dell40
02-26-2007, 06:39 AM
Saw neuro today who confirmed 10 lesions on mri scan. Is sending me for evoked potential test and LP. Is ten a lot of lesions? One was on optical nerve. Any advice about this would be great as my neuro is still reluctant to make a definitve diagnosis at this stage. Also i have to wait 4 weeks to see the neurophysiologist. Any info would be great.
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dgibson70
02-26-2007, 09:53 AM
Lesions on the brain do not definitively mean MS so it's good your doctor is being thorough. The LP and evoked potential testing is going to tell the doctor a lot. Just remember you don't have to have a positive result on all tests to have a diagnosis of MS. As for the number, I am not sure about that. Common sense would suggest that the more lesions, the more possibilities of varied symptoms depending on where the lesions are located but I'm not a doctor so that's really only a guess.
Good luck!
Good luck!
PghGuy00
02-26-2007, 11:18 AM
I was DXd with 9 lesions. Neuro said that 8 is usually used as a guideline for definitive DX.
Kim_blessed
02-26-2007, 04:05 PM
Saw neuro today who confirmed 10 lesions on mri scan. Is sending me for evoked potential test and LP. Is ten a lot of lesions? One was on optical nerve. Any advice about this would be great as my neuro is still reluctant to make a definitve diagnosis at this stage. Also i have to wait 4 weeks to see the neurophysiologist. Any info would be great.
The number of leisions isn't as telling as the location and size of the leision. Having said that, the brain should not have ANY leisions. I am glad that your doctor is being so thorough. What are your symptoms?
The number of leisions isn't as telling as the location and size of the leision. Having said that, the brain should not have ANY leisions. I am glad that your doctor is being so thorough. What are your symptoms?
dell40
02-26-2007, 05:19 PM
The number of leisions isn't as telling as the location and size of the leision. Having said that, the brain should not have ANY leisions. I am glad that your doctor is being so thorough. What are your symptoms?
Long history of neuro symptoms from my mid 20s (have just turned 40). Symptoms have included vertigo, balance problems, pins and needles, tremor of head and more recently fatigue/ weakness and I was diagnosed (perhaps wrongly with Chronic Fatigue Syndrome). Some days its difficult for me to walk due to how fatigued and weak I feel. Have had many other strange symptoms such as internal tremor and tremor in throat, and jaw etc. Not sure of all the lesions sizes as doctor was reluctant to tell me a lot or show report (which I am not all together happy with). He did say some are small and showed me an area around the lower part of brain. He did state that the report said there was demyelinaton. Also the scan showed a swelling of the left optic nerve.
Long history of neuro symptoms from my mid 20s (have just turned 40). Symptoms have included vertigo, balance problems, pins and needles, tremor of head and more recently fatigue/ weakness and I was diagnosed (perhaps wrongly with Chronic Fatigue Syndrome). Some days its difficult for me to walk due to how fatigued and weak I feel. Have had many other strange symptoms such as internal tremor and tremor in throat, and jaw etc. Not sure of all the lesions sizes as doctor was reluctant to tell me a lot or show report (which I am not all together happy with). He did say some are small and showed me an area around the lower part of brain. He did state that the report said there was demyelinaton. Also the scan showed a swelling of the left optic nerve.
MSNik
02-26-2007, 10:17 PM
HI Dell. For what its worth, sorry you are going thru this. And, for the record, wish i had 10 legions. 6 weeks before my 40th birthday, I was diagnosed with MS, and have over 50 legions, all of which are in my brain, none in my spinal area. Some are near my optic nerve, which is the first symtom which I had...optical neuritis.
I also was diagnosed with CFS about 10 years ago, often wondered if that dx was accurate. Now looking back, I kind of doubt it. I believe I had many MS symtoms all along; however, no one took them seriously.
You sound like you have a very thorough and good doctor, for that, be grateful, but once you get further with your testing, you may want to take copies of the films and reports to an MS specialist for another opinion. I did, and the two docs totally agreed with everything. It made me feel better.
Now, Im going on 6 months of being on Rebif next week is my 6 month MRI, wondering if the REbif is lessening the legions or if things are the same...for one thing I dont feel any worse.
And, for the person who wrote about common sense saying that the more legions the worse the disease, they should be told that THAT is totally untrue. Where the legions are can affect what symtoms you have; however the number of legions is not going to necessarily mean the disease is progressing faster, or that it will be worse. ANy good Neuro, or MS specialist will agree with that.
Good luck to you. And, remember this is not a death sentence. Youll be fine, youre starting out on the right track.
Keep us posted.
Nikki
I also was diagnosed with CFS about 10 years ago, often wondered if that dx was accurate. Now looking back, I kind of doubt it. I believe I had many MS symtoms all along; however, no one took them seriously.
You sound like you have a very thorough and good doctor, for that, be grateful, but once you get further with your testing, you may want to take copies of the films and reports to an MS specialist for another opinion. I did, and the two docs totally agreed with everything. It made me feel better.
Now, Im going on 6 months of being on Rebif next week is my 6 month MRI, wondering if the REbif is lessening the legions or if things are the same...for one thing I dont feel any worse.
And, for the person who wrote about common sense saying that the more legions the worse the disease, they should be told that THAT is totally untrue. Where the legions are can affect what symtoms you have; however the number of legions is not going to necessarily mean the disease is progressing faster, or that it will be worse. ANy good Neuro, or MS specialist will agree with that.
Good luck to you. And, remember this is not a death sentence. Youll be fine, youre starting out on the right track.
Keep us posted.
Nikki
dell40
02-26-2007, 11:33 PM
HI Dell. For what its worth, sorry you are going thru this. And, for the record, wish i had 10 legions. 6 weeks before my 40th birthday, I was diagnosed with MS, and have over 50 legions, all of which are in my brain, none in my spinal area. Some are near my optic nerve, which is the first symtom which I had...optical neuritis.
I also was diagnosed with CFS about 10 years ago, often wondered if that dx was accurate. Now looking back, I kind of doubt it. I believe I had many MS symtoms all along; however, no one took them seriously.
You sound like you have a very thorough and good doctor, for that, be grateful, but once you get further with your testing, you may want to take copies of the films and reports to an MS specialist for another opinion. I did, and the two docs totally agreed with everything. It made me feel better.
Now, Im going on 6 months of being on Rebif next week is my 6 month MRI, wondering if the REbif is lessening the legions or if things are the same...for one thing I dont feel any worse.
And, for the person who wrote about common sense saying that the more legions the worse the disease, they should be told that THAT is totally untrue. Where the legions are can affect what symtoms you have; however the number of legions is not going to necessarily mean the disease is progressing faster, or that it will be worse. ANy good Neuro, or MS specialist will agree with that.
Good luck to you. And, remember this is not a death sentence. Youll be fine, youre starting out on the right track.
Keep us posted.
Nikki
Thank you Nikki for your reply and comments. I will keep you posted as to outcome. Its been a long journey thus far and I am sure the next month will go quickly (as that is when I undertake other tests). Wish you all the best and yes its reassuring that its not a death sentence and I am trying to keep a positive perspective and finding this site helpful in dealing with the process. Also all the best with your treatment. Cheers Dianne
I also was diagnosed with CFS about 10 years ago, often wondered if that dx was accurate. Now looking back, I kind of doubt it. I believe I had many MS symtoms all along; however, no one took them seriously.
You sound like you have a very thorough and good doctor, for that, be grateful, but once you get further with your testing, you may want to take copies of the films and reports to an MS specialist for another opinion. I did, and the two docs totally agreed with everything. It made me feel better.
Now, Im going on 6 months of being on Rebif next week is my 6 month MRI, wondering if the REbif is lessening the legions or if things are the same...for one thing I dont feel any worse.
And, for the person who wrote about common sense saying that the more legions the worse the disease, they should be told that THAT is totally untrue. Where the legions are can affect what symtoms you have; however the number of legions is not going to necessarily mean the disease is progressing faster, or that it will be worse. ANy good Neuro, or MS specialist will agree with that.
Good luck to you. And, remember this is not a death sentence. Youll be fine, youre starting out on the right track.
Keep us posted.
Nikki
Thank you Nikki for your reply and comments. I will keep you posted as to outcome. Its been a long journey thus far and I am sure the next month will go quickly (as that is when I undertake other tests). Wish you all the best and yes its reassuring that its not a death sentence and I am trying to keep a positive perspective and finding this site helpful in dealing with the process. Also all the best with your treatment. Cheers Dianne
OliverBocca
02-26-2007, 11:33 PM
Just for comparison purposes, I was diagnozed with 2 lesions ... and a spinal tap ... but I had a lot of other things, like droppy face, numbness on one side of my body, balance and cognative problems. The MRI leisions were just the cherry on the diagnosis. They did check my spinal column for lesions, too, but did not find any there.
dgibson70
02-27-2007, 03:54 AM
I wasn't suggesting more lesions made the disease worse nor does my post say that only that the symptoms might be more varied.