How has every ones family treated them. my wife has become very agatated and mad because the dr wont let me work. the nero. is takeing his time and my family dr won't let me work until what he thinks are partial simple seizures are under control. I'm having several attacs a day i've been threw keppra,dilantan,and know a combo of valum and zonagram and a wife thats mad because she doesn't want to be the only one working the nero sees me 1 time a month and wont let my dr know what he thinks is going on

I'm really sorry to hear that you're having a hard time. My family is very supportive of me, but then again, I'm a girl. Men seem to understand a lot better than some women. I hope things get better for you. Just keep trying to talk to her and hopefully she'll understand how important it is to have your seizures under control first.

Hi- I'm thinking your wife is not angry at you - but angry/frustrated at the situation. Keep that communication going - till next time........Paula

thanks every one i'll try

jadam my husband is the same way right now but hes not angry with me although sometimes i think he is.he is so very frustrated as am i that i have had epilepsy since 97 and i havent gotten any better dispite everything my drs are doing i am actually getting worse it really helps to talk to one another i know youre probably thinking we talk all the time well thats what i thought then one night me and my husband actually sat down together and talked about my epilepsy i know it wasnt easy for him or me for that matter but it helped alot and alot of his "anger" he had about everything is really a great fear that something awful is going to happen to me someday im only 22 and a mother of 3 children i want to be around to watch them grow up and have children of their own hes just afraid that if i keep going at the rate i am with my seizures that its not going to happen he feels there should be more that the drs can do for me maybe that is some of the same things your wife is feeling believe me it has helped a bunch since we sat down and really talked about things

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mother of 3
ages 4,3,and 1
my pride and joy

live life to its fullest you never know when it may be to late to do all the things you would have done tomorrow

my husband has been very helpful, but it helps that he is the bread winner of the family. but he was helpful with the house work and child rearing when I was very sick with seizures. He is really supportive and a good listener. he does get frustrated with me having seizures because it makes him mad that I had to go thru that stuff. and I was glad he had a friend he could "*****" too when things got over loaded on him too, because the 'well' spouce has a lot of new stress suddenly added to his/her shoulders as well.

Hi,
I'm sorry your wife is upset or frustrated regarding your seizures. I've had both absence (petit mal) and complex partial sz. for 31 yrs. and sometimes my husband gets frustrated because he has to take me to work or to the grocery store since I'm not allowed to drive. I've learned to let it go in one ear and out the other, if a person can not accept me for who I am as well as my physcial condition then I don't consider them someone who really cares about anyone but themself.
I'm surprised that your Dr. won't let you work I will have anywhere from 2-8 sz. in a day and my Dr. told me I can work. I work in public school as a teacher aide with students in special ed. I have to go to their classes and help them out and many times I end up working in wood shop or metal shop with the students cutting wood on the ban saws as well as using a drill press and other tools.
You might want to get a 2nd opinion from another neuro or an Epileptologist in regards to being able to work. Everybody has their own opinion but I'm not going to let epilepsy stop me from living an everyday normal life and if a person wants to cut me down or stay away from me because of my epilepsy that's their problem not mine.
I wish you the best of luck and May God Bless You!

Sue