Warmest Greetings Fibro Family,

After much thought I have decided to come clean. Giggle. I am having a rough go. So many medical things to attend to. Bless fibro for taking a back seat for now. Today we do the procedure and go in my bladder looking for that wee growth. If small enough it comes out today. If not, surgery.
Tomorrow is my first trip to the nose doc. I have a lesion in my nose that has not healed in 2 months. Another biopsy. No doubt lupus related, says family doc. I agree.
Monday next it is the mamo time of year. No big deal. Squish!! Tuesday the ortho. The shots in my knees did not work and the pain is incredible. Both knees. How I miss dancing. I miss it ever so much. Breath and let go.
Yesterday as I drove home from the dentist and prepared to see the eye doc later I was hit by the reality that I must once again downsize my personal verison of joy. Say good bye to 2 hours of total abandon in dance. I will be filled with joy when I can dance one full dance. It is my new goal. A reasonable one I can attain.
No more squatting meditation. That is a hard one to say good bye to. The stretch was so good for me and the places I reached within very peaceful.
So many changes to adapt to. I cried a bit. Mourning the loss of another aspect of my joy.
Today is good. Yesterday I knew I could do it. Today I am.
For those of you I dance for, know that within my imagination all things are possible. It is there I dance with my body perfect.
Peace,
bluelakelady
ps. While I go thru the next two weeks I would appreciate the opportunity to lean on my favorite rock, you. i find myself gazing back with fondness on the days when i only had fibro to cope with. how life changes.

Blue I am here for you, lean on me all you want. I know how it is to have so many little annoying things popping up all at once. You can do it though! I have been dancing with you in my imagination for a long time. We will dance together in our imaginary worlds and bring new joy to ourselves and everyone who needs it.

I know it is hard to give up something you love so much but it is only a restriction of physical movement that will stop for a while. Nothing can stop the movement of your mind.

I'm sorry the knees are giving you such pain, I will send my orange blanket that golden made me to wrap your knees and keep them warm. The blanket has magic healing powers.

I will be thinking of you today and hoping for the best results, just a quick pinch and the wee little growth will be gone. I will also have a serious talk with your fibro and make sure it keeps its distance while you go through these next few weeks of bits and bobs. I am here for you, it is my turn to support you for a change.

Glojer

Dearest Friend, i am so proud that after the rock you have been for me and so many of us i get to do the same for you. i shouldn't tell you this but reading your post made me cry. that is how powerful you are to me.
i have this image of you in my head dancing in the moonlight by the lake with a long flowy dress by a forest.
i am glad that you told us about the other things that you are going thru.
i know how tough you are and i know that you will get through all this and be able to dance again. for now just close your beautiful eyes and dance.
think of the moon and the stars.
i know everything will be fine and please let us know.
i will be thinking about you and know that i am here for you.
luv always,
robin:angel:

Blue my bud,

Sorry all this is happening to you, you will be in my thoughts and my prayers. Please keep us posted as to what is going on. You are so important on this board and always there for everyone.

My friend you can soar like a eagle and dance on the clouds in your imagination. I see you dancing with a bright sheer red scarf around your neck flowing behind you in the gentle breeze.

All will be well.

Love and Huggie Buggies, Linda

gee girls, ya make this water baby cry. thank you so much. the test today was okay. sore a bit. the polyp burst when the doc tried to remove it so no tissue to biopsy. on septra for the life of my bladder.
i have many long flowing dresses and i do own a very red, very sheer, scarf. how did you kids know? giggle. i love dancing in the moonlight. soft gentle swirling steps.
may we all soar like eagles and dance with the moon.
i have wrapped your orange blanket about me, along with mine. how blessed we are to have each other.
love,
blue
ps. did you know they make a pain killer just for the bladder? amazing!!

can you not dance at all, because i know aerobics helps me alot. excercise is real important and good for us. have you tried, of course it also depends on what kind of dance you do.

morning kids,
thanks for you comment tired. i still exercise. walking and stretches. i also belong to a health center in my local hospital. during the summer i kayak and swim. dance is an expression of art and as such i will miss that. i dance salsa, waltz, jazz, modern, pretty much anything except tapping.
i also paint and carve and bake so expression of art has other forms. they all gift me with joy.
i will dance again, just not for as long. i am proud of you for staying active. it is vital to a healthy body and a sane mind.
i was a good girl yesterday and rested all day. today i go for the biopsy of the lesion in my nose. bless my friend who drives me. who would have thought there were men like that? not me. good to be wrong. giggle.
wish me luck, and the doc a steady hand and a sharp insturment.
peace, love and gratitude,
blue
ps. had a few tears drip down this morning. sad like a close friend has moved away and i won't see her again. not bummer depression stuff. just that sad feeling knowing i will miss her. bye bye, thanks for being my friend for so long. tiny tears.

Hi Blue,

I would be one nervous wreck, this dd has caused me so much anxiety it is unreal. So glad you can stay calm. We are all going with you to the Dr. will be holding onto your shoulders, just lean back, relax and feel us there.

Dance in your heart and mind and sing a lovely song because all is well my friend.

My first post on this thread I only read your post, was in a hurry but now that I read the entire post I see my post was so much like Robin's. You know what they say Robin "great minds think alike". It sounds like I repeated your post.

I will praying for you and the surgeons hand as he does the procedure.

Soar up into those billowy clouds and rest, take a few days and pamper yourself with your imagination and your love for the universe.

Please let us know how you are, even though I know everything will turn out fine. I would not try to blow my nose for a few days, lol.

Love and huggie buggies, Linda

hi kids,
linda, you made me laugh, thank you. i won't be blowing my nose for sure. giggle. my friend says they are going to cut my nose off today. keeps me laughing at it all.
i was just telling my brother about all of the kind words each of you has expressed to me. i am so honored to be counted as your friend. i had not realized how you see me. deeply my heart is touched by your words.
love,
blue

And you my friend,

have see me through the passing of Tommy and have helped me to find the peace I so needed. I know not where I could have found this peace, I think we are on this board together for more than Fm, with glojer, golden and and our other friends. We have a bound that wraps us together in that orange blanket.

We all have had so many trials in the last year with family and ourselves but we all triumphed because of each others words, love and prayers.

Your words are always of comfort and encouragement.We laugh together and cry together and that is special. I have been missing golden or am I just not seeing her post? Also missing movin slo and billiej.

No baking or doing the rhumba for a week, take the time to heal and let your imagination do the work.

DON'T BLOW YOUR NOSE!!!!!! REST!!!!! RELAX!!!!!
these are orders

Love, Linda

hi linda,
thank you. perhaps the girls will pop in. one never knows. we know they are there and that's what counts.
my friend tells me friend hawk comes every morning to visit. yesterday he was there and his friends greeted me along the drive. two huge male red tails. i asked if he said anything. my friend says he gently said good morning.
i like knowing he is there. he is peace.
we do help each other thru more than fibro. it is connected to all we experience and to not share the other aspects of life would be to leave each other with only a glimps of ourselves. the whole story shares the whole person. no one said life would be easy, just interesting. with friends such as you all life is easy, fun and fulfilling. again i thank the person who thought of this sanctuary we all call the boards and the people who watch over.
time to shower and get ready for that last nose blow till later. giggle.
love,
blue
life is so trippy.

me again,
doc went well. he cauterized my boo boo and if not healed we will discuss biopsy in two weeks. he says he sees no indication of cancer. we like that.
time to rest. my nose hurts. i can blow it tho, giggle. honk honk!
love you all,
blue

Hello Blue, my friend, I'm so thankful things are looking much better for you.
There will always be a few rocky roads on our journey...we may stumble
a little, but that's okay because folks like you will kick them out of the
way or find a path around them. You have a gift of helping the rest of us
see more clearly when things get rocky.
As a young lady, I loved to dance, but at 76 I'm not as agile as I once was...
so you taught me to dance to different music. I close my eyes, relax and
the sweet melodies flow through my mind and soul.
We all love you so much.....thank you for sharing yourself with us.
Your Alabama friend,
Bilij

warmest greeting bilij,
i knew you were tippy toeing about here. thank you for your kind words. so all those rocks in the path of life were for stumbling over? gee, i thought they were for skipping across the lake. giggle. my skip is much prettier than my stumble.
shall we leap lightly over them all and dance? yes and yes.
tee hee, my nose itches. for some reason picking my nose seems to be my hearts desire today. hee hee. i am resisting, one must be a lady at all costs.
slept all day and woke refreshed. brother may get a home cooked dinner after all. shrimp creole for spice and broccoli for health. garlic for clean blood and milk for my bones. giggle. i do love my spice. and my organic whole milk.
so delightful to hear your sweet voice. how are you feeling my dear friend?
love,
blue

Hi there,

Glad you are back and everything went well. Did they remove your nose? lol.Do your imaginary dance, rest and relax.

I still do not think you should be honking that nose, lol.

Bilij, good to see you.

Love, Linda

warmest greetings,
may we all have a peace filled weekend. today is mine. no doctors, yeehaa! giggle.
baking cookies today for all the men in my life. i love to watch them beg, tee hee. they say there is something about my cookies that melts them with joy. who knew oatmeal could do that?
my wee nose is sore. no smaller tho. good thing since i have a small slightly turned up nose. my friend calls it a faery nose. actually he calls me tinkerbell.
when i am in the fibor fog he calls me gracey. as in george burns and gracey allen. i always make sense in the end. it is the journey there that is confusing, tee hee.
doc said i could blow and honk. just no picking. yuck!! hello? gross.
i am off to the mountain today and will return sunday. come away with me all of you. we will send fibro deep within the lake so that all we feel is a reflection, an echo. we can soar with the red tail and bald eagle. we can step off the mountains edge and dance on the morning fog that rises from the lake and rolls in from the ocean smelling of salt.
love, peace, joy,
blue
ps my son says my cookies, if shared, would bring about world peace. he is so cute.

Good morning Blue,

Oatmeal cookies, be still my taste buds, do they have raisens in? I love them. You know the old saying the way to a man's heart is through his stomach. I told you no baking you were to sit and relax. Can't keep a good woman down.

Hope the soreness goes away quickly, remember not to pick, lol.

Have a great time at the lake. You are more than welcome to take my fm and all my aches and pains and throw them in the lake, I really would appreciate that.

Wrap yourself in our orange healing blanket and dance in your heart.

Hugs, Linda

hi linda,
rasins, cranberries, chocolate chips, cinnamon and extra vanilla.
want some?? giggle. wish i could send you a cyber cookie. staying active counts. you know that. if i sit any longer i will turn into a statue.
i will take your fibro and your aches and pains with me this afternoon. tonight when the stars glisten and the lake is black as ink except where the moon reflects i will roll them down the mountain into the shimmering black depths.
mountainous hugs,
blue

hey there linda, you are so funny. great minds do think alike.
i am glad that we can all be here for each other because having fibro is tough enough as it is.
hope all is well and best wishes my sisters from another mother.
robin

Hi gang! Just dropping in real quick to catch up on blues 'owies'. Oh blue the nose thing is so gross, I am glad all is well. I guess you have a good report on both ends....huh!

I will be thinking of everyone lots to do this weekend and all next week. As they say no rest for the wicked, and I must be really wicked cause I can't seem to catch a free day lately.

Bilij so glad to hear from you I think of you often and wonder how you are doing. I hope golden survived the big blow they had across the pond. I will catch you all later.

Glojer

Hey Glojer,

Glad to see you are here. How is your hubby? How are you?

I have rib pain and neck, I swear there is not a rib that does not have a sore spot from the bottom to top, front and back.

Blue is suppose to be throwing our pain into that lake, well she better hurry up. I bet she is stting there with a basket of oatmeal cookies, basking in the sun and dancing on the clouds. Hope she is not picking her nose.

Hugs, Linda

Hi Bluelakelady,
I was so touched by your post. What an encouragement you were to me! I hope you are feeling better with all that's going on. Thank you for what you put in your post about "joy"...I can't tell you enough how your outlook helped me change mine. I have had Lupus for 10 years and this past week have been dx with fibro...I am a 38 year old wife and mom to five kids and have always looked at life with a positive attitude. I attribute this to my upbringing and my faith...God is my rock!!!!!! Once again your post really touched me so much....thank you, thank you, thank you. You have a wonderful outlook and that is a gift to all the members on this profile. So, I wanted to say "thank you for the gift you gave me". Isn't it funny, two strangers who don't know one another and yet giving someone something money can not buy. When you stop and think about it, it really is amazing! You are in my thoughts and prayers as you continue to recover and go through some more procedures!
Yours truly,
Lisa

welcome lisa,
good to have a new sister to add to our family. joy is a state of mind we control. we decide.
hiya girls. being good and not picking my nose, giggle. yea, both ends are good to go for another 50 years, ha!
after tuesday my life is mine again for a bit, i think. i am joining the health program at my nearby hospital where i had all my physical therapy done. only two weeks without therapy and i can feel it.
will know tuesday how far and hard i can push these old knees and what the lump is. i am soooo glad i lost weight. talk about timing!! i cannot imagine 190 and these knees getting along at all!
eating cookies, sitting in the sun, holding hands with my friend and keeping his paws off the cookies. he says my cookies could end world hunger and bring about world peace. giggle. my son says the same thing. my neighbor traded me cookies for mexican food. yea.
hands are pooped out. will check in later. thank you all so very much for being here and being so cool. i threw the little buggars in and they laughed at me. i hear them creeping around me. sneaky little fibrosnots. a hot bubble bath tonight will fix them.
tomorrow is an easy squeezy, pun intended. mamo and dentist. it means a long day in the car. about 2 hours of driving. country living.
love,
blue

hi, me again.
mamo went fine, squish. on film they look full and pretty like they used to be. giggle. today is knee doc day. there are now three lumps. two more in just the last day or two. makes me wonder if the cocks comb they injected has found its way out or what? will know soon. they are bothersome. no, they are actually quite painful. poor wee knees.
may you all have a day of forgetting where you put your illnesses.
peace and love from the comfort of goldens orange blanket. with the two she gifted me with i am warm and cozy without a worry in the world. come join me. everything already is what it is so worry is wasted precious energy i need to drive about 100 miles today. off to the dentist later. i sure hope they have my new smile ready for me.
love,
blue

Boy Blue,

You really are getting a workout, everything is getting checked. when is your pap smear??? lol. You had your mammo and I started with the deep breast pain and tightning about an hour ago. Wrap me in that orange blanket or bra with you. yesterday was a good day pain wise.

Good luck at the Dr. and the dentist. May is my busy month, pap, mammo, carotid artery and echo and anything else my Dr. can think of, she has got a million ideas for testing. I hate to tell her what hurts because it off for another test.

I did not go for my nuclear stress test, I know too many people that had it done amd walked away feeling everything is okay and than a problem. cliff had one done before both heart attacks and passed, a g-friend had one done, passed ended up with a cath and is 95% blocked in all arteries. Cliff said there are two men in rehab with him, the one had the test done, passed and two weeks later had an attack and four by-passes the other got a stress as part of his yearly physical, passed everytime and had an attack and has three stents. I did talk to my husband's cardio about the test and he said it is not a good test but the best they have right now. But did say if your ejection fraction is good you could still have some blockage but it is not bad.

Have fun, entertain all those Drs. 100 miles to see a dentist, bet you wish you were an eagle so you could soar.

Lots of luck, love and lollipops.

Linda

hi linda,
no pap smear. no reproductive organs to check out. little blessings. sometimes it would be nice to be an eagle and glide to each destination. such is life. between the trip to lakeport to see the knee doc and the trip to potter valley to see the dentist my car and i stay busy, busy.
why were you going to have the test done? peace of mind or a worry?
how is your handsome man doing?
what's a bra?????? vague memories. come snuggle with me under the blanket anytime. it is big and so warm. it is rough when your breasts hurt. can't exactly grab them and hold them when they hurt. at least not in public, giggle.
time to fly off now. will check in later.
love,
blue

I don't wear a bra either either but thought there might be an oange bra for the pain days. Actually do not need a bra.

Oh my Dr. is test happy, last time I was there I had such soreness in the upper chest and along the edges
of the sternum, been getting this for years, had ekg's done several times when it was bad, bloodwork etc, everything came back fine. she said she was sure this was not cardiac pain, but lets make sure. I told her it hurts with palpatation, movement ad even a hot gel pack makes it hurt worse, but helps after awhile. This soreness just happens I do not have to do anything exertive to bring it on. I even read n another site that a DR. answers ? and he said noone needs to have a stress done unless they are experiencing cardio pain and shortness of breath.I get te echo every year for mitral regurg, that is mild.

Plus my Dr said when you are on medicare they pay for tests no ? asked but ins. want ??? after ??? answred. If I tell her my toe hurts she wants a xray, not kidding.

I have an idea to save you the trip to the dentist, get them all yanked out, get dentures and than you can send them in for repairs.

Love, Linda

linda, you are so funny. i had my uppers out over 3 years ago. and have a partial on the bottom. i am a fabricated woman. it is my new smile i go for today that is to allign my poor disintigrating jaw and we hope ease pain so i can eat and enjoy the experience.
just got home from the bone doc. more tests. bone density on both knees and an mri of my neck. x-rays show no curve in my spine where it oughta be.
she asked me to do research on knee replacment. something to think on and check into. more to absorb. so much for my carefree month of feb. still it is necessary for my peace of mind. gotta know how far i can push this old cart without making matters worse. giggle.
okay, i am going to victoria's to get us an orange bra. one of those soft ones for sleeping in.
i have the same chest pains you are describing. i attribute mine to a flare up of cronic myofacial pain. no shortness of breath either. do you have cmp? i forget. we all have so many goodies, giggle.
as for who pays for our healthcare? we all do. anyone who ever paid in or does now. i bet you tell her no alot.
time to eat and get ready to see my new smile. i do love to smile. my dentist special designed mine to show my upper gums and they look real. he did not want me to stop smiling. i haven't. won't either. too many reasons to smile.
love,
blue

I sure do have cmp, not chocolate, marshmellow and peanut sundaes, the pain kind. I was first dxed with the cmp and a year later with fm, also been told I have costo and when I was in therapy the therapist was sure I had thorastic outlet syndrome never pursed the issue to find out. I have a lot of cervical problems also, nerve compression, loss of the natural curve, like you, and arthritis and bone spurs, the thorastic spine is the same way except for nerve compession

Well my boob stoped now I have a knot under it, gees.

Huggie, buggies, Linda

I hope you are all feeling better! How did the dentist go blue? Light up that smile! You sound like braveman, so many doc visits just to be sure everything is still working the way it should. Better safe than sorry, we need you here so keep up with the repair work.

Linda you hang in there with the doc same goes for you, better safe than sorry. All those tests may be annoying but they could also help to prevent a more serious issue.

I have been kind of busy lately and I have tried to get here and see how everyone was doing. The best layed plans you know how that goes. It seems either there isn't any time or the computer isn't working when I do have the time.

Just dropping in for a minute my daughter will be calling soon, I had to give her a lift tonight and she will need me to pick her up. I know she won't, she has better will power than me but maybe she will want to stop for dessert this evening. I know it won't be blues cookies but we can't have everything! You all take care I will get back here as soon as I can. Wasn't it great to hear from TK! Catch you later. Oh, Linda you ask how braveman is doing. He is doing so much better than expected, he was taken off a medication he was taking for the last year and he has done surprisingly well since being taken off it. Makes you wonder how much is illness and how much is side effects from medication.

Glojer

hiya fam,
my smile it lit up with the knowledge braveman is healing. the dentist helped too. cartwheels for braveman, endless cartwheels!!!
okay, got my new smile. alot of stuff in my mouth to adapt to. for now i sound kinda like i did after my stroke, giggle! sort of a slurry sound here and there. my jaw is aware of the change in allignment. when it realizes it is back where it belongs it will relax, fingers crossed.
a wee flare is here. finally figured out fibro is messing with my elbow, good. better that than another goodie.
hearing from tk was very nice. funny, i was just thinking about a week ago how elmhar has sort of taken up the work of teekers when it comes to research and gifting all of us with what she learns. balance. besides it is time for teekers to lean on us. it is the least we can do.
today is bone density scan and exercises. i worked out for 45 minutes yesterday non stop. 18 minutes on the treadmill and 120 squats. can't do the bike or stair master thing. last night was a vision of hell. today is better. i really need some muscles back. how can i be Zena, Aging Warrior Goddess without them?? giggle. i have a friend who calls me that. i said it once as a joke and the concept stuck. every time i push myself hard.
yea glojer, alot of doctors. not to worry. this proactive fibromighty never stops. gotta help them buy all those pretties. there is more to this than just doctors. it is also about all the people i meet in these places of healing. some need a hug, others a smile, mostly they just want to be heard. i get their stories, their life. what better gift is there than sharing your memories. there are no strangers in my world, just friends i have not met yet.
be well my dear friends, be well.
peace, love, laughter till your tummy hurts,
blue

Well smiley I see you are on top of the world again. Oh to be like you, no worries, fears or doubts only a smile, dancing and a song in your heart. I am so envisous.

So glad to hear the good news about braveman, this is wonderful I hope he continues to improve.Glojer you must be doing an excellant nursing job.

Hey Blue can costo go on both sides or is this fm, the soreness above the breast area toward the shoulders, with all those spots you cannot touch?

After Cliff had his by-pass, my pain level was actually low, unless I dwell on the pain too much and do not realize I am dong this. I was doing more around the house and having to do things he did. Maybe I was too busy taking care of him to notice the pain. Cliff is getting the same type of pain now as I do in the breast and chest area, Dr. said it was muscles, nerves etc, from the surgery, definately not cardiac, last night he said to me now I know what you go through.I have read that some people get costo after by-pass, I hope he does not get it and is jst post surgical pain he already has post polio syndrome, nerve damage in his shoulder and herniated disc's in his neck.

Huggie, buggies to all, Linda

hi linda,
mine does. when it visits with combat boots on i feel it straight thru me and it fills up my upper body with pain rather intense enough that i don my lightest loosest clothing. even cotton brushing against my sternum/ribcage area catches my breath. and of course there is the breathing. much as it hurts you gotta go deep.
i am not so brave. i get sad each time i must gift away another aspect. worry fear and doubt are not my friends. they lie and decieve with their maybes and what ifs. they bring only pain. now honestly, do i need their help for that??? no. pain and i are old bedpartners. however, pain is getting older at a faster rate than i am and can be a pain, pun intended.
be well. i am heading up the mountain for the full moon cycle.
peace, love and butterfly kisses,
blue

Hi blue how are you doing? Just have a couple minutes but wanted to say Hi! I swear I had a reply on this thread not too long ago but I guess it didn't make it through that big internet space out there or something.

Life is moving along to fast for me right now and my fibrobrats don't want to keep up. Well to bad for them maybe they will get lost in my dust somewhere. That's a bit of a joke I am probably in slow motion compared to most people but I keep plugging away. Hope all is well for you I will check in soon, have new med I am trying for the joint pain will see how that works. Getting off one med for IBS and adding another for pain, gee sounds like I have fibro or something ...... giggle!

Hi Linda, catch you all later!

Glojer

hiya kids,
doing okay. just got a call from my bone docs secretary. he cancelled my appt thursday. reason is he wants more time to review my chart and the results of my bone scan and mri.
i told her that was fine, just tell him he better call me with the results anyway or i will find his house.
find myself saying, what the hey?? and, what now? oh well. whatever it is i can do it.
fibro and cmp visiting today. been awhile since we hung out together. guess they missed me. how sweet. giggle.
love,
blue

hiya kids,
after thinking on it over night i decide to keep that appt. and called the receptionist and told her. she asked me to call this a.m. at 9. i have decided to simply show up at my scheduled time 8:40. this is my body. we discuss, review and decide together. period. told her that. she is great. she stated that she would deliver my message as spoken. she will too.
he will get a lecture from me. what if i was a fragil person who was quick to leap to horrid conclusions? he knows i am not, however that is not the point. i was told i would have my results today and i am going to get them.
hope all of you are well. fibro is still visiting me. rain came. it is gone now. fibro stayed. missed me i guess.
love,
blue

That away, you go Blue, get that fm temper up and tell them exactly how you feel.

My Dr.is great she calls with results the day she gets them, well the nurse calls unless it is serious.

Does fm ever forget about us?

Will be waiting to hear your results and here is hoping it is good news.

Soar like a eagle my friend.

Love, Linda

thanks linda,
when i am displeased i speak very softly, very firmly, and with a look my mom gifted to me. my children and a few adults have said it is scary when i get that soft voice going.
just saw the time. i am off.
getting angry is out of the question. fibro would have a field day with that!
be well my friend. the red tail has been hanging out at my home by the lake. brother says he comes each day and circles our house calling. hmmmmm???
love and hugs,
blue

Hi everyone, just a quick stop in to say hello. You go Blue, you are right he can review the results with you. Braveman had a bone scan, actually two, the machine messed up on the first one and he had to repeat it. Is the bone scan to find inflammation? Let me know if it works!

I have been reading a new book on fibro and CFS and I have an appt. Mon. to discuss some new things with my doc. The receptionist always ask what the appt. is for and I told her to put down fibro, fatigue, pain and thyroid that should be enough. I have to get this fatigue under control I have a life to live and fibro is just going to have to come along for the ride and get out of my way.

You all take care I will check in later. Hope all is well with the bone doc blue keep us posted.

Glojer

hiya,
the doctor blew me off and, get this, i am expected to sit patiently waiting for someone to call me with an appt. hello?? who in hades does he think he is treating? so i called the hospital, had them send the results to my g.p. and am waiting for a call from them. i showed up, and during the time i am being told forget it he can't see you, he walks out and winks and smiles at me. then i knew. he has no idea who i am, therefore his level of caring for me is low. i don't have time for that level of care. i am asking my dear g.p. laura for a referral to another doc. one in the closest city. it is a 2 hour drive. worth it if the doc is.
had a good cry in my car, then went to exercise for an hour. came home and started making phone calls.
the bone scan is to see if i need a new knee. at this point i am not sure we are on the same page, let alone the same planet.
a girlfriend is on her way to hang out. i feel really good. standing up for me is empowering.
love,
blue
ps. glojer, whatcha reading about? when you have time. in the meantime i will focus on finding that fountain of youth so we can all take a dip.

Hey Blue,

No news yet? Wouldn't it be nice if we had velcor parts and could remove the parts that hurt until they stopped. and than reattach them.I am getting a lot of knee pain, was in the right knee but now the left has joined in, one is above the knee cap and the other below. It feels like they jump or something and am afraid of falling.

The health care really is getting bad, we are number anymore and $$$ signs. When Cliff was in the hospital
For his by-pass he also had what they termed a small stoke, his rght arm was affected. They brought his meal trays in, never opened anything or helped him. He only got to eat his meals when someone was there. I talked to the nurse about it, she said we are short handed and he has to help himself, he could not use his right arm or hand at all.

I had two drinks out of the fountain of youth, my daughter would not drink hers. I am living proof it does not work, lol.

Has our hawk friend had any messages for me?

Huggie, Buggies, linda

hi linda,
wrong fountain. i tried a few too. still searching, giggle. funny about the hawk. when brother told me i felt such peace. as tho i was being protected. i see him up on the mountain as well. i know it is not the same hawk, yet that unique energy is there also. have you asked him to watch over me as well?
good doctors, like good partners are few and far between. my laura will find me another good bone doc. just means a bit more waiting. that i can do.
my local hospital physical therapy has a program where i pay 25 dollars and i get use of the equipment monday thru friday. i have been going almost every day. it feels good. that take charge, proactive, oh yea, kind of feel good.
hope you are feeling a bit better. i will ask friend hawk and sister eagle if they will gift you with some energy.
have a good weekend and give cliff a hug for me.
love and feathers to soar with,
blue

Hi Blue,
Glad to hear you will be seeing another Dr. Cliff's ex- cardio was terrible, never returned phone calls and office visits were so short. The new one is a gem, stays on top of everything, returns calls, and spends about an hour with each patient. I always have a lot of ?? and he answers them all. Our G/P is the same.

No, did not ask Tommy to watch over you. It is amazing that he found you and sends messages through you to me.He is your guardian now and finds his own peace within you.I do pray for you everynight as well as others on the board and may be the reason he is staying with you. Have you talked to him lately, tell him I miss him and am counting the time until Max comes to visit.

Take care of those knees, no mountain climbing and no rhumba"s, let your climbing and jazzy dancing in you mind and not your body.

There was a blue heron spotted near us yesterday, I did not see it but two summers ago we had a huge golden eagle that was around all summer. What a beautiful sight seeing him soar with the sunlight glistening off him.

Huggie Buggies, Linda

hi linda,
i am going to the mountain for the weekend. i will ask. when is max coming to visit??
i promise no mountain climbing. as for dance, well, it moves me when it pleases, and i am joyous to follow.
thank you for your prayer. i did not know. i am honored you count me in your prayers. deeply honored.
the rain continues to fall. it has been so dry.
huggies back to you dear friend,
blue
ps off to exercise now. daughter jessica is coming to visit today. hot tub and girl talk. nice.

Hi Blue, no mountain climbing. Have a great time with your daughter, those times are so spcial when they leave your home.

You must be a very special lady, because Tommy was a loner, he never had a group of friends just a few but treasured their friendship. He must know you are a true and dear friend to him and he can trust you.

Max will be here in the early part of June, his first air flight. i cannot wait to kissy face him.

When you talk to Tommy ask him what his nickname was, I want to see if he answers you. He had no problem with it as a kid but once he got to be a teen he got annoyed if he was called by that name.

Have a great, painfree weekend.Soak those achy bones away in that hot tub.

Love, Linda

HELLO Blue,I'm sorry to hear about your knee pain. That's where my
fibro problems started..my right knee.
The doctor who ordered the MRI and did the arthroscopy on my knee
was a good friend of mine. I trusted him. He told my family that I needed
a knee replacement without waiting. He used the old phrase, ''bone on
bone''. When I woke up and was told what he had said, I told my family
the knee is mine and I will decide. In a few months I made an appointment
with Dr. Andrews at Sports South Clinic. They took x-rays with me moving,
bending, on my back,side, squatting down, on my knees and a few other
positions.(that was tough at 70) My knees were worn on the sides which
made them move in a ''windswept'' position.(the doctor's words).
There are so many things that can go wrong with knees and surgery isn't
always the answer. My knees are no worse today than 6 years ago. I wish
x-rays could tell us about fibromyalgia.
I have an old hawk friend too..He sits and watches for a rat or rabbit.I always
hope he can't catch one. I love the way he soars in the sky.
I'm long-winded today, please forgive me, you know how old folks get some-
times.
Bilij

Hi Bilij,

Good to see as usual. I have a ? for you, you have 5 years on me. WHEN DO THE GOLDEN YEARS START?

My husband always says that the fm has not affected my mouth so I am long winded all the time.

It Is really strange how this fm starts in different areas on different people, but it all progresses over the entire body so I guess it makes no difference where it starts.

I hope you do not have costo and the chest pain, soreness and shock like zaps.

Be well my friend and have a great and painfree weekend.

Hugs, Linda

warmest greetings my bay'ou friend,
how is the south coping with winter? and your body?
thank you for the info. i will ask the new one i find to do those x-rays. you are right. knee replacement is not my idea of healing. in india they do a prodedure where they add to the existing joint instead of taking it out. over 100,000 done and no ill affects recorded. i want to go there if i need anything. or wait till they catch up here. our medical world could learn alot from india. they treat the whole person. i saw a show on the telly. can you tell. for ten grand you get a private suite, round the clock nursing, your surgery, physical therapy, etc. AND they do not release you till you are well. amazing.
it is nice to see you gabbing away. i am glad you also have a hawk to meditate with. they are lovely. ah, to have wings. we could all meet in the sky.
still have not heard anything. funny, but now that i know my m.d. has it i don't mind waiting. guess i will call now and see if she left me a message. i do know if there was anything crucial she would call me.
blessings to all this weekend. may you know little pain, lots of laughter, easy moments and warmth.
love,
blue

me again,
just got off the phone with my doctors office. i have an appt. on wednesday next with sue her n.p. to get my results. yipeeeeeeeeee!!!!!!!!!!
giggle,
blue

Hello Linda, Golden Years....I believe I've heard that before. I'm hoping
76 is the magic year!
About 6 months ago I decided I had arthritis instead of fibro. My doctor
assured me it was fibro, but agreed to do an ANA which was negative.
When we are in pain, sometimes we grasp at straws for answers. I have
stayed on exactly the same amt. of pain medication and that worries me.
The doctor keeps assuring me it's control, not addiction. I've decided I'm
not going to worry about it anymore, because without something to take the
edge of the constant pain, there would be little quality to my life.
I'm so thankful I have a husband of 56 years who still loves me in spite of
the days I'm not too lovable.
So far I haven't had costo or chest pains. I've noticed that many people
seem to have a combination of so many conditions alike. I believe someday
this fact will help find a cause and cure.
I love hugs, thanks for the one you sent.
Bilij

Hi everyone, bilij you could never be too long winded for me, and that is coming from another 'long winder'. Just popping in to say hi and to catch up a bit.

Blue good for you for firing that doc, he doesn't deserve a patient like you! I will be seeing my doc Kate today and hope to get something going for this fatigue. Got new med from the rhuemy for my joints that is helping some. Need to go back on the IBS meds (it is rearing it's ugly head) but I am still trying to let my body adjust to being off them.

I miss being here more often, if I can ever get this fatigue under control I will be able to take the time to visit here and to get a few other things accomplished. I just give out so quick and then I don't do anything, period, nothing, well take care of braveman maybe but that's it. Even braveman is doing more of his taking care of!!! He really is getting better, the proof of the pudding is he is beginning to get on my last nerve.....giggle.....that's when you know he is doing better.....lol! Can't wait for spring when he can get out and we can walk through stores and malls and go to the park with the grandson. He is doing well to be locked in so to speak for as long as he has. Of course progressing through an illness has kept him busy.

OK. who is long winded now. I will let you all know what happen today at the docs.

Glojer

ps. Linda, that was awful what happened in the hospital. We were so lucky, braveman had some great nurses and techs. Very, very, few stinkers in the bunch. It makes all the difference.

Thinking of you today blue and hoping your appt. with the doc lauras NP goes well for you. Let us know what is happening. How was your visit with Jessica? Is she doing better these days with her relationship, I think that was a problem a few years ago?
I put the update on my docs appt. on another thread labeled Fibro....Thyroid....and T3.

Peace and pain free days for everyone!
Glojer

Hi Glojer,

I was wondering where Blue is myself. Hope this means she is doing great and dancing under the stars. She better report in soon.

Last night I did a search on burning pain and read a reply you had written about your chest pain, soreness, burning and zapping. That descibes mine to a tee as well as thinking that clothing actually flares me. Do you attribute this to fm or costo? Are you still getting this crap.

How is your hubby doing? I still have you both in my prayers.

We are under a blanket of 7 inches of snow and sleet, plus the winds are terrible, I should not complain as this is our first major snow storm this year, but will anyhow.

Hugs, Linda

glorious greetings of the day my dear sisters,
i am doing mostly perfect. got the results. nothing i can't live with. no significant change since the last scan on knees. as for my neck i got a referral to a new doc. know of him. he is reputed to be quite good. have heard this for many years about him. old doc is history, he just does not know it yet. we see. neck mri shows nothing to panic over. want a second opinion on it all. so am taking my records to the new doc. have to make an appt.
visit with daughter, what can i say? she never came over and finally called at 1 in the afternoon to cancel. kids can be such a pain in the fanny. as for her relationship with her hubby, who the heck knows? her life is like a teeter totter. i just cross my fingers and be present.
linda, i had a visit. a most wonderful visit. first, i was out in the middle of the night and i asked tommy to visit if he wished. suddenly i was filled with a "vision" of two hawks soaring high in the sky. the following words came to me.
all my life i searched for wings to fly away from my self. my reality i had made that was so not what i intended confined me like a cage. i have found my wings and i soar. i have found a mate. i am free. tell sis i have found freedom and love as i never imagined it. pure like white light, soft as clouds and so fulfilling i am no longer empty. i love you and will always be watching over you. you have only to think of me and i am there.
the next day i was driving home to the mountain and i stopped at the bottom, which i never do, and got out of my car. sure enough there he was. he soared down, landed on a wire and started talking and talking. lots of hawk talk. i told him you love him and to visit you often. he laughed and said he is always there with you. he says he sees it all so you better watch your self. giggle. ever heard a hawk laugh? i did. i asked if what i heard and saw the night before was his and not my imagination. how the chatter escelated. i just knew it was real. he told me never to question what i "see" and to always follow it.
i have been away on the mountain alot. my disabled homeless girlfriend is there. my man friend gifted her with his downstairs space to live in till her money comes and she finds a home. it is hard to maintain two homes. when i think of the people tho it is easy. she will have her money in less than a month now. yipeeee!!!
have had a bit of a rocky road with pain. what else is new? giggle. still exercising. going this am early as i am off to drive my friend up to laytonville to see if social security has sent her any money yet. my dear brother, with a bit of help from me, loaned her 300 dollars to see her thru. thougth she would cry. she only asked me to ask him for 20 dollars. i always think big. giggle.
brother has met a lady. now to teach him how to be a gentleman. no one ever did. i have not met her yet. there will be healing work to do with her. she lost her man partner last year to a head on collision. lost both her dogs too. she has not opened her bedroom door in over a year. poor sister.
i caution brother to be slow, gentle and just a friend. otherwise i will knock the doowaddies out of him!!!
guess that's it for now. sorry to be away so long. i keep forgetting to ask my friend how to use his computer.
loves ya,
blue

Well Blue,

I am happy to hear those knees will be good for another 50,000 mile, good going girl.Take care of them and they will will take care of you as my dentist says about your teeth.

So you are playing cupid for your bro, what a gal you are, master of all things.

Thank you for the message from Tommy, he sound so happy and it makes me happy. He did not have a good life due to his own making, but now has happiness and love. Did you ask him his nickname, I am curios to hear his reponse?

Your bud, Linda

Hi everyone.
So blue your playing cupid on valentines day, you are so cool lady....you know that. Brother will appreciate that so much. And helping a friend in need, someone homeless who needs shelter and the ability to feel a little independence with a few dollars in their pocket. You have been a busy angel this past week.

I am so glad to hear your knees are still under warranty...giggle. I will be doing a dance to send your pain up into the clouds to float away and never return. So far so good for me the last few days, but I almost over did it. I have had three very long days of going and going. Not by choice, just things that hand to be done. Well taking my best friend with me and enjoying some good conversation and stopping for some good food was an enjoyable part. I am just grateful that I have been feeling better these past few days. Today though I will rest some.

I thought of you a few of these past mornings as I snuggled in under the covers and stayed in bed late. I thought blue would approve of this, it felt so good.

Linda, don't talk about snow! We have had our share, 5 inches and supposedly more on the way. Just had a dusting last night but suppose to get more sometime today. I hate the snow, that is how I know I am getting old, the snow is not fun anymore.

I don't remember my posts on chest pain, but I am sure it was just the fibro cause I haven't ever been diagnose with costo. I still am very tender in the rib and chest area and around my back, it just hurts to be touched sometimes. And I still get the burning pains from just above my waist down to the tops of my legs. It is really an all over burning pain sensation that goes away in just a few minutes thank goodness. And of course I get shooting pains like everyone they can be so annoying.

Hope you are surviving your snow, the pressure fronts when the snow is coming and going can cause havoc with the joints and worse of all with the sinus's. I am coping though, have a silly toothache today. Hope it is just from a nerve flaring and fireing, don't have time for the dentist....and......most of all don't want to go to the dentist!!!!!!!!!!

Glojer

hiya kids,
computer is giving me hell. no virus protection so i am keeping this short. like that would do anything, giggle. anyway it has been such a week.
my dear nephew died three days ago. he always wanted to be dead. he had good reasons. he is at peace and i am joyful for him. i am also proud he found a way that was not messy and doubtful it can be called on purpose. he leaves behind two daughters to love.
fibro is giving me a run as are the rest of my goodies. to be expected.
be well all.
love,
blue
ps not to worry if i am gone a bit. computer junk is all that preventing me from being here. darned things!! it is a love hate relationship, giggle!

Blue, was geting worried about you. Get that pc to the Dr. so it is well real quick.

I am so sorry about your nephew, I will pray for you and his family.

Join the achy club, everything hurts on me, my thorastic arthur and my knees ache so bad plus te rest of me. My allerges are a mess and i feel like a drunk from the pressure. We are going to get snow, sleet or rain so says the weatherman, take your pick. Something is coming down down.

Your pa, Bud, Linda

thanks girlfriend,
pray for my mom, his mom (my sis) and his kids. me, i am covered always with love and understanding.
we are having a bit of snow!!! a treat for us. hell for you all back east.
the sun is breaking thru. the computer is still downloading updates to antivirus. hours now.
sorry you hurt. soon it will be warm again and we can all breath. allergies are rough. had them all my life. was born sneezing i think.
thank you for caring. you are a peach.
love,
blue

Sorry to hear about your nephew blue, I will keep your sis and mom in my prayers.

I hate to hear you and Linda are feeling bad these days. I have to say I haven't been too bad, in fact almost good, that is for us fibromights. Our snow has given away to 60 degree temps and we have seen a little sunshine. I have been working with this knew joint pain med (diclofenac) and trying to stay on top of the pain. Not so bad but not as good as I would like.

Sorry to hear about your sick computer, I will add an extra step to my dance to chase away the computer ills too! Hope you both are feeling better soon.

Glojer

hi glojer,
computer is all well. spent the pennies and called the computer doc. 4 hours of sitting here and on the phone. fibro and r.a. are singing in harmony. the music is sweet and just a bit sharp.
i am really glad to hear you are doing well. yipeeeee!! it's your turn, so you have fun.
the cold is biting away at my right knee. poor knee. she does cry so. there is nothing i can do for her. just heat, massage and love. bless the hot tub and brother for gifting it. brother dear also covered the rather expensive computer doc.
heard from my mom via email. she is wanting to be left alone. she does not feel like talking. she knows where i am if she needs me. since i do not accept any payment i expect it is okay to say i am a death/grief councellor. the knowledge is serving me this time. i accept death as a natural end of life.
i called my nephews phone number. it was strange. i felt almost compelled to do it. now i knew it was already disconnected so i expected that message. instead the message said, your call did no go thru as dialed. please hang up and try again later. i did it two times just to be sure i had heard it right. then i laughed. one of the analogies (sp?) i offer others is, it is like they moved away and you can't call them on the phone. so this message to try again made me giggle. hmmm, now where is that phone? ah yes, beyond my reach for now.
i am following what is natural for me in my process of saying bon voyage. i am visiting my memories. imprinting them more deeply in my mind. wrapping them gently in soft cloth for safe keeping. when it is time i will tuck them away in a special place i have within. the memories of others are there too.
i thank you all for your support and love and prayer. i feel so surrounded by love, like a soft spring breeze your love hugs me.
except for this amazing pain i am good. within there is joy. i woke up today. the stars are out. life continues. it is a perfect day, yes?
much love,
blue
ps i sure missed you all. glad my wee box is all better.

What a wonderful way to remember your nephew, sweet memories are what dreams are made of.

Been busy lately, but couldn't tell you what I have been doing.......could that be fibro fog! I have been trying to figure out the best way to take these meds to get the most effective relief. Not doing so bad, I hope I can keep it up. I am sorry blue your knee is not being nice to you, but give it some TLC and it will feel better.

Just popping in for a quick minute to check on you and Linda, maybe I will get a few minutes in the morning to see what has been happening on the board lately. Goodnight!

Glojer

morning all,
hope this day find you all feeling a wee bit better.
life has been busy to say the least. i have an appt with my new bone doc in may. i am still exercising tho it causes alot of pain later. joint pain. my muscles love the work out. so does my mind.
the new doc will be removing a growth on a tendon in my elbow. it is a new thing. i am losing the use of my left arm and hand. so working it out really matters now. and i do. lift, scream. lift, scream. they love me there, giggle.
daffys are in bloom. spring comes, hooray! ah, to be warm and mostly nude again. how sweet that will be.
blessings of love to you and yours,
blue

Thanks blue for the picture (spring and nudity).....giggle! I wish spring was coming to our area, more snow flurries today and when we get the low pressure with them I get the WORST sinus headaches and nausea from the sinus headache. Of course we can't forget about the joints that seem to want to hurt more with the low pressure front. Oh well it is part of life and that is what we keep fighting for.

The arm sounds a little painful, screams are not so good when you want to exercise. Please hang in there and take care of yourself. Hope your new doc can do something for the pain, but May sounds like too long to wait.

We have a busy week coming up, braveman must go for an MRI of his brain and then to the nuerologist again. It seems he has some facial movement that he is not aware of so it has to be checked out. Those two appt. and blood tests and who knows what else will keep us very busy this week.

Our son and DIL and grandson found out Fri. that they were selected as the family to adopt the 11yr. old girl they have been trying to adopt. Our grandson is 4yrs old and now we will have an 11yr. old grandaughter, they are so excited. She is in foster care in a small town and they took off for there Fri. evening and will be staying all weekend to get to know her. She wants to be adopted by an active family, she has no idea what she is in for with this group....tee..hee! It is very exciting for our family, we have been looking forward to the final decision but I always knew our son and dil would be the ones selected. Take care of yourself blue, I will check back when I can. Keep movin it all around so it looks good half naked when the warm weather arrives.....Ha..Ha....Ha...!

Glojer

Glojer,

Congrats on the new grandchild, what a wonderful thing to happen to your family, this warms my heart to see your family taking this girl into their home and hearts. She is one lucky girl to have a grandma like you.At her age they are considered unadoptable, I am thrilled for all of you and wisah you all the best.

My neice adopted a little boy from Russia two years ago, they tried for 5 years to adopt here in the U.S. but so much red tape. They made several trips to Russia until they could bring Alex home and are now thinking of a little girl.

I guess Blue is up on the mountain again. Hey blue I am very proud of you helping other people. I could use someone to houseclean, hint, hint.

Hugs, Linda

smarty! giggle. at my age looking good naked is not gonna happen no matter how much i exercise. time and birthing took care of that! like i care? each sag is a badge of honor. each wrinkle a testament to a life well lived. each stretch mark a living reminder of what it felt like to have life in me.
our bit of snow has passed. the sun comes out and actually yesterday i did not need a coat in the afternoon. i have no insulation any more. i was in a turtle neck and long john and cords. comfy perfect. everyone else was in shirt sleeves.
you tell braveman i will be with him. i have had a spasm below my left eye for almost 2 weeks now. knew it came from elsewhere. is it his? i will dance for him today. at the old lake where i used to live. going there to say adieu to an old neighbor who is moving to oregon and retiring.
i am seeing my m.d. on tuesday about my arm. with enough drugs i can hang till then i think. the pain comes and goes depending on how i use my arm. i am adapting and finding ways that do not cause too much atrophy of muscles. i am tough, ha, giggle, fall over.
many many congradultions to you all and most of all to this lovely child so desperate for love, security, sanctuary. i love her already.
joyous love,
blue

sorry linda i have a housekeeper come in. shall i send her to you? she is my miracle, my delight, my saving grace when it comes to my home. best of all she cleans the loo. i hate that chore. really hate it.
actually i am home this weekend. going up monday and will be home wednesday. gotta keep you kids guessing, giggle.
i was also thinking of glojers new grandaughter. you are so right. at 11 they have mostly given up their dream of being loved. i have to do one of my cartwheels for her. i bet she is on a cloud of disbelief. too good to be true, scared to believe. she vibrates.
be well, be warm, be love,
blue

Thank you all for the good wishes. We are very excited about adding to the family. She has been in foster care for 3yrs., taken away from a drug addicted and mentally ill mother and grandparents who raised her for the first 8yrs. and do not approve of her bi-racial heritage. So needless to say she has come a long way in the past three years and said she wanted to be adopted by a young family who were very active. She doesn't know what she has gotten herself in for with this group..never a dull moment. Our son and dil were just going to foster parent but then decided to adopt instead and the lady that taught their adoption class (yes you have to take a state approved class to foster or adopt here) is a case manager who gets her kids on the local news in a regular feature for adoptable children. Anyway she called our dil and said I am featuring a girl on the show I think will be perfect for you, please watch. The rest is history, one look at her and listening to her we all knew she would fit right in.

Blue enjoy your trip to the mountain. It is bravemans right side of his face that has the movement but his left hand is beginning to shake a little. The right hand and leg tremor has subsided considerably. Poor man, his body is so messed up from the chemo and myositis illness, it is going to take a few years to get back to normal. By the way my body is beautiful like yours, the sags and droops and wrinkles and bumps. I am proud of everyone of them too, I earned them all.

Sorry Linda can't help you on the housekeeping either, I have someone come in and clean my house too. A luxury I always wanted and one I gave myself a few years ago. The one luxury I have always wanted and cannot afford is a cook, oh how I would love to have someone fixing all the meals and taking care of the grocery shopping. I dislike doing both those chores like blue dislikes cleaning the bathroom.

Glojer

My Dearest Glojer,

Just to say how happy I am to hear of your new granddaughter . She is going to be a part of such a wonderful family.

Love to you and your braveman.

goldenwings :angel:

Hi golden it is so good to hear from you. Thank you for the good wishes. How are you and compassionman doing? I think of you often, give him a big hug for me and say hello for me. And gentle hugs to you!

Glojer