Hi All,
I was just wondering how many of us have the same types of seizures.

I have right-sided focal or partial seizures, which have often led to gran mals. After my seizures I have Todd's Paralysis for as long as a half hour.

Anyone want to share what types you have?

Be well, Kathy

sorry, I didnt mean to post here.


[This message has been edited by momof3mjt (edited 10-22-2003).]

I have partial complex seizures due to a head injury. Totally changed my way of life and still cant drive yet...try explaining that to a child (one of 4) when you have to take her out of brownies and make her a bus rider...uggghh
hope all is well

Jon (14) has absense and complex partials. He probably had them (absense) for a year before we knew that something was up. They seem to be more frequent and now and have developed into Complex Partials. New to meds as to start this weekend. He hasn't had GM but we are now ready for anything.

Tigre,
I hear you about the life changes "E" forces on us. In my case I have grown children (actually men!), so it's ME needing everyone to make adjustments around my needs. It has been over two years since I have been able to drive. We live way out in the boonies, so I can't even walk to the store etc. I am SO sick of feeling like I'm always begging for rides etc. My husband has been wonderful about toting me around when he's home, but I hate to have him be forced to head back out to town after his long ride home. O.K., I'll stop whining! I hope things settle down for you and your family. I'm sure your kids are happy to make changes in order to keep you safe. Be well, Kathy

Hi Kathy,
Thanks for your post...sad but it is comforting to know that we arent the only ones isnt it? My kids are 2..3..6...and 7. They try to understand...well the older two but all they really know is mommy is different. I suffer also from a host of other probs thanks to this head injury and my children cant quite understand it all. They are now "acting out" with unruly and normally not their normal behavior. I go to docs all the time..neurologist,chiropractor/physical therepist, neuro psychologist and a psyhciatrist. They have to come with us because i have no reliable people to watch them. Its an added stress to watch them the way they are. They are confused and hurt as well...they were right there when the door fell and split my head. My daughter doesnt like to talk to me until i take off my glasses (which i didnt have to have before the accident) and everytime we go to a doc they ask which one and beg me to ask if i can drive again. Its just more painful seeing how what happend to me is also happening to my family, not the same way but it has still effected their lives dramatically. Then to top it all off, late last night i had to call 911 for my best friend who lives across the street...she was suicidal and they baker acted her. She lost a son 2 yrs ago and thats what i think is the main trigger and last night she just "lost" it. I stayed with her until the paramedics and police got there but i feel like "am i headed down that road?" I feel like that because i am just overwhelmed....everytime i go to a doc they have a new diagnosis and alll....like i have permanant damage to my neck and right shoulder muscles..or about the newly found pineal cyst in my brain. It just gets overwhelming...then to see a good friend get baker acted. Well it happend to my mom too when i was 17...Its gonna be a tough day but i will make it through this all if not for me, then for the sake of my kids...they have been throguh enough. Thanks for responding and take care.

I was having complex partials that led to ONE grand mal (just as I was going swimming in a lake of all things. Luckily I had someone with me.)

Haven't had anything in about a year now!! http://www.healthboards.com/ubb/smile.gif

I have only ever had grand mal seizures. When I had then (1 year seizure free today!!) I would have them around every 2 weeks of so. Reading some of the posts I guess that wasn't to bad .... but thankfully I am under control. (Keppra 1500mg x2 day and Lamictal 200mg x2 day) My poor tounge and mouth probably couldn't take to many more times of the biting with out it permantly looking like hamburger...

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What I am doing today is important because I am exchanging a day of my life for it.

your probably bored of me saying this, but i got seizures from having spinal menigitias a year from now. changed my life forever. I have grandmals. and absent seizures, and auras. last winter i was so sick and weak that sometimes i needed a wheelchair if i went out anywhere. but now i am on depakote 4 times a day and it works well.

Tigre: I hope you are feeling better emotionally. Like you said...you have your kids to keep you going. I'm sure it's overwhelming, but you'll get through it. Every time one of the little ones smiles remember how precious life is! I hope you're sharing your feelings with your Psychiatrist, especially the depressed part. I am so sorry about your friend. (By the way...what is "Baker acted?) I hope every day finds you feeling better. Meanwhile, please know that I care. Kathy

Lindakatt: One year seizure-free....YAY! I am also glad you didn't swim alone! My husband has insisted that I wait until he's home before I take bath. I guess there could be worse requests! Since one of my seizures happened while I was cooking I don't cook while I'm alone either. I feel like a child sometimes, but at least I'm a little safer this way. I hope you remain seizure-free. Kathy

Bleubird: I love your signature! I am so glad you've been seizure-free for so long. My seizures seem to average about four months apart. Good luck! Kathy

Robinrobin: I know how devastating meningitis can be. I have a friend that lost parts of her feet after having meningicoccal meningitis a few years ago. I don't think she had neurological problems, but I guess different types cause different problems in individuals. I am so glad that Depakote is helping. Be well, Kathy

Kathy,
Baker Act is when the cops and paramedics come and take the person to a hospital or a mental institution and they have to stay there until the doctor feels that they are ok enough to leave. The family and friends have no say so whatsoever, couldnt get her out even if we wanted too. Shes under 24 hour survelance and she called me yesterday and sounds just terrible. When you get baker act against you , well its all in the docs hands...no matter what you say think or feel. Its almost like being arrested but going to a hospital instead of jail. I wish you all much happiness and wellness.

Tigre, it would be hard seeing your friend go thru that. hopefully they will make her better. i understand that its so hard to explain to young children what is going on w/ you. I have 5 yr old twin girls. last year w/ i was so sick they would cry that i would die. peter and I just didnt know what was going to happen to me. sometimes i felt like maybe I was going to die. so I would lie there and the girls got to express there feelings. we told them the doctor said i wasnt going to die- i dont know. we didnt know what to say. I did ask God, if i am suppose to die now, just please take me, so my family doesnt have to wait and suffer anymore. so rambeling on,. the girls say i have seizures- they seem to understand that the word seizures means that !. i cant drive anymore. 2. sometimes i am going to have seizures and I am not going to die. 3. sometimes i have to rest- well alot, lol.

Hi Tigre, Wow....the Baker's Act sounds pretty harsh...but I guess there would be a few situations where it would be a good thing. I hope you AND your friend are O.K. I'll be thinking about you. Kathy

Robinrobin, I think you are doing the best that you can as far as explaining your illness to your little ones. As they get older they'll understand more and more. Until then please don't give up the fight. Kathy