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girl75
01-27-2007, 01:16 PM
i know we have talked about this before but i was curious about it again.
i want to know from the vets as well as the fabulous newbies.

for me i can remember waking up in the middle of the night when i think i was 7 or 8ish with really bad cramps in my legs. growing pains or whatever it was it really hurt.
in the 7th grade, i think i was 11, i remember sitting in my desk chair when the bell rang and i went to get up and i couldn't. i had the worst pain in my lower back ever. i had to sit there for a couple minutes and get up super slow.
it kept hurting and my mom took me to the doctor. he felt my back and prescribed me meds. till this day i still get that pain and it is more like in my hip, buttock area. i was also dx with scoliosis. it isn't that bad of a curve, no brace or anything.
now that i sit here and read up on fibromyalgia it is all making sense.
i worked up until 2003 when i couldn't tolerate the pain anymore but before my injury in 2002 i was super woman. i would even work up to 2 jobs at times. i worked at a chiropractor for 6yrs and took care of patients with back problems. i took care of everyone around me. maybe i over did it or i wonder if all this would have happened anyway. when this all started i was dx with a herniated and 2 bulging disc in my neck after an on the job injury. there was also a hand full of other dx on my whole spine.
who knows, i thought maybe this would help someone while on their journey.
luv always,
robin

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Kutztown07
02-06-2007, 10:45 AM
I can remember having pain in my knees as a child about age 10 and on. Also, had a lot of tension headaches. In 1980, I was injured on a ride at an amusement park which was the beginning of chronic pain syndrome, I was 25 at the time. When I was 33, the pain started in my leg. it was off and on for many years. Now the pain has spread to other parts of my body. I was told in May 2006, that I had fibro, which I think I had for many years. As you can see pain has been with me for most of my life. To some extent I have became friends with it! (hopefully). Something we all have to live with.

pa235
02-06-2007, 11:28 AM
I had what was referred too as growing pains about the age 9, My legs use to ache so bad when I went to bed I would cry. I remember my mother saying all kids get that, but there 8 children in our family and no one else got them. After about a year that eased and cannot remember having any problems until I was in my late 30"s and started getting rib pain and pain from the center of my chest to my shoulder, this would all come and go. Sometimes painfree for months.

I was a nursing assit. in a nursing home and was put in a head lock, had shoulder, neck and upper arm pain and all of a sudden, chest, ribs and than the lower half of me joined in.

Hey Kutztown there is a town not far from me with your name, there is a small college there.

Hugs, Linda

KittenPaws
02-06-2007, 12:33 PM
I had "growing pains" (or so my dr called them) since i was about 7 until well...today (im 23) and i havent GROWN in over 7 years! I also had "tendonitis" in wrists/ankles, "overuse syndrom" in my knees and back pain (chiropractor was my friend...still is!). I pretty much think they guess whats wrong then shrug it off cuz your a kid. I was DX'd with Fibro in Nov 2005.

kathyd
02-06-2007, 10:27 PM
I, too had "growing pains for several years in my childhood. I also was very prone to "charlie horses" in both of my calves until I was probably in my mid-20's. I have lupus that has been in remission and I was just recently diagnosed with fibro, but have had the pain and other symptoms for at least 18 years.

omurray
02-16-2007, 09:57 PM
My mother told me as a child I once asked, "Will there ever be a time in my life when something does not hurt. I have a pain somewhere all the time." She assured me there would be after my "growing pains" were over with. However, I have never had a minute in my life without pain. I was an athlete, still holding several school records after fifty years, but went through everything with pain of one nature or another. I am on two different pain meds and still have pain all the time.

LadyGwen
02-17-2007, 08:44 PM
The only pain I remember as a child was when I started my period at age 11. I would be incapacitated. vomiting and cramps that I could not get rid of no matter how much pain meds i tried. That ended after I had my first child

FANNtasy3
02-22-2007, 09:56 PM
Hi folks,

I suffered with what I call, "pre-syndrome symptoms", for most of my life. My diagnoses came in 2003 after 20 yrs of going to docs saying, "I'm sick and tired of being sick and tired! What is wrong with me?!"

This illness is so open to interpretation that its hard to convince people that its real. It is such a mystery that there is a multitude of various studies aimed at finding the root cause, to no avail. We, as sufferers therefore must become our own research team, our own arm chair physicians, if you will.

While compiling a diary of my past and present health issues, I have found so many things common among us, yet some things seem so unrelated. But as we know, the greater number of FMS sufferers usually have another form of an auto-immune disease. In my attempt to map my illness, this is what I've observed:

It seems that a large percentage of people with FMC have had either; what was referred to as, 'growing pains', and or 'charlie horses'. The growing pains seem to start anywhere from 4-5 yrs of age to 8-9 yrs of age, and doesn't seem to be gender specific. The charlie horses seem to start 8-9 yrs of age to 11-12 yrs of age, right around puberty with mostly girls being affected a year or two before their first period.

I myself have suffered with charlie horses to this day, since around 11 yrs of age and got my first period right before I turned 12. These were the only pains I had. My mom, who is 64, smokes like a chimney and drinks like a fish, gets sick once every five years, has also suffered with charlie horses since she was 11.

I remember being a very sickly child since kindergarten. One would never forget being absent from school for the first three month due to having the mumps followed by the chicken pocks. If something was going around, I was one of the first to get it and the last to get rid of it.

The proof of the pudding came just a few weeks ago. A school teacher friend and I were talking about the old Farrah Faucet hair doo. I pulled out my old photo album and as we were flipping through, she spotted a pocket with a few of my old report cards. I told her not to look, I was not a good student and I would never want my children to see them, but she insisted. I opened them up to reveal my red marks and barely passing grades. Here I was pointing out my lack of ability to grasp an education from dazing out the class room window, as she pointed out my absentees. Mind you, I only had 4 report cards, my 1st grade report card had 19 1/2 days absent. My 3rd grade had 24 days absent. My 5th grade had 24 1/2 day and my 7th grade had 29. A little excessive. I'm sure the missing ones in between were probably no better. I asked my mother about this. She said she didn't keep me home unless I had a fever.

I do also recall, as early as I can remember, every time I got an inoculation, I would get sick. High fevers and flu symptoms. Every time.

Now mind you, I also recall being in the nurses office so many times as a child. They would take my temp, Id be a 99, they would send me back to class.... I still felt awful.

As an adult, I discovered my normal body temp is actually 97.6 and with any fluctuation from that... I feel ill. So in actuality, a 99 for me is 100 for everybody else. I probably should have been sent home most of those times.

I was an active, outgoing, bubbly teen. The only other thing I recall, and would consider a "Pre-SS", was as a teen I used to get what I called, "shopping fever". Every time I went shopping and had to pick through racks and trudge from store to store, within a few hours I felt like I was coming down with the flu. Have had it ever since.

aquamacblue
02-23-2007, 08:17 PM
eek: please have patience with me..I'm a newbie..I do remember having childhood pain. I was about 12yrs old and I came home from school with severe pain jabbing through my both collar bones. It was next to impossible to breath...small breaths only. My mom took me to the Doctor..no satisfaction. Then I was admitted into the hospital for 10 days while specialists checked me out...still no answer as to what was wrong with me. As I got older things seemed to be ok. Then when I was in my late 20's I was injured at work. Since the injury, nothing but shoulder, neck & arm problems that make my life unbearable...I have since been diagnosed with Myofasial/RDS & Fibro...the Doctor's still cannot pin -point the main problem. One thing they all agree on is I definitely have severe Chronic Pain. Something which I find difficult to deal with, and trying to be productive in society. Any advice..please..
i know we have talked about this before but i was curious about it again.
i want to know from the vets as well as the fabulous newbies.

for me i can remember waking up in the middle of the night when i think i was 7 or 8ish with really bad cramps in my legs. growing pains or whatever it was it really hurt.
in the 7th grade, i think i was 11, i remember sitting in my desk chair when the bell rang and i went to get up and i couldn't. i had the worst pain in my lower back ever. i had to sit there for a couple minutes and get up super slow.
it kept hurting and my mom took me to the doctor. he felt my back and prescribed me meds. till this day i still get that pain and it is more like in my hip, buttock area. i was also dx with scoliosis. it isn't that bad of a curve, no brace or anything.
now that i sit here and read up on fibromyalgia it is all making sense.
i worked up until 2003 when i couldn't tolerate the pain anymore but before my injury in 2002 i was super woman. i would even work up to 2 jobs at times. i worked at a chiropractor for 6yrs and took care of patients with back problems. i took care of everyone around me. maybe i over did it or i wonder if all this would have happened anyway. when this all started i was dx with a herniated and 2 bulging disc in my neck after an on the job injury. there was also a hand full of other dx on my whole spine.
who knows, i thought maybe this would help someone while on their journey.
luv always,
robin

girl75
02-24-2007, 02:45 PM
interesting seeing how many of us had some sort of pain especially "growing pains".
robin

moorcroft88
06-04-2007, 05:13 AM
yes i too had suffered growing pains in my les from i was about 6. mum took me to doc he kept sayinh the same thing. it was only when i turned 29 that the doc sent me for test that they were able to say yes its fibro.

 
 
 




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