monkey3
01-16-2007, 02:03 PM
I am sure everyone feels like this sometimes, I am just feeling it particularly strongly today. My whole life revolves around my sons ASD, where we go what we do, how long we can stay etc...............I truly hoped he would be a little more functional than he is at the moment coming on to 5 and would be starting kindergarten. I guess what set me off most was seeing an old friend (about 6 of us has little boys all born in the 1st half of 2002) and she was telling me how excited Robby was for school. I am happy for him through my own tears of grief. I though this year Nicolas would get some comprehension out of the santa thing not very much. I know there are so many horrible things in this world and I am lucky to have wonderful family but sometimes Im just sad.
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Liamsmom
01-16-2007, 03:38 PM
Ahh Monkey3 don't apologize for being human. We all have that vision of perfection when we get married or have a child. I remember thinking to myself that i ordered the chubby pink cute baby that smiles all the time and is a joy to be around ALL the time not his one that crys at every little noise and can't deal with new people and makes my life so bloody hard.When I get to feeling blue my best friend always tells me I am Liam's Mom for a reason because he was going to have issues and I was just the chop busting Mom he'd need to get him all he needs. Nicholas has you for a reason.
Chin up Monkey3 just because they have what looks to be normal kids you never know what someone is going through behind closed doors every one's life looks better than ours from a distance.
Chin up Monkey3 just because they have what looks to be normal kids you never know what someone is going through behind closed doors every one's life looks better than ours from a distance.
ruby41
01-16-2007, 04:37 PM
I know what your going through my son is 7 and I was very upset not to get even a wave goodbye as he was taken into his classroom on the first day. He still dosn't tell me whats happenning at school. But finally this year I took him to the supermarket on Christmas Eve with him sitting in the trolley. He jumped up as we passed Santa's Grotto and wanted off the trolley. When he got out he ran into the Grotto and jumped on Santa's knee and gave him a cuddle. It was my best Christmas present ever. I will treasure that picture for ever. A few months ago he lost his first baby tooth I could not bear to part with it. I placed it in a jar and one day soon I hope to put it underneath his pillow when he understands about the Tooth Fairy. Remember our kids are developmentally delayed they will hopefully go through all the stages other kids go through just a little later than they should.
monkey3
01-17-2007, 09:36 AM
Thanks for your replies, it is nice not to feel so lost and alone. My daughters 6 and 8 tell me that the angels told them to come to us as their parents because we would be the best for them:angel: makes me cry in a happy way. Maybe, just maybe, they are right.:)
Thanks again
Thanks again
monkey3
01-17-2007, 09:37 AM
what a beautiful christmas gift, better than any I could imagine
Kolby
01-17-2007, 05:03 PM
I know how you feel. When I see another 5 year old it's hard on me. I want to hear my son tell me how his day went. I want to know how he feels inside.
All I get is his frustration at the word a kick hear and there and a screaming NO MOMMY.
He is always crying over spilt milk and unhappy about something. There are times I just want to go out to look at antiques or something for a few hours.
But I know my husband doesn't want to be alone with him and I don't want to take him with me. I really miss having the freedom. We are home all the time and I just keeping getting fat each year LOL. Even if I walk the dog, my husband is stressed by the time I get back. Though he tells me to do things, I know how hard it is on him when he has all three kids.
Everytime we walk into another room a fight starts or my son needs something. URG!!! But by the next day I feel O.K. again. Sometimes watching Super Nanny helps me feel better :)
Feel better soon!
Michelle
All I get is his frustration at the word a kick hear and there and a screaming NO MOMMY.
He is always crying over spilt milk and unhappy about something. There are times I just want to go out to look at antiques or something for a few hours.
But I know my husband doesn't want to be alone with him and I don't want to take him with me. I really miss having the freedom. We are home all the time and I just keeping getting fat each year LOL. Even if I walk the dog, my husband is stressed by the time I get back. Though he tells me to do things, I know how hard it is on him when he has all three kids.
Everytime we walk into another room a fight starts or my son needs something. URG!!! But by the next day I feel O.K. again. Sometimes watching Super Nanny helps me feel better :)
Feel better soon!
Michelle
snowbell
01-22-2007, 07:37 PM
Hi to all, I am a newbie and have not used a forum before. I totally understand how "just a little sad" feels. I feel as though in the space of two weeks my life has totally imploded. My gorgeous little boy has been diagnosed as being on the ASD spectrum and also dyslexic. We are currently waiting for a concrete diagnosis as to where exactly he is on the spectrum. I feel as though the mainstream school he is in are not really bothered, his two older brothers don't understand, the paeditrician we saw just gave us a booklet and see you in three months! I have spent most of today in tears, and am not sleeping, he hasn't intil now been any bother at school, mostly just sitting there, but now he choosing to be uncooperative and ignoring the teacher and being 'silly'. This is aggravating me intensly as I have already told here how devastated I am. She is not making any allowances for him at all. The last thing I need is a battle with the school as well. I am trying to get a statement for him but it really is an uphill struggle. sorry to sound so negative but I really love my kids and just want the best for all of them, and all of this is really breaking my heart right now.
ruby41
01-22-2007, 09:35 PM
Welcome to the forum Snowbell. I totally understand what your going through. Going through the diagnosis is a very stressful time. When my son was getting diagnosed I was on my own and would lay awake and cry every night. Then I joined a Support Group run by my Child Development Centre. All the parents there were of newly diagnosed children the same age as my son. I know if I did not have this Support Group in the early days I would have had a breakdown. I hope you have plenty of family support at this time and you should make enquiries and join a local Support Group it will really help. Let us know how your son does. Best Wishes

