Hi Everyone,
Does anyone with eplipesy ever have a problem with getting up early in the morning? Explain:
If I wake up to early in the morning by the afternoon I am fighting a seizure. I mean things flashing at me fast, de jovu, a strange odor, etc. But if I get up like around 11 p.m. or after I am fine. Does this happen to anyone else? Please let me know. My family thinks I am just lazy. But that's not the case. I am not lazy.
Yolanda
YoYo

I always have a hard time getting up early. I have to be up by 645am to get two of my kids ready for school. I am irritable and cant seem to get moving. I dont believe its laziness because all the meds im on make me tired to beging with and my younger two have gotten off "schedule" and keep me up most nights until midnight...I have begun to dread mornings. I dont know if its seizure related or what but i never feel rested completely and i used to be the type that could sleep only a few hours and still be up and about with a smile. Now if i get up early im a bear. I have learned to control my irritability because its not fair to send my kids off to school with me screaming at them. SO i grin and bear it and tell them i love them and have a good day and come home go in my room for a sec and calm down...then i come on here to read the great support from others. Take care!

perhaps your body isnt getting enough sleep. and exhaustion is a trigger for me to have seizures. (((())))))))

Yes, sounds like you are not getting enough rest. Something else came to mind while I was reading your post...How many times a day do you take your meds?? If you are not taking them all throughout the day then that could be the problem. I take mine 4 times a day because of just that problem. Now I feel fine. I do get sleepy but the deja vues are gone (mostly)(I am knocking on wood too) and I am not having those mid day, early evening "strange feelings" that I used to get. You know the ones....the ones that make you sooooooooo sleepy after having one!! They are almost as bad as having a seizure.

I am not a doctor but that should be something that you bring up to the doc. If you do take them 4 times a day then maybe your meds aren't right for you. What do you think??

Let me know! I find this very interesting. I need a life I know but I love puzzles and things that I have to "figure out". I love it when I have to "figure something out" and it involves helping someone. I get so happy and it makes my day!! (Sorry, I sound like a geek that loves to brag or something)

Sorry sweetie!! But please let me know.

God Bless you,
KittyMom

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Mother of 3 beautiful kids and wife to a Great husband! I love helping others...it helps me grow!

Hi KittyMom,
I take my meds 3 times a day. In the morning I take 2 Dilatin 100mg each. In the afternoon 2 Dilatin 100mg each & 1 phenobarbital 60 mg. In the evening 2 Dilatin 100 mg each 1 pheno 60 mg. 1 1/2 year ago they had me on 10 Dilatin a day 100 mg and 120 mg of Pheno everyday. I found a new doctor he's not a neuro. But regular doctor I have been going to him for years for flu etc. I got him to bring my dose down because no one was listening to me that I was walking around like a zombie. So I took the matter in my own hands. My seizures & everything that goes along with them are the same. So I guess this is normal and just something I will always have to deal with. Thanks for caring KittyMom and not thinking I am just lazy like my family thinks.
YoYo

And thanks to everyone else for the info.

Hi YoYo, I'm Yolo I'm 25 mother of 2 and I to can't seem to get up in the mornings. My husband wakes me up in the morning for a kiss goodbye he get the kids off to school. If it's a good day I get up take my meds but then I sleep till 11:30 am. Then my day starts. I can understand what you are saying about seeing things that arent there. I too see things like just tonight thought I saw something run across the bed (nothing there) You are not lazy you are medicated like me and alot of us. I wish I was able to get up and do the things I use to do but those days are gone for now and I (my wife just had another seizure 3rd today she may edit this post later)

Yol****

I have Juvenile Myoclonic Epilepsy(JME) and a symptom of JME is myoclonic jerks in the am. every morning for a few hours I'll jerk and jerk and jerk.... if i'm standing i'll fall, if im holding something it'll fly outa my hand(broken several glasses etc that way). It sucks because I can't take any morning classes. I figure since I'm going to have my own practice(psychology....years and years from now haha)I can make my own hours lol...no morning sessions for me.

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Mandi
"there's no such thing as normal, just a lot of weird people with things in common."

My 15 yr old daughter also has JME. Mornings are rough, she has only had 5 seizures in 2 1/2 yrs but they have all occurred withing 15-20 minutes of waking up. So I get her up at 5:30 am, she eats a bowl of cereal, lays down on couch till 6:30 then gets shower and is off to school at 7:30. With this schedule she can wake up a bit slower and I can watch her for anything unusual. She usually will take a short nap after school (now that soccer season is over) and then do homework and is in bed by 9 pm every nite, 10 on weekends. She is taking 1000 mg/day Keppra and just dropped down to 750 mg/day Depakote. Hope to have Depakote gone by Christmas.