Suzy-Q
01-03-2007, 09:00 PM
Hello,
I am awaiting an MRI so I am not nearly diagnosed with MS. My symptoms are pretty varied as well. A week ago I was so nauseous I was taking Phenergan to prevent vomiting. My vision was blurry and I was very unsteady when I got up or sat down. Most of that has resolved at least to a very low-level. But now I am having increasing pain and aches all over my hip girdle and in my legs. I have aches deep in my buttocks. I have sharp pains into my hips. I also have sickening aches in my knees and my calves and feet. I have long spells where my legs feel like I have sprinted. It feels like I have lactic acid build-up even when I am sitting. I have had to take vicodan for this discomfort (in order to sleep) in the last 4 days.
Funny thing is that my neuro took me off of Zocor (simvastatin) last Thursday. I finally got around to looking that drug up and I find loads of reports of people having severe muscle destruction due to this drug. I called my GP today but she wasn't very impressed. She wants me to stick to letting the neuro figure things out. And I will do that. I got some excited thinking it might just turn out to be a medications issue. I suppose it still could be.
Well, my question tonight is this: does this lactic acid build up feeling in the muscles sound familiar to anyone? Thanks, Susan
I am awaiting an MRI so I am not nearly diagnosed with MS. My symptoms are pretty varied as well. A week ago I was so nauseous I was taking Phenergan to prevent vomiting. My vision was blurry and I was very unsteady when I got up or sat down. Most of that has resolved at least to a very low-level. But now I am having increasing pain and aches all over my hip girdle and in my legs. I have aches deep in my buttocks. I have sharp pains into my hips. I also have sickening aches in my knees and my calves and feet. I have long spells where my legs feel like I have sprinted. It feels like I have lactic acid build-up even when I am sitting. I have had to take vicodan for this discomfort (in order to sleep) in the last 4 days.
Funny thing is that my neuro took me off of Zocor (simvastatin) last Thursday. I finally got around to looking that drug up and I find loads of reports of people having severe muscle destruction due to this drug. I called my GP today but she wasn't very impressed. She wants me to stick to letting the neuro figure things out. And I will do that. I got some excited thinking it might just turn out to be a medications issue. I suppose it still could be.
Well, my question tonight is this: does this lactic acid build up feeling in the muscles sound familiar to anyone? Thanks, Susan
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duttin
01-03-2007, 10:50 PM
Suzy,
At the present time I'm suffering from chronic muscle pain and spasms.It has gotten to the vicodin hasn't helped.I am currently taken 10mgs valuim,20mgs baclofen(anti-spasm med for MS) just to get a little releif.I take these meds very 4 hours.Originaaly thought it could be residual side effects from 2 lumbar surgeries 7 years ago.All test are great in that aspect.
Hang in there.
At the present time I'm suffering from chronic muscle pain and spasms.It has gotten to the vicodin hasn't helped.I am currently taken 10mgs valuim,20mgs baclofen(anti-spasm med for MS) just to get a little releif.I take these meds very 4 hours.Originaaly thought it could be residual side effects from 2 lumbar surgeries 7 years ago.All test are great in that aspect.
Hang in there.
SRSuper
01-03-2007, 11:26 PM
susan-
i have pretty nasty muscle and joint aches and pinches too.
my chiropractic phys put me on a strict regimen of 2-3 epsom salt baths a week.
i found this, along with pretty intense magnesium supplements and DHA/Omega supplements worked pretty good wonders for my muscles and joints. alot of muscle pain and joint pain can be related to inflammation- have you had your SED rate, C Reactive Protein or ANA tested? mine hit rock bottom after the magnesium therapy- nice thing about magnesium is that it can be absorbed transdermally in the tub. pretty cool, huh?
check with ur doc and good luck!
i have pretty nasty muscle and joint aches and pinches too.
my chiropractic phys put me on a strict regimen of 2-3 epsom salt baths a week.
i found this, along with pretty intense magnesium supplements and DHA/Omega supplements worked pretty good wonders for my muscles and joints. alot of muscle pain and joint pain can be related to inflammation- have you had your SED rate, C Reactive Protein or ANA tested? mine hit rock bottom after the magnesium therapy- nice thing about magnesium is that it can be absorbed transdermally in the tub. pretty cool, huh?
check with ur doc and good luck!
Suzy-Q
01-04-2007, 12:49 PM
Hi there,
Thanks for helping me through this very anxious time. I know I have to tough the waiting out. And with 2 major back surgeries in the last 18 months I am no stranger to aches and pains. But these are very different and thus troubling. Thank goodness I have some pain killers on hand. But that is all I have besides neurontin.
Nuffs3, I have been reading your posts about your leg pain and thinking - how ***arre to be having a similar experience? I even wondered, as we all do, whether some of it could be psychosomatic. But I know I would not be waking up in pain if that were the total cause. I'm sorry you are having such a severe amount of pain.
I have not ever tried an epsom salts bath but I am going to tonight! My neighbor has a big tub and I think I can get in and out without a crane. LOL Thanks for the tip SRSuper! Take good care - Suzy-Q
Thanks for helping me through this very anxious time. I know I have to tough the waiting out. And with 2 major back surgeries in the last 18 months I am no stranger to aches and pains. But these are very different and thus troubling. Thank goodness I have some pain killers on hand. But that is all I have besides neurontin.
Nuffs3, I have been reading your posts about your leg pain and thinking - how ***arre to be having a similar experience? I even wondered, as we all do, whether some of it could be psychosomatic. But I know I would not be waking up in pain if that were the total cause. I'm sorry you are having such a severe amount of pain.
I have not ever tried an epsom salts bath but I am going to tonight! My neighbor has a big tub and I think I can get in and out without a crane. LOL Thanks for the tip SRSuper! Take good care - Suzy-Q
duttin
01-04-2007, 08:42 PM
Suzy,
If these muscle cramps and extreme pain was psycho symatic ,I could deal with that.These are real.I suffer from acute and chronic radiculopathy from the previous back surgeries and having MS and the continueous spasticity to the degree I have feeds off of each other.The pain has been some what tolerable with the increased meds,but this will not be a long term solution with meds.Once the body gets use to them the pain peaks through.
I went hand seen a chiro for a consult,he will do no adjustments do to the rods in my back,to risky,but he's thinking that some sort of mild traction will improve the spasticity verses ordinary stretching at home.He has made no promises but willing to help,its trial and error.He said chances are that the damage to the right foot is permanant and doubts if the radiculopathy will be lessoned anytime soon,maybe in time,the nerves maybe too damaged do to the length of time and the MS.
I'm goona try water therapy and our local hotel,the chiro gave me some info on that.Its cheaper than aquatic physical therapy.
I was given many options to consider,the chiro even consulted my GP before any therapy was put into action.
Having back surgery and MS theres great difficulty seperating what damage was caused by what.
My goal is less meds,less pain and maybe more mobility in the right leg.I even walked the 2 blocks to the chiro's office,it wasn't pretty,sure got some stares from driver bys.Thank God hubby picked me up after my appointment,before the increase in meds I couldn't of walked 2 houses down.
Sorry for being long winded.
If these muscle cramps and extreme pain was psycho symatic ,I could deal with that.These are real.I suffer from acute and chronic radiculopathy from the previous back surgeries and having MS and the continueous spasticity to the degree I have feeds off of each other.The pain has been some what tolerable with the increased meds,but this will not be a long term solution with meds.Once the body gets use to them the pain peaks through.
I went hand seen a chiro for a consult,he will do no adjustments do to the rods in my back,to risky,but he's thinking that some sort of mild traction will improve the spasticity verses ordinary stretching at home.He has made no promises but willing to help,its trial and error.He said chances are that the damage to the right foot is permanant and doubts if the radiculopathy will be lessoned anytime soon,maybe in time,the nerves maybe too damaged do to the length of time and the MS.
I'm goona try water therapy and our local hotel,the chiro gave me some info on that.Its cheaper than aquatic physical therapy.
I was given many options to consider,the chiro even consulted my GP before any therapy was put into action.
Having back surgery and MS theres great difficulty seperating what damage was caused by what.
My goal is less meds,less pain and maybe more mobility in the right leg.I even walked the 2 blocks to the chiro's office,it wasn't pretty,sure got some stares from driver bys.Thank God hubby picked me up after my appointment,before the increase in meds I couldn't of walked 2 houses down.
Sorry for being long winded.
Suzy-Q
01-04-2007, 10:54 PM
Hi Nuffs3,
Gosh, I never meant to suggest YOUR symptoms were anything but real. I was thinking that maybe I was getting copycat symptoms from reading your posts! My symptoms are so varied and so 'here and then gone' right now that I am pinching myself all day to see what is real. I, too, have rods and screws in my lumbar spine and I have been dealing with that sort of stuff for 3 years now. I can appreciate what you must be going through. I had a hand that was numb for 6 weeks when I herniated a dick at C5-6. That is my only experience with severe radiculopathy. It was enough to give me great sympathy.
I have some experience with severe pain and I found a mix of meds was best. The strong pain meds just worked better when I also took a good muscle relaxer and so on. And I can vouch for the adage that it is best to get ahead of severe pain and not behind it! I have been in PT for nearly all of the last 3 years. I do stretching and range of motion stuff at home. I do strengthening stuff at PT and I swim as often as I can get in the pool. I love the pool and it does more for me than all the rest. Oh, I also love to walk with dogs and I do that every day - twice. And yet despite all of this I have gained weight and lost strength and mobility with each passing month. My PT has been appalled that I make no progress no matter what we try. Maybe now we will learn the reason why and start on a solution.
Still no date for my MRI. A rather slow process but I should be used to that. I have excellent medical insurance so you won't hear too many complaints from me. I feel better tonight than I have in 3 weeks. I did a spot of shopping and had dinner out with my husband, Chris. It was my first trip out in a week. We'll see how tonight goes. I had a miserable time trying to sleep last night. I am not used to this lactic acid build up feeling in my legs. It is quite horrible. Once again, I appreciate the chance to chat with you. I sure do hope you get some relief and soon. Take care - Suzy-Q
Gosh, I never meant to suggest YOUR symptoms were anything but real. I was thinking that maybe I was getting copycat symptoms from reading your posts! My symptoms are so varied and so 'here and then gone' right now that I am pinching myself all day to see what is real. I, too, have rods and screws in my lumbar spine and I have been dealing with that sort of stuff for 3 years now. I can appreciate what you must be going through. I had a hand that was numb for 6 weeks when I herniated a dick at C5-6. That is my only experience with severe radiculopathy. It was enough to give me great sympathy.
I have some experience with severe pain and I found a mix of meds was best. The strong pain meds just worked better when I also took a good muscle relaxer and so on. And I can vouch for the adage that it is best to get ahead of severe pain and not behind it! I have been in PT for nearly all of the last 3 years. I do stretching and range of motion stuff at home. I do strengthening stuff at PT and I swim as often as I can get in the pool. I love the pool and it does more for me than all the rest. Oh, I also love to walk with dogs and I do that every day - twice. And yet despite all of this I have gained weight and lost strength and mobility with each passing month. My PT has been appalled that I make no progress no matter what we try. Maybe now we will learn the reason why and start on a solution.
Still no date for my MRI. A rather slow process but I should be used to that. I have excellent medical insurance so you won't hear too many complaints from me. I feel better tonight than I have in 3 weeks. I did a spot of shopping and had dinner out with my husband, Chris. It was my first trip out in a week. We'll see how tonight goes. I had a miserable time trying to sleep last night. I am not used to this lactic acid build up feeling in my legs. It is quite horrible. Once again, I appreciate the chance to chat with you. I sure do hope you get some relief and soon. Take care - Suzy-Q
duttin
01-06-2007, 02:54 AM
Suzy,
Hope your night out went well.
I went yesterday and seen a chiropractor.He will not do adjustments because of the rods,but he's willing to try to work with the right leg and maybe get some of the nerves to regenerate to strengthen the muscles in that leg.
He explained the nerve damage to the right foot is permanant do to the duration of time.The chronic radiculopathy from the last emg/ncv has slightly improved,but chiro says it could be permanant nerve damage also,but willing to try different approaches.He's doing this free of charge unless there is some improvement seen.He's very knowledgeable on MS which helps.He does not agree with aggressive treatment as a chiro's point,some chiro's get to aggressive and can hurt patients.I explained to him if he could releive some of the muscle spasms,pain and make the right leg move a little better I'd be content.I just want to be off of the pain meds.
Hopefully the MRI will be soon.
Hope your night out went well.
I went yesterday and seen a chiropractor.He will not do adjustments because of the rods,but he's willing to try to work with the right leg and maybe get some of the nerves to regenerate to strengthen the muscles in that leg.
He explained the nerve damage to the right foot is permanant do to the duration of time.The chronic radiculopathy from the last emg/ncv has slightly improved,but chiro says it could be permanant nerve damage also,but willing to try different approaches.He's doing this free of charge unless there is some improvement seen.He's very knowledgeable on MS which helps.He does not agree with aggressive treatment as a chiro's point,some chiro's get to aggressive and can hurt patients.I explained to him if he could releive some of the muscle spasms,pain and make the right leg move a little better I'd be content.I just want to be off of the pain meds.
Hopefully the MRI will be soon.