bringontherain
10-25-2003, 11:06 PM
Hi... our baby boy just turned one month old today. I've been noticing that once in awhile, once or twice a day, his whole body will convulse/twitch about 5 times and sometimes his eyes will roll back. I'm trying to find any information about what might be causing this. Thanks for any info. ~ Holly
P.S. He has never been shaken.
P.S. He has never been shaken.
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Krazykcio
10-25-2003, 11:39 PM
Hi,
I would have your baby checked by a Neurologist as soon as possible. If he/she isn't having seizures or convulsions there is definitely something going on. This is a good place to get support and some information. My guess is that most of the members of this board will give you the same advice. Put your mind at ease....hopefully it's nothing, but better to be safe than sorry.Good luck. Please keep us posted. Kathy
I would have your baby checked by a Neurologist as soon as possible. If he/she isn't having seizures or convulsions there is definitely something going on. This is a good place to get support and some information. My guess is that most of the members of this board will give you the same advice. Put your mind at ease....hopefully it's nothing, but better to be safe than sorry.Good luck. Please keep us posted. Kathy
bringontherain
10-26-2003, 12:03 AM
Thank you! I posted this same message at the Children's Health board, and found some other moms noticing the same thing with their babies. It might be Sandifer ('s) Syndrome. ~ Holly
Krazykcio
10-26-2003, 12:41 AM
Hi, I never heard of that syndrome. See....it really is helpful to post questions and concerns on these boards. What one person is unaware of another is an expert on. I consider myself so blessed to have found this board! Have a wonderful weekend, and good luck with your baby. Kathy
Mom2Ethan
11-07-2003, 12:48 AM
I have 3 children and two of mine did this. I was told it has something to do with their underdeveloped nervous systems. They would twitch terribly in their sleep. They stopped doing it by the time they were about 4 weeks old. I know ALOT of people who's babies did this so I wouldn't worry too much.
Tracy
Tracy
gavman
11-07-2003, 12:15 PM
A friend of mine had a baby boy who did this as well. Really frightened her. Her doctor asked her to try to video tape some episodes. He ususally did this when he began to nurse or when he was falling asleep. She was able to video tape quite a bit of it since it happened at such predictable times. They determined, like mom2ethan said, it was an immature neurological system and that he would outgrow it. They continued until around six months of age, but got to be less and less during that time. He is now 5 yrs old, in kindergarten and doing great. I hope this is all it is with your little guy. Our prayers will be with you.
Take Care
Cris
(mommy to 12yr girl, and boys 8,7, and 3. My 7yr old has temporal lobe epilepsy)
Take Care
Cris
(mommy to 12yr girl, and boys 8,7, and 3. My 7yr old has temporal lobe epilepsy)
LisaGuthrie
11-07-2003, 03:48 PM
Hi Holly,
Welcome to the board. My name is Lisa and I have 2 E kids.
Video tape him!!! A picture is worth a thousand words!
You made a comment about his eyes rolling up. If it weren't for that I would have agreeded with the prior posters and tend to think an underdeveloped nerves system as well. BUT, the eyes are a big clue when it comes to seizures.
Jake (22 mths) started seizing at 10 mths. Or that's when he had his first Grand Mal anyway. He did the same thing you discribed several time starting at about 7 mths while he would nurse, his eyes would turn up and to the right, I thought he was trying to "see" me or the room better. I know now that it was probably seizure activity.
See a pediatric neurologist as soon as possible. If you have to go through his ped. be forceful. They often don't recognize seizure activity unless it's full bore, all out Grand Mals which is fine, they are trained to treat sore throats and tummy aches - but don't let him/her decide, again be forceful if need be!
You should also start recording in a journal when this is happening, what he was doing before, note the actual activity (how long it lasts, was he stiff only, was he twitchy before, where his eyes up and to the left or right) and finally what he does following one, (deep sleep, dirty diaper, fussing etc).
The other thing I would suggest is learn what to do during a grand mal. I'll keep my fingers crossed that you will never have to use that knowledge - but it will help you keep your wits about you if it does happen.
I know this is all very scary! I hope that it turns out to be nothing - You will be in my thoughts and prayers. Let us know what you find out!
Love and light
Lisa and kids
Jake, 12/31/01, Epilepsy, Hypotonia, Sensory Intergration Dysfunction
Jenny, 1/12/89, Epilepsy, ADD, High School Freshman
Steve, 3/27/86, No issues that age and his CO wont correct, High School Senior on Combat Alert - GO ARMY!
Welcome to the board. My name is Lisa and I have 2 E kids.
Video tape him!!! A picture is worth a thousand words!
You made a comment about his eyes rolling up. If it weren't for that I would have agreeded with the prior posters and tend to think an underdeveloped nerves system as well. BUT, the eyes are a big clue when it comes to seizures.
Jake (22 mths) started seizing at 10 mths. Or that's when he had his first Grand Mal anyway. He did the same thing you discribed several time starting at about 7 mths while he would nurse, his eyes would turn up and to the right, I thought he was trying to "see" me or the room better. I know now that it was probably seizure activity.
See a pediatric neurologist as soon as possible. If you have to go through his ped. be forceful. They often don't recognize seizure activity unless it's full bore, all out Grand Mals which is fine, they are trained to treat sore throats and tummy aches - but don't let him/her decide, again be forceful if need be!
You should also start recording in a journal when this is happening, what he was doing before, note the actual activity (how long it lasts, was he stiff only, was he twitchy before, where his eyes up and to the left or right) and finally what he does following one, (deep sleep, dirty diaper, fussing etc).
The other thing I would suggest is learn what to do during a grand mal. I'll keep my fingers crossed that you will never have to use that knowledge - but it will help you keep your wits about you if it does happen.
I know this is all very scary! I hope that it turns out to be nothing - You will be in my thoughts and prayers. Let us know what you find out!
Love and light
Lisa and kids
Jake, 12/31/01, Epilepsy, Hypotonia, Sensory Intergration Dysfunction
Jenny, 1/12/89, Epilepsy, ADD, High School Freshman
Steve, 3/27/86, No issues that age and his CO wont correct, High School Senior on Combat Alert - GO ARMY!
Karla
11-07-2003, 06:21 PM
My son when he was 6 months old started having seizures and convulsions. I have epilepsy so I know what a seizure is like and would recognize it when I see one. Anyway I told his dr and he wouldn't listen to me. Then a nurse witnessed one and the dr still wouldn't listen. Within days he had a fever of 107 and had bacterial menigittis and salmenella. He developed a brain abcess and needed brain surgery to remove the abcess. I felt so bad for not sticking up to the dr and insisting. They can be intimidating but don't let them brush you off. My son is 18 now and is fine. The brain abcess went away on its own and left blood clots. He was on siezure meds for 6 years and then taken off when the blood clots disolved. He has been sizure free since he was a baby.
Observe your child and like the prior poster said keep a journal and ask to see a pediatric neurologist. It will be for the best.
Observe your child and like the prior poster said keep a journal and ask to see a pediatric neurologist. It will be for the best.