singer78
05-30-2007, 12:50 PM
Hi all...
First, I want to thank everyone walking me through this, thus far.
:) :) :)
Secondly, it's all "coming together." I have the port put in tomorrow...they're leaving in the needle, so I can start chemo Friday. It's all happening so fast, my head is spinning....although, I'm more confident as the days go by.
One thing I'm a little leery about...I haven't heard from my bone biopsy test they did--- is "no news, good news?" They called me with the 'negative' liver results, so, naturally ...here I go again....assuming the worst, that "it" may have invaded my body more than I know... I don't know the protocol there---
I'm seeing my Oncologist, immediately after the port is put in. My right shoulder has been bothering me (where my node was removed)...so, they're putting the port in the left side! Goodness gracious....how will I pick up anything? I'll ask for some heavy-duty painkillers---but, I get soooo queasy on just about every drug...other than Tylenol.
Thought I'd start a new thread. I know Susie has a hard time, after there's so many posts posted. Please help me along--- I'm hopeful, yet anticipatory.
Start your Engines !!!!!!!!!
Here I go....
Please help me hang on tight. I need all of you.
Thanks.
XO S.
First, I want to thank everyone walking me through this, thus far.
:) :) :)
Secondly, it's all "coming together." I have the port put in tomorrow...they're leaving in the needle, so I can start chemo Friday. It's all happening so fast, my head is spinning....although, I'm more confident as the days go by.
One thing I'm a little leery about...I haven't heard from my bone biopsy test they did--- is "no news, good news?" They called me with the 'negative' liver results, so, naturally ...here I go again....assuming the worst, that "it" may have invaded my body more than I know... I don't know the protocol there---
I'm seeing my Oncologist, immediately after the port is put in. My right shoulder has been bothering me (where my node was removed)...so, they're putting the port in the left side! Goodness gracious....how will I pick up anything? I'll ask for some heavy-duty painkillers---but, I get soooo queasy on just about every drug...other than Tylenol.
Thought I'd start a new thread. I know Susie has a hard time, after there's so many posts posted. Please help me along--- I'm hopeful, yet anticipatory.
Start your Engines !!!!!!!!!
Here I go....
Please help me hang on tight. I need all of you.
Thanks.
XO S.
Sponsor
DebM412
05-30-2007, 01:15 PM
Singer78,
Your strength is so inspiring. You may not know this but you help me out with your positive attitude and they way you handle situations. I want to thank you!
I will be thinking of you tomorrow getting the port in and on Friday. I will be praying for you. I hope you have a terrific day!
Love and hugs,
Deb ;)
Your strength is so inspiring. You may not know this but you help me out with your positive attitude and they way you handle situations. I want to thank you!
I will be thinking of you tomorrow getting the port in and on Friday. I will be praying for you. I hope you have a terrific day!
Love and hugs,
Deb ;)
singer78
05-30-2007, 02:00 PM
Deb, What a nice thing to say. If I can give "anything" back to this Forum, I will. I was really about to have a nervous breakdown, when somehow, some way, I was directed to this site. I normally never post like this---I'm turning into a NEW person!---not that the the 'old' me was bad....I'm just different. Like, my perspectives have all changed & it's true what they say about debilitating diseases....You come to realize every day is a gift. Amen.
Love you all who respond....:angel:
S.
Love you all who respond....:angel:
S.
Ails
05-30-2007, 04:12 PM
Hi Chick
You're doing so well. You must be so excited - tomorrow you begin to get well again!!!
Big big virtual higs coming your way
Deb is right - you are a very positive person and no doubt have been helping many people on here already with your attitude to the whole thing
Ails xx
You're doing so well. You must be so excited - tomorrow you begin to get well again!!!
Big big virtual higs coming your way
Deb is right - you are a very positive person and no doubt have been helping many people on here already with your attitude to the whole thing
Ails xx
singer78
05-30-2007, 04:40 PM
Ails---I've said it before, and I'll say it again---
You know JUST the right thing to say.
I just awoke from a nap, with that "oh no" :nono: feeling....
I can't have anything after midnight to drink/eat ....probably will have nausea tomorrow..etc...installation of a port....talk to my Oncologist...etc...
So, I'm making a cup of green tea & decided to log on....
And there it is --- Your statement "begin to get well again..." is just what I needed. It's a series of steps---baby ones :yawn: AND now it's the BIG Kahoonies :blob_fire ---or whatevertheheck you call it. Now, we ZAP those darned things and make them BE GONE FOREVER!!! (too much drama...)
Anyway, that's such a positive statement. I will write that one down & put it in my special "retreat" room (with my fairy-lights) & remind myself of that---until I DO get well.
I'm so serious---you girls are priceless.
God Bless You.
XO S.
p.s. Ails...any thoughts on why I haven't heard about my bone biopsy???? They called me when the liver biopsy was negative---so far, I haven't heard...and of course, jittery.....I guess that would just mean harsher chemo & further treatment, if it's spread???!!
You know JUST the right thing to say.
I just awoke from a nap, with that "oh no" :nono: feeling....
I can't have anything after midnight to drink/eat ....probably will have nausea tomorrow..etc...installation of a port....talk to my Oncologist...etc...
So, I'm making a cup of green tea & decided to log on....
And there it is --- Your statement "begin to get well again..." is just what I needed. It's a series of steps---baby ones :yawn: AND now it's the BIG Kahoonies :blob_fire ---or whatevertheheck you call it. Now, we ZAP those darned things and make them BE GONE FOREVER!!! (too much drama...)
Anyway, that's such a positive statement. I will write that one down & put it in my special "retreat" room (with my fairy-lights) & remind myself of that---until I DO get well.
I'm so serious---you girls are priceless.
God Bless You.
XO S.
p.s. Ails...any thoughts on why I haven't heard about my bone biopsy???? They called me when the liver biopsy was negative---so far, I haven't heard...and of course, jittery.....I guess that would just mean harsher chemo & further treatment, if it's spread???!!
Ails
05-30-2007, 05:39 PM
In my experience they tend to think it's really important to deliver bad news so that they can start to admininster drugs to heal. Their scientific healy brains tend to forget that the human spirit needs to hear the good news just quickly. They think that because no action is necessary to fix the problem that the information isn't as important???!!! I gues that's where the "no news os good news" addage comes to the fore
Ails xx
Ails xx
singer78
05-30-2007, 05:47 PM
WOW...
I SO hope you're right...
That was the last "biggie" test ...& not one response from anyone---
It's so bizarre...going through this now, and realizing, like you've said before, "it's not that bad." I anticipated panic attacks in MRI's, pain beyond control, excruciating nausea---but, even when I had my bone m. biopsy, it was "uncomfortable," but I got through it.
So...guess what??? I'm still getting compliments on my short bob! I can't believe it. My husband said I look "taller"---I had someone today ask where I got it cut! Now...if it just "remains" on my head---but, I'm armed with hats & wigs. I don't think I'll ever let it grow long, now. Live & learn.
What a learning experience this is becoming---and you are a BIG part of it!
:)
XO virtual hugs to you, too....
S.
before I go--- Did your first chemo treatment feel like all the other treatments? Do they vary in how they feel? I have 8 altogether--up until the end of September....(every other week)....
I SO hope you're right...
That was the last "biggie" test ...& not one response from anyone---
It's so bizarre...going through this now, and realizing, like you've said before, "it's not that bad." I anticipated panic attacks in MRI's, pain beyond control, excruciating nausea---but, even when I had my bone m. biopsy, it was "uncomfortable," but I got through it.
So...guess what??? I'm still getting compliments on my short bob! I can't believe it. My husband said I look "taller"---I had someone today ask where I got it cut! Now...if it just "remains" on my head---but, I'm armed with hats & wigs. I don't think I'll ever let it grow long, now. Live & learn.
What a learning experience this is becoming---and you are a BIG part of it!
:)
XO virtual hugs to you, too....
S.
before I go--- Did your first chemo treatment feel like all the other treatments? Do they vary in how they feel? I have 8 altogether--up until the end of September....(every other week)....
singer78
05-30-2007, 05:51 PM
Ails, I reread your post...
They DID call me for some good news about my liver MRI being benign.
That's why I'm "antsy" about not hearing concerning the bone....
I'm so superstitious, I won't even type it out..
It's a full moon tomorrow, too. I asked the doctor who's putting in my port, if he believed any "heebie-jeebie" things about the full moon, and he said, "NO--I'm not superstitious." I like that...maybe he'll rub off on me.
I won't even "step on a crack..." You know that old adage, don't you?
S. :)
They DID call me for some good news about my liver MRI being benign.
That's why I'm "antsy" about not hearing concerning the bone....
I'm so superstitious, I won't even type it out..
It's a full moon tomorrow, too. I asked the doctor who's putting in my port, if he believed any "heebie-jeebie" things about the full moon, and he said, "NO--I'm not superstitious." I like that...maybe he'll rub off on me.
I won't even "step on a crack..." You know that old adage, don't you?
S. :)
Ails
05-30-2007, 05:56 PM
The first one was definately a "was that it?" moment. I went to my parent's house and lay on the sofa with my duvet as I thought that that was what I was meant to do (after all, I had been through a massive trauma - ahem). 30 minutes later I was like - "bored now". I had the next day off work as I thought I couldn't possibly go in as it was all traumatic and I would be sooooo ill. Yeah, right. Shopped for 5 hours then went 10 pin bowling!!!
I will admit that as the treatments went on I did get a little more tired. But not much. I used to have my chemo every other thursday afternoon so my routine was. Work in thurs morning, chemo thurs afternoon , go into work fri morning at normal time - start to flag a bit by 16:00 so go home and chill and watch DVDs (normally finish at 17:00 so not that early a finish)
Hope this helps. Wow, I obviously have too strong a work ethic and should have taken the opportunity for a bit of a slacking off sesh!!!
Ails xx
I will admit that as the treatments went on I did get a little more tired. But not much. I used to have my chemo every other thursday afternoon so my routine was. Work in thurs morning, chemo thurs afternoon , go into work fri morning at normal time - start to flag a bit by 16:00 so go home and chill and watch DVDs (normally finish at 17:00 so not that early a finish)
Hope this helps. Wow, I obviously have too strong a work ethic and should have taken the opportunity for a bit of a slacking off sesh!!!
Ails xx
Ails
05-30-2007, 05:58 PM
Step on a crack, break your mother's back? seems to ring some distant bell.. Wow, I'm not supersticious or religous - I'm very boring really!!
Ails xx
Ails xx
singer78
05-30-2007, 06:09 PM
Ails, it's refreshing, the way you are. I was raised in a religious family--complete with prayers at dinner....my sisters all sang....I just believe it's molded me into what I am...but, even though you say you're not religious, I believe you're "spiritual" because of the things you say. You believe in "human spirit" in people---and are always pulling them through---to me, that's a wonderful quality.
Thanks for filling me in on how mildly you took it (chemo)... Mind you, I'm older than you were. But, I'm holding on to the thought that I'm in relatively good shape...heart-wise, lung-wise, etc... I thought I was the picture of health, until recently...although, there was always that underlying fatigue that would come & go, and complications with burning mouth (which my doc says, now, was probably herpes fighting the beginning of "H."..that's a whole other story) That was bizarre...
I think you have an amazing spirit & not for one second :nono: do I think you're boring. I love your posts.
S. :)
Thanks for filling me in on how mildly you took it (chemo)... Mind you, I'm older than you were. But, I'm holding on to the thought that I'm in relatively good shape...heart-wise, lung-wise, etc... I thought I was the picture of health, until recently...although, there was always that underlying fatigue that would come & go, and complications with burning mouth (which my doc says, now, was probably herpes fighting the beginning of "H."..that's a whole other story) That was bizarre...
I think you have an amazing spirit & not for one second :nono: do I think you're boring. I love your posts.
S. :)
Ails
05-30-2007, 06:26 PM
It doesn't matter that you're slightly older - a lot of what we deal with is mind over matter - you have such a sunny outlook under the circumstances that I know you'll do just fine
I don't come from a religious background however I was taught very good morals (or at least I believe they are!!) I fully agree with such things as the 10 commandments although not because "God" or any religous party has instructed me to do so, simply because I believe that they are morally, rather than religiousl,y good - they are logically sound. People are what I believe in and I see "miracles" every single day in simple human kindness and interaction
I must admit, I feel slightly envious of people who have faith but I guess I'm a seeing is believing kinda gal - a doubting Thomasette if you will! :D
Ails xx
I don't come from a religious background however I was taught very good morals (or at least I believe they are!!) I fully agree with such things as the 10 commandments although not because "God" or any religous party has instructed me to do so, simply because I believe that they are morally, rather than religiousl,y good - they are logically sound. People are what I believe in and I see "miracles" every single day in simple human kindness and interaction
I must admit, I feel slightly envious of people who have faith but I guess I'm a seeing is believing kinda gal - a doubting Thomasette if you will! :D
Ails xx
singer78
05-30-2007, 06:58 PM
Ails,
Someday I will share some of my experiences--not now...they're too "long-winded." I can appreciate where you're coming from---I was like that off & on, (questioning) until I lost my sister. The family had a very spiritual thing happen---I know this isn't the forum for it---but, I totally understand where you're "coming from" and I, too, believe in the "Golden Rule"...."Do unto other's as you would have other's do unto you..."
I feel very spiritual throughout this whole ordeal...as it really is life threatening & one's optimism/spirit is so important.
Anyway---we're in agreement, that people need people---that's for darn sure! I also know that you're very informative for me, having actually experienced this first hand....and look at you now! Exercising, getting on with life...
By the way---is there a significant "other" in your life???
Or are you one of those "single chicks" who likes it kept that way?
:) S.
Someday I will share some of my experiences--not now...they're too "long-winded." I can appreciate where you're coming from---I was like that off & on, (questioning) until I lost my sister. The family had a very spiritual thing happen---I know this isn't the forum for it---but, I totally understand where you're "coming from" and I, too, believe in the "Golden Rule"...."Do unto other's as you would have other's do unto you..."
I feel very spiritual throughout this whole ordeal...as it really is life threatening & one's optimism/spirit is so important.
Anyway---we're in agreement, that people need people---that's for darn sure! I also know that you're very informative for me, having actually experienced this first hand....and look at you now! Exercising, getting on with life...
By the way---is there a significant "other" in your life???
Or are you one of those "single chicks" who likes it kept that way?
:) S.
Ails
05-30-2007, 07:09 PM
Fiercely independant - although I've forgotten why!!!! LOL :D :D :D
Sure there was a reason there somewhere
Right - must go to bed - I really have to start going to bed at reasonable time when I have to be up at daft-a-clock...but will I ever learn? Hate going to bed and hate getting up
Good luck for tomorrow, not that you'll need it
Ails xx
Sure there was a reason there somewhere
Right - must go to bed - I really have to start going to bed at reasonable time when I have to be up at daft-a-clock...but will I ever learn? Hate going to bed and hate getting up
Good luck for tomorrow, not that you'll need it
Ails xx
singer78
05-30-2007, 08:57 PM
Thanks.
Onward & upward....
:)
.....wondering where fairy-lights is???
I leave in a little over 2 hours for the hospital.
Why is it, when you "know" you can't have anything to drink, is when you're practically dying of thirst???"
I hope this goes well & the ole' anti nausea drugs kick in.
Later....
:)
Onward & upward....
:)
.....wondering where fairy-lights is???
I leave in a little over 2 hours for the hospital.
Why is it, when you "know" you can't have anything to drink, is when you're practically dying of thirst???"
I hope this goes well & the ole' anti nausea drugs kick in.
Later....
:)
fairy-lights
05-31-2007, 12:04 PM
:wave: Hi Ladies
I wouldn't let you go with out wishing you love and luck, you'll be fine, and like Ails says it's the first day on the road to getting better.
I will be watching closely.
love to you all xxx
I wouldn't let you go with out wishing you love and luck, you'll be fine, and like Ails says it's the first day on the road to getting better.
I will be watching closely.
love to you all xxx
Ails
05-31-2007, 03:56 PM
Hiya Hunny
How'd it go?
How'd it go?
DebM412
05-31-2007, 04:43 PM
Singer,
Want to let you know that I am thinking of you today and will be tomorrow. Hope you are doing well!
Love and hugs,
Deb :wave:
Want to let you know that I am thinking of you today and will be tomorrow. Hope you are doing well!
Love and hugs,
Deb :wave:
singer78
06-01-2007, 12:52 AM
Thank you so much.
I started a new thread earlier today.
Love you all! :)
I started a new thread earlier today.
Love you all! :)