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View Full Version : PET (Patulous Eustachian Tube) & LPR


 

 

 
winterj
01-18-2007, 01:38 PM
Any PET-people have LPR? Sounds like there may be a correlation...

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lib
01-18-2007, 09:28 PM
dr poe will agree 100% on that. could be the cause as it erodes the tissues around the e tube, dr poe taught me that!

Remmy
01-20-2007, 12:28 PM
Yes, that is true. I was told the same thing by Dr. Kujawski in Geneve. He is a colleague of Dr. Poe and they share the same approach in diagnosing tubal disfunctions and in curing them (expecially PET).

In my case, LPR is the relevant cause of my PET, so Dr. Kujawski gave me a protonic pump blocker (omperazolo) in order to control acidity, and a corticosteroid nose spray which should help the tissue of my tubes to heal.

Bye

Remmy

winterj
06-29-2007, 09:07 AM
Yes, that is true. I was told the same thing by Dr. Kujawski in Geneve. He is a colleague of Dr. Poe and they share the same approach in diagnosing tubal disfunctions and in curing them (expecially PET).

In my case, LPR is the relevant cause of my PET, so Dr. Kujawski gave me a protonic pump blocker (omperazolo) in order to control acidity, and a corticosteroid nose spray which should help the tissue of my tubes to heal.

Bye

Remmy

Remmy - how did your doctor diagnose your LPR?

Remmy
07-01-2007, 05:21 AM
Hi Winterj.

Dr. Kujawski diagnosed LPR by a rinoscopy.
The back of my nose and the tissue around my tubes were red and bulging.

Bye

Remmy.

P.S.: Why don't you join us here on another thread about PET (it is on HB anyway)?

http://www.healthboards.com/boards/showthread.php?t=475298&page=35

winterj
07-02-2007, 05:21 PM
Remmy - what type of doctor was he?

I'm on the other thread too, but not sure where to find answers.

Hi Winterj.

Dr. Kujawski diagnosed LPR by a rinoscopy.
The back of my nose and the tissue around my tubes were red and bulging.

Bye

Remmy.

P.S.: Why don't you join us here on another thread about PET (it is on HB anyway)?

http://www.healthboards.com/boards/showthread.php?t=475298&page=35

Remmy
07-03-2007, 06:40 AM
Dr. Kujawski is an ENT.

Bye

Remmy.

winterj
07-03-2007, 09:19 AM
Remmy, thanks for writing back. I'm not sure if I already had a rhinoscopy w/ Dr. Poe. He stuck the tube up my nose, and back to my ears I think. I didn't pay close attention because I am very squeamish. He just told me to get my LPR checked out by a local doctor, but I'm not sure which doctor to talk to here and what he should do. Have you also had an endoscopy?

Dr. Kujawski is an ENT.

Bye

Remmy.

mazomatic_r
07-04-2007, 04:22 AM
Hi Remmy,

did the corticosteroid nose spray help you with your symptoms ? I had an injection in the lining of my right e-tube a few months ago, but it didnīt help. They thought I have PET, but I it seems I have a different problem. I think my eustachian-tube isnīt blocked or patulous, itīs just not working correctly...
I donīt have authophony, more pressure,pressure-changes and popping sounds.

One ENT I visited also said that my mucosa looks red and defected.
I also thought about visiting Dr-Kujawski, but I am afraid about flying, because of my pressure-sensibility...

mazomatic

byron2k
07-08-2007, 11:30 AM
Hello,

I suffer from a sensation of fullness in the right ear since three years. I have a slight hearing impairment in the depth-tone range and "super-human" hearing capabilities in the high-tone range. Due to the fullness in the right ear I find it hard to concentrate myself for a longer period of time. Recently I nearly gave up for any hope for relief after finishing another long-term medical treatment without significant improvement. Among other things, I took Xylometazolin, two different Cortisone sprays, an Anti-Histamine spray, as well as different anti-allergic medicines and medicine against chronic middle ear inflammation (in different medical treamtnets). I visited five different doctors. They have all diagnosed different dysfunctions: PET, obstracted ET, middle-ear inflammation due to allergy, or no problem at all. For the record. I am a 21 year old man, weighing 83 kg with a body height of 1,95m.

I decided to visit a ET specialist before giving up and trying to tolerate my symptoms. Therefore, I traveled from Germany to Geneve, Switzerland to visit Dr. Kujawski. This initial visit nearly took two hours, although I have been the only patient during this time. Dr. Kujawski asked me a lot of detailed question about my history of ENT problems and my health in general, especially in regard to other ENT-related fields (like the gastrointestinal tract). To cut a long story short: He diagnosed a rather severe form of Blind Acid Reflux after examing my larynx (I hope that's the right term). Dr. Kujawski also performed a nasal endoscopy and told me, that my ET is in a transition phase, changing from an obstructed tube to PET. (By the way: I felt absolutely no discomfort during this endoscopy.) He also saw scars which originated in a adenoids removal performed more that ten years ago. A hearing test showed those results which I described at the beginning. Dr. Kujawski told me that I might suffer from Hyperaccusis in the future.

Unfortunately, he seemed rather sceptical regarding the possibility of reversing the damage in my ET region. We just have to see. Dr. Kujawski explained to me that it is necessary to treat the Reflux immediately and pointed out that it is a high risk-factor for cancer. We have started a conservative treatment which basically consits of a change in lifestyle as well as taking Omeprazol for (several) years. Among other things, I have to avoid alcohol, cigarettes, caffeine, beverages with gas, chocolate and eating two hours before going to bed. Up to now, it was rather easy for me to change my eating habits since I am very terrified by the risk of cancer. The only problematic aspect is the need for reducing stress. By the way: Dr. Kujawski pointed out a (very strong) correlation between Reflux and being perfectionist and rather nervous. After leaving his practice I was speechless because of all those interconnections he explained to me.

My next appointment is in three months. I had slight adverse side-effects at the beginng of the medical treatment. Fortunately, those side-effects seemed to vanished completely within a few days. Currently, I experience no side-effects at all. I hope this has been of some interest to other board members. Please do not hesitate to ask any question I might be able to answer. I wonder whether there are other board members with an ET tube that is in a transition phase. Do you have any experience in this regard?

Sebastian

Remmy
07-09-2007, 06:50 AM
Dear friend.

I too was diagnosed with BLIND ACID REFLUX by Dr. kujawski. In my case, my ET's had already been damaged by acid, to the point that my right one is slightly patolous. The real problem here in Italy is that no General Practitioner or ENT I've consulted, is aware of this relationship between ACID REFLUX and PET, so I have to buy myself the medicines, which cost relly too much.

I'm waiting figure out what to do.

Also in my case, Dr. Kujawski was very careful and spent much much time with me.
Bye

Remmy.

Remmy
07-09-2007, 06:57 AM
Hi Remmy,

did the corticosteroid nose spray help you with your symptoms ? I had an injection in the lining of my right e-tube a few months ago, but it didn´t help. They thought I have PET, but I it seems I have a different problem. I think my eustachian-tube isn´t blocked or patulous, it´s just not working correctly...
I don´t have authophony, more pressure,pressure-changes and popping sounds.

One ENT I visited also said that my mucosa looks red and defected.
I also thought about visiting Dr-Kujawski, but I am afraid about flying, because of my pressure-sensibility...

mazomatic

Hi Mazomatic.

Where are you from? Could you go and see Kujawski by train?

If your ET status is so controversal, then Kujawski is the only chance to figure out.

The corticosteroid spray + anti acid are aimed to prevent PET from worsening!!! Dr. Kujawski told me that symptoms are not likely to go away totally!!! Anyway, it is VERY VERY important keeping PET and reflux under control. Symptoms may be reduced, but they may not disappear.

Bye
Remmy.

winterj
07-10-2007, 10:24 AM
Remmy - I had the eustachian tube, nasal, and laryngeal fiberoptic endoscopy with Dr. Poe, and he diagnosed me with LPR...now trying to find a local doctor to treat me for it.

Remmy
07-11-2007, 06:25 AM
Remmy - I had the eustachian tube, nasal, and laryngeal fiberoptic endoscopy with Dr. Poe, and he diagnosed me with LPR...now trying to find a local doctor to treat me for it.

Hi Winterj.

Please, let me know if you are able to find a doctor that undesrtands the problem, accepts the diagnosis and is available to cure you.

Bye

Remmy.

winterj
07-11-2007, 12:24 PM
I have found a doctor for LPR, and ironically he is in the same group of doctors as one that I have already been to. In fact, the doctor that I already saw was one of the ENTs who told me nothing was wrong w/ my ears (pre-PET diagnosis). Go figure that he and his partners are familiar w/ LPR.

mazomatic_r
07-12-2007, 07:38 AM
Hi Remmy,

maybe I go and see Dr.Kujawski. But it seems that he doesnīt have a real solution either. Did he mention any other Possibilities for your case ? Maybe I try to find a doctor here in Germany to see if I have LPR. But this also seems hard to be diagnosed correctly...

mazomatic

Hi Mazomatic.

Where are you from? Could you go and see Kujawski by train?

If your ET status is so controversal, then Kujawski is the only chance to figure out.

The corticosteroid spray + anti acid are aimed to prevent PET from worsening!!! Dr. Kujawski told me that symptoms are not likely to go away totally!!! Anyway, it is VERY VERY important keeping PET and reflux under control. Symptoms may be reduced, but they may not disappear.

Bye
Remmy.

mazomatic_r
07-12-2007, 07:45 AM
Hi Sebastian,

have you found a doctor for LPR in Germany ? I would be very interested, because I am from Germany, too...

Viele Grüße,
mazomatic

winterj
07-12-2007, 10:22 AM
Mazomatic - Dr. Poe diagnosed me with LPR with a Eustachian tube, nasal, and laryngeal fiberoptic endoscopy.





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