jenn3
03-20-2007, 08:51 AM
My dr had recently said from my blood work my pth level was high and that i am vitamin D deficient. He wants me to take 400 International (sp??) pills
3x's a day. In my last sono of my thyroid it also said possible considerations "parathyroid andenoma". From what i have read about parathyroid andenomas is that they always have to be removed. Has anyone been vitamin d deficient and the supplements have worked???
Any input would be appreciated on this
thanks
Jennifer
3x's a day. In my last sono of my thyroid it also said possible considerations "parathyroid andenoma". From what i have read about parathyroid andenomas is that they always have to be removed. Has anyone been vitamin d deficient and the supplements have worked???
Any input would be appreciated on this
thanks
Jennifer
Sponsor
PikaB
03-20-2007, 04:13 PM
...From what i have read about parathyroid andenomas is that they always have to be removed...
About ten months ago an untrasound revealed that I had a parathyroid adenoma. So far, my endocrinologist has just wanted to monitor it, doing an ultrasound every few months (to see if it is changing shape), and twice he has done a needle biopsy on it, but the results were negative. He doesn't want to remove it needlessly. The web says that 1 in 10 people have these "solitary thyroid nodules", and indicates the various criteria which would indicate they should be removed (size, malignancy, etc.). As long as he's not worried about it, I'm not worried about it.
About ten months ago an untrasound revealed that I had a parathyroid adenoma. So far, my endocrinologist has just wanted to monitor it, doing an ultrasound every few months (to see if it is changing shape), and twice he has done a needle biopsy on it, but the results were negative. He doesn't want to remove it needlessly. The web says that 1 in 10 people have these "solitary thyroid nodules", and indicates the various criteria which would indicate they should be removed (size, malignancy, etc.). As long as he's not worried about it, I'm not worried about it.
DesertBloom
03-20-2007, 06:32 PM
About ten months ago an untrasound revealed that I had a parathyroid adenoma. So far, my endocrinologist has just wanted to monitor it, doing an ultrasound every few months (to see if it is changing shape), and twice he has done a needle biopsy on it, but the results were negative. He doesn't want to remove it needlessly. The web says that 1 in 10 people have these "solitary thyroid nodules", and indicates the various criteria which would indicate they should be removed (size, malignancy, etc.). As long as he's not worried about it, I'm not worried about it.
Hi Pika: My endo told me almost the exact same thing, but about 2 thyroid nodules I have. I've had 2 ultrasounds in 6 months and they haven't changed in size. I haven't had the needle biopsy yet, because there is some concern about the location (near carotid artery) but I will have that done after the next us. I was told that if the nodule is under a certain size you can wait and watch it. Mine haven't changed in size, and he doesn't think it's necessary to remove it unless it was malignant. Of course I don't know that yet but I will shortly. He also doesn't think it has anything to do with my slightly elevated ion calcium level either. Anyway just thought I would mention the similarities in what you were told about parathyroid adenomas and my throid situation. :wave:
Hi Pika: My endo told me almost the exact same thing, but about 2 thyroid nodules I have. I've had 2 ultrasounds in 6 months and they haven't changed in size. I haven't had the needle biopsy yet, because there is some concern about the location (near carotid artery) but I will have that done after the next us. I was told that if the nodule is under a certain size you can wait and watch it. Mine haven't changed in size, and he doesn't think it's necessary to remove it unless it was malignant. Of course I don't know that yet but I will shortly. He also doesn't think it has anything to do with my slightly elevated ion calcium level either. Anyway just thought I would mention the similarities in what you were told about parathyroid adenomas and my throid situation. :wave:
DesertBloom
03-20-2007, 06:44 PM
My dr had recently said from my blood work my pth level was high and that i am vitamin D deficient. He wants me to take 400 International (sp??) pills
3x's a day. In my last sono of my thyroid it also said possible considerations "parathyroid andenoma". From what i have read about parathyroid andenomas is that they always have to be removed. Has anyone been vitamin d deficient and the supplements have worked???
Any input would be appreciated on this
thanks
Jennifer
Hi Jenn: Did your dr tell you that you had to have this removed? Does your dr think the low d and elevated pth is from this adenoma?
I wouldn't want to have something removed unless it was absolutely necessary, which they could determine from a biopsy. Just a thought about possible pre-op testing that could give you some info first before having a surgery. :wave:
3x's a day. In my last sono of my thyroid it also said possible considerations "parathyroid andenoma". From what i have read about parathyroid andenomas is that they always have to be removed. Has anyone been vitamin d deficient and the supplements have worked???
Any input would be appreciated on this
thanks
Jennifer
Hi Jenn: Did your dr tell you that you had to have this removed? Does your dr think the low d and elevated pth is from this adenoma?
I wouldn't want to have something removed unless it was absolutely necessary, which they could determine from a biopsy. Just a thought about possible pre-op testing that could give you some info first before having a surgery. :wave:
jenn3
03-24-2007, 11:29 PM
hi desertstorm
well went to the endo and he believes that the parathyroid is enlarged due to being vit d deficient and it is making the parathyroid work harder. I will take the vit d supplements and have blood retested in 4 weeks and in 8 weeks have another sono to see what is going on.
So not thinking about any surgeries for now, thankfully.
I am not having any symptoms from it either.
jennifer
well went to the endo and he believes that the parathyroid is enlarged due to being vit d deficient and it is making the parathyroid work harder. I will take the vit d supplements and have blood retested in 4 weeks and in 8 weeks have another sono to see what is going on.
So not thinking about any surgeries for now, thankfully.
I am not having any symptoms from it either.
jennifer
petal*pusher
03-25-2007, 04:17 PM
Very interesting! Your post made me look up "parathyroid andenomas"...and I wonder if the two "cysts" removed from my neck in the past 6 years are what you're talking about.
My father died from Lymphoma and when these appeared (a few years apart) on my throat, I had them looked at because I was worried. Nobody used any other word except "cyst". Hmmmmm......do you suppose?!?......p;)
My father died from Lymphoma and when these appeared (a few years apart) on my throat, I had them looked at because I was worried. Nobody used any other word except "cyst". Hmmmmm......do you suppose?!?......p;)
DesertBloom
03-25-2007, 04:54 PM
Hi Petal Pusher: On the cysts you had removed, do you mind telling me where they were located, like at the base of your throat/neck or somewhere else on your neck. Your thryoid gland is at the base of your neck (front) and your parathyroids are behind that. My brother had a cyst in his neck, but it was not near a gland of any kind and it was on the back of his neck, and of course they only called it a cyst not a nodule, adenoma, or goiter.:wave:
DesertBloom
03-25-2007, 05:01 PM
Hi Jenn3: I'm glad you found out more about this and that they're taking the cautious approach!!! It makes me nervous when Drs jump on a surgical decision before they do tests that could give them more info. We have so many options today for pre-op testing, that it's unusual for someone to suggest surgery without a clear cut reason from a preoperative test. I could see if you had a biopsy and it was malignant or causing some other problem, then you would take it out. I hope the vit d takes care of it for you...
Good Luck...
Good Luck...
michael178
03-25-2007, 05:08 PM
Vitamin D deficiency is the newest theory of the cause of MS. For years, since the 1950s, medicine has known that MS is a cold climate disease, that people in warm climate do not get it. Now they have linked that theory to not enough sunshine and the vitamin D deficiency.
jenn3
03-31-2007, 01:16 AM
hi desertbloom
dr said at my last sonogram the adenomas were to small to biopsy so i am going to have another biopsy in 3 months and i just started the vitamin d pills and i am on synthroid for hypo/hashi.
jennifer
dr said at my last sonogram the adenomas were to small to biopsy so i am going to have another biopsy in 3 months and i just started the vitamin d pills and i am on synthroid for hypo/hashi.
jennifer
petal*pusher
03-31-2007, 10:32 AM
DesertBloom.......the first "cyst" removed was about 3" beneath my ear...and then an inch or so towards the front. The second, was in front, where the collarbone starts.
Do these appear anywhere else on the body...or just the neck?.......p;)
Do these appear anywhere else on the body...or just the neck?.......p;)