tanda156
01-05-2007, 01:16 AM
Well, as most of you know I have been in diagnostic limboland for about 4 months now. They originally thought MS but all tests have been fine. I have seen 2 neurologists and 2 specialist out of Denver and no luck. I talked to my GP yesterday and she said that after my testing in Denver, if they didn't find anything that the next step was Mayo. Well, then tonight I spoke with my mother and in the last 2 weeks her Doctors decided to run tests on her for several problems she was having, some similar to mine but not all. They told her today that it is probable MS. She had 8 lesions on her brain and they are setting up an LP next week. I don't know how to feel about this. My mother was depressed but I have mixed feelings. I feel bad for her diagnoses and invious that she got one so quickly. :dizzy: Weird I know. Then I think if she has MS that that is probably what is wrong with me but I wonder why I have no signs i.e. MRI and LP???? Is it because it is new? can lesions present over time. Then I think maybe I don't have MS??????? I know over the last 4 months I have thought that I would rather have MS than something terminal such as a brain cancer or unoperable tumor........ So, what do you all think????:confused:
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MSNik
01-05-2007, 06:52 AM
Yes, legions can present over time...and go away, and new ones form, and its a never ending, changing battle with legions....each time a new one presents, new symtoms usually present, which is why both relapses and progression take place.
MS is not contagious, nor is it USUALLY Genetic. THere is less than 3% chance of your mother and you having it....however, it can happen. I dont know anyone it happened to, but I have read the stats...
8 legions is NOTHING. I had over 50 at the time of dx, and I actually got my dx in less than a month....the LP is what secured it for me...that, and the symtoms which put me in the ER, and then got me to a Neuro. (tingling, burinng, dizziness, numbness).
Your absolutely right to be telling yourself you would rather have MS than a terminal disease, you dont die from MS, you die with it!
Try to relax.....chances are, you dont have MS, however, there may be some chance you have another neurological or even auto-immune issue. There is proof that auto-immune diseases do run genetically in famililes. For instance, my mother has PMR, which is alot like Rheumatoid Athritis, and my father, has Parkinsons....now, I have MS. No one in our family was ever sick until 2005, when my dad got Parkinsons really fast, and it has progressed really badly. Mom got sick next and about 14 months later I started with symtoms....anything IS possible, but 2 people with MS, although possible, is highly improbably statistically...
Keep us posted.
Nikki
MS is not contagious, nor is it USUALLY Genetic. THere is less than 3% chance of your mother and you having it....however, it can happen. I dont know anyone it happened to, but I have read the stats...
8 legions is NOTHING. I had over 50 at the time of dx, and I actually got my dx in less than a month....the LP is what secured it for me...that, and the symtoms which put me in the ER, and then got me to a Neuro. (tingling, burinng, dizziness, numbness).
Your absolutely right to be telling yourself you would rather have MS than a terminal disease, you dont die from MS, you die with it!
Try to relax.....chances are, you dont have MS, however, there may be some chance you have another neurological or even auto-immune issue. There is proof that auto-immune diseases do run genetically in famililes. For instance, my mother has PMR, which is alot like Rheumatoid Athritis, and my father, has Parkinsons....now, I have MS. No one in our family was ever sick until 2005, when my dad got Parkinsons really fast, and it has progressed really badly. Mom got sick next and about 14 months later I started with symtoms....anything IS possible, but 2 people with MS, although possible, is highly improbably statistically...
Keep us posted.
Nikki
evergreen33
01-05-2007, 12:48 PM
Tanda, while MS isn't as genetic as some other conditions, there has been a genetic link found. While 3% may sound like very little, it is an increased risk from the ordinary 0.1% risk that you would otherwise have. Statistics can be confusing, and you really have to know all the facts. In any case, your mother having the disease gives you a slightly greater chance of getting MS, not less of one.
tanda156
01-05-2007, 02:36 PM
SO in other words they may be right in not knowing what is wrong with me? That it might be a coincidence that she has it and I am having something neurolocically wrong?