Have not heard from Grumps, Amy and Lisa for a while. I think we all have an onset of new problems and challenges that we are trying to work out. I have not been my usual chatty-self due to company, a bad working environment and an onset of new challenges. For this I am sorry! I miss EVERYONE!! I am not on to welcome new people to the board. I am not here for the return of people who have been away for a while. I miss this board!
I have a new set of problems coming on. I am seeing an increase of seizures and a new type of aura. I am getting some problems on my left side with twitches (minor) and that is scaring me. I have a lot plus I need to work and I don't see my husband any longer as they changed his work schedule around. I need some anti depressants...I know I do. I will start a new job on Monday but it is not the job I wanted. The one I wanted doesn't know if it can accomidate my hours. We will see on Monday.
Sorry to complain and drift around subjects like that. I had a doozie of a seizure last night and I feel terrable. My postictals are getting worse. I am going to go now. I must entertain the mother-in-law. She leaves on Wed. Please write cause I do check in from time to time. I will write even if it is little.
Miss you all and God Bless you,
KittyMom
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Mother of 3 beautiful kids and wife to a Great husband! I love helping others...it helps me grow!
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JB_Texas
08-22-2003, 05:22 PM
Hello Kitty,
I am sorry to hear about your seizure last night & also sorry to hear about how you have been feeling every since you came back from the hosp. I hope things only get better for you.
Every time I see your name on the board I look in on it, you are like the master of the board http://www.healthboards.com/ubb/smile.gif
Just remember that God is always with you & watching over you.
Hugs & Kisses,
JB
KittyMom
08-22-2003, 05:52 PM
JB,
Thank you sooooooo much for your kind words. It is people like you that make this place as terrific as it is. You have been such a highlight to this place...Thank YOU!!
How are you?? I hope this finds you well. My situation will get better I know. I just hope it is sooner rather than later. I miss being here on this board. I feel my best when I read the encouraging words of my Family In "E". I will be going back to my normal "posting" self soon. I just have some company right now. I love my mother-in-law to death. I am lucky, most people hate theirs.
Anyway, thanks again for being there and your lovely words sweetie. Talk to you soon.
God Bless,
KittyMom
amydianne1
08-22-2003, 05:58 PM
Hey kitty!
I am so sorry I have not been posting much, I have NOT been feeling so good this week, this Topamax has gotten me down, it's very reminiscint of the Dilantin! I am trying to be patient and give it another week to see how it works, but as of now I'm ready to chunk it out the window!
Have you gotten any results back yet on the tests?? Sorry you are having such a bad week! I will try to be better about getting on here! I have just been working and sleeping and that is about IT!
Talk to you soon, hugs to you!
Amy http://www.healthboards.com/ubb/smile.gif
KittyMom
08-22-2003, 08:26 PM
Amy,
It is ok sweetie! You don't have to write if you don't feel up to it. I knew you were feeling aweful on this darn medicine but to be perfectly honest, I forgot. These seizures mess with my memory something aweful. I doesn't happen at the times of seizures either. I have to be reminded of things all the time. I Hate It!! Important stuff too. I will forget important things that someone tells me and is soooooo rude (like I don't care about them)when I say, "What was that again?" It is like I don't care enough to remember but I DO!! I just have trouble with my memory. Holding a job is hard too. Unless it is routine, I will forget. I HATE THIS!!
Anyway sweetie, don't worry about it. I am the one who should be saying sorry to YOU!! Please, do what makes you feel better. That is what matters!
God Bless you honey,
KittyMom
Josephine
08-22-2003, 09:25 PM
Hi my name is Josephine, I am new to this board.
I understand what you mean about forgetting things.
I am on Tegrrtal & dilantin. My husband will tell me something and i would have to ask he to please tell me again what he just told me. I feel so stupid, iI hate forgeting things. I have had seizures since i was 12 years old. Don,t know what started them. I had a bad fall when i was 12 but i was told that i was having seizures before that, I hate what the men'd do to me . I have been seizure free for almost two years.
I would like to get off all of the meds.I wish there were other meds that can be taken and not mess with the brain.
i will go for now. feeling down in Ohio
KittyMom
08-22-2003, 09:55 PM
Josephine,
Welcome to the board. I know how you feel....sort of. Mine is newly diagnosed so I have a way to go before mine is done...YUCK!
Please read my post titled, "Welcome
To All The New People". That will tell you alot!
Gotta go,
God Bless you sweetie,
KittyMom
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Mother of 3 beautiful kids and wife to a Great husband! I love helping others...it helps me grow!
[This message has been edited by KittyMom (edited 08-22-2003).]
LisaGuthrie
08-23-2003, 08:57 AM
Good morning Kitty,
Honey, I hate that things are going hard on you right now. I understand that fear of your E changing. We've seen it change in Jake a few times and each time it brings this huge feeling of dread, of what more can he possibly go thru.
Keep it all written down. Tell your Dr. And try and get more rest. I know that's easier said then done for mothers anyway.
I want to write more, but need to hop off and go feed Lil' Bit (Jake). This is his cycle weekend, so we try and keep everything more on a schedule (right), just in case that helps.
(((HUGS))) ...we had dear in the field behind the house this morning, summers winding down - fall is almost here - keep that in mind... You are in my thoughts and prayers.
Lisa and Jake
LainieWebb
08-23-2003, 02:12 PM
Kitty,
I'm sorry that you are going through such a difficult time right now. Just wanted to let you know that there have been times when I was feeling so low that my Dr. rx'd anti-depressants for me (3 different times, 3 different ones) and after a couple of months on each still no change. I finally realized that, for me, the depression is just a seizure-related phase, and taking ADs only causes more problems for me by forcing my body to readjust to an additional med.
I just have to wait it out and the phase passes. I remind myself I have to be ALL here for my husband and daughter, and that helps. We've had 5 relatives die this year alone, and it does get me down. Sometimes I just need to be by myself and cry, and that helps tremendously. Anyway, husband doesn't like to see me cry, so it's better that way.
Anyway, just wanted to give you an example of AD's not really helping, but they may help you. It's just too much of a strain on my system to re-aclimate(sp?). I do find that if I go too long without my regular vitamins (like running out) then I feel a little off. I seem to have developed a very sensitive balance after 10 years on AED's. Used to be able to take anything.
Hope you feel better.
Lainie