marinewife12
04-29-2007, 01:24 PM
So, my dr. pre-diagnosed me with PCOS at my last appointment. I have an ultrasound scheduled for the 9th so until then, I guess I won't know for sure. But based on my symptoms, he said this is what it sounds like.
I have had my period now for 7 weeks. It's a real period. Some days it's spotting and then it's like it's gone...and then it comes back. I have had the most miserable 5 weeks of my life. The first two weren't terrible, just felt like an extra long regular period. And since I don't have symptoms with my period, it wasn't terrible, just annoying. But these last 5 weeks have honestly been some of the worst weeks of my life.
My Dr. gave me progesterone, and he said take it for 10 days and it should help clear out my system. Yesterday was my 10th day on it, and I'm still bleeding! And it's not light, it's a hardcore period. I called to ask but they have 48 hours to get back to me.
Anyone have any suggestions on this? I honestly can barely move at this point. I'm on iron suppliments, for obvious reasons. But I seriously can just barely move. Is this really a symptom of PCOS? Am I in for the longest years of my life? I want kids desperately...that's how we finally figured this out. I was on bcp for 6 years, and we decided to TTC back in June. If I hadn't stopped taking bcp, it owuld have taken a lot longer.
And this may be a super dumb question...but am I going to put myself in danger continually bleeding like this? I know my iron is low, hence the iron pills. But losing all of this blood for this long, should I be worried about other health problems?
Anything you can give me would be appreciated!
I have had my period now for 7 weeks. It's a real period. Some days it's spotting and then it's like it's gone...and then it comes back. I have had the most miserable 5 weeks of my life. The first two weren't terrible, just felt like an extra long regular period. And since I don't have symptoms with my period, it wasn't terrible, just annoying. But these last 5 weeks have honestly been some of the worst weeks of my life.
My Dr. gave me progesterone, and he said take it for 10 days and it should help clear out my system. Yesterday was my 10th day on it, and I'm still bleeding! And it's not light, it's a hardcore period. I called to ask but they have 48 hours to get back to me.
Anyone have any suggestions on this? I honestly can barely move at this point. I'm on iron suppliments, for obvious reasons. But I seriously can just barely move. Is this really a symptom of PCOS? Am I in for the longest years of my life? I want kids desperately...that's how we finally figured this out. I was on bcp for 6 years, and we decided to TTC back in June. If I hadn't stopped taking bcp, it owuld have taken a lot longer.
And this may be a super dumb question...but am I going to put myself in danger continually bleeding like this? I know my iron is low, hence the iron pills. But losing all of this blood for this long, should I be worried about other health problems?
Anything you can give me would be appreciated!
Sponsor
marinewife12
05-02-2007, 02:19 AM
Alright so I saw my Dr. today. I still have not stopped bleeding. He gave me a month of birth control pills. I'm supposed to take 2 pills a day until my bleeding stops, and then take one a day until the pack is out.
Is this odd? I haven't heard of this before. I'm willing to do ANYTHING to stop the bleeding. But we also really want a baby.
He mentioned after we get my ultrasound results back, we'll know more. But he said if it really is PCOS, we'll start metformin. How has this worked for you?
Kate
Is this odd? I haven't heard of this before. I'm willing to do ANYTHING to stop the bleeding. But we also really want a baby.
He mentioned after we get my ultrasound results back, we'll know more. But he said if it really is PCOS, we'll start metformin. How has this worked for you?
Kate
Elliesmom
05-03-2007, 06:57 PM
I know there are things they can do to manipulate things - once you've gone long enough for them to say you have fertility problems. :( But right now I'd worry about getting over this and THEN start talking to your Doctor about fertility issues.
If your husband is still in the military they have an excellent infertility program at Walter Reed for very little money (which is nice because Tricare pays for almost nothing), but you have to cover your own travel. I know - I am having babies 2 and 3 that were made in their lab there in a couple months. :) Part of the protocol you spend a month on BC pills, a month shooting up with hormones to super ovulate (and have a period in there), and then they do the extraction. Some people can conceive just by using the medication - without the in vitro. I was not one of them, but I knew some who did. Good luck!
If your husband is still in the military they have an excellent infertility program at Walter Reed for very little money (which is nice because Tricare pays for almost nothing), but you have to cover your own travel. I know - I am having babies 2 and 3 that were made in their lab there in a couple months. :) Part of the protocol you spend a month on BC pills, a month shooting up with hormones to super ovulate (and have a period in there), and then they do the extraction. Some people can conceive just by using the medication - without the in vitro. I was not one of them, but I knew some who did. Good luck!
marinewife12
05-04-2007, 02:35 AM
Where is this Walter Reed place? I'm interested to hear more about this.
I've learned that you really have to do your own research with Tricare and be your own advocate. Most of the time Drs. won't help you with the extras, and you really have to know your stuff and push for what you want. If you're not one step ahead, then you're 5 steps behind with Tricare.
I've learned that you really have to do your own research with Tricare and be your own advocate. Most of the time Drs. won't help you with the extras, and you really have to know your stuff and push for what you want. If you're not one step ahead, then you're 5 steps behind with Tricare.
Elliesmom
05-04-2007, 12:18 PM
Walter Reed Army Medical Center in Washington D.C.
The thing with Tricare is all they will tell you is that "we don't cover that." When the hidden secret is that if you travel to one of the big hospitals you can get the procedure for free performed by a military Doctor at a military hospital. I think Walter Reed is the best for the infertility stuff, but I believe the big hospitals in Pearl Harbor (Navy hospital) and in San Antonio (Air Force) also perform the procedures. It doesn't matter what branch your spouse is in - they serve their area not the specific service.
Walter Reed has alot of information about what they offer on their website if you look it up - the others might also.
I do my best to pass the word, because after I did it I found out about so many people who paid for it themselves or adopted because they couldn't afford to pay for it. All because no one told them about the program. :mad:
The thing with Tricare is all they will tell you is that "we don't cover that." When the hidden secret is that if you travel to one of the big hospitals you can get the procedure for free performed by a military Doctor at a military hospital. I think Walter Reed is the best for the infertility stuff, but I believe the big hospitals in Pearl Harbor (Navy hospital) and in San Antonio (Air Force) also perform the procedures. It doesn't matter what branch your spouse is in - they serve their area not the specific service.
Walter Reed has alot of information about what they offer on their website if you look it up - the others might also.
I do my best to pass the word, because after I did it I found out about so many people who paid for it themselves or adopted because they couldn't afford to pay for it. All because no one told them about the program. :mad:
marinewife12
05-04-2007, 05:41 PM
You are AMAZING!!!!!
We're not near DC, we're in Florida. But if it comes to that (down the road) needing IVF, then I would be more than willing to spend some time in DC with friends while going through the procedure. So...how do I go about doing that?? Do I tell my Dr. I want to pursue IVF at Walter Reed? Do I just call WR and set up an appointment? Do I talk to my Tricare line first? I'm dying to hear more about this!
Kate
We're not near DC, we're in Florida. But if it comes to that (down the road) needing IVF, then I would be more than willing to spend some time in DC with friends while going through the procedure. So...how do I go about doing that?? Do I tell my Dr. I want to pursue IVF at Walter Reed? Do I just call WR and set up an appointment? Do I talk to my Tricare line first? I'm dying to hear more about this!
Kate
infertmert
05-05-2007, 03:40 PM
Ok, I'm not military but I have been dealing with PSOC for quite a while. I haven't had any babies, but I haven't really tried. I suffered for years with abnormal periods that went on for months. BC only helped when I was on it and I suffered from really bad depression I now believe was related to it. It was horrible. I had to insist that my Doctor prescribe Metformin after much research on my part. And it has made my periods normal for the first time since I was a teenager. And my depression gone. Also I lost alot of weight added bonuses. I would make sure to keep on your DR about the metformin. In my research I found that many women with PCOS have gotten preg by just taking metformin as a matter of fact I have a friend who wasn't trying to get preg but had to be put on metformin for the same reason and now has 2 kids. That's what made me a believer. Had to see it.
Infertmert
Infertmert
marinewife12
05-06-2007, 01:56 AM
Thank you for the encouragement infertment.
I really do have a great Dr. I'm just frustrated that I have to wait until the tests. I understand (things take awhile with military hospitals) but still, it's frustrating.
I just want the period to stop. So he said after that happens, I'll start on metformin. It slowed down, but it hasn't stopped yet. I still have to use tampons. But that's alright...it's way better than it was. And we're gettign there.
I'm just so excited to try the metformin. I'm trying to keep realistic about it and not get TOO excited...but I can't help it. We're just dying to have a baby.
Kate
I really do have a great Dr. I'm just frustrated that I have to wait until the tests. I understand (things take awhile with military hospitals) but still, it's frustrating.
I just want the period to stop. So he said after that happens, I'll start on metformin. It slowed down, but it hasn't stopped yet. I still have to use tampons. But that's alright...it's way better than it was. And we're gettign there.
I'm just so excited to try the metformin. I'm trying to keep realistic about it and not get TOO excited...but I can't help it. We're just dying to have a baby.
Kate
Elliesmom
05-07-2007, 05:06 PM
To get into the program you get your PCM to refer you for being infertile and they have a list of blood tests you have to get done that you fax in along with that to Walter Reed. There is also a Saline Sonogram that has to be done. If you go to their website (Walter Reed) and go under the gyno department andf then the infertility department from there, they have the list of things you need to complete your "package." Once you send all that in you go on the waiting list. I think I waited about 6 months the first time. Hardly at all the second time. Hopefuly you won't need it though!
mba111
05-08-2007, 03:30 PM
I had a never ending period myself. At first they thought it was hypothyroidism. Eventually, I was sent for an ultrasound and MRI. A solid mass was found on my ovary. It turned out to be a granulosa cell carcinoma. This is a very rare but slow growing type of cancer. It is also unlikely to spread. The reason it causes a never ending period is that the tumor produces estrogen. It was treated by removing the ovary. No other treatment was necessary. Good Luck!
lucy1978
05-27-2007, 12:54 PM
I was on the never-ending period too. From Sept of 06-till now 5/07. My regular obgyn told me that it was just a side effect of PCOS that I would live with...
I finally started to see an RE instead of a regular obgyn and he was he was helpful in that he gave me provera to help get rid of all the yucky stuff that was causing the non-stop bleeding, and even though I had been bleeding for the last 7-8 mos I still had a massive period, it was awful, but now it has stopped, thank God, and now I will start clomid to help with my infertility. But be prepared that even if you have been bleeding non-stop there could be alot in your uterus that your body is not able to get rid of. See a doctor who will help you with this.
I finally started to see an RE instead of a regular obgyn and he was he was helpful in that he gave me provera to help get rid of all the yucky stuff that was causing the non-stop bleeding, and even though I had been bleeding for the last 7-8 mos I still had a massive period, it was awful, but now it has stopped, thank God, and now I will start clomid to help with my infertility. But be prepared that even if you have been bleeding non-stop there could be alot in your uterus that your body is not able to get rid of. See a doctor who will help you with this.
Jemmavdm
06-05-2007, 08:51 AM
Hi
I Also had a never ending period about 5 months before they could stop it , they tried all sorts of med but with no luck. They eventually gave me a DNC and some injections every day(dont no the name. it eventually stopped.
I an now on permenet birth control injections to control it!
Jen
I Also had a never ending period about 5 months before they could stop it , they tried all sorts of med but with no luck. They eventually gave me a DNC and some injections every day(dont no the name. it eventually stopped.
I an now on permenet birth control injections to control it!
Jen