trinity0987
04-22-2007, 10:43 PM
I dont have my neuro appt till Thursday and some days I have spells when I dont feel like I will make it....I go back in forth in my mind whether it is ms or lyme but I am convinced it is one of them....one symptom I havent seen on the lyme symptom list is bladder incontinuance(sp).....I have had that for a while....waiting is so hard....feeling so lousy....
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unclesam612
04-23-2007, 01:50 AM
waiting is the hard part sorry you are having to go through that. Hate you feel so bad but you still have to let the Dr. figure out what it is. Maybe they can tell you when you see them. Did your Dr tell you it was one of the two or was he unsure? If he is unsure maybe the news won't be all that bad. Good luck and let us know what happens.
newwoof
04-23-2007, 03:07 AM
Sorry to hear you are down. I don't have anything other than I hope you get a dx that you want. Just want to say to write down all your questions for the doc. and good luck. I hate waiting....
doug
doug
agravy
04-23-2007, 09:32 AM
I believe for most of us here, it has been a struggle to function day to day, plus deal with the uncertainty of what is wrong with us. Are we going crazy, loosing our minds, or what? I have struggled for over 2yrs. & just found out last fri. from the lady who does the iv infusion treatments that dx ms has been in my charts since 11-03--5 & noone has told me. My neuro just kept sasying that i wasn't crazy & to be patient that he would figure out what it was. he told me he was treating my sx & taking care of my migraines. my neuro. has over 9,000 patients in his single practice so if you are getting in to see yours in less than every 6 mounths, you had better make sure & keep a journal & list of questions, because sometimes they can be in & out before you know it. Also, keep calling back for test results & always request copies for yourself. This will help, for so many of us have had to go for many other opinions.
I hope some of this made sense & will help you along your journey. Nobody wants to have ms, but we do want to have a name to whatever it is that is wrong.
Love & prayers to you & your family.
Alicia
I hope some of this made sense & will help you along your journey. Nobody wants to have ms, but we do want to have a name to whatever it is that is wrong.
Love & prayers to you & your family.
Alicia
Bearygood
04-23-2007, 10:54 AM
Hi, trinity! I know the pain is bad and you're worried but I hope you can try to find a way to focus on other things until your neuro appt. Whether it's watching a funny movie or calling in some friends for support, try to lift your spirits. Whether it's pain or stress, it's nice to have moments when you can take your mind off of things --however fleeting, it can help! :) I hope that today is a better day and the countdown to Thursday gets a little easier.