mimiof3
01-09-2007, 09:48 PM
Ok..tomorrow is THE BIG DAY! :( I finally get in to the electrophisiologist. had to wait all this time,and now my mind is just BLANnnKKKKK!! zero..notta... I am scared out of my mind. I would appreciate it more than any of you will ever know if you could help me with the questions i need to ask him. I may have RVD ( right ventricular dysplasia) i cannot wrap my mind around this right now and am desperate for help. Thank you all in advance. VERY VERY MUCH...H E L P.. SOS:dizzy: :dizzy: :dizzy:
started04
01-09-2007, 10:34 PM
Hi mimiof3,
Hopefully the result isn't positive, but if your test is positive (best test is cardiac CT scan to confirm or rule out), you will want to know the treatment goal to prevent a sustained event of arrythmia or minimize same.
The options may be drug therapy, and there has been some success with RF ablation (radio frequency removal of wayward electrical pathways due to heart muscle damage), and if one is a high risk of a dangerous event the treatment may be an ICD (implantable device to help maintain a stable heart beat). This would be worst case scenario, and on the brighter side your condition may not very serious and RVD is not an issue. Wish you well.
mimiof3
01-09-2007, 11:19 PM
Oh..thank you so much kenkeith. I appreciate you taking the time so much to help me. God bless you! I have the apt. tomorrow 11:00 central. I beg for those of you who pray..to please say a lil prayer that if I get bad news, I will be able to suck it up and take one day at a time. i just don't really KNOW what are good questions. i'm good at telling others what to ask etc..but for some reason, tonight i am just very muddled. not eating or sleeping very much. Anyone else with some good questions...PLEASE HELP?? I know i've been a pain to some of you on here the past week and a half or so, with all my "whining"..i am embarrassed.. I am so sorry. But I will be here for you if you ever need it. i have the best family support, but do any of you ever just feel SO ALONE?? I know he will not do anything tomorrow, but, the main question i and my husband have is how in the world can my cardiologist make a diagnosis with the readings of the event monitor? I mean, it is a confirme ddiagnosis of accelerated ventricular arrhythmia..but there HAVE to be other possibilities to have caused it. besides a grim diagnosis like RVD. i think I wil definately go for another opinion before there is anything INVASIVE done to me though. I also want to check out the electroj soc's record on success etc. Does anyone know that web site that list physicians and if they have ever been reprimanded etc. Or been held liable for someones ep studies or catherizations etc being bothched?? BTW.. I had a 64 slice CT scanof my heart Nay 2005. It was all ok except for 20% "soft plaque" in the 2 main arteries..whatever they are?? He said heart was structuraly NORMAL. So was the last 20-30 echos I've had. This jus tall doesn't add up to me. I also read on here that it is a very rare disease of the heart and mainly inherited.
Pwarbur
01-09-2007, 11:49 PM
Hi Mimi, honey dont be worried. I dont have any questions for you because my heart problems are of a different kind, but from your prior tests it seems that everything is ok. Dont let yourself get worked up..thats worse for you. I just prayed for you and I know by the power of Jesus that you will get a good report~!! BELIEVE THAT!!! As you are being tested..do as I do during the testing..pray the whole time and thank Him for being there with you and that the test is going to come out in your favor. Please let us know how it goes! I am going for my heart ct scan this Thursday, I pray I have no more blockages..I am getting tired of the angios lol. Bless you!!!
mimiof3
01-10-2007, 01:09 AM
PWARBUR...You are wonderful. I am so thankful for this board. i don't know what I qould do without all of you. Thank you so much for your inspirational post to me. God Bless you all! I am very weary right now. i am physically and emotionally wiped out, but cannot sleep, or rather will not let sleep take over. I am just so upset that my cardiologist tole me this over the phone and i have had to live with FEAR.. the worst i have ever had. i may as well have the worst possible outcome, for the fear has been very very debilitating. I don't think dr's should tell us things unless they know for sure, but he sounded pretty sure. it is after midnight in TX. and i know i need rest because i cannot even see good and my heart is tired. it is sort of doing the tickling thing. Thank you again for posting. AND THE PRAYER!! ~Mimi
Lenin
01-10-2007, 09:54 AM
I probably tuned in too late to catch you before you left for the 11AM appointment, so all I can say is
Good Luck, Mimi.
Tell us what he said!
Lenin
01-11-2007, 08:34 AM
mimi,
So how did it GO yesterday?
mimi,
If you can get to you 'puter, call in!