Pinkfairy24
03-05-2007, 08:50 PM
Hello all, thanks for being here.
Have been suffering with a weakness in my legs for about two years and recently my balance was badly affected along with my right arm. I couldn't hold or pick anything up with my right hand which really worried me so i finally went to see my GP.
I am a staff nurse and did kinda think that it could be MS related but didn't really look into being diagnosed with it :confused: I had my MRI results today, the consultant said that i had patches on my brain and spinal cord but i don't think that i was really listening. I haven't taken anything in yet and am really scared about what happens next.
I think that i need to go back and ask her if i can see the MRI scan as i'm not taking any of this in at all. I know that there are worse things and that there are meds which i can take. But my mind just won't accept and understand that she did diagnose me today. I'm having a really bad time here trying to relate this to myself.
Just so dam lost. Sorry. :(
Have been suffering with a weakness in my legs for about two years and recently my balance was badly affected along with my right arm. I couldn't hold or pick anything up with my right hand which really worried me so i finally went to see my GP.
I am a staff nurse and did kinda think that it could be MS related but didn't really look into being diagnosed with it :confused: I had my MRI results today, the consultant said that i had patches on my brain and spinal cord but i don't think that i was really listening. I haven't taken anything in yet and am really scared about what happens next.
I think that i need to go back and ask her if i can see the MRI scan as i'm not taking any of this in at all. I know that there are worse things and that there are meds which i can take. But my mind just won't accept and understand that she did diagnose me today. I'm having a really bad time here trying to relate this to myself.
Just so dam lost. Sorry. :(
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amy2705
03-05-2007, 09:54 PM
Hang in there! It gets less overwhelming with time. And as bad as it seems, it's not as bad as you're probably imagining. I was diagnosed this past summer and I've only just recently been able to even look at anything having to do with MS. I totally empathize with the numb feeling, I'm still feeling a bit numb myself (when I finally worked up the courage to look into it, I realized I didn't even know how to spell it!) .... but I promise that it will get better and things will start to make more sense.
((((((Big hugs))))))
((((((Big hugs))))))
Pinkfairy24
03-06-2007, 07:17 AM
Thanks for your reply. I guess that it is starting to make a little sense now, am just so worried as i don't want to get so unwell that i can't work. Nursing is everything to me :(
I already have a strange eye condition (keratoconus) luckily that is known as KC as i couldn't spell that at first either. I went blind for seven months the summer before last, i didn't think that i would ever see again :( Now i'm panicking that i will lose the ability to walk or use my hands. :( Am driving myself mad i think so i should stop looking things up online. :rolleyes:
Are there any nice info sites which won't panic me? Am waiting to see a MS specialist to discuss drugs etc. Are these to try to prevent further episodes?
Thanks for listening to me
I already have a strange eye condition (keratoconus) luckily that is known as KC as i couldn't spell that at first either. I went blind for seven months the summer before last, i didn't think that i would ever see again :( Now i'm panicking that i will lose the ability to walk or use my hands. :( Am driving myself mad i think so i should stop looking things up online. :rolleyes:
Are there any nice info sites which won't panic me? Am waiting to see a MS specialist to discuss drugs etc. Are these to try to prevent further episodes?
Thanks for listening to me
Qtant36
03-06-2007, 12:09 PM
Pink, I was just recently diagnosed as well. It is unbelievable to me. I am in shock, and panic mode as well. I can so relate to what you are saying. On top of this, I have a buldging disc at the C5/6 level that they want to remove and do a bone fusion. None of the doctors can tell me if this is what is causing all of my symptoms or if it is MS....My symptoms for the past 6-8 months have been extreme stiffness and weakness in my legs, and that is what brought me to go to the doctors. I knew I had a neck injury from 15 years ago, but wasn't sure that was causing my leg issue because I wasn't having any additional upper body symptoms. This is so scary. On top of all of this, I don't have LTD with my current job. Long story, but I failed to sign up for it when I first hired in (stupid me) and when I tried to sign up a few years ago they denied me because of my bulging disc which at the time was giving me no problems. I shouldn't have told the truth about my past condition. So, after I get past all of this looks like I will have to find a new job with LTD because I will need that security. This is all so unbelievable to me because I have never been really sick a day in my life. I can totally relate to what you are going through. Just know that you are not alone.
Boombaby310
03-06-2007, 04:26 PM
Hi,
I was diagnosed over 9 years ago. I can still remember the day. The neuro I had at the time didn't have any bedside manners. He came in told me I had MS and then turned around and walked out of the room.
Over the years I have taken Avonex, Betaseron, and Novantrone. I have been confined to a wheelchair. I can tell you that there will be good and bad days. I think there could be a lot worse things to have than MS. When I'm having a hard time I just tell myself that there is someone out there worse off than I am.
Even after 9 years I still try to deny that there is anything wrong with me.
If you don't mind I will put you on my prayer list. Take care and try to keep your chin up.
Nancy
I was diagnosed over 9 years ago. I can still remember the day. The neuro I had at the time didn't have any bedside manners. He came in told me I had MS and then turned around and walked out of the room.
Over the years I have taken Avonex, Betaseron, and Novantrone. I have been confined to a wheelchair. I can tell you that there will be good and bad days. I think there could be a lot worse things to have than MS. When I'm having a hard time I just tell myself that there is someone out there worse off than I am.
Even after 9 years I still try to deny that there is anything wrong with me.
If you don't mind I will put you on my prayer list. Take care and try to keep your chin up.
Nancy
OliverBocca
03-06-2007, 08:32 PM
Wishing you the best during this scary time. There's a good book that covers your first year with MS, I highly recommend it. Also MS for Dummies; great! Non scary website: MS Society. Avonex website ( a drug I take) also has some good stuff about MS in it and some optmistic things about treatment.
I had a five month journey until it was determined I had MS; at least when you get to this point you know what you have and that there is generally something that can be done once you know what it is. Now you know; now you move on. And I encourage you to know you can go on. :-)
((((hugs)))))
So Cal Holly
I had a five month journey until it was determined I had MS; at least when you get to this point you know what you have and that there is generally something that can be done once you know what it is. Now you know; now you move on. And I encourage you to know you can go on. :-)
((((hugs)))))
So Cal Holly
Pinkfairy24
03-07-2007, 07:21 AM
Thanks
I so didn't think it would be anything bad :( I thought that i would be a typical nurse and had made things up, i didn't think that my scan would be bad especially when i had to wait three months for the result :(
This is really bad and it still hasn't sunk in :( I keep telling people that i have it because they are asking but it doesn't mean anything to me. This is all so bad and i'm playing a really bad case of denial.
Sorry :(:(:(
I so didn't think it would be anything bad :( I thought that i would be a typical nurse and had made things up, i didn't think that my scan would be bad especially when i had to wait three months for the result :(
This is really bad and it still hasn't sunk in :( I keep telling people that i have it because they are asking but it doesn't mean anything to me. This is all so bad and i'm playing a really bad case of denial.
Sorry :(:(:(
kimpossible67
03-07-2007, 08:14 AM
Thanks
I so didn't think it would be anything bad :( I thought that i would be a typical nurse and had made things up, i didn't think that my scan would be bad especially when i had to wait three months for the result :(
This is really bad and it still hasn't sunk in :( I keep telling people that i have it because they are asking but it doesn't mean anything to me. This is all so bad and i'm playing a really bad case of denial.
Sorry :(:(:(
I know I'm scared out of my mind. I'm sorry for you. I don't have a diagnosis yet but it's all over but the crying, I'm afraid. All tests thus far say MS.
Anyways.........The past few months, I've ran the gambit of emotions, denial, anger, grief, determination, pity etc. I keep telling myself that no matter what, I'll keep walking as long as the Good Lord says I can. I'm not going to give up. I understand your grief over your job. I drive special needs kids, now theres some irony. Instead of working with sp. needs, I'll BE special needs. I probably will have to give up my job. Best of luck to you and embrace your denial, it'll give way to something new :)
I so didn't think it would be anything bad :( I thought that i would be a typical nurse and had made things up, i didn't think that my scan would be bad especially when i had to wait three months for the result :(
This is really bad and it still hasn't sunk in :( I keep telling people that i have it because they are asking but it doesn't mean anything to me. This is all so bad and i'm playing a really bad case of denial.
Sorry :(:(:(
I know I'm scared out of my mind. I'm sorry for you. I don't have a diagnosis yet but it's all over but the crying, I'm afraid. All tests thus far say MS.
Anyways.........The past few months, I've ran the gambit of emotions, denial, anger, grief, determination, pity etc. I keep telling myself that no matter what, I'll keep walking as long as the Good Lord says I can. I'm not going to give up. I understand your grief over your job. I drive special needs kids, now theres some irony. Instead of working with sp. needs, I'll BE special needs. I probably will have to give up my job. Best of luck to you and embrace your denial, it'll give way to something new :)
NanaBecca
03-23-2007, 01:27 AM
Hi Pink.... I'm still only "probable MS" since my neuro was waiting on another flare and I've not gone back even though I'm on the third one since I saw him. Unfortunately, it takes about 3 months to get into him and by that time, my sx have pretty much resolved. My PCP will put me on a steroid taper which helps with the sx.
Fortunately, most people have RRMS and most don't seem to become completely disabled. I've been dealing with this for 5 years, 7 years.... a long time and the exacerbation I'm in now has been the worst with a lot of muscle spasms and weakness in my legs that I've not had before (seems like I get a new sx @ time).
Anyway, I too am a nurse. I work part time and go to school part time. It gets hard sometimes but I feel it is important to live life. It's been a matter of finding a balance and knowing my limits. I had spring break this week and was stupid enough to "volunteer" for 3 extra shifts. Boy am I paying for it!
Good luck and stay positive!
Fortunately, most people have RRMS and most don't seem to become completely disabled. I've been dealing with this for 5 years, 7 years.... a long time and the exacerbation I'm in now has been the worst with a lot of muscle spasms and weakness in my legs that I've not had before (seems like I get a new sx @ time).
Anyway, I too am a nurse. I work part time and go to school part time. It gets hard sometimes but I feel it is important to live life. It's been a matter of finding a balance and knowing my limits. I had spring break this week and was stupid enough to "volunteer" for 3 extra shifts. Boy am I paying for it!
Good luck and stay positive!