I had spinal fusion in Sept. 2006. I was feeling pretty good until about a month ago. I had been doing physical therapy since November. The end of December there were insurance issues so I went a month without therapy. Each week feeling worse. I saw the doctor. She doubled my Neurontin to 1800mg per day. She gave me Skelaxin which is a muscle pain med. Plus she gave me Darvocet which did not help. So I started theapy this week. Now I am taking Percocet because I just can't take the pain anymore. My fingers are killing me. I can't straighten or make a fist without alot of pain. My neck, back and elbow are killing me more then usual. I have herniated discs in my neck and a tear in the tendon of the elbow. I don't know if anyone has had this sympton? I feel like there is a radiated slight burning buzzing feeling throughout my whole body. Even my lips feel like they are numb a little. Kind of how it feels when novacane wears off. I also have Narcolepsy and Obstructive Sleep Apnea. I am going for a brain MRI and Bone Density test tomorrow. The Neurologist is doing the brain MRI to make sure nothing else causing my Narcolepsy symptons. I take Dextroamphetamine for the Narcolepsy. I just switched to him so he is starting from the beginning. The bone density is because the ortho looked at my post op fusion x-rays and doesn't like the way the bones look. Fusion has not started yet either which is odd. Plus I feel like I am retaining water. I mentioned to the neurosurgeon and ortho and none seem to care. All I know is I am getting worse. I recently had blood work done for Lyme Disease and Rhem. Arthritis. All negative. Any suggestions? I'm new to this board but a frequent poster on the back board. Thanks.

Hi Hessie,

Welcome to our group. I do not know what is going on with you. Some of your symtons I have the numb, feeling in my lip also in my face at times, just had 3 days where I have terrible pain in my thumb and the web area, elbow and wrist. You may have developed fm but it could also be cervical related. I have a lot of arrhritis in my neck and thorastic spine, I get a lot of shoulder, wing, and upper chest pain and I have no idea whether it is the fm or the cervical problems.

I have dxed with costochindritis also but cannot tell what pain is from what all I know is there is never a day that I am not pain free, but some days are better than others and I am thankful for those days.

Let us know what the neuro thinks.

Hugs, Linda