SRSuper
01-03-2007, 11:22 PM
Hey Gina-
To reply-
no i havent been dx'd. I've been on this journey almost 13 years but my neurological stuff that made one of my docs think MS started just a year and half or so ago.
right now i have a diagnosis of nothing. not fibro, not cfs, not b12 deficiency, not general neuropathy.
it SUCKS.
im hoping that when i see the clinical neurologist tomorrow and tell him that half of my face is numb, he will tell me something! UGH
so anyway.
yeah dealing with GPs can be hard. thank heavens i have PPO insurance and i dont need a GP to "manage" my care. she sent me to a shrink. and the shrink sent me to a neurologist! WHAT!?
oy vey.
doctors hate to be told. as House, MD once said "ooh look! someones been on the intraweb!" but i dont understand how i can pull up reputable sources (journal of neurology, johns hopkins reports, etc) and then have docs tell me "nope, doesnt exist." but my GP hated being told what i thought about my own condition.
so its a hard game to play. sucks that we have to play it at all.
i would definitely recommend having more than one person looking at your MRI if you or the GP notice ANYTHING that isnt pristine. most people by puberty will have a blip here and there in the brain, but you NEVER KNOW.
i would say hold off until getting the neuro opinion until you know what your GP says. at least then you can walk into the neuro saying "i was un/comfortable with my GP....blah blah blah" rather than just not being sure of anything.
if youre ever in chicago, we should compare notes on windy city medical care :-)
please hang in there and take care! enjoy this "warm" weather while we have it, right?
To reply-
no i havent been dx'd. I've been on this journey almost 13 years but my neurological stuff that made one of my docs think MS started just a year and half or so ago.
right now i have a diagnosis of nothing. not fibro, not cfs, not b12 deficiency, not general neuropathy.
it SUCKS.
im hoping that when i see the clinical neurologist tomorrow and tell him that half of my face is numb, he will tell me something! UGH
so anyway.
yeah dealing with GPs can be hard. thank heavens i have PPO insurance and i dont need a GP to "manage" my care. she sent me to a shrink. and the shrink sent me to a neurologist! WHAT!?
oy vey.
doctors hate to be told. as House, MD once said "ooh look! someones been on the intraweb!" but i dont understand how i can pull up reputable sources (journal of neurology, johns hopkins reports, etc) and then have docs tell me "nope, doesnt exist." but my GP hated being told what i thought about my own condition.
so its a hard game to play. sucks that we have to play it at all.
i would definitely recommend having more than one person looking at your MRI if you or the GP notice ANYTHING that isnt pristine. most people by puberty will have a blip here and there in the brain, but you NEVER KNOW.
i would say hold off until getting the neuro opinion until you know what your GP says. at least then you can walk into the neuro saying "i was un/comfortable with my GP....blah blah blah" rather than just not being sure of anything.
if youre ever in chicago, we should compare notes on windy city medical care :-)
please hang in there and take care! enjoy this "warm" weather while we have it, right?
Sponsor
dxeverything628
01-03-2007, 11:54 PM
SrSuper,
Oooh, that really does suck how you are in limbo land for so long. I feel for you. I know what you mean about docs. been through plenty in my time, I think I have every specialist in my personal phone book, lol!! I just decided myself to stick with my GP, which is what I call him. He is Internal Medecine/Pain Management Specialist. Since he takes care of everything for me I decided to switch to him 2 yrs ago by my choice. I have PPO also, mine and hubby's both. Mine BCBS and his was through teamsters local 710 then they joined up with BCBS and now we both have them so they will not pay double so to speak. Mine is a little better on office visits, his better on RX's but what are you gonna do. Hey I hope you can get some kind of answer soon. I'll be thinking of you. Let me know how your appt. goes. We will have to meet up in the Windy City someday. Weather has been pretty mild, but kicking the crap out of me with arthritis, bursitis, and everyting else you know. It feels like its getting chilly tonight, and I can feel a weahter change coming! LOL. Talk to you soon.
Gina
Oooh, that really does suck how you are in limbo land for so long. I feel for you. I know what you mean about docs. been through plenty in my time, I think I have every specialist in my personal phone book, lol!! I just decided myself to stick with my GP, which is what I call him. He is Internal Medecine/Pain Management Specialist. Since he takes care of everything for me I decided to switch to him 2 yrs ago by my choice. I have PPO also, mine and hubby's both. Mine BCBS and his was through teamsters local 710 then they joined up with BCBS and now we both have them so they will not pay double so to speak. Mine is a little better on office visits, his better on RX's but what are you gonna do. Hey I hope you can get some kind of answer soon. I'll be thinking of you. Let me know how your appt. goes. We will have to meet up in the Windy City someday. Weather has been pretty mild, but kicking the crap out of me with arthritis, bursitis, and everyting else you know. It feels like its getting chilly tonight, and I can feel a weahter change coming! LOL. Talk to you soon.
Gina
fancykat
01-04-2007, 02:56 AM
SRS:
Hope your appointment is a fruitful one. Please update! I had to jump on this thread when I saw "Joliet".
Maybe we should all have a little pow wow...if we can all manage to feel better at the same time...Hi Gina. I'm in Chicago too!
Hope your appointment is a fruitful one. Please update! I had to jump on this thread when I saw "Joliet".
Maybe we should all have a little pow wow...if we can all manage to feel better at the same time...Hi Gina. I'm in Chicago too!
dxeverything628
01-04-2007, 01:49 PM
Hey fancy,
I see your in Chicago too! Yeah maybe we could get a little pow wow together if we can all manage to feel better. Have you been dx'd or are you also in limbo?
SR hope appt goes well. Please update us.
Gina
I see your in Chicago too! Yeah maybe we could get a little pow wow together if we can all manage to feel better. Have you been dx'd or are you also in limbo?
SR hope appt goes well. Please update us.
Gina
SRSuper
01-04-2007, 09:26 PM
omg we totally should!
i will be moving next week and changing jobs at the end of the month...
maybe when the weather gets better we can all meet somewhere and kvel and kvetch, as we say in yiddish :-)
Yeah, gina, this weather is wooping me. makes my shoulders BURN. bursitis, fibro? who knows, right?
your doc sounds FAB. a GP pain specialist. WOW.
I had my clinical neuro appt today- i will post it on the board cuz i have questions, but i cant feel half my face and the doc is sending me for an MRI looking specifically for MS plaque! OMG, looks like i'm NOT making this up!
imagine.
i cant wait to call that nasty neuro jerkface at northwestern and tell her off. and cancel my feb appt :-)
more on a different thread!
i will be moving next week and changing jobs at the end of the month...
maybe when the weather gets better we can all meet somewhere and kvel and kvetch, as we say in yiddish :-)
Yeah, gina, this weather is wooping me. makes my shoulders BURN. bursitis, fibro? who knows, right?
your doc sounds FAB. a GP pain specialist. WOW.
I had my clinical neuro appt today- i will post it on the board cuz i have questions, but i cant feel half my face and the doc is sending me for an MRI looking specifically for MS plaque! OMG, looks like i'm NOT making this up!
imagine.
i cant wait to call that nasty neuro jerkface at northwestern and tell her off. and cancel my feb appt :-)
more on a different thread!