karwin
03-14-2007, 06:05 PM
anyone heard of or experienced sarcoma cancer? my mum has been diagnozed with secondary sarcoma. it started in the muscle tissue in her leg and now travelled up to her lungs with about 11 tumours in total. wondered if there is anyone out there who has or is experienced this too????
am struggling with the thoughts of losing her and how its going to effect all of our lives. is it strange for me to react in abnormal ways such as anger and frustration? i have become a different person lately who takes thing out on there innocent husband and friends but deeply regret my actions once iv realized what iv said and done, i dont want to lose them just like i am my mum.
very mixed up!!
Janmarie2
03-15-2007, 09:13 PM
Hi we had someone else post about Sarcoma recently.I don't think many here can offer you help in the terms of experience with sarcoma since most people here are dealing with lung cancer as the primary cancer so NSCLC ( like adenocarcinoma, Squamous cell, BAC) and SCLC and each has its own treatment which is probably true with Sarcoma. Some of the chemo's may be the same but even that I am unsure of.
What I can offer as help as can others here is to let you know you are not alone in how you feel right now. When you learn a loved one has cancer especially a terminal cancer you start going through the grief process. Anger and frustration are not at all uncommon. Yes it is hard on others around you when you take it out on them so let them know what you are dealing with and explain how you are not yourself right now. That does not give you permission to take it out on them but it may help them understand why you are acting that way. Try to focus that anger into ways of helping your mom by researching the cancer so that you can help her make informed decisions about her treatment.
If it is anything like what most of us have dealt with be ready for an emotional roller coaster. There will be good days and there will be bad days. One thing I like to remind people of is while life will be full of doctor visits, tests and treatments so on the surface life has changed in the big picture it has not changed as much as we think it has. Not one person here knows when they will die as any of us could drop dead this very moment..yes it does happen cancer or no cancer.Just because your mom has cancer there is no given that you will outlive her. Yes she is more likely to die first but life has no guarantees except that we are all born and we will all die.
Right now your mom is alive so take the cancer as a calling card to start living each day as it comes,to let your mom and others in your life know how much you love them and yes if necessary to start saying good bye. Having lost my mom to NSCLC back in Nov. I have to say I am thankful that I was given the chance to say good bye to her, I know exactly what the last thing I said to her was and there is comfort in that.
Don't listen to what the doctor says in term of how much time if he is saying the cancer can not be cured. Doctors do not know as they are not God. There are plenty of people that are told 6-12 months with treatment that are alive much longer, sometimes even years and of course there are those who die within weeks so don't even make the 6 months.There are also new treatments just around the corner and some of us have been lucky to have our loved ones benefit from new treatments that were not available when we first learned of the cancer.
Try not to waste time thinking of what your life will be like without your mom as you are wasting precious moments as things are never what we imagine them to be. When that day comes you will learn to face that so don't waste the now thinking about it. I will send some prayers your mom's way. JanMarie