Hello all....

Just needed to post this am because I've been up most of the night already worrying about a procedure that isn't taking place until May 10th.

Since being diagnosed with AIS (adenocarcinoma-in-situ), it's all I've been able to think about. Knowing that I have to wait for results again after the CKC is already making my stomach hurt. After hearing my doctor tell me that this condition is pretty rare, scares me. Knowing that the copolscopy results could be totally different than what they take out during the CKC, scares me.
Knowing that there is a chance that some of it will be left behind, scares me. Knowing all the risks involved in just the surgery alone, is overwhelming. Knowing the "worse case scenario" scares me the most.

For those of you dx with AIS, is there a website that explains in layman's terms what AIS is? If it isn't cancer, what is it? Is it severe dysplaysia gone terribly wrong?

I know positive thinking is a big part of what makes this whole process go easier, but how do you get to that point? How do you stop thinking about the negative and start to only think positively?

I'm sorry if this post sounds all out of sorts...I guess that is how I'm feeling. Maybe a couple of you or maybe even one can shed some more light on this for me.

Thanks in advance!

Tori

I'm so sorry you're dealing with all of this, *hugs*. It's completely normal to have these thoughts and feelings. It's difficult to feel positive, I know. However, I hope you find comfort in knowing you will get through this.

AIS and CIS are known as precancers by the majority, but I have heard of some who consider them localized cancer. It appears, the confusion is because "cancer", by definition, is invasive and this isn't...it's a step before. I've read that adeno can be a bit more aggressive, but I don't know any details. I would ask your doctor for more information. BTW, I can't remember..are you seeing a gyn/onc?

The most important thing is, you're getting it taken care of soon. Hopefully, it is AIS and nothing worse...but keep in mind it's all treatable. I know your doctor will do his/her best to get clear margins too. If he/she doesn't though, there are other options. It took two leeps and a cone before I got clear margins...was told I needed a hysterectomy, but had the second leep done instead. I admit, he wasn't fond of the idea...but it worked! That was six years ago and I'm still doing fine. (I had CIN III w/glandular involvement though...not sure if the "glandular involvement" relates to the glandular nature of AIS or not. I've had trouble finding out what it means, exactly.)

Thoughts & prayers...