I have a 23 month old little girl with Cerebral Palsy and ever since she turned 15 months she has started having full body seizures when she is sick. She is on trileptal- 5 mils 2x a day and keppra- 1mil 2x a day. Even though we keep increasing her meds she still has seizures every time she gets sick. She will go a couple months sometimes without them and then get an ear infection and have upwards of 30 a day, most lasting 2-4 minutes. I don't know how to make decisions on treatment because I don't know if we should keep adding meds if she doesn't need them all the time and it doesn't really appear that they work anyways. Is it common to have more seizures when sick and what do you do during that time? Her neuro has given us diastat to be given rectally for when she has more than 6 seizures in an hour and it stops them temporarily but knocks her out for hours and when she wakes up she has them once again. I'm at a complete loss and any advice would be greatly appreciated!

My doctor told me that when I have a fever, I should take extra meds because a fever causes your metabolism to speed up, and as a result, your body processes meds quicker. So your medication levels will drop.

Teryn,

I would ask about other possible medication mangement options, or even perhaps getting a second opinon on your baby's situation by another neruo to see what can be done for her for the best possible outcome. Always voice your concerns with the doctor, its okay to question them and to see what other options might help. Be sure to get to know all side effects of meds as well so that you can get to know if it something you want to try for her or to know when to stop if she is having a bad reaction to them. Good luck to you both and many blessings, keep us posted.

Agree that sickness and/or fever can lower seizure threshold, and make more seizures likely.....also think getting another idea of a medication routine would be a good idea.

I have a 23 month old little girl with Cerebral Palsy and ever since she turned 15 months she has started having full body seizures when she is sick. She is on trileptal- 5 mils 2x a day and keppra- 1mil 2x a day. Even though we keep increasing her meds she still has seizures every time she gets sick. She will go a couple months sometimes without them and then get an ear infection and have upwards of 30 a day, most lasting 2-4 minutes. I don't know how to make decisions on treatment because I don't know if we should keep adding meds if she doesn't need them all the time and it doesn't really appear that they work anyways. Is it common to have more seizures when sick and what do you do during that time? Her neuro has given us diastat to be given rectally for when she has more than 6 seizures in an hour and it stops them temporarily but knocks her out for hours and when she wakes up she has them once again. I'm at a complete loss and any advice would be greatly appreciated!
my son has had siezures for over 30 years from a stroke from post menengitis brain anurysm at 10 months old did not have the seizures for 4 years and just in the past 3 years has been under control neorontin added to his other meds which are many gave the other meds more control he does have the xtra seisures when he is ill we usually try to keep his low grade fevers down with a little tylenol and this helps but sometimes he will go through over 50 in a few hours like you describe and the trip to the er for adavan is needed it is dishearting to watch as i have told you we have been dealing with this for 30 years stay strong don't panic they feel this and i have always tried to lighten up these moments with a little joke just for him and a little information about what has just happened he is now for the past 7 years living on his own with assistance and working part time and mostly happy so hang in there try new meds and try to eliminate the old when possible drs seem to forget to take away the old sometimes
good luck to you a veteran seizure mom