heaven24
08-25-2003, 08:07 PM
Wondering how many people take tegretal?
Sponsor
violarose2
08-25-2003, 09:09 PM
not me, i used to
Krazykcio
08-25-2003, 11:54 PM
Hi,
I take Carbatrol, you probably know this, but it's the generic version of Tegretol. I take it along with Lamictal. Be well, Kathy
I take Carbatrol, you probably know this, but it's the generic version of Tegretol. I take it along with Lamictal. Be well, Kathy
neuronz-on-the-fritz
08-26-2003, 12:27 AM
Used to, not anymore
Lindakatt
08-26-2003, 11:04 AM
Yes, it is the only drug I take.
I haven't had one seizure since I started taking it, some 8 months or so ago. Yaaaay!!!!! :)
I haven't had one seizure since I started taking it, some 8 months or so ago. Yaaaay!!!!! :)
JB_Texas
08-26-2003, 12:17 PM
I was just told today by my Dr. that I will replace Tegretol w/Carbatrol because Tegretol is getting hard to find lately. I was worried about side effects, but I see that it is just the generic of Tegretol & that makes me feel better. It also saves me some $ :)
JB
JB
Jan 2
08-26-2003, 02:16 PM
I used to take Tegretol XR, but doc changed it to trileptal. I have read up on this and it is supposed to be better than tegretol because of less side effects. You don't need to have as much blood work done either due to it not causing problems with the liver. I was still having SZ while on tegretol, but now not having any on trileptal.
JB_Texas
08-26-2003, 03:43 PM
Jan 2
How often did u have to get blood work done due to Tegretol? I probably had to have it done about every 4 to 6 mo's. Hopefully I won't have to as often now. I still take Neurontin & Topomax so who knows. I will remember Trilpetal (spelling) if the one I start today doesn't work.
How often did u have to get blood work done due to Tegretol? I probably had to have it done about every 4 to 6 mo's. Hopefully I won't have to as often now. I still take Neurontin & Topomax so who knows. I will remember Trilpetal (spelling) if the one I start today doesn't work.
Jan 2
08-26-2003, 04:25 PM
JB - I too had to have blood work every 6 months. Liver enzymes need to be checked often to make sure that they are at a normal range. My mom also has problems with sz's and she is on tegrital too. So far we both have not had problems. The only thing I do notice is some swelling in hands and feet. Dr said this is due to low sodium levels, which tegrital sometimes causes.
couldbeworsaspose
08-26-2003, 04:41 PM
I started on tegretol or carbamazepine,but it made me feel crappy,and when I woke up on a morning,I felt like I was light headed and was floating.I am on Lamictal now,and no more light headedness.By the way the doc told me,in England they alway's subscribe Tegretol first because it's cheaper than Lamictal,and for some reason,I don't know why but I don't have blood tests anymore.Anybody know why that is?.
Grumps
08-26-2003, 05:20 PM
I was on Tegretol when I was first diagnosed and then moved onto Tegretol Retard which gave me double vision.
Not sure about the US but it seems to be a popular drug for newly diagnosed in the UK - until some sort of pattern is established.
Regards
Not sure about the US but it seems to be a popular drug for newly diagnosed in the UK - until some sort of pattern is established.
Regards
Krazykcio
08-27-2003, 12:26 AM
Hi,
I was told that most emergency room patients here in the USA are put on Dilantin because it is the only common AED that can be administered by IV. It could be that this is unreliable information, but it makes sense to me. Be well, Kathy
I was told that most emergency room patients here in the USA are put on Dilantin because it is the only common AED that can be administered by IV. It could be that this is unreliable information, but it makes sense to me. Be well, Kathy
JB_Texas
08-27-2003, 10:13 AM
Grumps,
I am still taking the Tegretol & have the dbl vision, I just assumed it was because I was tired. I didn't really think it was a side effect.Thanks for the tip. I was just taken off of that drug yesterday....yeah :)
Jan 2
I haven't had any swelling in my feet or hands, I am SO glad.
Krazykcio,
Who told you that Carbatrol was the generic for Tegretol? The reason I am asking is because I went to pick it up for the 1st time yesterday & they wanted to charge me dbl. my co-pay at the pharmacy because it isn't one of my preferred meds. Apparently more expensive to manufacture, I called my insurance this morning...that really bites. :( Now I have to find a different med to take the place of that one. I wonder which one my dr. will pick now.?
Talk to y'all later,
JB
I am still taking the Tegretol & have the dbl vision, I just assumed it was because I was tired. I didn't really think it was a side effect.Thanks for the tip. I was just taken off of that drug yesterday....yeah :)
Jan 2
I haven't had any swelling in my feet or hands, I am SO glad.
Krazykcio,
Who told you that Carbatrol was the generic for Tegretol? The reason I am asking is because I went to pick it up for the 1st time yesterday & they wanted to charge me dbl. my co-pay at the pharmacy because it isn't one of my preferred meds. Apparently more expensive to manufacture, I called my insurance this morning...that really bites. :( Now I have to find a different med to take the place of that one. I wonder which one my dr. will pick now.?
Talk to y'all later,
JB
Jan 2
08-27-2003, 12:38 PM
I'm sorry, I goofed in my last response -- I confused myself. Sorry. I am not on tegretal any more, now on triletal. I had no problems on tegretol, but some hand and foot swelling from trileptal.
Krazykcio
08-27-2003, 04:11 PM
JB,
I'm pretty sure that my Neurologist #1 told me that Carbatrol and Tegretol are the same. Be well, Kathy
I'm pretty sure that my Neurologist #1 told me that Carbatrol and Tegretol are the same. Be well, Kathy
Josephine
08-29-2003, 11:52 PM
Originally posted by heaven24:
Wondering how many people take tegretal?
Hi there.
i have been taking tegretal since 1989. And it's doing the job for me i have been seizure free for almost (2) years.
Josephine
Wondering how many people take tegretal?
Hi there.
i have been taking tegretal since 1989. And it's doing the job for me i have been seizure free for almost (2) years.
Josephine
Josephine
08-29-2003, 11:53 PM
Originally posted by heaven24:
Wondering how many people take tegretal?
Hi there.
i have been taking tegretal since 1989. And it's doing the job for me i have been seizure free for almost (2) years.
Josephine
------------------
Wondering how many people take tegretal?
Hi there.
i have been taking tegretal since 1989. And it's doing the job for me i have been seizure free for almost (2) years.
Josephine
------------------
Lil Ole Me
08-30-2003, 12:21 AM
My son takes Tegretol and has been siezure free for over 2yrs now. It also seemed to help with his mood swings.
Riggers
09-02-2003, 01:45 PM
My 16 yr old son starts Tegretol tomorrow ? We are going to keep our fingers crossed and hope it works without the side effects.
Lil Ole Me
09-02-2003, 06:27 PM
My 4yr old son has been takeing Tegretol for the last 2yrs and has been siezure free since. His mood even got better since being on it. He was on Dilantin first--didn't control his seizures and he was unbearable. His neurologist was leary on putting him on Tegretol because it can not be given by IV and he was scheldule to have a brain tumor removed in 4mths and in case something was to happen that they had to give him his meds through IV they could with Dilantin but not with Tegretol. But finally after agreeing that he was having tooo many siezures that needed to be under control we made the switch and that they could give him Dilantin if he ended up haveing his meds by IV. It did not come to that so he has been on Tegretol since and seizure free :)
Cordy
09-02-2003, 08:35 PM
I'm on Trileptal, which is similar to Teg.
(I'm also on Keppra)
(I'm also on Keppra)
noelwr
09-05-2003, 12:07 PM
Hi, my boyfriend has epilepsy and says Tegratol is the best med (at least for him, he has gran mal). He's had E for 17 years, so I trust he knows his meds. He also takes Lamictin and Rivotrol.
Riggers
09-06-2003, 02:29 PM
My son Sean started on 200mg of tegretol twice a day on wednesday. It is now saturday and he looks spaced out is always dozing off,can hear a buzzing noise, always thirsty, will these side effects subside when he gets used to it or are they permanent? We are supposed to increase the dosage to 400mg twice a day after 2 weeks. And also the consultant never mentioned anything about having blood tests done.
Paula
Paula
noelwr
09-08-2003, 12:57 PM
Hi. A, my boyfriend, says that he had the same side effects, except for being thirsty. He says these side effects are common when changing meds. He is now fine and even drinks alcohol. You always start low and then take blood tests to see how much the meds can be increased. He says that you MUST ask about the blood tests.
Common minor side effects include dizziness, unsteadiness, nausea and vomiting.
Dosages need to be lowered in patients with kidney or liver dysfunction.
Common minor side effects include dizziness, unsteadiness, nausea and vomiting.
Dosages need to be lowered in patients with kidney or liver dysfunction.