnt it hard? its so easy when they are young..

about erin, i thought to myself at one point maybe my son is better off without his medications if he was going to drink. so, i know how you feel about that.. but,decided against taking them away from him..i know he has some beers with the guys now and then..but havent seen him drunk in weeks..so thats good...but, then again hes only on seroquel and effexor. you have a legititmate concern with her meds and drinking.

my daughter has told me that some of her friends drink their parents vodka and replace it with water..vodka does not have a very strong odor..so, i believe it..just writing all this turns my stomach..will it ever end?

goody2shuz
01-02-2007, 06:03 PM
Hi, Jules and all ~ The thing with Kait is that she doesn't see this as a problem, even after we layed out the photos she got upset with us saying how we had some nerve going into her camera without her permission. She blamed everything on us trying to take the focus off of herself...called me a f*ing ***** and telling me that I have been saying that she had a problem for years and she doesn't. Hubby and I brought up how she was stealing from us, lying, breaking into our home without our permission and hiding alcohol in her car. She claimed that everyone did that and she was no exception and that everyone must have a drinking problem too. She argued that cutting the screen to gain access into our other home was her right since it was her home too. Her attitude and sense of not owning up to her mistakes had hubby calling the cops to at least make an official report. The police officer has everything documented and was wonderful at sharing with Kait how he too was concerned about her actions and how at 18 years old she was already setting herself up for a future involving the law in which she would not have the opportunity to succeed if things continued to go the way that they were. He also shared how he had seen over many years the end results of teens who acted like her and that the best case scenario was a job at Walmart if at all or even death. He looked at the pictures and told her that by what he saw she had a real problem and that she probably didn't think so and that she may think that it was normal but it wasn't normal for parents to be put in this position of not trusting their own children and that if she were ever to want to work in a restaurant/hotel that having a felony with alcohol or drugs would never land her a job in the future. He also went on to explain how driving a car with bad brakes could land her in jail and if we really wanted to we could have her arrested for breaking and entry. We told the officer that we didn't want that at this time but the next time we would do so.....that we were tired of all this and that from here on out she would be responsible for her actions. He went on to ask Kait if alcohol was her only problem....she admitted freely to using weed and he told her that it was not a good combo. He gave us alanon and AA information and told Kait that the complaint would be on record and that she was not to be in the other house or she would be arrested and have an instant record.

When he left the officer told hubby that it seemed that Kait barely listened to what he was saying and that we should continue to use tough love and perhaps she would wake up.

Kait went on to tell us that we should be more concerned about Erin and how she had drank on Christmas Eve and that was why she was sick....I told her that I already knew that and she upped the ante by telling me that Erin also was playing this choking passing out game and that we should worry more about her. I told her to stop taking the focus off of herself, that I was already concerned about Erin and that the issue still was about her and our legitimate concerns about her alcohol/drug use and overall behavior. We took the keys away for the car and told her that we would be cancelling the registration and insurance and if she took any vehicle without our permission that we would call the police. The officer told us our rights to have her evicted if she continued to be a problem and told her that it would be wise if she changed her ways before she wore out her welcome in her own home, that he had seen the results of that and it wasn't good.

So we have alot of anger going on here....we told Kait that not only we were concerned but her sister and friends were as well and that if she didn't see a problem then all those who cared about her couldn't be wrong. WE told her that we had alot to think about and that we weren't sure about her going back to college that we would be calling the college and setting up an appointment with the student services to ascertain our options. ( They are closed today for the holiday break) And that it may very well come down to her coming home and working a job for a while so that she could get herself back on the right track with our assistance. That college was a provelege and not a ticket to party and screw up your life.

She is in such denial....she doesn't even see that there is a problem...we were going to do a drug/alcohol test that our friend gave us and she admitted to using weed yesterday and we told her there would be no more of that allowed if she wanted to live under our roof. We still have decisions to make.....we still don't know what is best.....Erin is extremely upset about Kait's ratting her out and has told her to go back to college that she doesn't care anymore.....I told her that she was entitled to that but that I had my concerns about her welfare and that some of the things Kait had shared were and could be life threatening. When I asked her about the choking game she said that she did it once but once she learned how you could die from it she hasn't done it since. All of this is too much to absorb and I just don't know what to believe anymore. Hubby informed me that a neighbor invited us for dinner and that is the last thing I can think about. How can we go out an leave or trust these two girls???? And when do we get our lives back???

I need that oxygen mask.....and Ruth I sure hope that you send me a sign and some strong currents to keep me from geting too close to the ground.;) Boy how I miss your posts and your strength and grace that pulled me through such moments....I know that you haven't left me alone and that you will send in a fleet of angels for your friends here....would it be too soon for you to do it now???;)

Thanks everyone for your patience and support....I really don't know how I can get through this all....there are too many lemons and curveballs being thrown my way. It's getting so difficult to dodge them all when they seem to be coming all at once!!:dizzy:

((((HUGS)))) and thanks for the love and support ~ Goody:angel: :wave:

Pippinkitty
01-02-2007, 09:31 PM
I'll try to clarify-I typed my post in a hurry and was pretty upset. I gave Erika's Dad the meds all divided up into morning and evening doses with a medication chart and instructions written on the two 7-day containers. Erika is compliant here with me pushing and being verbally abused twice a day for it. Her Dad is bipolar but in denial and does not believe in "all this stuff". His brother is diagnosed bipolar and his mother is as well. I may have mentioned it before but he is a Lt. Col. in the Air Force and believes discipline is the answer to everything.
Thanks for the feedback so far. Hang in there all and yep, looking for the funny, kooky things in life help me keep going. Pippin

jules3
01-02-2007, 10:42 PM
Goody, i know exactly what you are saying..we drug test our son all the time..it used to come up positive for pain pills..its been negative for weeks now..we will not tolerate drugs.. pain pills numb you and that is what he was trying to achieve. hes rough to deal with, we are always skating around him and i am getting tired of it..we cant go out and trust them home alone either. i wish i had advice for you but im kinda going thru the same thing..im trying to stay 1 step ahead but its starting to destroy my marriage among other things.i wish my 20 yr old was out on his own!

langlee
01-02-2007, 11:26 PM
Oh Goody!

I am so sorry you are going through all of this now. I know how heartsick you are and how hard it is when there doesn't seem to be any answers. I'm going to read all of your posts and see if I can get caught up. You certainly don't need this, but I know you will find a way to handle it. You are so strong.

I'm concerned about the advice of the tdoc, only in the sense that you don't really trust her. The whole alcohol/susbstance abuse world is so difficult to deal with and finding someone you trust and who can give you good advice seems almost impossible. There are alot of big rehab places who might have some resources for you or be able to give you some direction. I know that Hazeldon is a well-respected name.

In the meantime, I am sending you huge hugs and I know that Ruth is watching over you.

Love,

Hope

jules3
01-02-2007, 11:34 PM
Who is Ruth?

goody2shuz
01-03-2007, 12:26 AM
Thanks, Hope, for your continued support and words of understanding. This thread serves as a wonderful lifeline and the people on this board are just great. This is all so difficult to share with family and friends who are not going through it so being here and having found you guys is such a gift.

Jules, Ruth was a wonderful poster I met here when I first came to Healthboards....we met over on the Relationship Board and we seemed to think alike and be connected in a unique way...we felt as if we had a spiritual connection that reached out through cyberspace. We soon adopted one another as cybertwins and discovered that we both shared a strong faith and kinship with one another. After developing such a bond I had some troubles developing with both my girls...Ruth had no children and asked if she could co-parent my girls and soon I learned that she was Bipolar.

When Erin started showing signs of Bipolar, it was Ruth:angel: who gently took hold of my hand and brought me over to this board and told me that there were wonderful people here. I didn't doubt it because she was one of them.:wave: Who would have known that she would play such a vital role in my life....when we met I had no idea that she was Bipolar or that Erin would be diagnosed with it. I really truly believe that our paths were meant to cross.

Sadly we all learned, by a posting by her husband here on Healthboards, that our dear Ruth had passed away on November 4th. When I heard the news I truly felt as if I had lost a sister for we had such a wonderful bond.

I know that she is still among us and in a special way watching over me and my family as well as so many of her other friends here. We often spoke of how we felt that we would know one another when we finally met in heaven and recognize one another's souls.:angel: :angel:

She is a sister and friend who I truly miss and I know that she is still watching over me and is the wind beneath my wings.

~ Goody:angel: :wave:

tsohl
01-03-2007, 12:51 AM
Wow. I admire your courage. I never could have called the cops. I'm not sure what I would do in your shoes, as a matter of fact. I have never had to face such defiant behavior with my kids. I can't even imagine drug testing. I don't think my son would have put up with it. I think he would have just taken off.

Did you end up going out for dinner? I imagine you are afraid to leave the girls alone at the moment. I am afraid your problems with Erin are going to get worse if Kait isn't allowed to return to college. Their negative energy seems to feed off each other. Is Kait the type to run away?

I am eager to hear what the college has to say if you decide to contact them. My son's college would pretty much not get involved in issues related to drinking and drugs. They were not about to function in loco parentis. But it sounds like Kait's college has a different attitude. What size is the student body? Please keep us all informed. We are all holding you in our thoughts and prayers. best, Tsohl

tsohl
01-03-2007, 01:41 AM
Hello Hope,

How are things in your world?
Just checking in....
Hugs your way, too.
Tsohl

jules3
01-03-2007, 08:58 AM
goody, thats just a bittersweet story. i do believe shes watching over:angel:

tsohl
01-03-2007, 10:16 AM
Hi Goody, (and friends)

I was just rereading some old posts and I ran across someone you have to get in touch with....Gav 73--Read in the thread "Should I encourage her to go to college" by LAP18, one of her posts (#8) where she describes the kind of teen she was and what she put her parents through -- she definitely reminded me of what you're going through with Kait. She might be just the one to give you some good ideas on how to handle the situation.

I'm sending some prayers your way this morning, hoping your drama isn't intensifying with Kait. best regards, Tsohl

goody2shuz
01-03-2007, 11:29 AM
Thanks, Tsohl....yes I had come across Gav's posts before and alot of what she writes about seems so familiar so I think that her perspective of things may very well help me out. I know with your son, you didn't have the butting of heads going on....or perhaps as many therapists have shared with us, the friction seems to be with the opposite sex parent. How is/was your son's relationship with his dad??? Was it more strained??

Anyway, it is so frustrating because as you well pointed out, Kait does not respond to punishments or ultimatums very well, as a matter of fact she has told us that punishing her or taking priveleges away only makes things worse. The therapist tells us that she has held hubby and I with emotional blackmail and it is time for that to stop and have her take responsibility for her actions. As difficult as it was to call the police, we did because we want her to know that there will be consequences to her actions and we are nom longer afraid to take them. We are doing our part as parents and it is time for her to do her part as a young adult. Hubby and I are tired of always doing our part and her not doing hers. We are seriously thinking about evicting her if this continues.

Kait is getting the grades, they are lower than we or she expected...her first trimester she got a 2.61...she needs a 2.75 in order to receive her academic scholarship. I think that her objective is to party and she clearly has chosen friends who like to do the same. Yesterday she tried to make herself look better (as she often does) by telling me that her Bipolar roommate has been arrested for drinking and that her other suitemate was and the roommate were the ones brought up before the college board of conduct for possession of alcohol....she wasn't charged or given any penalties because it wasn't her alcohol BUT she was with them. They are on probation and had to go through alcohol counseling and pay a fine whereas Kait didn't. On top of this, one of the girls Kait told me Thanksgiving time, is a recovering alcoholic and her Bipolar roommate has a history of having been in a rehab for addiction and abuse of Adderall. Kait is no longer rooming with the Bipolar girl but is with the recovering alcoholic. It's not a pretty picture is it????

Unlike Gav, Kait is not seeing that she isn't ready for college....she believes academically she deserves to be there and I don't disagree. She is bright, however, her personal life choices may affect her entire future and the way I see it we cannot force her to WANT to come back home and work and go to a community college...in fact I see that as making matters worse in the sense that Kait will further rebel....she will find trouble here and ways to drink if she wants to. The thing is, at this point she doesn't see that she has a problem....in fact she has said that as far as she is concerned that this is normal because if it weren't then why are there so many people at her college and at home doing the same exact thing and some worse off than her. She told the police officer that she didn't think that there was a problem when he picked up the picture of her passed out in a bathtub. He told her that he disagreed, that she did have a problem and if she didn't start taking care of it she would either be dead or in jail. How much more could be said....Kait told us that we had the problem of being to involved or concerned about her life. So what do we do with that???

I have to get on the phone with the college and see what our options may be.....I am going to share my concerns with them and see if she would be accepted back if she took a year or two off and did some of her electives here and resumed when she was better able to control her drinking. The downside thing is that this college has her taking many of her core requirements in the first two years....,they do things flip side in terms of earning a degree so many of Kait's credits are non-transferable....she has taken Food Safety and Food and Sanitation as well as Front Dest Operations all of which are part of her major. So there is alot to look into.....I know that her well being comes first, however, if Kait doesn't see that then chances are she will continue down this road and there is very little we can do to change it. When she went to live with my brother the same things happened....she went and found the people who liked to party and she was suspended for drinking....she remained an honor student, but she still found trouble and gravitated towards the kids who liked to party. Chances are that she will do the same if we were to keep her home.

Things are rather quiet around here....Kait was up until 2 or 3am as usual and when she has nothing to do that is when she gets nasty....we are in the calm before the storm because we told her that her use of the car is done and that seeing her friends is over for the time being as well until we figure this all out.

We are going to dinner to our neighbors and embaressingly had to tell them that we had to bring out two teenage girls. This has been the 4th invite and we just couldn't decline again.

I will keep you posted...Jules I am so sorry that this is coming between you and your hubby. My advice would be to really try to give your energies to trying to salvage your marriage....all this CAN destroy any happiness you or I may have but it is our job to make certain that it doesn't. Take time for your relationship with your husband....that is so important because when all is said and done it was the two of you that started as the foundation and the two of you that must make sure that it doesn't crumble. I know that sometimes it feels as if we are in this alone but our hubbys are hurting and feeling it just as much, only they are not so good at showing it. Eventually your son will get on his own two feet and he will be walking into the sunset....sad if you and your hubby are left behind not able to watch it together.

Just my two cents worth but I know how much this all can suck out of you.....we have to ride the waves and when we are in the peak take advantage of that moment and look up to the sky and see the beauty that is still there in our lives. That is key to getting through the next trough....and as far as I am concerned, I want my hubby with me riding the waves through the sea of life. I am sure that you do to.;)

((((HUGS)))) ~ Goody:angel: :wave:

langlee
01-03-2007, 11:33 AM
Hi All,

Tsohl, thanks for always checking in on me. You are so kind!

Things here, for today, are calm. Zac has been in a good mood and said he feels like the medication is finally beginning to work. We had some travails over the holidays, as always, but managed to get through them without the usual bursts of anger and craziness.

We definitely all took a mental break over the holidays and enjoyed a week with no therapists, no psychiatrists, no school, no discussions. I think we all desperately needed it. Now we are getting back into the routine. The pdoc prescribed Concerta so Zac can see if that helps him with his focus. That continues to be his biggest issue and is the stress factor of returning back to school. He is doing fine with his tutors, but he is on such a relaxed schedule that I can't envision him getting back into the grind. Sleep continues to elude him (he has been on so many different meds) and now his whole body clock is off. I'm trying to get him up earlier in the morning, but it's hard when he doesn't fall asleep until 3:00 AM. He has also taken to night eating, which is not a good habit for so many reasons, and so my first priority this new year is helping him find a routine he can commit to.

I am so sympathetic about the drugs and alcohol, Goody. They are like sirens that call to our kids and are so difficult to manage. Please keep us posted about how you are doing. I wish I could give you some good advice, but I've struggled myself. The only thing I can tell you is that you are doing everything possible for your girls and that is all you can ask of yourself. We've had the cops here, too. The only way we could get Zac to go in-patient after my sister died was to have the cops come and take him in the ambulance. It was horriffic, but something we had to do.

What I have learned from this battle is that tomorrow it may all change but, for today, I am thankful to have my son back. He is truly two different people - the one we have always known with the great sense of humor, the keen intellect, and the compassion for those around him - or someone who turns truly monstruous, angry, abusive, volatile. When he is "himself", I find it hard to believe that he will ever turn into the other person and when he is that person I am fearful that I wll never see my son again. It is an ongoing journey, but one I am so thankful to share with all of you.

I love all of you as sisters of the heart.

Love,

Hope

langlee
01-03-2007, 11:50 AM
Dear Jules-

I, too, am sorry to hear that you and your husband are having challenges, but it's not surprising. This is tough for everyone. Although at times I get very frustrated with my husband, I know he is in pain, too. He has had a volatile relationship with Zac these past few years and it is especially difficult for him because they were extremely close when Zac was young. I wish that he handled things differently, but I accept him for who he is. I know his heart is in the right place. Like alot of men, he doesn't have the patience or the emotional reserve for the ups and downs of this disorder. But, he loves his son and he loves me and wants all of us to get to a better place.

One of the things I have tried to do is to create a "discussion-free" zone. When we go out to dinner or go out for the evening, I tell him that I don't want to discuss any of the negative things we are dealing with. If he wants to talk about constructive plans or options, I'm happy to do with that, but I don't want to dwell on all of the troubliing things we are facing. It has helped. It is too easy to become consumed by this and soon you find it's all you are talking about. It's a killer!

Just something to think about as you pace yourself.

Love,

Hope

tsohl
01-03-2007, 12:41 PM
Goody,
I agree with the sentiments expressed in your last post completely. I don't see how keeping Kait home is going to be particularly productive. I think there are ways to let her continue on with her studies. I think the chances are just as great that she would continue on with her partying regardless of where she is living. At school there is always the chance that she will have some experience that will turn around her attitude--whether it be someone she meets, a professor, a class....etc. If she is at home she is always going to be looking for a way to foil you. She just may be one of those kids that has to learn by experience. It is very troubling that she seems to think everyone is doing the same thing. I don't suppose it would do any good to organize something along the lines of an intervention whereby just her peers would talk to her about their concerns? Obviously, she isn't going to take anything away from an adult. Has Kait always been this defiant and oppositional? When I read various comments you've made about how Kait thinks her behavior is on a par with everyone else she knows, how "everyone" is doing it, it sends up red flags for me. In many ways it sounds like she is living in a somewhat manic state. I would certainly continue monitoring her for signs of bipolarity.

Is Kait somewhat young for her class? I seem to recall her turning 18 after she entered college. Her behavior and attitudes strike me as rather immature as well. I'm really out on a limb here, but is there any possibility that Kait is behaving this way to command attention? Generally girls behave this way when they have little self-esteem or self-respect. Maybe you could look into whether her college offers any decent therapy or counseling and you could make that a condition for her return to school this semester. I'm really "thinking outloud" here so please don't let anything I'm writing without really thinking through offend you!! I'm just tossing out some ideas and maybe something will ring true.

To answer your question about our son, I would say that he and my husband have a good relationship. It has been more difficult for my husband to get his mind around understanding bipolar disorder, but he has really made an attempt to educate himself about it. My husband is a very calm, rational being who is used to tough negotiations and always deals from a position of logic so that helps a lot!! Our son has always been strong-willed and a perfectionist. He too is very logical. It is much easier to go along with him than to oppose him. We early on learned to structure what we wanted him to do in such a way that he perceived it as "his idea" and therefore was more willing to do it, work for it, etc. If he was really opposed to something we wanted or asked of him, it was like moving a mountain or trying to stop a tornedo from rotating. So I always structured things as much as possible to avoid conflict. Looking back at things as I write this, I can see that now he is more willing to listen to others opinions than previously. Could be age, or could be the meds....But the world still revolves around him and he still thinks his way is the best way, etc., and I doubt this will ever change!!

Glad to hear things are somewhat peaceful at the moment. I'll keep my fingers crossed that it continues. best, Tsohl

tsohl
01-03-2007, 12:59 PM
That is excellent advice, Hope. You really can become completely consumed by a child's problems and it can eat you up. My husband is good at compartmentalizing but I am not. When something is on my mind, it is all-consuming and I talk it to death. I have had to learn to tread lightly at times and to really pay attention to the timing of when I say things. For example my daughter will graduate from college in one semester. She is excited and scared at the same time about the future, so I have to be very careful what I say to her about her "plans." If I bring it up at the "right time" we have a nice conversation. But if I am insensitive and bring it up when I want to, I can quickly reduce her to tears, at the very least, or ruin the day!! She needs to know that we can do things together and have fun and that every time she's with me she's not going to face a grilling about her future.

Hope, you expressed what I'm trying to say perfectly and it is very good advice for all of us!! I'm pleased to hear that Zac is at least a bit happier with himself. Even once meds are in place there is still a long ways to go to learn to live again...to develop the confidence that one can go on with life, make plans, achieve. After spending much more time than usual with our son over the holidays, I see that while he appears more himself, he has a ways to go to regain his confidence regarding rejoining the work force and focusing on a "career" as opposed to a job.

Hope you have a good day. Best regards, Tsohl

goody2shuz
01-03-2007, 01:52 PM
Tsohl and all my wonderful friends ~ Nothing you could say would ever offend me....in fact your words sure do comfort me as well as the time and genuine caring that goes into your wonderful posts that carry me through what I envision is the battlefield. I aslo feel Ruth's love and energy in the works as she sends in a fleet of angels:angel:

I feel empowered and just got off the phone with the Director of Parent Resources at the college and she spent quite sometime with me. I feel empowered and I shared alot with her and as I did she told me numerous times that I seem to be handling the situation quite well and have thought out what is best for Kait very well. She advised me that if Kait were to return part of the conditions should be that she sign what is called a Buckley Ammendment Waiver...there are 3 in all and she told me we should insist that Kait sign all three that would allow us the right to be informed of any conduct, Academic or Health problems that may occur while she is at college. She also told me that since we are funding Kait we have every right to spell out our expectations and conditions of our doing so. She advised me to contact the Head RA of her dorm and inform him of the situation as well and tell him that we expect to hear of any problems should they arise within the dorm. She also told me that Kait should be capable of pulling a 3.2 cummulative average and that the 2.61 that she got last semester should be unacceptable. That part of our expectations would be for her to pass the Food and Sanitation exam that she is retaking from last semester and that this semester she get a 3.2 or she will not return the following semester funded by us. That way she will not be able to party and drink as she has been doing or will want to do. I also was reassurred that IF we were to have to take her out that we wouldn't lose our money and that she would help us recup almost all of it if need be. I was amazed by that. This woman sounded like an angel....she asked me several times throughout our conversation to keep her in the loop with how things go and how she may further assist us.

So I feel that Kait is going to see that we are serious, that even though she cannot be babysat every step of the way that if she doesn't do her end of things we have no intentions of doing our end of things. We are placing conditions, and reasonable ones on our further funding her education. And she will also know that if she has to come home that she will be earning her keep and have to get to and from college via bus until we are assurred that she is responsible enough to drive a car again

Tsohl ~ You seem to have pinpointed Kait to a T....she has been just as strong willed and defiant like this since she was 14 years old. I have a few threads that describe what we went through with her (they are long ones;) ) and if you have an opportunity I would love if you could take a peek at them because at the time I didn't know what was going on but since it has continued I am still concerned that Kait may be Bipolar as well. The thing is at the time I didn't know any better....she has never been suicidal but she has been quite defiant and manic....always bored unless she was on the go and several times running away into the cold dark night without a coat or shoes on. She never liked our rules even though they were the same as her friends....we were terrible parents and she wanted to live anywhere but with us. She wanted to make her own rules and live her own way without any boundaries. And if she didn't get her way she would make it so that it would be her way. She was a tornadoe and caused much turmoil within our household. Here are the threads....

http://www.healthboards.com/boards/showthread.php?t=210351
http://www.healthboards.com/boards/showthread.php?t=220223
http://www.healthboards.com/boards/showthread.php?t=228429

That should give you a history of just how turbulent life has been in our household and honestly I could use your opinion as to whether Kait has shown signs of Bipolarity or is it just defiance and oppositional behavior?? With Erin and her cutting and suicidal history it was easier....with Kait it is so much more difficult and unless she crashes I will never really know, will I?? All I know is that when she lived with my brother for a year he told me that something was wrong and he was quite concerned as we have been about her.

Just got a call from my mom...my SIL informed her that my brothers BP dropped to 40/30 and he is not putting out any urine and is on the way to the hospital via ambulance. Please, pray for him and for our family that we can get through this.

Love ~ Goody:angel: :wave:

tsohl
01-03-2007, 06:44 PM
Goody, I am so sorry to hear about your brother and will send prayers his way.

I think you had a wonderful response to your inquiries at Kait's college, and that should go a long way to making you feel like you will have a workable plan when she goes back. Her college is very different from my son's and it is going to help you out immensely.

I will read through some of your older posts about Kait and get back to you later. Keep us posted about your brother. best, Tsohl

langlee
01-03-2007, 08:58 PM
Goody-

Your brother is in my prayers and you are in my heart. Please let us know how he's doing.

Love,

Hope

goody2shuz
01-04-2007, 12:11 AM
Thanks Everyone for your love and prayers. My brother, thank God, is okay. They were able to get his blood pressure up again, he is admitted and was seen by an endocrinologist, nephrologist and cardiologist. Seems that he was in the beginning phases of acute kidney failure but they think they caught it early enough and will try to figure out exactly what is causing it. Seems that the low blood pressure worstens it so it could be one of his meds doing it....he is on so many. I am relieved that they were able to bring his blood pressure back up and that after they gave him some fluids by IV that he is now producing urine. So for now things are okay....I just pray that his doctors will soon consult with a doctor who specializes in what he has that I found in Tennesee. My mom was able to talk to the head of the center and he agreed to talk to my brother's doctor so hopefully by their putting their heads together they will come up with something that will stop the progression of this terrible thing.

Anyway....the more I think about what we came up with for Kait the more I like it. Of course when we presented it to her she hated it and got all full of how we are expecting too much of her and that nobody elses parents do this to them and that all her friends are drinking and doing worse than her blah, blah, blah. I told her that we have heard the same tune for years and to us she is not everybody else and that we have real concerns for her.....that not everybodyd else has a strong family history of drug/alcohol addictions and not everybody elses parents fund their college. We told her it was time for her to do her part and that there really wasn't too much negotiation because our expectations were more than reasonable and if she didn't like them she could always be out on her own and pay her own way. All we wanted was for her to get decent grades to maintain her scholarship and if she wasn't partying or had no problems with alcohol she would be able to do so. She told us that a boy she likes had kidney problems and couldn't drink and now that it was better he drank....I told her that if he was smart and wanted to keep his kidneys healthy that he wouldn't but that was really something his parents needed to worry about and that at this point in time we were just concerned about her and her decisions in life and her well being and future. And that ultimately it should be her that was concerned about it but so long as we were paying for college we were going to do our best to make sure that she got on the right track. She left the room not too pleased but later on came down and vacuumed for me and made banana bread to bring to our dinner tonight at our neighbor's.

Tomorrow is another day....and hopefully it will be quieter for us. I hope all is well with everybody else and thanks again for all your help, wonderful thoughts, support and prayers. It is so nice to know that all of you are here to make it just a little bit easier and to remind me that we are never alone during these difficult moments in life.

((((HUGS)))) to all the angels here on this board ~ Goody:angel: :wave:

tsohl
01-04-2007, 12:47 AM
Good news, Goody!!
I am relieved to hear your brother passed the crisis. How far away is he from you and how old is he? I do better praying for someone when I know a little bit more about them.

I'm just curious how strict you were with Kait through junior high and high school? Were you a parent who kind of micro-managed all aspects of Kait's life or did she have some independence?

I think your plan is a good one, and again, I am so amazed there is a college on the East Coast that is willing to help you out with something that is basically what she chooses to do in her free time!! Is this a private college?
My daughter works in the Admissions office of her college in Vermont. We went out for lunch today and I was subtly asking her some questions. She said freshmen in particular will drink to the point of passing out. I inquired what it took to make them change their behavior and she said they usually flunk out or otherwise decide not to return to school. Otherwise, grades serve as a "wake-up" call and they learn to regulate their partying. She also thinks college should be 5 years because it takes at least one year to figure out what's going on and to learn how to function to get the most out of it.
Did I mention she's graduating soon? (thus, the "wisdom")

Get a good night's sleep. Tomorrow is another day!

Best,
Tsohl

goody2shuz
01-04-2007, 02:32 PM
Thanks again everybody...yes it is yet another day. And thank God we are yet through another crisis.

Tsohl to answer your questions....I am about a 4 hour driving distance from my brother's sometimes more depending on traffic. That is what I find to be most frustrating. I had my bags packed to be ready in an instant but find it most frustrating being so far away since I would like to be more readily available to him and his family to help out. My brother is only 43 years old, my other brother thank God recently moved and is only an hour away....my parents are more like 2 1/2 hours. So my other brother and his wife joined my SIL at the hospital yesterday and my parents are now visiting him. Even though he is out of this crisis it seems that everytime he is hospitalized his condition further deteriorates which is the sad thing. I am hoping that with the consultation we have set up between his doctor and a specialist that I had found that we can figure out a way to at least keep this from progressing OR perhaps reverse some of what has occurred.

Anyway...I know that I cannot leave home when there is so much to deal with on my homefront...since my brother is now stabilized I will stay put. When things calm down I would like to perhaps fly down once in a while to help my brother and his family out but for now I feel I cannot do that.

I have more concerns regarding both of my daughters....seems that they are both drowning and I don't know who to save first. I am QUITE concerned about Erin's recent behaviors....of the drinking she did on Christmas Eve that left her vommitting...is it as she says only a little bit or more?? And Kait claims that she helped her through that night...Kait won't step one foot near anybody vomitting and when Erin had fallen asleep forgetting to take her meds I asked Kait to give them and knowing that she had done so knowing that Erin had been drinking really bothers me. and Erin knowing that she shouldn't drink while taking the meds and taking them bothers me too. And Erin playing this passing out game and claiming that she doesn't like drinking and then packing up rum and bringing it to her friend's house on New Year's Eve....it all bothers me. Erin crying how concerned she is about Kait's drinking and using weed and then going on to drink herself bothers me too.

We see the pdoc tomorrow....the one who started Erin on AD's and despite my concerns continued them. I am not happy about going to him but it is the only appointment I could get while we are on the waiting list for the pdoc I want to follow her. So how much do I tell this pdoc?? If I tell him about Erin's drinking and passing out game he may not perscribe the meds. I would be extremely upset if we were taken off of them because we have come so far with her treatment of Bipolar. Erin seems to still be quite impulsive...her self injury and suicidal thoughts have lessened as well as her depression and mania so we are in a good place with all of that and I certainly do not wish to mess that up. Do I tell this pdoc who doesn't really hold my confidence?? In fact my intentions are to tell him how I need for him to redeem himself because of how he didn't take my concerns seriously enough in the first place without putting him on the defense.

As far as Kait....she had very similar rules and guidelines as her friends did while in Junior High and High School. We basically didn't want her spending time at anyone's house where a parent wasn't home, her curfew on weekends was 10-11pm and later if circumstances were necessary,....in her Senior year of High School it was 12-12:30am. We had chores at home to be done...very basic like doing laundry and keeping up with her room and bathroom. She was able to work a job at 14 so long as she could handle it with her grades....we were extremely reasonable parents who strived to guide her towards independence and allowing her to see that she needed some ownership towards certain priveleges. While her friends were handed brand new cars we encouraged her to save for one and told her that she would have to also be able to afford the gas and insurance with some assistance from us but the way we saw it, having a car was a responsibility and would be taken on when she needed it or earned it. She seemed to resent the fact that others were given brand new SUV's by their parents or sports cars with the insurance all paid etc. We told her that we were not the type to keep up with the Jone's and that our intentions were to teach her as her parents that things in life are earned and worked for and not just handed over. Kait often feel she is owed everything in life....she has been a great worker but claims that she has had to work for so that she can have the things that she has wanted but we wouldn't give her. She is angry and unhappy....this Christmas, for example, she had about 6 or 7 gifts....they added up to alot and before she even opened them up she was upset. I told her that we had spent equally on her and Erin and what she had before her cost alot of money. By the time she opened them up I think that she came to that realization but her initial reaction really bothered me.

I think that Kait is going to have to be out on her own before she will realize her problems and how distorted her thinking is. IN her eyes her parents haven't done enough for her and the only way that she will ever know is when we no longer do anything for her. It is sad....but Kait is in a constant mission mode of having to get what she needs and wants at any given moment and doing whatever she must to get it that way even to the extent of breaking the law. When I told her how upsetting it is that she breaks into our house without our permission putting us at risk to being sued....she claims that the house is HERS and she should be able to do as she pleases with it. We told her that it is not HERS unless she pays for it and the insurance, mortgage, taxes, fuel, and electric. I am worried, very worried about Kait. Even with all that we have laid out before her as our expectations to fund her she sees college as a ticket to party. When I told her that I intended to speak to her Residential Director she told me to go right ahead because he works for the club that she gets into free and supplies her and her friends free drinks. I find that hard to believe but I intend to tell him that Kait has informed us of this and that we are almost certain that she is lying because a Residential Director has a responsibility to keep students safe. I will not threaten him but make him aware that Kait has told me this so that he can measure how real her problems may be and if he is doing this know that his position as RD may be at risk.

The college is semiprivate and a great college. As a matter of fact when we were at dinner last night with our neighbors they told Kait that graduating from that college will guarantee her a job....he is a professor and knows many who have graduated and that it is an honor to go there. Hopefully Kait will come to that realization and change her ways but somehow I don't hold out much hope....she seems way too immature in her thinking and is only living for the moment. In fact she has asked me if she can go with a friend to Atlantic City to celebrate his 21st birthday....that his mom is a manager of Hyatt hotels and plans on getting him a room. I was impressed that she even asked but I told her that she was underage for gambling even though he would be of age and she would get in alot of trouble and shouldn't be there.....that if they were just going to celebrate at a restaurant that would be different but this sounded like trouble to me. What else can I do??? Hubby and I decided not to give her any more money....that if she needed certain things to let us know and we would mail them out to her but no more money for her to put towards partying....that we were not going to subsidize or enable her drinking/clubbing that she shouldn't do in the first place....that we sent her to college to pursue a career and a good future for herself. We encouraged her to make friends who would help her to get there....she told us she had no intention of changing her friends and we told her that if she could do what she needed to do without getting into trouble and stay in college that would be fine but that we were genuinely concerned with the amount of partying she was doing and that she should be too if she wanted to have a good future.

So that is where we are at. I know and am preparing myself for it not being over but the way I see it hubby and I are doing the best that we can....the rest really at this point is all up to Kait.

Hope everybody else is doing okay. As always....this is a great place to come knowing that you are all here even if it is just to lend an ear. But it is always more than that when you wonderful gals are ready to roll up your sleeves and tackle anything that comes our way. I consider myslef blessed.

((((HUGS))))) and thanks for all that you are to me ~ Goody:angel: :wave:

gav_73
01-04-2007, 04:21 PM
Hi Goody,

I got your message on the last post and came to offer any help I can. You sound so overwhelmed, and I wish I could do more for you, give you some fool-proof answers on how to deal with the issues that are troubling you. I can share some of my experiences with hopes that your daughters may be able to relate with me as a teenager and as a bipolar. I will start from the beginning and add to it periodically, as this may take a while.

When I was a kid, I was extremely sheltered, totally dependent on my parents and looked up to them as if they were all I needed in the world. Then, suddenly, my mom up and left us and my dad fell apart. My whole world up to that point in my eyes then had been a facade, and I resented both of them for taking away that security I once felt. That on top of some severe emotional problems exhibited around 8 or 9 led me down a path of self destruction that took me almost 20 years to turn around. I left home at 16 years old after moving from one house to the next, and thought I knew everything. I really did. I even still think sometimes that I couldn't have survived the chaotic environment my parents had subjected me to for so many years. I felt that no one understood me, that I was completely different than they were, than anyone was in my family. In fact, I was different. Looking back, not only was I bipolar, I was the only creative, artistic one in my family. I was in gifted classes, I took private art lessons and was quite accomplished even in fifth grade. I wrote poetry, was an avid reader of books, I talked my way out of everything because I could. I was a rebel without a cause and thought I knew everything, but those around me had convinced me I was special, and I thought I was!

Therefore, when I didn't think that I could stand my parents any longer, I left without a second thought. I quit school and lived in one dorm, apartment, house, wherever there was room. I started using drugs and alcohol like I was invincable, like nothing would harm me because I was smarter and wiser than anyone else. I hung around kids and young adults that had something to offer me, whether it be a party, drugs, a place to stay. It didn't matter, as long as I was free. On the other hand, I never, ever asked my family for anything. But I felt that they owed me bigtime. They weren't paying for my room and board, my food, my clothes, my college, so when I needed something, I expected them to give it to me. But I never really did, unless I was homeless and starving. I was very proud and wouldn't let my dependence on them divert me from my mission. I lived like this for several years, moving by myself from Atlanta, New Orleans, New York, to the Carolinas, Florida, and other places looking for myself and never finding it.

When I was 18, I got pregnant and decided to give the baby up for adoption. In the interim, I got married to some guy I barely knew and left him when it was time to have the baby. At 6 months, I went into labor and had her 3 months early. Her adoptive parents still adopted her even though problems were inevitable. Today, she is 14 and has cerebral palsy. After she was taken away, I went on a binge. I was totally depressed and couldn't bring myself out of it. I thought the only thing that could make me feel better would be to have another baby (I know, horrible, huh?) I got pregnant again after only 9 weeks of giving her up and had another little girl. They are 11 months apart. She, too, was premature, but the doctors had an idea what was wrong with me and she was spared any disabilities. I also took better care of myself. All this time, I refused any help from anyone. I took her home and didn't know what in the heck I was doing. I cried everyday and thought I was going to die. Turns out, I had severe post-partum depression (after both births), which is common in bipolars. However, I didn't know I was bipolar.

All this time, I had tried to commit suicide several times when drinking. I ended up in several mental institutions voluntarily. After the first one, I knew they wouldn't really help me, but I would commit myself when I just needed a break from life. I had insurance because I was working at a casino, so I took advantage of it when I needed it. But the meds they would put me on never did a thing. I thought I was a hopeless case.

When my daughter was 3, I dropped her off at her dad's house one night so I could go out. I went to a bar and hung out with the cute bartender that I had befriended. We decided to go bar hopping when he got off, and we did. We had a great time, but we were getting pretty drunk. We decided to take a ride in my new car, and since we were drinking, I drove us out to the country so we could ride around and listen to music. Well, we hit a construction site and ended up in an accident. The car flipped 7 times and he was ejected and killed. I ended up with a broken neck and a charge of vehicular homicide, facing 25 years in prison. This was the real crossroads in my life, as you can imagine. Up to this point, my erratic behavior had only hurt me. Now I stood accused of murdering my friend. I was devastated as you can imagine, as I always considered myself a kind and loving human being, even if I wasn't kind to myself.

I ended up doing a year in prison, where I found out I had Hepatitis C. When I got out, I found out that I was actually very sick from it, and already had signs of liver damage. I was saturated with the virus. The doctors had suspected that I got it from my tattoos, which I got when I was 16 when I moved out. Back then, AIDS was only beginning to come to public awareness. Hepatitis was not an issue. I had never even heard of it. Anyway, since I had not been a IV drug user and that Hep C isn't spread easily through sex, the doctors said tattoos were most likely the culprit. Even though they would change the needles, they didn't often change the ink back then.

My parents really came through for me when I was incarcerated, however, and I was touched. They took great care of my little girl and brought her to see me regularly, and it meant a lot to her, because we were very close. When I got out, I was a wreck as you can imagine. I was a murderer, I was sick from some disease. I didn't take my daughter away from my parents because I was as much an emotional wreck as ever. I ended up marrying some idiot loser again and knew it was not a place or environment for my daughter to be. I know this all sounds crazy (and you still don't know the extent of it), but I was still bipolar, I just didn't know it. And has good as my intentions may have been, I was doomed to self-medicate. Luckily, I never got caught drinking while I was on probation. I did, however, enroll in a university and started college. But I was very serious about going and wanted to do well. I knew I could. I kept waiting tables throughout college, and started therapy for my Hep C, which put me into remission and stopped any damage. It was very difficult, as it is just like being on chemo. My hair started falling out and I felt like I could barely get out of bed. But I kept working and going to school throughout and made it through. It was worth it, and I was determined to get through it. And I did.

Message is too long to post, so I will continue below...

gav_73
01-04-2007, 04:22 PM
I finally succeeded in getting off probation, left that loser guy after only 1 year of being together, and ended up transferring to another school on scholarship. I still had bipolar, I was still drinking and self-medicating, but I was through with the drugs and my choice of friends began to change as I felt better about who I was. Also, the type of man I was attracted to also changed dramatically. I expected more from them, I expected them to be educated, I expected them to treat me well. I didn't feel like I was stong enough to succeed on my own because I had always proven I would screw it up. Now I realize that I was trying to control the bipolar by myself and knew that whatever was wrong with me, that I couldn't deal with it on my own. My whole life I had felt like something was wrong with me. That indeed I was special, but special in a way that made me feel isolated, alone, misunderstood and defiant. I was impulsive, which is obvious, lived life on the edge, and didn't care what happended until it happened. Until my accident, nothing had except that I was homeless, on drugs, with no direction in life. As a teenager and young adult, I could handle that. As I grew older with a child depending on me to straighten up, I realized I couldn't. It mattered now that I get a handle on things. But with the bipolar, I didn't know that I really couldn't.

But I did the best I could. I ended up graduating college with a 3.8 and finding a man who was truly worthy of my love. He was a kind and gentle man with goals and aspirations. He didn't drink, never did drugs, and loved me unconditionally. If I had met him at any other point in my life, I wouldn't have even been attracted to him. He accepted me, Hepatitis and all. We got married right after graduation and both entered graduate school, both getting accepted to the best universities for our programs in the nation. I quit drinking completely, quit smoking, and started to lose weight. Then, I hit a BIG depression. Since I had quit all drugs and alcohol, I couldn't figure out what was wrong with me. I knew I was stressed out, but as you can see, I was plenty used to that. I had previously blamed all of my problems on my abuse of drugs and alcohol, now I was really confused. I went to the psychiatrist and FINALLY got diagnosed. She took one look at my history and diagnosed me in about 10 minutes.

Since being on meds, I finally feel like a normal person with a future. It has been a long time coming, but I have made it to the place I longed to be. It took 20 years of hell, a person dying, two children and three marriages before I was 32, but I am finally here with two college degrees and ready to make a fresh start. There are more obtacles to come, but I can tell you that there is not one thing I don't think I can do now that I have the help I so desperately needed for so long.

Well, I will end here. That is the foundation of my life, my experiences with being a bipolar teen and adult, and how I found my way. I hope that my experiences can help some of you understand somewhat what it has been like. I am really tearing up as I write this, because I truly want others to understand what can happen when a kid doesn't get the help and medication they need as a bipolar. I know a lot of people on here talk about an all-natural "cure" to bipolar, but I am here to say that for me, it never would have worked in a million years. I have always taken fish oil and vitamins, particularly because it was sometimes the only nutrition I got. But I still had all the problems you've read about.

It was only with the help of my psychiatrist and the support from those who loved me that I've made it this far. And only by the skin of my teeth that I'm still alive today to tell you about my experiences. It's not pretty, I know, but I have been brutally honest about everything, and hope that it will help parents deal with their bipolar teens and what can happen if they aren't medicated. I also want you to know that seeing you on here looking for help and advice means a lot to me, because my parents never had these message boards to look to for advice (not that I even know they would have). I think your love and support of your children will allow them to avoid these horrible things. So, keep up the good work, and feel free to ask anything you like. I've let it all out, so there's nothing to hide now. :)

Goody, I know you wanted some input for your daughter Kait, and I will be happy to share some of my opinions or advice about your situation. I know this long story is not exactly you were looking for when posting on the other thread, but I felt I needed to start off with my whole story to give you some background of my life. I think this is a good starting point for any discussion you may want to start, just so you can know where I've been and what my life has been like. I can relate to what both of your daughters are going through, even Kait. Even if she's not bipolar, I can at least relate to her impulsive and defiant behavior as a teenager and young adult. Believe me, I was the same way, only I didn't listen one bit because I wasn't under anyone's control. I wish I had been. So, please, ask away and I will try to help in any way I can.

tsohl
01-04-2007, 04:47 PM
Well, let's see...I just took my daughter to the airport, so I'm back to being an empty nester. We've seen so much of our son while the daughter was home, that we agreed we didn't need to have dinner together for awhile! She's going to be in Minneapolis for the next two months for an internship and then she goes back to Vermont for her last semester. Goody ~ my kids are so very different from yours. Actually mine are different from most kids, come to think of it. My daughter is so much her own person. She is very self-directed and has and always has had a strong value system that she lives by. She was never affected by peer pressure. She never drank until she turned 21 and now has a glass of wine every couple months!! I honestly can't recall ever having any major arguments with her. Amazing.

I too would be cautious about saying too much to the pdoc. I would tell him what meds she's on and how much better she's now doing...and hopefully he'll just keep you in a holding pattern for awhile. You're only going to be with him for a short while and you don't want to be starting over with all different meds, etc. The holidays are over. You can keep an eye on Erin to be sure she isn't drinking...and hopefully, she learned her lesson. Have you called the moms of the other girls to let them know what happened? I imagine they would be concerned as well and would be more careful in supervising their own liquor and children. Even though you don't want Erin to know this, I think you'd have to drink quite a lot on a regular basis to have it do any long-lasting damage, and I doubt she actually drank that much. I wouldn't be surprised if Kait is exagerating how much she drank and her role in all of it to make herself look better in your eyes. If I were you I'd get rid of all the liquor in your house, or at least put it in a locked cupboard. It is sad to admit to yourself, but you can't trust either of your girls at the moment.

Next time you post, please tell me what's wrong with your brother, and I also want to hear all about what is special and unique about Kait. Tell me all the good things about her. best, Tsohl

goody2shuz
01-04-2007, 05:21 PM
Gav ~ Thank you, thank you, thank you.....I know that what you posted was not easy and as God would let it be Kait so happened to be right next to me as I was beginning to read it and I had her sit next to me as I read it outloud. I really didn't say anything other than allow her to hear the words you wrote and I KNOW that even if it isn't right now, what you wrote to us here WILL somehow be recalled by Kait somewhere in her future. Your story, as sad and tragical as it sounds is so full of hope and strength and I thank you for opening up to us here so that we as parents can see that there IS hope for our kids and that things will turn around for them hopefully more sooner than later. I cannot even begin to tell you how touched I was by your story....it is truly inspirational and I thank God that He allowed us to meet so that I can continue to hold onto the hope that I so need for my girls right now. IT is truly a gift that your post has given me as well as others here. Thank you for that precious gift, Gav....you are truly a remarkable person and I am honored to know and have met you here on this board.

I need to run some errands and just had to somehow acknowledge your post and let you know that it is truly a gift to have shared in your life. Like I said on the other thread....I am so very proud of you and all that you have done to turn your life around and be here for others who are hoping to do the same. If anything, your story is truly a message to never give up and know that even as bad and horrific as life may seem you have the power to turn it all around.:angel:

Tsohl....I will be back...have yourself a latte and relish the solitude while you can.

(((((HUGS)))))) to all the angels who carry me through the rough patches of life ~ Goody:angel: :wave:

tsohl
01-04-2007, 11:14 PM
Hi ladies ~
I certainly second Goody's comments pertaining to Gav's posts. I too am learning a lot from them. Gav ~ you write very eloquently of what the experience of being bipolar is like, at least from one person's perspective and it is very helpful to all us moms who are struggling to relate to our bipolar kids.

Jules~ you must not assume that all your son's irresponsible, reckless behavior is caused by the fact that he is bipolar. My son would never have jumped from a moving car unless he was so out of his mind on drugs that he had no idea what he was doing, and the one and only time that happened, he checked himself into the psych hospital!

I would encourage you to call your son's pdoc. You may not get very far, but then again, you may! In the one and only conversation we had with one of our son's doctors who called us after he fired our son as a patient, he indicated that he would have been willing to consult with us all along. Of course I hadn't known this at the time!!

I've kind of lost track of what meds your son is now on, but I don't recall any mood stabilizer. Our son is on two as lithium didn't quite do the complete job. When lamictal was added was when he finally started feeling more ordered. I liked what Gav had to say about the feelings of anger and rage. I found that particularly difficult to understand...and it was just that which propelled our son to commit himself. He had a kitten and one night it got scared and peed on him. He flew into such a rage that it scared him sufficiently that he knew his meds weren't working and that he needed to get help ASAP. Of course as soon as he came out of the drug-induced haze, and realized how worthless the inpatient experience was, he demanded to be released. I was at the store shopping for things that I thought he might need for his inpatient experience when he called me to say "come get me!" I thought he'd be in weeks, if not a month. But the pdoc who'd never met him before, reviewed the paperwork, asked him a few questions, made the decision he wasn't going to commit suicide, and signed the release papers. I think he was there about 28 hours altogether. But, the whole experience was the turning point for him. He knew he didn't ever want to end up there again (and it was the "good" psych hospital in the city) and he immediately began the journey that led him to the place where he is today.

I think even well-medicated bipolars are still pretty egocentric. Our son still looks at everything from the inside out, but he is much more sensitive and thoughtful than he used to be. Perhaps part of that is his increasing maturity rather than the "right" meds!

Our son was not living with us while he was going through all his drama so it is hard for me to comment on all the day to day issues you guys all face. Of course he did live here during high school and we were living in the same city after he graduated from college when he had the major problems and the most drug use so I do have some awareness of what was going on with him!

Jules, does your son talk to his friends about seeing a pdoc and about his diagnosis? I'll be eager to hear what the pdoc has to say to you, whether he will listen to your concerns....

Hope, what is going on in your world?
Hugs to all~
Tsohl

gav_73
01-05-2007, 12:49 AM
I really agree with you tsohl when you say that it probably has as much to do with maturity as it does the meds. I do believe that I have grown up quite a bit in the past few years, and with the right meds, I am able to feel comfortable with that and move forward. I was (and still am, in many ways) very immature. But a lot of that is just my personality, too. I am just a silly old gal. I'm the "crazy" mom, but in a good way as put by my daughter. I always tell her that if she starts dating a guy that I don't like, I'm going to go up to her school in one of those motorcycles with the side cart, dressed in the whole silly get up - scarf, goggles, leather jacket - and honk and honk and honk in line with the other parents picking their kids up from school. She loves it! But the thing is, I really would do it! LOL :)

But I was extremely immature throughout my 20s, until I hit about 27 or 28. I still wanted to go out and have fun, not worry about life, etc. I had to really force myself to grow up and care about my life and myself and start looking at my future. It took a real concerted effort on my part. But you have to have the will to do it, and the will doesn't come until you feel comfortable enough to handle it, to handle accepting responsiblity for your life and actions. It was a scary and huge step for me to take. It's probably hard for all of us, I'm sure.

What may be interesting for your kids to know, and I think is important to convey, however, is that you would never, ever, ever know that all of those things happened in my life, or that I suffered from bipolar disorder, had two children out of wedlock, been to jail and all that from looking at me. I am pretty girl with long blond hair, I look like I'm still in my twenties with a nice smile with sparkling white teeth, petite and always wearing a smile for everyone; I've never had trouble attracting good looking friends and good looking men (not that that matters, but it matters when you're young). I look like everybody's best friend, but I can easily become everybody's worst nightmare if I don't monitor my behavior carefully. I just want your daughters to know, Goody, when they're reading these things that I could very easily be one of them.

Anyway, it's bedtime. I just wanted to acknowledge and thank you Goody and all for your kind words and acceptance of my story. It was scary for me to tell, out of fear of being judged and all that. But I'm happy it helped some of you and I hope it can somehow translate into making a difference in your kids' lives, whether it be from them knowing that someone like me has been there and understands their struggles, or helping you a little more to understanding theirs. :wave:

goody2shuz
01-05-2007, 01:08 AM
Gav ~ I guess what I see as being different about Kait is that she seems to see me as her enemy. I know that she loves me, however, most of our interactions are strained and argumentative. Her time at home is often consumed with getting her wants and needs addressed and if they aren't she is nasty and irritable. She often says such hurtful things to me when she does things wrong placing blame on me. She sees living with us unfair unless she gets her way, so it seems. I think that deep down inside that she knows that things are not okay, that she is always unsettled unless she is doing what she needs to do. Alot of your post sounded so familiar....Kait has often said that she doesn't see anything wrong with her decision making and choices because she wants to "live her days as if it may be her last."

She is a stubborn young lady but has a sensitive side to her as well. She doesn't show it very often but it is there hidden deep within. She often has said that she feels we don't love her....as you described you often felt that way even though the people around you DID show and tell you that they loved you. Just today Kait told me this and I took her in my arms and told her that I needed to know why she felt that way, that her entire life I had spent showing and telling her how much I love her. I told her that when she did things that were wrong or could hurt her that I needed to tell her because I loved her and if I didn't I wouldn't give a damn. So I KNOW that she is going through a tough time inside and I truly wish that I could reach within and touch it but she won't let me in. I remember when she was just 14 years old that when we were going through the toughest time so much anger and so much agitation over anything and everything anytime she was at home I sat down and asked her what was wrong and that I wanted to help her, that she was so unhappy. She quieted and said she didn't know and started to cry. It was the only time that she let me in....I felt like I had gotten in to that part of her that was so closed up and I hugged her and told her that I loved her and hated to see her so unhappy and so miserable. The moment was lost when I asked her to go talk to somebody....we went to therapy a few times in her life as a family and individual but it was always for her to find somebody to be on her side to tell her that she was right. And when it got to anything more that challenged her she gave up and refused to go anymore...so long as somebody was agreeing with her all was okay. And it has been this way ever since. Most of her time at home is spent thinking about what she needs to be happy but she never really seems that way to me even to this day.

Tsohl you asked what is unique and special about Kait. She is really a sweet girl who does show respect for others who don't know her too well. When she was in Junior High and High School whenever we went to parent teacher conferences everybody raved about what a great young lady Kait is and how smart she was. At the time we were seeing a different side of her at home and I recall hubby and I looking at one another wondering if they were talking about another person. That is what they say occurs with kids who are Bipolar.....that to others they appear quite normal but at home Kait was always so agitated and angry. She did do wonderfully with her grades always striving to do her best. Thing is, she really didn't have to apply herself...she was gifted to be able to ace exams and saved her projects for last minute and get them done well. She was in Girl Scouts and went on to earn her Gold Award which is the highest acclaimed accomplishment for a Girl Scout. She started working her first job at the age of 14 and always held a job until she started college and her employers LOVED her and often told us what a wonderful worker she was. She also became a certified Lifeguard and worked this past summer at a Bath and Tennis Club to save for college (of course she spent it all within the first 6 weeks). She really is great with people and is courteous and kind.....I see her going very far because she is a hard worker and is motivated. She is a mush when I hug her but it is so difficult to pin her down for a moment on her way out the door or to her next adventure. When you first asked me to tell you about Kait I must tell you it was difficult because lately there is so much of her impulsive bad behavior going on that I must take a glimpse through it all to see that there is the good still there fighting to get out. It reminds me of Erin before she was medicated.....her being consumed by something I couldn't quite identify and her caught up in it needing help. Kait is caught up in it but won't accept my help. She surfacely is doing well but inside I know that she isn't. This is difficult to describe but I am sure that she is hurting deep inside and doesn't even know it herself. She has it deeply hidden to the point that she doesn't see if or allow anybody else to. Erin was this way too but to a much greater extreme. It took a while for her to admit she needed help and she had a moment like Kait when she said that she didn't know what was wrong and I promised to help her find out. And she came to a point of wanting the help and realizing she needed it. Kait has yet to get to this point and I feel as if I have failed her. But I know she knows that I am there for her whenever she needs and is ready to accept the help. It is scary waiting for the time that she does and I only pray that she stays safe until that time comes.

As far as my brother, he has what they call Complete Autonomic Failure which is a progressive condition of the autonomic nervous system. It started about 4 or 5 years ago when he bit into something and his tooth cracked. The fork he was holding flew across the room. Shortly after he would start having bad headaches and then black out when he stood up. He was first hospitalized when he was driving and blacked out after pulling over to the side of the road. Over the years they have tried to control this with meds....it progressed to the point that his blood pressure would go sky high when he stood up and plummet quickly causing him to pass out. Eventually in order to give him meds that would help they put in a pacemaker so that his pulse wouldn't drop too low while he slept from the meds that regulated his blood pressure. Recently it progressed to the point that he has such severe headaches that quickly have him going into violent tremors.....they last 20 - 30 minutes and you would think he was having a grand mal seizure but he is fully alert and unable to talk because his head and jaw are shaking uncontrollably as well. Most recently the meds will not hold him and he cannot get to a standing position without immeditely going into these violent tremors.....he is having numbness (neuropathy) in all 4 extremities and is in a wheelchair. The condition has now caused numbness to his bladder (neurogenic bladder) to the point that he is unable to feel when he has to relieve himself. Each time he goes into the hospital he comes out further debilitated by his condition. The doctors are hoping to slow down the progression with meds and still have yet to find the right combo. They have tried many combos and still have yet to find one that will work. That is where this consultation with a doctor in Tennesee may possibly help who deals specifically with Autonomic Failure. We are hoping that the doctors will be consulting with him tomorrow sometime. Meanwhile he is in the hospital tyring to regulate his blood pressure and keep it from going too low. He was in acute kidney failure and they have gotten him back to being okay. When his blood pressure goes too low it puts him at higher risk of going into kidney failure so they have him off of most of his meds until his blood pressure improves some more.

So that should help you further understand I hope, the frustration our family faces while we wait to find the meds treatment that will help my brother. The specialist we found claims that he has various med combos and that hopefully one of them will work for my brother. Amazingly this is so similar to what we have to go through with our kids only in my brothers case it is more imperative that we find the right meds soon before this condition further debilitates him.

Well I am off to bed....Kait and I decided to make tomorrow mother/daughter day. I think we both can use that.;)

Goodnight, ladies....Goody:angel: :wave: :yawn:

gav_73
01-05-2007, 02:40 AM
Gosh, Goody. I didn't realize all the hardship you have going on right now. I am also about to head to bed, but wanted you to know that I was thinking of you tonight and will say a little prayer for you and your family.

As for Kait, I was reading your post about her and how she acts and is acting out, and a thought went through my mind (and this, of course, is in no way meant to be offensive or too forward), but I was wondering if you know whether she's ever experienced any sort of molestation? I am not trying to alarm you in any way, as her wall may just be her personality, as not all of us are comfortable talking about our problems and opening up. But, the anger, the sudden turn to drugs and alcohol, her crying for no reason and acting so unhappy as a young girl, etc. I see so much of my behavior in her, doing well in school and everybody loving me and hiding so well behind my "good girl" facade and fooling everyone outside the home for so long. I was molested by a neighborhood boy and hid it for so long simply out of fear of hurting my already fragile family. Is it possible that something could have happened to her? If so, she could hold a lot of pent up resentment toward you and at the same time, not want to tell you how to help her out of fear of hurting you.

I know it's the very last thing a mother wants to think about, but it happens to so many young girls (I think it's something like every 1 out of 3 or 4 in the US) that I thought I might bring it up. I am not trying to scare you in anyway, Goody, that is not my intention. I don't even know if I should be saying this at all, as I don't want to worry you anymore than you already are. And I am probably way off base, so please don't worry yourself about this. But I also know you are on here looking for answers, and although it is not something any of us mothers ever want to think about, it is something we must think about. I feel that my issues with being molested caused me a LOT of problems with trust, with my family, with every relationship with any person in my life. It had nothing at all to do with me or my parents or anything, and I know in my heart they would have protected me if they had known. But I did hold it against them, even when I wasn't aware of it. It is something that has hurt me all of my life, and still does. But I have also learned to move past it and move forward by talking with people I knew wouldn't judge me.

I am afraid to post this, so please don't be upset with me for bringing it up, as my only goal is to help by offering suggestions or advice on what might be bothering her. It is simply something we as women must all consider, unfortunately, and I only want to help. I'm sorry if I offended anyone in any way, but it was the first thing I thought of when I read your post. :angel:

tsohl
01-05-2007, 02:52 AM
Gav ~ I'm pretty sure Goody won't be upset at you for suggesting this. As I recall, on a post many months ago, I think she may have brought up the idea herself. Thought I'd respond so you wouldn't lie awake all night worrying that you had offended. That won't happen. We're on here looking for answers and I know Goody is turning over every single stone she comes across. I'm sure she'll say the same thing tomorrow when she answers you!! 'night. Tsohl

gav_73
01-05-2007, 03:38 AM
Thank you very much, tsohl. I was actually checking in just to reconsider my post. I guess you never know how people will react to those sorts of things. For some it is simply too painful to even consider or confront. But you, Goody and other parents seem so concerned and desperate for answers I thought it was worth a shot. As I said before, it was the very first thing that popped into my mind when I read her post about Kait's behavior. I certainly hope that's not the case. But if it is, at least they can confront it and start the healing process, will know where to start. You just never know what could be going on, because kids rarely talk about such things and you sometimes have to dig it out of them.

Anyway, again, thank you for your reassurances. Nighty night!

:wave:

jules3
01-05-2007, 08:48 AM
Ts, im pretty sure hes not on drugs..i can tell when he is..and we drug test him last week..he has a wild look about him when hes acting crazy..it looks like somebody on drugs..but like i said im pretty sure hes not. he has gone for days without sleep..i will call doc this morning..hopefully he will listen to me!

langlee
01-05-2007, 06:42 PM
Dear Gav,

I, too, want to thank you for sharing your story. You are an inspiration to all of us who are trying to help our children navigate through the challenges of being bipolar.

My 16 year old son sounds alot like you described yourself when you were younger and it is heartbreaking to hear of all you went through. There are so many stories of people who have gone on to live wonderful lives with bipolar, but often there is is much travail along the way. I keep telling my son that's what we want to avoid for him. One of the stories of hope that I like alot is a book called "Mind Races" where the author talks about being a bipolar teen. Although he is successful now, and the book is eloquently written, he talks of 6 inpatient hospitalizations. I would love to prevent that. (He has been in an Intensive Outpatient Program and in-patient for 1 week just recently).

We have been through alot with him, too, in a relatively short time - substance abuse, severe self-injury, aggression (VERY unlike him), and many other dangerous, self-medicating behaviors. He had two major events that were catalysts for severe episodes: my mother (who he was extremly close with) died unexpectedly in March and my sister was killed in an accident this past Thanksgiving weekend. My mother's death began a firestorm of self-medicating, abusive behavior and my sister's death brought on a psychotic episode that landed him in the hospital. (No parent should have to watch their teenage son trying to stuff a plastic bag down his throat!)

The good news, for today, is that he finally thinks the combination of meds are beginning to work and he has been much more himself for a few weeks now. He is starting to re-engage with his life and I am thrilled to see it, although I know I have to temper my enthusiasm because tomorrow may be a very different day. For today, I am thankful to see his smile, his laugh, his hope for the future.

I want to thank you for your story of hope and strength and perseverance. In this very tumultous journey we are on, you have been a bright light on a very dark path. Please continue to share with us.

With gratitude,

Hope

jules3
01-05-2007, 07:24 PM
Hope, im happy you are getting to see him smile..please tell me again what medications is he taking? we had a horrible week here with my son..he was awake for days..hyper,crazy like..today hes calm,its like after he causes such turmoil in our home. he drains us emotionally, shows no consideration and blames everything on us..i could go on and on. He gets drained and calms down..tomorrow we are going back to original doc..i have to be brutally honest with him, because my son does not tell him about his behaviour or whats going thru his head..he definitly need a mood stabilizer ,i know im not a doctor,but his actions all point towards bi-polar..hes got most of the symptons. ..he doesnt have the reckless spending, because he doesnt have the financial ability. he does self medicate,that i know for sure....does your son show emotion or remorse for anything he has done? does he blame his behaviour on others? im just curious...my son needs a proper diagnosis and proper medication..im just not sure of anything anymore.

goody2shuz
01-05-2007, 07:57 PM
Gav ~ I had a reply all ready to go and lost the entire thing, of course it took me a while to put it together and hopefully this will cover most of what I lost.

FIRST...please do not ever feel that I am offended by anything you or anybody may say around here:nono: I am the type of person who believes in telling it like it is and if anybody ever offended me or I may have misunderstood anything they may have written I will let you know!! But I am here so that those who have been there may help me through and even those who haven't just sending comforting words and prayers really does help. I really try to respond right away, but sometimes life seems to swoop me up and I am unable to, so if I do not respond it doesn't mean that I am upset....most likely I am just too busy to do so.

I am bogged with things to do so I just wanted to get this out so that Gav doesn't worry about my being offended....it's nice that others were able to step in and reassure you of that.

Jules ~ I have a call into somebody who is very proactive with NAMI on Long Island and hopefully we will come up with a pdoc for you....she has a son who is 25 with Bipolar so I am hoping that she will come through with some names for me. Hang in there....okay??

Tsohl ~ Thanks again for your support and for being there...

Hope ~ Glad to hear that Zac is showing some signs of the meds working....I hope that continues.

Pippin...where are you??? We need an update.

And all you other wonderful boarders thanks for all your support.

I will further respond to Gav's concerns when time allows....right now I have a hungry brood to feed starting with the dog!!:)

((((HUGS)))) until I am able to post again ~ Goody:angel: :wave:

goody2shuz
01-05-2007, 10:20 PM
I have a little time and hope to get through this post....on top of everything else I am under the weather and I am really tired and dragging through this day. But I didn't have a choice...I had promised Kait some time and Erin had her appointment with the pdoc today. It was close to my doctor so I made an appointment for myself and I was out from 11am until 5pm and am exhausted.

Anyway....I really appreciate your input, Gav, but I am fairly certain that Kait's problems and behavior have little to do with any sexual abuse or molestation she may have experienced. You will be surprised to see that Kait is failry open with me as is Erin.

When she was around 14 and all of her friends were interested in boys a good friend of hers met a boy from another school who had 3 other friends and they started to hang out with them quite frequently. Kait asked to go hang out after school at this one girls house with these boys and I wasn't comfortable because I knew that the girl's mother worked and there would be no parental supervision. I encouraged Kait to have them come by us but she wasn't interested....some of the other mom's had no problem with this but I didn't like the idea of them being with 4 boys without supervision. It was something Kait and I disagreed about, I allowed her to go in the evenings but not when there were no adults around. Overtime the girls dated the guys and when they broke up with them the guys would date one of the other girls. These boys came from a different school district that was known to have more trouble and was known also to be the rival school of Kait's school. Eventually Kait showed interest in one of the boys and asked to go to the movies on a group date. It was exciting to see her interested in a boy and we okayed it. She went and when she came home I asked her how it went and kiddingly asked if she had gotten her first kiss. She was quiet and shared with me that she had gotten a kiss and the guy also went to put his hand down her pants as well. I tried not to act too shocked and asked her how she felt about that and how she had responded. She went on to tell me how she had slapped his hand away and told him to stop. I told her how proud I was of her and how "ballsy" it was for him to do such a thing in a public place like that. She agreed.

Over the course of a few days when the subject came up I was able to share with Kait how she shouldn't feel ashamed about what had happened and told her that I was sorry that her first date went so badly. I then shared with her how something very similar had happened to me at her age. There was a boy who I really liked and was sort of out of my league. He was the brother in law of the lady I worked as a mother's helper for. He was known as the out of town guy who came every summer to visit. The girls in the nieghborhood looked forward to his arrival and he was HOT, as my girls would say.

Anyway....I got to see much more of him because of my job and when I was about 14 he began to flirt with me and I was on cloud nine. My brother was a wrestler and so was he and we often talked about that together. One night he challenged me to a wrestling match....my brother had taught me alot of moves and I thought it would be a great way to show off some of them. We did a few matches and we were laughing. Then without any notice during one of the matches I found his hand down my pants with him pinning me to the ground and kissing me. It happened so fast and without barely any notice and I managed to quickly make it out from under him and went to check on the baby who was sleeping. He left (we were in an apartment in the restaurant that his brother and wife owned). Within 10 minutes he returned with another guy (who was the older brother of one of my brother's friends) who worked in the restaurant. He said hello and within seconds he had pushed me into the corner of the room forcing his hand up my shirt and was french kissing me. I was mad and knew that the out of town boy had arranged for this to happen. I pushed him away and told them to get out or I would tell my employer and his wife what had happened. They left quickly and I never told a soul about the incident. I carried around with me for many years what I know now to be guilt and shame thinking that somehow I may have prevented it all from happening.....that because I liked this guy and had flirted with him perhaps I had brought it on. As years went on I realized that it wasn't my fault at all. I finally talked about it with some friends when I was in my twenties and found out that they too had experienced similar violations.

I shared this story with both Kait and Erin telling them that it wasn't okay for a boy to do that and that the only thing I regret is not having told the out of towner boy how he had violated me and demanded an apology. For years he returned and I had to relive in my mind what he had done to me. Kait eventually thought that she could go out with this boy, the one who had his hand down her pants, telling me that he had apologized saying that the girls that he had dated liked it when he did that and I told her that it sounded like he had been around the block a few times and asked her how she felt about him. She claimed that he made a mistake and deserved a second chance. I told her that as much as I really wanted to be the out of towners girlfriend, once he had done what he had done to me I no longer found him to be appealing and lost all interest in him....in fact I couldn't get far enough away from him!! Eventually Kait moved on and had nothing more to do with the boy....she told me months later that she had heard that he was suspended from school and kicked off the football team for sexually abusing a girl at school.

Since then Kait has had more boys as friends....at 16 she went out with a boy who was very nice and treated her like a queen. She took advantage of his niceness and accepted expensive gifts and gestures. He treated her and her friends to the carnival in town spending his entire week's pay. He adored her and treated her so well. She met him over the summer when we used our present home as just a summerhome and when she returned to our other home she realized that the long distance factor just wasn't going to work out. Knowing this, she bided her time so that she would be able to get the custom nameplate he planned on giving her for her birthday. Shortly after she stopped IMing with him, didn't accept his calls and then eventually broke up with him by IM on the computer. Hubby and I commented on her "using" this boy and how if girls did this overtime eventually all the "nice guys" would be gone, that she had to learn that guys did have feelings too and to be respectful towards them.

About a year ago Kait went to say goodbye to the boy who treated her so well who graduated early and was off to college. They had remained friends and still are to this day. After I had brought her to say goodbye to him, while we were driving home she asked me if it was possible for two people to get together after many years and have a second chance. I told her that anything was possible and how I believed that if things were meant to be then two people would find each other once again. She told me that she realized what a good guy this guy was and had apologized for hurting him and that she intended to email and IM with him while he was away at college. And she did and still does.

Kait to this day admits that guys take too much energy.....that she doesn't like having to be at their beck and call and she really gets turned off when they have to talk to her or have to spend time with her when she would rather be doing other things with her friends. Over this break she shared with me how she likes this one guy but he doesn't understand that she wants to be free to do things with her friends and not have to be with only him. The way I see it and what Kait has admitted is that she is too self centered, self absorbed and selfish to have a boyfriend. In a way I am relieved but in another way it does concern me that she is unable to get really close to anybody in particular. She seems to always have to be busy with something and if she isn't she announces that she is bored or goes to sleep. That is something that I notice in both of my girls. Does that mean anything???

Okay...so that should bring us up to speed. What are your thoughts with this information??? My instincts tell me that it isn't so much anything to do with molestation but more with letting people in....it's almost like she is afraid somebody will see and discover that she is not really happy.

We talked today and I shared with her what you wanted me to Gav, about how you could be her or anyone and others never really know that you are Bipolar or have had problems even when you were in the midst of them. I also talked alot about my concerns of her putting herself at such risk knowing that she has a genetic predisposition to addictions since we have it on both sides of our family....that the other kids at college didn't have as much to risk as she did. I think she may have heard me, I told her that I loved her and it may sound as if I was a broken record but that a lion will go to all extremes to protect it's young and that is what I felt I needed to do for her. I told her I would drop it and we enjoyed the rest of our day together.

Erin and I went to the pdoc and he increased her Lamictal to 150mgs. He congratulated Erin for all she had endured with her 10 week hospitalization over the summer and how far she had come since he last saw her. He hopes that with the increase with the Lamictal that we will see some improvement with her down moods.

That's our update.....I am going to bed early tonight....seems that I have a sinus infection and that is wiping me out.

Goodnight girls:wave:

Love ~ Goody:angel: :wave:

gav_73
01-06-2007, 12:03 AM
Gosh, Goody. You sound like such a wonderful mom. You really do. I guess I always look at things from the extreme, because that is just how I view things. I tend to over-analyze most of the time, both myself and others.

It sounds to me that Kait is a tender-hearted girl that is maybe used to being spoiled and coddled, loved and used to gettting her way. How far apart in age are her and Erin? I know that I was VERY jealous of any extra attention that my brother got when I was growing up. Do you think maybe she's acting out over all the attention Erin's been getting because of her disorder? Like maybe she's starting to do things to get attention from her parents, negative attention, because she is seeing that Erin's "negative" behavior is demanding so much of your attention away from her? I mean, it doesn't sound like that could be what's going on at first glance, because it seems you two are very close, and that you are really going out of your way to spend quality time with her alone. But, it's always a possibility, and maybe she just doesn't realize the reasoning behind her own behavior. And because Kait is so intelligent and independent, do you think that maybe now that she's on her own she's just trying to make the transition from the "daughter" role into the "adult" role in her own, defiant way? I know that a lot of "sheltered" children are often susceptible to peer pressure when on their own because they are attracted to a world that they perceive to be "mysterious," testing the waters to find their own independence.

I know that you are a worried mom, you love your children and want to help them in any way you can. But Kait seems like a good girl, just a wee bit manipulative. But that is pretty typical in intelligent girls, especially if they are attractive. I'm willing to bet she's a very pretty girl. I don't think she even realizes she's doing it, and when she does, you are sure to point it out to her, which is what a responsible parent does. However, she may not see herself as that way, and may resent the "lecture," like it is a criticism of her intellect, of her abilities to make her own decisions as a young woman. Most girls are very insecure at that age, and any constructive criticism can seem like the end of the world, can be twisted into the most irrational and hurtful rejection by the criticiser. But I sincerely believe that her age and circumstances explain her acting out more than anything else. After all, this is the first time in her life that she hasn't had mom or dad guiding her, holding her hand and protecting her from the evils of the world. Now that she's out making her own decisions, she's probably very proud of herself, and when you questions her judgment, she probably wants to explode, even though you have every right to, and you love her.

Living fast, once you're into it, is very attractive to a young girl who's been sheltered, especially if they have a "leader" mentality and perceive themselves to be a leader of their friends. They think they can handle more than most. Most people think that the "followers" are the ones that are usually more susceptible to peer pressure, and that's probably true, but they are also easier to control, in my opinion, by the parents when they intervene. After all, the followers want to be told what to do. The "leaders" on the other hand, are the ones who typically instigate bad behavior, and are much less likely to listen when parents intervene. If they didn't want to do it for whatever reason, they wouldn't, they are the instigator, the manipulator of the situation they are in, and can get out of it when they want to, or at least, think they can. I was one of those. So, because I was the instigator, I felt like I had more control over the situation than the others and could handle it. And I was very opinionated toward anyone who challenged me, especially an authority figure.

But all in all, from what I've read so far, it sounds to me like Kait is a very smart, caring, attractive girl who's grown up used to having her way and thrives on attention. Since Erin's diagnosis and troubles have diverted the family's attention away from her, she is seeking it elsewhere. Because she has learned to manipulate people to get her way, she depends on what she knows to find power in her life again, and becuase she's insecure about losing that attention, she is finding it within a group of people she feels will most certainly give it to her, those she's not afraid of rejecting her, because she's the leader. If this is what's going on, she feels less power amongst people who are her real peers, those with whom she will have to compete for a power position within the group. Since she's looking for attention and rebelling at the same time, it becomes a little more clear why she's chosen to make friends with those who are "less" than her, those using drugs and alcohol and doing things she'd only heard or read about. She also knows that her behavior will also get your attention real quick. In addition, that world to a young, intelligent girl trying to find her way in life, can be very, very seductive. I'm just brainstorming here, but maybe, just maybe, doing this will help us figure out what's going on. And that's the point, eh? :)

Hope this helps. I truly believe that you are doing everything right, Goody. You are a very, very caring and attentive mother, and I have no doubt that you hug your children and constantly reassure them that they are loved. I'm sure they know in their hearts that you would go to the end of the world for them. I mean, I barely know you at all, and I can see that from a million miles away. You are doing all you can to help them make the right decisions, and my advice to you is to keep doing what your doing. Love can go a long, long way with kids, even when they on the surface appear not to care or reject it. Just knowing that you will be there to listen to them, to love them and help them when they realize it's time to ask, will make all the difference in the world in my opinion, when they are in trouble. Just as you say you think my words sunk in a little with her, I think your words are sinking much deeper than mine. You are doing everything right, Goody. I wish I had a mom like you! :) The women in my family were harder emotionally, or too consumed in their own worlds to care what was going on with us. From my great-grandmother on down, they were academics first, wives second, and mother's third. My mom grew up with a nanny and didn't know a whole lot about mothering herself. Neither did I. Your girls know what they have in you, they really do. And when they really need it, they'll know just where to go!

I hope you get better soon. I just got over a bad sinus infection myself that turned to bronchitis just recently. It's the real pits.

goody2shuz
01-06-2007, 04:27 PM
Gav ~ WOW, thanks for your wonderful compliments......I am just doing the best that I can but must admit this infection is taking it's toll on me.

Your words really meant alot to me and give me what I need to forge ahead....it sure isn't easy.

I can see what you are saying regarding Kait and her feeling slighted with Erin's need of my attention, however, all of this started even before Erin's problems came to a head. You are right.....Kait has pretty much gotten what she has wanted in life but hubby and I were very careful to make sure that she realized that things are just not handed over, that it takes work and sacrifice to get things that you want. When her friend's parents were buying those Tomagottchis or Giga pets our kids had to save their money that they earned in allowance and we would go and get them. Part of the reason that Kait got a job at 14 was to save for some of the things that she wanted that went above and beyond her needs. I think that alot of Kait's anger stems from having to work for the things that she has rather than them just being handed over to her like her friend's parents have done. I am not disregarding the fact of what you say about Kait's behavior being a product of her wanting to gain some control in her life and going about it in a negative way, however, I am still quite concerned about how much longer she will be doing this and the consequences it will impose on her life. I really had to dig for the sweetness and good parts of Kait....lately it just seems that she is driven by the negative things in life. And that does worry me. This has been going on for many years....I didn't KNOW to worry about it until Erin had been diagnosed....we had many volatile years with Kait and we thought it was just a rebellious teen but now we know better. Our household was a battle ground and extremely charged up by Kait's anger and frustrations since she was 14. If things did not go her way our lives were a living hell....everything was our fault, we were rotten parents and she hated living with us. Just yesterday she said that everything is alright until she comes home....that she hates being home. She doesn't want to have any rules, curfews, restrictions of any sort...she just wants to come and go as she pleases and us to foot the bill. Some of the things that she says are so hurtful....she has told her friends how awful we are and gives one side of the story in which we are to balame and she is innocent....like my parents are refusing to pay for my college anymore unless I get a B average....she fails to tell them that we are worried about her choices and how she is spending her time partying and getting into trouble rather than concentrating on her grades.


Anyway....I know that I am doing my best and that hopefully, as you say my efforts will not go unnoticed and Kait will one day see that I am not the mom who is set out to ruin her life.

Thanks, Gav, for your kind words....they really mean alot to me.

Love ~ Goody:angel: :wave:

gav_73
01-06-2007, 06:14 PM
Goody, I totally agree with your method of parenting. I believe that there is nothing more awful than handing your children everything they want materially when they want it, rewarding them for absolutely nothing. It does not build character, it teaches them nothing about life whatsoever. I think it actually does more damage than anything. Most of those children grow up into corrupt and unethical adults without any sense of community, work ethic, or anything to offer the world in my opinion. It's one thing to spoil with love (which was what I meant in my letter about Kait), and another to spoil for other reasons, like to just give your kids what they want so you don't have to deal with them, which is what a lot of parents do, unfortunately. I completely agree with the way you're raising your kids. If I didn't, I wouldn't say anything at all.

She very well could be dealing with some behavioral and'or psychiatric issues herself, such as depression or bipolar. Sometimes it doesn't creep up until you're an adult, and there appears to be some sort of genetic predisposition to develop these disorders from what I've read. And then sometimes, it just happens to others without any connection to the family at all. I believe that my mom may suffer from bipolar disorder, but remains undiagnosed. However, she's suffered from panic attacks and depression for as long as I can remember. She is also the only other artist in the family, like me. These sorts of things are VERY hush, hush in our family. Therefore, I don't know the full story of any mental problems in my family. But I think my uncle suffers from depression, I've heard that my great aunt used to be an alcoholic (and I was SHOCKED to hear that, as you never would have guessed), and we just found out recently that my great-grandmother also suffered from panic attacks. It's all on my mom's side, and I am like the spitting image of my mother, I am like her clone. We look alike, have the same personality, and we even work in the same profession, leaving behind the art and focusing on math in our careers. I even think my brother has had some issues in college, but has since moved past them.

Who knows, but it wouldn't be unheard of for both of your daughters to have some sort of mental issues. It is very common, and I hope the stigma will one day subside because it is really nothing to be ashamed of, and absolutely nothing to be ignored, as you know. Do you know if mental illness run on your or your husband's side of the family? Were either of your children premature - I've read that premature children are more prone to mental disturbances later on in life than full term babies because their brains may have not been fully developed, or they are at greater risk of injury, which may only show as emotional problems. I wonder if your daughter has some hormonal issues? I think that hormones greatly contributed to my behavioral problems after puberty. I still have severe PMS and I am like a different person. I have programmed myself not to react or make decisions during that time, because they are always bad, and would contribute to my level of depression if I acted upon my feelings during that time. It's so complicated, it could be any number of things.

It seems like she's very open with you, even when you're together. You sound so sweet and caring. Sometimes it's easier for kids to confront parents who they know will not abandon them. When a kid has a very tenuous relationship with their parents, like I did, they are too afraid to say anything that might fracture it since it is already so fragile. It's still like that between me and my family, and if they hurt my feelings, I never say a word. But when I was younger, I would just run away and not deal with them at all. I simply could not deal with the rejection. But it doesn't seem like Kait feels that way at all. It appears that she feels quite comfortable saying whatever she's feeling, no matter how mean, and knows that you will not abandon her. As much as it makes your life a living hell, I do think on deeper levels that is a good sign.

As far as not paying for college unless she maintains a certain grade point average, I totally agree with your decision making. It never seems fair, but I was raised in the same type of environment, and so was my mom, and so was her mom and dad. My grandparents were very rich, lived in a huge mansion with limos and airplanes, and my mom's first car had a hole in the floor of it. LOL My mom still tells that story. But I can also say that all the children raised that way went on to be very, very responsible adults, if not responsible parents. My mom works for NASA, both my uncles speak several languages and have several advanced degrees, and my aunt heads the speech and audiology department at a prestigious hospital. Their parents never gave them a dime until they were accomplished adults. They, of course, hated it, we all did, but I am grateful for it now. It builds character and decision making skills, it teaches you not to take life for granted, and you and your husband are doing a wonderful job instilling that in your kids, as much as they hate you for it now.

As much trouble as Kait is giving you, she seems like a bright and independent girl who is not afraid of standing up for herself, and that is good considering her lifestyle at the moment. If she is surrounding herself with friends who she feels powerful over, she is their leader, they respect her, and she will be able to stand up to them when she needs to, to stand up for herself. I was wondering if you've ever seen that show on A&E called "Intervention." It is very disturbing. It's about drug addicts and how their families intervene to get them help, to offer ultimatums. It is very graphic and upsetting, but it is a real eye opener on how drugs and alcohol, or addictions in general, can ruin a person's life. It's pretty disgusting. I've always told myself that when my daughter's old enough, I want her to watch it with me. It's enough to scare anybody straight.

I don't know if your daughter is at a point where she would watch such as show without feeling intruded upon. She would probably end up laughing it off. But it is one way, if you can get her to watch it, to get through to her. Maybe if she laughs it off in front of you, she might watch the show on her own one day. If you want something to sink in about addictions and how it could ruin someone's life, this would be the show to watch. It's enough to make you sick! And scared!

langlee
01-06-2007, 06:25 PM
Dear dear, Jules,

I can hear the pain in your voice, but I see on the other thread that your son is finally recognizing that he doesn't want to feel this way. None of them do. It's hard for us as parents to be as empathetic as we'd like when they are so out of control, but we have to keep remembering who our children are at their core and work to restore that for them.

Zac is currently on 200 mg. of Lamictal, 15 mg. of Abilify, 100 mg. of Seroquel for sleep and Seroquel as needed for anxiety. He is not currently on an anti-depressant because his main problems seem to be irritability and manic issues, not depression right now. He was on Celexa for a short time, but it seemed to make things worse. I know your son said he doesn't want to try Lamictal, but he should keep an open mind. Zac tried Lithium and Trileptal and neither were as good as the Lamictal. For Zac to say he feels like the meds are finally working is a godsend to me! I think the hardest thing for them is to take the meds and not feel better. Then they think nothing wil ever work, so why bother?

We've gone through some awful times here, Jules, so I know how wearing it can be. We've had the police here twice and once, in a fit of anger, my son took a mosaic garden stone he made for my husband when he was younger and started bashing it into the side of my husband's car. He has also been incredibly verbally abusive to me, saying things that are hard to forget.

BUT, I know it's not him, it's the disorder unregulated. His natural personality, while intense, is joyful, compassionate, and caring and that is the person I want him to be. Keep your hopes up, Jules. Eventually you'll get to a better place and, in the meantime, just keep reassuring your son that you will not give up on him and together you WILL find the right answers for him.

How is your husband holding up? On one of the threads, I responded to the stress you two were having, but I don't remember which thread it was and not sure if you ever saw it. This is so hard on everyone!

Goody, I am so sorry I haven't been more help with Kait. Because Zac is younger, I don't have any experience with someone her age and I'm baffled as to what to tell you. It sounds, like always, that you are being a wonderful mother and that she knows that, in her heart of hearts. I hope that Erin has the same good success with the increased dose of Lamictal that Zac is having.

Today Zac is at a tournament with the high school and he sounds good! It is so exciting to hear his voice and know that he is handling the stress, but participating and feeling like a teenager again. I pray it continues.

Pippin - I know you posted a few times, but we seem to have lost you again! Please write when you can.

Tsohl, as always, I am grateful for your wisdom and your insight.

Gav, welcome to this thread! You've been such a ray of light!

Hang in there everybody! Love to all!

Hope

gav_73
01-06-2007, 06:47 PM
Thanks, Hope! :D

jules3
01-06-2007, 09:03 PM
well we had a visit all 3 of us..my son was calm and crying a little in the office..he was not angry and obnoxious like hes been in the past..the doctor told him he is bipolar 1 and had a manic episode..my son hates the word bipolar and refuses to accept it..hes just so stubborn..but the doc did tell me that is was common at first to have a problem being told you are bipolar. anyway, he put him on lithobid, abilify, klononpin and ambien cr to sleep...lots of meds huh? he is on his laptop right now looking up these medications..please pray that he takes them or this all would be pointless...i was a little put off ,the doc asked us if we can put him up in his own apartment...Now, come on,we are a middle class family,living on long island ny..paying taxes that are insane..and paying our bills..i told the doc we cant afford that..Was i wrong? jeez, we have 2 other kids..one going to college in the fall.and we are paying his tuition bills...the doc said lithobid works right away and abilify will take a short time..any ideas on that?

tsohl
01-06-2007, 10:55 PM
Hi all,

Good to hear a little news from you all.
~Jules~ I am a little confused with your situation. If I'm recalling, the pdoc that prescribed all the meds today is not the same one as your son saw by himself....is that correct? How is this going to work? Also why did the pdoc think your son should have his own apartment? Regarding the meds, that's great that your son is researching the various meds. He needs to take ownership of his diagnosis and being willing to learn about the meds should be one step in that direction. Remind him that each person has a unique chemical makeup and will respond in a unique way to each med. Also sometimes you need to be on something for awhile before it "works." I think some people give up too quickly. Also just because he might start out on a number of meds, that doesn't mean he will be on that number forever. For example, my son is currently on lithium, lamictal and effexor, down from a total of 5, and his pdoc says if his progress continues as rapidly as it has, within a year he will just need one, which he'll probably need for the rest of his life. I think part of this progress is that he gave up all alcohol and anything else he might have tried in the past. His worst habit now is drinking too much Mountain Dew!

Hope~ It sounds like you finally have had a couple good days in a row. I am delighted that you see some progress with Zac's meds. May I just remind you to remember that progress may be measured in baby steps? It is easy to get impatient when you finally see something good coming from the meds and you may want to push ahead with what may be more than Zac can handle...so just be aware of this and go easy!!

And Goody, I really don't know what to think about Kait. My daughter has assured me that it seems to be really difficult for parents to understand that when they send their kids away to college, they have absolutely NO control over them! Some may think they do, but, in reality, they don't. The kids that feel that their parents have had a tight grip on them seem to be the ones that do the most acting out --drinking and partying to excess. Kait is very headstrong and it doesn't sound to me like there is very much you can do to change her behavior. I think you need to go ahead with the plan you feel comfortable with, make sure Kait understands what you and hubby have agreed upon, and then let go and let the chips fall where they will. I just have the feeling that Kait has some growing up to do and that pretty soon drinking and partying will lose its allure~maybe some of her playmates will flunk out or she will meet some other kids who have other priorities. On the other hand, if she does have bipolar tendencies and keeps on drinking, sooner or later she will have an episode and then you'll know more clearly what you're dealing with. When does she go back to school? Is Erin back in school and what is happening with the play?

On a slightly different note, is your brother's specialist from Vanderbilt? I am full of questions, aren't I? I am slightly familiar with his condition. I'd just never heard of it being so serious. I am praying for him. He is so young.

Hope everyone is having a calm weekend.
best,
Tsohl

jules3
01-06-2007, 11:55 PM
Ts, he was seeing a pdoc and then decided to try another..he did see him 2 times on his own..he told my son he has an anxiety disorder..not bipolar..the problem is that when he saw that doc ,he does not tell him everything..he leaves out alot ..anyway that doc told him to go off his seroquel,which he did..it was causing weight gain which upset him a great deal..this past week he was manic. staying up all night long for days,insisted on driving our car when he out of control..my husband said he would give him a ride..he proceeded to jump out of the car as it was moving..he broke things in our home.he ran up and down our block screaming and cursing..etc... he showed no remorse ,consideration,or compassion for any of us..he is traumatizing my younger daughter..she is scared of him when he gets like that..that is why the doc suggested he get his own apartment..because he is causing so much turmoil in our home. after all he has done, he kinda crashes, he gets drained emotionally..nothing compared to how we feel. then he tells us he cant help the way he acts..its sad, but he is not our only child.my other 2 are so affected by all this..so, if he wants to live here with us,he needs to be on medication to help him..the biggest problem we have is that he will not admit to being bipolar,thinks it has a stigma attached to it..he was told by his doc not to dwell on the word. but, he is in denial..hopefully that will pass. he is drinking alot of ginger ale..funny you should say that about the mountain dew..

goody2shuz
01-06-2007, 11:57 PM
Hi, All:wave: Wow....the more I think about it the more active this thread seems to get around the full moon:eek: Am I the only one who has noticed that???

Jules ~ I know how frustrating this all is, but I must agree with Tsohl;) Since I have come on this board she has been my voice of reason especially when I thought that all of this was magically going to be taken care of. Your son is unstable and so l ong as he is he will be unreasonable, irrational, argumentative and distort all that he hears and sees to conform to whatever he needs to in order to fulfill his needs at any given moment. He will not accept that he is bipolar until the meds start to work and he can be reasoned with and is feeling better. Until that time you are best just offering him hope that you will find the right meds.....he will fight you all the way but eventually you will get there.

Tsohl ~ Once again, what you say makes alot of sense. I just overheard Kait on the phone with one of her college friends saying that she had a rotten break because she was grounded the entire week (this is a quite an exaggeration since she only has been home the past 2 days;) ) She heads back tomorrow and is seeking a ride back....if she doesn't get one then she only has to take the ferry and a bus will get her 2 blocks from her dorm. I know that it is quite normal to want to get back to college and the independece that she wants and craves. And I endorse that....but I think that we have made it quite clear that she had her part to do. Kait is a smart girl but sometimes seems to lack common sense and live her life on the edge. THAT really worries me. Erin told me today that she was worried because Kait is leading a guy on at college who is stalking her and even her suitemate is worried about her. Seems that this is the same guy who is inviting her to go to Atlantic City for his 21st birthday. I reassured Erin that I have given Kait advice as her friends have as well and it is up to her to take it all into account when she makes her decisions and that we have to trust that she will make wise ones. So yes, as you have said yourself, I cannot control what happens with Kait at college and only can encourage her to do her art and take responsibility for her own actions. I know that she will fall and the best thing we can do is allow her to start picking herself back up. I don't know if she is Bipolar, if she is it is definitely to a much lesser degree than what I see in Erin. I think as you and Gav have pointed out, that Kait is immature and has some growing up to do. Perhaps I did shelter her, she sure seems to think so, and is trying to find her way in the world. It's just scary watching her do it by taking so many risks in life.

Gav ~ To answer some of your questions...Kait is 33 months older than Erin. As far as family history my maternal grandmother was an alcoholic and in and out of psychiatric centers for manic depression. My husbands father is a recovering alcoholic and his two brothers have been in and out of jail and rehabs for alcohol and drug abuse. I believe that they may have been Bipolar as well but have never been diagnosed. So our family history is significant on both sides. I appreciate all your positive thoughts and insight....I am hopimg like you, that Kait will grow out of this as she matures. As a mother, with the family history I can't help but have my concerns.

Tsohl....Erin is coming down to the wire with the play. The performance will be the second weekend in February and the rehearsals are increasing as the time draws nearer. She doesn't really talk about it much with me but is eager to make the rehearsals. She has been back to school this week and Kait returns tomorrow.

Wow...yes the specialist who will be consulting with my brother's doctors is at Vanderbilt!! I have been pushing for my brother to apply to Vanderbilt for over a year.....we are hoping that the consultation will be taking place sometime this week. How are you familiar with Autonomic Failure??? Yes, as I said, my brother's is far more serious than usual....the doctors where he is treated as well as some from John Hopkins and Cleveland Clinic all have told him they never have seen a case as bad as his. The doctor at Vanderbilt spoke to my mom at length via the phone feels that he can help him. Our entire family has come up with Vanderbilt as possibly being the miracle that we need....and with our persistence his doctors have agreed to work with the doctors at Vanderbilt to see if they can come up with a plan to at least keep his condition from progressing if not reverse some of what it has done to his quality of life. Yes, he is young and he has 6 kids, the youngest who is not yet 3. So our family is really hoping that Vanderbilt will be what finally helps him to find the right meds that will help him.

I am still dragging with this sinus infection....spent most of the day in bed sleeping. I hope everybody else is doing well and that things continue to improve for our kids.

Erin is on her second day of her increase of Lamictal. I ease her into it and do half of the increased amount over a week and then to the whole amount. So she is taking 132.5mgs this week and then will be up to 150mgs next week. She is enjoying having Kait grounded because it gives them more time together. I know that she misses having her big sister around.

Well...goodnight gals:wave:

Love ~ Goody:angel: :wave:

jules3
01-06-2007, 11:59 PM
ts, sorry. let me clarify a little..he was seeing a doc for almost a year...decided 2 weeks ago that he wanted to see another doc..today we all went back to the 1st doc..who he will stick with..he prescribed lithobid,abilify,klonopin and ambien to sleep.

langlee
01-07-2007, 12:19 AM
Tsohl -I hear you! Baby steps! I know that Zac cannot handle too much at one time. I'm just thankful whenever I see him trying to re-engage with his life.

Jules - It sounds like a whole new regimine of drugs for your son. I'm hoping that this will be a better answer for him.

Goody - I'm praying that the Vanderbilt doctors can help your brother. He is so young and his 6 children and his wife (and you and your family) need him for a long, long time.

Hope

tsohl
01-07-2007, 12:40 AM
Hi Jules,
Ok, I knew you couldn't continue on with two separate pdocs! I think that should be a good drug combo if he can tolerate it. Sometimes it sounds very frightening, like it is so many drugs, but when given in combination, they can usually give a lower dose of each drug...and each works on a separate little part of the brain...so an experienced pdoc who knows how to combine meds can be a real life-saver.

I think you'll see a change in his behavior soon. It's a shame your little one had to witness all this. Hopefully some measure of peace will be restored to your home soon.

I can sympathize with your son's feeling that he doesn't want the stigma of being labeled with a mood disorder or a mental illness. Unfortunately, he is correct that it still is a stigma. My son is very careful about who he let's in on his situation...and it's usually on a "need to know" basis. Most of our family doesn't even know. People just change the way they treat you when they find out.

Be sure your son is drinking lots of fluids, preferably water with all these new meds. It is important to stay well-hydrated. All for now. Tsohl

jules3
01-07-2007, 12:59 AM
Yes i already ddi tell him to drink alot of water? does your son have his lithium levels checked and if so how often? doc told my son to get a blood test in 2 weeks..then3 weeks after that..lithium can be toxic.

tsohl
01-07-2007, 01:29 AM
He did go once a month but now that he's been on the same meds and the same amounts for at least six months, he doesn't go as often. I will ask him how often he now goes, as I don't know. It is important at the beginning to have blood drawn often so you know that you are getting the therapeutic dose. Sometimes there are side effects at the beginning, but they often go away within a couple weeks.

tsohl
01-08-2007, 01:14 PM
Good morning everyone,

Here we go, the beginning of another week. I'm just checking in to say hello.

Goody~ Are you feeling better by today? Hope the sinus infection is clearing. Hope you have more peace in your household now that Kait is back at school. I know you will worry about her, but the ball is really in her court and you need to gather your energy for the other issues you have in your life.

After you mentioned your brother's illness several times, I remembered that I knew what it was and that for awhile, they thought my father might have it. Turns out they never figured out what was causing his problems. And I just know Vanderbilt's reputation -- also know several kids who went to college there, etc. They have a strong research program and I often read articles pertaining to one project or another. Sounds like you have the best consultants lined up to try to help your brother. I will pray for his recovery.

Hope ~ How are things with Zac and with your husband? Are they getting along any better? How are Zac's new meds working for him? What have you decided about his schooling? I think of you often and am hoping that Zac is starting to regain his health.

My son is beginning a GRE review class. He will take the exam in March, assuming he feels he is ready. I am increasingly realizing what a perfectionist he is and how much he expects of himself. So far he isn't willing to think about attending a grad school that is anything but one of the top 10 in the country in his area of study. He does not need to create this kind of stress for himself. He could accomplish most of the same things by attending a slightly less difficult program...but he doesn't see it that way. Hmmmm.

So, cyber hugs to all. Hope you all have a peaceful week.
best,
Tsohl

langlee
01-08-2007, 07:31 PM
Hi All,

Here's an update from Neverneverland. Zac continues to be in reasonable spirits, no meltdowns, no agression, not a lot of irritability. That's a great thing! But, he is also on such a reduced schedule that I don't know if he is ever going to have anything that resembles a real life. He is still on home instruction and is not motivated at all to sink his teeth into anything. He is constantly saying he doesn't feel well, can he change the tutors, maybe he should drop his AP classes, etc. It's exhausting just to keep up with how often he wants to lower the bar for himself.

He is still having an impossible time sleeping, even with the Seroquel, and is eating at odd times. At 2 AM, he is making meals. He often doesn't fall asleep until 3 or 4 and then doesn't get up until after 1 PM.

He did go to a competition with the high school on Saturday and had a good day. Tonight he was supposed to go to band, but he is sleeping instead. I was feeling so encouraged because he was more himself, but I'm realizing he is more himself with absolutely no real sense of responsibility or commitment. It's not like I'm even worrying about the future. I'm more concerned about the present and how to shake him out of this so he can move on. He really lives day to day right now.

Agh! There are no answers sometimes. Just when I'm feeling better about his mood, I'm shocked into the realization that his life is on hold.

Tsohl- good luck to your son with his GREs.

Jules - How is your son doing with the new meds?

Goody - How are you feeling?

Pippin - Come back! You posted once or twice and then you disappeared again!

Gav - Haven't seen you post for a few days, but I know you are out there!

Love,

Hope

jules3
01-08-2007, 07:42 PM
Hope he started lihobid today. same as lithium right? abilify 2 nights ago..stopped the seroquel. it did cause weight gain,that upset him a great deal. He too, is making meals 2am..having a real hard time sleeping..taking klonopin and ambien to sleep..can you imagine? we give him 3 klonopin a day, not the whole bottle..he has alot of anxiety and they help tremendously. Hope, can i ask you an honest question? do you sometimes look at your son and say to yourself hes so crazy, will he ever be normal? Im so not a mean person, i love him so much..why am i thinking these thoughts?

I am having a hard time dealing with this..i know i need some support, im just not ready to talk about this to strangers..i will at my own pace..thats why i come here to talk! it makes me feel like hes not the only one out there with this disorder..but, truthfully, there are not too many people on this board. hopefully, its because most bipolar people are doing ok on meds...you think?..The doc told me if he stays on the meds he will be a new man in 2 weeks. what do you think about that? Regarding zac, please keep in mind that he is only 16 yrs old..thats to his advantage. he will probably be stable and great at 20 likes ts's son. Thanks for asking talk more later!

goody2shuz
01-08-2007, 09:14 PM
Hi, Gals:wave: Thanks for the positive vibes....I am still dragging, have very little energy. I find myself sleeping most of the day and up for an hour at a time and then just back in bed again. I haven't been laid up like this in years....I think that Erin realized this because she has been bringing me liquids and asking if I am feeling better...it is nice to see her concerned about me for once and I must say that these last few weeks I have seen Erin getting more and more towards the young girl that she was before this disorder invaded our lives. When we were away with my family, many who had seen her when she was really bad commented on how good she looks. My cousin's wife who had heard about her diagnosis told my Aunt that if you hadn't told her she wouldn't think anything was wrong with Erin. So I think that we have finally turned that corner (I always get so scared saying that because everytime I have, something else happens to discredit it:rolleyes: ) but I am going to hold onto the hopes that we are doing well and c loser to stabilization.

Erin is more excited about the play and she came home all thrilled and happy telling us that she was chosen by the music director at school to compete in All State NYSMMA at the highest level.:blob_fire This is a vocal solo in which she is graded by a statae representative from the music association. It is quite an honor to be chosen and Erin was quite excited when the music director handed her the application that she needs to submit.

Jules, there IS hope and there was a time when I wondered whether Erin will ever lead a normal life and here I am telling you that things are good. Looking back I don't know how we ever survived but we did. I recall the therapist telling me to look forward...looking back will only hold us all back and have us living in fear. When I first came here I didn't even think we would ever be where we are with Erin, just as Tsohl.;) I wanted my child back and wondered, like you ,if I would ever see her again and here she is......it was a long journey and it's not over yet but things are good, they really are.

Hope ~ I am sorry that Zac is setting his bars so low...Erin seems to be doing that as well. I think that he will become more functional as he becomes more stabilized. Looking back on things, my expectations of Erin have definitely changed.....I don't really care what she decides to do with her life so long as she is feeling good about herself and her life. I think that once I lowered the bar in my mind to focusing on her emotional and mental well being things did improve and once she did feel better she began to start getting back into the swing of life. She still doesn't think school is the most important thing in life and I have come to see that as well. My heart swelled when just the other day she said out of the blue how she thinks that her self esteem is getting better and that she was beginning to like herself again. I had waited so long to hear something like that and that was a sign that things were getting better. I know that you will be seeing the same with Zac once the right meds are in place.

Tsohl ~ I know how you fear that your son will take on too much after coming so far but I think that he should do what he thinks he can do....he can always alter his schedule and take less of a load. Sometimes the distractions can be good for our kids so long as they don't consume them. Perhaps your son knows that staying focused on something is what he needs most....look at Gav, she is doing so well and has taken on quite a load. Funny how we are able to have others here who are on this journey in different places to let us know that there is hope in all of this. When I was at the pdoc Friday I looked at all the people coming in and they for the most part appeared to be perfectly normal. Erin even commented on that on our way home and I told her with the right meds and treatment she will be leading a perfectly normal life. I asked her if she felt better compared to last year and she looked at me and said....."Mom, last year was a nightmare and I don't ever want to go back there again!!" I smiled and told her that I totally agreed!!:D

As far as my brother, he is still in the hospital and they still beleive he is in acute renal failure and are hoping to get him through that. We are still awaiting word from his main doctor regarding the consultation with Vanderbilt...whether he has spoken with them or has an appointment to remains to be seen. Hopefully we will have some more info on that soon.

Thanks for all the positive vibes....you guys are the greatest.

Love ~ Goody:angel: :wave:

tsohl
01-08-2007, 10:34 PM
Jules ~ Just a little correction: my son isn't "great." He too will never be the person we thought he'd be back in high school. As Goody just said in her most recent post, we had to adjust our expectations. And, in reality, at this point we do not know if he'll be able to support himself and hold down a full-time job. We haven't been pushing to find out at this point. We're allowing him to take things slowly and get his feet back under himself. As I said awhile ago, I really feel you go through the same process as when someone dies; there is a sense of loss and you go through a bit of a grieving process. It has been almost two years since the episode which I think of as his "hitting bottom." The six months after that were really hell -- the six months of feeling like I'd been kicked in the stomach--the resolute terror I'd feel whenever the phone would ring when I wasn't expecting a call...that sort of thing. After that there was a bit of an epiphany where he decided he wanted to get well...and it's been up hill ever since. We're babying him a bit now, letting him move at his pace rather than forcing him to get a full time job and support himself...but I am confidant he'll get there in the near future. He's great compared to the way he was 2 years ago!! And yes, two years ago he was so crazy scary I didn't know him. My husband and I were almost in shock when we saw him that day -- his pupils completely dilated, talking, but making no sense, unable to walk normally --this wasn't the son we'd known for 22 years...but, it was. And now he has recovered, regained his sense of humor, and almost all of his life.

So, try not to be scared. This is all new to you and it is VERY scary. But I bet the worst is over and things will get better. As long as your son will be compliant in taking his meds as prescribed, he has a very good chance of regaining his health and his stability. If some of these meds don't work or have too severe side effects, there will be others he can try. And while now is not the time to talk about this, there is some exciting new research being done on new treatments for bipolar that was announced at the NAMI convention last June....I think all our children will benefit from it some day. So there is much hope.

My advice to you at this point is to try not to have expectations. Be open and supportive and resolute in your love. Things will work out. best, Tsohl

jules3
01-08-2007, 11:09 PM
Ts--maybe i should use the stable..because really thats all we want right now for my son.. when i read your post, i totally feel the same. I will have to lower my expectations a lttle..my husband and i are coming to realize that. Is there any family history? The doc told me its biological..other than my great-uncle having mental issues..we cant figure out how this happened? Does every bipolar person have to inherit this from a family memember? Does there have to be a reason for episodes to occur? does there have to be a trigger? I know you are not a doc, but you are always hitting the nail on the head..

jules3
01-08-2007, 11:14 PM
Jeez sorry ts..i meant maybe i should use the word stable

tsohl
01-09-2007, 03:04 AM
I'll try to answer a couple of your questions. They say to take a look at your family and there will be someone, parents, grandparents, siblings that are bipolar OR at least struggling with depression, or alcohol or drug abuse. If not immediate family, it can be an uncle or cousin, etc. There is almost always someone--there is a genetic link to bipolar disorder. But instead of there just being one gene that "carries" the disorder, there are probably many genes that have the possibility to cause the disorder when subjected to outside or environmental influences--like drug abuse, stress, antidepressants, etc. It's like the genes have the potential to become destructive when subjected to certain things that put the process into motion. Apparently the brain is literally changed by bipolar disorder -- its shape, chemistry and the way it handles signals...just like in other diseases of the brain. But rather than affect memory or the way you move, it affects emotion and thought. I'll write more tomorrow. My computer is acting weird and I don't want to lose this!! Hope some of this makes sense. best, Tsohl

jules3
01-09-2007, 09:17 AM
Wow, you were up late last night..Yes, you answered some questions for me..I keep learning from you..I do read alot about bipolar online and books..But i understand it more coming from you. My mom grandfather and my sister suffer occasionally from depression..i had postpartum depression when my daughter was born 18 yrs ago and take antidepressants on and off over the years. nobody with bipolar. do you remember your son saying anything to you when he started lithium about side effects? my son said he was feeling kinda drugged..but its all brand new for him. needs time and some sleep.

tsohl
01-09-2007, 11:30 AM
As I understand it, the same genes that allow you to have depression, can also cause bipolar with the right stressors...it is all a matter of biochemistry of the brain, the way the signals pass down the neurons, etc....in the same way that things go haywire in the brain of someone with M.S. or even Parkinson's, this is what has happened with the brains of our kids.

Now to the lithium: My son was on lithium almost two years before I knew about it!! From what he tells me, there is a period of adjustment. Give it a couple weeks and he should feel better. How soon after beginning lithium does your son have the first bloodwork done? That will measure whether this dose is too much or too little. Encourage him to hang in there. If he can take lithium, it really is the old workhorse of the meds -- it is less expensive than the newer drugs and it works really well in those that can take it. In our son's case, he needed something in addition to lithium. I'd say the lithium worked to about 85%. When the additional drugs were added, he got to where he is today, which I consider about 99%.

jules3
01-09-2007, 12:14 PM
He will need a bloodtest in 2 weeks . pharmacist told me lithium is on the market over 50 yrs and works..and is cheap..but my son is on lithobid, which is a newer lithium because its time released . therefore its not so cheap..its a 55$ co-pay. about 100$ with no insurance. He is saying he doesnt like the abilify..causing headaches..

langlee
01-09-2007, 01:27 PM
Hi All,

Jules - in answer to your question - Yes, I look at Zac many times and ask myself the same thing you do. This is so much harder than I anticipated it would be.

Today I need all of your perspectives becasue I am truly beginning to feel there is no hope and I can't live like that. The person Zac is when he is out of control is so foreign to me that I grasp on to any glimmer of his old self that I can find. I know it impacts my parenting because I don't want to say or do anything that might ruffle him and cause his outbursts.

Last night my husband decided to bring up some issues. As I said in yesterday's post, we have been living in Neverneverland where there is absolutely no pressure. We are concerned that Zac is up all night, sleeping all day, and although on home instruction, shows no interest is school. One of the issues we've had with Zac is that when he is up at night, he is on the computer talking to other night-owl friends, and we have said very clearly that is not acceptable, especially during the week. For awhile we were able to have him give us his laptop at 12 AM, but he has slipped. When my husband brought up that, now that the holidays are over and he should back in a school routine so the computer has to been handed over at 12 AM, Zac went ballistic! He would not even discuss it!

What ensued was lots of verbal abuse and Zac ended up kicking a hole in my living room wall. My husband has had it! He is ready to call a Tough Love place and have Zac taken away in the middle of the night. I am worn out. I feel like I have spent so much time and energy trying to help Zac get his life, any life, back and he is not really working with us.

Am I wrong to think he should have some semblance of a school day? Should we just give in, forget this year, and let him do whatever he wants, with absolutely no stress, as long as he stays out of trouble? But, that's a problem, too, because he gets in trouble when he's bored. He confessed last night that the night his heart was racing, he had relapsed. Why? Because he was bored. Here I was telling everyone that I really didn't think it was drug-related and it was!

One of my other concerns is that he appears to be giving up. He says he doesn't care anymore about anything, that this has gone on too long, that he doesn't care what happens to him anymore. I told him that I fear he is going to die young and he says he probably will.

Is it meds at this point or just behavioral or what? We have an appointment today with a therapist who is experienced at dual diagnosis and runs a local rehab group. I am hoping to get some insight from him.

Once again, things are a mess. Zac and my husband are in an awful place, my husband wants to send him away, Zac doesn't care if he lives or dies, and I am feeliing hopeless. I HATE THIS!

Any thoughts?

Love,

Hope

PS Goody, in my own misery, I didn't want to lose sight of how happy I am for you and Erin. She sounds like she is doing well and you both deserve it! Congrats on the vocal selection!

tsohl
01-09-2007, 01:45 PM
Hi Hope,
Hang in there, Hope. Personally I am a chicken when it comes to tough love. I have seen too many cases where a child has fled. Personally I don't see how you can help your child, if you don't even know where they are. Tough love may work well in a case where a kid has an attitude problem, but in your son's case, it is biochemical. When his neurons are messed up by the bipolar, the thought circuits are disrupted or rewired, and as a result, his thoughts and behavior are changed. He is not intentionally behaving in a particular way, and further, to him, what he is saying or doing is rational and logical.

No, you can't let a child destroy your home. But there has to be some way to work this out. Your son and husband are like oil and water and they each make each other worse.

I am very happy you have an appt today. Is this someone new to you? IF so, be sure to determine what his experience with bipolar is. Too often in dual diagnosis, their main expertise is in the addiction and recovery and they lump the other diagnoses all together...which is my nice way of saying they don't really understand bipolar....

I'm going to send this now in case you're still on the board...but I'm going to keep thinking about what you've said and writing more....love, Tsohl

tsohl
01-09-2007, 02:06 PM
Hi Hope,

You are very discouraged at the moment, but you must just dig in a bit harder. I am guessing that the meds that Zac is on aren't quite right. He probably has too much of one and not enough of another because he shouldn't feel depressed to the point that he doesn't care about anything.
Just as you and Goody both initially thought that you'd take your child into a pdoc, get some meds, maybe a little therapy and everything would magically be ok, Zac probably is thinking that way, too. He probably feels, "hey, I'm cooperating; I'm going to the pdoc who gave me meds that are supposed to make me feel better; I'm taking them; I want to feel better; I don't feel better. The meds aren't working; I'll never feel better; why am I doing this? Life is crap..."

While I don't think a boot camp is right for Zac, I think it might be helpful if you could find the kind of school that a friend of my son's went to. Zac needs to be in some sort of academic setting, even if he is taking one or two courses and getting some help in dealing with all his issues at the same time.
Hopefully the therapist today might know of some programs in your area where he could go as a day patient, or perhaps if things are really at an impasses between him and your husband, maybe a boarding school type situation would be better until summer....these are just a couple ideas off the top of my head.

Hope, you have to be the strong one at the moment. There is help out there for Zac, and I feel sure he will ultimately come through all this and will be able to go on and live a productive, enjoyable life. It's just really tough right now. Zac can't look beyond how he's feeling right now. It's up to you to look ahead and hold things together. It will get easier...look at Goody and how much trouble she was having with Erin just a couple months ago, and now things are manageable. It will get easier when the right meds, combo of meds, dosage of meds are found-- Take a deep breath. Write down what you what to accomplish with your meeting, and have faith that you'll be able to pull your family through this. Love, Tsohl

goody2shuz
01-09-2007, 02:50 PM
((((((HUGS))))))) from NY all the way to NJ!!!!:angel:

Hope, we have all been in your shoes at one point where we didn't hold out much hope for things getting better. The decisions that lay before you will be difficult ones but the first thing that comes to mind when I am reading about Zacs giving up is that he has lost hope in getting better because he doesn't have the right meds in place. And so long as he doesn't then things will not get better.

Now what I am about to say may scare you but I feel I need to because another thing that concerns me is Zacs use of drugs. Erin has been there too and the night that I got the call from her volleyball team friends that she was high, that night she said and acted much like Zac. She said that she didn't care about anything, that all that she wanted to be was be numb and to forget about everything. That she didn't think that she was going to live very long anyway....the things she was saying were quite disturbing. She was angry and upset and then told us that she wanted to kill herself. That was when we ended up back at the hospital. I think that when our kids use the drugs while we are trying to find the right ones it only makes things worse. Are you sure that Zac isn't using anything?? You say that he is up at 2am, could he be drinking or getting into something else in the household?? I only bring this up because of what I saw in Erin after she had smoked weed and what you describe sounds very similar to the behavior Erin demonstrated after smoking weed. I think that this may be something you may wish to look further into.

Hope...when I was in your shoes and found myself feeling extremely helpless my husband and I had to make the most didfficult decision and that was to have Erin hospitalized in a long term facility where she would be observed more closely and be in a structured environment. It was the hardest thing and yet the best thing that we could have done for her at the time.

I think that at the very least, Zac needs to be in a therapeutic setting where he will be closely monitored and be in a structured environment where he will have to meet up to basic responsibilities whether they be taking care of his own physical and emotional needs as well as be in an academic setting where he will have responsibilities there as well. It won't be forever but something that he just may need at this time. If you could get him into a day program that's great but I wouldn't even rule out a program in which he is admitted for a period of time. You will still be very much involved and it will be a sacrifice which will be a stepping stone to his getting better. If Zac is up at 2am and cannot be monitored and things are not getting better or be managed in the home it is time to go onto the next plan even if it is something we never thought we could do. Having Erin in the psychiatric hospital for 10 weeks was not easy. But all three of us to this day say that is what finally got her on the road to recovery. As much as she fought it and begged us to take her home we had an agreement that we would only take her home when the doctors, us and her all felt she was ready to come home. And we stuck it out.

In answer to your questions....even when in crisis somebody who is Bipolar cannot just be expected to not function and llive up to responsibilities. Sure some accommodations should be put in place but still the best thing that can be done is to have him/her do what they can do in terms of everyday respinsibilities. That is why a therapeutic setting may be good for Zac....he will be required to do certain things and if he doesn't he will not earn enough points to do others that he wants to do. If Zac has the time to spend on the computer he certainly has time to do some schoolwork. He just wants things to be his way which is big when our kids are unstable and will go to almost any means of getting it even if it means kicking in the wall.

He is unstable, Hope, and until the proper meds are in place he will continue to be this way. You and your husband must come to some compromise for the sake of Zac's overall success. This all takes it's toll on the strongest of marriages....ou mustn't allow this to come between you and your husband...you are on the same team and want Zac to get better. Now you need to figure out together how you are going to go about doing that.

We are here for you Hope....it will get better even though right now you feel that it won't. There are many of us here that have been where you are and can tell you that because things are better. So don't give up hope.....hope is what you need to get through these tough moments and Zac needs to hear from you his parents that you do have hope that he will get better. And if you ever need a replenishment of hope you know where to come....right???;)

(((((HUGS)))))) because to day you need them ~ Goody:angel: :wave:

jules3
01-09-2007, 04:26 PM
Oh Hope, im so sorry you are going thru this because i know how it feels. last week we took the car keys away from my son and he broke the window in my living room..he was so self-absorbed trying to get what he wanted,he didnt care what he was breaking. About the drugs, i have seen my son look like hes on drugs when hes in a bad way..done a drug test and its been negative. sometimes they look and act so wild,it truley looks like a drug addict.Do you drug test him? I do believe he needs some kind of academic setting..just have no solutions..my son is in his 3rd year of college. Probably not going back this coming semester. I cant help but wonder if half this stuff is made worse before they are so spoiled..im sure that crossed your mind too.

it is so difficult,my son is on abilify,lithobid and klonopin for anxiety...he said the klonopins definitly help..i see him getting worse when he is bored too. my husband just prays, i am consumed with this,and i know i shoudnt be..i need time to adjust to the whole situation.

langlee
01-09-2007, 11:03 PM
Thanks to all of you for your support. We are definitely going to have to do something. As good as Zac is when he's good, is how abusive and aggressive he is when he's not good.

Goody, what kind of facility did Erin go to for the 10 weeks? When Zac was inpatient, they talked about Residential Treatment Centers, but really didn't have any good suggestions and said they were VERY expensive (to the tune of $15,000-$20,000/month). The other issue is that in NJ, it has to be voluntary. So, any suggestions would be appreciated.

Tsohl, I'd also love your comments about the dual diagnosis facilities. I don't want to make a misstep here, but it's obvious to me that we are losing precious time and Zac is, at best, treading water, if not slipping further backwards.

We did meet with the therapist today who specializes in addiction/bipolar. We won't get to talk with him until next week, but Zac liked him. The reason we went to him is that the school was suggesting Zac needed to go back to intensive rehab (we' re still struggling to get him classifed) and neither the therapist (who runs a rehab after-school program), nor we thought that Zac would benefit from that. So, I'm getting yet another perspective in the myriad of conflicting perspectives I have.

I am so disheartened tonight. When Zac is like this, I really can't even relate. He is an entirely different person and it is impossible to have a conversation with him. He lies, he is manipulative, he is surly, he is abusive, and he is emotionally dead. Who is this person and how does this happen?

I look forward to hearing from all of you. Thanks for your ongoing support.

Love,

Hope

jules3
01-09-2007, 11:08 PM
Insurance covers the cost of treatment centers.. zac does have insurance, doesnt he? Hes only 16 right? would you consider bringing him to n.y. for treatment? Zucker Hillside hospital is a dual-diagnosis center. Why dont you give them a call?

goody2shuz
01-09-2007, 11:34 PM
Hope ~ It seems as if the meeting didn't really help out too much in terms of helping you formulate a plan for Zac. I KNOW that the cost of treatment is so extreme and we were thinking that we may have to incur those costs and back then I was prepared to looking at it from the perspective that I would much rather use Erin's college savings to get her wanting to live and feel better than herself than allow this to go on where she may not even be around to go to college.

Our lucky break came when she was on charges for her shoplifting (this occurred during her manic state) and when she went before the judge he mandated her to be admitted and have a full psychiatric evaluation at an adolescent psychiatric center about and hour from our home. This facility was one I had been looking into for her but in order to get a bed there you would have to be hospitalized for at least 2 weeks and then be placed on a waiting list. After 3 hospitalizations within 3 months you would think that we were eligible. And then our big break came when the judge sent her there and she came back to court every 2 weeks to reevalute the need to stay on and finally we all felt she was ready to be discharged home after the 10 weeks. Since it was mandated by the state they exhausted our insurance and then medicaid picked it up. We were extremely fortunate.

Is there any long term psychiatric center for adolescents that you know of in your area??? My other suggestion is that if your school cannot provide for Zac and deems him needing a more therapeutic environment then they would have to pay for those provisions since they cannot provide them. It is Zac's legal right to be educated. The center where Erin was at were thinking that she may need a therapeutic day center after her discharge but would have had to classify her. Since she was attending school throughout the summer at the facility and doing so well they thought that she would be able to handle going back to school with some provisions in place.

It sounds to me as if your school is just shuffling their feet and not really supportive of you or your family. I think that you should push to have him classified as quickly as possible....I think that they must evaluate him and test him within a few weeks of a request. I would get a parent advocate through NAMI to work with you on this...once they see that you are not fooling around and are aware of your legal rights they will start moving to accomodate Zac.

I know that the decisions that lie before you will not be easy ones....I would also look into what NAMI may recommend or your local Mental Health Agency. I remember being on the phone with every possible resource until I found what we needed. I know, it isn't easy, but as moms we somehow are able to do it even when we think it isn't even humanly possible.:angel:

Come here and gather whatever strength you can from us. I wish I could help more but other than my (((HUGS))) and prayers of support there seems little else I can do. Please hang in there....Tsohl made a good point earlier on...you MUST stay strong for Zac is going to need that strength. I remember one of out therapists telling me that there is nothing worse for our kids to see than their pillar of strength crumbling. They are counting on us remaining strong so if you have to fall apart after he goes to bed do so but be sure to take care of yourself so that you can remain strong for him.

I know I have said it many times but I can't say it enough....the Zac you see now is unstable without the proper meds in place, the Zac you will see once he is medicated properly will be a much different person, one that you will recognize and one that is much easier to live with. I know it seems like this will never happen but it WILL. I promise you that you will one day be here telling somebody else who has given up all hope that it WILL happen....it just takes alot of freakin time!!!;)

Lots of love, prayers and ((((HUGS)))) to a wonderful mom ~ Goody:angel: :D

tsohl
01-09-2007, 11:43 PM
[QUOTE=hopealways1104] He is an entirely different person and it is impossible to have a conversation with him. He lies, he is manipulative, he is surly, he is abusive, and he is emotionally dead.

....and, Hope, he is not properly medicated. This person is YOUR SON and HIS BRAIN has an illness, just like Parkinson's or Alzheimer's Disease. But in this case, it affects his emotions and thought, rather than his movement or memory. Until he is properly medicated, and the biochemistry of his brain returns to something like normal, you may not recognize him, or may not want to know him.

I'm glad Zac liked the new therapist. That is half the battle.
I haven't cooked dinner yet. I must go for now, but will write more later about the dual diagnosis experience we had! Hang on, Hope.

Love and hugs,
Tsohl

langlee
01-10-2007, 12:28 AM
Thanks to all of you once again. You are my support group and I can feel your strength coming through your posts.

Jules, I will check out Zucker Hillside. I will take him anywhere that they can help.

Goody, what was the name of the facility where Erin was? We are talking about using Zac's college fund, too. We were thrown off when the inpatient facility was recommending a 6 month stay. It seemed so extreme.

Tsohl, thanks for the reminders of what is going on with Zac. Sometimes it's hard to remember when he seems so calculating.

I will try NAMI, too. The school is definitely dragging its feet. We have had the evaluation already, but they never had the psychiatric evaluation. That's supposed to happen soon. I called and left a message for the school psychologist tonight telling her we need to resolve this NOW. I also left a message for Zac's pdoc and told him that despite the fact that Zac said he thought the meds were working, they are not and we need to keep tweaking.

I think one of the reasons I am so dejected tonight is that I am a problem solver by nature and I cannot believe how many stone walls I'm running into. I have spent endless hours doing research, looking for the right therapist, trying to get someone who I trusted to give me the wisdom of their experience. Instead, I feel like I have alot of people who are quick to tell me what they wouldn't do, but no one to give me the direction I so desperately seek. Worse, many of them blame the other. I can't tell you how many mental health professionals along the way have questioned the diagnosis, told me all the things the one before did wrong, and I CAN'T STAND IT! I am not looking to lay blame - just to find a direction for my son to take and not waste anymore of his young life in this hellish existence. I assumed when I started this journey that, as professionals, they would have done alot of the research I am doing, but that has not been my experience. I know there are good people out there, and certainly I've worked with a few, but we are not there yet.

Tomorrow's another day. Maybe sleep will give me a better outlook. Zac's sleeping at my sister's so at least I don't have to wonder what he's doing all night and if he is sleeping at all. She asked what she could do for me. I told her to keep him for a month! OK- I am finally becoming Monster Mom!

Love to all,

Hope

gav_73
01-10-2007, 12:32 AM
Wow Tsohl, that was a really great description of how bipolar affects us and how others should perceive us. I know it can't be any easier for those who love us, probably even more difficult, because our actions hurt others just as much as they hurt us, if not more so, because you are dealing with something you can't totally understand, that is so difficult to deal with...it's just terrible no matter how you look at it. But I am glad you offered that description for us, as I think it is extremely wise and insightful. Thank you! :)

jules3
01-10-2007, 09:16 AM
Hope, its really dumb to say he needs a 6 mth stay..they dont know that. he can be a different kid in 3-4 weeks depending on medications from what i gather here. when we went to doc with my son last week, he told me that sometimes when bipolar people are going thru what both are sons are right now. they put the medications in their mouth and then spit them out,or lie and tell us that they took them...i said o god why? he said because its their control over us. they still can be in charge..i know its crazy, but its a thought..can he be doing this?

tsohl
01-10-2007, 10:13 AM
Good morning everyone,

Goody ~ That is excellent news about Erin. Everyone needs to hear about a little success right now!! Hope you are recovering from your infection. I hesitate to ask, but, have you heard from Kait? Did she go back to school in a huff or were you able to come to some understanding prior to her departure?

Gav ~ I'm hoping what I wrote didn't offend those on the board who have bipolar disorder. For those of us who suddenly find ourselves with a child who develops BP seemingly out of the blue, without another person in the family who is similarly affected, I think it helps in understanding the issues to think about it in terms of a disease.

Jules ~ How is your son by this morning? Sometimes it takes awhile to adjust to a drug which ultimately turns out to be very beneficial. Unless he's having a lot of problems with abilify, I would encourage you to keep trying it awhile longer.

I'm happy to see Goody mentioning NAMI. If you haven't done so, you all might want to check out what NAMI is doing in your local communities. Many have found a good deal of help and support through that group.

Winter has finally arrived in Wisconsin. It is cold here this morning...and it's headed your way!! Hope you all have a peaceful and productive day. Cheers, Tsohl

tsohl
01-10-2007, 12:27 PM
Good morning Hope ~
I hope you had a renewing night's sleep and are ready to do battle today.
I wrote a long post expressing my views on dual diagnosis, got interrupted before I sent it, came back and sent it off into space...so here I go again and I'm sure I won't be nearly as eloquent the 2nd time around!! Forgive me for making an attempt at being light-hearted when I know how deeply upset you are.

I had to smile while reading your comments about your frustrations with the mental health profession. Here I thought this problem only existed in the Midwest! I was in shock when I initially found out my son was bipolar, but he didn't really have a major crisis until about 18 months after I found out. It was during this time that my shock deepened after coming face to face with the mental health profession. I swear, many of these people may have lots of book learning, but it was not apparent that they knew anything about what it meant to be bipolar, or to live with someone who was in the midst of an episode. At a time when I thought my son's life was really in jeopardy, his pdoc fired him as a patient because my son told him he didn't believe in the concept of a 12-step program. He just cut him loose without anything else in place. Anyway, onto dual diagnosis....

First let me say that our situation was quite different from yours, so perhaps what I have to share is not relevent. We did do research on various programs all over the country, and have experience with one. It was our son who sought out a program. He realized that he had to learn to live with being bipolar while clean and sober....and, at this point, he didn't want anything based on the 12 step model of AA. He knew he would have to be compliant to the rules of the program, etc. He had completed college. So what we were looking for is different from what Zac would need...but I imagine there are similarities, too.

What I found was that most dual diagnosis programs are based on the 12-step model of AA. I felt that it was important to deal with the bipolar issues first and the drug and alcohol abuse next. What we found was that most programs, or at least the ones we looked at, mainly deal with addictive behavior. The bipolar gets lumped in with various "mood disorders" and really is treated as (in my opinion) an afterthought...definitely secondary to the addiction. To me this was backwards.

The other thing we found was that many programs are run by a PhDs in psychology rather than be a medical doctor (psychiatrist). You just really need to do your homework, making sure your inquire in a very detailed way. You cannot take anything on its face value. There is a lot of what I would consider false advertising attached to many of these programs. The program we ended up in promised that there was a pdoc involved as the assoc. director and that individual therapy was available as many times/week as deemed necessary. In reality, the pdoc was on the letterhead and maybe attended staff meetings by phone, but she was not on the premises. Her office was several communities away. My son went the whole first week without getting to see her...as she didn't have room in her schedule. (When you're spending that kind of money, losing a week is unbearable! ) Then they would schedule several patients from the program in succession so they could make one run in the van. My son had to sit around and wait through others' appointments before it was his turn...and then wait some more until everyone had finished, and then it was about a 45-minute drive back to their facility. None of this was mentioned in their materials, or by the director when I spoke to him by phone.
I mention this in detail as an example of how you think a service is going to be provided, and in reality, it turns out to be entirely different.

It has been our experience that anything in a group setting involves so much that doesn't directly apply to our child. There is so much time wasted sitting around, or doing inconsequential things that have nothing to do with bipolar. And as I already stated, I would guess about 85% of the time was spent on addressing issues of addiction.

I know you have everyone telling you Zac needs to be in a residential treatment program, but how do you feel about that? If you do decide that is the way to go, I would offer the following advice: I would look for a program that specifically is for those with bipolar and I would not be overly concerned about the dual diagnosis at the moment. I would tell you to be VERY thorough in your investigation of the program, going there in person to check it all out, interviewing those who have attended, if possible, meeting the director, etc.

I am going to stop for now. I have an appointment in a bit to discuss my mom's current situation with Alzheimer's....and I don't want to risk losing this again. I don't have time to reread it, so ......I'll do it when I get back.

Love and hugs to you,
Tsohl

gav_73
01-10-2007, 03:32 PM
Hi Tsohl,

I just wanted to say that as a bipolar, your comments and description didn't offend me at all and I doubt they would offend any of us. As I said, I thought your description was very insightful. It is also comforting that those who aren't struggling personally with bipolar, but are dealing with someone who is, understand somewhat of what it is like and try to support us even through the roughest times. I think you ladies (and gentlemen) are great. :)

tsohl
01-10-2007, 04:09 PM
Thanks, Gav. I appreciate knowing I haven't offended you, or others.

tsohl
01-10-2007, 05:55 PM
Hope,
Please ask any questions you might have about a dual diagnosis program. I don't know what you might be interested in specifically. My gut feeling is that Zac needs to find the right meds and that when he does, the self-medicating will take care of itself. It's not like he's been drinking or using drugs for years and years and has an ingrained habit. So far he's just experimenting in an attempt to gain some control over his life, and probably more than anything, to feel better. I think when he is stable and feeling better, he will realize that he does have his life ahead of him and that it is worth living and can be good and interesting. When he realizes that his meds are an important component in allowing this to happen, I think he'll realize that street drugs and alcohol just aren't worth the risk. At least I pray that's what happens.

Hope you had a little respite today.
Best,
Tsohl

jules3
01-10-2007, 06:30 PM
TS, thanks for asking about my son..hes looking good..less drousey today..sleeping much better at night..but its only a few days..and i've learned not to get my hopes up..just keeping fingers crossed.. the key here is the right meds and that he keeps taking them..right?

langlee
01-10-2007, 06:34 PM
Tsohl,

Thanks for all of your comments. Honestly, in my heart of hearts, I don't believe he should be in a residential treatment center, but I am struggling to figure out what to do and I am fearful that if I don't find the right facility I will do more damage to him. Your comments were exactly what I was concerned about. It's why I was originally concentrating on Johns Hopkins because they have a Mood Disorder Clinic and it focuses on bipolar. It's short term, though, and I can't find anyone to tell me what I should expect when he is done there. I am so aware that we are nowhere right now and I can't stand that, either.

Next week I'll speak with the latest therapist to hear his thoughts.

This is ongoing, obviously. Zac is in a slightly better mood and he can't understand why I seem so worn down. I'm exhausted and not sleeping well and that's not helping either.

More later...

Love,

Hope

tsohl
01-10-2007, 06:55 PM
I just laughed when I read your comment about Zac not being able to figure out why out you're worn out. I laughed out loud because it reminded me of something I had long ago blocked from my memory. The day we went to our son's apartment before we all went to the psych hospital so he could admit himself, he was sitting at the table with a gun in his hand. He had supposedly bought it for target practice. I did not know he owned it. (We are not a gun-owning family, and I'd never actually seen a real one before.) I had no idea what he was high on, but his pupils were the size of saucers, he could not talk sensibly, could not walk without stumbling, and I can't even remember what else. It was the most pathetic thing I've ever seen...and it was our son. My husband and I both stayed very calm....you get the picture. I was absoutely terrified over everything--the way my son looked, the gun, not knowing if it was loaded or what he planned on doing with it, or if he even knew what he was doing...I was terrified. A couple days later, after he'd checked himself back out of the psych hospital after deciding it wasn't a very good move to have gone there, we were talking about that morning and he just couldn't understand why I seemed upset. And even though he assured me he never had any intention of commiting suicide, in his very logical, rational way, he was telling me that even if he had, it was just "his business." It was his life and if he chose to end it, it should not make any difference to anyone but him.

Six months after this, when he was fairly stable on his meds, he mentioned that he hadn't realized how much Dad and I loved him. I was breathless with disbelief!!

goody2shuz
01-10-2007, 06:55 PM
Just checking in, Hope, and letting you know that you and your entire family have been in my thoughts and prayers all day. As far as the place where Erin was it was Sagamore Childrens Psychiatric Center in Dix Hills, NY. It is a state facility and like I said, we found that we received the best there in terms of treatment and diagnosis. They first did a thorough evaluation and diagnositic testing both cognitive and psychological/psychiatric. We then had an informative meeting in which all the results were discussed....at this meeting were the therapist, doctor and director of the facility We were informed of what was diagnosed and the meds and treatment that would be utilized. They said that in order for Erin to respond well we should expect anywhere from 2-3 months. During that time she would be assigned a unit...the place has boys and girls units. They worked on a point and level system....and there were individualized objectives and goals set....in order to receive certain provileges you had to have a minimum of points. The place also encouraged activity involvement....they had volleyball, arts and craft activities, crocheting, painting, table games, swimming etc. There was school everyday with a week vacation during the week.

Erin was assigned a therapist and doctor who would work with her the entire time she was there. Once a week there would be a team meeting to discuss the progress and any changes that should be made in terms of treatment etc. in which nurses, recreation therapists and anybody who observed Erin would offer their obsevations of her behavior and interactions with others. Erin met with her doctor each morning for about 10 minutes and her therapist at least 3 times a week while there. Several times we were called in to meet with Erin's therapist along with her.

They had various outings according to what level you were at and there was a family event every few weeks as well. It was scary at first for all of us because in the middle of speaking with Erin by phone another kid would be totally out of control and have to be administered a shot and the nurse would tell me that Erin had to get back to her room. Up to this point Erin had never really witnessed seeing sicker kids than her....and as scary as it was I think it was good because it allowed her to see that there were others far worse off than her.

I think that a place that is structured and provides enough activities and has a good team consisting of a psychiatrist and therapist and supportive staff is important. At first Erin told us that the place was bad and didn't do anything for her but after a while she saw how much improvement there was as compared to 3 prior hospitalizations and 7 months of following up with an individual psychiatrist and therapist. It was 10 weeks of her life but compared to the 7 months that she didn't receive the proper diagnosis and treatment it was well worth it.

If you have any other questions please feel free to ask. Oh....and after a while we had to sign Erin in under an invountary but she was okay with that.

Hope that this helps you out a little.

((((HUGS)))) ~ Goody:angel: :wave:

jules3
01-10-2007, 08:57 PM
Hope, isnt it amazing how our whole household revolves around their mood that day.. my son always says to me that i worry too much..meanwhile im about ready to quit my parttime job because i cant sleep at night. he just doesnt see it.

tsohl
01-11-2007, 11:25 AM
Good morning to all,
I found some interesting articles last evening that I thought I would share with you. The contents might be particularly interesting to Jules and Hope.
The research was initiated in 2004 pertaining to "dual diagnosis" in adolescents. Apparently previously everything that is known was determined by research on adults and in 2004 they were just beginning to realize that adolescents might need to be treated differently.

The "new" (in 2004) thought in dual diagnosis treatment is called integrated treatment, which is an approach where both the substance abuse and the psychological symptoms are treated simultaneously, in one setting. This treatment is usually done in an outpatient program. According to the article, inpatient programs are usually used to stabilize people...they would help to stabilize psychiatric symptoms, to detoxify people and to prepare them for the next step which would be therapy and treatment in a longer term outpatient program.


The theory is that the kinds of thoughts and behaviors that will help you recover from the one (substance abuse) will help you recover from, (or learn to manage) the other (bipolar). So they teach you to think of yourself as having one disorder (bipolar substance abuse) rather than having two separate disorders. The treatment that this method recommends is good for both disorders and is good for recovery in general...avoiding drugs and alcohol, taking meds as prescribed, monitoring moods, monitoring drug cravings, getting a good night's sleep, good food and hydration, etc.....

The article also goes into detail on whether substance abuse trigger bipolar, etc. but I won't go into that part now. I don't know if you find this help or not, but thought I'd put it out here just in case....

Hope everyone and their children are having a good day....love, Tsohl

langlee
01-11-2007, 04:14 PM
The article sounds great, Tsohl! I heard dual diagnosis is now being called co-mingled.

I'll respond at greater length to all later.

Love,

Hope

tsohl
01-11-2007, 08:34 PM
Hi Hope,
Actually the article I saw was excerpted and wasn't all that great! But I thought the simple explanation was good.

How are you coming along with your research on schools/programs? I share your concerns about an inpatient program. I guess so much depends on the child. I felt the one we sent our son to was just a waste of $15,000. I was very disappointed with it. On the other hand, our son has been able to stay off drugs and alcohol and he works at being compliant with his meds, etc. So I guess sometimes things sink in and the message connects even when you don't realize it's happening. Maybe it would have happened anyway...there is no way of knowing. You have a big decision to make....does your husband favor one type of program over another?

Take care,
Tsohl

langlee
01-13-2007, 12:49 PM
Hi All,

Wow! This is the first time I can remember that this thread was not on the first page! How is everyone? Jules, how is your son tolerating the meds and is he starting to feel better? Goody, does peace continue to reign in your house? I hope so! Tsohl, it looks like the moderator edited our last posts. The article you found must have been on a website because s/he responded that websites can't be posted. Sorry about that!

Things here are tense. Zac has calmed down, but my husband hasn't and it is becoming increasingly difficult to manage. I'm constantly caught in between them and don't know anymore what are appropriate consequences to bad behavior and what is not. The bipolar adds such a dimension the challenges here and sometimes I think my husband is right and sometimes I think he expects too much. He can't escape the feeling that Zac uses the bipolar as an excuse to do whatever he wants and while I believe that to be partially true, I also think he is still not properly medicated and, until he is, we are going to see outbursts. I don't excuse it, but I am trying to understand it.

School is also a big issue for my husband. He thinks that Zac is throwing his life away and can do more than he is, but is just refusing to. Again, I'm somewhere in the middle. My armchair psychologist tells me that Zac could do more than he is, but he is also afraid to put himself in a situation where he might not succeed so it's easier not to try. There are alot of unresolved issues with my husband and I see some of Zac's behavior as going on the offense so he doesn't have to be on the defense. It is so complicated and I really don't know what the answers are.

Thanks for letting me vent.

Hope you are all well.

Love,

Hope

goody2shuz
01-13-2007, 02:23 PM
Hi. Ladies:wave: Yes as life has it seems that each one of us are dealing with things that have us somewhat occupied....in my case it is trying to get my strength back from this cold/infection and balancing all of life's other crisises that always seem to come our way.

Erin continues to do well....yesterday she had somewhat of a meltdown after school but we made it through. She started placing blame on me for things that were said that weren't said and things that she thought I was thinking that I wasn't. I pointed that all out to her and finally said, "Erin, I think that you had a pretty lousy day at school today and rather than telling me what is going on you are taking it out on me like you have done in the past. Now...we have come too far to go through this and I think it's best that we just drop it and talk more when you are better able to. I don't want you saying something that you will be sorry for later on so I think we should just stop right now." She blurted out that it was her worst day at school and what I had said was just the cherry on top.

She went to her room....hubby wanted to talk to her and I told him to just let her be that she needed to ride this out herself and within a half an hour Erin was downstairs apologizing to me.:blob_fire WOW....in the past this NEVER would have happened!!!:D I acknowledged her apology and she went on to explain what it was that wnet so wrong during her day.

It's always the same thing....apparently her best girlfriend's boyfriend is getting on her case and when they are talking about something he interrupts and takes her friend away and kisses her or something. Erin seems to have this problem with sharing her friends with others....whether it be other friends or boyfriends. I told her that this has been an ongoing thing with her and that she had to work through this with her therapist (once we start with an indivicual one which should be sometime next week) and that she will lose friends if she didn't allow them to have time with others. I have seen her getting pissed off because her best guy friend spends more time with another friend....I told her that friends allow for their friend to have time with others and shouldn't be threatened by that. She kept on making excuses and both hubby and I gently brought up how this has been a problem since her first best friend had started making other friends and that she really needed to bring this up in therapy so that she could work through it otherwise it would always be a problem. She seemed to listen and I can't wait for her to get started with therapy to work out some of these issues.

After we talked things went well.....she went to a school wrestling meet and then came home and watched two movies with me since hubby had plans for the night. I got a call that my brother was on his way back to the hospital after only having been home for a day. Seems his kidneys are in failure again. We paused our second movie and Erin asked me if Uncle D. was going to die.....I saw her starting to cry and I asked her to come sit with me. I told her that things didn't look good....that the doctors had never seen somebody get worse so quickly with her Uncle's condition and that no matter what they were trying to do they couldn't stop it from getting worse. That things were getting bad and that I wasn't going to hide anything from her but I was scared that my brother was getting worse and worse and that he could die but that I still was holding onto the hope that somehow they would find something to help him. Erin panicked and begged for us to get in the car so that she could see Uncle D. and be with him before he died. I told her that the truth of the matter is that Uncle D. could be with us for many more days perhaps years....that none of us really knew and that we WOULD go see him again but now wasn't the time. I told her that he was at the hospital and if I got a call that I needed to go I would bring her with me but for now we were staying put. I told Erin that if anything were to happen to Uncle D. and we didn't get to see him that she can't feel bad about that because Uncle D. already knows how much she loves him and wants him to get better. I encouraged her to send him cards and call him to remind him of that as I was going to do and that perhaps her next school break we would go down to spend some time with him and her cousins.

Erin hugged me and started to sob telling me how bad she felt for me knowing that my brother was doing so bad and may die. I started crying too and told her that yes it was difficult but there really wasn't anything more that I could do than let my brother know that I love him and talk to him on the phone everyday and to pray for him that he will run into a doctor who will know how to help him and make him better. And if they couldn't, know that when and if it was time for him to be with God that I couldn't stop that and would have to accept it as difficult as that would be....but for the moment we were going to be there for Uncle D. as best as we could be and enjoy life together. It just stinks being 4 hours away. My other brother who just moved for a job transfer is only an hour away and just this morning he feels that God made it that way so that he could be closer by to help D. out.

Erin & I decided to continue with our movie which thank God was a comedy and after it was over we both agreed it was just what we needed. I know that if something does happen to my brother that Erin will have such a hard time....the good thing is, this time she is on meds that may be the difference in helping her through it.

Hope.....I am sorry for the turmoil you are going through. I think that it may be true that Zac is using his Bipolar to get away with certain things. I was told by the hospital staff that we had to be consistent with Erin....that she would try to manipulate us and that she had to know that there were expectations for her, not unreasonable ones, that she had to achieve. She would start to bend the rules in her favor and we were told that we couldn;t allow her to do that. It took some time and changes between hubby and I but what they said was true. I know that I too thought that the more I allowed things to be Erin's way the less she would be triggered to have her Bipolar worsten. But the therapists and doctors made sense.....they said that somebody who has Bipolar requires structure and needs to go through their responsibilities each day within reason.

One thing that you brought up that shows me that Zac may be using his Bipolar is his use of the computer at night but inability to do any schoolwork. You may incorporate the use of the computer as a privelege if and when he reaches certain objectives. That is the way things should be....that there are responsibilities and there are privileges. Priveleges are earned when responsibilities are met.

I hope this makes sense....it took hubby and I a while to come up with it but once Erin realized that we were united and that was what was happening and the things she did wouldn't alter it, things got alot easier. Even her outbursts of wanting to harm herself.....there was a time we would walk on eggshells to keep that from happening....now she knows that if she says that we will have to go to the hospital and take it seriously.

Well....that's pretty much where we're at....I hope that everybody has a good weekend.

((((HUGS)))) ~ Goody:angel: :wave:

langlee
01-13-2007, 04:22 PM
Dear Goody,

I'm sorry to hear that your brother is in the hospital again, but it sounds like you handled Erin's concern with your usual sensitivity and insight. I am keeping him in my prayers and hoping for the right doctor to come along and make a dfference.

Zac and I spent a long time today talking about consequences and actions. He knows that it's time to get back to school and I tried to remind him that our restrictions were not intended to be punishment, but to help him get the structure he needs to succeed. I also told him that we were doing our part getting him the help he needs and that he has to start working with us better. He came up with a few suggestions about his transition plan and reminded me that he wants to be in a different school next year. I told him we wanted that, too, but could not even begin to think about that until we saw him manage a schedule. It was a good conversation, better than usual, but then again, he was calm and rational today.

Baby steps, as Tsohl always reminds me. Baby steps.

Love,

Hope

jules3
01-13-2007, 06:34 PM
Hope.. thansk for asking...my son is a little calmer, good days and bad days..you never know around here.. biggest problem is he cant sleep..even ambien and klonopin together..what is up with that? i cant imagine!

hope, im glad zac is doing well these few days..

when my family asks how my son is doing,,i never want to say hes ok..because then the next day, his bad side is back..you know what i mean??

goody2shuz
01-13-2007, 07:30 PM
Hope ~ Thanks for the prayers....my brother is back home again after two more trips to ther ER. I have a feeling that this will be a frequent thing....I am hoping that after this holiday weekend that they can convince his doctor to get the nursing care and whatever he needs at home so that he doesn't have to spend so much time going back and forth to the hospital.

Anyway....I am glad that you and Zac had the talk...I remember doing that many times with Erin but remember, until things are more stabile he will remember and not remember things being said or agreed upon. That is usually the way but will get better when he is more stabilized. If there is any doubt sometimes coming up with something written that could serve the purpose of something to be physically available as a reminder will help out with alot of misunderstandings. This could be devised by the therapist and yourselves if you feel it may help out.

Jules ~ I know exactly what you mean of being afraid to say things are better and then the very next day seeing the complete opposite. We have all been there but we still keep sharing the good, the bad, and the ugly. When Erin had her meltdown yesterday I was afraid I would be here telling you things were bad but we got through it and things are back to being good again. That is when I think we know that they are reaching stability....when there are suddenly more good days than bad. Almost like when they were babies and we were waiting for that first night they slept through the night!!:D One night they sleep past 2 am only to wake up an hour later. And then suddenly the day comes that they do and you know that you have reached a milestone.....that is how it will feel when you see the meds working.

Yes....it's all about baby steps and thank God while we are taking them we have other wonderful people here helping us through and cheering us on. What would I ever do without all you wonderful people!!???:angel:

(((HUGS))) ~ Goody:angel: :wave:

jules3
01-13-2007, 08:56 PM
Thanks goody, tell me again what meds erin takes? my son is on lithium,abilify and klonopins when needed..hes asleep on the couch right now,i look at him and i feel so bad that hes going thru this, but he can wake up and be a monster..i kind of do see the meds working (fingers crossed) sometimes,because he tends to cool down a little sooner than before. i read each of the posts so carefully, because they do make me feel better. Im thinking everybodys lives look so peaceful and calm and quiet..but i guess you never know whats going on behind closed doors right?

goody2shuz
01-13-2007, 09:29 PM
Hi, Jules ~ Erin is on Seroquel 300mgs/day and Lamictal 150mgs/day. They seem to be a pretty good combo for her. We really don't have any side effects at all....we know that the Seroquel does make her sleepy so she takes it just before going to bed (she takes 100mgs in the morning with no problem and the 200mgs at bedtime)

I have to say that we are lucky as far as no side effects and the meds working so well for her.

One thing is, Erin really never had any trouble sleeping at night....I guess when she was thrown into a manic episode before being properly diagnosed was the only time she would be up alot at night but since being on meds she goes to bed fairly early....between 9 and 10pm school nights and by 11 - 12 midnight on weekends. So sleep really hasn't been much of a problem for us, thank God.

It does take sometime.....it took us 5 months of being on this combo to get where we are right now. So hang in there.

(((HUGS))) ~ Goody:angel: :wave:

tsohl
01-13-2007, 09:43 PM
Hi Goody ~

What do you hear from Kait?

goody2shuz
01-13-2007, 10:02 PM
Hi, Tsohl ~ You are so good at keeping up with everything. Kait hasn't called on her own but I called her on Wednesday and we spoke for a few minutes....she said that she signed the forms that I wanted her to sign and that her and one of her suitemates were trying to spend more time at the library since the dorms could be distracting. I told her I was proud that she could come up with that on her own. She also shared how she was pulling an "A" in Accounting (a course she excelled at in high school but was worried about because her professor's expectations were quite high). So this was good news.

I spoke to her a little bit today.....she was quiet and distracted. She told me that she has been studying alot for the exam shse is retaking in last trimesters course that she had failed and was given another chance to retake and if she passed not have to repeat the course. She said she only had one more chapter to go over and that she felt she would do well on the exam. If she does it will not only give her the passing grade that she needs but alos bring her overall cumm up from last semester.

I don't know, Tsohl....how do I know how much drinking she is doing and how she is doing overall in terms of mental and emotional well being?? Even if she meets our expectations there is still the worry of how much partying and drinking she is doing and exactly how much of a problem it will be. Like you said....you didn't even know there was a problem with your son until he was in a psychiatric hospital.....right???? With us we see Kait's active participation in partying and if anything it is only half of what is really going on. I am really hoping that this is a growing up phase with Kait. One good thing is that this weekend is a holiday weekend and her friends from home who were suppose to drive up didn't. I had mentioned to Kait my feelings about friends going up the weekend before her retaking the exam when it would be her last opportunity to study for it. Either her friends cancelled or she came to her senses on her own????;)

So far she is living up to her end of the deal as far as grades and signing the forms go. We of course cannot monitor the partying but will be alerted if it becomes a problem which is the best we can do being 3 1/2 hours away.

Somehow having her away seems to be less of a problem but I still am worried as a mom should be.

Thanks for asking, Tsohl.:angel:

Love ~ Goody:angel: :wave:

tsohl
01-13-2007, 10:12 PM
Hi Hope,
Ii just accidentally clicked out of this and lost the whole post I'd written...so here goes again. Yes, I managed to get into trouble twice in one day....There was a thread where some feel that only people who are bipolar should be posting on this board, and I felt the need to explain why I didn't agree...then the thing with the website. I don't suppose you saw my post before it was removed....anyway, it wasn't all that interesting, but I'll see if I can find the author's name for you.

I was interested to learn that dual diagnosis is now called co-mingling...I think that's what you said. I think that is ill-named...after all one chooses to drink alcohol or use drugs; one doesn't choose to be bipolar or have other mood disorders....co-mingling to me implies that there is a choice in the matter. Oh well, that is neither here nor there....

I went back and reread a lot of older posts today. Could you tell me more about the sort of issues your husband is now having with Zac, or what the sources of conflict are pertaining to Zac? (if that's a better way to phrase it).

Also, what was it about the high school that Zac didn't like?

Nice to see your posts today. I worry when I don't see your comments!
Take care,
Tsohl

jules3
01-13-2007, 10:21 PM
Goody,

i dont know that im allowed to ask or maybe you are not allowed to answer..im not nosey, just curious to know what college kate goes to..if im being too intrusive..you dont have to answer..

we are in the process of looking into colleges for my daughter..when you speak about her school and the help they are giving you, im very impressed. she really isnt a problem, but then again at 18 my son was ok too..scarey thought..i see shes starting to like the party scene and i cant believe what is happening out there..it seems like they are all drinking and doing "recreational"
drugs..its when they start to push the envelope, then they get into trouble. i would never want to be a 16-19 yr old today.

im glad seroquel works for erin.it is a great drug. unfourtantly,it did not help my son sleep at all..and he was packing on the lbs.

goody2shuz
01-13-2007, 10:37 PM
Hi, Jules ~ I am sorry but I am usually an open person but disclosing the college may be pushing it....I already have used her name here and I still need some type of anonymity for her and our family. I hope you understand.

I know that it is scary having our kids go away to college....it is so much different when we went with coed dorms and the partying and drugs/alcohol scenes. It's amost as if they are majoring in partying these days rather than the usual majors.

I think that with all that goes on now with young people today that most colleges are equipped to deal with most issues including drinking, partying and depression/mood disorders. There are counseling services offered as a standard which wasn't the case when I went to college.

I hope that the college search goes well for you and your daughter.

(((HUGS))) ~ Goody:angel: :wave:

tsohl
01-13-2007, 10:40 PM
Hi Goody~ I think you will be able to tell how much partying Kait is doing by her grades. You have that first marking period to go by, so you can kind of assess now what the competition is like, and you know that she is capable of getting similar kinds of grades that she got in high school, right? It is a good sign that she is going to the library, and that one of her suitemates feels the need to do so too. The fact that she is studying to retake the exam is a good sign, showing that she is taking it seriously, rather than just blowing it off. She may have taken to heart more than you know the conversations you and your husband had with her over vacation...and she may sense that you are serious about all of it. If I were you I wouldn't ask about whether she's drinking or partying...I wouldn't mention it. She knows how you feel about it and she'll just rebel if she feels like she's being treated like a baby. I would just talk about her studies and somewhat about her other activities...trying to just show an interest in the main reasons why she's at college and minimizing your interest in the social elements. I think with Kait you are better off, at least for this semester, to let her "be" and hope for the best. If she is drinking every night to the point of passing out, her school work will reflect that. I sincerely doubt that is happening.

Regarding my son, you don't quite have it right....but it's not that important. I had no idea he was self-medicating in high school and I thought he had outgrown the concerns I had when he was in about 8-10th grade. But regardless, his behavior was never out-of-the-norm. He was always respectful, and never behaved in any way that would call attention to himself. His sister was shocked when we told her about the hospitalization. She too had absolutely no idea what was going on with him....so while he was bi-polar and self-medicating, he still functioned at a level that was higher than most. I think what I might have said was that we had absolutely no idea that he had a gun, and that happened right before he signed himself into the psych. hospital...but, as I said, it really isn't important.

I am so sorry to hear about your brother. His situation really sounds dire and that he is in need of a miracle. We will pray for that. Hugs, to you. Tsohl

jules3
01-13-2007, 10:49 PM
Goody, i pray for your brother too..hes the same age as i am, i feel for him.


About the college, i most definitly understand..my son goes to a local large university and they would never give support like you are getting with kait...im hopeing my daughter picks a small cOllege versus a large university..i believe that might be the difference here. I have to admit while i do want her to live on a campus somewhere 2-3 hrs away..its going to take me some time to get used to it..like now i pretty much know where shes going and her friends etc..when shes away,the ball is in her hands- so to speak. she didnt apply to any local schools at all..just schools 1-4 hrs away.

tsohl
01-13-2007, 11:03 PM
I don't think the distance makes that much difference! My kids both went to school in New England and we live in Wisconsin! It's so easy to communicate now that the physical distance doesn't make that much difference.

jules3
01-13-2007, 11:28 PM
:) It is very easy to communicate..just thinking along the lines of driving to pick her up for long weekends, holidays etc..

tsohl
01-13-2007, 11:59 PM
Oh yeah, forgot about that. My daughter's campus in Vermont is populated with kids from the Northeastwho all go home for those short breaks. She stays on campus during those breaks and over Thanksgiving as well. She hates to fly and it isn't worth it to come home for Thanksgiving, as they only get off from after noon on Wed. to Sunday night--and then there are only two weeks left before the end of the term. She loves it as she gets tons of work done and has the darkroom all to herself as all the other kids are home!! So she has Thanksgiving with the few remaining American kids and all the foreign students!!

I'm a big fan of smaller colleges for undergraduate school.

goody2shuz
01-14-2007, 12:14 PM
Morning, Ladies ~ Erin is still doing well....each day that goes by without any problems has me believing that we have finally found that light at the end of the tunnel....the one that I thought we would never see!!!:D I tell you this to give you hope that your day will come when you will be able to post this too. With all that is going on in my life I could really use this. Thing is, there is still this fear that the next shoe is going to drop or the next storm blow in but I am really enjoying this calm:angel:

Thanks also, everybody, for your prayers for my brother....yes Tsohl, we need a miracle, we really do. For now he is home where he wants to be. Our family has decided to fight for him to be home as much as possible....he just wants to be with his wife and kids....he thrives in that environment. Thing is, it looks like the only way his kidneys function is by having an IV line in. We are going to try to get the doctors to fight with the insurance company regarding this being done at home rather than him having to go every other day to the hospital to have that done spending hours in the ER. We know that if this continues he will probably eventually need dialysis but so long as we can keep his kidneys from failing we need to do it!! They say that his blood pressure can't run too low or it doesn't allow for enough pressure for the kidneys to filter the toxins out of his body. And on top of this they feel that his condition has caused nerve damage to the bladder that controls the emptying but he is doing his best to do that. I am not giving up hope....I know that nerves do regenerate and I am telling my SIL to keep exercising his muscles so that when the time comes that they can figure out a way to get his nerves working again he can walk. Thing is, even when he is lying down or he sits up his blood pressure shoots up skyhigh. This only use to happen when he stood up, now it is happening while he is just sitting down or lying down in bed which has my brother convinced that he will never be able to stand up again. When he transfers from bed to his wheelchair he goes int those violent tremors....that use to only happen whenever he stood up a few weeks ago......and a few months back he was still able to walk. Yes, we need that miracle girls!!

As far as college....we are lucky in the sense that either there are plenty of other students from our area with whom Kait can travel home with and some that actually have cars. But if worse comes to worse it is only a ferry ride and bus ride (the bus station is right next door to the ferry at the other end) and costs only about $35 each way so you can't beat that!! She is extremely independent....she even went by train to Penn Station/NYC and took a bus from there with another student. From when Kait was young, we took trips into NYC so she is familiar with Penn Station and Port Authority Bus Terminal.

Oh, Tsohl...I am sorry I got things mixed up with your son...I know that things were different with your son in the sense that you never saw the anger and frustration that happened when things got really bad. I would imagine that happened once he was starting that first job and things were triggered like they were with my girls earlier at home. With Erin it came after the losses of two family members in death, the hormonal surges and then the doctor placing her on antidepressants which triggered the hypomania/mania. With Kait I think things got bad with the use of Stackers with Ephedra and weed. Whether her behavior is Bipolar or the result of drug use will be determined. I am afraid that the drugs may have triggered Bipolar but we will know more as time goes by I guess.

I agree that not talking about the partying and keeping things focused on what Kait is doing in terms of overall academics and college life is what I need to do. I intend to focus on the positive things she is doing....thing is, in the past she didn't hesitate to mention that she was going out to this club and that club with her friends. That is why I was concerned in the past....seemed that she was going out to clubs at least 4 nights a week. I am hoping now that we are not sending her money that she isn't doing that and is finding better social things to do. But like you said.....the best gauge will be her grades. So far from what she has reported, she is doing quite well. She even told me yesterday that her first project for her major that she worked on with a friend ended up getting an "A" for them both. So hopefully things will continue to go well and Kait will focus less on the partying and more on the academics.

Well that's the update....hoping to hear some more good news from everybody else. Hope, I am glad that things with Zac have calmed down. And I will be interested to hear some of the answers to Tsohl's questions as well.

((((HUGS)))) to all ~ Goody:angel: :wave:

tsohl
01-14-2007, 02:51 PM
Oh Jules,
Not to belabor the college topic, but, our son went to a small (1600 students)liberal arts college in New England and they made a big point of telling us at frosh orientation that they would not be babysitting our children in any way--all mail, including grades went to the student regardless of who was paying the $35,000+ tuition bill! Their policy, while not stated in writing, but seemed evident to me, was that they always looked the other way regarding drinking and drug use. They didn't really want to know what went on in the dorms, etc. Although one time we pulled up after dark in front of our son's dorm to drop him off after dinner. Campus security swept in behind us as they thought they'd caught a kid dropping off a keg of beer for a party. So they did pay some attention, but the policy as expressed to us parents was that they were there to educate our children, but what the kids did in their private hours was not really their business. This was also the policy in the ten other colleges that were in their consortium. Colleges today, for the most part, are doing everything in their power to get parents to stop hovering. The kids are over 18, so nothing needs to go to the parents...medical issues or anything. I have been amazed that Goody could speak to someone on Kait's campus...and that they were so responsive. That just has not been my experience at all.

Just from what you've said about your son, it doesn't sound to me that his meds are quite there yet. Maybe there hasn't been enough time yet to see if they are working...but in a month or so, if things haven't improved I would look into getting something adjusted. Hope you're having a peaceful day!

best,
Tsohl

jules3
01-14-2007, 05:19 PM
Yes i definitly agree about the college thing..everything is sent to him grades, refund checks etc...I cant even get them to talk to me on the phone.its almost impossible...he is planning on going back this coming week..he is doing ok.much calmer! its just he cant take any stress..and thats a bad thing because this world is full of stress..im hopeing when the meds start working,he will be able to handle things better..that is the idea right?

goody2shuz
01-14-2007, 06:27 PM
Yes, Jules, the meds will help alot with that but they won't take care of it totally. He will have to work through the rest of it with therapy. I forgot...did you say that your son sees a therapist??? I know that our kids don't really see that as an important thing but it is....it will not be a forever thing but it will be important so that they can work with a therapist to come up with coping skills that will allow them to deal with the stress and disappointments that happen in life.

I know that this is something that will be helpful for Erin about now. Until the meds started working she really wasn't ready to work with a therapist but now I feel she is at a perfect place to work through some of the issues that need working through. Like today things were fine until she called most of her friends and they have plans.....to her that is the end of the world to have no real plans for an entire weekend. She is up in her room crying despite my trying to come up with alternatives....when she doesn't have plans it's my fault as usual. I tried to talk to her but she again needs some time. There is Youth Group at the church tonight but most of her usual friends won't be there.....I told her to try to go anyway and perhaps she will meet somebody else. I will let you know how that goes over.

Our kids are more sensitive to outside stimuli. When somebody has plans they assume they are not liked or it has something to do with them when most of the time it really doesn't. I know that this is a teenage thing as well but we cannot ignore the fact that it is 10 times more magnified with the Bipolar. I am hoping that our kids will be able to work this out in therapy, that is, desensitizing herself and building up some coping skills that will allow her to realize that not everybody will like her in life and if some people are busy it doesn't mean that you are not liked.

I know that you and I cannot teach this to our kids, how to not allow everything to penetrate through until it hurts but instead learn how to allow it to bounce off of you by building up some armor that is tough enough to repell the outside elements that sometimes make it through our kids senstive outer layer.

I think that your son will be able to do okay so long as when he comes home he eats right, gets enough sleep, and doesn't take on too much more at the same time.

When does he start classes again and how many credits will he be carrying?? I think he could use the distraction as well. I would see how it goes....if it seems to be too much then he can always drop a course right???

Erin was having such a tough time with her Advanced Math class. She had missed so much last year that it is hard for her to master the new skills that they are learning. She failed the first quarter and her Math teacher recommended that she drop down a level. She is now pulling "A"'s and feels much more confident and less stress. And she is in 3 Honor Courses and doing exceptionally well despite my concerns when she originally wanted to remain in those courses.

How does your son feel about going back to school??? I am sure that he is a a bit nervous about it but if you encourage him and reassure him that if things seem tough he can always decrease the load that may be just what he needs to hear in order to go into it with less of a worry.

Hope this helps ease your mind a little bit.

~ Goody:angel: :wave:

jules3
01-14-2007, 07:50 PM
Thanks goody,

im just sitting at this computer all day..its a very dreary ,damp day. I know this is rare but his psychiatrist is also his therapist..he sees him once a week.
This whole therapy thing is pretty new to us..about a year now..and when i tell people that he sees only him they are kind of shocked. apparently, most people see a pdoc for meds and a therapist for therapy..my sons doc is an older man..maybe thats the reason!..im not sure if its a good thing or bad???

anyway he starts school this coming wednesday,he also has a part time job that allows him to pick any 2 days a week..he is taking 12 credits. he says hes ready for it,but you never know around here..things are different every day. we can only hope and pray.
he is going to school 3 days a week..he drives.

as far as erin goes..dont you hate these 3 day weekends? they have to make plans for sunday night too. its sounds to me that she has a low self-esteem,,my 18 yr old is the same way..part of it is a girl thing..you dont see it that much with boys. they tend to see black or white..girls look for all things in between. its so hard having kids this age,,throw in their problems and its a nightmare.

goody2shuz
01-14-2007, 08:45 PM
Jules ~ I think that it is good that the pdoc serves as his therapist as well. I believe you said that your son likes this one, right??? Or is this the one he thinks treats him like a baby??? Going weekly is good because the pdoc probably can measure his response to the meds and whether any adjustments need to be made.

I think that our kids sense our anxiety about issues and if we remain calm and optimistic they will extend off of that. So try not to worry about how your son is going to handle going back.....I am sure that he will have his good days and bad days and you should give him plenty of time to adjust himself. It is good that his job allows such flexibility for him to pick his days around his school schedule.

Yes...this day has been chilly and dreary...lots of fog where I am. I stayed in and relaxed....I don't want to go out in the chill since I am still recuperating from this cold/infection I have had.

Yes, girls already have more drama than boys...add Bipolar to that and it is something to be seen:)

I think that the day your son gets back to school is a day you should go treat yourself to a manicure or something to mark some of the freedom you will have.

Hang in there....only 3 more days!!! ~ Goody:angel: :wave:

jules3
01-14-2007, 11:19 PM
Yes goody, this is his original pdoc that he says treated him like a baby..but lasts weeks visit he told the doc how he felt about him. the doc apoligized believe it or not? than the doc told him to please tell him if he has any other issues with the way he treats him..my son was happy with that..so good, otherwise he would definitly hold a grudge. (not good)...

tsohl
01-15-2007, 04:50 PM
Hi Jules,
If you feel this pdoc is competent and experienced in treating bipolar, you are lucky indeed. I can see the advantages of having the same person doing therapy and prescribing. This is how it was done in the "olden days." I have heard older pdocs on TV and in books lamenting that recently trained docs are trained to rely almost entirely on pharmaceuticals and they don't realize the power of therapy, nor do they receive training in it. It is good for your son to learn to work with someone, too and to speak up for himself and say when he doesn't like the way he's been treated.

How are things going today?

tsohl
01-15-2007, 04:51 PM
Hope~

I'm thinking about you today...hoping you had a good weekend and some well-deserved rest and relaxation...do you remember what that is?

best,
Tsohl

jules3
01-15-2007, 05:32 PM
Things are good today..thanks for asking..his pdoc really just asks questions and listens. i dont feel like hes a good therapist. but, maybe someday my son will take it upon himself to find a therapist to help him learn how to cope with lifes stresses. for now as long as there are no major stresses in his life, hes ok. im sure you know what i mean. he is definitly taking his meds, and says they are helping a little..thats a good sign!:)

tsohl
01-15-2007, 06:02 PM
Hi Jules,
Good news that he's taking his meds and thinks they are helping. As time goes on and he starts to see that he's feeling better and that it feels good to feel better, you'll be on your way!!

langlee
01-15-2007, 08:06 PM
Hi All,

The weekend was much calmer (thank goodness!) and we have started the week in a good place. Zac seems more focused and I am just thankful for the calm.

Jules, I'm thrilled to hear that your son is starting to feel a little better. That's great news!

Goody, I'm also thrilled that Erin's meds seem to be the right combination for her! Yea!

Tsohl, you asked about Zac's school and his relationship with my husband. I'll answer the question about the school first. It's easier! We live in an upper middle class-wealthy community. The wealthy are tremdously wealthy and anything and everything they desire can be theirs. Our high school is very, very competitive and from the day the kids walk into freshman year, the focus is on which Ivy League college they will go to and what it will take to get there. We have a high number of kids who go to Ivy League schools and something like 99% of the kids in the high school go on to college. The focus seems to be less on learning, other than the isolated teacher, and more on gradepoint. Zac is extremely bright and certainly intelligent enough to thrive in this high school, but he has never been driven by grades. He is naturally intelligent, very well read, has a million interests, but is guided by passion, rather than discipline. Bipolar aside, he is a fairly alternative kid and has always marched to his own drummer. He is someone you would love to have a conversation with and would walk away thinking how interesting and personable and respectful he was. This high school is really not for him. It's interesting because one of the reasons that we chose to live in this town was because of the school system. It is consistently ranked as one of the best in the state, but it is too cookie-cutter for a kid like Zac. If we can get the bipolar stabillized, I believe there are many schools where Zac could be happier, where his interests and his talents and his gifts would be nurtured, but our high school is not it.

Thanks for asking.

More later. Dinner is almost done!

Love,

Hope

tsohl
01-15-2007, 08:18 PM
Hope,
Did Zac ever attend classes there, or did his problems start before classes began?

jules3
01-15-2007, 08:23 PM
I dont know your religion..How about a catholic high school? they tend to be smaller.

langlee
01-15-2007, 09:54 PM
Zac did attend all of freshman year and he started having problems immediately. He was a star in elementary school, started having emotional issues in Middle School, but kept up all of his grades and activities, but the high school was another story. It was because of his steady decline, both emotionally and academically, along with some other suspicions, that first brought me to the psychiatrist with him in the fall of his freshman year. He continued to implode, especially after my mother died in March. It was a hard, hard year, but we thought we were past the worst of it until he cut himself severely the night before school started. The rest I think you know.

He seems to be in a better place and we are going to transition very slowly. I explained to him that we agree we have to find a better school for him, but I can't even begin to figure out where that is until I see him starting to function in an academic environment. I don't want to set him up to fail and he needs to be more stabilized and more ready to handle the stress (there will always be stress, even in a school he loves!). I also want to make sure that he is not fantasizing that all of his problems will be solved with a new school and then have him crumble the first time there is a problem.

I do believe he would thrive in an environment where the classes are small and the teachers could work closely with him. He is definitely motivated by his interests and close human interaction and I know, in my heart of hearts, that there is somewhere out there that is right for him. First, he has to get through the rest of the year but, in the meantime, my search continues.

I'll write more about his relationship with my husband in another post.

Thanks for asking about him.

Love,

Hope

goody2shuz
01-15-2007, 10:22 PM
Hope ~ I totally can relate with how you describe your school district and how their thinking is in terms of producing Ivy League students.....for that is how our old school district worked. The competition and emphasis on grades is high pressure for any student but with our kids it makes it even more difficult to fit into those demographics without them sacrificing their emotional/mental well being. That is part of the reason we decided to keep Erin where she was, even though we were so tempted to go back where she could start over again after her hospitalization (remember, she had gone through the old school district her entire life and we still hadn't sold that home so that gave us two options to choose from) The biggest factor was just as you described....the old school was large and there were so many wealthy families and the percentage of students that were gifted were close to 30%. In fact....many times the students there were in competition for the same slots at the colleges which made it difficult for a student with a 3.8 to get into the college of his/her choice. That is why Kait chose to do her Senior year in the state where the college of her choice was which so happened to be where my brother lived, figuring she would have a much greater chance of getting in as an in state student rather than from her high school. She was an Honor Student and yet there were so many others with higher GPA's than her.

Anyway...I think that you are wise to find another way for Zac to continue his schooling. Something that will support his gifts and yet not focus on the competition of getting the best grades to go to the best schools. I found that my thinking changed regarding Erin once we went through all that we had. I realized that her emotional well being was far more important than the grades she would get. Amazingly as we backed off on the grades she worked on other issues and now at this point in time is able to get into her studies and interests much more. When she first went back she had some problems getting motivated and we took a giant step back to see how she would handle things on her own. We were worried when some of her grades were not her usual....in fact she failed Math her first quarter but she came to the decision to drop down from advanced to a regular class and up to an Honors class in History so that she could keep the same teacher. It was a treadeoff that is working well for her and she feels so much better now that she understands the math.

I sure hope that Zac can get back to the functional level of getting back to school. What does he feel he can handle, Hope??? Does he feel as if he needs to drop down in some of his course to take some of the pressure off??? There was a time that I even was willing to accept Erin having to repeat a year of school if need be.....I just wanted her to feel the least amount of stress as possible.

Okay....today Erin was quite irritable....she even noticed it and listen to this....she tells me that she thinks it is the increase in her Lamictal....she reminded me that whenever there is an increase she is more agitated the first few days. I was amazed that she noticed that because she is right. It was another reminder of how far we have come and how in tune Erin is with her progress and what is going on. I also noted that she was more manic than usual....we took one of her friends shopping with us and Erin was quite loud and sometimes obnoxious. I had read that sometimes the Lamictal can increase mania so I am going to keep an eye on that. We also saw more of the mission mode going on today....she had to eat when she wanted to a nd had to have the gum that she didn't get last time we went shopping and she argued for sometime about the inappropriate attire she wanted to wear....I stood my ground and she eventually changed but not without an ongoin argument. But we survived.

Now there is also news from Kait....she told me that she is going out with a boy. I asked a little bit about him...and she told me that she was a little concerned because when she went to his room she noticed he takes some meds. When he saw that she had seen them he informed her that he was Bipolar. She went on to tell me that she is worried because she looked up his meds and one of them is for Schizophrenia:D She went on to tell me that the name of the med is Zyprexa. She sounded concerned and said that she didn't know if she could deal with both Bipolar and Schizophrenia.:dizzy: I must admit I laughed as she was telling me this and I told her that just because the med was used for schizophrenia didn't necessarily mean that the person had schizophrenia and that Zyprexa is used for Bipolar too. She went on to tell me that she is worried about her suite mate who is Bipolar....that she was waiting for her meds in the mail once again and hadn't taken any in a few days and was crying alot. I told Kait that if she was concerned to have her suitemate call her mother because her mom would know what to do. I then asked her where she met her new boyfriend and she mentioned a teen club that I know she likes to go to. I reminded her how bad it was for somebody who was Bipolar to drink or use drugs and to take the meds they are perscribed. And I thought about the irony of all of this.....how Kait now has a suitemate who is Bipolar and a boyfriend. God must have a great sense of humor!!:angel:

Tsohl.....any thoughts on this??? I just know that you have some and would love to hear them.;) Anybody else who has any is more than welcome to share as well.

Well that's the news....there is NEVER a dull moment here is there???

Hang in there girls.....I'm trying to do the same.

((((HUGS))))) ~ Goody:angel: :wave:

tsohl
01-15-2007, 10:39 PM
Questions first, Goody....is the new boyfriend at the college with Kait?

jules3
01-15-2007, 10:40 PM
Goody,, my son was on zyprexa and he was never diagnosed with schizophrenia. its just one of the many medications out there. so dont worry about that. that is very ironic huh? well at least she has some experience dealing with bipolarism.

goody2shuz
01-15-2007, 10:49 PM
Tsohl ~ From the little bit of info that I gathered I am assuming he does go to the same school especially since she said that she had seen his meds in his room. Kait doesn't have a car so that also makes me think that he goes to her school. What do you think??? When we spoke I was on line in a store so we didn't talk all that long. ~ Goody:angel: :wave:

tsohl
01-15-2007, 11:31 PM
Hi Goody ~

First if I were you, I wouldn't be too concerned at this point!! Maybe it's God's way of helping her to learn about bipolar disorder.

goody2shuz
01-16-2007, 12:01 AM
Tsohl ~ I am not too concerned about Kait any more than I have already been concerned....I just do worry about her influence on Erin as an older sis in the sense that first she has a Bipolar suitemate who obviously isn't compliant with her meds and now her first BF who is also and most likely drinking while on meds since the two of them did meet up in a club. I know that Kait and Erin talk alot and I guess what worries me the most is Erin's newfound stability and anything that may threaten that.

On the other hand.....this may help Erin see how college choices can affect her stability in the future by her following how Kait's friends do when not compliant on their meds. I did share with Erin today about Kait telling me how her suitemate is crying more often after not taking her meds for just a few days.

I sure hope that what I said is not misinterpreted....I am mainly sharing my concerns for Erin's future and how it hits home seeing how all that we have fought for may still be at risk once she goes to college since I now see two of Kait's peers with Bipolar not making wise choices. I know it is a reality down the road that we may have to face and having just found stability I am just hoping that Erin is prepared for all that.

Oh well.... if anything it will definitely be interesting seeing how this all works out. And I do agree, Tsohl, this may actually be a blessing in disguise.;)

Sweet Dreams, Ladies:yawn: ~ Goody:angel: :wave:

tsohl
01-16-2007, 04:08 PM
Hello Goody ~

I totally missed your point of concern!! I was just thinking about how it would effect Kate, not thinking about Erin. Here's where you knowing your girls so well enters in!! I didn't realize they talked all the time and were that close. I guess that could present some problems...but, hopefully, Erin will realize how much better she's functioning on the meds...and the longer she is on the meds, the better chance you have for compliance in the future. Taking pills becomes sort of like brushing your teeth, or putting on make-up, if Erin wears any. It's just part of your daily routine....no big deal.
Our son was on 6 or 7 meds at one point and some were 3xday, some 2 and some once a day. I would have had a hard time keeping it all straight...but on Sundays, he'd set it up for the week, and he never had problems. Now life is easy...down to 3, I think.

You know, Erin has several years of high school left, and she'll have therapy during at least part of that time. She should have her BP pretty well managed by the time she goes off to college. If anything I would think this might be helpful in that Kait should see how her roommate behaves when she's off meds, compared to when she's on them, which might lead to her encouraging Erin to take her meds. Who knows how these girls' minds work??
Or any kids for that matter....

How's your brother? Have they "met" with the guy from Vanderbilt yet?
Hope you're feeling better and more healthy and well-rested. best, Tsohl

langlee
01-17-2007, 03:26 PM
Hi All,

Well, I just got back from another meeting with the school and we were able to have Zac classified. All that really means is that we will get additional support and resources to help him with his transition back. (very, very slowly)

What I find so frustrating is how diminished I feel. I sense in these meetings an undercurrent of judgment on their part. Comments like "what Zac needs now is consistency" or "we have other bipolar students and they aren't having problems like Zac" or "we heard he was often late for his outpatient program".

I feel like screaming! I feel like we have done nothing but try to figure out the best plan for Zac, that every bipolar person is different, that the IOP failed us in so many ways that I can't even begin to address the 10 minutes late issue! I feel like I have done my research, asked for recommendations, put my faith and hope in various mental health professionals, put my faith in the school and we are still fighting this disease alone! Everyone sees the world through their limited vantage point, but where are the people who are really concerned about Zac?

Zac first started experiencing problems in Middle School. He threatened to kill himself in an e-mail to a friend and we had to have him evaluated to get him back into school. He started self-injuring in Middle School and they knew about it. His guidance counselor told us he thought Zac was a likely candidate for substance abuse. Yet, not one single resource was given to us, not one singe recommendation of how we could help our son, not even a meeting with the Child Study Team.

The Intensive Outpatient Program Zac attended earlier this year seemed like a godsend when we first found it. it was a brand new program and emphasized the whole child, not just the "getting better" part. We liked that concept and were thrilled that we had found such a program. It was supposed to run approximately 4 weeks and, although we had a few bumps and a few false promises, we were genrally happy with the program. At the end of 4 weeks, they decided they didn't think Zac was ready to leave, but didn't seem to really have a plan what to do next. Zac started to flounder. We started to ask more questions about what the plan was, we were getting concerned about the open-endedness of it and the finances because, at $350/day out-of-pocket (they don't take insurance, although we are supposed to receive out-of-network benefits, which have still not been paid), it was becoming cost-prohibiitve and we didn't see a plan for next steps or transitioning him out. (He was the only patient there for most of the time he was there) We were continually assured by the director there, who was also the main therapist, that if money became an issue, we would work something out. We paid them over $15,000 and had a balance of about $1500.00 which was due right around the time my sister died. The director's brother was one of her main investors and he asked about the balance in every phone call, even on the call when he was expressing condolences about my sister and on the call when we told him Zac was being taken by ambulance to the in-patient hospital.

We went to the office on the day before Zac was to be released from in-patient to talk to the therapist about the transition plan. While we were becoming disenchanted with their program, we always assumed she would continue as his therapist (she has a private practice as well) She informed us that she could not speak to us until we paid our balance - that the "owner" was insisting. We were flabbergasted! Not only had we paid them so much money and she had promised she would never let money become the major issue, but the fact that we were dealing with so much crisis in such a short period of time! I could not believe the inhumanity!

And so, today, I am disheartened because I feel like we have been through so much already and I still feel like we are alone. (except for all of you!) I'm tired of feeling like I'm on the defense against everybody, of having to explain myself, advocate for my son, fight with insurance, listen to the therapsits all blame each other, etc., etc.

OK-I'm done! I needed to vent!

Hope

tsohl
01-17-2007, 04:10 PM
Hi Hope,

I am sorry you had such a bad experience with the school today...and, with the other program for Zac. I went through something similar with our son, even though he was through school. It really hurts when you are worried to death about your son's very survival and the professional that you are depending on to save your son totally drops the ball. You realize he/she doesn't really care about YOUR child...that it is just another patient to the doctor. I remember feeling completely helpless and betrayed, wondering what on earth were we going to do next. And of course, this is all new territory...you don't have any prior experience to fall back on. As my kids would say, it really sucks. It does seem to be a field, more than any other I've been involved with, who are eager to pass the blame onto another colleague.

I hate to sound like a broken record, but have you contacted the local NAMI group in your area? It sounds like you could really use some support from someone in your area who is familiar with the resources that would be available to you.

Please feel free to vent. I am always happy to hear from you...just sorry for the reason this time.

Love,
Tsohl

tsohl
01-17-2007, 04:17 PM
Jules ~ How are things in your world?

goody2shuz
01-17-2007, 05:18 PM
Dear, dear Hope ~ I really feel you pain and disappointment and believe me there are times that I feel as if I am fighting this battle all alone myself....I know each of us has been there and done that and it certainly doesn't make it easy feeling that you are in this alone. I totally agree with Tsohl's advice...make a call to NAMI and express the roadblocks you feel are in your way and see if they may assist you by recommending some resources available to you.

Wow....this all has placed such a financial burden on you. And I can only imagine how frustrating it must feel to feel as if you really haven't gotten very far but you have, Hope. It may not feel like it but you are much more aware and stronger for it all as is Zac...he just doesn't realize it yet. When the meds kick in all of this will make sense and come into play. right now it seems as if you aren't any further than when you first started but you are. You just can't see it as of yet because Zac isn't stabilized yet.

It may make you feel better to hear that things in my camp aren't exactly going well. Another setback has occurred. As I have shared, the last few days Erin has been more argumentative, angry and agitated. And those nights she has been going to bed right after dinner claiming that she needs more sleep. This is around 7pm or so which is quite early. Last night while on the phone with a friend I looked outside the window and saw a flashlight in the backyard garden next to our house below Erin's window. It turned out to be Erin and she claimed that something fell out of her window and she was looking for it. She claimed it was her concealer (makeup). Later that night I checked her cell phone for calls/texts and the last one out was to a boy which said..."I just smoked the fattest f***in blunt in my life and I am so horny!!" It seemed to make sense. She went to school today and hubby and I searched her room and only saw evidence of ash on her window sill and floor around the window. Hubby looked further in the garden for some evidence but came up with nothing. We decided that we would confront her and drug test her with hubby doing most of the talking.

Well the entire thing sort of backfired when Erin walked in the door and started in with her attitude demanding a note to cover her missing play practice yesterday when we went to the doctor and how mad she was when we wouldn't allow her to stay after school for a half hour because play practice was a half hour earlier than usual but she failed to return the copy of the play schedule the last time she removed it from our fridge and as far as I was concerned play practice was what I last saw unless the director called or she gave me a different schedule. I already had the note written out in preparation....Erin continued to get upset saying how she was tired of being mistrusted and said that she stopped smoking weed blah blah blah and I asked her if she really had. This had her fuming and screaming how I twist everything around....and she blurted out how she had sent that text (which I still hadn't disclosed) because she wanted him to text her back. She then said she wasn't smoking weed and I could even do a drug test...I calmly told her that hubby and I planned to do just that. She continued yelling how I can't punish her for nothing until I did a drug test....I told her she was not punished and I never had punished her for nothing and never would. All this time she was yelling and started crying....I told her that there was no reason to get upset, that we would talk more about it later when she was calmer and after her play practice. She continued yelling and I told her that I didn't want to talk to her while she was in such a state and to drop it. She continued on.....I walked away and she followed. She said she was only smoking cigarettes and I told her that still was not something we okayed in our home, that even her dad smoked outside when he smoked. She told me that I was always making things up about her like I did yesterday when I told her that I had taken her out shopping and said it was because she made her (which was not what I said). I clarified it and she told me I was a liar. I once again told her to drop it...she persisted and I told her that it was obvious to me that something was causing her behavior and that she has progressively getting worse each day and blaming me for it. She cried saying I was a liar and made her feel bad, I told her that wasn't true and that she was misinterpreting everything to be something it wasn't and that was part of her Bipolar. She screamed that she didn't want to hear anything about Bipolar and that she was going outside to get away from me and called me a b***ch and a liar and stormed out the door. She came in with hubby behind her 5 minutes later yelling about how I made her worse and how she hated me and blah blah blah. This is how Erin is when she is unstable. She is at play practice and I don't know what to make of this. The thing is....why would she demand a drug test when everything seems to point towards her smoking weed....the looking for something that she dropped out her window....the text message, the behavior???

I am hoping that those who have seen their kids behavior when they used drugs or alcohol with their meds would be able to shed some light on this.

Can you believe this??? I was really convinced this time that we were doing so well and now this!! I KNOW....it's not the end of the world and I would be kidding myself to think that things are going to be continuously stable but I really thought we would have a longer period of stability.

I don't know what to believe anymore....what is the truth and what is a lie??? The thing I want to tell Erin when she is able to hear it is that there is way too much to risk when she adds alcohol and drugs to the equation. And if she didn't smoke weed why would she text a boy telling him that she did????

All I know is that she is in a panic mode and her behavior was on the defense before I even said a thing.....what is with that. I am hoping that you wonderful people here could tell me what your thoughts are and how you think we best handle it. I have some ideas and just would like to see if it correlates with your suggestions.

And yes, Jules, how are things in your camp??

((((HUGS)))) ~ Goody:angel: :wave:

langlee
01-17-2007, 05:41 PM
Thanks, guys!

Goody, it doesn't make me feel better to hear that Erin is so out-of-control right now, but I'm here for you. I have witnessed the same behavior with Zac, the defensive/offensive stance, almost an "I dare you" to show that he's being trodden upon for no reason! It certainly sounds to me like she used pot. How did she get to the garden? Did she climb out of the window?

I'm anxious to hear other's responses, too, because I have not come up with a good solution to this behavior. When Zac is rational, I can have all kinds of discussions with him and promises from him, but they don't seem to hold any weight when he's acting out. The lying is an ongoing problem, too. He makes an effort to show me that he is not lying anymore and will tell me things he thinks I should know (and then makes a big point of telling me that he's trying to be truthful), but then I find there are still things he hides.

I'd love to know how you are planning to handle this. You are always so wise!

Jules, we're all looking for you! How are things in your house today?

Love,

Hope

PS I'm going to reach out to NAMI. Thanks.

goody2shuz
01-17-2007, 06:07 PM
Hi, Hope ~ I didn't mean that you would be happy about out situation....I just thought it would comfort you to know that you are not alone even when you feel as if you are. I know that I wish the same stability and happy ending for each of our kids.....I guess the reality is that even with stability this is going to be a forever thing. I know that even once I get around this bend there will be the other concerns regarding Erin's future such as how she will manage other relationships in her life and then if she is on meds all of her life will she be able to have kids without affecting her stability. I look at the other posters here who have bipolar and how it affects almost every aspect of their lives and it really scares me what is in Erin's future. I know that finding the right meds is only part of the solution, there is alot more to it and it will involve her wanting to have a better life and understanding what Bipolar is and how she can work towards making her life better. But she will have to want that for herself....as much as I want it for her it won't happen unless she wants it as much if not more.

Oh well....I guess the first thing we will do is a home drug test that we had gotten from a friend who is a probation officer. It is fairly accurate and if it comes out negative I will follow up with a test at the lab tomorrow.

If Erin is as agitated as she was before there will be no rationalizing with her. We will wait to talk to her when she is calmer.

I will keep you posted. ~ Goody

langlee
01-17-2007, 06:25 PM
Oh, Goody -

I know that you didn't mean that I would be happy! It is comforting to know that others share the struggle, but I'm looking forward to hearing that each of our kids is finding sustained stability.

I am so aware of the fact that Zac is 16 and time is ticking. I desperately want him to be in a better place where is able to self-regulate by the time he is 18. Once he hits 18, I know we have alot less input. My goal for him is the same as yours is for Erin. While I know he will always face challenges, I want him to be able to meet the challenges and continue on. This derailment stuff is too exhausting for everyone!

And so we continue to carry on. For now, I am sending the school psychologist a summary of our understanding today so there is no confusion.

Zac just screamed at me because I made a dentist's appointment for Saturday and he doesn't want to go. I cannot seem to make him understand that all of our lives would be immeasurably better if he could just tell me calmly why it doesn't work for him and I will be happy to change it.

I am so tired of the Dr. Jekyll and Mr. Hyde life - I could ask him the exact same question two different times and get two totally different responses. It drives me crazy and I feel so battered emotionally.

Oh well - one day at a time, one day at a time.

Love,

Hope

tsohl
01-17-2007, 06:54 PM
Hope,
Who (not names, but positions, like school psychologist, social worker, etc.)
is it that you are dealing with at school? Like, who was it that told you they had other bipolars and they were much easier to deal with...or whatever it was that person said?

goody2shuz
01-17-2007, 07:30 PM
Well the test is negative and for the past hour or so things have been quite volatile....Erin has been yelling and bringing up all sorts of things of the past that happened when she was unstable and not diagnosed that she had either misinterpreted or distorted. The things she was saying she really believed to be true and there was absolutely no rationalizing with her....it is as if she really believes what she is saying to be true and there is nothing I can say or do to change her interpretation (or misinterpretation I should say) of what she is really thinking right now. I am wrong, a liar, to blame and she doesn't like me. She told me that when we went to the therapist yesterday and we were doing the intake that I was saying things that were untrue (and I didn't she was argumentative even then) She always seems to direct her anger towards me......it was the first real meltdown we have had in months and I have no idea where it is coming from. Erin says that she has her period so that may be adding to it but it is far more than that.

Hubby and I are seeing something very familiar.....it is almost as if she is in a place before she was diagnosed....the hypomania is strong and I don't know where it is coming from. It is almost as if she is unmedicated again. I am worried because this usually precedes something bad like self injury or suicidal attempts. Hubby went up to talk to Erin and told her that we are concerned about her behavior and since it isn't due to the weed we are quite worried about where it is coming from.

She did bring down cigarettes, incense and the crank to open her window at the request of hubby.

This is really a nightmare....I feel as if we are back to square one again.

~ Goody:angel: :wave:

tsohl
01-17-2007, 07:54 PM
Goody,
Does Erin have her period now?
Something has to have set this off. What has she done differently? Any OTC meds? Foods, drink...other drugs? Could something have happened at school like a big fight with a friend or boyfriend, or something with a teacher and she is just taking out her rage on you, being the most available target?

goody2shuz
01-17-2007, 08:13 PM
Erin says that she has her period so that may be adding to it but it is far more than that.....

As I said in my previous post she did say that she has her period but I think there is more to it than that....yes Tsohl there must be more to it....right now she is blasting her music about broken hearts and the such.

Yesterday when we were doing our intake and the therapist asked Erin why she was last hospitalized she told her because she broke her probation. The therapist asked what she did to break her probation and she told her that she saw her boyfriend.

Tonight the last thing she said going up to her room was that the only one who really understood her depression was Victor and we wouldn't let her see him even after her probation was over.

Yesterday she came home and told me that she had been in to see the school pyschologist about a friend of hers who she is worried aboout who's boyfriend is having sex with her and didn't use protection. She told me that the school psychologist was trying to call me about me bringing her friend to Planned Parenthood. I asked Erin who's idea it was to call me and she said hers. I told Erin that the best thing to do is to get her friend to talk to her mom about this because her mom should help her make those decisions. Erin said she was afraid to talk to her mom. I told her then it was best if her boyfriend and her both went to Planned Parenthood because this was both their responsibility and would be the mature thing to do. Erin went on to say that she hates her friend's boyfriend because he is selfish and only thinks about his needs and she thinks that he is emotionally abusive to her friend. I told her that it was important for her friend to talk to somebody about that. I told Erin I would think more on it but for now I didn't think the solution would be for me to bring her friend to Planned Parenthood. This is one of the problems Erin has....she has a friend and latches on so tight that even the boyfriend becomes a threat....any friends she has had if they spend more time with others Erin gets extremely upset. So I don't know if her dislike of this boyfriend is because he really mistreats her friend or is a threat to Erin.

I am sure that other things are going on......for now I am just giving Erin her space. It is obvious that I am not going to help and if she wants my help she will come to me. She is just so angry and it has been getting worse over the past 4 days. Her period started on Monday.

So, yes, I am sure something triggered this and we have yet to identify it.

Thanks, Tsohl ~ Goody:angel: :wave:

tsohl
01-17-2007, 09:02 PM
Hi Goody,

I'm "thinking" out loud here--would you assume that there is some reason other than sleep that has taken her up to her room right after dinner? And how long has this been going on? Didn't she just have her meds adjusted?
Do you think the story about going into the school psychologist was really about a friend, or could it have been about Erin?

I've kind of lost track of Victor--I remember him, etc. but is he at this school or did she know him at your old house/school? You haven't mentioned him since she was in the hospital. Has he been a constant in her conversations or was this somewhat unusual for her to bring this up last night?

Who was the appointment with yesterday?
Have you noticed her pupils being dilated?? How about a change in appetite?
To me the incense is a cover for something else going on--smoking--

Obviously something is making her very irritable and if she isn't smoking pot (which shouldn't make her irritable exactly, but could set off hypomania), it must be some social relationship from school. She is probably holding everything together at school, and feels like she's going to explode, but she controls it until she gets home, into a "safe" environment.

I guess all you can do is keep trying to piece it together and keep an eye on her and call the pdoc if things start to escalate....weren't you just saying yesterday about being afraid the other shoe would drop? Well, not that it's worth much, but I'm here for you...and for Hope. You guys always seem to have the down times at the same time. Hugs and love, Tsohl

mamiacp
01-17-2007, 09:31 PM
Goody,

This is just an observation from your post and maybe something you can ask her doctor. Your daughter sounds so, so much like ours. Is this behavior really the same as before she was diagnosed and unstable. The reason I ask because you write that she is able to bring up yesterday's session with her doctor, past events and blame you then it sounds more like manipulation and trying to pull you in. When our daughter was really manic and psychotic the things she said were really totally irrational and had nothing to do with the present. She would talk non-stop with the pressured speech repeating the same sentences over and over. For example she had been reading The Diaries of Anne Frank and thought Hitler would have her exterminated and was hysterical with irrational fear. She would sit in her room and scream at the top of her lungs and had the look of, for lack of better words, as if she was possessed. Now when she is angry, she brings up situations that she does not want to take responsibility for and throws it all on everyone else. It is really different, just like a tantrum. Her doctor said this is the difference in mania/being psychotic and defiant behavior. Her doctor says and tells her very clearly "You are not sick right now. You are stable but want to blame everyone for your mistakes." We have been told very clearly not to explain the "why" questions and demands she makes. I have always over explained and tried to make her see the truth of the matter when she is baiting us to pull us into a confrontation. That has been really hard for me to change, but now I only explain when she is being reasonable. We were iced in today with no school and twice she came by my bedroom door with the mopy face, looked at me and said "Never mind". Clearly she was trying to bait me.

One other thought. I remember you saying she takes Seroquel at night as my daughter does. Ours also take a 25 mg during the day. It is not enough to make her sleepy, but keeps her more even thoughout the day.

I hope tomorrow is a better day for you, her and the rest of the family. I totally understand how this can just leave everyone spent and exhausted.

There will be brighter days.

Cristina

goody2shuz
01-17-2007, 09:59 PM
I'm "thinking" out loud here--would you assume that there is some reason other than sleep that has taken her up to her room right after dinner? And how long has this been going on? Didn't she just have her meds adjusted? Do you think the story about going into the school psychologist was really about a friend, or could it have been about Erin? This past weekend when she had no plans with friends Erin got upset saying that she was the only one without plans. I explained that sometimes there were times that everyone was busy....her best girlfriend was away at a volleyball tournament and she seemed to be a lost puppy. I tried to keep her busy suggesting we go out together but she refused. Her going up to bed early started over the weekend....I believe Sunday night when she was upset not having any plans. And yes....her Lamictal was increased on Jan. 7th and then again on the 14th so originally I was thinking it was the increase because in the past we did see an increase in agitation. As far as the psychologist meeting I do believe it was for the friend....I had taken Erin to Planned Parenthood last April just after she had runaway, shoplifted and demonstrated such unusual behavior......as her mom seeing how she had been having inappropriate sexual conversations with boys I thought it was the right thing to do. This was shortly before she had snuck Victor into her room....and only a few weeks after she had runaway to his house. She is on the pill so I KNOW that this is not about her.

I've kind of lost track of Victor--I remember him, etc. but is he at this school or did she know him at your old house/school? You haven't mentioned him since she was in the hospital. Has he been a constant in her conversations or was this somewhat unusual for her to bring this up last night? Victor does attend the same school as Erin. He has a new girlfriend and it has been difficult for Erin to see him with another girl as you can imagine. She talks about him every now and then....she last asked me how long it takes to heal from a broken heart or forget about somebody you loved. I told her that it varies but that you eventually do heal and that before one meets their husband/wife there will be many heartbreaks but that time and meeting the right person will heal the hurt. She only has spoken to me about him 3 or 4 times....I am sure that seeing him and not having another boyfriend makes it difficult. I guess she sees her friend with a boyfriend.....she has shown interest in other boys but when they don't work out I guess it hurts. The last thing Erin said was that she felt bad about not liking Victor's girlfriend because in getting to know her in one of her classes she thinks that she is really nice. She talked about this about a week ago and I took it as acceptance on her part. That is until yesterday and today.

Who was the appointment with yesterday?
Have you noticed her pupils being dilated?? How about a change in appetite?
To me the incense is a cover for something else going on--smoking-- We went for the intake at the small clinic where Erin will have a new pdoc and start individual therapy with a therapist. We were on a waiting list and finally got the call. The intake was done by the therapist. I must say that she wasn't really too warm and Erin's attitude really distracted me from what I would have liked to express. She was pressed for time and didn't think we would finish but Erin was seen by this clinic before the wraparound service was ready to take us only for one pdoc appointment so they had most of the information. No, Erin's pupils are not dilated....she has been making an effort of eating healthier, cutting out junk food, soda, snacks and has lost a few pounds and was happy about that because she had some residual weight she had put on with the Risperdal. Incense has been something she has used in the past.....we were open to her using it but now with what has happened of late there is no more incense. She admitted to smolking cigarettes once in a while and turned over the pack of cigs.

Obviously something is making her very irritable and if she isn't smoking pot (which shouldn't make her irritable exactly, but could set off hypomania), it must be some social relationship from school. She is probably holding everything together at school, and feels like she's going to explode, but she controls it until she gets home, into a "safe" environment. I am beginning to agree....she let alot out over the weekend and she was upset and crying when she had no plans saying that no high school student had no plans on the weekends. I told her that perhaps she should involve herself in more activities at school so that she would meet others who had similar interests. She hasn't hung out with her best guy friend because he is hanging out with another girl she has chosen to not hang out with him because she feels that he has found a new best girl friend. I try to gently explain how she makes these choices for herself and may be sabotaging her friendships because they don't go the way she thinks they should go at any particular time OR perhaps misinterprets somebody elses intentions. I think that this is the biggest issue Erin has that she needs to work on otherwise she will find herself alone and friendless. I have read that it is difficult for somebody who is Bipolar to deal with social situations and that is a big factor of that they need to address in their overall treatment. I am seeing that is a significant ongoing struggle with Erin. I know that it is already a big part of a high school teen but one who is Bipolar and has so many other things to deal with I would imagine that is what is the hardest part of what Erin must face at this time in her life.

I guess all you can do is keep trying to piece it together and keep an eye on her and call the pdoc if things start to escalate....weren't you just saying yesterday about being afraid the other shoe would drop? Well, not that it's worth much, but I'm here for you...and for Hope. You guys always seem to have the down times at the same time. Hugs and love, Tsohl You're being here is worth quite alot and yes...it was just yesterday how I was saying that it isn't easy not thinking that the other shoe is going to drop when that is all that seems to keep happening.

Thanks for all the hugs and love....I really need it ~ Goody:angel: :wave:

jules3
01-17-2007, 10:04 PM
Hi guys, things are just ok over here..he started school today.. already seems a little stressed. we tried to talk to him tonite, he didnt like it,felt like we were ganging up on him..not so, at all. so, he just grabs the keys says im going out and slams the door..thats the difference between kids and 20 yr olds..they drive! and its scarey. and if we try to take the keys away all hell breaks loose. just like what you guys have going on now. things have been ok the past few days..i do see that hes trying and he is taking his meds..but i know they are not going to make him perfect..all i want is for him to learn how to deal a little better with stresses.

Ts, you mentioned dilated pupils.. i know my son does not smoke weed. but his problem has been pills in the past..pain pills and stuff like that which is rampant among teens and young adults even adults will make your pupils pinpoint. goody and hope, whether or not your kids are mentioning it to you, it has become a huge problem nowadays with kids in the middle to upper middle class communities. they are all over the place! while i know pot is an issue, this has become bigger and very accesabile to our kids..when you buy those over the counter drug tests , get the one that checks for 12 drugs including opiates and benzos..they are the more expensive ones in cvs ,eckerds etc... not to scare you at all, just to be on the safe side.

my son has been testing negative, havent tested him in a while..hopefully, hes aware of the consquences of taking illegal drugs and all his prescribed drugs. but, you never know!

jules3
01-17-2007, 10:15 PM
Ts, i got the book today TAMING BIPOLAR and already read half of it..it is very good in the sense that its easy to read and understand. thanks again:)

tsohl
01-17-2007, 10:29 PM
Hi Jules,

it is an easy "read" but it might be something your son would be willing to read and it covers quite a number of topics -- good to just have to grab when you want to review something....

When you didn't post for a couple days I was worried something was wrong--well it was...but it was with Hope and Goody!!

Did your son decide to take the full amount he'd registered for? Hope that works out ok...he may have to learn by trial and error....I know it's hard to tell a 20-year old anything.

Take care,
Tsohl

goody2shuz
01-17-2007, 10:31 PM
Cristina ~ Thanks for your insight. I know that the way in which our kids show instability varies....Erin never really showed any psychosis but she definitely shows the irrationality in the which she distorts and actually does believe at the given time that what she has interpreted is real and she did the same exact thing when she was unstable. I really don't think it is a maniulative thing....there is just no reasoning with her when she is in this state. It's as if something else has taken over that's the only way I can explain it.

Jules ~ Well he survived the first day back.....it must have been quite scary for him and difficult for him to let you know. Take a deep breath and trust that he will be back after taking the time he needs to ride it out. Erin started out the same way on her return to school just having been discharged from 10 weeks of being in the hospital. She acted similarly and when I asked what she needed from me to make it less stressful she asked me to give her 30 minutes to walk in the door before asking any questions or talking to her. I have found that to work out quite well....seems that the stress of the day is on their shoulders when they walk in the door and they need a little down time before interacting with anybody else.

The drug test comes from a probation officer and tests for everything. It was truly a relief to get a negative. This one is the newest one...a saliva test which is suppose to be more accurate than a urine test so I am confident it is accurate and much relieved that what is going on with Erin has nothing to do with drugs.

Thanks everybody for your support. Hopefully tomorrow will be a better day for us all.

((((HUGS)))) ~ Goody:angel: :wave:

tsohl
01-17-2007, 10:34 PM
Goody,
You've mentioned many times your concerns about how Erin handles her relationships and is possessive with her friends....so I know it is a big concern of yours. She got upset and something made it snowball. As you know, these are very fragile creatures - something has upset her equilibrium. It is unfortunate that you are always number 1 in the line of fire.

jules3
01-17-2007, 10:37 PM
Ts, he is taking 12 credits, according to him they are easy classes..1 is an art class that he needs to take..not his thing! but it has to be done. ..hes not ready take a look at this book, hes still in denial..he does realize that the meds are helping him..but he has a huge issue with the BIPOLAR word. thats his immaturity. im hopeing one day he will be ok with this book and his diagnosis but, for now as long as im seeing him going forward a little at a time, i need to be happy with that...im trying!

jules3
01-17-2007, 10:44 PM
Oh goody, im so happy about that drug test,,thats a huge relief. like i said my son is older and drugs are more accesible at his age..i have been down that road , i mean he has told me that he took pills to numb himself..that breaks my heart everytime i think about that. its still always in the back of my mind..i still feel like if he has a bad day, he might turn to them again. i cannot keep him prisoner in my home. none of us can.

tsohl
01-17-2007, 10:47 PM
Hope,

NAMI has a program called "Family to Family." A friend of mine and her husband went through the program. It lasts 12 weeks and is run by families who have been through the program, I believe. (I've never done it). If you look on NAMI's website there is a description of it. Her husband is a physician, she is a nurse and they both thought it was very worthwhile. It might be something that you and your husband could do together that might help you get on the same page regarding how you feel about Zac and his disease. It covers a wide variety of topics.

The reason I recommended NAMI earlier was because it can be a wonderful resource and they do so much advocacy work that it might be a good place to get more information and how you can proceed. I just remembered about the Family to Family programs.

Take care,
Tsohl

goody2shuz
01-18-2007, 12:01 AM
Just wanted to thank everybody again for all the support....all is quiet here, almost a little too quiet. I didn't get my usual goodnight tonight, I know that she needs time and space. I am just hoping that in giving her that she will let me or somebody know what it is that triggered all of this.

Jules ~ Did your son get back yet??? I am sure that until you hear that car door slam you will be somewhat concerned. Does he have school tomorrow or work???

On another note....when searching Erin's room today I found the most wonderful letter that she started to write to my brother. In it she told him that she loved him and was thinking about him alot and how brave he is to be going through all that he was. And that she was doing alot better than she ever thought she was with her meds and that he should never give up hope....that she once thought that she wouldn't get better and she has. And that his whole family was praying that he would get better. It brought tears to my eyes reading those words.

When the drug test came back negative I told Erin how happy I was that she hadn't used drugs but that I was still concerned about what was causing her to feel the way that she was and hoping that she would feel better again. That's all we can hope for.....right???

Well goodnight, ladies....and thanks again for all your love and support ~ Goody:angel: :wave:

tsohl
01-18-2007, 12:22 AM
Goody,

Maybe Erin is having trouble dealing with your brother's very serious condition.
Maybe that is the underlying stress that is causing the other problems, and she's not even really aware of it.

As long as you know (as best you can) she's safe, I think it is probably best to give her space. She knows she can come to talk to you, and she will when she's ready. People who are bipolar need some time to themselves, some need more than others!

It's almost like a little child who does not want to go to bed. You know how they can just go on and on, whining and being miserable, but they just won't give in...and then, suddenly....boom. They go to sleep. It's almost a way they have of "settling." Erin's outbursts strike me like that. She probably doesn't mean to yell at you, but once she starts, she can't give in and stop because that would be admitting that she knows she shouldn't be doing it....I'm not explaining this very well...but I hope you kind of understand what I'm trying to say.

Guess I better stop for tonight. Hopefully tomorrow Erin will be back on track.
Maybe you could go visit your brother?? Take care, Tsohl

jules3
01-18-2007, 08:57 AM
Yes, he came home about an hour later..in a calm mood.. this is where i see the meds working..in the past, he would get completely out of control from an incident in our home..now, i see him having better control. still getting pissed and agitated, but a little better control..is this the meds working?

school this evening and no work today..hes asleep now.

tsohl
01-18-2007, 09:36 AM
Yes, it is Jules. Or, at least I would bet it is. Those little neurotransmitters are starting to connect properly which is allowing him to gain some control.

tsohl
01-18-2007, 03:00 PM
Hi Goody ~

You must be feeling a little better today as I read two really great posts that you wrote this morning! How was Erin by the time she left for school today?

goody2shuz
01-18-2007, 04:50 PM
Hi, Tsohl:wave: Thanks for checking in....I am doing much better today and have taken a step back realizing that this may just be something Erin needs to ride through herself. I asked hubby to do most of the interactions for a while to take some of the heat off of me so that seems to work out well. So he was up to get her off to school this morning....I got up to use the bathroom and peeked out the doorway to wish her good luck on her Math midterm (she was going in for extra help/a quick review). She stayed after for another course and has play practice right after that so we will not be seeing her until 5:30pm when she is due to be picked up. I am sending hubby out to do that as well.;) I am respecting Erin's need of me not talking to her....she requested that we not talk for 10 days and so I figured that I would try to do that within reason and let hubby deal with her for a while.

Meanwhile, a thought came to me last night about something I had once read about Lamictal sometimes triggering mania and since we just titrated up again on Friday I was thinking that this may be something that is happening with Erin. I decided to observe how she is today and if she continues to have a problem I am going to call the pdoc...unfortunately this is the pdoc who failed to diagnose her and upped her antidepressants even though I was reporting that it was worstening her behavior (much in the same way as I am beginning to see at this point in time). We are seeing him until we are able to see the pdoc of my choice who doesn't have an appointment until 2/20. I guess it may give me a chance to see if this pdoc will now take me seriously and take my input as being accurate and work with me to figure this out....thing is I really don't have much faith in him.

UPDATE ~ as I was writing this a light bulb went off....we are still in transition of getting to our new pdoc and I had alot of confidence with the Nurse Practitioner that was following us after Erin's discharge from the hospital. I made a call and she is on vacation but the secretary listened to my concerns and is running this all past the Adolescent Psychiatrist that the NP works with and having him call me back.:blob_fire I feel such relief and at the same time there is a shortage of adolescent psychiatrists and perhaps he will also be able to direct me to a good one to followup with Erin since I am not 100% sure about the one we are seeing on the 20th (he did come recommended from a therapist of a friend and is less than a mile away from us)....and if anything this pdoc calling me may put his seal of approval on this new pdoc we are going to see or perhaps even take us on himself!!! I just want Erin to have the best and perhaps this is my ticket to finding it.;)

I will keep you posted.....the mother's instinct is taking over and the more I think about it with the timing of the increase of Lamictal and the behavior she is exhibiting I think we may be going through another mania/hypomania which may be due to the Lamictal increase.

Thanks girls for helping me see through the fog that is on the road ~ Goody:angel: :wave:

PS ~ Hope, how are things going with you??? And Jules....I am glad that things are going a little bit better for you and that you are continuing to see that the meds are helping your son. That is terrific news:blob_fire

tsohl
01-18-2007, 05:04 PM
That all sounds good, Goody.
Maybe she has gone beyond the therapeutic doseage on the lamictal and it is causing some hypomania. Hope the pdoc that calls is good and gives you what you want. Smart of you to think about calling them.

goody2shuz
01-18-2007, 07:10 PM
Oh I feel as if I have moved mountains today:blob_fire I have a feeling that that little lightbulb was my dear Ruthie:angel: showing me the way!!!:wave:
Yes, Angels really do exist, ladies!!!:angel:

Anyway....the doctor called me back and believe it or not the words poured out in perfect succession and this doctor I believe was impressed with my knowledge, so much so that he spend around 10 minutes on the phone with me....did I tell you that I believe in angels????;)

So we spoke and he genuinely sounded as concerned as me after hearing how far we have come after 5 hospitalizations last year. He told me that he really doubted that Erin's behavior was due to the Lamictal....he commended me on doing the drug test and told me that would have been his first suggestion. He agreed that we had some hypomania here or at the very least a mixed state and it was something to definitely be concerned about. He told me with the dosages of the meds that he would be more inclined to increase the Seroquel a little bit especially since we were still at a pretty low dose. He said it would act quickly at addressing the mania and relieving the symptoms that I was seeing. He understood my lack of confidence in the other doctor who's name I didn't disclose and told me that of course he wasn't officially following Erin....I told him that I appreciated his input and had all intentions of running this past the interim doctor and would now feel much more confident if he suggested increasing the Seroquel than had I not run it past him. He went on to tell me that something at school or another stressor could have triggered all of this which is common with Bipolar even when stabilized on meds.

Then this angel of a doctor asked me who's waiting list Erin was on opening up the door for me to address my other concern. I told him how far we have come with Erin and that I wanted the best Child/Adolescent Pyschiatrist who was knowledgeable with the neuropharmocology and that from what I understand there aren't many in our area. He asked where I live and I told him......he hesitated and then told me the name of one he would highly recommend and lo and behold would you believe that it is for the same exact one who we are on the waiting list for?????!!!! I had tears in my eyes and thanked him so much for the big seal of approval and that was the exact doctor that we intended to have follow Erin and his coming up with the same name was surely a sign that I had found the right pdoc for Erin!!!

So there you are girls....just when you think things are bad another blessing comes your way!!!

Of course another one came when I picked up Erin and I wasn't attacked....I didn't talk much and allowed her to bring up anything...it worked out well (although it has only been 30 minutes)....but she did share with me how the director of music wanted to listen to the vocal piece she is working on which is Ave Maria. He told her that it was a very difficult piece that the judges didn't grade well....Erin sung it for him and he told her that he was quite impressed with it and if she continued to do as well as she was doing she would do wonderfully!!!:D I told her that I had heard her singing it last night in her room and thought the same thing.

She is up cleaning her room and doing the few chores that hubby left on a list and I am ready to prepare her favorite meal....Chicken Parmesean.

My plan is to watch Erin tonight and call the interim doctor in the morning to discuss my concerns and see what he thinks we should do. It's almost a test to see if he comes up with the same plan.:p Perhaps he will redeem himself in my eyes!!;)

(((HUGS))) ~ Goody:angel: :wave:

tsohl
01-18-2007, 07:38 PM
Wonderful news, Goody!! I am thrilled for you and hope the increase in Seroquel will be just right for Erin. Keep us posted. Hugs, Tsohl

mamiacp
01-18-2007, 09:07 PM
I can feel the relief in your message and in the end your daughter will be fine. It is an amazing feeling when the doctors listen and give you hope. I cried when we finally found someone who knew how to treat our daughter. She took us as patients through a referral from my sister-in-law and I will always be grateful. It sounds like this new doctor is aggressive in his approach and that is really what it takes to battle this illness. My daughter's psyhiatrist said what matters is treating this disease while the brain is still developing, and in early onset bipolar that is crucial and will make all the difference in their future. I hope your daughter finds relief with the change of medication.

I emailed our daughter's teachers today to let them know that if she fails this semester, she will have to retake the classes in the fall. We are planning on moving her to another school in our district which is more career oriented and very structured. The students who are there apply for a spot and I have spoken to the principal. She needs the environment with less distractions and they have a uniform dress code. All of the hype with football, basketball, clubs are just too overwhelming and can be a trigger for her. I wish she was able to handle it, but the reality is that it is too much. She just told me she has an A in Algebra, made a 90 on her final but failed Spanish I. Unbelievable considering we speak Spanish at home:confused: , but 10 missing assignments will do it.

She has a viola lesson tonight and she is excited to go. She always comes home happy after a lesson. Isn't it just the little things that can make a mom want to jump for joy. :bouncing:

Baby steps................................... ....;)

jules3
01-18-2007, 10:13 PM
oh goody such great news..im so happy to hear it..you know its true , they are so fragile and any little thing will throw them over the edge..she is at such a tough age, very sensitive and insecure. im so thrilled for you.:) everything is ok over here..day by day!!!

goody2shuz
01-18-2007, 11:11 PM
Cristina ~ Thanks for stopping in with some support. Yes, the middle school/high school years are difficult enough trying to fit in and keep up with all the stress....add Bipolar to the equation and it really offsets things. I think the move you are talking about will be good for your daughter. It is so important to reduce as much stress as we can for our kids. Thank God our school is small ~ 125 students in my daughters class and less than 500 in the entire high school. So I think that helps out alot. And yes, the littlest things make us moms happy. My daughter loves to sing and going to voice lessons is what makes her smile the most. I hope we see more of that as time goes by and our kids are closer to stability.

Jules ~ Yipppeeee:blob_fire It's great to hear that things are going good in your camp!!!:D I here ya....day by day, day by day oh dear Lord three things I pray.....:angel:

Tsohl ~ The latest is that Erin had a great night....she was back to herself and helped out with dinner...she even showed me her latest ability to grab her one leg with an arm and pose like a dancer:jester: She was talkative and back to being more herself. I waited for a while and then asked her, "Erin these past 4 or 5 days there was definitely something off as we both know. I need you to help me figure out what it was now that things are calmer." She told me that she felt it was because of her period and the increase of her med happening all at the same time. I didn't bring up my convo with the pdoc....I am going to keep an eye on her so that I don't bias any of her behavior and hold off on calling the pdoc for now. I would hate to increase the Seroquel if we really don't have to.;)

Erin has a recital this weekend in which the music studio she takes voice lessons at will do individual performances of what they have been working on throughout the year. We are really looking forward to that.

Hope ~ I am hoping that since you and I usually go through our ups and downs together that you will be posting us with some good news soon.

(((HUGS))) ~ Goody:angel: :wave:

tsohl
01-19-2007, 12:16 AM
Hey Goody!!

I'd love to be at the recital to hear Erin sing. My daughter also was in musical theater and took voice lessons and I really miss being able to attend those things (which she no longer does). Treasure the experience. You never know when they will up and decide to hang it all up!!

I mentioned Erin's period last night because I think that can be a factor in this roller coaster ride. Hopefully you can hold off on the seroquel....I'm willing to bet something happened at school with her social life and all this just came together and it tipped the scale, so to speak. I'd continue giving her some space and give her a chance to kind of grow into this stability that the meds will help create. Hopefully the past couple days were just a little pothole on that road ....if you're a glass half-full kind of person you could even think that these little events are a god send. If she just continued on without any little incidents, it might set up a false sense of security; she might think she was "Fine" and ease up a bit on striving to regain her health and stability. She might let down her guard a bit and then really go off the deep end when a slightly larger problems arises. This way, she had a little bump that let's her know she isn't really in control of her emotions yet, but that ultimately she was able to handle it without losing control....so, there is progress!! And she can be please about that. ;) all for now, Tsohl

tsohl
01-19-2007, 11:38 AM
Good morning, Ladies~

Hope ~
Just wondered how things were going? What does Zac do during the day? The days must be long for him without a formal structure.

My son began his GRE review class last evening. They took a practice test and he did poorly. He said he didn't get to 3 out of 30 questions and that he couldn't focus. So much of it is reading comprehension. He said he'd be reading and realize his mind was thinking about something else. This is interesting now that I think about it. I've thought that since he was able to graduate from a top college with honors that he'd be ok in grad school. I forgot that for two of the years he was without any prescription meds at all, and the 2nd two years, after seeking treatment, he was on lithium. Now I am thrilled he is "stable" on all his meds...but he isn't able to focus. Hmmmm. I'll have to think about this one for awhile. On the other hand he is taking a very difficult upper level class in mathematical statistics and he got an A for the first semester...so I guess his brain has not totally shut down.
Sorry, I'm "thinking" aloud here.

A general comment: I was reading through all our posts -- looking for when Hope joined the conversation, and I was struck by how many people that were active posters during the summer are no where around now. I wonder what accounts for that?

Well, it's a beautiful, wintery day here by the shores of Lake Michigan. I'm going to try to take my son to lunch today. When they don't live under the same roof, I find that is a good way to have a stress-free conversation.
Hope you all have a peaceful day. Cheers! Tsohl

langlee
01-19-2007, 11:43 AM
Dear All,

Goody and Jules - I'm so happy to hear that things are on an upswing in your homes. We all know that it is a day to day process, but we gain hope from the good days. Congrats!

Cristina, welcome to this thread! I've read your postings and it sounds like, although you have been through alot, you are in a good place with your daugther and have some great support from your docs. That is wonderful!

Tsohl, as always, you have such great insight. In aswer to your long-ago question, the Child Study team I am working with consists of the school psychologist, social worker, and guidance counselor. The social worker, who I loved when I first met her, is now my least favorite and it is she who is always bringing up the other bipolar children. I am going to check into that Family to Family group. Thanks for the recommendation!

This has been a tough week in our home for alot of reasons and I find myself so worn out. One of the things I think I find the hardest is that I can still see my son under all of the challenges and I feel like others, my husband included at times, can only see the acting out behavior. For example, one of the reasons I get so frustrated when I hear about the other bipolar teenagers who are "better" is because I know what my son is dealing with: not only the bipolar diagnosis, but PTSD, and now ADHD. I see the substance abuse history, but I also see the severe self-injury and the other destructive behaviors and I see a person in pain who has used self-medication as a means to cope. There are no magic answers and this is a process. The meds are helping, but it's not going to be an overnight success story and I feel like there is always an undercurrent of judgement of where he "should be".

But, just when things seem overwhelming, I am reminded why I continue to fight for this child. Goody speaks of angels and I believe mine are watching out for me. On the day of the meeting with the school, I felt like I had hit the wall. I really felt like I could not deal with one more discussion, one more problem, one more crisis. I was completely desolate. But, late that night, after a dfficult week, I was begging Zac to try to get some sleep. I told him things always seem worse when you are sleep-deprived and after a good night's sleep, he would be able to think straight again. He looked at me and said, "Mom, sometimes I really don't know if I'll ever be able to think straight again." I could see the pain in his eyes and it broke my heart. As hard as this is on me, what must it be like for him? I often talk about Zac's life when he was young and how easy things were for him. I remember his third grade teacher telling my husband and me that whatever we were doing, we should bottle it, because Zac was such an exceptional child in so many ways. I loved that life, being his Mom, hearing from so many people how unusual and gifted and compassionate he was. But what I forget is that HE was that child and he got all of the same accolades, got all of the positive reinforcement that comes along with the great reputatation, developed his sense of self from that. He was always confident and had wonderful self-esteem. Who is he now to himself? If I feel judged by others, how does he feel? It really is breaking my heart when I think about it, but it gives me new resolve to help him find his way.

The other thing that happened was that I was reminded, again, how much he is stll grieving. Lately, I've noticed a pink and silver crystal necklace around the house, wherever he is. I finally asked him about it and he told me it was my mother's. Although I don't remember her wearing it much, he said it remnded him of her because it was beautiful and sparkled whenever he looked at it. He said he carries it with him everywhere, even when he leaves the house.

And so, my heart is both heavy and hopeful. I know there is alot ahead of us, but I have promised him again that we will find the answers, that I will never give up on him and I will never allow him to give up on himself, that I vigorously reject the concept that he will die young (something he often says) and that I will do everything humanly possible for him so that he can have a long and happy life, and that we are a team. We have even come up with a physcial sign of this pact!

I've gone on long enough. I hope all of you are well and that good things continue to happen in your home!

Love,

Hope

langlee
01-19-2007, 11:48 AM
Dear Tsohl,

Enjoy your lunch with your son! Does he feel that the lack of focus is an ongoing problem now or was he just having a bad day? Zac just started Cocerta for focus and he said he can feel the difference already. We'll see.

Sounds like a great day all the way around. Have a wonderful time!

Love,

Hope

PS I joined the board in October.

goody2shuz
01-19-2007, 12:28 PM
Tsohl ~ Yes you are full of insight, the one who is on the road just a little bit ahead of us. I hear your concern for your son and yes this all is a double edged sword in which our kids seem to pay a price for the stability. I guess it's a tradeoff but on the positive side of things, I have read about a med that will counteract that decreased concentration with some of the meds. I can't think of it off hand but I will be back when it comes to mind.

Hope ~ Oh do I know what you mean and I am here to offer you hope. When Erin was hospitalized it tore my heart out hearing her say when I referred to the future that she didn't think she had a future, that she wouldn't be a part of it and would be dying early. Oh, how painful it was to hear those words. I also saw the self injury over and over again and couldn't imagine how pained she must be to just go and reach for a razor knife and inflict such wounds on herself. I saw it and I lived it like you watching this bright, sensitive, loving confident child all of a sudden turning against herself. I was thinking that the way things were going that we would never see this get better, and Hope, it has!!! Erin hasn't self injured in over 8 months and she hasn't talked about not having a future in a long time. In fact she is now talking about becoming a psychologist!!

I want to send this through and have something that I must attend to. I will post more later.

(((((HUGS))))) ~ Goody:angel: :wave:

tsohl
01-19-2007, 12:57 PM
Hi Hope ~

You just have to take that team with a grain of salt. I swear that so many of the so-called professionals do not understand bipolar. Well, they understand the book facts, but they have NO IDEA how destructive the feelings can be, etc. My sister-in-law just retired from a whole career of being a school psychologist. She went to grad school most of this time and about two years ago finally graduated with her doctorate in clinical psychology. She can be a good resource for some things, but usually the first words out of her mouth, when I ask a question about BP is that she isn't qualified to answer...that it is very complicated and she doesn't know that much about it, etc. This was the same problem we ran into at that inpatient program our son went to. The guy who owned the program and facilities was a clinical psychologist who specialized in addiction recovery and there was a pdoc involved peripherally, but the day to day work was done by MSWs and addiction counselors. They really couldn't help with the specific needs of someone with BP (even though they thought they knew all about it!!).

Hope, I guess the "I'll die young" thoughts must be pretty typical. We went through that, too and now I haven't heard it for about 2 years. Of course the fact that he's taking lithium and will take it forever probably will actually shorten his lifespan...but that's not what we're talking about here. Also, I can remember when my son said to me one day that he would never accomplish what he thought he would -- he wouldn't be the one shining star in the universe that would have THE answer to that one big issue...etc. I suppose realistically this is when the meds have kicked in and he was no longer thinking any manic thoughts; he was more down to earth...but it was a very sad moment for me...and I know exactly what you are feeling from hearing Zac say what he did. Zac has many tangible reasons to grieve, but I think all our kids go through something akin to grief, only it's for the life they know they will never have. It is up to us to help them see that there is more than one way to lead a satisfying and useful life.

Hang in there, ladies. We have to be strong for our kids.
hugs,
Tsohl

jules3
01-19-2007, 08:33 PM
Ts, please explain what you mean by his life span being shorter? did i miss something along the way? im sorry sometimes i read so fast and have to go back to digest everything better.

tsohl
01-19-2007, 08:49 PM
I was just talking, Jules....I just meant that it is harder on the liver to be taking lithium than if you weren't taking anything. I would think that having to take these strong drugs for a lifetime would effect the length of lifespan...but I'm just speculating--nothing scientific!! I'm sorry if I scared you!

Pippinkitty
01-20-2007, 01:55 AM
Pippin again!:wave:
Here to give an update. Erika is back in school. Her IEP was the 10th and the team decided to let her skip 8th grade and move on to 9th so she could be in one of the classrooms I oversee-a private therapeutic classroom within a public school. The principal felt she was capable (based on test results and input from team members)of going on and earning 4 high school credits. TThis is a self-contained classroom in which students receive therapy (group and individual), behavior modification using a point system, small group (only 4 other students), and an excellent staff who are encouraging and caring while maintaining boundries. We thought this might give Erika a fresh start without having to deal with the fallout her bp created in her middle school before she went on Home and Health Instruction. She was both excited and nervous (understandibly).
Her pdoc put her on Adderall to help with her focus and attention but I think it has begun interfering with her state of mind. She has been taking 20 mg for about a week and since then has been more easily frustrated, 30-60 min. waves of depression, anxiety, thought processes out of touch with reality, etc. Tried that-doesn't work. I won't be giving her anymore of that.
It seems I popped in at a good time. I read about the "dying young" comments. My daughter has been talking about dying young for a couple of years now but lately the tone of it has changed. It used to sound more like a cry for help but the past two days it has sounded more like thinking out loud in resignation. I hope it's the adderall and this will discontinue. Of course I was boo-hooing tonight thinking about this. I told my husband I wished there was a healer I could take her to and finally meet the daughter I know is in there. I wish there was some stream somewhere with magical waters that would make her better and we could marvel in her happiness. I know this all sounds corny and fantasy-like but honest to goodness I find myself thinking like that at times. I am so afraid she is just going to get to tired of the battle and end it. She says she doesn't think she could ever kill herself but that it would be more a case of her just simply dying. As if her mind and body will give out on her. Sometimes I feel her pain in such a real way and my heart breaks thinking that is what my daughter has to endure all the time. She knows I understand as much as a nonbper can but all this understanding just doesn't seem to be helping. I know I have to keep trying and of course, I will never give up her reaching stability.
She told me the other night she can't make decisions and doesn't know why. I told her that part of that might be the fact that in the past when she's been manic she has made decisions she thought were right at the moment but after receiving negative consequences in whatever form she learned to not trust herself. I told her as we find the right medications the layers will be pealed away and the Erika that was meant to be will continue to reveal itself as we've seen. I believe this and it seemed to give her hope. I suggested she try her decision making abilities on small things if she is afraid and work up to bigger things. If was almost as if I gave her permission to take baby steps. Thank goodness she talks to me.
Anyway, I wanted to let those who are familiar know how things are going. Up and down of course but we have a lot of road behind us. Take care! Prayers and hugs to all:angel: ! Pippin

tsohl
01-20-2007, 11:24 AM
Hey Pippin ~

Everyone will be so happy to see your post. We've all been asking about you, wondering how Erika was doing, etc. We never know if no news is good or bad! But you definitely have made progress since we last heard from you.
As we now all remind one another....baby steps, baby steps. Cheers, Tsohl

goody2shuz
01-20-2007, 03:46 PM
((((HUGS)))))) Pippin!!! You are doing a wonderful job and have come so far since we last had an update from you....I am so happy that things are going so well for Erika...wow, she's a grade ahead and the class sounds like a wonderful place for her to be where her needs will be addressed!! And I am sure that you feel more comfortable having her in a place where you can have a close but far enough removed eye on her. I can't tell you how wonderful it was to read all this news in your post and all the progress you an Erika have made. And what a relief it was to finally hear from you....I was really worried about you as the others here were as well. Thanks for the update.

And how are things with you??? I know that you had some surgery for the skin cancer on your leg and hope that they got it all and that you are recuperated from that.

Please know that we are all here on this journey together (you sort of went off into some bushes there for a while which had us somewhat concerned;) ) but we are so glad to know that your journey has taken you to a better place and that Erika is doing so well. Good decision avoiding that Adderall. We don't want to upset the applecart now, do we?? We have come way too far to do that!!

((((HUGS)))) and positive vibes to a dear friend ~ Goody:angel:

langlee
01-20-2007, 06:44 PM
Hi Pippin,

I echo the posts of the others! I've been concerned about you and Erika, but it certainly sounds like you have a better plan now. Please keep us posted from time to time. It has helped me so much to know that other mothers are out there, struggling, enduring, slipping backwards and then -woo-hoo! - wonderful steps forward.

I was the one who originally brought up the dying young. In my son's case, he refers to it because his behavior has been self-destructive. I told him I totally reject the concept and will spend every ounce of enrgy I have to make sure he has the wonderful life he has always been destined to have. I can so relate to the magical waters fantasy you have - if only it were that easy, right? But, we know our children are in there, the same ones we have loved from the day they were born, and each day, with better meds and more help, they get closer.

It's a journey, but at least we are not alone.

Good luck with the new class for Erika. It sounds amazing!

Always,

Hope

resection
01-20-2007, 09:25 PM
Today, I think I am a monopole, ergo, I am.

goody2shuz
01-21-2007, 01:48 AM
Hey, Rex:wave: ...what are you doing over here???? Long time no talkie....hope you're doing okay and can you please translate your last post....I am lost and sure the other ladies are too.:D You must have been feeling the pain I had in my colon today....haven't had it in a while but with all the stress I have going on in life it was just a matter of time before it settled in the depths of the bowels but it is feeling better than just a few hours ago.

Hope all is well with Santa and the kids.....and that things are going well for you too.

(((HUGS))) to a fellow resectie ~ Goody:angel: :wave:

jules3
01-21-2007, 10:53 AM
Goody, oooh, that sounds painful..i know stress has to land somewhere..do you have ibs?

goody2shuz
01-21-2007, 12:35 PM
Not IBS....I had a 8 inches of my colon removed 3 years ago for diverticulitis and have been doing well until yesterday when I had some familiar pangs.:eek: It is known to come back in other parts of the colon...I am feeling better today so I think it is safe to say that I am out of the woods.

Last night hubby and I had a dinner party with some good friends to go to.... this couple has had as trying a year as us and we have shared many hardships together & we were really looking forward to getting together with them since we hadn't been out in a while. They were having other friends as well and since we are fairly new to the area we were looking forward to meeting new people. I put together some chocolate covered strawberries and excitedly looked forward to our night out.

Just before we were due to leave I got a call from my brother informing me that my other brother had lost consciousness a few times at home and was in route to the hospital. This was the 3rd time this week. Hubby and I decided to keep our plans since we could use the distraction....Erin was staying home alone, we were a little nervous but only a few blocks away.

The evening was spent answering my phone with updates on my brother and no sooner had we walked in the door that Erin called saying that she was scared because she saw two bright pink lights in the sky over the water. We told her it probably was some flares...she called the Coastguard who said that they had received several other calls about it and were looking into it. I got her through that and we continued to enjoy our evening,

We had a great time with friends and I was glad that we went but we got another call from Erin close to midnight saying that she felt like her throat was closing up and she couldn't swallow. I talked her through it and about 10 minutes later she called saying that she thought she was hallucinating and was scared because she was seeing a plastic bag coming over her face.:eek: That was it....we got our coats on and headed home happy for the time that we did have out with friends.

When I got home Erin was in her room scared....I asked her about her meds and if she had eaten anything different. Turns out that she forgot to take her morning Seroquel and decided to take the whole 300mgs in one dose. I googled the med and saw that it could lead to difficulty swallowing but for the most part it prevented hallucinations. Anyway....I put a nightlight on and left her door open and this morning she is doing fine.

My brother called and told me that my other brother had a terrible night and that he had spent the entire night with him as he went through the most violent tremors for long periods of time....the doctors were trying to decrease some of his meds to take the stress off his kidneys which made things worse in terms of his blood pressure bottoming out...my brother described it as almost a detoxification and said that the tremors somewhat improved but that the night was a nightmare of watching our brother go through this. The good news is that since he has decreased the meds his kidney function is somewhat improving to the point of him putting out as much as he is taking in. They are trying to replace some of his meds to take care of the tremors which will not be as bad on the kidneys. It's so difficult to see my brother going through all of this and being so far away. I am glad that my other brother is at least close enough to be there.

Well that's the update on this side of the world. Hoping that everybody else is having a quiet weekend...there is enough action in my life and I would hate to see it happening simultaneously in anybody elses right now!!

(((HUGS))) ~ Goody:angel: :wave:

tsohl
01-21-2007, 01:52 PM
Never a dull moment in Goodyland!

You're the kind of friend I love to have, because it puts my little problems in perspective.

I'm happy your other brother can be there for your brother and his family. I hope the change in meds will help his situation. We continue to hold him and your family in our thoughts....sending hugs and thoughts your way....Tsohl

jules3
01-21-2007, 02:26 PM
It sounds to me that erin panicked, maybe because she was home alone..im glad you were able to enjoy a night out even a little bit..your poor brother,i feel so bad for what hes going thru.:confused:

langlee
01-21-2007, 03:13 PM
Goody,

I'm glad you were able to have a good night with friends and your husband. Erin might have been having a reaction to the Seroquel and then got panicky. I'm glad she's OK now.

I am so sorry about your brother. What a siege he has been under! I hope he's feeling better.

Love,

Hope

goody2shuz
01-21-2007, 05:40 PM
Thanks everyone....hahahahaha yes Goodyland is full of excitement ~ I had to smile at that one, Tsohl:D

Yes the night alone must have been alot for Erin, she had gotten a call to babysit for a neighbor....we thought that would be good in the sense of keeping her occupied but she didn't feel comortable with that and to be honest I didn't either since things this week have been a little off.

The evening was a wonderful distraction when I wasn't intercepting calls...I felt bad because between Erin and my brother the phone kept on ringing but we let everbody know how we didn't want to cancel even though so much was going on that would require our attention. The food, company and entertainment was great....we played two games "Fact or Crap" & "Apples to Apples" and with 6 couples it was really fun!! I think the only thing we missed out on was the Karoake which hubby was relieved with.

My brother is being seen by an endocrinologist who will make recommendations on what meds might work out best in relieving my brother's symptoms without compromising his kidneys.

Yes, Hope, I do think the extra Seroquel had alot to do with what happened last night with Erin. Today she has been fine with no further complaints.

It's great that we finally heard from Pippin and that our kids seem to all be holding their own this weekend.

Hope all continues to stay that way for a while. Tsohl, I still haven't come up with that med that helps with the concentration but will post you about it when I do.

(((HUGS))) to all ~ Goody:angel: :wave:

Pippinkitty
01-21-2007, 09:41 PM
HI Everybody!:wave:
Can you believe it? I'm back a second time in one weekend! I'm trying to take care of myself a little more than I had been. Doing this has helped but I've found I still need my support group here. I'm am so sorry if I worried anyone but it really is nice to know there are people who care. I get so consumed with making sure people are caring for Erika that ....you know the rest.
We are happy with Erika's placement although it's only been 3 days of school so far and she is stressing big time over having to go tomorrow if they don't call of for snow. I know this placement I was able to get for her is a good thing but she really is worrying me. She has been saying everyone there hates her and talks about her. She says even the people in the halls are talking about her. In this classroom she is not allowed to stand in the hallways. I have a friend who is a teacher in the next room and he stops in to visit her and kid around with her. He's an ED teacher so he's familiar with the attitudes and moods of these kinds of kids. She has exhausted us this weekend with nonstop negative talk, irritability, and fairly ***arre talk. I say fairly because she has definitely said more ***arre things but it's all within the out-of-touch realm. To be honest I am getting so scared. I was hoping this stuff wasn't going to come back and that we were on the road to recovery but it seems we're not. I am so scared I won't be able to get her to the point she can live independently by the time she's of age. It's like the clock is ticking and we keep losing ground the longer it takes to get her stabilized. While she is capable of 9th grade work she doesn't seem to be handling the learning part well. She can't concentrate at all and does not seem to be able to retain anything. I hope somebody has some words of experience in this area. Again, I have worked with the children of others but I know how hard I am working on things and how little most of them did and am starting to panic a little. I mean, I really do work so hard. I don't say that to toot or impress but I guess I feel if I work harder than others(not you ladies but most of the parents I have had to deal with) and have the knowledge and resources I have there should be a direct positive relationship with Erika's progress. I feel like the only thing I been able to do that is different is keep her here with me. We're maintaining enough for that and that's it. I know-baby steps. I keep trying to remember that and I do always remember the goods things that have happened. I just need some perspective I guess.
By the way-Erika just "flew" through the kitchen family-room area and announced she has decided to become a lesbian-is that okay with me. Without missing a beat I said (as I typed here) "well sure, that's your preference." In my mind I'm thinking "that's the least of my worries at the moment". I did ask her why and she said because they (guys) all lie and think they can just boss women around. Of course I told her not all are like that-her step-father, her grandfather, her uncle, etc. etc.
On a lighter note-some of you might be familiar with my house in that from the front it looks very traditional (2-story brick with typical black shutters and accents, etc. and when you walk in the door it looks traditional. The back, however, is all open with the kitchen, the familyroom with cathedral ceiling and sunroom. The back is where we live and I sometimes say we should have just left the formal livingroom and diningroom off and saved that money but anyhoo, I digress. The part we live in is all about the water and the beach. Bamboo, stone fireplace, windows, windows, windows, and the sounds of water. I have recently made my breakfast bar into somewhat of an island bar. We occaisonally have martini's (not the dry ones) so I thought why not make it even more like a getaway. I am probably not making much sense but this has been my diversion lately. We picked up a natural colored wicker curtain from IKEA yesterday and hung it between the kitchen table and one of the chairs in the sunroom as a sort of sheer room divider that adds a little more of an island oasis. I love it! I did some other decorating things but I won't bore you girls with any more of this.
Once again, thank God for this great group of people.
Oh, I don't know if I mentioned this but part of Erika's IEP is filling in her mood chart during the school day. I also keep a chart from my perspective. Found them online.
Goody! I actually felt like I was there with you after reading your post about trying to steal a little time away for you and your hubby. All the things Erin called you about are things my husband and I have heard before. We do leave Erika along for 2-3 hours at a time with the alarm on. She's afraid to go out by herself so that isn't much of a worry but keeping others out is the reason for the alarm.
I'd better close. Goody take care of that diverticulitis. My exfather-in-law has that and I know he had to watch his diet. I had no idea you had to have part of your colon removed. God bless you. You really have been through a lot.
Nite All! Pippin:) :angel:

resection
01-21-2007, 11:36 PM
No Goody,

I am well. No translation available. I was just rambling some babel to get a rise out of you.

Just a little voice from your past coming to rattle your cage and haunt you.

Boo.

He-He-He.

Really, just coming by to wish you happy holidays and what not ... about three months late. What can I say? I guess it has been about a year since I dropped by. Just waiting for Fidel Castro to lead the way. He should have consulted with you before selecting a Dr. Tisk, tisk. He was open like you. Not me baby. You know I am a lap dancer. Wouldn't have anyway. Apparently, he does not surf Healthboards for advice.

We are all really well. Santa and I finally did it. I bought the firm in October. Friday the 13th it turns out. I am not supersticious. So no matter. We went virtual, and I live in the boonies 30 miles north of Austin. Just at the edge of civilization. Barely in broadband range. She works out of the house too, so we are together all day everyday. We traded in the Houston commute for walking. The kids' school is exactly one mile from the house. If we walk them, then we get two in the AM before work.

We are just starting to train in earnest for the MS150 bike ride. Santa and my daughter are going to ride their own bikes. I am going to pull the little guy. Probably won't make all 180 miles with the extra weight.

Still, we are in good health ... mentally, physically, & spritually. Always room for improvement ... especially sprititually. The walk on our rock becomes less stresfull when you can look beyond this life. I guess my 4th anniversary is coming up. Woo-Hoo !!!!

We live about an hour from my parents now. They are in their 70's but both fairly healthy and active. We just got back from dinner with them. It was nice.

How are you? Hubby and daughter? What happened across the way? Finally decided to turn the lights off?

Peace,

Rex

goody2shuz
01-22-2007, 01:12 AM
Hey, Rexie my friend....I must apologize for not being able to give your post it's fair share of attention but I am having a rough night in Goodyland. My brother has been quite ill and within the past few hours he has been moved into the Cardiac Intensive Care Unit. He has been tremoring all day long and was unresponsive for over 3 hours. I was all ready to hit the road with hubby and daughter but was called off by my other brother who says the roads are icy and that my brother has been stabilized enough for me to stay put. Seems that he told the doctors off when they were saying he was having seizures and when they said they were going to put a tube in his bladder he gathered up enough strength to tell them no and call out my SIL's name. He went on to whisper weakly that he was not having seizures and had heard everything the doctors were saying the entire time and that he would pee on his own....and that he did!! That's my brother for you!!;)

So the plan is for me to stay put for now & that I will get a call if things further decline and if not I will hit the road by myself and make the 4-5 hour drive to take my turn at supporting my SIL through the week since my parents and brother have done their part. My brother said that my brother got scared when he returned to the hospital with his wife thinking that his time had really come but was relieved when he was informed that his wife insisted he not drive alone with the weather and lack of sleep. And that by that reaction alone it would be best if I stayed back until later this morning.

So I would appreciate all the prayers possible. Also...Erin has requested to see her uncle when last weekend she asked about his health and I informed her that things were not getting better. Erin has midterms all this week starting on Tuesday and I don't know what I should do about that. I was hoping to get opinions from the other mom's here about how I should handle this.

Thanks and Rexie, I will post more to you when things calm down in my neck of the woods.....do we have a date???

((((HUGS)))) ~ Goody:angel: :wave:

tsohl
01-22-2007, 01:43 AM
Hi Goody,

I'm so sorry to hear about your brother. If I read your post correctly, you are planning on driving down in the morning, if you don't get a call to come sooner. I would think Erin's teachers would be understanding if she had to miss the exams, and would let her make them up. Have you talked to Erin about this, or did this come up after she went to bed tonight? If you go by yourself, will Erin be home alone while your husband is at work? I would think she'd be better off with you than home alone, worrying about you and her uncle. She probably wouldn't study under those circumstances. But I don't know. Whatever you decide, I'm sure it will turn out to be the right decision. Please try to get some sleep. You need to take care of yourself, too. We'll pray for your brother and your family. :angel: Blessings on you. love, Tsohl

langlee
01-22-2007, 10:26 AM
Dear, dear Goody,

Just wanted to let you know I'm thinking about you and your family. I hope that your brother is now more stabiized. I'm not sure about the mid-terms, either, but I tend to agree with Tsohl. If Erin gets consumed with worry, she will not study, so I'm not sure what you'll gain by making her take them. On the other hand, as long as you are still home, she should probably try to take as many as she can so she doesn't have the additional stress of making them up. There are no easy answers!

You are in my prayers always.

Love,

Hope

tsohl
01-22-2007, 10:29 AM
Hi Hope ~

Hope you had a good weekend. How are things with Zac? Do you have more meetings scheduled this week regarding his schooling? Just wanted to check in and say hello. :wave: Tsohl

langlee
01-23-2007, 12:05 AM
Oh Tsohl,

You and the others are always there to extend a helping hand. Thanks!

Things have calmed down again (thank goodness!), but I am frustrated. I feel like I'm always arguing now, always on the defensive, always on edge. It's really not my personality. I like to think of myself as someone who knows how to work well with others and to come up with solutions, and fairly level-headed, but lately I'm agitated.

Take today, for example. After the meeting at the school, I sent the school psychologist a simple e-mail listing the 4 main points we had discussed at the meeting and requesting a few more minutes of her time, one on one. I thought there were still some things to be clarified and I always wanted to make sure we were on the same page, especially since the meeting had gone on so long and so many things were discussed. When I didn't hear back from her, I called and left a message. She called today to see that she did get my e-mail, but that she has a policy of not returning e-mails! She then went on to say that she didn't understand one of my bullets (but, of course, never called to clarify!) I'm enraged! What does she mean that she doesn't return e-mails AS A POLICY? How can she not clarify something I considered to be extremely important? She also said that she did not see any reason to meet, but if I had questions, I could call. I cannot tell you how angry I am!

I'll get over it because I have to, but I'm furious!

Thanks for asking and sorry to be venting again!

Love,

Hope

PS How was your lunch with your son?

langlee
01-23-2007, 12:09 AM
Pippin- I just wanted to tell you that your oasis sounds amazing! Good for you doing something so constructive and healthy! Let us know how Erika is doing. We care.


Jules- How is everything in your world?


Thinking about all of you,

Hope

tsohl
01-23-2007, 12:14 AM
Hope ~
Aren't you glad you moved specifically into that school system??
I'll write more soon. I haven't cooked dinner yet :eek: Tsohl

langlee
01-23-2007, 12:20 AM
Yes, Tsohl, just THRILLED!

Wow, you haven't cooked dinner yet? You must be on a different time clock than the rest of us!! Enjoy!

Love,

Hope

langlee
01-23-2007, 12:35 AM
I have a question for all of you and I'd like your perspective. Let me preface my question with reaffirming that I do NOT condone substance abuse of any kind. But, here's my question.

As you may remember from previous posts, Zac had a serious substance abuse last spring after my mother died. He tried just about everything under the sun and was using everyday. It got so bad that he asked to go to rehab and, fortunataley, he got it under control. He has had a few slips. but nothing like last spring. In his mind, he recognizes that he has a problem, but does not see himself as an addict and points to the fact that he was able to stop for a long time and that, while he slips occassionally, he is not drawn to the drugs anymore. He also reasons that his meds are better now and he is not feeling the same urges he did back then and that was self-medication in response to intense grief. Again, while I don't condone his occasional slip, I can at least understand his line of thinking.

The problem is this - he just started going to an addiction therapist who runs a rehab program and also does individual counselling. The school wanted to be sure that we continued to deal with Zac's substance abuse issues so we opted for individual counselling becasue we did not think another rehab program would work, especially if Zac does not acknowlege this as a serious problem. I know 12 step programs seek total sobriety, but I don't see how going to rehab 4x a week is going to change his thinking. So, we all agreed that individual sessions might give him some new perspective.

But, of course, since my son never does anything the easy way, he tested postive on his second visit! He claimed it was a one-time thing and I tend to believe him, only because I have witnessed drug-induced behavior before and this time I saw none of it. The problem is that now the addiction therapist is suggesting rehab again and, in my heart of hearts, I don't think it will help. I also get worried about focusing so intently on one self-destructive behavior because Zac has so many others he can replace it with!

To make matters more complicated, if we don't comply, we may have another problem with the school. I also don't want to use so much of my outpatient insurance coverage for something I don't think is going to work, because it limits my options for other more meaningful programs this year that I might need.

I talked to Zac and told him I believed him, but that if he betrayed my trust and started using again, I would have zero tolerance next time and he seemed to understand.

Any thoughts on a course of action and appropriate responses to all involved?

Hope

tsohl
01-23-2007, 12:45 AM
Hope~

A couple questions:confused: The tdoc tested him on his second appointment? Is that normal procedure; if not, why did he do it? What did he test positive for and what did he explain to you was the reason for his use? Where is he getting the drugs?

langlee
01-23-2007, 01:42 AM
Since the tdoc is only for addiction, drug testing is part of his protocol. Zac resisted the drug testing, which told me something was up, but finally succumbed. He tested positive for pot (never his drug of choice) and a small dose of cocaine. Zac told me before the test came back that he thought he would test positive for them. He told me had the pot at a friend's house in town when they were working on a project and that he thought it was laced with cocaine, since he has become sensitized to cocaine.

I have no idea whether he is telling the truth or not, but we see no evidence of anything in the house and no unusual behavior. (when he was using, he would go for alot of walks) There was nothing that got our suspicions up.

Zac is seeing his regular tdoc tomorrow for the first time in a few weeks and plans to discuss the whole incident with him. He now distrusts the addiction therapist becasue he feels like he is jumping to conclusions.

One of the things that concerns me is that I see Zac constantly in this labryinth of lies and half-truths, but there is a certain desperation about them. I see him doing something he shouldn't and then immediately trying to figure out how to minimize the fallout. I can't escape the feeling that he is afraid alot of the time and doesn't know who he can trust. (I believe he thinks he can trust me most of the time, but also knows that it sometimes puts me in a difficult situation and there are times he has lied to me, too) He seems to be making a conscious effort to tell me the truth most of the time, but who really knows?

I feel torn. On one hand, I don't want to let him off the hook, but I also don't want to chastise him everytime there is a slip of any kind. Remember, we also have to worry about self-injury slips, cigarette-smoking slips, as well as some other destructive behaviors he has exhibited. While I would prefer that he never slip with anything, shouldn't I also be supportive of the progress he has made and how hard he is trying to cope with multiple challenges?

AGH - never easy!

Hope

tsohl
01-23-2007, 02:15 AM
Regarding your meeting at school, Hope, she doesn't return emails because she doesn't want to put anything in writing. That way you don't have anything concrete to throw in her face, or take to court....::rolleyes:
She will talk to you on the phone because it will be your word against hers. I would advise you to take notes either while talking to these people, or immediately after. It might come in handy down the road. She seems very uncooperative. Why is that?

Is the tdoc the one whose son is bipolar? If so that partially explains why he feels Zac needs to go back into rehab. He knows how an addiction contributed to his son's problems, if I'm remembering his story....

I am by no means an expert in addictive behaviors, so take my opinion with a grain of salt. I have the feeling that neither you or Zac have fully accepted his addictive behavior. Zac doesn't think he has a problem, and you tend to agree with him. I get the feeling that you are both a little too willing to rationalize a "slip-up." Also, you must remember that BPers are manipulative and you should think about how that enters into the equation.

I understand your reluctance to put him into a rehab program again. I'm wondering about the tdoc in this regard. If he runs a program, I would think that is going to be his orientation regarding therapy. He may not want to work with Zac if you go against his recommendation. It has been my experience (as I posted earlier) that in the dual diagnosis therapies, they mostly want to deal with the addictive behavior. This is because it is simpler to handle. And I felt as you do...that the issues of bipolar are of a more immediate concern -- that if you get the right meds and are able to achieve some kind of stability, the other behavior with take care of itself.

One possible solution might be if Zac would agree to go to AA meetings and you continue on with the individual therapy. Maybe you tell Zac that you will be doing random drug tests on him until he proves to you that you can trust him...or something along those lines. I think you can't just ignore the positive test. Maybe the school would go for some plan like this.

I don't know if any of this makes any sense. I am tired so am going to stop for now. If I reread this in the morning and change my mind, or think of anything else, I'll post again.

Goody didn't post all day. I bet that means she had to go down to her brother's. I hope he pulls through.

Take good care, Hope. You're still having lemons hurled at you and so far there hasn't been much lemonade. Geez, I'm full of cliches tonight. Sorry.

love,
Tsohl

tsohl
01-23-2007, 02:32 AM
Saw your post right after posting my response...so have a couple more thoughts....Zac may be feeling somewhat paranoid. That would be consistent with BP. Also, probably his thought process is still a bit distorted. He may feel that he is right and knows what he's doing and everyone else is wrong.

Regarding the trust issue, in addition to not knowing who to trust, Zac has found out that he cannot trust himself. I'm guessing sometimes he does things that even he doesn't understand after the fact. I agree that you need to be in his corner as much as possible. It doesn't accomplish anything to fracture your relationship with him. I think you need to keep reassuring him that you love him and that things will get better. He already knows you don't approve of him using drugs or self-medicating, even though you also know why he might want to do it.

I hope his appointment tomorrow goes well.
Try to get some sleep. Tsohl

jules3
01-23-2007, 08:43 AM
Hope, sorry about zac testing positive..i would be as upset as you are..i have zero tolerance for that stuff too.i know these boys are bipolar and look to self medicate sometimes..but they need to say No, my son has told me that thats the hardest part for him..he finds it hard to do that..he is avoiding alot of his "friends" i know which ones!!!
using drugs is not the same as being addicted. addiction means withdrawels..if you had zac stay away from places where he can get drugs.would he have withdrawels? probably not. I hate that it is so easy to get drugs out there.pot laced with other stuff can kill you.
my son is doing ok now..he is much calmer and i see him trying to focus on homework and reading ....but, you never know, that could change. it woudnt shock me to see him walk in here high. im constanly a bundle of nerves because i never know whats going to happen next..im sure you know what i mean..:dizzy:

resection
01-23-2007, 10:22 PM
Goody,

Distressed to hear about Erin and you brother. Not sure what a SIL is, sister-in-law? Well, you know I hope and pray things improve for you and yours. Someday, this will all make sense. I'm off. Will keep you in our thoughts.

Peace,

Rex

tsohl
01-24-2007, 02:58 AM
Hello Friends,

I'm delighted you see a little change in your son, Jules...that so far, his classes are going ok, etc. I haven't found that reading I was looking for yet, but I found a couple other interesting things today that I want to share with you and Hope...but it has to wait until tomorrow as I am exhausted.

Hope ~

How did Zac's appointment go? I'm wondering how you decided to deal with the school psychologist and the team. Hope you've had a chance to regain your composure after that conversation, etc.

I took my son and his girlfriend for a late lunch yesterday and we had an interesting conversation about various drugs (both legal and not). She has her degree in biological anthropology but is working as a pharmacy tech. at the moment, so has some knowledge about meds. Turns out I didn't even know which meds he's on. He's been on Lithobid and the extended-release tegretol all along. His new insurance will not cover tegretol so he is having to get a generic and within a couple days of switching he is having double-vision.

Ok, I'm going to bed now. Please all say a prayer for Goody and her family. I have a feeling things aren't going well with her brother. :angel: Tsohl

jules3
01-24-2007, 09:01 AM
I am definitly pryaing for goodys brother..its such a sad story. my son takes lithobid too. is your son thin? does he have any weight issues at all? i see my son eating a whole lot more than usual..he will not be happy if he gains alot of weight..he can have a tendency to be chubby...his classes are going good,,hes showing some interest in school..a big plus..thanks for asking.

tsohl
01-24-2007, 09:28 AM
No, he's normal weight, but he really is careful. On one of the many meds he tried, he gained 35 pounds in a really short period of time. He lost that weight and now pays attention and monitors his weight to be sure he's not gaining. That is one of the worst problems with these meds.

I'm glad classes are going well. It is important to have structure in his life, as long as it doesn't cause too much stress! take care, Tsohl

jules3
01-24-2007, 08:51 PM
goody where are you???

ts, why is it the worst problem with these meds? do they increase the appetite? is it fluid? why the weight gain? any idea? you cant just gain weight for no reason. your son sounds like hes doing well.. im happy to hear that. it gives me hope..my son is doing ok too..very into school (its only been a week) but so far so good!:eek:

tsohl
01-24-2007, 09:49 PM
I'm guessing since we haven't heard from Goody and she hasn't posted anywhere, that she had to go down to her brother's. I'm sure if she were near a computer (and had time) she'd check in.

I don't think anyone knows why some (many) of the drugs used to treat BP cause weight gain. They affect appetite and cause patients to feel more hungry. Some speculate that it has something to do with serotonin, which is a neurotransmitter in the chemistry of depression and also, of appetite. It is all tied into the endocrine system somehow. Also lithium is a salt, and you're told to push the fluids, so I imagine there is a certain amount of water weight. Definitely a crummy side effect! This is the description of an art major -- sorry :eek:

Glad to hear your son is enjoying his classes. It will help him to feel like he's back to leading a more "normal" life...and, at least with my son, he does better when he has a schedule. It forces him to have a regular bedtime, etc.

jules3
01-24-2007, 10:16 PM
Yes ts,, im saying that for years, he does much better when he has a schedule. and no changes.

tsohl
01-24-2007, 10:22 PM
Change is one of the most difficult things for someone who is BP.

langlee
01-24-2007, 10:46 PM
My prayers are with Goody and her family, too.

Jules, glad to hear your son is enjoying school so far!

Tsohl, isn't that a pain about the insurance? Your son finds meds that work and then insurance doesn't cover it!

I know I'm starting to confuse everyone. Sorry. Zac has two tdocs, one whose son is bipolar and the other one is the addiction specialist. He also has a pdoc. There are too many people involved right now and it's getting confusing. I know that the substance abuse needs to be dealt with and tonight my head is clearer. I am going to talk to Zac and tell him that he needs to take responsibility for dealing with the addiction therapist - that if truly was a "slip" then the onus of responsibility is on him to work it out with the addiciton therapist and guarantee him that future random tests will be negative. We'll see.

The tdoc with the bipolar son is turning out to be a disappointment. Zac likes him, but his response to us about everything is "What do you expect? He's bipolar" and that's really not very helpful. On the other hand, we had a good session with the pdoc today - tweaked the meds a little, but the most positive thing was that he still sees Zac as a person with a bright future and that this has been a very big bump in the road. I've been so frustrated lately because so many people have been making me feel that Zac's life has to be marginalized because of the BP and I'm not willing to give in so easily. It was a breath of fresh air to have the pdoc agree with me. We're going to have a session soon where all of us talk about the future and come up with a plan on how we are going to get there. It was rejuvenating and just what I needed.

Thanks for being there for me. I need all of you.

Love,

Hope

tsohl
01-24-2007, 11:06 PM
Hi Hope,

Glad to hear from you.

Life is too short to have to deal with someone who is not positive. Of course Zac can still have a bright future. I've been doing lots of reading the last couple days and there really are some very encouraging things going on in research that I think will help out all our kids in the near future. Even if there weren't, Zac could have a bright future with the drugs that are available right now...he just needs to have what he's prescribed, tweaked to perfection, not just "good enough." Close is not good enough. Remember that, and keep going until you find what works well for Zac.

He'll get back on track one of these days and the progress will continue to build. If you have the pdoc working with you and believing in Zac, that is at least half the battle. I know you are relieved.

Take care of yourself,
Tsohl

jules3
01-24-2007, 11:07 PM
Hope,, i agree too many docs involved. my son has 1 pdoc that is supposed to give him therapy too, but according to my son he really doesnt. he just asks questions and listens to answers and is more interested in his meds than anything else.. im thinking that when and if he remains stable(???) i would like him to see a therapist in addition..i just dont want to squash any progress we had so far. so im not getting into that yet.. i think i remember you saying that you guys do not drug test zac at home am i right? i know its a trust issue, but trust has to be earned..we do drug test our son sometimes..i, like you will not tolerate that in my home. i have 2 others and they are exposed to his issues ,i dont want them exposed to his drug issues too. i know about the self-medicating and so on.but, it seems like they can say no to the drugs..i dont know maybe im wrong. i really have a problem with the drug use.i absolutely have no tolerance for it.. im talking about my own son..not yours, so please dont take offense to it. how is zac today??

langlee
01-25-2007, 01:04 PM
Another venting post (sorry! Someday I hope to be positive!)

I just got a voicemail from the addiciton therapist. He feels strongly that Zac should go back to outpatient drug rehab (his program). One of the reasons I wanted Zac to see him individually was that I was hoping, on an individual basis, he would connect with Zac and help Zac see why the substance abuse, on any level, is not good for him.

Here's my concern: my sense of where Zac is psychologically is that he has very little sense of self-worth right now. He has been isolated, although he is trying to reconnect with parts of his old life, he is desperate to hang on to his friends who are important to him, and he has distorted thinking. My gut tells me he is not going down the drug route again, but that he has also not internalized that he can never use drugs (or, at least, is willing to take the risks to use occasionally). I'm not sure what rehab is going to do for him if he goes in resistant and embittered. I'm also worried about what this does to him psychologically. He already feels like he has been trying so hard to recover from all of his demons - self injury, harmful behavior, substance abuse - and rehab, to me, seems like going back to Square One.

This one is really hard for me because on the one hand, I want to put my faith in the professionals but, on the other hand, I feel like I have been burnt so many times by the professionals and there is something in my gut that tells me this is not right. While I might be in denial, I really don't think that's it. This feels to me like we are dealing with symptoms, rather than the cure, and that if we don't unearth the psychological and psychiatric drivers for the behavior, that rehab is not going to work for him.

Thoughts, all?

In my own abyss (right next to Zac),

Hope

tsohl
01-25-2007, 03:29 PM
Hi Hope, :wave:

Feel free to vent any time. That's one reason we're here for you. Just sorry that things are such that you need to vent. :(

Could you tell me a bit more what this tdoc's program is like? What it would involve for Zac? I'd like more details about the whole situation.

All I can say at the moment is that I feel like you do--what you expressed in your last paragraph about dealing with symptoms rather than the cause, etc.

From my limited experience with this, however, I think we have an opinion that is different from the "professionals" in the field. Every program we looked at for our son, and everyone I spoke with seemed to take the approach of dealing with the substance abuse. I argued "but if it weren't for the way the BP was making him feel, he wouldn't have any use for drugs" etc. but no one ever agreed with me.

I'm going to call my son and ask him what he thought of the program he was in and about the whole issue in general. I usually avoid asking direct questions as we tend to focus forward...but I'll see what I can come up with. Of course his drug use was much more ongoing than Zac's. On the other hand, when he made the decision to give it up, he did and that was when he began to recover his stability and health. So maybe he can tell me what the key is to realizing you have to give it up.....so I'll post later today after I speak with him.

Also, what is a typical day like now for Zac? Are the two of you kicking around the house or is he alone a lot? How does he spend his time? I'm just trying to get a picture of what his life is like currently since he doesn't have the structure of going to school, activities, etc.

Hang in there, Hope.

langlee
01-26-2007, 03:46 PM
Thanks, Tsohl. I'd love to get your son's input. Thank him for me.

My understanding of the tdoc's program is 4 days a week, for a few hours a day. My resistance is that if Zac doesn't go into it with the right attitude, it will be merely him showing up, rather than internalizing. I'm going to call the atdoc(addiction therapist as opposed to regular therapist) and remind him that the reason we wanted Zac to go for individual addiction counselling is to help him recognize the risk and the need. My concern is that since Zac's current slips are nothing like the intensityof his usage last spring, he does not see them as a threat. I was hopping the atdoc could help him on a one-to-one basis and discuss things with him differently than the traditional rehab program. We'll see.

Zac starts his real IEP next week (Individual Education Plan) so he will finally have a schedule where he is gone for a good portion of the day. I think that will help tremendously.

I'll keep you all posted. I'm concerned about Goody. I hope we hear from her soon.

Have a great weekend and thanks for always being there for me!

Love,

Hope





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