amidabuda
01-20-2007, 10:20 AM
hi everyone,
it seem to me that a lot of nice and clever people are visiting this site so i wanted to know if the heart necrosia is heredetary?
we always had our jokes with my gran how common simpthoms we had. i am with low bp like for ever normaly 60/100 but sometimes 50/90. going to normal levels of 120 is killing me. always had low iron levels, looking yellow, alway tired and feeling as i am sleeping. just like when you hear the alarm clock in the morning, know that you have to get up but still try to open your eyes and pull yourself together. only that i feel like that all day long, every day. i have very high levels of phosphoros though. just like her.
so until recently i thought that is the way i am. but now my granny died and they said she had very bad heart necrosia. her heart muscule was 80 % dead and nobody can imagine how she lived the age she was. then my mum told me my gran has been diagnosed with that by the age of 25 and they werent giving her even 15 years to live. but she did live to 86. i guess the fresh air, healthy food and work kept her going. but now i am freaking out that the same is may be happening to me. the docs say i am too young (32) but they dont bother to do some check up either to put my mind in rest.
is it possible i have it or i have been just stuppid?
thank you.
it seem to me that a lot of nice and clever people are visiting this site so i wanted to know if the heart necrosia is heredetary?
we always had our jokes with my gran how common simpthoms we had. i am with low bp like for ever normaly 60/100 but sometimes 50/90. going to normal levels of 120 is killing me. always had low iron levels, looking yellow, alway tired and feeling as i am sleeping. just like when you hear the alarm clock in the morning, know that you have to get up but still try to open your eyes and pull yourself together. only that i feel like that all day long, every day. i have very high levels of phosphoros though. just like her.
so until recently i thought that is the way i am. but now my granny died and they said she had very bad heart necrosia. her heart muscule was 80 % dead and nobody can imagine how she lived the age she was. then my mum told me my gran has been diagnosed with that by the age of 25 and they werent giving her even 15 years to live. but she did live to 86. i guess the fresh air, healthy food and work kept her going. but now i am freaking out that the same is may be happening to me. the docs say i am too young (32) but they dont bother to do some check up either to put my mind in rest.
is it possible i have it or i have been just stuppid?
thank you.
Sponsor
scottie67
01-25-2007, 05:25 AM
i think ive never heard of it, and seemingly nobody here has, why dont you post it in the "rare diseases"?
Lenin
01-25-2007, 10:40 AM
I think "heart necrosia" <heart death> might be an ancient terminology for what we now call heart failure or cardiomyopathy.
It's not used any more.
It's not hereditary...other than in the sense that familial heart disease predisposes descendants to higher risk.
It's not used any more.
It's not hereditary...other than in the sense that familial heart disease predisposes descendants to higher risk.
started04
01-25-2007, 12:46 PM
To add what Lenin has stated. It is very likely your gran had silent MI's (heart attacks) over a period of time. With ischemia (blocked blood supply) to the heart can cause necrosis of heart tissue.
There is a medical statistic that estimates there are about 25% of the heart-disorder population who do not know they have had an MI. Your gran may have had a heart muscle necrosis in areas of the the heart that was not in a vital area, the system compensated and gradually reduced and diminished functionality. This would be ischemia related necrosis due to diminished blood supply and is not directly related to familial history, but a propensity for coronary disease can be inherited.
If there is a heart MUSCLE disease that damages heart cells and tissues, the longevity will also depend on the area of negrosis and successful compensation for a period of time as the heart muscle can retain some strength in contractions and relaxtion is not effected. A heart muscle disease can be inherited.
You defininately should get a medical exam based on family history and your symptoms.
Just curious, how was your gran's heart necrosis learned?
There is a medical statistic that estimates there are about 25% of the heart-disorder population who do not know they have had an MI. Your gran may have had a heart muscle necrosis in areas of the the heart that was not in a vital area, the system compensated and gradually reduced and diminished functionality. This would be ischemia related necrosis due to diminished blood supply and is not directly related to familial history, but a propensity for coronary disease can be inherited.
If there is a heart MUSCLE disease that damages heart cells and tissues, the longevity will also depend on the area of negrosis and successful compensation for a period of time as the heart muscle can retain some strength in contractions and relaxtion is not effected. A heart muscle disease can be inherited.
You defininately should get a medical exam based on family history and your symptoms.
Just curious, how was your gran's heart necrosis learned?
amidabuda
01-27-2007, 06:42 PM
thank you all,
i dont know much as it was new to me. i know that all the time i knew her she was taking pills for her "blood presure" but it was so low, she has been told she can never wake up in the morning. she has been diagnosed with a "week heart" when she was young, and now when they could cut her open they say her heart has grown HUGE, 80% of the muscule tussue was practicly dead and her lungs full with fluid. it must have been horrible and slow to die this way. she would never admit it when she wasnt feeling well. and until the las week of her life she was trying to do gardening and work around the house. sooo stubborn woman!
i was thinking that as it took so long time obviously it can not be detected on the early stages, and how can you help if your cells just die? so, undetectable and uncurable... i am in quite freaked state of mind..
i dont know much as it was new to me. i know that all the time i knew her she was taking pills for her "blood presure" but it was so low, she has been told she can never wake up in the morning. she has been diagnosed with a "week heart" when she was young, and now when they could cut her open they say her heart has grown HUGE, 80% of the muscule tussue was practicly dead and her lungs full with fluid. it must have been horrible and slow to die this way. she would never admit it when she wasnt feeling well. and until the las week of her life she was trying to do gardening and work around the house. sooo stubborn woman!
i was thinking that as it took so long time obviously it can not be detected on the early stages, and how can you help if your cells just die? so, undetectable and uncurable... i am in quite freaked state of mind..
Lenin
01-28-2007, 10:10 AM
That's the way my mother died too.
She went in for a checkup around age 60 and the doctor asked her "when did you have your heart attack." This was the first she heard of it. It was the beginning of a slow debilitating process that ended years later when she died of her second heart attck.
An AWFUL way to spend 18 years...especially the last 3.
I will not tolerate such a disease progression for myself.
She went in for a checkup around age 60 and the doctor asked her "when did you have your heart attack." This was the first she heard of it. It was the beginning of a slow debilitating process that ended years later when she died of her second heart attck.
An AWFUL way to spend 18 years...especially the last 3.
I will not tolerate such a disease progression for myself.
started04
01-28-2007, 05:24 PM
was thinking that as it took so long time obviously it can not be detected on the early stages, and how can you help if your cells just die? so, undetectable and uncurable... i am in quite freaked state of mind..
It may have been 80% of blood remained in the chamber after each heart beat. Better said there was a 20% (EF) efficiency fraction meaning only 20% was pumped out with each heartbeat. Normal EF is 55 to 75% and below 29% is heart failure. Your gran was able to function well with heart failure as other parts of the body compensate. I functioned well with an EF below 29% until I went to emergency with congested (edema) heart failure. I was told I had had a heart attack sometime in the past (I was shocked!!). I never had any symptoms or a warning.
The problem is usually detected before heart muscle damage. The symptoms would be shortness of breath, fast heart rate, muscle fatigue, tests to learn of an enlarged heart, and angina (pain due to insufficient of blood to the heart muscle). Sometimes there is no pain and the other symptoms are ignored with a belief as a one gets older that should be the expectation.
The cells die when there is insufficient supply of blood/oxygen, it can be gradual, and if severe of the moment there is a heart attack (MI) and muscle die, but sometimes the cells/tissue is stunned and can be brought back with treatment. If there were muscle disease, there should be symptoms before a major tissue damage.
The last week, the heart reached a point where it was failing to pump out as much as it was receiving and this imbalance caused the blood to back up in the lungs and fluid from the blood leaked out causing edema (heart enlargement now a factor for CHF and no longer compensating). I was 4 days in ICU, and there isn't any pain. Given meds to rid the fluids, stented a blockage and it took a couple of days to get the correct balance of oxygen/carbon dioxide with a breathing tube.
They cut her open after death? Wasn't she under a doctor's care for a weak heart?
It may have been 80% of blood remained in the chamber after each heart beat. Better said there was a 20% (EF) efficiency fraction meaning only 20% was pumped out with each heartbeat. Normal EF is 55 to 75% and below 29% is heart failure. Your gran was able to function well with heart failure as other parts of the body compensate. I functioned well with an EF below 29% until I went to emergency with congested (edema) heart failure. I was told I had had a heart attack sometime in the past (I was shocked!!). I never had any symptoms or a warning.
The problem is usually detected before heart muscle damage. The symptoms would be shortness of breath, fast heart rate, muscle fatigue, tests to learn of an enlarged heart, and angina (pain due to insufficient of blood to the heart muscle). Sometimes there is no pain and the other symptoms are ignored with a belief as a one gets older that should be the expectation.
The cells die when there is insufficient supply of blood/oxygen, it can be gradual, and if severe of the moment there is a heart attack (MI) and muscle die, but sometimes the cells/tissue is stunned and can be brought back with treatment. If there were muscle disease, there should be symptoms before a major tissue damage.
The last week, the heart reached a point where it was failing to pump out as much as it was receiving and this imbalance caused the blood to back up in the lungs and fluid from the blood leaked out causing edema (heart enlargement now a factor for CHF and no longer compensating). I was 4 days in ICU, and there isn't any pain. Given meds to rid the fluids, stented a blockage and it took a couple of days to get the correct balance of oxygen/carbon dioxide with a breathing tube.
They cut her open after death? Wasn't she under a doctor's care for a weak heart?