hello to all. i'm sorry i haven't been back on here. i truly appreciate the concern. i stayed with my daughter for one night. well, had the appt with the electro. here goes. he was absolutely POSITIVE that i didn't have right ventricular dysplasia. said it was just the most remote thing in his mind. didn't know where cardio was getting that. he said it COULD be a possibility, butin some patients, but he was just so sure not me. said it is rare, and that it would have been there from birth. well, i am having v-tach. the event monitor strips shows it, but he said that the rate is what he looks at and it was "bothersome" to him, but felt that i am in more danger getting in a car acc. than SSD. hum.. he said that the RATE of the v-tach is not 120, and that is what is consodered v-tach..but i am having the same thing, just slower, but they refer to it as idioventricular arrhythmia when it is less than 120 bpm. said it wasn't as dangerous as if it were faster. (still worried.. this is no comfort really to me, about he rate.. maybe it should be, but i am in such a haze i don't know my own mothers phone #..i cannot sleep or eat. i HAVE to get a hold on this, or i will be really sick and i need to be strong right now...v-tach is v-tach isn't it? gee) anyway.. he ordered a special ekg. a SIGNAL AVERAGE EKG. it took about 10 minutes. i really don't understand this ekg. but it has something to do with ruling out RVD. next day,(yesterday) i had an mri of heart. today, i called and of course both my cardiologist adn electro are "supposedly" out of the office. talkEd to electro's nurse to seE if results were in. she said they were but not read by doc. i told her i really wanted to know, if they were just sitting on her desk. i KNOW she really cannot tell me anything. but she talked to his asst. and then read me the who knows WHAT? she said the wording was suggestive of RVD!! i freaked you all. i mean. i wAs crying into the phone. i told her i wanted it faxed to me, which she did. in the mean time, my husband (God bless him) was caling my cardiologist on his cell. he gave us his cell about a yr. ago. HE GIVES IT TO MOST OF HIS PATIENTS ? GO FIGURE.. cardiologist called me and i was in tears, (which i regret now BECAUSE SOMETIMES THEY WILL NOT BE AS FORTHRIGHT WHEN THEY THINK THEY HAVE A PANICKY, NEUROTIC female ON THE LINE) ) and he told me that he didn't believe that i have RVD. :confused: :confused: BUT ALL HE HAS IS THE FINDINGS SHEET FAXED TO FROM THE RADIOLOGIST. he said that since my SIGNAL ekg was totally normal, that he didn't think i have RVD. said that he would just live my life it it wee his or his wifes findings, althogh they are INCONSLUSIVE!! yes! a GRAY area.. only meeeeeeeee:mad: here is the findings from the radiologist, who after all ..they are the ones that actually read these things and then relay them on to drs.

The right ventricular wall is diffusely mildly thinned and has some hetrogenous areas of increased signal.Some of the trabeculae also appears thickened. Wall motion , however, is normal and chamber size isnormal. Overall volume of the right ventricular muscle wall is slightly less than expected.
Mitral and Tricuspid valves are normal. Aortic pulmonic valves likewise are normal. No left ventricular wall motion abnormality is seen.
CONCLUSION; Diffusely mildly thinned right ventricular muscle wallwith heterogeneous increased signal concerning for, but noy diagnostic of, right ventricular dysplasia. In this particular patient, with a relatively thin wall, it is quite hard to accuretely separate blood products interdigitating and small areas of trabeculee from TRUE fibro fatty infiltration.
Otherwise normal cardiac MRI.
I decided to take matters in my own hands and calm down and i actually called the radiologist. got her on the phone and she was super nice and just absolutely NOT willing to give a definate yes or no on the findings. said that my thin wall was jsut how i was born,but it makes it extremely difficult to decipher what is actually going on as to 100% RVD. she would only committ to 50-50. said that it does suggest it in some ways, but not 100%. said that the right ventricle was VERY thin (but the findings report says mildly didn't it???) I was very very upbeat. :confused: to her so she would talk freely tome and i had my daughter on a three way with us and she knew this. she was concerned about the future harmful arrhythmias that could occur.
i decided after we hung up to call St lukes Heaert Hospital in Houston. THE BEST ACTUALLY. i cannot see anyone until the first part of MARCH!!:mad: it wil be at lest 8 weeks, and i wil be seeing the head of the electro dept there.
i still have on my trust ole event monitor and wil return it on the 18th. i still have short burst of whatevers..and know no more than i did than before we went from the get go. i feel like shucking the event monitor, andjust living my life like this all never happened, but then irealize that i have a child an grandchildren that could have inherited this from me if i indeed have it. i owe it to them to get to the bottom of things. YES I HAVE HAD AN exhaustion breakdown of sorts. i am not well at all. i look horrible. don't care..but i have aged in just a few weeks. worry and stress are terrible huh? I have a follow up with my electro on wed. he is only there on wed. :yawn: :yawn: ..he told me as he was leaving wed. at our apt, before al the tests, that if the RVD came back positive, he would talk to me about a defibulator. my cardiologist thinks i do not need one. today he said.. if you do thta, then everytime you walk up a flight of stairs and your heart rate gets up to 150 , then it wil fire, electro said he really hated to have to put one in me. he is good, and as i stated agressive, but also soncervative, meaning to me that he isn't trying to throw me into the defibulator just to make money for himself.
i am so weak you all and tired. i appreciate all your prayers. i cannot believe that after the mri..btw.. it wasn't bad for me as far as being claustrophobic, but you have to hold your breathe so much. like 30 sec at a time and this went on for 45 or more minutes..
i would love to hear from all of you and your thoughts on my HORRIFFIC lil situation. thanks so much..:dizzy: :dizzy: :dizzy: mimi

Gosh, I'm sorry you're having such a hard time. Inconclusive is almost worse than RVD, huh? At least if you knew one way or the other you could make a plan and move forward. Sometimes uncertainty is truly maddening.

I don't necessarily know what you're going through, but I did just get through several weeks of totally overwhelming and exhausting anxiety myself. I couldn't eat or sleep either. My advice for you is to try really hard to get enough calories in to keep your strength up. I knew it's really hard and even nauseating to eat during times like these, so try drinking your calories. Buy Ensure beverages or other nutrition drinks. Make or buy smoothies and milkshakes. Just do your best to take in enough nutrition. And of course stay well hydrated.

I hope your doctors have more conclusive information for you very soon.

Hon,

If I had a prescription pad for you I'd write:
atenolol...50 mg...stabilized rhythm
diazepam...5 mg./day)or 10 when panicked...to RELAX
magnesium...250 mg....stabilized rhythm
aspirin...one daily...prevents throwing a clot
and THREE DRINKS at night...just to feel good.

Well you got the best possible news...probably no dysplasia. Go out and celebrate because that's a BIGGIE!

Lennin...so if this were you, wouldn't you want to KNOW for sure? i just cannot believe that the MRI is inconclusive. i spoke with the radiologist personally and she is just as "confused" sounding. she told me she usually reads primaraly childrens MRI's. i AM going to get an answer, someway. probally end up having to have another thrilling MRI. because, i am getting a second or if needed..THIRD opinion. this is my LIFE..and we have to take control of our lives and not put it i have a child and grandchildren. i am 48. just turned. i thought i was so old, then when when i think about longevity these days...it isn't! this si so "par" for my course to have an inconclusive test. i am taking CHARGE! i want to hear what my electrophisiologist has to say wed. lennin.. what wold YOU really think by the readings on the report i posted? I want to hear from anyone who will answer! thanks so so so much in advance. this is a journey God has put me on for a REASON. i will follow His will. i have faith. i just have no strength physically or mentally. i have so many gray hairs , an dfear going to the salon for my usual highlights becauswe i might drop dead. i don't want a difibulator!!! but it si surely looking that direction huh??

Lennin...so if this were you, wouldn't you want to KNOW for sure? i just cannot believe that the MRI is inconclusive. i spoke with the radiologist personally and she is just as "confused" sounding. she told me she usually reads primaraly childrens MRI's. i AM going to get an answer, someway. probally end up having to have another thrilling MRI. because, i am getting a second or if needed..THIRD opinion. this is my LIFE..and we have to take control of our lives and not put hands. the only TRUE way to find out is to have a heart biopsy...and my cardiolologist said .. YOU DON'T WANT THAT!! and he's right. i draw the line there.. taking a piece of my heart out?? eww.. ouch!! i have a child and grandchildren. so i need to know because it is inherited. you cannot tell me that SOME where, thee is an MRI that will not tel someone definitely yes or no. i am leaning with yes..only because of the gut feeling i have from the report... i am 48. just turned. i thought i was so old, then when when i think about longevity these days...it isn't! this is so "par" for my course to have an inconclusive test. i am taking CHARGE! i want to hear what my electrophisiologist has to say wed. lennin.. timber.. anyone!!what wold YOU really think by the readings on the report i posted? I want to hear from anyone who will answer! thanks so so so much in advance. this is a journey God has put me on for a REASON. i will follow His will. i have faith. i just have no strength physically or mentally. i have so many gray hairs , and fear going to the salon for my usual highlights becauswe i might drop dead. i don't want a difibulator!!! but it is surely looking that direction huh??

The cardios said in the "TALKS". The ICD or pacemaker is unable to cover if your heart "POP". If your heart somewhere is very thin, the rest are thick. It has a chance to "pop" (rupture) if you have a acute MI.

I'm not meant to scare you. I'm afraid of that too...

Mimi, take care. It is life! If it is a life it must be bumpy somewhere and sometime. It'll go away and it'll let us enjoy sometime and somewhere also....

Pika

Oh..i am so confused by what you just posted. not scared..past that...well..of cource i am "concerned" but what do you mean?? PLEASE elaborate? thanks

Pika..you man that if the left ventricular wall is mildly thinned, then if i ever suffer a heart attack...it will for lack of better words..just explode? not be able to tolerate it?? I see the ep again wed... ANY QUSTIONS YOU ALL THINK I SHOULD ASK.. I BEG YOU TO LET ME KNOW.. THANKS TO ALL!! mimi

Mimi, enlarged heart or thick heart wall. One particular spot of the heart wall will become very thin. It can be ruptured from that thin spot. Normally, the rutured occur with patient in a very normal blood pressure 120/80.

It got a lot of info on the website.