Hello Everyone,
Does anyone out there with epilepsy or a seizure disorder ever expierence like a battery taste in thier mouth. (explain) when you put a 9 volt battery on your tongue the taste it leaves And at the same time feel like electricty runs through your body, and get a dim feeling of being electricuted?

[This message has been edited by lildoll (edited 10-14-2003).]

Hello....

What kind of medicine are you taking? You'll have to forgive me, I have been on several different meds this year, but I THINK it was Trileptal that I was on that I had that same taste, it was pretty much all the time!

I was also on Dilantin and then on Topamax for quite some time, so it MIGHT have been one of those, but I'm thinking it was the Trileptal.

Hope that helps some!

Amy

HI I seen what you wrote. And yes I have them still.And I am 31 one Years old.And Every Meds. I am on don't help me. I am on Phenytion,Lamictal and Felbatol. I am trying my best to get my DR. to get me off Felbatol. It is not good to on it. It has to many Side Effects Plus felbamate.It can make you bleed to death. Somewere in your body and you don't know it.These is all the side to Felbmate. The Felbatol I can't Find the side Effects Maybe you can. So go to WWW.ask.com (http://WWW.ask.com) and write Felbatol side Effects.and it
will go to it.

SIDE EFFECTS

Dose related- These side effects might be experienced when felbamate is first
initiated or when the doses are changed. These side effects may be reduced as
you continue to take this medication.

loss of appetite
weight loss
nausea
vomiting
change in taste
constipation
stomach upset
diarrhea
headache
dizziness
blurred or double vision
drowsiness
insomnia
ear congestion
runny nose
coughing
sneezing


Chronic - These side effects may be a result of long term use of the
medication.

agitation
aggression
mood changes
clumsiness
unsteadiness
trembling or shaking
muscle cramps
nasal congestion
light sensitivity


Rare / Allergic- These side effects may be serious; it is important to seek
medical attention immediately if you experience any of the following symptoms:

fever or chills
black or tarry stool
blood in urine or stool
dark urine color
persistent headaches, stomach pain, or vomiting
fatigue or weakness
nosebleeds
unusual bruising or bleeding
shortness of breath
wheezing
tightness of chest
white spots on lips or mouth
swelling of face
skin rash
purple or red spots on skin
hives or itching
swollen neck
yellowing of skin or eyes

Hi Amy,
Thanks for the reply. I have never taken Trileptal or Topamex. I have been on Dilatin for 24 years and phenobartial 21 years. Never had a side effect like this. Do you think a side effect could start now? I know your not a doctor or maybe you are (haha) just asking your opinion. I hate going to the doctor. Thanks again.

Yolanda

Hi Yolanda,
I was just showing my sister this thread in hopes that she might be interested in getting on here for some moral support. Ofcourse, she isn't as gutsy as I am and is very nervous about others knowing about her E. But she was surprised to see that someone else is also getting the "battery" taste. She thought she was nuts or something and never wanted to tell anyone about it. Anyway, she also is on Dylantin and Pnenabarbitol, and says that the taste is her sign that she is going to have "one of those days" and knows not to leave the house. Once the slight electric shock feeling hits she knows she is in for a long and tiring day.

Hi when I saw your post I thought to myself I know what she's talking about. I get a taste in my mouth that signals to me that i'm going to have a seizure. I discribed the taste to my husband as a rusty taste like metal but I have never tasted a battery but I think I might be pretty close. I hope this helps.

Bless you guys

Yolo

Hi,

I don't have E my children do... But, there have been times that I have had that taste.

For me it's a change in diet. Something that I've eaten.

It could be a change in your aura, change in diet. Have you started taken anything else. Vitemans? Minerals? Maybe a different bottled water?

Just something to think about.

Good luck figuring it out.

Lisa and kids

I actually used to get that battery taste in my mouth too.. and then I told my doc about it and he recommended that I get the VNS. He said that if the VNS proved to work well, that I might be able to cut back on my meds which I was happy to hear about. I got the VNS implanted a couple of years ago. I was one of the few that was getting it so early in it's stages. It has worked very well for me though. It somewhat controls my seizures now, which were pretty bad before (5-10/day). Just thought I would let you guys know!

* Sorry I had to edit this. I was in a rush when I wrote this yesterday. Hope everyone has a great weekend!

[This message has been edited by Branch (edited 10-17-2003).]

Originally posted by Branch:
I actually used to get that battery taste in my mouth too.. and then I told my doc about it and he recommended that I get the VNS. He said that if the VNS proved to work well, that I might be able to cut back on my meds which I was happy to hear about. I got the VNS implanted a couple of years ago. I was one of the few that was getting it so early in it's stages. It has worked very well for me though. It somewhat controls my seizures now, which were pretty bad before (5-10/day). Just thought I would let you guys know!

* Sorry I had to edit this. I was in a rush when I wrote this yesterday. Hope everyone has a great weekend!

[This message has been edited by Branch (edited 10-17-2003).]


Hi,
Didn't catch your name. But could you please tell me what VNS is? TY.
YoYo

VNS is the Vagus Nerve Stimulator. Its like a pace maker for your brain, only the great thing is no part of it actually touches your brain. Its an implant, with part of it going in your chest near your armpit and then a lead wire that goes up your vagus nerve in your neck. The implant sends an impulse up the wire, and the wire puts it on the Vagus Nerve to send ot hte brain. It prevents and controls seizures for a lot of people and can also help with posticitals and attention span. http://www.healthboards.com/ubb/smile.gif You can go here www.cyberonics.com (http://www.cyberonics.com) for more info.

Hello,
The way you worded that it seemed to come from one of my posts http://www.healthboards.com/ubb/smile.gif I get that 9V taste and the tingling feeling .. its weird but mine is not medication related it happens right before I seizure.

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What I am doing today is important because I am exchanging a day of my life for it.

hey lildol, I've been on dilatin for bout 12 years. On one short stint, i also had the battery taste in my mouth. But it has long since been gone.