the girls are going to the pumpkin patch today and I volunteered to go. The teachers are concerned I might have an episode, so they wanted to make sure that my friend who lives with me is also going. She also has a daughter in the same grade level(kinder) as my girls. I know that they are concerned that it will be a exhausting trip for me, but then i feel insulted -well thats probaly the wrong word, but maybe sad for myself that i could understand there concern. i wish i didnt have this. but I know i am going to do terrific today, and have lots of fun!!!

Go to the pumpkin patch and have a great time. They should be greatful that you are volunteering. Good Luck and have fun.

I was in the same situation about two weeks ago. I did my first trip with my daughter (first grade). I showed her class how to make butter. there were groups of seven kids at a time (total of eight groups) and I had each group by myself for 25 minutes. I did wonderful! It had to of been one of the longest days of my life, but I did it and I don't think I quit grinning until my head hit the pillow that night.

I hope everything goes wonderful for you! Its amazing, all the other parents were muttering about this child acting up or the weather (it rained on and off), I wanted to say, be happy you can be here, enjoy every minute of it!!!

Please post back and tell us all about it!!
Lisa

I haven't had your experience but I do know that I would be very hurt and mad at the same time. How are you feeling now (after your trip)?? Did they treat you any different??

I hope you had a grand time!! I hope you showed them that we (people with "E") are no different then they are!! I am praying for you and for them. I am praying that you don't have seizures and have a great time and I am praying that they (the school) opens their hearts and eyes and see that you are no different and "E" isn't a threat to them.

God Bless you sweetie and I can't wait to hear how it went.

KittyMOm

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Mother of 3 beautiful kids and wife to a Great husband! I love helping others...it helps me grow!

it was alot of fun, i had a blast. I was in charge of my 2 girls- I have twins, and then another little boy- he is a cutie. boy my legs arent used to all that walking but i feel great, . oh and no seizures too. I am happy. I love doing kids stuff. I volunteer at the girls school on tuesday. its always the day I look forward to the most of the week//

Robinrobin,
Maybe it's me, but I think it would have been more helpful if the teacher used your presence as a teaching opportunity with the children instead of acting in a discriminating manner. I may be wrong, but I'm pretty sure that most of us that have "E" would be willing to help educate people about the disease. Yes, we may have a seizure while in public, and yes it's a scarey thing to witness...BUT, a diabetic may also go into sugar-shock, and someone with heart disease may have an attack. Bottom line is that you never know, and the unknown causes the worse fear! I hope everything is well with you. Kathy

yes I totally agree, its funny how many people do not notice my medical alert band. have any of you had any expierence with this? Talking/ education about seizures is what I think is the best way to handle it. I am definatly not ashamed I have E. My girls teacher was concerned about me voluntering in the girls classroom because of E. We met when my S were still not under control w/ meds but I knew I would get better. I offered to give a lecture about it. I did have a seizure in front of the girls school last month, a bad one. but my friend was there so she made sure ER didnt come and make it even a bigger production out of it. but the result was that the parents didnt shun me, there are lots of smiles passed when u drop off the kids. its like, ok u have seizures, thats cool. i feel sad for you when your sick/

I have to say this, you are amazing. Had I of had one at the school, I'm not sure I would of shown my face again. http://www.healthboards.com/ubb/frown.gif I'm not at that point yet. I'm very proud of you for that and I have great respect for you, hopefully I can get to that point. I'm heading in that direction and you just given me some more to think about! Thank you! Great job sweetie! http://www.healthboards.com/ubb/t_up.gif

Lisa

I agree with Lisa....hats off to ya for being so brave.

I haven't had any problem with the Medic Alert bracelet yet. Maybe it's because I haven't been alone when I've had a seizure...and the fact that my son and daughter-in-law are very involved as volunteers with our area rescue squad. I'm pretty well known by most of the EMT's. I also carry medical information and a cell phone with me at all times. Whenever I'm out I show whomever I'm with (can't drive...live in the Boonies...always with someone!) the medical stuff just in case. I've been pretty lucky because I've only had 2 seizures out in the public.

I hope all is well. Kathy

Hi RobinRobin,
I have had E for over 20 years. I tried to hide it for alot of years, especialy when I was in High School I was so ashamed & embarassed. My seizures started when I was 17 the end of my Junior year. It was rough my Senior year, graduation & parties. But I made it through.I over heard someone talking one time. They had seen someone have a seizure and they said they looked like a freak. That was it I would let nobody know I had E. Lived like that until about 8 years ago. My seizures have gotten worse so I can't hide them but only people I know very well know about my E and whom i hang out with. I feel like a burden to them at times. Plans sometimes don't go through because of me, so I don't make plans anymore I just exclude myself right away. I don't want to hold anybody up from haveing thier good time. I am alittle stronger now I know it doesn't sound like but I am. But my hat goes off to you RobinRobin.
YoYo****Yolanda

[This message has been edited by lildoll (edited 10-26-2003).]

[This message has been edited by lildoll (edited 10-26-2003).]

dear YoYo, I think my hats should go off to you!! My sensitive soul back in highschool would never of survived if I had seizures back then. I was already so tortured because of my syhness. I was strikken being sick when I was 31 - at the height of my self confidence. so it is easy, or should I say easier.

I am in your shoes when u state that u dont want to be a burden to your friends and activities. It took me a long time to understand that I am not being a flake if I cant make it because I am "sick". I just say I hope to make it.- never guaranteeing anything. It has been upsetting if you really want to go 'somewhere' but you dont trust your body to have enough energy.

Way to GO Robin... I missed the earlier, sorry! I'm so proud of you Girl...

(((hugs)))

Lisa