Hi Everyone!
I'm so thrilled.. that I'm "on my way to being cured," as Ails said earlier. It's so exciting!
I've been at the hospital since 7:00 a.m. (almost 12 hours) and had the port put in. It was not quite as big a procedure as I thought....although, nothing's a "walk in the park," now...is it? Then, I saw my Oncologist and my last test is NEGATIVE! No bone marrow problems.....Ahhhhhhhhhhhhhhhhh
I can breathe.....Now I feel I can start.....
(For anybody reading this with concern about bone marrow issues in Hodgkin's -- it's still curable---just more involved. I'm blessed that it wasn't)
I go tomorrow for my 1st 4 hour long chemo session. But that's ok...I'm ready. My husband and I came home, and said a thankful prayer---I was so worried about my lymphoma being more involved than we knew. I'm still stage "2A" with some inner lymph nodes in my chest.
Let the healing begin.
God Bless this forum for helping me.
I still don't know everything that I'm up against concerning chemo---but I'm ready! Thank you, Ails for your info. You've been "right on the money $$$" so far, and many, many "thanks" to all my other new friends on here for their comforting, kind words.
I need to rest now....sweet dreams.
XO S.

Hi Guys....I'm posting again....I can't sleep....a little anxious and anticipatory again---but POSITIVE.
I start chemo in less than 7 hours at the Oncologist's office (where it's being administered)---everyone is upbeat there---Nice nurses & smiling faces!
:) ---back to bed....just saying "hi" to my "peeps."
S.

Question: (sorry....forgot to ask the nurse's)
Any of you people that have had chemo & have had a port...
Should you wear a "button-up" blouse/top?
Any other things I should know, before I go????
Thanx...:) :)
S.

Singer,

Wear something comfortable. Good Luck!

Deb

how'd it go, chick?

Well....
I'm home & comfy. My son is visiting, which is nice.
I had a minor reaction (fast heartbeat) to the last "D" drug--in ABVD, and they had to monitor my heart, blood pressure & other vitals. Then, they slowed the drip down. I'm still somewhat feeling "high"---rather an odd feeling. They say everyone reacts differently. I was given Zofran for sickness, and have some pills to take for the next 3 days (2 a day) to settle any nausea. Other than that---I'm o.k.
I'm still probably a little queasy from my port being put in yesterday, along with the mega-dose of chemo I got today. It was 4 hours long...from now on will only be 3, hopefully.
I'm a little spacey--sorry -hope I'm making sense.
But I'm feeling more confident than ever! I hope it continues....:cool: Thanks for asking.
XO S.

Kinda like you very first couple of glasses of wine? See the worst of it's over. (sorrym but I always find anticipation is the worst - I have a very vivid imagination) Chemo is always scary simply and soley coz you don't know what to expect.....well, now ya do!!!

Did your pee turn red ? LOL

Hi.
No...it's a little more intense feeling, than a couple of glasses of wine.
I think it's the whole bag of yesterday's anesthesia...a full loooong day....no sleep (for whatever reason-pain, I guess) then today's big ole' batch of cocktails. It's still making my heart a little more "poundy" than usual.
I've always had a pretty sensitive system---and I think they're "sockin' it to me" to get me started. The nurse (she was great) told me to drink lots and lots of water to flush out my system... Yeah--red pee. Only for about an hour. Now, I just feel somewhat "unsettled." This too, shall pass...right?
I have anti-nausea pills to take the next 3 days, too. Leave it to my mom & dad to pass down their traits of "motion sickness." They both have it---anxiety, too.... Thank you, DNA. Just kidding. They gave me some other qualities, too, that I'm thankful for.
So you never experienced any fast heartbeat of any kind? They told me my heart was "nice & strong," so, I'm assuming it's just the overwhelming accumulation of the last few days. I can't believe I'm already through one session. This is still so very bizarre, since my life is completely turned upside-down, from the beginning of May. Wow. :eek:
I still don't see how you went bowling after your treatment Ails---you must have a strong ole' constitution! Good for you!
How's the exercising coming along?
:) S.

Sorry if I'm repeating myself.
I'm a little loopy. :dizzy:

:bouncing: Hi Loopy Singer.

I am so stupid, I have just spent ages writing you a really good interesting post (like always lol) when I clicked on the wrong key by mistake and lost it all urghh:confused:

I think it's cause I'm tired :yawn: It's 2:30 here and I couldn't sleep because of the pain, so I thought I'd write to you.

How you feeling hon, you sound as though you are doing a cracking job of it all, and taking it all in your stride?

I'm sorry for being so stupid, you have enough to contend with, without having to come home from hospital, and see my sorry state!!

Thanks for you advice though it's nice knowing that we have people around who care, there's a small group of us that have been in contact for a long time and it's great, and others keep coming back every now and then.

I bet it's lovely having your son to stay, I hope he looks after his mum, your a smashing lady, and I am glad I have had the opportunity of getting to know you, I said the same to Ails, and the same goes for all of you.

I hope the feelings mutual (lol).

I'm sorry for not being there for you recently, I am back though for now, so I will try and make up for it!!

I'm going on again, any one reading this it's because I'm tired (really it is!!)

Lot's of love and hugs, keep up the good work Susie xxx

fairy-lights--HI. I know how you feel, typing for days--trying to say the right thing--and BOOM! Hit on the wrong button :eek: and it's all a dream.

I've done that many times.

I'm going back to bed ...I've been doing this---can't sleep & have a glass of water & check the forum. There's always a bit of 'something' to take back to bed & toss around in my mind, until I drift off.

Have you decided anything to do about your illnesses? I know everyone on here, are firm believers of seeking other assistance. And that's hard, too...There's usually a wait to see the popular ones...unless you have an urgent referral from someone. Is that possible? Let your fingers do the walking to a reputable clinic--even if you have further to drive. It's your life! You just can't put a price on it!
---Just wanted to say "hi." I'm glad you're coping---but, you need a plan to start living again.
Later....Maybe these ladies that are familiar with your area, can help you more...with names, addresses, email addresses, etc...
Good luck
p.s. I can only imagine your situation, having children & a husband and all that goes along with it. It's even hard, when everything is going well! The more reason to seek out some answers. Everyone on here is worried about you---you really should know 'something,' since you have so many symptoms. I think you should INSIST on certain tests. Ask this forum which tests....possibly a PET scan? That's the one that showed my staging was further along---until then, I had no idea I had 2 more nodes trying to grow in my chest/esophageus. We're Zapping them, though---"take that....& that!" I'm just saying, without these tests, I would've NEVER known. They would've just treated me for the primary tumor--and called it "stage 1"....I didn't have to insist....but, you just may.
Now, I sound like Ails (sorry, hon.) But she's always right about persistance! :)---gotta love all you gals!

:angel: Your an angel, thanks Singer,

You made me smile and your post really helped.

I am paying to see my consultant, he is supposed to be good, he's just out of his depth, and has admitted he's not sure what to do. :confused:

I just don't know where else I can go, I telephoned the lymphoma society and asked them if they could recommend a specialist, I am still waiting.

I think I had a bit of a mad one, (my recent threads!) because of the pain in my groin, back, chest and abdomen are getting worse, and I am worried that it's something bad, and they have missed it, and it'll be too late for me.

believe me I have called my consultants secretary in tears begging her for help, to no avail!!

Can you have a rash that is not visable to the eye, well not that noticeable but when you feel the skin there are lots of lumps under the skin?

I keep getting asked if I have a rash, on the left side of my neck, I have lots of little lumps, they feel strange It doesn't have to be red does it?

I could do with knowing what to ask.

How's your armpit pain, has it eased?.

Thank you again love to you all Susie xx

Hellooo
Yes, smiling is a big definite help! :)

I'm glad you're seeking answers, and not just going-with-the-flow.
You are the one in control of your body---and YOU need answers now!
I'm starting to realize through this lymphoma, that the more informed I am, the better. At first, I didn't want to know---but, that was burying my head in the sand...now, I know what to expect. If you remember my first post back in May--I was totally clueless...about tests, just about everything. Now, I'm armed with this wonderful forum, lots of books and booklets & of course the internet. Only thing, I think you have to be careful on the internet, because not everything is proven "gospel-truth." --lots of opinions on there... Take it with a grain of salt....although, in the first stages of my growing tumor, all the sites were pretty "on the money." Oh well...that's done---time to move forward, since I've been diagnosed. And Ails is right...once you know what you're dealing with, it makes it so much better. I'm still wary of the radiation I probably will have to have down-the-road...but, I'm not ever fretting like I was. I've learned a lesson. Fretting lowers your resistance & I was so anxiety-ridden I couldn't function. I'm still not exactly "happy" that I have, what I have---but, I know how to deal with it right now.
About your rashes---I never had any, so I'm clueless there. Are you on any medications that you might be allergic to? How about other allergies---materials?---milk?--- We are lactose-intolerant in our family and I drink mostly soymilk. Like they've all said here on the Forum, you need some specialists to put the "whole" picture together for you.
My armpit pain has diminished. :bouncing: Yeah...that makes me happy!
I thought every little twinge and tiny pain was associated with lymphoma...
Things just happen in your body....but you, my dear, need some much-needed answers resolved. We're all pulling for you here.
I hope I wasn't too long-winded.... I love your outlook, too...
You deserve to be well.
XO S.

Hiya

Just a quick note to say "Hi" and tell you how well you're doing. I never had radiation but someone said that if you've had chemo, then the radiation is NOTHING!!

Not gonna have long post as had migraine most of day - now that it has down-graded to a simple headache don't want to stay on laptop long and make it worse again!!

Ails xx

Ps Only just realised that my name looks like the shortened version of ailment - it's not, it's a shortened version of my actual name!! :rolleyes:

Hey there,
Sorry you have migraines...do you take anything for them?
My son takes Imitrex. He doesn't like the side-effects, though..
I've had sinus headaches all my life---probably have taken too many med's for it through the years, and that may've been why they saw some healed spots on my liver. Everything I put in my mouth here-to-forth, is going to be evaluated heavily by me. No more "pill-popper".....I never really abused it...just wasn't aware enough....plus, I don't think I drank enough water.
What exactly is your long name? May I ask? Ailsondra? It must be a family name---If you don't want to type it, that's o.k.---I know we're all in a bit of "secrecy" to a degree on here. That's understandable....the World Wide Web, is exactly that---world-wide! Yikes...
Hope your headache subsides. That can really mess up your day.
I'm doing really well....so far. Only the fast heartbeat yesterday and part of last night & today... I understand, the deeper I get into this, the "harder" it may be....no getting around it. They told me about the "fatigue" part yesterday, too---but, hey---I had that months, even years ago, and didn't put the picture together.
Try to enjoy the rest of your day.
XO S.

Hi Singer

I haven't had a migraine for years! Just been really stressed for the last month - got a new job and was going to move to another part of the country. Then there was a counter offer and I decided to stay as I love where I work. Then on friday another offer from new company. So a little stressed and I think my brain got a bit full and decided to have a temper tantrum (ie migraine) .

No biggy, the only reason I mentioned it was coz really couldn't look at computer screen and didn't want you to think I had abandoned you!!


My name is Aileen - pronounced Ay-Leen. Good old Scots name

Ails xx