wannarun
04-10-2007, 05:42 PM
I have been reading some past posts from years ago on this board.
I have only been dealing daily with this since July '06 (9mos) and compared with others, this isn't that long at all. But, I have stated before that I am not patient, so I'm getting worked up.
I have been dx'd with BPPV. I have done the Epley and can now do it without getting dizzy. Hooray. But it seems to make my daily wooziness worse if that makes any sense-when I actually do the maneuver, I feel pressure in my head and my neck feels tight. So I don't do it often anymore-once/week at most.
I have had some days (last month) that I was feeling quite well, actually. I attributed it to the Neck PT I am receiving. So I started exercising again. That all felt pretty good.
Then, the woozies crept back in more and more. It was hormonal time for me, so I attributed it to that, along with adding exercise back into my routine, I figured maybe I was compensating. But it just kept getting worse and worse.
the neck PT worked on my muscles right where the skull meets neck (c1 and c2) and it hurt, but felt ok. That was Friday, it's now Tuesday and I am still sore, tender and headachey from it. Today I went back to them and they did gentle stuff on me. It seems better, but I am so woozy. I feel like I am almost back to where I was prior to BPPV dx: The ground felt like it was moving on me; I felt like I was going to fall to the left at the store today, headachey, need to eat every two hours or so, and grouchy!
My husband is travelling (again) this week, so I am home with 3 kids and not much relief in sight. I am really trying to keep going and not let this slow me down, but my patience is wearing thin.
I have made an appt with a neurologist (whose "area of interest" is in migraine and dizziness) but cannot get in for a month. The PT I am seeing feels strongly that the upper cervical neck is causing a lot of this daily wooziness but cannot figure out why. I have a message to my primary doc to ask for a neck CT or MRI prior to the neurologist appt just so I wont' get there in a month and have the neurologist order one and wait weeks for another appt for results. I am starting to really wonder if it's migraine related. After reading the past posts on this board I don't want to wait 2 years and then try migraine treatment. I feel fortunate having this board that I can learn from others experiences and seek help or at least explore the option of it being something along with the BPPV before it gets to the many years point.
I do get "optical migraines", also called auras (flashing lights that move out of my sight after 20min or so, then no headache afterwards) and have since I was a pre-teen-not often at all, pretty rarely actually. Now when I get them (most often than I ever have in my life so far-about 4 in the last 6 months), the last couple of times I got a headache after the flashing lights have gone out of my sight, so I am really wondering about MAV now.
I get frustrated after having a decent week then more weeks of yuck. I want to help my daughter learn to jump rope, take my littlest to museums and help my "middle man" with his basketball skills without worrying about carrying a snack with me and hope that my legs won't feel like jello.Heck, I'd like to be able to figure out what's for dinner without feeling like it's the biggest burden of the day.
Thanks for listening. Sorry, but I am just getting to the end of my rope this week. I don't feel like my friends can understand totally and they've been so supportive, I just hate complaining to them, again. So, I'm reaching out to y'all and hope that you won't roll your eyes at this post (but I guess rolling your eyes at me would be good VRT's! LOL).
I have only been dealing daily with this since July '06 (9mos) and compared with others, this isn't that long at all. But, I have stated before that I am not patient, so I'm getting worked up.
I have been dx'd with BPPV. I have done the Epley and can now do it without getting dizzy. Hooray. But it seems to make my daily wooziness worse if that makes any sense-when I actually do the maneuver, I feel pressure in my head and my neck feels tight. So I don't do it often anymore-once/week at most.
I have had some days (last month) that I was feeling quite well, actually. I attributed it to the Neck PT I am receiving. So I started exercising again. That all felt pretty good.
Then, the woozies crept back in more and more. It was hormonal time for me, so I attributed it to that, along with adding exercise back into my routine, I figured maybe I was compensating. But it just kept getting worse and worse.
the neck PT worked on my muscles right where the skull meets neck (c1 and c2) and it hurt, but felt ok. That was Friday, it's now Tuesday and I am still sore, tender and headachey from it. Today I went back to them and they did gentle stuff on me. It seems better, but I am so woozy. I feel like I am almost back to where I was prior to BPPV dx: The ground felt like it was moving on me; I felt like I was going to fall to the left at the store today, headachey, need to eat every two hours or so, and grouchy!
My husband is travelling (again) this week, so I am home with 3 kids and not much relief in sight. I am really trying to keep going and not let this slow me down, but my patience is wearing thin.
I have made an appt with a neurologist (whose "area of interest" is in migraine and dizziness) but cannot get in for a month. The PT I am seeing feels strongly that the upper cervical neck is causing a lot of this daily wooziness but cannot figure out why. I have a message to my primary doc to ask for a neck CT or MRI prior to the neurologist appt just so I wont' get there in a month and have the neurologist order one and wait weeks for another appt for results. I am starting to really wonder if it's migraine related. After reading the past posts on this board I don't want to wait 2 years and then try migraine treatment. I feel fortunate having this board that I can learn from others experiences and seek help or at least explore the option of it being something along with the BPPV before it gets to the many years point.
I do get "optical migraines", also called auras (flashing lights that move out of my sight after 20min or so, then no headache afterwards) and have since I was a pre-teen-not often at all, pretty rarely actually. Now when I get them (most often than I ever have in my life so far-about 4 in the last 6 months), the last couple of times I got a headache after the flashing lights have gone out of my sight, so I am really wondering about MAV now.
I get frustrated after having a decent week then more weeks of yuck. I want to help my daughter learn to jump rope, take my littlest to museums and help my "middle man" with his basketball skills without worrying about carrying a snack with me and hope that my legs won't feel like jello.Heck, I'd like to be able to figure out what's for dinner without feeling like it's the biggest burden of the day.
Thanks for listening. Sorry, but I am just getting to the end of my rope this week. I don't feel like my friends can understand totally and they've been so supportive, I just hate complaining to them, again. So, I'm reaching out to y'all and hope that you won't roll your eyes at this post (but I guess rolling your eyes at me would be good VRT's! LOL).