Kolby
01-03-2007, 11:52 AM
:blob_fire
I'm sitting here and I can take no more. My son looks terrible. He is five and pal and his stomach sticks out.
He still wears mostly 3T. He eats a lot of chicken nuggets and French fries and carbs and crap. He has a favorite fast food place that I am now done with. I'm tired of passing it and having him yell for it. His grandmother was the wonderful person who exposed him to that place at least twice a week when she babysits him.
He has been horrible during this holiday season and seems tired and even got a stomach bug. No one else in the house did. He's cranky and moody and just so unhappy. I can't take it anymore!!!!!
Anyway I have felt like food has caused some of his problems. But he got hooked on the junk. You all know, if you have an Autistic child who is moody you just give it to him to keep him quiet. Well I'm done with that. I have had it.
I am tired of my son only going #2 twice a week. I'm tired of him looking sickly. I'm tired of Autism taking over my house. I have decided to eliminate all fast foods and get rid of the trans fats in my home. I am starting him on cod liver oil and getting our life back on track. I can no longer step back and let the IU provide him with his 1/2 hours a week and call it therapy. So I'm taking action. And if he doesn't eat for two days so be it. I can't allow a 5 year old to tell me what to do while I watch him deteriorate. I'm not saying that all Autism is cased by crappy food, but in my son's case I believe it is a contributing factor. Have any of you simply cut trans fats out of your child's diet and have seen a change?:confused:
Michelle
I'm sitting here and I can take no more. My son looks terrible. He is five and pal and his stomach sticks out.
He still wears mostly 3T. He eats a lot of chicken nuggets and French fries and carbs and crap. He has a favorite fast food place that I am now done with. I'm tired of passing it and having him yell for it. His grandmother was the wonderful person who exposed him to that place at least twice a week when she babysits him.
He has been horrible during this holiday season and seems tired and even got a stomach bug. No one else in the house did. He's cranky and moody and just so unhappy. I can't take it anymore!!!!!
Anyway I have felt like food has caused some of his problems. But he got hooked on the junk. You all know, if you have an Autistic child who is moody you just give it to him to keep him quiet. Well I'm done with that. I have had it.
I am tired of my son only going #2 twice a week. I'm tired of him looking sickly. I'm tired of Autism taking over my house. I have decided to eliminate all fast foods and get rid of the trans fats in my home. I am starting him on cod liver oil and getting our life back on track. I can no longer step back and let the IU provide him with his 1/2 hours a week and call it therapy. So I'm taking action. And if he doesn't eat for two days so be it. I can't allow a 5 year old to tell me what to do while I watch him deteriorate. I'm not saying that all Autism is cased by crappy food, but in my son's case I believe it is a contributing factor. Have any of you simply cut trans fats out of your child's diet and have seen a change?:confused:
Michelle
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dvalred
01-03-2007, 12:22 PM
yes, we have cut out fast food in our house. we started eating fresh fish once a week, especially salmon which is loaded with omega 3 and we have also included ground flaxseed in the foods we prepare. i read that omega 3 is very beneficial to everyone but especially kids with autism. flaxseed is also an excellent added benefit to everyone too. my daughter who has aspergers, is very much addicted to carbs. she loves pasta but only with olive oil on it. so i buy the best olive oil i can find and we only eat organic whole wheat pasta. i figure since she is a carbs kind of kid, at least i can try to make the carbs healthier.
since we cut out fast food, which we ate occasionally anyway, neither one of our kids has asked for it. i think it's been about a year since they have had mcdonalds or any other fast food. i don't know if it helps with autism but it definitely doesn't hurt to give healthier foods anyway.
since we cut out fast food, which we ate occasionally anyway, neither one of our kids has asked for it. i think it's been about a year since they have had mcdonalds or any other fast food. i don't know if it helps with autism but it definitely doesn't hurt to give healthier foods anyway.
KimTN3871
01-03-2007, 12:56 PM
I have a 5 yr old son on the spectrum. We have been doing the GFCF diet for nearly a year. My son also liked primarlily chicken nuggets, pizza, chips, french fries, etc. He loved McDonalds....we had him tested for delayed onset food allergies and he has them!! to egg, all wheat and any of its relatives, whey....everything he has an allergy to is something he craved. The diet has made a big difference..and also working with his yeast levels. I am wondering if there is more to it than just trans fats?? I know what it is like to feel like you have just had enough...and I wish you the best. Hang in there!
Kolby
01-03-2007, 04:26 PM
Thank you both for responding. Do you feel changing their food really made a difference with their everyday life? I mean if I'm going to take away chicken nuggets I want to see a difference ;)
Other than health, is it good for the soul per say?
And how do you go about getting so many test done? Should I just contact my child's reg doctor?
Thanks
Michelle
Other than health, is it good for the soul per say?
And how do you go about getting so many test done? Should I just contact my child's reg doctor?
Thanks
Michelle
soozeq
01-04-2007, 11:11 AM
Hi Michelle
Your first post echoes my feelings almost absolutely. Liam will only eat meat in the form of nuggets or hotdogs. Is that really meat? I think not. He also suffers from horrible, painful constipation. I've been doing a lot of research into food allergies and the GFCF diet. It's huge and scary to change his diet completely. it would have major implications at school and at home. We have a major assessment on monday, and I've requested that he be tested for as many food allergies as possible. They seem open to it. As far as where you can get test, what about a DAN doctor. I don't know much about american medical coverage, but I'm sure they're out there.
Good Luck
Suzy
Your first post echoes my feelings almost absolutely. Liam will only eat meat in the form of nuggets or hotdogs. Is that really meat? I think not. He also suffers from horrible, painful constipation. I've been doing a lot of research into food allergies and the GFCF diet. It's huge and scary to change his diet completely. it would have major implications at school and at home. We have a major assessment on monday, and I've requested that he be tested for as many food allergies as possible. They seem open to it. As far as where you can get test, what about a DAN doctor. I don't know much about american medical coverage, but I'm sure they're out there.
Good Luck
Suzy
BetsyAnn
01-04-2007, 02:24 PM
Thank you both for responding. Do you feel changing their food really made a difference with their everyday life? I mean if I'm going to take away chicken nuggets I want to see a difference ;)
Other than health, is it good for the soul per say?
And how do you go about getting so many test done? Should I just contact my child's reg doctor?
Thanks
Michelle
My son is gluten, casein, and soy free. By virtue of being on the diet he is also trans fat free. Although I have not strictly prohibited the trans fats, most of the hydrogonalized vegtable oils contain soy so he does not eat foods that contain them. I can not think of any food he eats that does contains trans fats.
I do think that the lack of trans fats has contributed to my son's overall health. However, I do not think that it has caused any huge difference in his behavior. The elimination of casein, on the other hand, made a dramatic and immediate diffence in his behavior, completely eliminating many of his autistic traits. It did not make any difference, however, until all trace elements were removed.
You could certainly ask your regular doctor about the diet and all of the testing. Most likely he will just pooh-pooh it. Your best bet is a DAN doctor. Our Dan doctor told us that we could do all of the allergy testing if we like, but he wanted us to do a trial period of the diet regardless of the results because it is very easy to get false negatives. Since we were going to do the diet anyway we decided to save the money on the testing.
Other than health, is it good for the soul per say?
And how do you go about getting so many test done? Should I just contact my child's reg doctor?
Thanks
Michelle
My son is gluten, casein, and soy free. By virtue of being on the diet he is also trans fat free. Although I have not strictly prohibited the trans fats, most of the hydrogonalized vegtable oils contain soy so he does not eat foods that contain them. I can not think of any food he eats that does contains trans fats.
I do think that the lack of trans fats has contributed to my son's overall health. However, I do not think that it has caused any huge difference in his behavior. The elimination of casein, on the other hand, made a dramatic and immediate diffence in his behavior, completely eliminating many of his autistic traits. It did not make any difference, however, until all trace elements were removed.
You could certainly ask your regular doctor about the diet and all of the testing. Most likely he will just pooh-pooh it. Your best bet is a DAN doctor. Our Dan doctor told us that we could do all of the allergy testing if we like, but he wanted us to do a trial period of the diet regardless of the results because it is very easy to get false negatives. Since we were going to do the diet anyway we decided to save the money on the testing.
datgrlstef
01-04-2007, 05:18 PM
I am tired of my son only going #2 twice a week. I'm tired of him looking sickly. I'm tired of Autism taking over my house. I have decided to eliminate all fast foods and get rid of the trans fats in my home. I am starting him on cod liver oil and getting our life back on track. I can no longer step back and let the IU provide him with his 1/2 hours a week and call it therapy. So I'm taking action. And if he doesn't eat for two days so be it. I can't allow a 5 year old to tell me what to do while I watch him deteriorate. I'm not saying that all Autism is cased by crappy food, but in my son's case I believe it is a contributing factor. Have any of you simply cut trans fats out of your child's diet and have seen a change?:confused:
Michelle
wow! You think that he's only going #2 twice a week because of the trans fats? :confused: Hadn't thought of that before.. how often has your son been eating fast food? Just twice a week? (Not that twice a week is great, but at least it's not more than that). My son is 3, and he LOVES chicken nuggets and french fries too. We only go to McD's *maybe* once a week. he does go #2 every day, though. sometimes he goes twice. just depends.. but he is very regular. I'm taking my son to a clinic next week for medical testing, and am hoping they do some allergy tests, since he has eczema.. and I really want to find out how much his diet is playing into this.
Michelle
wow! You think that he's only going #2 twice a week because of the trans fats? :confused: Hadn't thought of that before.. how often has your son been eating fast food? Just twice a week? (Not that twice a week is great, but at least it's not more than that). My son is 3, and he LOVES chicken nuggets and french fries too. We only go to McD's *maybe* once a week. he does go #2 every day, though. sometimes he goes twice. just depends.. but he is very regular. I'm taking my son to a clinic next week for medical testing, and am hoping they do some allergy tests, since he has eczema.. and I really want to find out how much his diet is playing into this.
KimTN3871
01-04-2007, 05:53 PM
I, too, echo those who have suggested a DAN practicioner. Even the best pediatrician will not give most of these thoughts any clout at all. I have read that most diet responders can suffer from constipation OR diaharrea. My son had a constipation issue, but no longer. My son was a responder to gluten...it absolutely alters his behavior. He did not show a reaction to the casein, but the two are so similar in structure that our dr recommended removing them both. The diet is hard, but improves when you get the hang of it. My son still eats chicken nuggets, but I make them (and excellent recipe from Special Diets for Special Kids). I also make his pizzas, french fries, etc. It is worth the effort. I am one of those people who never thought I could have managed this diet and we have made it so far. We have some infractions now and then, but we keep trying.
soozeq
01-05-2007, 08:15 AM
Kolby
We are having such a similar experience, it's scary. Yesterday, I also had enough. He just stimmed all day at school yesterday. I think, because of gut pain. He's bloated and uncomfortable. He doesn't want to eat, just drink milk 24/7. Yesterday I decided to end his love affair with dairy. I am now cutting dairy out of his diet completely. I bought the Omega-3 soy milk and thank God he loves it and did not complain about the change. You try trans-fat, I'll try dairy, and we'll compare notes!
Suzy
We are having such a similar experience, it's scary. Yesterday, I also had enough. He just stimmed all day at school yesterday. I think, because of gut pain. He's bloated and uncomfortable. He doesn't want to eat, just drink milk 24/7. Yesterday I decided to end his love affair with dairy. I am now cutting dairy out of his diet completely. I bought the Omega-3 soy milk and thank God he loves it and did not complain about the change. You try trans-fat, I'll try dairy, and we'll compare notes!
Suzy
Kolby
01-05-2007, 09:56 AM
My son also has skin problems. If I were you I would just stop going to McD.
They make french fries at the market with no trans fat. I don't know if his going twice a week is trans fat. I think he holds it in. He doesn't seem consitpated but does have meds for that. He drinks a great amount of water too. My son started eating McD at the earliest age he could eat a nugget thanks to my Mother-in-Law who doesn't understand why her husband had a major heart attack. It's called Dutch cooking. Anyway, I don't want to attack her. She just doesn't get it at all. Thank the Lord my husband does and has agreed to get rid of the trans fats. That is our first step. Next may be milk for my son.
Good luck to you!
Michelle
They make french fries at the market with no trans fat. I don't know if his going twice a week is trans fat. I think he holds it in. He doesn't seem consitpated but does have meds for that. He drinks a great amount of water too. My son started eating McD at the earliest age he could eat a nugget thanks to my Mother-in-Law who doesn't understand why her husband had a major heart attack. It's called Dutch cooking. Anyway, I don't want to attack her. She just doesn't get it at all. Thank the Lord my husband does and has agreed to get rid of the trans fats. That is our first step. Next may be milk for my son.
Good luck to you!
Michelle
Kolby
01-05-2007, 10:14 AM
Kolby
We are having such a similar experience, it's scary. Yesterday, I also had enough. He just stimmed all day at school yesterday. I think, because of gut pain. He's bloated and uncomfortable. He doesn't want to eat, just drink milk 24/7. Yesterday I decided to end his love affair with dairy. I am now cutting dairy out of his diet completely. I bought the Omega-3 soy milk and thank God he loves it and did not complain about the change. You try trans-fat, I'll try dairy, and we'll compare notes!
Suzy
Suzy my son is Kolby I'm Michelle. Just so you know :)
I am really going to think about the milk and maybe get rid of it. You see my sister and father have Lactose intolerance. If I spelled that correctly. And my Dad and his Dad had diabetes. I also have diabetes on my mother's side.
My son's stomach is bloated too. Come to think of it mine is too. Hmmm mabye milk removal would be good. I'll let you know.
michelle
We are having such a similar experience, it's scary. Yesterday, I also had enough. He just stimmed all day at school yesterday. I think, because of gut pain. He's bloated and uncomfortable. He doesn't want to eat, just drink milk 24/7. Yesterday I decided to end his love affair with dairy. I am now cutting dairy out of his diet completely. I bought the Omega-3 soy milk and thank God he loves it and did not complain about the change. You try trans-fat, I'll try dairy, and we'll compare notes!
Suzy
Suzy my son is Kolby I'm Michelle. Just so you know :)
I am really going to think about the milk and maybe get rid of it. You see my sister and father have Lactose intolerance. If I spelled that correctly. And my Dad and his Dad had diabetes. I also have diabetes on my mother's side.
My son's stomach is bloated too. Come to think of it mine is too. Hmmm mabye milk removal would be good. I'll let you know.
michelle
Kolby
01-05-2007, 10:26 AM
By the way thanks for all your replies. I hear that one fast food place doesn't use trans fats and it starts with the letter W. A good alternative to those children who demand the drive up window. :)
Michelle
Michelle
datgrlstef
01-05-2007, 11:20 AM
I'm curious.. to those switching their kids to soy milk. Are your doctors at all concerned about the risks of males drinking too much of this stuff? Or having too much soy in general? This is part of why I'm not really interested in switching. And rice milk, well it even says on the container that it's not meant for kids under a certain age.. or to at least ask the dr first. There's a lot to consider before giving things to kids these days. :dizzy:
BetsyAnn
01-05-2007, 12:35 PM
I'm curious.. to those switching their kids to soy milk. Are your doctors at all concerned about the risks of males drinking too much of this stuff? Or having too much soy in general? This is part of why I'm not really interested in switching. And rice milk, well it even says on the container that it's not meant for kids under a certain age.. or to at least ask the dr first. There's a lot to consider before giving things to kids these days. :dizzy:
When we went casein free our doctor sugguested that we use rice milk rather than soy. He explained that the protein in soy is very similar to the protein in milk and if a person has a problem with casein they most likely will with soy.
When we removed all trace elements of milk our son started sleeping for the first time in his life. When I started letting him eat soy yogurt his sleep became very irratic (not as bad as before but a problem). When I took the soy yogurt away he started sleeping soundly again. The problems soy caused for my son were similar to the problems milk caused but not to the same degree. I feel if we would have substituted soy milk for cow milk we may not have been able to see wait a difference removing the casein really was.
To answer your question, I don't know about my kid's doctor, but I personally am very uncomfortable feeding any of my boys (or myself) alot of soy because of the hormonal problems it can cause.
As for the rice milk, it is a beverage and something to put on cereal. Our bodies don't require cow's milk, they do require calcium. Since my son is diarly free we give him a supplement for calcium. I also buy rice milk with calcium and orange juice supplemented with calcium. Our pediatrician, who does not buy into the whole biomedical approach to autism, is fine with this.
When we went casein free our doctor sugguested that we use rice milk rather than soy. He explained that the protein in soy is very similar to the protein in milk and if a person has a problem with casein they most likely will with soy.
When we removed all trace elements of milk our son started sleeping for the first time in his life. When I started letting him eat soy yogurt his sleep became very irratic (not as bad as before but a problem). When I took the soy yogurt away he started sleeping soundly again. The problems soy caused for my son were similar to the problems milk caused but not to the same degree. I feel if we would have substituted soy milk for cow milk we may not have been able to see wait a difference removing the casein really was.
To answer your question, I don't know about my kid's doctor, but I personally am very uncomfortable feeding any of my boys (or myself) alot of soy because of the hormonal problems it can cause.
As for the rice milk, it is a beverage and something to put on cereal. Our bodies don't require cow's milk, they do require calcium. Since my son is diarly free we give him a supplement for calcium. I also buy rice milk with calcium and orange juice supplemented with calcium. Our pediatrician, who does not buy into the whole biomedical approach to autism, is fine with this.
KathleenW
01-05-2007, 04:58 PM
Michelle, what does Kolby's pediatrician say about his height? When my son was 5 he wore a size 5 and he was in the 25th percentile for height. If Kolby is wearing a 3t he must not even be on the height chart.
Has he ever been tested for Celiac Disease? Children with Celiac can not tolerate any wheat or gluten in their system. If you continue to eat these things you will have a stomach like you are pregnant and your body will not be able to absorb any of the nutrients. I do not think Trans fats are your problem. I think he should start eating grilled chicken and hamburgers with fresh fruits and vegetables. It will be hard to implement the diet at age 5. I switched my child's diet at age 2 and within a couple of weeks he was used to it.
We did ABA and diet intervention from the age of 2. My child is happy and healthy. He is currently in a regular first grade classroom and is the second smartest in his class. He has a lot of friends and no symptoms of autism.
Has he ever been tested for Celiac Disease? Children with Celiac can not tolerate any wheat or gluten in their system. If you continue to eat these things you will have a stomach like you are pregnant and your body will not be able to absorb any of the nutrients. I do not think Trans fats are your problem. I think he should start eating grilled chicken and hamburgers with fresh fruits and vegetables. It will be hard to implement the diet at age 5. I switched my child's diet at age 2 and within a couple of weeks he was used to it.
We did ABA and diet intervention from the age of 2. My child is happy and healthy. He is currently in a regular first grade classroom and is the second smartest in his class. He has a lot of friends and no symptoms of autism.
BetsyAnn
01-05-2007, 08:17 PM
KathleenW, it is great to have you back. I miss reading your posts. I was glad to read that your son is doing so well in first grade.
KathleenW
01-05-2007, 09:52 PM
Thanks Betsy! I used to check this board several times a week and give my expert advice!!!! I kind of felt like people were really not interested and would not change things that would help their child. Which I completely understand. I think that most people think they know their child best and have to do what they think is in their child's own best interest. Also, it seemed like a lot of the topics I was seeing on this board did not relate to what I went through with my son and I decided to stop checking this board.
I feel very blessed that my son continues to thrive academically and socially. He is the true definition of a miracle. This has been the best year of my life. I love first graders!! Even though I always knew my son loved me I never felt like we had the normal mother and son bond. I thought maybe it was because I was such a drill seargant to him 24 hours a day, I really wish that we did not have to go through all that we did, even though I know it was worth it. I feel so lucky to have such a loving child and the mother son relationship I always wanted. I wish the best for you and your family.
I feel very blessed that my son continues to thrive academically and socially. He is the true definition of a miracle. This has been the best year of my life. I love first graders!! Even though I always knew my son loved me I never felt like we had the normal mother and son bond. I thought maybe it was because I was such a drill seargant to him 24 hours a day, I really wish that we did not have to go through all that we did, even though I know it was worth it. I feel so lucky to have such a loving child and the mother son relationship I always wanted. I wish the best for you and your family.
BetsyAnn
01-07-2007, 12:33 PM
KathleenW, your son's story really gave me hope, as I know it has done for others as well. I can't yet say that my son is indistinguishable form his peers, but he has sure come along way and we plan to keep fighting. He is currently in a typical kindergarten class with aide support for only 30 min. His teacher feels strongly that is all the time he needs. (He is still in speech therapy and works with the resource teacher.)
KathleenW
01-08-2007, 12:22 PM
Betsy, I am so proud of you and your son! That is such an accomplishment for him to only have an aide for 30 minutes!!!!!!!!!! It sounds like he is well on his way to becoming an independant young man! Only people who have gone through what we have, know how much blood, sweat and tears it takes to get your child back on track.
Keep up the good work! You are a wonderful mom!!! I am so glad my son's story gave you hope. To me it is such a miracle that when my son was 30 months he was at a cognitive level of 16 months and his speech was also at 16 months. And now last year when he was in Kindergarten and this year in first grade not only is he completely independant he is once again the second smartest student in his class.
Keep up the good work! You are a wonderful mom!!! I am so glad my son's story gave you hope. To me it is such a miracle that when my son was 30 months he was at a cognitive level of 16 months and his speech was also at 16 months. And now last year when he was in Kindergarten and this year in first grade not only is he completely independant he is once again the second smartest student in his class.
Kolby
01-08-2007, 01:28 PM
Michelle, what does Kolby's pediatrician say about his height? When my son was 5 he wore a size 5 and he was in the 25th percentile for height. If Kolby is wearing a 3t he must not even be on the height chart.
Has he ever been tested for Celiac Disease? Children with Celiac can not tolerate any wheat or gluten in their system. If you continue to eat these things you will have a stomach like you are pregnant and your body will not be able to absorb any of the nutrients. I do not think Trans fats are your problem. I think he should start eating grilled chicken and hamburgers with fresh fruits and vegetables. It will be hard to implement the diet at age 5. I switched my child's diet at age 2 and within a couple of weeks he was used to it.
We did ABA and diet intervention from the age of 2. My child is happy and healthy. He is currently in a regular first grade classroom and is the second smartest in his class. He has a lot of friends and no symptoms of autism.
So basically your child isn't Autistic anymore? That is so great.
His Dr. says he is small for his age. Most people think he is three. He just turned 5. His Dr.'s stinks!!! Any chance You could give me a hint of where I can search to find a Dan Doctor? I know we can't list anything on these sites but maybe a name of a dr. I live outside of Harrisburg, PA.
I must say that my son did very well this weekend. He really talked a lot and was less irritable. God only knows but even removing trans fats has to help his health a bit. But I would like to get him tested for the other things. I mean my family has diabetes and lactose intolerance.
Thanks
Michelle
Has he ever been tested for Celiac Disease? Children with Celiac can not tolerate any wheat or gluten in their system. If you continue to eat these things you will have a stomach like you are pregnant and your body will not be able to absorb any of the nutrients. I do not think Trans fats are your problem. I think he should start eating grilled chicken and hamburgers with fresh fruits and vegetables. It will be hard to implement the diet at age 5. I switched my child's diet at age 2 and within a couple of weeks he was used to it.
We did ABA and diet intervention from the age of 2. My child is happy and healthy. He is currently in a regular first grade classroom and is the second smartest in his class. He has a lot of friends and no symptoms of autism.
So basically your child isn't Autistic anymore? That is so great.
His Dr. says he is small for his age. Most people think he is three. He just turned 5. His Dr.'s stinks!!! Any chance You could give me a hint of where I can search to find a Dan Doctor? I know we can't list anything on these sites but maybe a name of a dr. I live outside of Harrisburg, PA.
I must say that my son did very well this weekend. He really talked a lot and was less irritable. God only knows but even removing trans fats has to help his health a bit. But I would like to get him tested for the other things. I mean my family has diabetes and lactose intolerance.
Thanks
Michelle
soozeq
01-08-2007, 02:16 PM
Hi Michelle
We are allowed to post websites that are strictly informational. So this one should be OK:
http://www.autismwebsite.com/ari-lists/danus.html
It's a list of all the DAN dr's in the US who've registered with the autism research institute. I found an entire list of DAN dr's in Toronto form the site. If they take away the link, I'm sorry.
Also, we're four full days dairy free, now. We've had 3 good days and 1 bad day. He's had one BM, and it was pretty effortless. We have his eval today, and we're going to discuss GF/CF.
Good Luck
Suzy
We are allowed to post websites that are strictly informational. So this one should be OK:
http://www.autismwebsite.com/ari-lists/danus.html
It's a list of all the DAN dr's in the US who've registered with the autism research institute. I found an entire list of DAN dr's in Toronto form the site. If they take away the link, I'm sorry.
Also, we're four full days dairy free, now. We've had 3 good days and 1 bad day. He's had one BM, and it was pretty effortless. We have his eval today, and we're going to discuss GF/CF.
Good Luck
Suzy
KathleenW
01-08-2007, 06:59 PM
[QUOTE=Kolby]So basically your child isn't Autistic anymore? That is so great.
My son was never diagnosed as autistic. He was diagnosed with mild PDD and they told me that my son would always be mildly handicapped. Early intervention of ABA therapy, speech therapy and change of diet helped my son. The last time he was evaluated when he was almost 4 they said my son no longer had any symptoms of autism and had apparently "outgrown" it. His speech is perfect, he is super smart, he is very social with same age peers and has no behavior problems.
Are you and your husband super short? Do you have other children that are very small. Your doctor really worries me that he has not done any tests on him because of his size. I have never seen a DAN doctor, but a lot of people seem to think they help.
My son was never diagnosed as autistic. He was diagnosed with mild PDD and they told me that my son would always be mildly handicapped. Early intervention of ABA therapy, speech therapy and change of diet helped my son. The last time he was evaluated when he was almost 4 they said my son no longer had any symptoms of autism and had apparently "outgrown" it. His speech is perfect, he is super smart, he is very social with same age peers and has no behavior problems.
Are you and your husband super short? Do you have other children that are very small. Your doctor really worries me that he has not done any tests on him because of his size. I have never seen a DAN doctor, but a lot of people seem to think they help.
soozeq
01-09-2007, 08:18 AM
Hi Michelle
We saw the child development team today, and one thing we discussed was the digestion, so I thought I'd share it with you. We were told to keep him off of dairy for a month, and give him lactilose or mineral oil daily. (I won't suggest a dosage because Kolby's so much smaller than Liam) We are going to chart BM's with frequency and discomfort factored in. We see the team again on the 30th and if we don't see improvement at that point we will get more aggressive, by discussing removing gluten. I will be sure to keep you updated.
How's Kolby?
Did you come across a DAN dr? If your ped. wont pay attention to these issues, I would truly look for someone who will.
Suzy
We saw the child development team today, and one thing we discussed was the digestion, so I thought I'd share it with you. We were told to keep him off of dairy for a month, and give him lactilose or mineral oil daily. (I won't suggest a dosage because Kolby's so much smaller than Liam) We are going to chart BM's with frequency and discomfort factored in. We see the team again on the 30th and if we don't see improvement at that point we will get more aggressive, by discussing removing gluten. I will be sure to keep you updated.
How's Kolby?
Did you come across a DAN dr? If your ped. wont pay attention to these issues, I would truly look for someone who will.
Suzy
soozeq
01-09-2007, 09:09 AM
I'm curious.. to those switching their kids to soy milk. Are your doctors at all concerned about the risks of males drinking too much of this stuff? Or having too much soy in general? This is part of why I'm not really interested in switching. And rice milk, well it even says on the container that it's not meant for kids under a certain age.. or to at least ask the dr first. There's a lot to consider before giving things to kids these days. :dizzy:
Steff:
I kept this in mind, yesterday, and I asked what was a safe amount of soy for Liam, and how the soy might affect him. I was told that up the 3 cups/day of soy milk is safe and healthy. Thanks for bringing that up, or I probably would not have thought to ask.
Suzy
Steff:
I kept this in mind, yesterday, and I asked what was a safe amount of soy for Liam, and how the soy might affect him. I was told that up the 3 cups/day of soy milk is safe and healthy. Thanks for bringing that up, or I probably would not have thought to ask.
Suzy
Kolby
01-09-2007, 09:44 AM
[QUOTE=Kolby]So basically your child isn't Autistic anymore? That is so great.
My son was never diagnosed as autistic. He was diagnosed with mild PDD and they told me that my son would always be mildly handicapped. Early intervention of ABA therapy, speech therapy and change of diet helped my son. The last time he was evaluated when he was almost 4 they said my son no longer had any symptoms of autism and had apparently "outgrown" it. His speech is perfect, he is super smart, he is very social with same age peers and has no behavior problems.
Are you and your husband super short? Do you have other children that are very small. Your doctor really worries me that he has not done any tests on him because of his size. I have never seen a DAN doctor, but a lot of people seem to think they help.
Wow that is so great for you and your child. My son gets about 15 minutes of speech a week. I am so angry with that and have been fighting for more time. Someone is listening for once and we are having a meeting next week to make a change. I mean really, what does 15 minutes do? As for a DAN doctor I am looking now.
I'm 5 2 and my husband is 6 feet. My 7 year old isn't that tall either. My step daughter isn't tall either and her Mom is 5 5. I think my husband just produces smaller children. But I think they get big in time. Like now my 7 year old seems to be growing fast. This morning I put on a pair of 4T pants with a belt on Kolby. Looks like he is almost into them. He does have 4T to 5 shirts. Just his waist. And he has no butt. LOL. Even with his tummy bloated he still doesn't fit into 4T perfectly.
Well we have not fed him any trans fats and I must say I am pleased so far. He is talking and less moody really. I just can't get him to take the liquid form of the Cod Liver Oil. So I am going to purchased the chewable tablets.
Thanks
Michelle
My son was never diagnosed as autistic. He was diagnosed with mild PDD and they told me that my son would always be mildly handicapped. Early intervention of ABA therapy, speech therapy and change of diet helped my son. The last time he was evaluated when he was almost 4 they said my son no longer had any symptoms of autism and had apparently "outgrown" it. His speech is perfect, he is super smart, he is very social with same age peers and has no behavior problems.
Are you and your husband super short? Do you have other children that are very small. Your doctor really worries me that he has not done any tests on him because of his size. I have never seen a DAN doctor, but a lot of people seem to think they help.
Wow that is so great for you and your child. My son gets about 15 minutes of speech a week. I am so angry with that and have been fighting for more time. Someone is listening for once and we are having a meeting next week to make a change. I mean really, what does 15 minutes do? As for a DAN doctor I am looking now.
I'm 5 2 and my husband is 6 feet. My 7 year old isn't that tall either. My step daughter isn't tall either and her Mom is 5 5. I think my husband just produces smaller children. But I think they get big in time. Like now my 7 year old seems to be growing fast. This morning I put on a pair of 4T pants with a belt on Kolby. Looks like he is almost into them. He does have 4T to 5 shirts. Just his waist. And he has no butt. LOL. Even with his tummy bloated he still doesn't fit into 4T perfectly.
Well we have not fed him any trans fats and I must say I am pleased so far. He is talking and less moody really. I just can't get him to take the liquid form of the Cod Liver Oil. So I am going to purchased the chewable tablets.
Thanks
Michelle
Kolby
01-09-2007, 09:48 AM
Hi Michelle
We saw the child development team today, and one thing we discussed was the digestion, so I thought I'd share it with you. We were told to keep him off of dairy for a month, and give him lactilose or mineral oil daily. (I won't suggest a dosage because Kolby's so much smaller than Liam) We are going to chart BM's with frequency and discomfort factored in. We see the team again on the 30th and if we don't see improvement at that point we will get more aggressive, by discussing removing gluten. I will be sure to keep you updated.
How's Kolby?
Did you come across a DAN dr? If your ped. wont pay attention to these issues, I would truly look for someone who will.
Suzy
I'm going to look today. We have one dr. in the practice that is very good with children who are Autistic. Only he is so hard to get to see. All the Mom's love him cause he is really good. So my son always gets stuck with the new dr. I am currently working on getting him more speech. I found someone is the system that is listening to me. Thank the Lord!
I agree that you have to be aggressive. I don't have any issues with taking dairy out. You do have to really look for it in products. It likes to hide in foods.
Michelle
We saw the child development team today, and one thing we discussed was the digestion, so I thought I'd share it with you. We were told to keep him off of dairy for a month, and give him lactilose or mineral oil daily. (I won't suggest a dosage because Kolby's so much smaller than Liam) We are going to chart BM's with frequency and discomfort factored in. We see the team again on the 30th and if we don't see improvement at that point we will get more aggressive, by discussing removing gluten. I will be sure to keep you updated.
How's Kolby?
Did you come across a DAN dr? If your ped. wont pay attention to these issues, I would truly look for someone who will.
Suzy
I'm going to look today. We have one dr. in the practice that is very good with children who are Autistic. Only he is so hard to get to see. All the Mom's love him cause he is really good. So my son always gets stuck with the new dr. I am currently working on getting him more speech. I found someone is the system that is listening to me. Thank the Lord!
I agree that you have to be aggressive. I don't have any issues with taking dairy out. You do have to really look for it in products. It likes to hide in foods.
Michelle
Kolby
01-09-2007, 09:53 AM
Hi Michelle
We are allowed to post websites that are strictly informational. So this one should be OK:
http://www.autismwebsite.com/ari-lists/danus.html
It's a list of all the DAN dr's in the US who've registered with the autism research institute. I found an entire list of DAN dr's in Toronto form the site. If they take away the link, I'm sorry.
Also, we're four full days dairy free, now. We've had 3 good days and 1 bad day. He's had one BM, and it was pretty effortless. We have his eval today, and we're going to discuss GF/CF.
Good Luck
Suzy
Thanks so much Suzy. I will take a look at this. You know, when you think about it....why do kids with Autism have bad guts? Is it the food causing it or the Autism. I'm going to go with the food. Maybe in the long run they will figure out that it is the foods they eat. I mean really when kids start to eat what the rest of the family eats, that is when they become Autistic. I mean it could be the combo of metals, food, milk.
Does your son miss the dairy?
Michelle
We are allowed to post websites that are strictly informational. So this one should be OK:
http://www.autismwebsite.com/ari-lists/danus.html
It's a list of all the DAN dr's in the US who've registered with the autism research institute. I found an entire list of DAN dr's in Toronto form the site. If they take away the link, I'm sorry.
Also, we're four full days dairy free, now. We've had 3 good days and 1 bad day. He's had one BM, and it was pretty effortless. We have his eval today, and we're going to discuss GF/CF.
Good Luck
Suzy
Thanks so much Suzy. I will take a look at this. You know, when you think about it....why do kids with Autism have bad guts? Is it the food causing it or the Autism. I'm going to go with the food. Maybe in the long run they will figure out that it is the foods they eat. I mean really when kids start to eat what the rest of the family eats, that is when they become Autistic. I mean it could be the combo of metals, food, milk.
Does your son miss the dairy?
Michelle
soozeq
01-10-2007, 07:39 AM
Hi Michelle
Liam had 2 BMs yesterday, both painless. Hooray. Luckily, he has absolutely no problem with the lack of dairy. He loves the soy milk and cheese. As far as putting it in foods like pizza or pasta, he never really liked those anyway. He needs simple flavours (He would rather a plate with some cheese, bread and sliced tomatoes than a slice of pizza.) So, it's been a really easy transition for us.
I havn't tried the Lactilose yet, because he doing just fine off of the dairy so far. I've become so aware of ingredients all of a sudden. It's just amazing the things that they can sneak into kids food.
I hope things go well for Kolby off of the trans fats. How can that stuff possibly be good for any of us? Did you find a DAN dr on the list who was local?
Everyday is a new challenge.
Suzy
Liam had 2 BMs yesterday, both painless. Hooray. Luckily, he has absolutely no problem with the lack of dairy. He loves the soy milk and cheese. As far as putting it in foods like pizza or pasta, he never really liked those anyway. He needs simple flavours (He would rather a plate with some cheese, bread and sliced tomatoes than a slice of pizza.) So, it's been a really easy transition for us.
I havn't tried the Lactilose yet, because he doing just fine off of the dairy so far. I've become so aware of ingredients all of a sudden. It's just amazing the things that they can sneak into kids food.
I hope things go well for Kolby off of the trans fats. How can that stuff possibly be good for any of us? Did you find a DAN dr on the list who was local?
Everyday is a new challenge.
Suzy
Kolby
01-10-2007, 09:50 AM
Hi Michelle
Liam had 2 BMs yesterday, both painless. Hooray. Luckily, he has absolutely no problem with the lack of dairy. He loves the soy milk and cheese. As far as putting it in foods like pizza or pasta, he never really liked those anyway. He needs simple flavours (He would rather a plate with some cheese, bread and sliced tomatoes than a slice of pizza.) So, it's been a really easy transition for us.
I havn't tried the Lactilose yet, because he doing just fine off of the dairy so far. I've become so aware of ingredients all of a sudden. It's just amazing the things that they can sneak into kids food.
I hope things go well for Kolby off of the trans fats. How can that stuff possibly be good for any of us? Did you find a DAN dr on the list who was local?
Everyday is a new challenge.
Suzy
That is so great about your child. I am really thinking I'm going to take Dairy out too. What kind of milk do you use, soy?
I just realized that it isn't just my father and sister who are lactose intolerant it is also my Mother-in-law. Kolby has done good without the trans. Spoke a lot more and was calm. Though today he was grumpy once again. We did have pizza and I have a feeling we didn't check the for trans fats.
I did not find a dr. yet but will continue to look. I hope the dr. gives him test to see if he has a buildup of yeast. Maybe that is why his gut is bloated.
Oh and I weighed him this morning and checked his hight. 35 lbs and 3 4.
Small little guy. His 7 year old brother is 50 lbs.
Michelle
Liam had 2 BMs yesterday, both painless. Hooray. Luckily, he has absolutely no problem with the lack of dairy. He loves the soy milk and cheese. As far as putting it in foods like pizza or pasta, he never really liked those anyway. He needs simple flavours (He would rather a plate with some cheese, bread and sliced tomatoes than a slice of pizza.) So, it's been a really easy transition for us.
I havn't tried the Lactilose yet, because he doing just fine off of the dairy so far. I've become so aware of ingredients all of a sudden. It's just amazing the things that they can sneak into kids food.
I hope things go well for Kolby off of the trans fats. How can that stuff possibly be good for any of us? Did you find a DAN dr on the list who was local?
Everyday is a new challenge.
Suzy
That is so great about your child. I am really thinking I'm going to take Dairy out too. What kind of milk do you use, soy?
I just realized that it isn't just my father and sister who are lactose intolerant it is also my Mother-in-law. Kolby has done good without the trans. Spoke a lot more and was calm. Though today he was grumpy once again. We did have pizza and I have a feeling we didn't check the for trans fats.
I did not find a dr. yet but will continue to look. I hope the dr. gives him test to see if he has a buildup of yeast. Maybe that is why his gut is bloated.
Oh and I weighed him this morning and checked his hight. 35 lbs and 3 4.
Small little guy. His 7 year old brother is 50 lbs.
Michelle
soozeq
01-12-2007, 10:03 AM
Hi Michelle
Good news, we are now at 4 painless BMs without milk. I feel we've hit the nail on the head here. Taking out dairy seems to have solved the constipation all together. He still doesn't go every day. But, when he does, it comes easy. I can accept that!
Liam's sick this week, he's on his third day off of school. He's got a cold and his asthma's flared up. He's so hyper from the asthma meds and being cooped up all day. He's also not sleeping. up from 1 -3:30 two nights, now. YAWN!!:yawn: :yawn: :yawn:
I hope Kolby's doing well. I think you should try the dairy. Just give it a month. It's been so successful for us.
Good Luck
Suzy
ps, Liam was measured on Monday: he's 3 1/2, 40 inches and 44 lbs. One big dude!
Good news, we are now at 4 painless BMs without milk. I feel we've hit the nail on the head here. Taking out dairy seems to have solved the constipation all together. He still doesn't go every day. But, when he does, it comes easy. I can accept that!
Liam's sick this week, he's on his third day off of school. He's got a cold and his asthma's flared up. He's so hyper from the asthma meds and being cooped up all day. He's also not sleeping. up from 1 -3:30 two nights, now. YAWN!!:yawn: :yawn: :yawn:
I hope Kolby's doing well. I think you should try the dairy. Just give it a month. It's been so successful for us.
Good Luck
Suzy
ps, Liam was measured on Monday: he's 3 1/2, 40 inches and 44 lbs. One big dude!
Kolby
01-12-2007, 02:13 PM
Hi Michelle
Good news, we are now at 4 painless BMs without milk. I feel we've hit the nail on the head here. Taking out dairy seems to have solved the constipation all together. He still doesn't go every day. But, when he does, it comes easy. I can accept that!
Liam's sick this week, he's on his third day off of school. He's got a cold and his asthma's flared up. He's so hyper from the asthma meds and being cooped up all day. He's also not sleeping. up from 1 -3:30 two nights, now. YAWN!!:yawn: :yawn: :yawn:
I hope Kolby's doing well. I think you should try the dairy. Just give it a month. It's been so successful for us.
Good Luck
Suzy
ps, Liam was measured on Monday: he's 3 1/2, 40 inches and 44 lbs. One big dude!
Suzy,
That is great about the potty. Sounds like milk isn't too good for him.
So he's about the same hight as Kolby. What size clothing does he wear?
Kolby can wear 4T but sometimes he needs a belt.
Kolby was doing so well until my Mother-in-law babysat him. He got back to his tired spoiled self. She let him play a video game for a few hours and his hands hurt. So then he complained all night about it. She means well and is very very loving but sometimes it gets hard for me. She just wants him to be happy and have fun. But he seems to get whatever he wants with her and acts like a brat!
Michelle
Good news, we are now at 4 painless BMs without milk. I feel we've hit the nail on the head here. Taking out dairy seems to have solved the constipation all together. He still doesn't go every day. But, when he does, it comes easy. I can accept that!
Liam's sick this week, he's on his third day off of school. He's got a cold and his asthma's flared up. He's so hyper from the asthma meds and being cooped up all day. He's also not sleeping. up from 1 -3:30 two nights, now. YAWN!!:yawn: :yawn: :yawn:
I hope Kolby's doing well. I think you should try the dairy. Just give it a month. It's been so successful for us.
Good Luck
Suzy
ps, Liam was measured on Monday: he's 3 1/2, 40 inches and 44 lbs. One big dude!
Suzy,
That is great about the potty. Sounds like milk isn't too good for him.
So he's about the same hight as Kolby. What size clothing does he wear?
Kolby can wear 4T but sometimes he needs a belt.
Kolby was doing so well until my Mother-in-law babysat him. He got back to his tired spoiled self. She let him play a video game for a few hours and his hands hurt. So then he complained all night about it. She means well and is very very loving but sometimes it gets hard for me. She just wants him to be happy and have fun. But he seems to get whatever he wants with her and acts like a brat!
Michelle
Kolby
01-25-2007, 05:02 PM
I thought I'd put a quick update in here.
Well we have been doing very well with no trans. He hasn't had one bit of fast food since Jan 3rd. For the first time in many years he went #2 two days in a row. And the 2nd day it was as normal as can be. He is going on his own but calls me in to wipe. I hope he goes again today. He is doing very well all around. I was showing him some words last night and I said "What does this say?" Instead of getting all mad or something he said "I can't read!" He can some but I thought he answered correctly. He understood that the word SAY meant I wanted him to read the word.
He is also starting to use hand gestures to express himself. He rupped his tummy while eating dinner and said "This is yummy!"
Oh and he likes fish now. Go figure! He never would even try it before. And once in a while I'd tell him it was chicken nuggets cut up. So I started with fish sticks and other fish that has a coating on it. Though I still can't get him to take the Omega three liquid. I'm going to have to buy the chewables.
Now if I can only get his brother and him to stop fighting, I'd be in heaven!
But I do feel like Kolby is clearer in his thoughts. I'm not saying that trans fats are his entire problem, but I don't think they helped. So once this month is over I'll see about removing milk. All milk.
Michelle (Kolby's Mom)
Well we have been doing very well with no trans. He hasn't had one bit of fast food since Jan 3rd. For the first time in many years he went #2 two days in a row. And the 2nd day it was as normal as can be. He is going on his own but calls me in to wipe. I hope he goes again today. He is doing very well all around. I was showing him some words last night and I said "What does this say?" Instead of getting all mad or something he said "I can't read!" He can some but I thought he answered correctly. He understood that the word SAY meant I wanted him to read the word.
He is also starting to use hand gestures to express himself. He rupped his tummy while eating dinner and said "This is yummy!"
Oh and he likes fish now. Go figure! He never would even try it before. And once in a while I'd tell him it was chicken nuggets cut up. So I started with fish sticks and other fish that has a coating on it. Though I still can't get him to take the Omega three liquid. I'm going to have to buy the chewables.
Now if I can only get his brother and him to stop fighting, I'd be in heaven!
But I do feel like Kolby is clearer in his thoughts. I'm not saying that trans fats are his entire problem, but I don't think they helped. So once this month is over I'll see about removing milk. All milk.
Michelle (Kolby's Mom)
Sarahsmom
01-29-2007, 01:54 PM
Have you tried digestive enzymes? My daughter is also a junkfood junkie. I did the GFCF diet for a long time, but she eventually stopped eating almost everything!!! I give her digestive enzymes with all of her meals, and she does not get reactions from her food anymore. I would also try a really good pro-biotic. GG strain acidopholous works wonders! It sounds like your son has severe digestive problems, like most children with autism, it his belly is swollen and he has constipation. I would not cut out fast food altogether. We still go to McDonalds on the weekend, but during the week I try to keep her diet as healthy as possible, and I use the enzymes, which really seem to work for her -- it may aid with the constipation as well.
Kolby
01-29-2007, 03:46 PM
Without the trans he is doing better. He is eating different kinds of foods and he is going potty better. From once a week to 3 to 4 times a week. We think that's a good improvement. So we are still trying to just eat well.
No, he will go to Wendy's but we are not going to any other fast food that still uses trans fats for the oil.
Thanks
Michelle
No, he will go to Wendy's but we are not going to any other fast food that still uses trans fats for the oil.
Thanks
Michelle
dfe411
01-29-2007, 08:12 PM
Hi, I read your post and I want you to research Celiac disease. It has to do with Gluten. Your son's symptoms sound like what I just read on Celiac Disease web site. It is treated by simply removing Gluten from the diet. It can't be cured but it can be treated completely. It is dangerous for children so check it out.
david
david
Kolby
01-30-2007, 11:37 AM
I'll check that infor out David.
Thanks
michelle
Thanks
michelle