IMNRVUS
01-16-2007, 09:02 PM
Anybody ever feel like this before???
Getting up in the morning, feeling very nervous and uneasy... just not knowing why. Feeling like something is wrong, just not quite sure what or where. This feeling is strong enough that you want to get out of the house, just to be near someone (I live alone). It's almost like what I would describe as psychic.
This feeling comes and goes, sometimes lasting weeks.
Related info:
I have occasional daytime auras... never leading to a GM.
I've had 8 Gran Mal seizures, all while sleeping, starting in Oct. 2001.
Five of the GM's were caused by trying to wean off of meds, at neuro's request... normal EEG's.
I don't smoke, drink, or do drugs.
Sinus problems/sleep apnea are probable causes for my GM's
Take phenytoin, lorazepam, and diovan... all in small amounts + vitamins.
Is it an aura, anxiety, panic attacks, depression, or just life?
I'm guessing it's life!
Just had to sound off about it.
Thanks for any input...
Getting up in the morning, feeling very nervous and uneasy... just not knowing why. Feeling like something is wrong, just not quite sure what or where. This feeling is strong enough that you want to get out of the house, just to be near someone (I live alone). It's almost like what I would describe as psychic.
This feeling comes and goes, sometimes lasting weeks.
Related info:
I have occasional daytime auras... never leading to a GM.
I've had 8 Gran Mal seizures, all while sleeping, starting in Oct. 2001.
Five of the GM's were caused by trying to wean off of meds, at neuro's request... normal EEG's.
I don't smoke, drink, or do drugs.
Sinus problems/sleep apnea are probable causes for my GM's
Take phenytoin, lorazepam, and diovan... all in small amounts + vitamins.
Is it an aura, anxiety, panic attacks, depression, or just life?
I'm guessing it's life!
Just had to sound off about it.
Thanks for any input...
Sponsor
aussie308
01-17-2007, 10:21 PM
What you describe sounds exactly like what I have sometimes. I feel nervous, upset, a feeling of dread and needing to be close to my husband.
I have talked to several people about these feelings and from what I've gathered they are a type of aura. Auras don't always lead to seiz. and sometimes I feel like I'd just as soon have the seiz. and get it over with. I described these feelings to my doc. He prescribed 5mg. Valium to be taken as needed when I feel that way. It is not something I would want to use on an everyday basis, but for "those days" they help immensly. Within 1/2 hour after taking one I feel a little sleepy but no longer freaking out and able to function. Hope that helps some.
Best of luck, Laura
I have talked to several people about these feelings and from what I've gathered they are a type of aura. Auras don't always lead to seiz. and sometimes I feel like I'd just as soon have the seiz. and get it over with. I described these feelings to my doc. He prescribed 5mg. Valium to be taken as needed when I feel that way. It is not something I would want to use on an everyday basis, but for "those days" they help immensly. Within 1/2 hour after taking one I feel a little sleepy but no longer freaking out and able to function. Hope that helps some.
Best of luck, Laura
IMNRVUS
01-18-2007, 11:35 AM
aussie308...
Thanks for your response... I literally thought it was something that just I went through. My neuro said that every seizure does permanent damage... sort of like drinking alcohol. It's a little scary sometimes feeling that way. Can't say I'd rather have a seizure though.
I take lorazepam (ativan) which does help for this. It's the same as valium, just works faster but doesn't last as long. I'm allowed up to 2mg/day. I take 1/2mg at a time as needed... usually only 1/2 to 1mg total a day. I tried valium instead last month. I kept falling asleep during the day and dreaming alot at night, so I went back to lorazepam.
I have a few close friends I turn to, or I go out to a casino or walmart... depending on how bad it is, or what time it is. :dizzy:
How often does this happen to you?
Thanks for your response... I literally thought it was something that just I went through. My neuro said that every seizure does permanent damage... sort of like drinking alcohol. It's a little scary sometimes feeling that way. Can't say I'd rather have a seizure though.
I take lorazepam (ativan) which does help for this. It's the same as valium, just works faster but doesn't last as long. I'm allowed up to 2mg/day. I take 1/2mg at a time as needed... usually only 1/2 to 1mg total a day. I tried valium instead last month. I kept falling asleep during the day and dreaming alot at night, so I went back to lorazepam.
I have a few close friends I turn to, or I go out to a casino or walmart... depending on how bad it is, or what time it is. :dizzy:
How often does this happen to you?
lamac
01-18-2007, 12:12 PM
IMNRVUS...I think I have the same feelings sometime...things just aren't right...I may be a bit shakey...it is difficult to describe...sometimes I feel like I should cry, but I don't know why. I was feeling this way one time when I went to see the neurologist for a regular 4 month check up...she ended up sending me to a psychologist who works with people with epilepsy.
I have also been diagnosed with sleep apnea...mixed...and I take Trileptal and Keppra for seizures...also Inderal and Diovan for BP. All of my tonic clonic seizures have been at night but simple partial/aura types have been during the day...that's life...huh...
Lamac
I have also been diagnosed with sleep apnea...mixed...and I take Trileptal and Keppra for seizures...also Inderal and Diovan for BP. All of my tonic clonic seizures have been at night but simple partial/aura types have been during the day...that's life...huh...
Lamac
IMNRVUS
01-18-2007, 04:46 PM
Lemac:
I guess it's meant to be... just when you think you've got everything under control, life trips you up. It's funny, we have some of the same things wrong with us, right down to the crying... with a little confusion added in.
One thing I neglected to say was that I had just started a relationship with a woman (including living together) 6 months prior to my 1st GM seizure. I moved in with her, in a not-so-good part of Vegas. So there was stress coming from all sides. Throw in 9/11 happening 1 month before my 1st GM (I'm from New York State). Mix well with sleep apnea and sinus trouble, and something was bound to happen. That girlfriend and I grew apart right after I came home from the hospital, so I moved out to a small community about an hour out of town. She couldn't handle the fact that I had a seizure disorder... and she's a nurse!!?? I've been depressed over losing her for years. I was very attached... and still keep in touch. At least I know it's over. I just wonder if that loss contributes to having these odd auras. I've become a very emotional person since the 1st seizure. So much that my PCP requested hormone blood tests. :dizzy:
I guess it's meant to be... just when you think you've got everything under control, life trips you up. It's funny, we have some of the same things wrong with us, right down to the crying... with a little confusion added in.
One thing I neglected to say was that I had just started a relationship with a woman (including living together) 6 months prior to my 1st GM seizure. I moved in with her, in a not-so-good part of Vegas. So there was stress coming from all sides. Throw in 9/11 happening 1 month before my 1st GM (I'm from New York State). Mix well with sleep apnea and sinus trouble, and something was bound to happen. That girlfriend and I grew apart right after I came home from the hospital, so I moved out to a small community about an hour out of town. She couldn't handle the fact that I had a seizure disorder... and she's a nurse!!?? I've been depressed over losing her for years. I was very attached... and still keep in touch. At least I know it's over. I just wonder if that loss contributes to having these odd auras. I've become a very emotional person since the 1st seizure. So much that my PCP requested hormone blood tests. :dizzy:
Travis from MN
01-18-2007, 07:19 PM
I have. Add into the mix a mild depression that slowly worsened.
It was caused in MY case when the Doc upped my keppra from 3000 to 4000/day. Within a week of the increase I noticed problems and called right away. The Doc blew it off and told me to wait for the med increase to adapt (Keppra takes ONE DAY!). I sat it out 6-8 WEEKS almost constantly with my friends due to the depression getting worse over that time.
It became so bad that the last night on that dose I told them I HAD to go in to the ER I felt so bad (meaning unsafe alone!). The ER was shocked at my dose and levels. They told me to Drop back to my prior dose. This was NOT my normal hospital. They could not help my with psychological due to the fact I was not an endangerment to myself. However the effects went away by the NeXT day (meaning within 24 hours).
I was on TegXR, Keppra and Dilantin at the time.
Having said that about Keppra, I have had high blood levels (above max) last year and did NOT feel those effects. My doc did reduce the dose. However I found it interesting that I did not notice the effects (of high levels) that I experienced down in the city when I was above max dose. I wish I kept record what my levels were back then for a comparison.
For the record my seizures are normally well controlled.
--Travis
It was caused in MY case when the Doc upped my keppra from 3000 to 4000/day. Within a week of the increase I noticed problems and called right away. The Doc blew it off and told me to wait for the med increase to adapt (Keppra takes ONE DAY!). I sat it out 6-8 WEEKS almost constantly with my friends due to the depression getting worse over that time.
It became so bad that the last night on that dose I told them I HAD to go in to the ER I felt so bad (meaning unsafe alone!). The ER was shocked at my dose and levels. They told me to Drop back to my prior dose. This was NOT my normal hospital. They could not help my with psychological due to the fact I was not an endangerment to myself. However the effects went away by the NeXT day (meaning within 24 hours).
I was on TegXR, Keppra and Dilantin at the time.
Having said that about Keppra, I have had high blood levels (above max) last year and did NOT feel those effects. My doc did reduce the dose. However I found it interesting that I did not notice the effects (of high levels) that I experienced down in the city when I was above max dose. I wish I kept record what my levels were back then for a comparison.
For the record my seizures are normally well controlled.
--Travis
aussie308
01-19-2007, 12:04 AM
I have "those days" maybe 3-4 times a month. Sometimes more often if I've been under a lot of stress. I've been blessed with a hubby that's very understanding and supportive. Usually one 5mg. diazapam (generic valium) and I'm ok the rest of the day. Sometimes it makes me a little sleepy if I'm at home doing nothing, but if I'm out and about and need to take one it doesn't intrerfere with my day.
Sorry you're having those feelings, but it does help to know you're not hte only one.
Sorry you're having those feelings, but it does help to know you're not hte only one.
IMNRVUS
01-19-2007, 12:07 PM
Travis: Maybe it was the combo of 2 or more meds in certain amounts that made you feel those side effects.
You said "Down in the City"... Was there a change of altitude? I've felt different in Colorado at 6500' above sea level, than at sea level in New York State, or at 2600' in Nevada. All of this was before I was on meds or had a GM.
I know I'm not taking too much phenytoin... blood tests show current amount is under theraputic level. It works unless I have a breathing problem at night.
Lorazepam or diazepam helps with auras and depression. It's got to be the stress that doesn't help... always wondering what I did wrong or what's next.
You said "Down in the City"... Was there a change of altitude? I've felt different in Colorado at 6500' above sea level, than at sea level in New York State, or at 2600' in Nevada. All of this was before I was on meds or had a GM.
I know I'm not taking too much phenytoin... blood tests show current amount is under theraputic level. It works unless I have a breathing problem at night.
Lorazepam or diazepam helps with auras and depression. It's got to be the stress that doesn't help... always wondering what I did wrong or what's next.
Travis from MN
01-19-2007, 12:43 PM
No, there was no altitude change. Just a refferal to my prior residence; only a minor change of less than 150 feet.
However as I stated; my effects were constant and started right after they upped the Keppra dossage.
--Travis
However as I stated; my effects were constant and started right after they upped the Keppra dossage.
--Travis
Bilbostuff1961
01-27-2007, 04:43 PM
Anybody ever feel like this before???
Getting up in the morning, feeling very nervous and uneasy... just not knowing why. Feeling like something is wrong, just not quite sure what or where. This feeling is strong enough that you want to get out of the house, just to be near someone (I live alone). It's almost like what I would describe as psychic.
This feeling comes and goes, sometimes lasting weeks.
Related info:
I have occasional daytime auras... never leading to a GM.
I've had 8 Gran Mal seizures, all while sleeping, starting in Oct. 2001.
Five of the GM's were caused by trying to wean off of meds, at neuro's request... normal EEG's.
I don't smoke, drink, or do drugs.
Sinus problems/sleep apnea are probable causes for my GM's
Take phenytoin, lorazepam, and diovan... all in small amounts + vitamins.
Is it an aura, anxiety, panic attacks, depression, or just life?
I'm guessing it's life!
Just had to sound off about it.
Thanks for any input...
Interesting stuff there, one thing that I have found after having siezures for over twenty years is that it seems like there are lot of "false auras" (kind of like false alarms)..This happens to me generally when I have not had a siezure for a long time and am tired. Many times I tend to write the nervous ness, fake auras, etc off as being my own little parinoia thinking I am going to have a siezure.."I will demand (not tell) myself to stop thinking about it and move on"...moments later I am ok, and realize that it was all just what I call, "nonsense noise"...
Getting up in the morning, feeling very nervous and uneasy... just not knowing why. Feeling like something is wrong, just not quite sure what or where. This feeling is strong enough that you want to get out of the house, just to be near someone (I live alone). It's almost like what I would describe as psychic.
This feeling comes and goes, sometimes lasting weeks.
Related info:
I have occasional daytime auras... never leading to a GM.
I've had 8 Gran Mal seizures, all while sleeping, starting in Oct. 2001.
Five of the GM's were caused by trying to wean off of meds, at neuro's request... normal EEG's.
I don't smoke, drink, or do drugs.
Sinus problems/sleep apnea are probable causes for my GM's
Take phenytoin, lorazepam, and diovan... all in small amounts + vitamins.
Is it an aura, anxiety, panic attacks, depression, or just life?
I'm guessing it's life!
Just had to sound off about it.
Thanks for any input...
Interesting stuff there, one thing that I have found after having siezures for over twenty years is that it seems like there are lot of "false auras" (kind of like false alarms)..This happens to me generally when I have not had a siezure for a long time and am tired. Many times I tend to write the nervous ness, fake auras, etc off as being my own little parinoia thinking I am going to have a siezure.."I will demand (not tell) myself to stop thinking about it and move on"...moments later I am ok, and realize that it was all just what I call, "nonsense noise"...
IMNRVUS
01-27-2007, 08:58 PM
Bilbostuff1961:
The one good thing with the seizures I have...
Only the auras in the daytime... never leading to a gran mal.
And only GM's at night while I'm sleeping... usually caused by breathing problems... which are being taken care of.
The one good thing with the seizures I have...
Only the auras in the daytime... never leading to a gran mal.
And only GM's at night while I'm sleeping... usually caused by breathing problems... which are being taken care of.