MSNik
01-02-2007, 10:26 PM
Hey Toni...just checking in....whats going on? Have you spoken to your doc? have you gotten info on starting IV ?? Im worried about you!
I spent the entire day at a NeuroOpthalmologists office, a major Neuro Science Center in NYC today..what an experience. The good news is the pain in my eye is NOT caused by optical neuritis, and my optical nerve is FINE..the bad news is they are not entirely sure what is causing it (the pain). This neuro is a big proponent in pain relief, and offered me just about any pain killer I wanted, I didnt take him up on it...I dont want drugs, I want an answer...he didnt have one. The only thing He could tell me was that after dialating my eyes, and really REALLY giving me a thorough exam, he doesnt think its going to cause vision loss, and that the pain is probalby MS related..but he has no answers...again, i feel like a nut job!
Let me know how you are..and whats happening with you..
Nikki
I spent the entire day at a NeuroOpthalmologists office, a major Neuro Science Center in NYC today..what an experience. The good news is the pain in my eye is NOT caused by optical neuritis, and my optical nerve is FINE..the bad news is they are not entirely sure what is causing it (the pain). This neuro is a big proponent in pain relief, and offered me just about any pain killer I wanted, I didnt take him up on it...I dont want drugs, I want an answer...he didnt have one. The only thing He could tell me was that after dialating my eyes, and really REALLY giving me a thorough exam, he doesnt think its going to cause vision loss, and that the pain is probalby MS related..but he has no answers...again, i feel like a nut job!
Let me know how you are..and whats happening with you..
Nikki
Sponsor
duttin
01-02-2007, 10:59 PM
I have not heard about the steroids,I am calling neuro tomorrow,I have had some really strange headaches,which is really rare for me.My hearing is fading in and out.My pain in my legs from the knees down is off the wall and nothing is releiving it.I've been tears for 2 days over it.I've been taking 1000mg's vicodin,10mgs valium and 20 mgs of baclofen every 4 hours and still no releif.My left eye hurts the central vision fades in and out.Basically I'm in a whiny mood and have fought with my 2 teenagers the last 2 days for picking on my 12 year old so bad.Then she whines and it makes my pain worse.I'm ready to check into any ER that will releive the pain and to top it off I have to go out at 11:00 pm to pick my daughter up from work.My legs hurt so bad that i can't wear my leg brace or shoes.
Nikki sometimes things can't be explained.i refuse to go back to the eye DR he told me my vision has decreased do to old age.I'll be 41 Saturday and I feel about 80.
Sorry to whine.
Nikki sometimes things can't be explained.i refuse to go back to the eye DR he told me my vision has decreased do to old age.I'll be 41 Saturday and I feel about 80.
Sorry to whine.
MSNik
01-03-2007, 06:39 AM
You can whine sweetie. Really!
Youve got it tough, Toni...you have allot more on your plate than I do at the moment. Thank you for undestanding about the eye doctor....this one actually didnt say that it was age, but I have been told that before. This one felt more that it was MS related, but wouldnt confirm it, or couldnt confirm it.
As for you, please get an answer on what they are doing for you. The longer you wait to get this IV in you, the less chance you are going to have of a full recovery from this one. I know any relief of pain will be welcome, but its not just about that, its about stopping whatever is happening. THe Iv Steroids will help to do that, but only if you get to them in time....its crazy that they made you deal with this for the past week without getting you help. Since this all started you could have done a full round of IV Therapy and probably felt better!
Im going nuts too. Now, the jobs which I had applied for are starting to come through. Back when I knew I was graduating in December, I had started applying for work. I had 12 job offers yesterday, and woke up to another 5 "please call me" type emails this morning. Only two of these jobs are parttime, and both, im interested in....but even the prospect of going back to work parttime is scaring me!! I havent had a good nights sleep in so long, my mind is foggy...but, I have to try. My husband is not only sick of me sitting around the house, but financially, even if I brought in 200$ a week, it would make a difference. So, I have to try. Today, will be all about making phone calls and follow ups, trying to nail something down!! At least my huge pupils are no longer enormous and I can be seen in public again!! Last night I looked like a freak!
Okay, time for me to start getting it together. Let me know what the doctor says.
Nikki
Youve got it tough, Toni...you have allot more on your plate than I do at the moment. Thank you for undestanding about the eye doctor....this one actually didnt say that it was age, but I have been told that before. This one felt more that it was MS related, but wouldnt confirm it, or couldnt confirm it.
As for you, please get an answer on what they are doing for you. The longer you wait to get this IV in you, the less chance you are going to have of a full recovery from this one. I know any relief of pain will be welcome, but its not just about that, its about stopping whatever is happening. THe Iv Steroids will help to do that, but only if you get to them in time....its crazy that they made you deal with this for the past week without getting you help. Since this all started you could have done a full round of IV Therapy and probably felt better!
Im going nuts too. Now, the jobs which I had applied for are starting to come through. Back when I knew I was graduating in December, I had started applying for work. I had 12 job offers yesterday, and woke up to another 5 "please call me" type emails this morning. Only two of these jobs are parttime, and both, im interested in....but even the prospect of going back to work parttime is scaring me!! I havent had a good nights sleep in so long, my mind is foggy...but, I have to try. My husband is not only sick of me sitting around the house, but financially, even if I brought in 200$ a week, it would make a difference. So, I have to try. Today, will be all about making phone calls and follow ups, trying to nail something down!! At least my huge pupils are no longer enormous and I can be seen in public again!! Last night I looked like a freak!
Okay, time for me to start getting it together. Let me know what the doctor says.
Nikki
duttin
01-03-2007, 07:07 PM
Nikki,
Thats awesome!Select the job that is perfect for you and that you can handle with your MS.
I'm still in severe pain,talked to neuro and he is terrified about starting the steroids do to the past allergic reaction.i'm to double up on all meds for 2 days then call him back.I'm a zombie in pain.
I've not had a good day.Hubby's car broke down,had to deal with him and he is no mechanic.I told him it was the starter but didn't beleive me.it was.now gotta get that fixed.In the process of me backing out of my drive I hit my daughters X-boy friends car,so I gotta take care of that insurance tomorrow.
Just got a call from the nurse at rebif,when through all of that.Said my meds and literature should be here friday or monday.
Gotta go cellebrate my ma's birthday,I've put on my happy face,took my pain meds and away I go.
Thats awesome!Select the job that is perfect for you and that you can handle with your MS.
I'm still in severe pain,talked to neuro and he is terrified about starting the steroids do to the past allergic reaction.i'm to double up on all meds for 2 days then call him back.I'm a zombie in pain.
I've not had a good day.Hubby's car broke down,had to deal with him and he is no mechanic.I told him it was the starter but didn't beleive me.it was.now gotta get that fixed.In the process of me backing out of my drive I hit my daughters X-boy friends car,so I gotta take care of that insurance tomorrow.
Just got a call from the nurse at rebif,when through all of that.Said my meds and literature should be here friday or monday.
Gotta go cellebrate my ma's birthday,I've put on my happy face,took my pain meds and away I go.
MSNik
01-03-2007, 07:33 PM
Well, at least you are making progress with your rebif...I do hope your insurance company is cooperating with it, my deductible started out at 200$ a month, and after 5 months of fighting with them and killing myself (dont you love the way we have to manage our own health care?) I finally got it down to 50$ a month..which is do-able.
I got the job...heard today, and was offered and accepted. Im scared to death!! I start on the 16th. I will be working 24 hours a week, T-W-Th, 8-4:30...here goes nothing!
I dont understand why the Neuro is sooo worried about you and the steroids...if he is, why not have you do it in the ER? My doc had me do that once, in order not to have to wait 3 days until the nurse could come to my home...they started it in the ER, i went back the next day and by the third day, the medicine had arrived for me to do it at home.....can you suggest that? At least then, if you have a problem, you are in the right place...
take care, toni..
Nikki
I got the job...heard today, and was offered and accepted. Im scared to death!! I start on the 16th. I will be working 24 hours a week, T-W-Th, 8-4:30...here goes nothing!
I dont understand why the Neuro is sooo worried about you and the steroids...if he is, why not have you do it in the ER? My doc had me do that once, in order not to have to wait 3 days until the nurse could come to my home...they started it in the ER, i went back the next day and by the third day, the medicine had arrived for me to do it at home.....can you suggest that? At least then, if you have a problem, you are in the right place...
take care, toni..
Nikki
duttin
01-04-2007, 09:52 PM
Congrats on the job.Hubby should be happy.
Its been a little rough around here,hubby's dad had a mild heart attack,the car is broke and I hit my daughters friends car.Damm full moon.
I had a consult with a chiropractor,he's not gonna do adjustments,but try some mild traction to stretch the muscles to releive the spasms.He's gonna try to strengthen the right leg,but made no promises and will consult my GP first.He isn't gonna charge me anything unless theres improvement.
I'm calling neuro tomorrow,no real pain releif with the meds doubled up.I walked to the chiro's office 2 blocks away.Thought my right leg would fall off.I took my meds about a half hour before hand so it was less difficult walking.
I'm demanding the steroids.Something has to give or lesson.
Its been a little rough around here,hubby's dad had a mild heart attack,the car is broke and I hit my daughters friends car.Damm full moon.
I had a consult with a chiropractor,he's not gonna do adjustments,but try some mild traction to stretch the muscles to releive the spasms.He's gonna try to strengthen the right leg,but made no promises and will consult my GP first.He isn't gonna charge me anything unless theres improvement.
I'm calling neuro tomorrow,no real pain releif with the meds doubled up.I walked to the chiro's office 2 blocks away.Thought my right leg would fall off.I took my meds about a half hour before hand so it was less difficult walking.
I'm demanding the steroids.Something has to give or lesson.
MSNik
01-05-2007, 06:40 AM
Yeah, hubby is happy about the job, IM terrified! Im sorry you arent having any relief at all. At least it sounds like the chiro is being cool....let me know what the doctor says, okay?? Have you thought about changing docs? This one doesnt sound very "user' friendly....
nikki
nikki
duttin
01-05-2007, 06:25 PM
Nikki,
The neuro I am seeing is very nice and good,I talked to his office today and the hold up on the steroids is my insurance co.They okayed the rebif but dragging there butts on the IV steroids.If there is not an answer by monday the neuro is gonna start oral steroids.
The increase in the valium and baclofen has helped,but once it is out of my system I'm back to the extreme muscle spasms and pain.I'll suffer tomorrow,I stacked a cord and a half of wood today,hubby at work and kids in school.It was to rain and couldn't leave it on the drive.My ma was gonna come down and help but she's got a bad back and terrible arthritis.Since I got the wood stacked in the garage it has rained 2 inches.Its miserable here.
I did tell my hubby the next time he had wood delivered he best be home.We primarily heat our home with the fire places.
The neuro I am seeing is very nice and good,I talked to his office today and the hold up on the steroids is my insurance co.They okayed the rebif but dragging there butts on the IV steroids.If there is not an answer by monday the neuro is gonna start oral steroids.
The increase in the valium and baclofen has helped,but once it is out of my system I'm back to the extreme muscle spasms and pain.I'll suffer tomorrow,I stacked a cord and a half of wood today,hubby at work and kids in school.It was to rain and couldn't leave it on the drive.My ma was gonna come down and help but she's got a bad back and terrible arthritis.Since I got the wood stacked in the garage it has rained 2 inches.Its miserable here.
I did tell my hubby the next time he had wood delivered he best be home.We primarily heat our home with the fire places.
MSNik
01-06-2007, 11:59 AM
Thats pretty cool about heating your home with wood...but he better start helping you! Okay, I understand about the steroids and the insurance company..Ive never heard of them dragging their feet this long, and really your doctor should be calling them daily stressing the importance of starting it now..but ok.
Oral Steroids are not going to do much at all. They are only 20 mgs, as opposed to 1000 mgs per dose..of course, you could take 10 packs of them at once!! Maybe there is something out there I dont know about, but that has been my experience so far..
Please take care of yourself, Toni...you do NOT sound like you are resting!
hugs,
n
Oral Steroids are not going to do much at all. They are only 20 mgs, as opposed to 1000 mgs per dose..of course, you could take 10 packs of them at once!! Maybe there is something out there I dont know about, but that has been my experience so far..
Please take care of yourself, Toni...you do NOT sound like you are resting!
hugs,
n
duttin
01-06-2007, 04:32 PM
Nikki,
I have slept non stop since 6:30 last evening,except for about an hour last night when hubby rudely awoke me when he got home from work and then again this morning to get groceries.I'm kinda stuck on his schedule,being down to one car.I have slept all day today.Got groceries came back home went to bed slept 5 hours and I can barely keep my eyes open now.Gonna jump in the shower to see if that wakes me up.
My son wanted to take me out to dinner for my birthday,I told him I'd take a rain check,it wouldn't be enjoyable for him nor I since I can't stay awake.So instead I put his favorite in the oven barbecue ribs.
I will hear from my neuro on monday.
I have slept non stop since 6:30 last evening,except for about an hour last night when hubby rudely awoke me when he got home from work and then again this morning to get groceries.I'm kinda stuck on his schedule,being down to one car.I have slept all day today.Got groceries came back home went to bed slept 5 hours and I can barely keep my eyes open now.Gonna jump in the shower to see if that wakes me up.
My son wanted to take me out to dinner for my birthday,I told him I'd take a rain check,it wouldn't be enjoyable for him nor I since I can't stay awake.So instead I put his favorite in the oven barbecue ribs.
I will hear from my neuro on monday.
MSNik
01-06-2007, 06:11 PM
EEEK. I forgot. (MS thing?) You did tell me it was your birthday today. IM sorry I forgot...well, better late than never. Happy Birthday Sweetie. You sure it wouldnt have been better to order a pizza or chinese and forget cooking/? Sounds like your son was trying, anyway!
As for the sleeping thing...sometimes, its your bodies way of telling you to STOP and REST. Not a bad thing that you slept so much...and it might be the doubling up of the pain pills which are catching up with you..
Im so worried about starting this job this week. I know, its only 3 days a week, but I havent stayed awake from 6 am to 6 pm in over a year, Ive always had to nap in the middle....we'll see how this goes. Im excited, scared and overwhelmed all at once!
Toni, Happy Birthday, let me know what the Neuro says...
Nikki
As for the sleeping thing...sometimes, its your bodies way of telling you to STOP and REST. Not a bad thing that you slept so much...and it might be the doubling up of the pain pills which are catching up with you..
Im so worried about starting this job this week. I know, its only 3 days a week, but I havent stayed awake from 6 am to 6 pm in over a year, Ive always had to nap in the middle....we'll see how this goes. Im excited, scared and overwhelmed all at once!
Toni, Happy Birthday, let me know what the Neuro says...
Nikki
duttin
01-07-2007, 10:58 AM
You'll do great at your job,it will take time to get past the missing naps,but some how we adjust.
I have slept continuously for the last 2 days.I've been up for just a few hours and can hardly keep my eyes open.i have absolutly no energy.When I move its slow motion and I feel as if I'm in my own little world.
8 am in the morning I'm calling neuro,I now have increased facial numbness and rt sided butt numbness,plus I had no central vision in either eye last night.Thought my eye glasses needed cleaned ,nope.Distant vision has been a challange her lately.If my neuro doesn't respond tomorrow I;m driving the 30 miles and checking into the clinic.I'm having the start of a relapse and the muscle spasms are just adding to it.
I have slept continuously for the last 2 days.I've been up for just a few hours and can hardly keep my eyes open.i have absolutly no energy.When I move its slow motion and I feel as if I'm in my own little world.
8 am in the morning I'm calling neuro,I now have increased facial numbness and rt sided butt numbness,plus I had no central vision in either eye last night.Thought my eye glasses needed cleaned ,nope.Distant vision has been a challange her lately.If my neuro doesn't respond tomorrow I;m driving the 30 miles and checking into the clinic.I'm having the start of a relapse and the muscle spasms are just adding to it.