They were calling to remind me of my appointment tomorrow. I was asking that they bring the next month's medicine to the appointment to keep me from making two trips. MY nurse has changed jobs so another nurse has stepped in and doesn't really know what's going on. She finally said "but if you're undectable you don't need any more medicine". I told her that no, they still had month 3 in their possession. Then she said, "you do realize that you ARE undectable don't you?" I nearly passed out. That was the best news ever. I got it a day early so it was really unexpected and very welcome. Guess what guys, miracles happen! Prayer works! I get all the details from the doc tomorrow. I just really wanted to let you guys know.:blob_fire

What great news! When did you begin treatment and what type hepC are you being treated for? I'm in just my second week and am looking at 1 year.

They were calling to remind me of my appointment tomorrow. I was asking that they bring the next month's medicine to the appointment to keep me from making two trips. MY nurse has changed jobs so another nurse has stepped in and doesn't really know what's going on. She finally said "but if you're undectable you don't need any more medicine". I told her that no, they still had month 3 in their possession. Then she said, "you do realize that you ARE undectable don't you?" I nearly passed out. That was the best news ever. I got it a day early so it was really unexpected and very welcome. Guess what guys, miracles happen! Prayer works! I get all the details from the doc tomorrow. I just really wanted to let you guys know.:blob_fire

Congrats on the wonderful news,and yes prayer does indeed work,and God is the one making miracles happen :angel: ..again congrats,and thank you for being a part of our family support group here.
jeff

What great news! When did you begin treatment and what type hepC are you being treated for? I'm in just my second week and am looking at 1 year.

I am gen 2b and we are trying some new "European" ways (from what I've been told on here). Being undetectable after 4 weeks entitles me to only have to do three months. I take shot #7 today. I will continue to post and let you guys know if it remains undetectable. Good luck. I've had good days and bad days but the good outweghs the bad. But all days are tired and dragging. This we can live with to achieve our goal, eh? Again, good luck and let us know how you are doing.

Congrats on the wonderful news,and yes prayer does indeed work,and God is the one making miracles happen :angel: ..again congrats,and thank you for being a part of our family support group here.
jeff

Hi Jeff, thank you. This board has been my saving grace. All of the people here are genuine and helpful. I don't know what I would have done without the advice and the boost that their understanding has given to me all of the months. You are really not alone. We are here and willing to listen and help.

Lisa, :angel:

Prayers do help. It's good news that you are negative. Do you think you will have to take the other month's medicine? The nurse says you don't have to take anymore. Let us know if you are done with tx. After 2 months of tx that is good. I am happy for you. May all your future tests be negative as well. Live your life girl, you have reason to celebrate.

Joyce

Lisa, :angel:

Prayers do help. It's good news that you are negative. Do you think you will have to take the other month's medicine? The nurse says you don't have to take anymore. Let us know if you are done with tx. After 2 months of tx that is good. I am happy for you. May all your future tests be negative as well. Live your life girl, you have reason to celebrate.

Joyce

I did talk to the doc yesterday. I took shot #7 yesterday and I will go ahead and finish 5 more. The anemia has begun also. He said that my blood had dropped but he didn't think that I needed the Procrit yet. I go back 2 weeks from yesterday for more blood work. I had noticed that I've been even more tired and my stomach has been a little more upset and I now have sores in my mouth. He wrote me more scripts for all that. He says that if I sustain this response then it could be nearly over for me. Thank God. and thank all of you for being there for the ups and downs. Lisa

I'm glad it won't be long before you are through with treatments. The meds you are now taking for the other symptoms will help resolve them. You're doing great. You're more than welcome. We are supporting each other which helps. It's coming to the weekend take a day for yourself and do whatever you want. It's hard I know to take time for ourselves but we all need to do it. Celebration of courage and preparation to carry on. We all will be fine. Joyce :wave:

Congrats Charmed. Do you know how long your doc has been treating only for three months if you are undetectable at wk four? I am just curious. It is almost over for you so hang in there.

Congrats Charmed. Do you know how long your doc has been treating only for three months if you are undetectable at wk four? I am just curious. It is almost over for you so hang in there.

I really don't know how long, but he talked about it like it was policy. Real matter of fact, if you know what I mean. I don't think that I'm a guinea pig, lol. But I'm ok with it if I am. When I talk to him again, I will ask.

I am curious. I looked up a bunch of stuff today that basically said that as long as the people were gen 2 or 3 and were undetectable at 4wks they had the same results w staying that way as people who did the full 24 wks. Good enough for me. I think I will do 14 wks.

I am curious. I looked up a bunch of stuff today that basically said that as long as the people were gen 2 or 3 and were undetectable at 4wks they had the same results w staying that way as people who did the full 24 wks. Good enough for me. I think I will do 14 wks.

That is basically what the doc told me. 14? Because you didn't start off with full doses?

That is my own little addition to this hole thing. I don't know why I am doing the extra two weeks but I will feel more comfortable that way seeing as I did not start with full doses. That one has nothing to do with the doc.

Today is my halfway point of TX-week 12 of 24 (YAY):D -I also asked the doc if, since my viral load is now and has been undetectable, can I stop TX?
He told me that the recommendation to ensure that it stays gone is to finish the regimen of 24 weeks-
I misspoke before about the other drug I just started for my low WBC (1.8) it's called Neupogen-another weekly injection to bring up my WBC
-Anyone taking this? I love the possible side effects-severe bone pain and possible ruptured spleen!

Today is my halfway point of TX-week 12 of 24 (YAY):D -I also asked the doc if, since my viral load is now and has been undetectable, can I stop TX?
He told me that the recommendation to ensure that it stays gone is to finish the regimen of 24 weeks-
I misspoke before about the other drug I just started for my low WBC (1.8) it's called Neupogen-another weekly injection to bring up my WBC
-Anyone taking this? I love the possible side effects-severe bone pain and possible ruptured spleen!

Hi eyes-- i did not take neupogen for my low white cell count although i did take epo (procrit) for severe low red cell count. my med student daughter told me she was more worried about the the low white than the low red cells(of course she was not experiencing the horrible side effects of anemia!). As it turned out, she may have been right all along--i ended the tx a week early because i was hospitalized with pneumonia! this was almost surely a serious infection hitting me (and so hard) because the white cells were so low. thankfully, they responded quickly and sharply, and i was home within days, even though it took weeks and weeks to get back to 'normal'

So, i'd take neupogen if I were ever in that situation again. of all the side effects I got--and my list was long and sorry--catching a potentially fatal lung disease has to top the list.
my doc also told me that other opportunistic infection occur on this treatment as well--abcesses, etc.

so, build up those white cells! it turns out to matter.

peace

sean

thanks Sean-I am so tired! I'm on weekly blood work now and I'm anxious to see if my wbc has come up since the 1st Neupogen shot.
I do have a cough and I hope it doesn't get worse.

thanks Sean-I am so tired! I'm on weekly blood work now and I'm anxious to see if my wbc has come up since the 1st Neupogen shot.
I do have a cough and I hope it doesn't get worse.


Good luck. I am waiting for my 12 wk blood work to come back. You are half way there.

Wow! I'm so encouraged by your great news! Best to you!

Just stopped treatment eight days ago and threw the pain pills down the toilet three days ago. I feel a lot better but not normal yet. I know as with all of you that you just want this to be over and to feel good. The first week with no tx I still felt crappy but every day it started to wear off. Then the minor detox from pain pills (and thank god for those suckers during that) well that only took a day and by the 36 to 40th hour with no pain pills I already felt really good. I feel a little wierd today though. I have noticed in the last few days that I have been popping up in the mornings like i used to and am ready to go. I have not done that the hole time on tx. I have been very tired in the mornings and dozed off most of them, where I used to wake up with my son, start drinking coffee and getting things done first thing in the mornings. Good luck.

Just stopped treatment eight days ago and threw the pain pills down the toilet three days ago. I feel a lot better but not normal yet. I know as with all of you that you just want this to be over and to feel good. The first week with no tx I still felt crappy but every day it started to wear off. Then the minor detox from pain pills (and thank god for those suckers during that) well that only took a day and by the 36 to 40th hour with no pain pills I already felt really good. I feel a little wierd today though. I have noticed in the last few days that I have been popping up in the mornings like i used to and am ready to go. I have not done that the hole time on tx. I have been very tired in the mornings and dozed off most of them, where I used to wake up with my son, start drinking coffee and getting things done first thing in the mornings. Good luck.

I finally took the last ribavarin on the 22nd! The doc told me that I'd feel better in a couple of weeks but I probably wouldn't be "right" for 3 or 4 months. I have had more energy but am having a bad day today. The last few weeks with all the stomach problems have been rough. I'm glad that it's over. I'm glad to hear that you are doing so well. Maybe we can talk again.

I finally took the last ribavarin on the 22nd! The doc told me that I'd feel better in a couple of weeks but I probably wouldn't be "right" for 3 or 4 months. I have had more energy but am having a bad day today. The last few weeks with all the stomach problems have been rough. I'm glad that it's over. I'm glad to hear that you are doing so well. Maybe we can talk again.

there you are. I am on here all the time and good for you that it is over. And I don't feel right still. I have had one good day and then a bad day and I am going on two weeks off the rib/interf and four days off the pain meds. I don't feel right. Today I feel wierd. I just want to feel normal again. I am not sure I remember what that is. All I can hope for is that every day I feel better. Wow...the doc said three to four months? I hope that it is not true but I am sure it is. I feel better as far as body aches and I am not as tired some days so far but still I don't feel right. Time will tell. Good luck and I hope the tummy gets better.

there you are. I am on here all the time and good for you that it is over. And I don't feel right still. I have had one good day and then a bad day and I am going on two weeks off the rib/interf and four days off the pain meds. I don't feel right. Today I feel wierd. I just want to feel normal again. I am not sure I remember what that is. All I can hope for is that every day I feel better. Wow...the doc said three to four months? I hope that it is not true but I am sure it is. I feel better as far as body aches and I am not as tired some days so far but still I don't feel right. Time will tell. Good luck and I hope the tummy gets better.

I got to where I was on here too much so I backed off and started doing different things. I guess I backed off too far, lol. I've missed it. I was doing better for a few days, I even started playing tennis (I've gained 5 pounds). (I started eating ice cream because of my stomach problems and the blisters in my mouth) But the last couple of days have not been good. I'm so disappointed too. I (like you) am so ready to feel better. I don't remember normal either so better will have to do. I probably shouldn't write this on here but IF YOU'RE A GUY DON'T READ THIS!! LOL, pms on these meds is a nightmare! I've hit bottom before but these bottoms even on anti-depressants are unbelievable. A few weeks ago I would have had to feel better to die. Has it been that way for you?

I have been really moody and I always have bad pms. It is still bad. I still feel crapy today. My body hurts today and I had trouble sleeping last night. This sucks. I guess my 12 wks came back undetectable. Now I just am ready to feel better too. I hate this feeling. I don't feel right. I was stupid to give away my pain pills so fast but my family was giving me a lot of grief about them. I used them as directed but they were worried. I really wish I had one right now because I am hurting bad. Hopefully charmed in a month or two we will look back at all of this and it will be just a bad memory. I have so much to do around this house it is overwhelming. I have family coming in and have nothing done at all. Hope tomorrow is better than today for both of us. It has to get better every day. I do know that from experience.

You really need to scare yourself up a few pain meds. The family is not the ones hurting. Mine have tried that too but I'll worry about that later. I feel for you because I too am having a painful day, even with the pain meds. My shoulders are tense and so is my neck which has my throat really sore. LOL, I could go on and on...

You really need to scare yourself up a few pain meds. The family is not the ones hurting. Mine have tried that too but I'll worry about that later. I feel for you because I too am having a painful day, even with the pain meds. My shoulders are tense and so is my neck which has my throat really sore. LOL, I could go on and on...

I am trying to come up with some trust me. I can't believe I gave mine away so early thinking I would be fine. I just took four ibroprofren....lets see if that helps. this sucks charmed. I have been fine for the last few days but today I feel horrible. My neck, my back , shoulders ect....ouch! and yes you are so right they are not the ones in pain. I have a doctors appointment on monday. I hope these ibroproferen work. I have three neighbors that are nurses and no one has anything. My one neighbor will be home later and should have something or another. this sucks. that stuff is poisen we were taking.....i know i know....we had to do it but still. tomorrow will have to be better is the only thing I can think.

I hope that you finally found you some relief. I wish that I could give you my phone # so that I could help. Anyway, today is finally a little bit better for me and I really hope so for you.

It is quit a few days later now. I think that was Friday. It is now weds. I feel so much better....have not taken the xanax or any pain pills for a while. I think that day was horrible for me. I just felt better on Saturday finally. Every day is better. I have had a lot more energy in the last few days....getting up early...doing stuff all day on the yard....ect.. Kind of my old self coming back. What is wierd is going to sleep. I was so used to passing out early from fatigue and the meds that now I don't remember what I used to do when I stayed up at night and my husband is out of town. I really wish we could exchange numbers too. I am still taking the anti depressants. I will probably wait to get rid of those. I think I was wigging out from a little bit of everything but xanax minor withdrawls too. Who knows anymore. I am glad it is getting better for you too. Keep in touch.

It is quit a few days later now. I think that was Friday. It is now weds. I feel so much better....have not taken the xanax or any pain pills for a while. I think that day was horrible for me. I just felt better on Saturday finally. Every day is better. I have had a lot more energy in the last few days....getting up early...doing stuff all day on the yard....ect.. Kind of my old self coming back. What is wierd is going to sleep. I was so used to passing out early from fatigue and the meds that now I don't remember what I used to do when I stayed up at night and my husband is out of town. I really wish we could exchange numbers too. I am still taking the anti depressants. I will probably wait to get rid of those. I think I was wigging out from a little bit of everything but xanax minor withdrawls too. Who knows anymore. I am glad it is getting better for you too. Keep in touch.

Hi Jess,

glad you are starting to feel better--i am about three months out, and still not 100 percent, but definitely within what anyone would call 'normal' range of functioning and mood. so we can come back!
i think it was two months after my last peg shot that i took the last pain pill (only needed them occassionally after tx, but it just didn't get to zero until weeks later). so i don't find your experience surprising. ibuprofen and naproxen are still an almost daily event for me.

in addition to everything else, this regimen just weakens us so that otherwise 'minor' issues of illness or pain or depression become so hard to handle. all that eases off, and noticeably (for me anyway), week by week.

eat, get as much exercise as you can stand (it helps sleeping, too, although i admit this one still is not nearly 'normal' for me--i havent' slept well since my first shot), and get back to enjoying life!!!
boy, has my life changed for the better just not doing that awful medicine anymore.
this will be true for you, too.

peace

sean

I am so looking forward to better days. I have started to go outside and work with my flowers and sit on the porch with all the kids. That is something that I didn't even want to do until recently, that I used to love to do. I have been sleeping better, not all night yet but better. So I guess all in all, it is beginning to get better. I guess I'm just anxious for "normal" whatever that is. I missed 2 days of my Nexium because I couldn't get it filled and I've had this acid reflux again for a week now. Am I stuck with this "side effect?" Or will it eventually go away? The prozac put 7 pounds on me that I don't want but I'm afraid to quit taking it just yet. Sean, your message was encouraging as was Jessy's. I guess I'm trying to rush things.

Yes Sean your message was encouraging. I am feeling much better. My body does still ache a little and I am just taking ibroproferen....it seems to work fine. My energy is coming back fast finally. I felt like crap for a good week or so. Charmed I hope you are getting to feeling better too. I too have not felt like doing the yard or my flowers and have done a ton of it this week. I am getting up at 8 and staying up which has been unheard of.