hey everyone i just want to thank you all for everything you guys have done for me you have listened when i needed it and givin advice when i needed it and i just want everyone to know how much i appretiate that thank you so very much. i also wanted to let you guys know that i go to see a neurosurgen on december 1 at 11:00 am i will be sure to let you guys know how that goes i know its a while away but hey thats ok this is for the v.n.s. im not sure how this is all going to work out i have alot more stuff going on right now with me health wise so its really a pretty scary time right now and im not sure if i will be up to having vns surgery when the time comes so i guess ill just cross my fingers and pray that everything works out ok thats about all i can do right now and just be thankful that i have my wonderful family and all you guys that i know i can rely on thank you again till later jessie

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mother of 3
ages 4,3,and 1
my pride and joy

diagnosed with epilepsy jan. of 97

live life to its fullest you never know when it may be to late to do all the things you would have done tomorrow

This really is a great place to be, isn't it???

Good luck at the neuro!

Lindy

Hi Sweetie,

We are all sending good vibes and prayers your way on this one!

...and just for good measure, my fingers are crossed as well. http://www.healthboards.com/ubb/smile.gif

Love and light

L

Think positive!!! I hope this works for you, December will be here before you know it.

I'll be thinking of you, please keep us posted sweetie!

Lisa

My thoughts and prayers are with you!

Daniela

Jessie,

Good luck to you! Don't be scared of the process. The VNS isn't a scary device at all and if you do opt to get it (its worked well for me!), I think you'll find that its easy to get used to. Plus the actually surgery to implant it is a no biggie to those of us who've been living with E. Most people I know don't even have to stay in the hospital over night. I'd be happy to answer any questions you may have. Its so nice to have a community of people who are so empathetic. http://www.healthboards.com/ubb/smile.gif

ok just so you guys all understand why i am so scared about everything thats going on ill fill you in im not scared about having surgery for vns thats really no big deal ive had surgery before and was fine whats bothering me right now is when i was pregnant with my last child who was born june 15 of 2002 i was diagnosed with cervical dysplasia. i just went in for a recheck of that on the 15th and the dr accidently said something he shouldnt have im sure you ladies out there know what i mean by a recheck lol well he was doing his thing down there and said oh i was afraid of this he didnt mean to say it and he deffanatly didnt mean for me to hear him but i did i questioned him about it right away and he said he couldnt say anymore that we would just have to wait for the results of the biopsy. my mother and all of her sisters and my grandmother have all fought with different kinds of cancer cervical and breast. so i have that weighing on my mind right now and i go in for a surgical consult on nov.3 for a laperotomy(sp) for possible endo or something he is unsure really what. on the 22nd of this month i take my baby who is 16 months old in for a repeat renal scan where she will have to be sedated and have radio active dye injected into her for her kidney's . i just have so much stuff going on right now that i just really want to sit down and cry and cry and cry but i cant i have to be strong for my family. what am i to do. how do you mothers handle things like this?i need to go we are out of tp so i have to run to the store please someone give me someadvice on how to handle all this i feel like im about ready to lose it here

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mother of 3
ages 4,3,and 1
my pride and joy

diagnosed with epilepsy jan. of 97

live life to its fullest you never know when it may be to late to do all the things you would have done tomorrow

oh Jessi, you poor thing. You have so much on your plate right now! When do you get your biopsy results back? That must be so scary... having to play the waiting game like that. I hope your baby is alright. Come back on Wednesday and let us know the results.

VNS can go at one step at a time. Once your doctor approves it, you move on to insurance approval and then you can set a date for the implant. http://www.healthboards.com/ubb/smile.gif Since you're meeting with your neuro on 12/1, maybe you can have some of your other worries out of the way so it will be smooth sailing for you for a while. http://www.healthboards.com/ubb/smile.gif

hey i get my biopsy results on the 22 the same day i have to take my baby in for her test.time is just dragging on though i hate this i never worried about anything like this before i didnt think it would be something that could effect me im only 22 but boy was i wrong.i hoping that wed.goes ok for MaeLynn (thats my baby)i mean we know there is a problem but there really isnt any way to fix it so we are just kinda watchin and making sure it doesnt get worse she has been running a fever again but not like she has in the past and that kinda worries me to i mean she when she gets sick from the whole kidney thing she will run fevers that are usually up around 105-106 and they will last for about 5-7 days now cant that sometimes cause seizures itself from running high fevers for so long?and i cant really look anything up on whats wrong with her because they arent really sure themselves they know she has mild dialtion in one kidney and moderate dialation it the other ughhhhhhhhhhh i just want to scream its one thing when there is something wrong with me and the drs cant figure it out but i hate it that there is something wrong with one of my children and they cant figure it out i feel so helpless!i know this kinda stuff doesnt really belong on the epilepsy board and im sorry so ill get back to that stuff lol i go to meet with the nuero surgeon in dec.and i guess im going to be scheduled for surgery then for the vns my insurance has already approved it i guess from what i am being told but who knows they could change there mind like they did last time lol well ill let you all know more when i know more i need to go find something to keep me busy for a while thanks everyone love ya all jessie

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mother of 3
ages 4,3,and 1
my pride and joy

diagnosed with epilepsy jan. of 97

live life to its fullest you never know when it may be to late to do all the things you would have done tomorrow

I am new to this board and i have a grandson with e.
I have been reading and reading, but I must tell you are a person with so much courage and love. You and your daugther will be in my prayers. I will check back with you after your doctors visit.
You have contributed so much of yourself to this board that we can be here for you.
Peddy's Nanner

mommajessibelle, you are going through so much, my thoughts are with both you and your daughter. Im sure the doctors will figure out the cause of her illnesses, and get her well as soon as possible. It is great that your insurance has approved you for the VNS, it has done wonders here. Our thoughts and prayers go with you leading up to wednesday, im sure the doctors will have good news for you. Keep us informed, and remember that you always have people looking out for you.

you guys are soooooooooo wonderful those posts made me cry really and that doesnt happen very often. all i can say right now is thank you thank you thank you

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mother of 3
ages 4,3,and 1
my pride and joy

diagnosed with epilepsy jan. of 97

live life to its fullest you never know when it may be to late to do all the things you would have done tomorrow

[This message has been edited by mommajessibelle (edited 10-20-2003).]

hi guys well here is a response for those of you that asked my baby was taken in to the hospital on the 22 for her testing on the 23 i got the results she was diagnosed with hydronephrosis i dont know how many people know what that is i know i didnt so here is what it is im not sure what they are going to do for treatment she has to go see a uroligist n****Hydronephrosis is a kidney condition which features a build-up of urine after it exits the kidney. Generally, hydronephrosis indicates an increase in back-pressure of the flow of urine from the bladder, through the ureter (collecting tube from the kidney to the bladder), and into the bladder. The amount of hydronephrosis is proportional to the amount of obstruction of urine fl****thank you all for your kind words in my time of need http://www.healthboards.com/ubb/smile.gif


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mother of 3
ages 4,3,and 1
my pride and joy

diagnosed with epilepsy jan. of 97

live life to its fullest you never know when it may be to late to do all the things you would have done tomorrow

Congrats Good Luck well say a prayer for you guys...

Yolo http://www.healthboards.com/ubb/angel.gif

Hi Mommajessabelle,
My heart goes out to you and your family. I feel helpless to do more than keep you in my thoughts. Please know that we are all rooting for you! Keep your chin up! Kathy

Hi Mommajessabelle,
I just wanted you to know that I have been thinking of you, especially since I knew you were awaiting your biopsy results. Are you alright? My thoughts go out to you and your family. Kathy

can things possibly get any worse? why is everything going wrong all at once? i feel as though i am living in someones cruel joke.this isnt fair none of it. MaeLynn (my baby) goes in on november 12 to meet with a urological surgen to find out what our next step of action will be. i found out today after taking my 2 oldest kids in for preschool physicals that the dr wants to do more blood work on my oldest because her triglycerides(sp) are over 400 and thats not normal for a 4 year old. they are uncertain as to what is going on all they told me today is it could mean that there might possibly be something wrong with her heart. she will be 5 on the 30th of november and shes 3ft6 and weighs 33 pounds she is a very small girl for her age and they are also concerned about that all the sudden she has always been tiny she weighed just a little over 5 lbs when she was born. i know you guys probably dont want to hear any of this but for me this is kinda a place that i can come and vent all my problems and anger and when im done writing these i feel a little bit better i hope you guys dont mind thanks for listening love to all jessie

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mother of 3
ages 4,3,and 1
my pride and joy

diagnosed with epilepsy jan. of 97

live life to its fullest you never know when it may be to late to do all the things you would have done tomorrow

Mommajessabelle,
Please don't ever think that we don't want to hear your problems! One of the most important reasons for being here together on this board is to give and receive support. Now that I've said that, I want you to know that I will pray for your family. Nothing like kicking you while you're down eh?! You must be a very strong woman. You've remained sane while your world has done a few flip-flops. I firmly believe that everything happens for a reason. Although that may seem like a cruel joke right about now, I think things will begin to head uphill for you. I have no idea why I feel that way...but I've been getting some positive vibes as we "speak." I will keep you in my thoughts. Kathy