well i was allowed to drive for a whole 5 days and i had a seizure today this really sucks i thought i was doing so good with not being on meds and now my seizures are back and worse than ever i fell when i had it my side and my arms are all bruised up i bit my bottom lip and my tongue i am sooooo sore and i guess my pride is what hurts the most right now http://www.healthboards.com/ubb/frown.gif i dont know what im going to do there are no meds left for me to try and the whole surgery thing isnt looking so good for me right now i just dont know what to do i have 3 small kids i cant keep doing this anyone have any ideas?

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mother of 3
ages 4,3,and 1
my pride and joy

diagnosed with epilepsy jan. of 97

live life to its fullest you never know when it may be to late to do all the things you would have done tomorrow

Hi,
I am SO sorry to hear about your troubles. I don't have any suggestions but I wanted to send my best wishes. As I told a dear friend today, sometimes I want to scream, somedays I want to cry, but mostly I pick myself up and move as far away from the whole "E" thing as I can. I know that life seems very dark right now. But, you have to be strong for your little ones. Maybe for now you'll need to try to relax and not allow the stress to get the best of you. It (stress) can bring on the worse seizures. I'll pray for you. Be well. Kathy

i kinda know what caused it i have been up late the last couple of nights because i have been working on my family tree and so i have been doing alot of research on the net and i cant really do much until my kidsgo to bed well last night i didnt go to bed until 2 and i was up again at 830 this morning with my kids i really think that it was lack of sleep that did it but i mean i cant get 12 hours of sleep everynight like my dr told me to thats just not possible not only not possible but i cant sleep for that long loli just wish i knew of some other way to control my seizures and i just dont know of any right now i just want to run away and hide and scream until i cant scream anymore lol it may sound stupid but i just dont want to be here right now i mean i love my husband and i ilove my kids they are my life but i just really hate not having any freedom to do anything im sure you all understand this sometimes i forget who im talking to i try talking to my husband about it and as much as he says he understands he really doesnt he doesnt know the feelings that come alone with having epilepsy yeah he has fears of his own but nothing like the way i feel at times i mean where i live im just kinda an outcast because i have epilepsy and im the only person i know of that does besides my online friends that i have meet but i dont personally know anyone with epilepsy i just dont know sometimes but anyways enough of my pit party i have to go to bed its 1030

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mother of 3
ages 4,3,and 1
my pride and joy

diagnosed with epilepsy jan. of 97

live life to its fullest you never know when it may be to late to do all the things you would have done tomorrow

It sounds like you need a "Me" day. Tell your husband, or a family member, that you need a break. Then find a ride to your favorite place....a picnic spot, mall, spa, etc. Take care of YOU. If that isn't possible, have a "Calgon" moment. It's time to be a little selfish!!! Good luck, Kathy

Hi,
I just wanted to let you know that I also understand. Im not allowed to drive yet, its been 8 months since the head injury that has caused my seizures as well as numerous other "physical" and emotional issues. I have 4 small children (ages 2..3..5..and 7) Ive had to pull my daughter out of Girl Scouts because i had no way of picking her up, my two older ones have to now take the bus when i used to bring them to school (the bus "lost" my daughter twice...put me over the edge). I used to be the one who did the shopping, took kids to school, to the doctors, and all the extracurricular activities...i did everything but go to a "regular" job. Now my husband has to do all this as well as work hard all day (hes an electrician). It has totally taken my freedom and now i have to depend on people when i USED to be very independent and strong. I still havent gotten used to this whole idea so i have no suggestions on how to handle it all. Because of all the problems that came from my head injury, i have also been diagnosed with post traumatic stress disorder/panic attacks/anxiety. I wish there was a simple cure to help you. I am starting a new psychologist today and psychiatrist next week because my neuro psychologist and neurologist believe that i need to be put on antidepressants and all. I also am upset at what its doing to my kids and husband. My daughter has told me many times that she wants her "old mommy" back. Its very hard to have limitations placed on you especially when you have kids. I also seen that you said that not getting enough sleep can trigger seizures? I have a sleeping disorder (part of the PTSD) and i barely get 4 hours a night. Im wondering if that could be why i still "space" out...which is what happens to me during a seizure. My meds that im on now (2000mg keppra) has seemed to control them better than the other meds but i still space occasionally. My neurologist says that i still cant drive because its too dangerous, i understand the reasoning but it doesnt help with the helpless feelings that come along with it. I have my good days where i can deal with this and then there are those days (mostly) that i have a real hard time and im either depressed or very very irritable. The only person that i know who has E is my mother who also got them due to a head injury...isnt that ironic? I do wish the best for you and totally understand how you feel, especially about what it does to the kids and family. Hang in there and if all these doctors that i go to a week (neurologist,psycho neurologist, physical therepist, psychologist and psychiatrist) can find anything to help me, i will sure let you know so that maybe it could also benefit you. It is hard to get the main support from online when we should have it right beside us in our daily lives. My husband is used to me being the "Rock" and my kids are used to me being "supermom" It was a very hard adjustment for them as well. My husband is supportive now, but its taking awhile for the kids because they just dont understand everything that is happening. I go through stages of anger, depression, helplessness and worthless. I think these will pass, i hope they will...and i do hope the best for you. I just wanted you to know that i understand, sometimes just knowing that helps. Reading your post kinda helped me, at least i know that its not just "me" and im just going through adjusting i suppose. I better go, almost time for yet another doctor appointment.
God Bless you,
Angi

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Tigre

wow tigre,
I wish there was some way that I could help you. Luckily my seizures have decreased and they are almost completely gone now. Mine were hormone related. I can relate to what you are going through. For a long time I was going to school full time getting my MBA and I was having seizures every night. I would wake up some days and not even know what school I went to or how to get there. Then I would go and sit amongst some very prepared students in class. It was a very difficult experience. Doctors told me that there was nothing they could do and I felt hopeless. I never thought my life would be normal again but it is now. I still have issues with memory loss but it is nothing compared to what it used to be. There is hope out there for all of you! Don't give up! Try and get through these difficult times as easily as you can. It might take a year or two but you will eventually find something that works for you and things will get better! In the meantime relax and take it easy. Stressing out never gets us anywhere. Take care of yourselves.......