duttin
06-02-2007, 10:42 PM
I had read in one of your post that you don't use the auto-injector.
I have had terrible site reaction,these honkin red sites that are huge and painful.
So last night I searched the web and read the instruction on how to self inject.practiced on an orange.
I got brave,as needles scare the crap out of me,I iced my site,took a valium and a half,plus my baclofen,my tyelenol,waited until I was half sedated and I done it.i have no painful site today ,very minimal red mark.
But in the process of doing the self injection,I still scared the crap out of myself I wet my pants.Darn loose bladder.
I put an empty syringe in the auto injector and done it on the orange,with the force of that auto-injector 2 it made a holly mess out of that orange.No wonder I have nodules under the skin on the right side and huge site reactions.
I really don't think that the auto-injector is designed for thin people.
I have had terrible site reaction,these honkin red sites that are huge and painful.
So last night I searched the web and read the instruction on how to self inject.practiced on an orange.
I got brave,as needles scare the crap out of me,I iced my site,took a valium and a half,plus my baclofen,my tyelenol,waited until I was half sedated and I done it.i have no painful site today ,very minimal red mark.
But in the process of doing the self injection,I still scared the crap out of myself I wet my pants.Darn loose bladder.
I put an empty syringe in the auto injector and done it on the orange,with the force of that auto-injector 2 it made a holly mess out of that orange.No wonder I have nodules under the skin on the right side and huge site reactions.
I really don't think that the auto-injector is designed for thin people.
Sponsor
MSNik
06-03-2007, 02:10 PM
Hi Toni, sorry it took so long to get back to you. I have been having a really stressful day. I finally came upstairs to Get away from the 5 kids who are making a mess out of my house and left my husband to fend for himself...
So, im reading your post and I have to agree with you. I found that using the syringe, without the auto-inject is MUCH easier on the body as far as site injections go. I still use the autoinjector on the skin under my arm and sometimes even on my back area (above the butt, below the back). However, in my stomache and thigh- there is NOTHING to pinch. I cant use it...
Are you remembering, if you do NOT use the auto-injector to pinch a small area of skin before using the syringe? Like a half inch of skin should be pinched, then you insert the syringe, and as you inject yourself, release the pinched skin.....it helps the medicine to evenly distribute and not "bunch" up under the skin. This also helps to ensure that you are pinching flab, not muscle! Ever auto-inject into a muscle by accident? I have, it hursts like the dickens.... also, remember no matter what you do, auto or self injection, MASSAGE the area well for 2 minutes after the shot. Did you ever look into the Arnica I suggested? Its great to massage with...but no matter what, massaging it helps to prevent the red marks, too.
Sounds like you figured this out for yourself....how are you feeling overall? DId your neuro call back? And, why do you like this neuro soo much, you seem to have one heck of a time getting ahold of him when you need him. I hope youre hanging in there. IM thinking of hanging myself today...kidding, not really..but the last thing I wanted was his kids to bring 2 of their friends today, and no one bothered to tell me this was going on! I just want to go to bed and call it a day.
Hope you are feeling better.
Hugs,
Nikki
So, im reading your post and I have to agree with you. I found that using the syringe, without the auto-inject is MUCH easier on the body as far as site injections go. I still use the autoinjector on the skin under my arm and sometimes even on my back area (above the butt, below the back). However, in my stomache and thigh- there is NOTHING to pinch. I cant use it...
Are you remembering, if you do NOT use the auto-injector to pinch a small area of skin before using the syringe? Like a half inch of skin should be pinched, then you insert the syringe, and as you inject yourself, release the pinched skin.....it helps the medicine to evenly distribute and not "bunch" up under the skin. This also helps to ensure that you are pinching flab, not muscle! Ever auto-inject into a muscle by accident? I have, it hursts like the dickens.... also, remember no matter what you do, auto or self injection, MASSAGE the area well for 2 minutes after the shot. Did you ever look into the Arnica I suggested? Its great to massage with...but no matter what, massaging it helps to prevent the red marks, too.
Sounds like you figured this out for yourself....how are you feeling overall? DId your neuro call back? And, why do you like this neuro soo much, you seem to have one heck of a time getting ahold of him when you need him. I hope youre hanging in there. IM thinking of hanging myself today...kidding, not really..but the last thing I wanted was his kids to bring 2 of their friends today, and no one bothered to tell me this was going on! I just want to go to bed and call it a day.
Hope you are feeling better.
Hugs,
Nikki
duttin
06-03-2007, 06:36 PM
Nikki,
I have had my fullness of kids today,and they are my own.They are nothing but mouthy little bratts.
Its gonna be a long summer.its my 16 year old and 12 year old that constantly go at it.They always end up into an arguement after my 17 year old provokes them.
My 17 year old is an odd child to begin with and she thinks her points of veiw should superceed anything I say and she has a great influence over my 16 year old that it drives me nuts.
We had a full blown verbal dispute that wasn't pretty and my hubby always sides with the kids,which pisses me off.When I'm the parent I should have the final word not a kid.I'm just ready to take my dog and leave them all until they decide that they need my guidence and rules.
As far as the shots ,yes I have hit a muscle and it could of launched me through the roof.
Im in a relapse and I definatly will call my neuro's office evry hour on the hour tomorrow.I need my baclofen refilled by tuesday or I will go into seizures.
My vision in my right eye is starting to get real fuzzy,the other night down at my ma's I lost the vision completly,which freaked her out and she said are you okay,I just told her I was intermintenly loosing the vision in both eyes.heck she wanted to call an EMS.
The heat hasn't helped at all.
I have had my fullness of kids today,and they are my own.They are nothing but mouthy little bratts.
Its gonna be a long summer.its my 16 year old and 12 year old that constantly go at it.They always end up into an arguement after my 17 year old provokes them.
My 17 year old is an odd child to begin with and she thinks her points of veiw should superceed anything I say and she has a great influence over my 16 year old that it drives me nuts.
We had a full blown verbal dispute that wasn't pretty and my hubby always sides with the kids,which pisses me off.When I'm the parent I should have the final word not a kid.I'm just ready to take my dog and leave them all until they decide that they need my guidence and rules.
As far as the shots ,yes I have hit a muscle and it could of launched me through the roof.
Im in a relapse and I definatly will call my neuro's office evry hour on the hour tomorrow.I need my baclofen refilled by tuesday or I will go into seizures.
My vision in my right eye is starting to get real fuzzy,the other night down at my ma's I lost the vision completly,which freaked her out and she said are you okay,I just told her I was intermintenly loosing the vision in both eyes.heck she wanted to call an EMS.
The heat hasn't helped at all.
MSNik
06-04-2007, 09:44 AM
You poor baby. At least know you are NOT alone. Misery loves company, huh? IM still not sure relapse, or symtoms for me. I feel awful. Im constnatly overheated and sweating like a pig...my fingers, shins, and feet are killing me...some of this is new, all of this is more extreme then anything I ever felt before, and Im scared. I have an appt on Thurs morning to try to figure out what is going on. I have a feeling he is going to want me to go back on Steroids....do you think the injectable steroids which everyone is talking is worht a try?? IM thinking of asking him for it. That way, I can go tto work without dragging around the IV line...
You mentioned vision too. Im having issues with that as well. I can no longer see out of glasses- and Im not sure if it is simply a temporary thing, or if we are going that route too. My glasses prescription is only 3 months old. I should be able to see out of them, right? Ugh. Next on my list, the eye dr.
Kids are going to make it a long summer..mine are almost the same age. The one who lives with us will be 17 this summer. Her sister is going to be 12 next week and the youngest will be 8 at the end of the summer. Id gladly trade in the 8 year old for another 16 year old, anyday! Hes the only boy, and OH BOY is he ALL BOY. He showed up with one of the least well behaved kids I have ever met in my life on Saturday...never again. Ive had it already.
Anyway, I hope you feel better soon. Please keep me posted.
N
You mentioned vision too. Im having issues with that as well. I can no longer see out of glasses- and Im not sure if it is simply a temporary thing, or if we are going that route too. My glasses prescription is only 3 months old. I should be able to see out of them, right? Ugh. Next on my list, the eye dr.
Kids are going to make it a long summer..mine are almost the same age. The one who lives with us will be 17 this summer. Her sister is going to be 12 next week and the youngest will be 8 at the end of the summer. Id gladly trade in the 8 year old for another 16 year old, anyday! Hes the only boy, and OH BOY is he ALL BOY. He showed up with one of the least well behaved kids I have ever met in my life on Saturday...never again. Ive had it already.
Anyway, I hope you feel better soon. Please keep me posted.
N
duttin
06-04-2007, 03:03 PM
Your right these kids are gonna make it a long summer and with the hot weather we have had its not gonna be good for any of us.
Finally rain today,it has cooled off some.
I have double vision so bad and seeing my kids in double ain't helping.
I just back from taking my future son in law to the GP.This DR was awesome with this kid.
He is slowly taking him off his pain meds Thank GOD.IT was 8 weeks ago today he rolled his truck.I didn't think it was possible to loose 70 pounds in 7 weeks but this kid did.He's been home a week and he's gained 4 pounds back.He has lost so much muscle mass.
I just got my new glasses a week ago and can't see crap,I think its the heat shutting down my system.
Finally rain today,it has cooled off some.
I have double vision so bad and seeing my kids in double ain't helping.
I just back from taking my future son in law to the GP.This DR was awesome with this kid.
He is slowly taking him off his pain meds Thank GOD.IT was 8 weeks ago today he rolled his truck.I didn't think it was possible to loose 70 pounds in 7 weeks but this kid did.He's been home a week and he's gained 4 pounds back.He has lost so much muscle mass.
I just got my new glasses a week ago and can't see crap,I think its the heat shutting down my system.
MSNik
06-04-2007, 03:50 PM
Nuffs,
you are a hero to be taking care of your future son in law with all you are doing. God Bless you. I know what youre talking about with the break in the heat today and the rain, same thing here...but you know what? I think I am having a melt down of my own. Im very emotional and very much in pain today. I really think I should head back to bed...I hope things get better for you soon.
N
you are a hero to be taking care of your future son in law with all you are doing. God Bless you. I know what youre talking about with the break in the heat today and the rain, same thing here...but you know what? I think I am having a melt down of my own. Im very emotional and very much in pain today. I really think I should head back to bed...I hope things get better for you soon.
N
duttin
06-04-2007, 07:57 PM
Nikki,
you have your melt down,your entitled.
I think I made my oldest daughter mad,she had her God son and all he wanted to do is scream,I told her she had to take him and leave.It was to much on my nerves for today.
My feet are so inflamed,that I can barely walk,I think its the nerves,figure this out for me when I put an ice pack on the bottom of my right foot and the left foot got all tingly and numb.Which blew my mind.So I put the ice on my left foot and the right foot got tingly and numb.My wiring must be must be crossed.
My 17 year old genius says mom it sounds like you got a nerve problem.Just think she's gonna be doing nuclear engineering for the Navy.We're all in trouble:D
you have your melt down,your entitled.
I think I made my oldest daughter mad,she had her God son and all he wanted to do is scream,I told her she had to take him and leave.It was to much on my nerves for today.
My feet are so inflamed,that I can barely walk,I think its the nerves,figure this out for me when I put an ice pack on the bottom of my right foot and the left foot got all tingly and numb.Which blew my mind.So I put the ice on my left foot and the right foot got tingly and numb.My wiring must be must be crossed.
My 17 year old genius says mom it sounds like you got a nerve problem.Just think she's gonna be doing nuclear engineering for the Navy.We're all in trouble:D
MSNik
06-05-2007, 08:36 AM
thanks for the giggle. As usual, I dont have any real advice on the left foot / right foot thing. Im still struggling with getting out of the house this morning. Still never heard from that job, isnt that interesting? They havent filled it, but they arent interviewing yet, either. Watch. When I finally give up, they'll call, and Ill be in a hosptial bed...
Heat is killing all of us babe. I cannot wait till Thursday to see my Neuro..I NEED to talk to him about pain and controlling this. Hey, migranes, are they a MS thing? Ive never had one before, but have gotten one 3 nights in a row. Im thinking it MIGHT not be a migrane, maybe it is sinuses and its being aggravated by allergies...but who the heck knows anymore. Im trying to take my own advice, and not obsess on looking things up- but right now, I feel like IM having a serious attack...but maybe its all in my head. LOL. (they are all in my head).
Hugs and happy day.
Nikki
Heat is killing all of us babe. I cannot wait till Thursday to see my Neuro..I NEED to talk to him about pain and controlling this. Hey, migranes, are they a MS thing? Ive never had one before, but have gotten one 3 nights in a row. Im thinking it MIGHT not be a migrane, maybe it is sinuses and its being aggravated by allergies...but who the heck knows anymore. Im trying to take my own advice, and not obsess on looking things up- but right now, I feel like IM having a serious attack...but maybe its all in my head. LOL. (they are all in my head).
Hugs and happy day.
Nikki
duttin
06-05-2007, 10:21 AM
Quit obsessing over that job!!!!It's not been filled is a good thing.Them not interveiwing anyone at this time could be the reflection of the economical times.
Nikki,I'm a firm beleiver things happen for reasons,if ya don't get the job,it just isn't the right time for you.
Headache wise I have had one when I wake up,feels like someone used my head as a bowling ball in my sleep.There's so much humidity out there and pollen counts are high.
You could be having a relapse,STRESSING over a job,kids,you just recovered from the flu.1+1+1=could be a relapse.We are all new to this.
Its a good thing you made a neuro appointment and don't be afraid to take something for the pain,there's several mild meds.
how's that new car?
Nikki,I'm a firm beleiver things happen for reasons,if ya don't get the job,it just isn't the right time for you.
Headache wise I have had one when I wake up,feels like someone used my head as a bowling ball in my sleep.There's so much humidity out there and pollen counts are high.
You could be having a relapse,STRESSING over a job,kids,you just recovered from the flu.1+1+1=could be a relapse.We are all new to this.
Its a good thing you made a neuro appointment and don't be afraid to take something for the pain,there's several mild meds.
how's that new car?
duttin
06-05-2007, 02:56 PM
Finally seen my neuro,they called and I explained what was going on ,so he got me in.He said welcome to relapse 102,had 101 in march.he called in a pain script,what I don't know.
He wanted to admit me as i have only partial vision in my eyes today.I declined.They do the solu-medrol in my home.They are to call tomorrow about when they will start that.Guess neuro was out with the flu.
He told me to stay off my feet.
He wanted to admit me as i have only partial vision in my eyes today.I declined.They do the solu-medrol in my home.They are to call tomorrow about when they will start that.Guess neuro was out with the flu.
He told me to stay off my feet.
MSNik
06-05-2007, 04:25 PM
HI. First of all, Glad to hear you got to see the doc. Sorry to hear that you are going for another round of IV...although it is just as good to do it at home, something tells me the only way to keep you down, is to hospitalize you....T- have you inquired as to whether or not the Injectable steroids everyone here is talking about might work for you? Sure would beat hauling around an IV for 5 days..been there, done that. Im actually going to ask about this myself on Thursday. If he says no to it, I want to know why. Sounds like people here are having all sorts of success with the injectable much like the IV....Ive already called my insurance company, they will cover all but the co-pay on it..
Onwards- thank you for the kick in the butt over stupid job. Stupid job that I already have tore me a new ***hole today over something which I knew nothing about. It happened over the weekend, and Ive only been working T-W-Thur and part of Friday. So, they asked me to start working 4.5, instead of 3.5 days a week effective next month. I asked about the salary increase, and truthfully, its NOT worth it. I have to make a decision tonight. I dont get benefits, they dont give me vacation or sick days. I LOVE what I do but I HATE whom I do it for...hence the job hunting. I dont think Ill ever find 3.5 or even 4 days a week doing what I do - sometimes its worth it to get paid less and just be home at 3:30 in the afternoon! I dont know, have to talk to my husband when he gets home.
I hope the infusion nurse calls you soon and gets you started. The vision thing, thats worrysome. I know how it feels to have that issue. I always freak when it happens to me. Im battling pain, but no vision loss myself right now. UGH. IM thinking your right at relapse is about to be determined....
Keep me posted.
Nikki
Onwards- thank you for the kick in the butt over stupid job. Stupid job that I already have tore me a new ***hole today over something which I knew nothing about. It happened over the weekend, and Ive only been working T-W-Thur and part of Friday. So, they asked me to start working 4.5, instead of 3.5 days a week effective next month. I asked about the salary increase, and truthfully, its NOT worth it. I have to make a decision tonight. I dont get benefits, they dont give me vacation or sick days. I LOVE what I do but I HATE whom I do it for...hence the job hunting. I dont think Ill ever find 3.5 or even 4 days a week doing what I do - sometimes its worth it to get paid less and just be home at 3:30 in the afternoon! I dont know, have to talk to my husband when he gets home.
I hope the infusion nurse calls you soon and gets you started. The vision thing, thats worrysome. I know how it feels to have that issue. I always freak when it happens to me. Im battling pain, but no vision loss myself right now. UGH. IM thinking your right at relapse is about to be determined....
Keep me posted.
Nikki
duttin
06-05-2007, 06:46 PM
Nikki,
When my neuro's office called,I was in the attic,I know of all places to be.
My son wants to make it a weight room,so he's rentavating it.It only has a foot of blown insulation in it.Thank God its not fiber glass but made of recycled paper but what an awful mess and dusty.So I was holding bags while he was shoveling it.
He's only 16,but plans on rerunning the electrical with his grandpa's help,he's gonna dry wall it all and put in a flooring and pay for it himself.But he says he wants his privacy and a place where he and his buddy's can hang out.
I did not inquire about the injectable steroids.maybe with an IV line I'll sit my a** down and take it easy.
I've been in touch with a social security program thats working with me to rehabilitate me.They know I need to work from home so the 2 home business's we disgussed was real estate appraisal ,which I just need to take state test or becoming a job recruiter.I like interacting with people and job placement I would like.With real estate apprasal I'm not always able to drive.They will provide me with the education,lap top, and seperate phone lines for my fax machine and a business line.They will pave my drive way and put a handi-cap ramp in.Plus they'll redo my front porch and steps.
The plus with this I will not loose my benifits for the first year and I won't loose my medicaid.If I try it and can't do it in the future my benifits will be reinstated.
I'd hire you your very well educated and you are a people person.
If I decide to go that route (recruiting)I'd truely would like working and placing handi-cap people in the job force.
I went and applied for a factory job,just to see there response,leg braces,even the my past factory experience speaks for itself(group leader,have a degree in statistical process control,shipping and receiving clerk,I've ran presses in plastic and metal stamping)I was told even though my resume was exceptional they could not hire me,I'd be a liability.They had just broke every disability law out there.Heck they should of reached out and slapped me.
I would not of taken the job,I was just curious about the response I'd get.
I know its hard working for an employer thats a jerk,you have to ask yourself is the extra day worth it.If there's not much of a pay increase,no benifits or days off,personally I'd reject the offer.Why would you want to put yourself through the extra missery,when you could be relaxing on that day off.
When my neuro's office called,I was in the attic,I know of all places to be.
My son wants to make it a weight room,so he's rentavating it.It only has a foot of blown insulation in it.Thank God its not fiber glass but made of recycled paper but what an awful mess and dusty.So I was holding bags while he was shoveling it.
He's only 16,but plans on rerunning the electrical with his grandpa's help,he's gonna dry wall it all and put in a flooring and pay for it himself.But he says he wants his privacy and a place where he and his buddy's can hang out.
I did not inquire about the injectable steroids.maybe with an IV line I'll sit my a** down and take it easy.
I've been in touch with a social security program thats working with me to rehabilitate me.They know I need to work from home so the 2 home business's we disgussed was real estate appraisal ,which I just need to take state test or becoming a job recruiter.I like interacting with people and job placement I would like.With real estate apprasal I'm not always able to drive.They will provide me with the education,lap top, and seperate phone lines for my fax machine and a business line.They will pave my drive way and put a handi-cap ramp in.Plus they'll redo my front porch and steps.
The plus with this I will not loose my benifits for the first year and I won't loose my medicaid.If I try it and can't do it in the future my benifits will be reinstated.
I'd hire you your very well educated and you are a people person.
If I decide to go that route (recruiting)I'd truely would like working and placing handi-cap people in the job force.
I went and applied for a factory job,just to see there response,leg braces,even the my past factory experience speaks for itself(group leader,have a degree in statistical process control,shipping and receiving clerk,I've ran presses in plastic and metal stamping)I was told even though my resume was exceptional they could not hire me,I'd be a liability.They had just broke every disability law out there.Heck they should of reached out and slapped me.
I would not of taken the job,I was just curious about the response I'd get.
I know its hard working for an employer thats a jerk,you have to ask yourself is the extra day worth it.If there's not much of a pay increase,no benifits or days off,personally I'd reject the offer.Why would you want to put yourself through the extra missery,when you could be relaxing on that day off.
MSNik
06-05-2007, 07:18 PM
Wow. Thanks for sharing all that with me. And, for the compliment.Id hire you, too! :) Actually, I do see you working with recruitment. You know, its funny. We met with my husbands attoney the other day, and she was talking to me about Non-profit businesses, and how easy they are to start. I said the same thing, Id love to work with placing people with handicaps into the workforce. She thought it was an idea that would actually generate grants and money. Im supposed to be "getting back to her" if I want to pursue it.
The program you are working with sounds like a Win-Win situation for both of you. They get you, and you get a porch, ramp and job!! LOL. Id love to re-do my house and make it more user friendly...but honestly, dont see us staying here should I get much worse. Its a condo, but more like a townhouse, I have 2 flights of steps, and trust me, some days I cant hack them! Anyway, back to you- it sounds like a great program. Im jealous. Dont know if we have such a thing, or even where to look- but good for you! I can see you doing either type of work, but placement, would probably be more YOUR speed, as you, too, are a people person!
Your story about the factory job is amazing...and you didnt sue them, why?? Honestly, you wouldnt be worrying about working if you had taken that one thru a court! I can believe it happened, but I cant believe they can get away with that....amazing. People are TERRIBLE, arent they? Nothing surprises me anymore.
As for MY job, my husband said the same thing as you, unless he gives you another 10,000$ a year (which is HIGHLY unlikely to happen) Tell him you want to stay where you are and take the 2 days off a week and keep job hunting....he basically told me if I did it for any less, it would be worthless. You are both right. I just cant belive how CHEAP my boss is!!:p
Gotta go take a shot girly...back at ya soon.
N
The program you are working with sounds like a Win-Win situation for both of you. They get you, and you get a porch, ramp and job!! LOL. Id love to re-do my house and make it more user friendly...but honestly, dont see us staying here should I get much worse. Its a condo, but more like a townhouse, I have 2 flights of steps, and trust me, some days I cant hack them! Anyway, back to you- it sounds like a great program. Im jealous. Dont know if we have such a thing, or even where to look- but good for you! I can see you doing either type of work, but placement, would probably be more YOUR speed, as you, too, are a people person!
Your story about the factory job is amazing...and you didnt sue them, why?? Honestly, you wouldnt be worrying about working if you had taken that one thru a court! I can believe it happened, but I cant believe they can get away with that....amazing. People are TERRIBLE, arent they? Nothing surprises me anymore.
As for MY job, my husband said the same thing as you, unless he gives you another 10,000$ a year (which is HIGHLY unlikely to happen) Tell him you want to stay where you are and take the 2 days off a week and keep job hunting....he basically told me if I did it for any less, it would be worthless. You are both right. I just cant belive how CHEAP my boss is!!:p
Gotta go take a shot girly...back at ya soon.
N
duttin
06-05-2007, 11:19 PM
Nikki,
I wouldn't waste my time on that factory as they have such a high turnover rate.
My best bet is to work from home.
I worked with handicap children through the Red Cross as a teen and young adult teaching them to swim.It was an awesome experience for me.Their disire to acheive and learn was just overwhelming. Them years taught me a lot and it gave me a lot.
This program is called Ticket to work program through Social security.I found it by rearching social security and if I'm able to work part time with out loosing my benifits.Mainly medical.
I'm just in the initial stages but am a good candidate for the program,as they stated I have a sound mind.Ha---they don't realize someone stole my memory.:D
What I have researched it has been very benificial for many.
I feel for you having to climb steps,I'd be lost as I can't do them anymore.
Your employer sounds like a real dud!!!Let alone cheap.
I wouldn't waste my time on that factory as they have such a high turnover rate.
My best bet is to work from home.
I worked with handicap children through the Red Cross as a teen and young adult teaching them to swim.It was an awesome experience for me.Their disire to acheive and learn was just overwhelming. Them years taught me a lot and it gave me a lot.
This program is called Ticket to work program through Social security.I found it by rearching social security and if I'm able to work part time with out loosing my benifits.Mainly medical.
I'm just in the initial stages but am a good candidate for the program,as they stated I have a sound mind.Ha---they don't realize someone stole my memory.:D
What I have researched it has been very benificial for many.
I feel for you having to climb steps,I'd be lost as I can't do them anymore.
Your employer sounds like a real dud!!!Let alone cheap.
MSNik
06-06-2007, 09:25 AM
Tee Hee! Thanks for another smile. Ticket sounds quite interesting, Ill have to look into it at some point. Hey, IM off to a really big day in the NY suburbs...so, have a good one. Im just trying to get as much done as possible, while the break in the weather is still gong on. Iy wasnt as cool here as it was there, but its still under 80, which is a blessing! Ive got 12 accounts to see today, its going to be a long one! Talk to you soon.
N
N
duttin
06-06-2007, 10:47 PM
Sounds like a very busy day,hope you didn't over do it.
It was still cool here only 75 but 92 tomorrow.
Starting steroids monday at home.
On Tuesday all of hubbies family will be here 16 of them.I was informed of that today.I wish they would of ask first.I know hubby hasn't seen some of them in a couple of years,but dang,steroids and trying to entertain.I just got through the grad party.
I've decided that I will not be going to cedar point (amusement park)on next wensday its to be in the 90's.Hubby's mother said well rent a wheel chair.The dumb a** just doesn't understand its not the walking its the heat.I can't ride the rides anyway do to the steel rods in my back.This was to be a family week with hubby's family.But somethings I won't be attending especially with the IV line.
I was gonna ask ya I have some terrible site reactions from the rebif,the one site was from to weeks ago,its kinda purple and lumpy and it is extremely painful,I can't even wear jeans because of the waste band.
My kids made my day today,they went and had their pictures taken together and gave me a 11x 14 framed.They were dressed casual and they looked so natural.
It was still cool here only 75 but 92 tomorrow.
Starting steroids monday at home.
On Tuesday all of hubbies family will be here 16 of them.I was informed of that today.I wish they would of ask first.I know hubby hasn't seen some of them in a couple of years,but dang,steroids and trying to entertain.I just got through the grad party.
I've decided that I will not be going to cedar point (amusement park)on next wensday its to be in the 90's.Hubby's mother said well rent a wheel chair.The dumb a** just doesn't understand its not the walking its the heat.I can't ride the rides anyway do to the steel rods in my back.This was to be a family week with hubby's family.But somethings I won't be attending especially with the IV line.
I was gonna ask ya I have some terrible site reactions from the rebif,the one site was from to weeks ago,its kinda purple and lumpy and it is extremely painful,I can't even wear jeans because of the waste band.
My kids made my day today,they went and had their pictures taken together and gave me a 11x 14 framed.They were dressed casual and they looked so natural.
bella67
06-06-2007, 11:34 PM
Ok, I really feel like I'm intruding on the pm convo, but I just have to say OMG , nuff !! Now I know where you got your name from. I am just tired taking care of the kids and the house. If I knew I had 16 family members coming in to visit I'd blow my stack. Not to mention I'm not on any steroids or IV drips, etc. You are truly amazing, but I do worry about you. I noticed you killed yourself for the grad party and now you're paying the price. You never even had time to recover from that and now you have to do more?? I think your hubby should have talked to you first about this and it's almost like everyone around you is going on with their business and ignoring your needs!! I'm trying really hard not to get upset here, but I just think this is so unfair that you have to keep pushing yourself and not one person there is thinking in your best interest. :( Is there any way they could arrange to meet up at a restaurant or something instead of having it at your house??
Ok, I'll shut up now before I over step my boundaries here..*zips her lip*
Ok, I'll shut up now before I over step my boundaries here..*zips her lip*
MSNik
06-07-2007, 07:15 AM
Nuffs,
Hey. What the ?*%^# is your husband's family trying to do to you? Honestly? This is crazy. You DO NEED TO BE HOSPITALIZED,just to get away from your life for a few days....
But, at least you get use steroid rage as an excuse for "venting" next week. Glad to hear someone is coming out on Monday. Too bad it cant be sooner. I agree, skip the amusement park. Enjoy the time at home and curl up with your dog and a good book and try to relax. Maybe they'll be gone all day! I feel for ya...Im fighting off a miserable week myself, and tonight, I have out patient procedure with my GYN, my husband has to work overnight tonight, and I have to drive myself to and from this stupid procedure alone. Its a type of biopsy, so that means cutting, even if it is outpatient. Im both thankful for the "alone time" and yet terrified of having to do this alone....
now, about your site reactions. I only ever got one. It was because I hit a muscle with the stupid autoinector. It hurt like crazy and it did get hard and lumpy; thats when I stopped using the thing. Mine, was in my tummy- which seems to always hurt, but never as much as with the auto-injector that one particular time. Have you called Lifelines yet? Talk to them about this? Ive found they are very helpful and answer many questions over the phone. They even sent a nurse out that second time to check on me, when I did hurt myself. They were concerned. Overall, they told me it would heal fine, but to avoid that spot for the next month when injecting. But, yours sounds very painful. Will you be seeing any of your docs in the near future? Does icing the spot or taking Aleve/ Advil/ Tylenol help at all? Keep masaging it too, try to break up that lump. Otherwise, youre going to have to discuss possible allergies. Youre not having this same reaction everytime or anywhere else, are you?
keep in touch. Im actually working today and then shooting over to the docs office. Neuro appointment at 9 am, Gyn at 4 pm. THis is the day from "somewhere south". If I dont get back to you later, its cause I came home and crashed...otherwise Ill try to let you know what the docs say! Im especially curious to see the Neuro today. We might be having steroid rage together!
Hugs,
N
Hey. What the ?*%^# is your husband's family trying to do to you? Honestly? This is crazy. You DO NEED TO BE HOSPITALIZED,just to get away from your life for a few days....
But, at least you get use steroid rage as an excuse for "venting" next week. Glad to hear someone is coming out on Monday. Too bad it cant be sooner. I agree, skip the amusement park. Enjoy the time at home and curl up with your dog and a good book and try to relax. Maybe they'll be gone all day! I feel for ya...Im fighting off a miserable week myself, and tonight, I have out patient procedure with my GYN, my husband has to work overnight tonight, and I have to drive myself to and from this stupid procedure alone. Its a type of biopsy, so that means cutting, even if it is outpatient. Im both thankful for the "alone time" and yet terrified of having to do this alone....
now, about your site reactions. I only ever got one. It was because I hit a muscle with the stupid autoinector. It hurt like crazy and it did get hard and lumpy; thats when I stopped using the thing. Mine, was in my tummy- which seems to always hurt, but never as much as with the auto-injector that one particular time. Have you called Lifelines yet? Talk to them about this? Ive found they are very helpful and answer many questions over the phone. They even sent a nurse out that second time to check on me, when I did hurt myself. They were concerned. Overall, they told me it would heal fine, but to avoid that spot for the next month when injecting. But, yours sounds very painful. Will you be seeing any of your docs in the near future? Does icing the spot or taking Aleve/ Advil/ Tylenol help at all? Keep masaging it too, try to break up that lump. Otherwise, youre going to have to discuss possible allergies. Youre not having this same reaction everytime or anywhere else, are you?
keep in touch. Im actually working today and then shooting over to the docs office. Neuro appointment at 9 am, Gyn at 4 pm. THis is the day from "somewhere south". If I dont get back to you later, its cause I came home and crashed...otherwise Ill try to let you know what the docs say! Im especially curious to see the Neuro today. We might be having steroid rage together!
Hugs,
N
duttin
06-07-2007, 03:08 PM
Bella,
In all actuality my board name came from my dogs I used to have 3 newfoundlands in my house.one had put to sleep because of cancer,my male weighed about 260 and when I got sick he was to possesive so i found him another perfect home through animal rescue and I'm don't to one and she's a rescued pup and her names belle.
Hubby did not know his family was coming,it was his mother that called and invited themselves.I adore my sister-in-laws and their children,its the parents -in-laws from hell.
Bella you didn't over step your boundries,they were just here and I have to go to a grad party on Saturday and see all these people then.Don't know why they'd drive 2.5 hours back to my house.Other than to drive me bonkers.
Nikki,
Another busy day,wish ya didn't have to go to afternoon appointment yourself,hopefully your driving the new car.
No I have not yet called MS life lines or my Dr.I'm trying waiting it out.If its not better after steoid treatment then I call the DR.
No,this is the only bad site reaction,I get small ones,but thats the norm I guess.I ice the spot first ,then inject,massage then warm compress.
In all actuality my board name came from my dogs I used to have 3 newfoundlands in my house.one had put to sleep because of cancer,my male weighed about 260 and when I got sick he was to possesive so i found him another perfect home through animal rescue and I'm don't to one and she's a rescued pup and her names belle.
Hubby did not know his family was coming,it was his mother that called and invited themselves.I adore my sister-in-laws and their children,its the parents -in-laws from hell.
Bella you didn't over step your boundries,they were just here and I have to go to a grad party on Saturday and see all these people then.Don't know why they'd drive 2.5 hours back to my house.Other than to drive me bonkers.
Nikki,
Another busy day,wish ya didn't have to go to afternoon appointment yourself,hopefully your driving the new car.
No I have not yet called MS life lines or my Dr.I'm trying waiting it out.If its not better after steoid treatment then I call the DR.
No,this is the only bad site reaction,I get small ones,but thats the norm I guess.I ice the spot first ,then inject,massage then warm compress.
MSNik
06-07-2007, 07:40 PM
Hi Nuffs. Nope, not driving the new car. I actually still havent driven it since last week, and that was brief. I have a company car, and since I worked all day, I had that....its a good thing too. I got out of my second appointment and fell on my face. Literally. They called the rescue squad. Can you imagine? By the time they got there, I was sitting up and drinking water. It was the pain that did it...Ive never had pain like that in my entire life. Dont ever have a biospy of female areas...its very painful.
Meanwhile, saw the Neuro at 9 this morning. That didnt go well at all. He wouldnt prescribe me ANYTHING at all for the pain. He did call in Flexeril, at your suggestion (thanks!) to try at night, for when the "shin splint" pain gets to be too much to handle. I didnt stop to pick up the script yet- maybe I should have, Im having other cramps right now that are killing me. I also asked him about injectable steroids, which he WILL not prescribe, being that they are NOT approved for MS use. I didnt know this. So many people on this board are using them, why would other neuros be prescribing that if its only approved for other uses? Maybe these people arent dx yet?? I dont know. Im afraid to ask around...Ill probably offend someone. :eek:
He wants me on IV steroids IF I dont improve in a few days. Like you said, supposed to be hotter than the dickens and humid again on Friday, however, lower and cooler on the weekend. We'll see how it goes. He ordered another MRI, this time of both the Spine and Brain, and BOTH with and without contrast. I dont think I ever had the spine with contrast before. Should be interesting....the only problem is, I had one 4 months ago, so my insurance company wont pay for this until after August 10th. I have to wait, im not paying for this...he also told me he is switching allot of patients who are radiographically showing negative results with Copaxone and Avonex to Tysabri. Interesting. I asked why he wasnt switching any Rebif patients, and he said to date- not one Rebif patient is radiographically showing more legions..thats positive for you, and me! My first MRI after being on the meds 6 months didnt show any new legions...one can only hope the next one is as good. He did say that he wouldnt hesitate to switch me, if there was a reason, on film. He sticks with radiographical reasons rather than clinical reasons. He feels that symtoms come and go regularlay for us MSers...but films show progression more than anything. Not surprised he feels this way, but not too sure I want to start Tysabri if my luck doesnt hold out on the MRI in August...something to learn more about.
I hope that you have a good weekend, and that you feel better soon ,once Mondays infusion gets going. Im worried about you.
Had a miserable day today fighting with my hubby. I think Ill post on that. Maybe Ill feel better if I get some feedback on that subject...feeling the need to vent. :p
Anyway, will catch you tomorrow. I need to get off my feet and into bed.
Hugs,
N
Meanwhile, saw the Neuro at 9 this morning. That didnt go well at all. He wouldnt prescribe me ANYTHING at all for the pain. He did call in Flexeril, at your suggestion (thanks!) to try at night, for when the "shin splint" pain gets to be too much to handle. I didnt stop to pick up the script yet- maybe I should have, Im having other cramps right now that are killing me. I also asked him about injectable steroids, which he WILL not prescribe, being that they are NOT approved for MS use. I didnt know this. So many people on this board are using them, why would other neuros be prescribing that if its only approved for other uses? Maybe these people arent dx yet?? I dont know. Im afraid to ask around...Ill probably offend someone. :eek:
He wants me on IV steroids IF I dont improve in a few days. Like you said, supposed to be hotter than the dickens and humid again on Friday, however, lower and cooler on the weekend. We'll see how it goes. He ordered another MRI, this time of both the Spine and Brain, and BOTH with and without contrast. I dont think I ever had the spine with contrast before. Should be interesting....the only problem is, I had one 4 months ago, so my insurance company wont pay for this until after August 10th. I have to wait, im not paying for this...he also told me he is switching allot of patients who are radiographically showing negative results with Copaxone and Avonex to Tysabri. Interesting. I asked why he wasnt switching any Rebif patients, and he said to date- not one Rebif patient is radiographically showing more legions..thats positive for you, and me! My first MRI after being on the meds 6 months didnt show any new legions...one can only hope the next one is as good. He did say that he wouldnt hesitate to switch me, if there was a reason, on film. He sticks with radiographical reasons rather than clinical reasons. He feels that symtoms come and go regularlay for us MSers...but films show progression more than anything. Not surprised he feels this way, but not too sure I want to start Tysabri if my luck doesnt hold out on the MRI in August...something to learn more about.
I hope that you have a good weekend, and that you feel better soon ,once Mondays infusion gets going. Im worried about you.
Had a miserable day today fighting with my hubby. I think Ill post on that. Maybe Ill feel better if I get some feedback on that subject...feeling the need to vent. :p
Anyway, will catch you tomorrow. I need to get off my feet and into bed.
Hugs,
N
duttin
06-07-2007, 09:50 PM
You had a terrible day,I'm sorry to here that.
Yes,I have had a biopsy on female parts 17 years ago,I guess I was fortunate to have a DR.that beleived in sedatives first.
I'd drive that company car,save the mileage on that new car.
In sincerly feel bad that you fell,what a frightening ordeal and then to call the paramedics.I hope you didn't hurt or bruise anything,ya know as we age,we don't feel the aches and pains until days later.
That sore from that rebif injection doesn't look good I'm calling my GP tomorrow,it looks infected and there's a lumb the size of a glof ball under it.I know what I did.As I was doing my injections,one of my kids accidently scared me and I moved the auto-injector and the rebif puddled upward under the skin kinda looked like a valcano.The only way to describe it.I've been rubbing that area every hour and using a warm compress.I looked up under rebif and it can cause narcosis but in only 5% of the people.Well with my luck it could possibly be happening.And no I'm not self diagnosing.
I just don't have enough fat to do these injections.They need a pill form.
Hubby's can be a pain in the butt especially when we are feeling like crap and you had a tramatic day.
I beleive flexeril does contain a mild pain med.hope you get releif with it.I can't beleive that your neuro wouldn't give you a mild pain med.heck ultram is used for pain and its a non-narcotic.Keep on his butt if you get no releif!!!
And tell Hubby I said to be nice!!!!!!You need tender loving care right now.
Yes,I have had a biopsy on female parts 17 years ago,I guess I was fortunate to have a DR.that beleived in sedatives first.
I'd drive that company car,save the mileage on that new car.
In sincerly feel bad that you fell,what a frightening ordeal and then to call the paramedics.I hope you didn't hurt or bruise anything,ya know as we age,we don't feel the aches and pains until days later.
That sore from that rebif injection doesn't look good I'm calling my GP tomorrow,it looks infected and there's a lumb the size of a glof ball under it.I know what I did.As I was doing my injections,one of my kids accidently scared me and I moved the auto-injector and the rebif puddled upward under the skin kinda looked like a valcano.The only way to describe it.I've been rubbing that area every hour and using a warm compress.I looked up under rebif and it can cause narcosis but in only 5% of the people.Well with my luck it could possibly be happening.And no I'm not self diagnosing.
I just don't have enough fat to do these injections.They need a pill form.
Hubby's can be a pain in the butt especially when we are feeling like crap and you had a tramatic day.
I beleive flexeril does contain a mild pain med.hope you get releif with it.I can't beleive that your neuro wouldn't give you a mild pain med.heck ultram is used for pain and its a non-narcotic.Keep on his butt if you get no releif!!!
And tell Hubby I said to be nice!!!!!!You need tender loving care right now.
MSNik
06-07-2007, 10:31 PM
Hi T. Thanks for the words of encouragment. And, no, I dont think I got hurt, it was simply too much pain...too long a day. But, thanks for caring. Can you believe Im back online? Insane. Its now 9:30 and hubby isnt home, he hasnt called..and I just reached him on his cell phone. He swears he is half way home and will be here in a 1/2 hour...he also swears he didnt call becasue he was hoping I went to sleep?! Men. I cant figure them out, and I have no idea which way to justify this one...Im really upset with him.
But thats another post.
I do want you to call your doctor in the AM. Youre worrying me about this injection site thing. Please let me know what he says...as for the pill form, well, its coming- but the last time I sat in on a med panel and listened, they were claiming to be 5+ years away from it....we shall see. Im wondering if Tysabri isnt the way to go at this point...at least if it doesnt work, you know where you stand. Terrible, huh?
Let me know how you are on Friday..
Nikki
But thats another post.
I do want you to call your doctor in the AM. Youre worrying me about this injection site thing. Please let me know what he says...as for the pill form, well, its coming- but the last time I sat in on a med panel and listened, they were claiming to be 5+ years away from it....we shall see. Im wondering if Tysabri isnt the way to go at this point...at least if it doesnt work, you know where you stand. Terrible, huh?
Let me know how you are on Friday..
Nikki
duttin
06-08-2007, 09:24 AM
Hope your feeling well today and you get the chance to rest.
I am gonna call the Dr at 9:00 am or MS lines and talk to them.The hard lump seems to be shrinking but the sore doesn't look any better been using an antibiotic cream on it.
I'm hoping that its not a reaction to the rebif.
I am gonna call the Dr at 9:00 am or MS lines and talk to them.The hard lump seems to be shrinking but the sore doesn't look any better been using an antibiotic cream on it.
I'm hoping that its not a reaction to the rebif.
MSNik
06-08-2007, 10:10 AM
im feeling alittle bit better this morning, thanks. Think I might go take my car out for a spin...
I want to hear from you after you reach your doctor or Lifelines...you know at least that with Lifelines, youll get a nurse then and there! Call them both, see what each has to say...keep me posted.
I dont think this is a allergic reaction. I think you would be getting that more consistently. I think this is a reaction, but to what extent it is hurting you (beyond the obvious pain) I dont know..you need to talk to thr professionals!
Be thinking of you..
N
I want to hear from you after you reach your doctor or Lifelines...you know at least that with Lifelines, youll get a nurse then and there! Call them both, see what each has to say...keep me posted.
I dont think this is a allergic reaction. I think you would be getting that more consistently. I think this is a reaction, but to what extent it is hurting you (beyond the obvious pain) I dont know..you need to talk to thr professionals!
Be thinking of you..
N
Bearygood
06-08-2007, 11:33 AM
Nikki, sorry to hear you had such an awful day! Hope you're doing better this morning. :)
duttin
06-08-2007, 11:45 AM
I see my GP on Monday.Thats the earliest appointment available.Today its purple and indented.I have another site thats starting to get sore,now thats been 2 weeks ago.
I have rotated these sites and have no reactions in my legs.This is starting to scare me.
I have rotated these sites and have no reactions in my legs.This is starting to scare me.
MSNik
06-08-2007, 02:57 PM
HI Dont even know WHAT to say to this...Id hate to guess, but Im wondering if you hit an artery or vein when you injected..maybe? If so, it will heal, but would explain the soarness and discoloration..
Im glad you are seeing your doctor Monday...please keep me posted.
Hot there? Unreal here...staying inside today!
Hang in there, Monday isnt too far away.
but, keep me posted, please?!
N
Im glad you are seeing your doctor Monday...please keep me posted.
Hot there? Unreal here...staying inside today!
Hang in there, Monday isnt too far away.
but, keep me posted, please?!
N
duttin
06-08-2007, 03:19 PM
I did call ms lines and the nurse was clueless.
Yes it is hot and humid here,it rained and now its muggy.
I was out early this morning,fixed outside water facet,had a leak.Picked strawberries and was gonna put the railings on the front stairs ,but that'll be another days project.
Need to get the bushes trimmed sooner or later.Maybe it will cool off.
Yes it is hot and humid here,it rained and now its muggy.
I was out early this morning,fixed outside water facet,had a leak.Picked strawberries and was gonna put the railings on the front stairs ,but that'll be another days project.
Need to get the bushes trimmed sooner or later.Maybe it will cool off.