It seems like in the middle of last year, that I remember reading about a major statin study/investigation that was to be released sometime last month (December). Does anyone have any information to share on this-or can point me in the right direction? :confused: Thanks

It seems like in the middle of last year, that I remember reading about a major statin study/investigation that was to be released sometime last month (December). Does anyone have any information to share on this-or can point me in the right direction? :confused: Thanks


I checked last week. The Statin Study at UCSD in still in the process of writting the final publication.

Thanks...hopefully it was not funded in any way by the statin manufacturers. To me, that would certainly taint any of the findings.

Thanks...hopefully it was not funded in any way by the statin manufacturers. To me, that would certainly taint any of the findings.

No it absolutely was not. It was funded entirely by a grant from the National Institute of Health...(a government agency)..

I visited the site and found it to be a place to file complaints about statin side effects. Apparently somebody will tally the untoward effects at some point in the future.

Is there more to it than THAT? It seems easy for anyone to merely keep rechoosing different screen names and re-registering side effects. Alternatively any manufacturer can bombard the study with nefarious glowing letters of stupendous benefits and no adverse effects.

Unless there's more to the "study" than that, this is most definitely completely unscientific.

Enlighten me; what am I missing?

I agree...surely there will be more to it than that. While I can't really see too many people changing screen names and re-registering for the sole purpose of stating side effects-I can see the various manufacturers hiring "temps" to flood the site with praise about their statin.

Hopefully, there is much more that is being withheld until the complete study is released....if for no other reason, to avoid other sites and media from doing "breaking news" before they get to break it out first. We'll see....but I don't think we will ever know the FULL story for a number of reasons.

I don't have a lot of time to respond now...but will do more later. The study is very scientific. It will be very complete. It includes complete information on every trial and test of cholesterol lowering medications to date. The survey is just for continuing information. It is place where you can tell your symptoms, especially when most doctors say "oh statins wouldn't cause that". The survey is something that should have been done from the beginning for every medication, especially those that were supposed to report post-marketing side effects.

Is there more to it than THAT? It seems easy for anyone to merely keep rechoosing different screen names and re-registering side effects.

yes, it's possible there may be more to it. 'Intelligent' surveys use the IP address of the computer to register entries. The IP address is unique to the computer, no matter what log-in or screen name is used, and is programmed to allow only one vote or entry per IP address. It woulnd't stop duplicate votes from say, the library, or a friend's computer, however it could stop duplicates from the home computer.

whether or not this particular site is set up that way, would depend upon the sophistication/expertise of the webmaster/programmer. one would think a medical study would utilize the most sophisticated tracking devices available - but then again, one never knows. It's certainly possible though.

yes, it's possible there may be more to it. 'Intelligent' surveys use the IP address of the computer to register entries. The IP address is unique to the computer, no matter what log-in or screen name is used, and is programmed to allow only one vote or entry per IP address. It woulnd't stop duplicate votes from say, the library, or a friend's computer, however it could stop duplicates from the home computer.

whether or not this particular site is set up that way, would depend upon the sophistication/expertise of the webmaster/programmer. one would think a medical study would utilize the most sophisticated tracking devices available - but then again, one never knows. It's certainly possible though.

Cat,
Verizon asssigns me a new IP every time I sign on. The way I uderstand it they have a huge bank of different IP's for its millions of DSL cutomers and assigns them will-nilly as people sign off and takes them back for re-use at sign off. I turn off my computer and modem at least twice a day.
I'vee checked...it's never the same IP twice.
It's only Cable internet customers who have static IP's.

And of course, deleting a cookie is childsplay.;)

yes, it's possible there may be more to it. 'Intelligent' surveys use the IP address of the computer to register entries. The IP address is unique to the computer

Not so unique.
My Verizon DSL, doles out a new IP address from it's cache of thousands of IP's every time I sign on. I have checked and I DO get a new IP every time I reboot (and reconnect with the modem)...I turn the computer off at least twice a day. I think several customers even SHARE an IP while they are connected (don't quote me there.)

And of course, deleting or not receiving a cookie is child's play.

This pertains in spades to anyone still unfortunate enough to be using ancient dial-up servers, God pity them.:jester: :angel:

Gee, after reading that.....I'm wondering if any online study is worth taking the time to read! I really like straight answers and facts so that I can make quality decisions regarding health issues-let's hope the study is not tainted. It will still most likely beat trying to extract a lot of details about statins from your own doctor. For them, I feel like it's a patient turn-over issue.

well now, that's a horse of a different color! :)

I had no idea Lenin, thought IP's were all static, whaddya know!

I emailed them and they sent me the study forms to fill out. They require a lot of information, including your name, address, phone number and stuff so that it would be hard for anyone to fill out multiple forms. I am going to fill it out! I think it is past time for the truth to come out on what these drugs have done to some of us. I strongly urge everyone to fill them out and send them in so our voices can be heard.

I emailed them and they sent me the study forms to fill out. They require a lot of information, including your name, address, phone number and stuff so that it would be hard for anyone to fill out multiple forms. I am going to fill it out! I think it is past time for the truth to come out on what these drugs have done to some of us. I strongly urge everyone to fill them out and send them in so our voices can be heard.

They are very careful at the statin study. ANyone that has seen the forms know they are not a quick, check this and that. The main emphasis of the study is to analyze all of the cholesterol studies and statin studies to date. The information that has been reported to the general public from these studies is not the entire story...and many times misleading. One example is one of the studies that said the results showed less cardiac events from people on "a certain statin" . They did not tell you that women were not counted in the final results because there was not an improvement (but they lead you to believe, the results were for both women and men). They alsotold you that there were no side effects. They did not tell you in the pre-trial test that the people with side effects were excluded from the final trial. These are some of the things that the statin study will point out.

In filling mine out, I found it asks everything about everything and I think it will be a complete study and have high hopes that it will get the truth out of the number of us who are aware of the problems and have suffered with them.

I plan to print out another copy for my sister since she had problems on Zocor and I would like to print out about 5 copies to pass around to others...Need more ink first! My package gets mailed to them tomorrow!

I also filled out the survey on paper and I can also say that it was VERY extensive! I can't believe that anyone would want to fill it out more than once. :)

I've emailed back and forth several times with one of the people involved in the study and I definitely believe that they are trying to do a good service to those of us that have suffered for many years with bad symptoms from statin drugs. The last time I emailed them, I included the results from my muscle biopsy. I want to do whatever I can to help them. I've been off Lipitor since July 2006 and I can tell you that I will NEVER go back on any statin drug again.

They recieved my study that I filled out and asked me if I was willing to do a follow up study and I said "Send it on!".. It is on my desk, sealed and ready to go. They said they like to do a follow up within 30 days of the first one, I think it is to get a better feel of what you are saying and that we are not faking it. The second one includes a body figure, front and back to color in areas that you have had pain while on the statin..

When you talk to them again...you might request that they e-mail you some of their study results. I think most of the papers are listed on their web site, but you can't open them from there.