jasiusmom
02-01-2007, 10:22 PM
Hi! It has been a long, long time since I last posted. Flashback: My husband has severe Neuropsychiatric Lupus. His Dad had it (ultimately died of Scleroderma), his Aunt has it. And now our five year old has been referred to a pediatric Rheumy. He has repeative episodes on morning stiffness in this knees and ankles. Sometimes he cannot walk for 45 minutes and he has rashes. He tires fairly easily. He has an Autism diagnosis, too. Has anyone ever encountered a Malar rash that was just on the cheeks only? Not over the nose too? I cannot find info about variations on the Malar rash. Our son only has rashes on his cheeks and sometimes on his behind.
Any input would be appreciated! Thank you and I hope everyone is doing well!
PS: My husband was given 2 rounds of an experimental infusion of the chemo drug Rituxan (Rituximab). He is now in almost full remission. Let me say that he had severe, severe Lupus that totally disabled him and made him like he was a brain injured, mentally ill person at age 35. After the treatment, I have my husband back. It is a miracle!!!!!Any Rheumy can order this medication off- label. Insurance may or may not pay for it. Hope this helps someone!!!!!!!
Any input would be appreciated! Thank you and I hope everyone is doing well!
PS: My husband was given 2 rounds of an experimental infusion of the chemo drug Rituxan (Rituximab). He is now in almost full remission. Let me say that he had severe, severe Lupus that totally disabled him and made him like he was a brain injured, mentally ill person at age 35. After the treatment, I have my husband back. It is a miracle!!!!!Any Rheumy can order this medication off- label. Insurance may or may not pay for it. Hope this helps someone!!!!!!!

